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Transcript of Inclusion North Bulletin 110
8/20/2019 Inclusion North Bulletin 110
http://slidepdf.com/reader/full/inclusion-north-bulletin-110 1/22
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In this bulletin you will hear about some of thework Inclusion North is doing and informationabout what is happening across the country.
Find Inclusion North on Facebook and Twitter
You can find out more about all the work we aredoing by following us on Facebook and twitter at:
Facebook: www.facebook.com/InclusionNorth
Twitter: @InclusionNorth
2015 Family Carers Survey Summary
In September 2015 we did a simple survey to try to findout a bit more about what family carers think. We alsowanted to know more about how Inclusion North makes adifference to people.
This gives us some ideas about the sort of work we needto do and whether we’re doing it right.
You can see the summary report of what people said onthe link below
http://bit.ly/1LDSEaX
Inclusion North BulletinIssue Number 110
24th
Februar 2016
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Reflecting on Good Partnership Working by
Gateshead Partnership Board
Gateshead were committed and determined to make the
best of their partnership working with Inclusion North andset out on a journey to make it a success…..
Thoughts from the board……
We wanted to have a committed, driven, strong board
that understands what it’s job is and is a place of
expertise and respected opinion so people come to us for
support in the direction and delivery of our learningdisability services.
We set out to check up on all the members who were on
paper committed, but who often didn’t come along to the
meeting. We asked people to commit by signing up to our
working together agreement.
We got a brilliant committed new chair who wasindependent of the council and who had been a long
standing active member of the board for years.
We agreed a working group to design an action plan to
drive forward change and get the views of people living in
Gateshead.
All of this work has created a more dynamic, focused andcommitted partnership in Gateshead. This has given
Gateshead the ability to drive forward change that is
wanted and needed for their local population. They are
able to gather this information from people and families
from being well connected and supportive – this is
highlighted in the response to the 100 voices work we
have just done across the region.
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We believe that this shows that with a determination to
working alongside people with learning disabilities,
families and other professionals, the partnership board
are a brilliant driver for change and better services.
New Winterbourne View report
Sir Stephen Bubb is leading the work looking at new
safeguards and support for adults with learning
disabilities after the abuse that happened at
Winterbourne View.
Sir Stephen has now published his latest and final report
called Time for Change – The Challenge Ahead.
You can read the full report here
http://bit.ly/1SN6eAo
And here is the EasyRead of the report
http://bit.ly/1QbH3p7
The report looks at the progress made in the last year by
the transforming care programme, and also looks at the
big challenges ahead and what the best way to meet
them might be.
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Making sure people get better care and
support
The Royal College of Nursing (RCN) supports nurses,
people training to be a nurse, midwives and health care
assistants.
The RCN give them advice and support and help make
their work the best it can be.
They have made a report called Connect for Change,
which is about what the Royal College of Nursing think
needs to happen to help move people out of hospital and
into homes.
You can read their Connect for Change report here
http://bit.ly/1PV8lhX
You can see the EasyRead report here
http://bit.ly/1PV8lhX
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Positive Behavioural Support Resources
The PBS Academy is a group of organisations and
people who are working together to promote Positive
Behavioural Support (PBS) for working with children andadults who are at risk of behaviour that challenges.
There are booklets for people with learning disabilities
about having a good life, which you can download on the
link below
http://bit.ly/1QtvSE1
There is new information for Commissioners and Care
Managers about best practice and contracts which you
can see here
http://bit.ly/1Q5B95o
There is also a checklist for Service Providers which youcan see here
http://bit.ly/1oXBIHO
The PBS Academy hope to have more resources for
Family Carers available soon.
You can find out more about the PBS Academy on their
website at
http://bit.ly/1LCyi1U
You can also follow PBS Academy on Twitter
@PBSacademyUK
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Making Freedom Real – Makaton for Adults
Makaton is an important way of communicating for many
people with learning disabilities or communication
problems.
It has a strong track record in helping people
communicate and this is a basic requirement of human
rights and the right to personal freedom.
It is a concern that good work in schools appears to betoo often stopped as people become adults.
The Centre for Welfare Reform have published a report
which suggests that there is a basic failure in adult social
care to support people who use Makaton to use and build
on their skills as adults.
You can find out more on the Centre for Welfare
Reform’s website at
http://bit.ly/20SFCgJ
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Housing Guide for Families
The Housing and Support Alliance (H&SA) has beenfunded by NHS England to write a guide for families on
how they can change their surroundings or housing tobetter meet the needs of their child with learningdisabilities and challenging behaviour.
H&SA is also writing a guide and producing a trainingvideo for housing, health and social care organisations sothat they can better help families get the housing theyneed.
They want to make sure that the guide and videos are asuseful as possible to families and professionals, so theyare asking for people’s help to tell them about the areasin which they most need advice, support and informationwhen it comes to getting the right housing.
H&SA have made a survey for families to tell them about
their experience of getting the housing they need
http://svy.mk/1SQfhAD
They have also made a survey for people who work in
housing, health and social care to share examples of
what does and does not work
http://svy.mk/1QAg4FR
H&SA also want to hear from family networks that they
can meet with in February 2016. To take part in this,
contact Kate at
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Challenging potentially unlawful decisions by
public bodies
Housing and Support Alliance are also running a session
that will help care providers understand how to address
potentially unlawful decisions by public bodies about the
provision of services to disabled people.
The session will have particular focus on the legal dutiesunder the Care Act 2014.
As well as looking at legal rights and obligations, the
session will focus on useful ways that decisions by publicbodies can be challenged, including the role of judicialreview.
A judicial review is when a court can look at an actionmade by a public body to decide if it was lawful or not.
The session will have plenty of time for questions anddiscussion. Attendees with specific questions arewelcome to send them in advance to Steve at
As many questions as possible will be addressed duringthe session.
The session takes place on
14th April in London
There are a limited number of free places for people with
learning disabilities and family members. If you would like
to go to the session, contact Mariana at
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Workshop for siblings in Leeds
Sibs want to start a support group for adult siblings of
people with a lifelong learning disability and/or autism.
They are having a workshop where you will have the
opportunity to share experiences with other adult siblings
locally and learn more about developing a sibling group
in Leeds.
Sibs hope you will come to the workshop and join the
growing community of adult siblings in the UK.
The workshop takes place on
9th March
From
7.00pm to 9.00pm
You can find out more on the event flyer here
http://bit.ly/1WG6jnZ
You can book a place on their website at
http://bit.ly/1TCP5JU
You can contact Sibs on
or by calling
01535 645453
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CQC Regional Event in Sunderland
Sunderland People First are holding a Care QualityCommission (CQC) day. The event is for people with
Learning Disabilities, their families / carer’s andsupporters.
CQC are very keen to get feedback, good or poor, aboutany service that people have used.
There will be a presentation about CQC and how theycarry out inspections.
A CQC Inspector will also be here to talk about a day intheir life.
The event takes place on
29th March
From
10.00am to 3.00pm
A Buffet Lunch will be provided and travel costs paid.
There will also be a £15 Love to Shop voucher availableto each participant.
If you would like to come along, please contact DonnaJohnson at
or call
0191 281 8737
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Uncut Cords: Changing Families, ChangingCarers
Uncut Cords is a genuine and passionate new book
written by seven York mothers of teenage and adultchildren with learning disabilities.
Each chapter is themed and composed of short, self-contained stories.
As part of York Literature Festival, Dame Philippa Russell
will be supporting the authors as a speaker at an eventon
18th March
from
2.00pm to 4.00pm
at
Quaker Meeting HouseFriargateYorkYO1 9RL
You can find out more on the event flyer here
http://bit.ly/1TwEzmk
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Good Practice in Looking After Your Weight
The Improving Health and Lives (IHaL) team are
preparing their next 'reasonable adjustments' report.
They know that many people with learning disabilities are
either underweight or overweight. Both of these can lead
to poorer health.
The focus of the next IHaL report will be about looking
after your weight for people who are overweight.
The aim of the report is to share information, knowledge
and best practice throughout the country to support
people in improving services and care.
They would like to include as many good case studies as
possible in this report so that other people can benefitand use this information to support people with learning
disabilities to look after their weight.
If you would like to share your stories, examples of your
work or resources with IHaL, please send them to
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Doctors, Talk to me
A group of young people with learning disabilities have
been working with Harriet at Healthwatch, along with
Fixers, Paperworks and Youthwatch.
They have made a short film called ‘Doctors, Talk to me’
which is aimed at doctors, dentists and other people in
healthcare.
The film was made to give people an idea about how
scary going to the doctors can be if they don’t explain
what they’re doing.
This is a free resource to share with people who work
with people with learning disabilities.
You can see the film on the link below
http://bit.ly/1RYUGJB
There is a poster to go with the film, which you can
download at
http://bit.ly/1QAAqi6
Higher quality printed copies of the poster are available
by emailing Harriet at
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Mixed Ability Sport Survey
Mixed Ability Sports want to find out people’s views onbringing together disabled and non-disabled people who
take part in regular sports and activities.
They are asking both groups of people to complete theirMixed Ability Sport Survey.
You can take the survey online at
http://bit.ly/1QXKBaT
Or you can download an electronic copy of their surveyform here
http://bit.ly/1TwC03F
and return it to
You can also find out more about Mixed Ability Sports on
their website at
http://bit.ly/21c6qhH
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'Talk About Taking Part’ survey
Wheelpower have made a survey will find out what canbe done to help more wheelchair users lead healthy
active lives and take part in sport and physical activity.
People who use a wheelchair in everyday life, or whowould use one for sport, are urged to complete thesurvey.
They are keen to find the views of those who don’t takepart in any sport as well as people who already leadactive lives.
The survey takes around 10 minutes to complete andaims to find out what activities wheelchair users currentlytake part in, what they would like to try or do more of inthe future, and how Wheelpower can support them to dothat.
You can do the survey on the link below
http://bit.ly/1VBGRQ1
The last day that you can do the survey is
6th May
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Free access and transport to Newcastle
museums
Disabled Access Day is for all disabled people and their
families, friends and carers.
People take part by going to a place they haven’t visitedbefore, taking photos of themselves there and tellingpeople about their experiences on Twitter or Facebook.
Disabled Access Day 2016 takes place on
12th March
Rob Latham at Tyne & Wear museums tells us that all of
their events for Disabled Access Day are free and so is
any communication support.
Free transport can be arranged, for any deaf or disabled
person who does not have access to a car and / or
cannot use public transport comfortably.
You can see a list of events that this offer is open for
here
http://bit.ly/1Uk4Pkw
You can also find out more on the Tyne & Wear
museums website at
http://bit.ly/24n37mW
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Dance Syndrome’s Thunderclap campaign
Dance syndrome are an Inclusive dance group led by
people with learning disabilities, and which was started
by Jen Blackwell.
Jen has written a message to the trustees ofDanceSyndrome that they want your help in sharing onsocial media for their ‘thunderclap’ on 8th March.
Jen’s message is:
"Thanks very much for everything that u are doing forDanceSyndrome and I really can't believe it as I amchanging other people’s lives through dancing. I couldn'thave done it without support and u guys have touchedmy heart and for that I am very thankful"
Jen want’s people to share this on
8th March
because it is also International Women’s Day
You can take part by sharing this on one or all of the links
below
http://bit.ly/1QXwBhk
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http://on.fb.me/1mUzDL3
And here is the Thunderclap page that also tells youmore about Dance Syndrome
http://bit.ly/1UjX3ab
Self Advocates Health Action Heroes
York Advocacy were able to get a grant from NHS
England on behalf of the Self-Advocates Forum.
They used the grant to help find a creative way to show
some of the work self-advocates had been engaged inaround access to healthcare.
For the project they created a ‘Superheroes Comic’ with
characters based on themselves and villains intent on
stopping them being involved and included in issues
around health!
You can read the comic here
http://bit.ly/1OskHKs
And here is the story about how the comic was made
http://bit.ly/21nGg8d
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What is coming up next at Inclusion North
24th February North East Family Carers Network
25th February Yorkshire and Humber Family Carers
2nd March Yorkshire & Humber Lead Officers
14th March South Tees Provider Forum
17th March Yorkshire & Humber Leadership Group
22nd March Care Act session Darlington
23rd March Care Act session Newcastle
If you would like to know more about any of these events
contact Marie on 0113 244 4792
If you would like any information on any of ourmeetings, training or projects you can contact theoffice on:
Tel: 0113 244 4792
E-mail: [email protected]
Or you can write to us at:
Inclusion North CICWoodhouse Community Centre197 Woodhouse StreetLeeds, LS6 2NY
You can visit our website at:
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www.inclusionnorth.org Or you can contact any member of the Inclusion Northteam:
Samantha ClarkTel: 07823 536 603Email: [email protected]
Kellie Woodley
Tel: 07876 145 390
Email: [email protected]
Lucy Virgo
Tel: 07944 185771
Email: [email protected]
Angela Ellis
Tel: 07487 729237
Email: [email protected]
Marcella Celli
Tel: 07767 776125
Email: [email protected]
Kirsty Morgan
Tel: 07539 729237
Email: [email protected]
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Inclusion North Member Areas 2015-16
If you live in one of these areas you can come to ourmember events.
Yorkshire and the HumberBarnsleyBradfordCalderdale
DoncasterHullLeedsNorth LincolnshireNorth YorkshireSheffieldWakefieldYork
North EastDarlingtonDurhamGatesheadHartlepoolMiddlesbroughNewcastleNorth Tyneside
NorthumberlandRedcar and ClevelandSouth TynesideStocktonSunderland