Washington D.C., USA, 22-27 July 2012www.aids2012.org

Inclusion of persons with disabilities in national AIDS policies and programmes in

Africa: Examples and opportunities

Muriel Mac-SeingHIV and AIDS Technical Advisor

Africa and South East AsiaHandicap International

July 26, 201219th International AIDS Conference

Washington, DC

Washington D.C., USA, 22-27 July 2012www.aids2012.org

From the UNGASS report of 2010

People living with HIV, people with disabilitiesand transgender people have been added

to the list of key populations.

Washington D.C., USA, 22-27 July 2012www.aids2012.org

For the first time inUNAIDS’ Strategy 2011-2015

“When social support and other programmesfor persons with disabilities are delivered in

an HIV-sensitive manner, they contributeto overcoming the historic neglect of HIV prevention and support to persons with

disabilities.”

Washington D.C., USA, 22-27 July 2012www.aids2012.org

The Political Declaration on HIV and AIDS:Intensifying our efforts to eliminate

HIV and AIDS (June 2011)

… recognizes the need to take into account the rights of persons with disabilities as setforth in the UN Convention on the Rights

of persons with disabilities, in particular with regard to health, education, accessibility and

information, in the formulation of our global response to HIV and AIDS.

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Presentation outline

Main key milestones related to disability and HIV

What to keep of the African Campaign on Disability and HIV

Examples of countries where HI is present and which include persons with disabilities in their NSPs and programming

Lessons learnt from Handicap International’s ground experience

Ways forwards

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Key milestones related to disability and HIV

Decision to work

on advocacy following

evaluation of HI’s HIV project in

MozambiqueBurundi

and Kenya

2005

Meetings in Maputo, London

and Abuja

Cape Town: Launch of the

Africa Campaign on disability and

HIV by the Secretariat of

the African Decade of PWD

and HI

2007

Elaboration of the

Campaign strategy

2007-2011

Kampala declaratio

n

Dakar: Pre-ICASA meeting

Dakar: ICASA 2008

(sessions)

2008 2009 2010 2011

UNAIDS policy brief on

disability and HIV 2009

UNCRPD 2006

Vienna: IAS 2010 (disability zone and sessions)

2012

Addis: ICASA 2011

(ISC, disability

zone, sessions with

UNAIDS, peaceful

demonstration,

accessibility)

Framework on disability inclusion in NSP with UNAIDS

Washington IAS 2012

(disability zone,

sessions with

UNAIDS, accessibilit

y)

Nairobi: taking

stock of HIV and disability advocacy

UNAIDS policy

paper on HIV and

disability +

Presentation on

inclusive Framework

with UNAIDS

Political Declaration on HIV and

AIDS including disability

2004

Global survey on disability and HIV (WB and Yale U)

UNGASS report 2010

UNAIDS strategy 2011-2015

Washington D.C., USA, 22-27 July 2012www.aids2012.org

What to keep of the African Campaign on Disability and HIV

and AIDS Co-founded by the Secretariat of the African Decade for Disabled

Persons (1999-2009) and Handicap International in 2006 An unifying umbrella composed of disabled people’s

organisations (DPOs), organisations of PLHIV, NGOs, AIDS organisations, WHO, researchers and activists

Launch of the Campaign in 2007 in Cape Town In 2008, the Kampala Declaration on Disability and HIV and AIDS

was adopted and disseminated at ICASA Dakar 2008 in French, English and Portuguese

After 2008-2009, many countries which were involved in the African Campaign decided to “indigenize” the Campaign at the national level, e.g. Kenya, Uganda, Mozambique and South Africa

Steering Committee of Campaign dissolved in 2010 to allow full ownership of various countries who have decided to work on disability and HIV at national level

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Some examples of countries where HI works:Disability prevalence and ratification of the

UNCRPD

Countries Disability prevalence UNCRDP(signature and ratification)

Ethiopia 7.2% (JICA 2002)

17.6% (WHO/WB 2011)

S: 2007; R:2010

Kenya 3.5% (Census 2009)

15.2% (WHO/WB 2011)

S: 2007; R: 2008

Mozambique 5.5% (HI et al., 2009) S: 2007; R: 2012

Rwanda 5% (NIS 2002) R: 2008

Senegal 15.5% (WHO/WB 2011) S: 2007; R: 2010

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Countries that include persons with disabilities in their NSPs and

programming* Identification of disability as key issue in situational analysis:

Kenya, Mozambique, Rwanda and Senegal Inclusion of principles (such as human rights) relevant to persons

with disabilities: Kenya, Mozambique, Rwanda and Senegal Creating a framework for the involvement of persons with

disabilities in HIV response: Kenya and Rwanda Protecting the rights of persons with disabilities: none specifically Providing HIV-related prevention, treatment, care and support

services to persons with disabilities: Kenya (HIV prevention), Mozambique (CHBC), Rwanda (HIV prevention)

Monitoring and evaluation inclusive of persons with disabilities: Rwanda

Research on persons with disabilities: Rwanda

*Using the methodology of NSP review by HEARD

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Countries where HI is undertaking HIV and disability initiatives

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Lessons learnt from Handicap International’s ground experience

Importance of undertaking studies such as KAP surveys (Kenya, Mozambique, Rwanda, Burundi, Ethiopia and Cambodia) or epidemiological surveys (Senegal and Mali) involving persons with disabilities to inform policy-makers and programmers of the HIV response Utilisation of country level evidence-based information related

to persons with disabilities key to get into NSPs Dissemination of pilot/implementation of HIV and disability

projects’ results, lessons learnt and good practices key to attract more funds for persons with disabilities in the HIV response

Involvement of DPOs crucial for community mobilisation and ownership of persons with disabilities

Partnership between DPOs and AIDS organisations/VCT centres pivotal for scale up of uptake of HIV prevention services

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Lessons learnt from Handicap International’s ground experience

(cont’d) Disability disaggregated data in data collection tools and

M&E system crucial to ensure visibility of persons with disabilities and devise appropriate disability inclusive services in the HIV response

Disability inclusion activities (such as adaptation of IEC material or reasonable accommodations) need to be linked to appropriate budget allocation for inclusive services to be effective

Active involvement in national technical committees/groups essential for advocacy, lobbying and dissemination of good practices, such as the national HIV and disability platforms

Advocacy among development partners and governments to respect and apply their own engagement for the rights of persons with disabilities (UNCRP, disability laws and policies)

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Ways forwards

Capitalize on these lessons learnt to not reinvent the wheel

Use the Framework on the inclusion of disability in NSPs by UNAIDS, HEARD, HI, UCL, DHAT, CWGHR, Barret Advocacy & Training and AIDS Free World (2011)

Lobby and advocate for the inclusion of persons with disabilities in national behavioural and epidemiological surveys and M&E system

Take advantage of donor’s calls for proposals that target persons with disabilities: EC, EIDDH, USAID, AusAID, AFD, UNICEF, etc.

Be alert on the monitoring process of the application of the UNCRPD at each country level

Washington D.C., USA, 22-27 July 2012www.aids2012.org

Thanks!

Merci !