Children’s Hospital HSC Winnipeg Heart Centre

If I could do anything…

I would mend every child's heart.

Every parent hopes their child is good-hearted.

For most of us, it’s a character trait, but for many families, it’s a question of quality of life, or life itself.

The good news is that today, children survive heart conditions that couldn’t be treated a few years ago and every day, new treatment options help more children.

The challenge now at Children’s Hospital — HSC Winnipeg is the daily struggle to deliver the best quality of care to Manitoba’s children and their families, in a setting designed over 30 years ago to serve fewer children with less complex conditions.

Young cardiac patients are living longer, healthier lives than ever before, but many are frail and in need of ongoing medical care.

Our children deserve a state of the art centre for their initial and ongoing care.

THE CHILDREN' S HOSPITAL FOUNDATION2

If I could d

o anything.

Children’s Heart Centre was designed in 1987 to serve 1,800 children and their families each year.

In 2018, they provided life-saving supports to over 6,000 children and their families.

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ELL AHEART PATIENT

AGE 1

THE CHILDREN' S HOSPITAL FOUNDATION4

If we could do anything…

We would treat our cardiac patients and support their families in a new state of the art Children's Heart Centre, with all the latest technology.

So we are asking the people of Manitoba, Northwestern Ontario and Nunavut to come together in support of this goal.

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THE CHILDREN' S HOSPITAL FOUNDATION6

RENDERING OF THE NEW CHILDREN' S HEART CENTRE

THE CURRENT CATH L AB IS TOO SMALL TO ACCOMMODATE THE REQUIRED PATIENT CARE TEAM AND THE EQUIPMENT NEEDS UPDATING

With your support,

1. We would make all the space better for families, staff and volunteers.

There are a lot of wonderful moments in the Heart Centre. There are also many long days of high stress and difficulty.

Today, we don’t have enough treatment rooms or stress test areas.

Many areas lack the privacy required to have important and often difficult conversations with parents about their child’s condition.

The waiting room is old, cramped and uncomfortable.

Staff are asked to perform exceptionally well in often difficult circumstances in less than ideal professional spaces. If we want to continue to compete for the best staff in the Country, we need to be able to provide them with a current standard of work space.

2. We would move all the required specialty areas together.

The current pediatric Heart Centre is across the street from the lifesaving services of the Children’s Hospital. If a child is in severe cardiac distress and needs immediate help, there are no services available on-site and the child has to be sent across the street. Even the elevator in the building will not accommodate a stretcher or equipment.

The Heart Centre can be relocated to the 4th floor of the Diagnostic Centre of Excellence Building — in the same location as the Cardiac MRI, adjacent to the Intensive Care Unit, and other essential services.

3. We would invest in specialized equipment.

By creating an overarching Equipment Innovation Fund, we will have the most up-to-date equipment.

4. We would operationalize the Cath Lab.

The Children’s Cath Lab has not been completed, so each child who needs cardiac catherization, along with one or two parents and their doctor are being sent to Edmonton or Vancouver to have these procedures done for diagnosis or for treatment.

5. We would establish a Fluoroscopy Lab.

Fluoroscopy shows a continuous X-ray image on a monitor, like a movie.

This advanced medical imaging allows veins to be closely monitored for quicker treatment of our children.

6. We would upgrade our technology infrastructure.

Our aging information technology infrastructure limits the Heart Centre. For example, once a pediatric cardiac patient moves to the adult cardiac program their paper files are sent over via courier. Updating the technology means all information will be available immediately to surgical sites, Manitoba Health PACS (Picture Archiving and Communications System) and adult heart centres.

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The total cost will be 14.7 million dollars.

This includes:

• Building a new Heart Centre.

• Operationalizing the Cath Lab.

• Purchasing Specialized Equipment, such as a Fluoroscopy machine and more.

• Adding capacity to enhance remote monitoring of vital signs on inpatient units.

• Ensuring lifesaving research continues at the Children's Hospital Research Institute.

THE CHILDREN' S HOSPITAL FOUNDATION8

HEART CENTRE 9

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Current Space Future Space

2 examination rooms 4 examination rooms (more privacy, ability to see more patients)

2 ultrasound spaces 2 dedicated ultrasound rooms (no need to move equipment in and out to meet patient needs)

1 new shared ultrasound/ pacemaker room

Social work/ultrasound shared area Dedicated social work area (more privacy, more professional space)

Stress testing in nursing area Dedicated stress test area (more privacy, better equipment)

Counseling/shared admin area Dedicated private counseling area (more privacy, more professional space)

Expanded admin area for chart management and record keeping

4 cardiologist offices 5 cardiologist offices (more professional space, supports recruitment and retention)

3 open nursing offices Dedicated nursing area (more privacy, more professional space, supports recruitment and retention)

New teleconference/meeting area (increasing access to care through outreach to patients from around Manitoba, Northwestern Ontario, and Nunavut and supporting digital family visits.)

Shared Cath Lab with AdultsAccess 2 days per Week

Dedicated Children’s Cath Lab with current, permanent pediatric equipment in place.

Twice as many children will be seen for pre-surgery diagnostics, biopsies and some specialized valve treatments. Fewer patients, families and physicians will have to travel to Edmonton.

Here are the changes your support will bring:

THE CHILDREN' S HOSPITAL FOUNDATION10

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Meet Dawson

THE CHILDREN' S HOSPITAL FOUNDATION12

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Dawson's StoryAs Shandi gave birth to her baby boy Dawson on March 3, 2014, there was no reason to anticipate any complications. Born 6 lbs. 4 oz. and 19.5" long, all went smoothly.

A couple of weeks later Mom noticed that Dawson was sleeping an awful lot, 22 hours a day. She felt something was wrong and rushed him to Children’s Emergency.

After several tests, the news came. Dawson had multiple conditions that were keeping him from thriving. One was AP window, which is a hole between the two main arteries in the heart. Dawson also had a hole in his heart, that generally closes after birth.

What Shandi thought was a quick check-up at Children’s Hospital suddenly became a great deal more.

Dawson, age 5

THE CHILDREN' S HOSPITAL FOUNDATION14

Dawson was admitted to Children’s Hospital for monitoring. Dietitians put him on a high-calorie diet, cardiologists provided daily check-ups and best of all, someone else took care of all of the details regarding Dawson’s impending heart surgery.

Before the surgery could happen, little 7 pound Dawson required a lot of pre-ops, including getting an IV and sedation.

“They had to take blood from his skull, because his veins were so dropped,” recalls Shandi.

“That was horrible. I was holding his hand, but I had to look away or I would have fainted.”

In Edmonton, Dawson’s surgery lasted for three hours. Coming out of surgery you could barely see little Dawson amidst all of the lines and machines.

“I walked in and never expected what I saw,” remembers Shandi. “He had an IV sewn into his neck with five different cords coming off of it. He had IVs in both of his hands, a catheter, a breathing tube, a feeding tube, a chest tube, and massive bandages across his chest.”

Five days after surgery, Shandi and Dawson received some amazing news; the surgery was successful, and they could go home.

Returning home would require many follow-ups to make sure everything was healing properly, follow-ups which still continue to this day.

“I went from thinking my baby had a cold, to having open-heart surgery three weeks later,” says Shandi. “I rely on Children’s Hospital for everything. They’re kind of like our extended family. The staff is amazing, and could not have done more for us. We felt like Dawson was the only thing that mattered. There are no words to describe how much they gave to me. They gave me my son.”

“Before the doctor left for the night he said ‘I’m sorry you can’t leave the hospital, you need to stay here. You’ll be flying to Edmonton for heart surgery.’ My whole life just kind of stopped for a moment,” remembers Shandi.

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CE501 – 840 Sherbrook Street Winnipeg, MB R3A 1S1

204-787-4400

goodbear.ca

Note: Limited printed copies are available. Visit goodbear.ca/heart to share a copy.

When we come together as a community, we can do anything.

Let's make anything possible.