HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of...

34
The Science of Stories Jonathan Adler Olin College of Engineering Health Story Collaborative [email protected] http://faculty.olin.edu/jadler HxRefactored Conference – Boston, MA – April 6, 2016

Transcript of HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of...

Page 1: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

The Science of StoriesJonathan Adler

Olin College of EngineeringHealth Story Collaborative

[email protected]://faculty.olin.edu/jadler

HxRefactored Conference – Boston, MA – April 6, 2016

Page 2: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

scoopnest.com

Page 3: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

“We live entirely, especially if we are writers,

by the imposition of a narrative line upon disparate images, by the ‘ideas’ with which we have learned to freeze the shifting phantasmagoria which is

our actual experience.”

Joan Didion, The White Album, 1979

Page 4: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

The Human Brain is Wired for Coherence

Page 5: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

themodchik.com

Page 6: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

themodchik.com

Page 7: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

everythingzoomer.com

Page 8: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

?

Page 9: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

?

Page 10: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

Narrative Identity

Page 11: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

Narrative Identity

Reconstructed Past

Perceived Present

Imagined Future

Page 12: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

memory’s reconstructive nature is a feature of the system, not a bug

Page 13: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

palimpsest self

Page 14: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

You:Based on a True Story

Page 15: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

Narrative Identity:Why Should We Care?

Structural ReasonsCognitive ReasonsEthical ReasonsEmpirical Reasons

Adler, Lodi-Smith, Philippe, & Houle (in press). The incremental validity of narrative identity in predicting well-being: A review of the field and recommendations for the future. Personality and Social Psychology Review

Page 16: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

The Scientific Study of Stories

Page 17: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

http://brainblogger.com

Page 18: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

How Does Your Story (Now)Effect You Over Time?

Page 19: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

How Does Your Story (Now)Effect You Over Time?

Two Studies:1) Natural tracking of middle-aged adults over four years2) Special Sample over two-and-a-half years

Adler, J.M., Turner, A.F., Brookshier, K.M., Monahan, C., Walder-Biesanz, I., Harmeling, L.H., Albaugh, M., McAdams, D.P., Oltmans, T.F. (2015). Variation in narrative identity is associated with trajectories of mental health over several years. Journal of Personality and Social Psychology, 108(3), 476-496.

Page 20: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

How Does Your Story (Now)Effect You Over Time?

• Natural Tracking– Variations in story were associated with different trajectories of mental health over four years

Adler, J.M., Turner, A.F., Brookshier, K.M., Monahan, C., Walder-Biesanz, I., Harmeling, L.H., Albaugh, M., McAdams, D.P., Oltmans, T.F. (2015). Variation in narrative identity is associated with trajectories of mental health over several years. Journal of Personality and Social Psychology, 108(3), 476-496.

Page 21: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

How Does Your Story (Now)Effect You Over Time?

• Special Sample– Among participants who got sick, Variations in story were associated with different trajectories of mental health over two-and-a-half years

Adler, J.M., Turner, A.F., Brookshier, K.M., Monahan, C., Walder-Biesanz, I., Harmeling, L.H., Albaugh, M., McAdams, D.P., Oltmans, T.F. (2015). Variation in narrative identity is associated with trajectories of mental health over several years. Journal of Personality and Social Psychology, 108(3), 476-496.

Page 22: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

Themes:Agency

CommunionRedemption

Contamination

Page 23: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

How Do Changes in Your Story

relate to Changes in Your Mental Health?

Page 24: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

Psychotherapyas a focus for studying change

Page 25: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

Psychotherapyas a narrative endeavor

Page 26: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

Changes in Your Story, Changes in Your Mental Health• Adults in individual therapy• Before first session and in-between each session– Wrote story– Completed measures of mental health

Adler, J.M. (2012). Living into the story: Agency and coherence in a longitudinal study of narrative identity development and mental health over the course of psychotherapy. Journal of Personality and Social Psychology, 102(2), 367-389.

Page 27: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

-3

-2

-1

0

1

2

3

1 2 3 4 5 6 7 8 9 10 11 12

Stan

dard

ized

Scor

e

Mental Health

Agency

Assessment Point

Participant 1

Page 28: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

Changes in Your Story, Changes in Your Mental Health• Clients got better • Clients expressed more agency over time

• Changes in agency came before changes in mental health

Adler, J.M. (2012). Living into the story: Agency and coherence in a longitudinal study of narrative identity development and mental health over the course of psychotherapy. Journal of Personality and Social Psychology, 102(2), 367-389.

Page 29: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

Changes in Your Story, Changes in Your Mental Health• Themes in therapists’ stories didn’t matter

Adler, J.M.(2013). Clients’ and therapists’ stories about psychotherapy. Journal of Personality, 86(5), 595-605.

Page 30: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

illness as a biographical disruption

agency

communion

redemption/contamination

coherence

Page 31: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

http://www.healthstorycollaborative.org

Page 32: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

http://commonhealth.wbur.org/2015/01/doctor-patient-bond

Page 33: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

Quint Buchholz, “Mann auf Einer Leiter“

We use our stories (our identity) as a foundation.

We use them to tell us who we are.

We use them to make sense of new experiences.

We are not only the main character, but also the narrator.

Page 34: HXR 2016: Narratives in Healthcare: Stories as Drivers of Change - Jonathan Adler, Olin College of Engineering and Health Story Collaborative

thank you

[email protected]://faculty.olin.edu/jadler