Identity Online:implications for

healthcare

Adriana Lukas

VRM Labs

@ Future of Health Technology SummitMIT Faculty Club

21 September 2008

My identity journey

From sabotaged identity

through inclusive identity

to my own identity

Why identity?

self-determination

impact

What is identity?

Systemic view

governmentscentralised systems

privacyrights of individual

bureaucracy

philosophypsychology

meaning of life“who am I?”

Individual view

Off-line

We are what our papers

say we are

System centric

third-party drivencentralised

read-onlystatic

hierarchy

objects are directly linked to immediate superiors or to subordinates, no direct links to peers

Hierarchy

Online

We are what we say we are

geriatric1927 = 79 year old Peter

And how others see usand relate to us

Individual centric

self-drivendistributed

read-writedynamic

Network

heterarchy: each element shares same horizontal position of power and authority, playing theoretically equal role

ConsumeCreate produce

distribute

People formerly known as audience

Environment

Technology

Individual

Structural development

Technological development

Technological development

Identity development

Structure

Enabler

Driver

User-driven phenomena social web, P2P, Web 2.0

Healthcare

Tools of medicine

Communities

PatientsLikeMe

PatientsGrandfather builds Web browser for autistic boy

Communities

Medicine

Patients

patient-driven healthcare

The wisdom of crowds does not resist expert opinion -

only dependence on a single expert opinion.

The Wisdom of Patients: Health care meets online social media

Networked healthcare

Google HealthMicrosoft Health VaultIndivo health/Dossia

Sugarstats

Data

Relationships

Applications

extended knowledgeshared expertise

distributedfocused where needed

Individual/patient as a platform

VRM Labs

www.vrmlabs.net

www.themineproject.org

adriana.lukas@gmail.com