ICHOM - OHDSI Forumsforums.ohdsi.org/uploads/default/original/2X/7/7a9005310... · 2017-12-05 ·...

12
ICHOM December 2017 0 Colin Orr Snr Director Product Innovation ICON plc

Transcript of ICHOM - OHDSI Forumsforums.ohdsi.org/uploads/default/original/2X/7/7a9005310... · 2017-12-05 ·...

Page 1: ICHOM - OHDSI Forumsforums.ohdsi.org/uploads/default/original/2X/7/7a9005310... · 2017-12-05 · Gaps with OMOP CDM No place to store SURVEY data Lacks most PRO vocabulary data ICHOM

ICHOM December 2017

0

Colin Orr Snr Director

Product Innovation

ICON plc

Page 2: ICHOM - OHDSI Forumsforums.ohdsi.org/uploads/default/original/2X/7/7a9005310... · 2017-12-05 · Gaps with OMOP CDM No place to store SURVEY data Lacks most PRO vocabulary data ICHOM

20170330 -ICHOM - Benchmarking and Analytics - Breakfast Meeting .pptx 1 Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.

Introduction Introduction ICHOM / ICON partnership

Vision ICHOM’s mission is to unlock the potential of value-based health care by defining global Standard Sets of outcome measures that really matter to patients for the most relevant medical conditions and by driving adoption

and reporting of these measures worldwide.

Goals Reducing Health Care Costs

Supporting Informed Decision Making

Improving Health Care Quality

Professor Michael E. Porter PhD Harvard Business School Global Leader in Strategy and Competition Founder of ICHOM

Martin Ingvar MD, PhD Karolinska Institutet Dean of Research Founder of ICHOM

Stefan Larsson MD, Phd The Boston Consulting Group Senior Partner and Managing Director Founder of ICHOM

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20170330 -ICHOM - Benchmarking and Analytics - Breakfast Meeting .pptx 2 Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.

GLobal Outcomes BEenchmarking (GLOBE) Pilot Program Launched Pilots in Two Conditions

Hip and Knee Osteoarthritis Cataracts

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20170330 -ICHOM - Benchmarking and Analytics - Breakfast Meeting .pptx 3 Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.

Australia (1 site)

Netherlands (11 sites)

Sweden (3)

Connecticut, USA (1 site)

Massachusetts, USA (1 site)

Western States, USA (9 sites)

GLobal Outcomes BEenchmarking (GLOBE) Pilot Program

UK (32 sites)

Malaysia (3 sites)

Israel (1 site)

India (10 sites)

Italy (1 site)

HKO Sites CAT Sites

Portugal (4 sites)

Florida, USA (1 site)

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20170330 -ICHOM - Benchmarking and Analytics - Breakfast Meeting .pptx 4 Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.

GLobal Outcomes BEenchmarking (GLOBE) Pilot Program Where are we today? The GLOBE Program

GLOBE Pilot

18 months

Program Design (2~3 months)

Data Collection (1 year)

Reporting (1~2 months)

Design risk adj, analytics, and visualization options

Define reporting options &

examine utility of BM

Overcome barriers to collecting and transferring data

Ke

y

Ob

ject

ive

s Pilot conditions : Cataracts and Hip & Knee Osteoarthritis

WIP

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20170330 -ICHOM - Benchmarking and Analytics - Breakfast Meeting .pptx 5 Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.

OMOP-CDM

ICHOM GLOBE Programme Collection of data from HKO & CAT from providers around the world

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20170330 -ICHOM - Benchmarking and Analytics - Breakfast Meeting .pptx 6 Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.

Core ICHOM data domains

PERSON

PERSON_ID

YEAR_OF_BIRTH

CARE_SITE_ID

PERSON_SRC_VALUE

GENDER_CONCEPT_ID

VISIT_OCCURRENCE

VISIT_OCCURRENCE_ID

PERSON_ID

CARE_SITE_ID

VISIT_START_DATE

VISIT_END_DATE

VISIT_SOURCE_VALUE

PROCEDURE_

OCCURRENCE

PROCEDURE_OCCURRENCE_ID

PERSON_ID

PROCEDURE_CONCEPT_ID

PROCEDURE_DATE

MODIFIER_CONCEPT_ID

VISIT_OCCURRENCE_ID

CONDITION CARE_SITE SURVEY

SURVEY_ID

PERSON_ID

SURVEY_CONCEPT_ID

VISIT_OCCURRENCE_ID

SURVEY_DATE

TIMING

DATA_SOURCE

COLLECTION_METHOD

DURATION

OBSERVATION

OBSERVATION_ID

PERSON_ID

OBSERVATION_CONCEPT_ID

OBSERVATION_DATE

OBSERVATION_TYPE

_CONCEPT_ID

VALUE_AS_NUMBER

VALUE_AS_STRING

UNIT_CONCEPT_ID

VISIT_OCCURRENCE_ID

OBSERVATION_SOURCE_VALUE

UNIT_SOURCE_VALUE

SURVEY_ID

Has at least 1 visit

May have a

procedure

Procedure

occurs

during visit

Has a Is treated at

FACT_RELATIO

NSHIP

Metadata tables

CONCEPT

DOMAIN

COHORT

Vocabulary

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20170330 -ICHOM - Benchmarking and Analytics - Breakfast Meeting .pptx 7 Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.

Data Provider

No. of patients

No. of patients completing PROM at

Baseline

No. of patients with procedure

> 6 months old

No. of patients completing PROM

at 6 months

% of patients completing PROM

at 6 months

No. of patients with procedure

> 1 year old

No. of patients completing PROM

at 1 year

% of patients completing PROM

at 1 year

1 1182 734 464 232 50.00% 63 30 47.62%

2 2697 2295 1916 852 44.47% 669 243 36.32%

3 369 368 283 71 25.09% 40 9 22.50%

4 70 70 55 19 34.55% 0 0.00%

5 3410 3402 1791 1417 79.12% 576 167 28.99%

6 14 13 14 10 71.43% 4 0 0.00%

7 66 44 28 12 42.86% 1 0 0.00%

ICHOM GLOBE Observations Response from sample set of providers

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20170330 -ICHOM - Benchmarking and Analytics - Breakfast Meeting .pptx 8 Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.

ICHOM GLOBE Sample visualizations

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20170330 -ICHOM - Benchmarking and Analytics - Breakfast Meeting .pptx 9 Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.

Why OMOP

Contains most data domains

Using COHORT tables to identify standard sets

Extremely robust data model and pretty flexible

Defined domain brings consistency

Addresses a lot of ICHOM roadmap (COST, DRUG, DEVICE) [for value equation]

Useful tools (I think)

Potential for access to a lot more data.

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20170330 -ICHOM - Benchmarking and Analytics - Breakfast Meeting .pptx 10 Copyright © 2013 by the International Consortium for Health Outcomes Measurement. All rights reserved.

Gaps with OMOP CDM

No place to store SURVEY data

Lacks most PRO vocabulary data

ICHOM vocabulary data

Mapping to SNOMED codes not consistent with ICHOM

benchmarking measures

Some additional variables needed in OBSERVATION

(value_as_datetime, domain_id, domain_occurrence_id)