IN CONTROL BIG EVENT WORKSHOP

Improving services for people with autistic spectrum conditions

and their family carers

What we’ll talk about

What the government is doing What SCIE is doing What you can do

What the government is doing

Autism Act – 2009 Autism Strategy “Fulfilling and Rewarding

Lives” – March 2010 Statutory guidance – December 2010

Autism Act 2009

First ever condition-specific law Required government to produce Autism

Strategy Required government to produce statutory

guidance No new rights England only & adults only

Autism Strategy – March 2010

“All adults with autism are able to live fulfilling and rewarding lives within a

society that accepts and understands them. They can get a diagnosis and

access support if they need it, and they can depend on mainstream public

services to treat them fairly as individuals, helping them to make the

most of their talents.”

Autism Strategy – March 2010

Five key themes

Awareness Diagnosis Services Work Local plans

Autism strategy – points to make

Long-term Consultation Money for training No other new money Delivery plans Reviewed 2013 Not law, but...

Statutory guidance – December 2010

Will set out what in strategy is compulsory Consultation over the summer Will cover

Diagnosis Numbers Assessment Transition Local planning & leadership Training

What SCIE is doing

Research briefing Practice enquiry SCTV Personalisation briefing

Research briefing

Evidence base for what works is weak Outcomes for people with autism often poor Access to social care is problematic Individuals ‘fall through the cracks’ People with autism and learning disabilities

access support more easily More able people often struggle for help More awareness about autism is needed

Research briefing

Evidence - effectiveness of autism specific approaches

Need better understanding of the barriers to social care among ethnic minorities, women and older people with autism

People with autism and their organisations - more vocal

Concerns about individuals with additional sensory processing differences

Practice enquiry

University of Sussex National Autistic Society

Practice enquiry

Looking at barriers to services How to overcome them Survey on NAS website Section for people with autism Section for carers www.nas.org.uk

Social Care TV

September 2010 Awareness raising Supported by Department of Health Part of training programme for different

professional groups

Personalisation briefing

Treat people with autism as individuals More support for people with Asperger’s Traditional services may not be best option People with autism take control over their

support and their life High quality support planning Good access to information Staff are trained in autism Meaningful relationships reduce

safeguarding issues

Over to you

Who you are What’s working well What needs to change What you can do/would like to see done

differently What messages for provider/manager What you can do to help your organisation