#Hpm Tweet Chat 2:29:12

7/31/2019 #Hpm Tweet Chat 2:29:12

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6/27/12 1:hpm - Healthcare Social Media Transcript

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#hpm transcript

Healthcare Social Media TranscriptFrom: Wed Feb 29 18:00:00 PST 2012

To: Wed Feb 29 19:15:00 PST 2012

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Explore the world of healthcare social media: Healthcare Conferences - Healthcare Tweet Chats - Disease Hashtags

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FMDChat Hi & welcome to #hpm chat abt #hospice & #palliative medicine, please take a moment tointroduce yourself & say hello! I'm your host. #hpm

Wed Feb 29 18:01:06 PST 2012

PracticalWisdom @AfternoonNapper Thank you! just lost power for a sec and lost Internet. Please giveregards #s4pm Best Wish 4 2night #hpm Need zzzzz 2 nit

Wed Feb 29 18:02:09 PST 2012

rfberry RT @FMDChat: Hi & welcome to #hpm chat abt #hospice & #palliative medicine, pleasetake a moment to introduce yourself & say hello! I'm your host. #hpm

Wed Feb 29 18:02:15 PST 2012

rfberry (Just so no one is confused) @FDMChat managed by @AfternoonNapper is hosting #hpmtonight in honor of Rare Disease Day #hpm

Wed Feb 29 18:03:11 PST 2012

aliciabloom time to tweet on #hospice & #palliative care in #hpm chat! expect some #basketballwifetweets, too! it's a close game for #LaSalleMBB at GW.Wed Feb 29 18:03:23 PST 2012

FMDChat Today, for Rare Disease Day, we'll be discussing caring for the 350m ppl w/ >7,000 rarediseases, 95% of which have no therapy #hpm

Wed Feb 29 18:03:24 PST 2012
http://www.symplur.com/healthcare-hashtags/LaSalleMBB/http://twitter.com/121558178/status/175038443129274368http://www.twitter.com/PracticalWisdomhttp://www.twitter.com/PracticalWisdomhttp://www.twitter.com/AfternoonNapperhttp://www.symplur.com/healthcare-hashtags/http://www.symplur.com/healthcare-social-media/http://www.symplur.com/healthcare-hashtags/conferences/http://www.symplur.com/healthcare-hashtags/conferences/http://www.symplur.com/healthcare-hashtags/tweet-chats/http://www.symplur.com/healthcare-hashtags/diseases/http://www.symplur.com/healthcare-hashtags/hpm/analytics/?hashtag=hpm&fdate=02-29-2012&shour=18&smin=0&tdate=02-29-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1http://twitter.com/241208166/status/175038495788765184http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://twitter.com/24399366/status/175038494698242048http://www.symplur.com/healthcare-hashtags/LaSalleMBB/http://www.symplur.com/healthcare-hashtags/basketballwife/http://www.symplur.com/healthcare-hashtags/hpm/http://www.symplur.com/healthcare-hashtags/palliative/http://www.symplur.com/healthcare-hashtags/hospice/http://www.twitter.com/aliciabloomhttp://twitter.com/121558178/status/175038443129274368http://www.symplur.com/healthcare-hashtags/hpm/http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/AfternoonNapperhttp://www.twitter.com/FDMChathttp://www.twitter.com/rfberryhttp://twitter.com/121558178/status/175038209187774464http://www.symplur.com/healthcare-hashtags/hpm/http://www.symplur.com/healthcare-hashtags/palliative/http://www.symplur.com/healthcare-hashtags/hospice/http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/rfberryhttp://twitter.com/25428892/status/175038181148852224http://www.symplur.com/healthcare-hashtags/hpm/http://www.symplur.com/healthcare-hashtags/s4pm/http://www.twitter.com/AfternoonNapperhttp://www.twitter.com/PracticalWisdomhttp://twitter.com/241208166/status/175037917826256897http://www.symplur.com/healthcare-hashtags/hpm/http://www.symplur.com/healthcare-hashtags/palliative/http://www.symplur.com/healthcare-hashtags/hospice/http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.symplur.com/healthcare-hashtags/http://www.symplur.com/healthcare-hashtags/hpm/http://www.symplur.com/healthcare-hashtags/diseases/http://www.symplur.com/healthcare-hashtags/tweet-chats/http://www.symplur.com/healthcare-hashtags/conferences/http://www.symplur.com/healthcare-social-media/http://www.symplur.com/healthcare-hashtags/hpm/analytics/?hashtag=hpm&fdate=02-29-2012&shour=18&smin=0&tdate=02-29-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1http://www.symplur.com/healthcare-hashtags/hpm/?hashtag=hpm&fdate=02-29-2012&shour=18&smin=0&tdate=02-29-2012&thour=19&tmin=15&ssec=00&tsec=00&img=1http://www.symplur.com/healthcare-social-media/

7/31/2019 #Hpm Tweet Chat 2:29:12

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RossJeanette hi Im jeanette ross HPM doc in san Antonio. will try to participate tonight while multitaskingas always #hpm

Wed Feb 29 18:03:36 PST 2012

rfberry -->Renee Berry here, looking forward to tonight's chat. Work with @goBeMoRe, wasundecided abt new fb pages earlier but now like them! #hpm

Wed Feb 29 18:04:11 PST 2012

FMDChat Indeed, some of you might know me as @AfternoonNapper. I am a fibromusculardysplasia patient & manage http://t.co/dYXNIbTk.#hpm

Wed Feb 29 18:05:14 PST 2012

FMDChat @RossJeanette Thanks for joining us tonight! #hpmWed Feb 29 18:05:37 PST 2012

FMDChat @aliciabloom So glad you could be here with us - basketball and all! #hpmWed Feb 29 18:05:58 PST 2012

FMDChat @rfberry Thanks to you for providing this opportunity to draw attention to rare diseases onRare Disease Day. #hpmWed Feb 29 18:06:41 PST 2012

rfberry @FMDChat that link didn't work for me... but hello, Thanks for hosting Sarah! #hpmWed Feb 29 18:07:24 PST 2012

aliciabloom MSW, LSW practicing in #hospice & #palliative care. passionate about raising awareness& improving access to #hpm.

Wed Feb 29 18:07:25 PST 2012

aliciabloom @FMDChat thanks! happy to be here. #hpmWed Feb 29 18:07:41 PST 2012

jfclearywisc Jim Cleary UW palliative care and pain & policy studies group joining hospice & palliativemedicine tweetchat for next hour #hpm

Wed Feb 29 18:08:32 PST 2012

RossJeanette link again http://t.co/ZV0JtzHi#hpm

Wed Feb 29 18:08:38 PST 2012

KnowYourWishes #hpm Hi all! Been awhile. Pulm/critical care fellow and author, end of life awarenessadvocate

Wed Feb 29 18:09:25 PST 2012

schwartzbrown Mindy here, retired social worker from NJ #hpmWed Feb 29 18:09:26 PST 2012
http://twitter.com/273605086/status/175040016664367107http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/schwartzbrownhttp://twitter.com/262368526/status/175040013136957441http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KnowYourWisheshttp://twitter.com/117435341/status/175039812930248704http://www.symplur.com/healthcare-hashtags/hpm/http://t.co/ZV0JtzHihttp://www.twitter.com/RossJeanettehttp://twitter.com/27231379/status/175039788401967104http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/jfclearywischttp://twitter.com/24399366/status/175039575683645441http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/aliciabloomhttp://twitter.com/24399366/status/175039509803712512http://www.symplur.com/healthcare-hashtags/hpm/http://www.symplur.com/healthcare-hashtags/palliative/http://www.symplur.com/healthcare-hashtags/hospice/http://www.twitter.com/aliciabloomhttp://twitter.com/121558178/status/175039505542287361http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/rfberryhttp://twitter.com/241208166/status/175039322972626945http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/rfberryhttp://www.twitter.com/FMDChathttp://twitter.com/241208166/status/175039142781128704http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/aliciabloomhttp://www.twitter.com/FMDChathttp://twitter.com/241208166/status/175039056160358401http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/RossJeanettehttp://www.twitter.com/FMDChathttp://twitter.com/241208166/status/175038960173719552http://www.symplur.com/healthcare-hashtags/hpm/http://t.co/dYXNIbTk.http://www.twitter.com/AfternoonNapperhttp://www.twitter.com/FMDChathttp://twitter.com/121558178/status/175038693126574082http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/goBeMoRehttp://www.twitter.com/rfberryhttp://twitter.com/117435341/status/175038546946695168http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/RossJeanette

7/31/2019 #Hpm Tweet Chat 2:29:12

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FMDChat @jfclearywisc Good evening, Jim. Thanks for joining in the chat. #hpmWed Feb 29 18:09:31 PST 2012

rfberry Hey Jim @Jfclearywisc & @RossJeanette (last year when I met you IRL I wanted to callyou Ross) & Alicia! @AliciaBloom#hpm

Wed Feb 29 18:09:53 PST 2012

rfberry Jim & Jeaneatte, you or anyone else attending @AAHPM next week? I'm sooo excited!#hpmWed Feb 29 18:10:22 PST 2012

FMDChat @KnowYourWishes Welcome back, @KnowYourWishes. Good to see you@schwartzbrown! #hpm

Wed Feb 29 18:10:25 PST 2012

FMDChat We'll delve in to tonight's T1... #hpmWed Feb 29 18:11:04 PST 2012

jfclearywisc @rfberry Yep ONe of @ctsinclair SOC med ambassadors! #hpmWed Feb 29 18:11:21 PST 2012

jfclearywisc @rfberry Yep ONe of @ctsinclair SOC med ambassadors! #hpmWed Feb 29 18:11:21 PST 2012

FMDChat T1) Awareness first do you personally know a rare disease patient? If so, how do youseek to understand his or her disease? #hpm

Wed Feb 29 18:11:57 PST 2012

rfberry @jfclearywisc@ctsinclair awesome! That will be a great #hpm team up there!Wed Feb 29 18:12:00 PST 2012

rfberry (my computer is going pretty slow & internet spotty, apologies ahead of time if I take awhile to respond) #hpm

Wed Feb 29 18:13:17 PST 2012

jfclearywisc @FMDChat Care for many in both oncology and palliative care. some teenagers #hpmWed Feb 29 18:14:08 PST 2012

RossJeanette yes I will be at AAHPM looking forward to seeing the HPM tweetpeople IRL. my internet isa bit slow #hpmWed Feb 29 18:15:17 PST 2012

rfberry T1 @FMDChat I try to just get to know the person, over time I ask abt their experiencew/the disease if they are open to talking abt it #hpm

Wed Feb 29 18:15:58 PST 2012
http://twitter.com/121558178/status/175041660818948097http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/rfberryhttp://twitter.com/117435341/status/175041488529539073http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/RossJeanettehttp://twitter.com/27231379/status/175041196610162688http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/jfclearywischttp://twitter.com/121558178/status/175040985041092608http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/rfberryhttp://twitter.com/121558178/status/175040663308615680http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/ctsinclairhttp://www.twitter.com/jfclearywischttp://www.twitter.com/rfberryhttp://twitter.com/241208166/status/175040649878450177http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://twitter.com/27231379/status/175040496517922818http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/ctsinclairhttp://www.twitter.com/rfberryhttp://www.twitter.com/jfclearywischttp://twitter.com/27231379/status/175040496517922818http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/ctsinclairhttp://www.twitter.com/rfberryhttp://www.twitter.com/jfclearywischttp://twitter.com/241208166/status/175040426594668545http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://twitter.com/241208166/status/175040264782610433http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/schwartzbrownhttp://www.twitter.com/KnowYourWisheshttp://www.twitter.com/KnowYourWisheshttp://www.twitter.com/FMDChathttp://twitter.com/121558178/status/175040251566362624http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/AAHPMhttp://www.twitter.com/rfberryhttp://twitter.com/121558178/status/175040128065077248http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/AliciaBloomhttp://www.twitter.com/RossJeanettehttp://www.twitter.com/Jfclearywischttp://www.twitter.com/rfberryhttp://twitter.com/241208166/status/175040035878477824http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/jfclearywischttp://www.twitter.com/FMDChat

7/31/2019 #Hpm Tweet Chat 2:29:12

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kcscadx2 Glad to be here to. #hpmWed Feb 29 18:16:22 PST 2012

KnowYourWishes what are we considering rare? #hpm#hpmWed Feb 29 18:16:28 PST 2012

RossJeanette T1 I don't personally know anyone with a rare disease #hpmWed Feb 29 18:16:51 PST 2012

jfclearywisc @FMDChat I never make assumptions even with common diseases. SO I always askabout impact & understanding of disease #hpmWed Feb 29 18:17:06 PST 2012

aliciabloom occasionally take care of people with rare diseases. patients are experts in their lives &their disease trajectories...so, i ask them. #hpm

Wed Feb 29 18:17:21 PST 2012

authordhallman Hi hpm tweetchatters. It's been awhile. re T1 - sorry for my naivete but I suppose ALS isnot considered a "rare" disease. #hpmWed Feb 29 18:17:34 PST 2012

FMDChat @KnowYourWishes Any disease affecting fewer than 200,000 Americans is consideredrare. #hpm

Wed Feb 29 18:17:42 PST 2012

jfclearywisc MT @aliciabloom: I take care of people w rare diseases. patients are experts in their lives& disease trajectories...so, i ask them. #hpm

Wed Feb 29 18:18:17 PST 2012

FMDChat @kcscadx2@authordhallman Thanks for joining us. #hpmWed Feb 29 18:18:18 PST 2012

rfberry @jfclearywisc that seems so obvious, but yet not always implemented, sign of a greatphysician #hpm

Wed Feb 29 18:18:22 PST 2012

rfberry RT @jfclearywisc: @FMDChat I never make assumptions even with common diseases.

SO I always ask about impact & understanding of disease #hpmWed Feb 29 18:18:26 PST 2012

FMDChat @KnowYourWishes A disease or disorder is defined as rare in Europe when it affects lessthan 1 in 2,000. #hpm

Wed Feb 29 18:19:14 PST 2012

aliciabloom MT @jfclearywisc: I never make assumptions even with common diseases. SO I alwaysask about impact & understanding of disease

7/31/2019 #Hpm Tweet Chat 2:29:12

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7/31/2019 #Hpm Tweet Chat 2:29:12

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rfberry @KnowYourWishes interesting! I don't know numbers on what I've been struggling with foSacroiliac joint pain, but I bet its 'rare' #hpm

Wed Feb 29 18:25:04 PST 2012

KnowYourWishes Very specific EOL issues in ALS: tough and rewarding @FMDChat: @authordhallman,yes ALS is a rare disease. http://t.co/MqJ83fGm#hpm

Wed Feb 29 18:25:07 PST 2012

FMDChat Cystic fibrosis is another on the list of rare diseases. http://t.co/OlW0zAPp#hpmWed Feb 29 18:25:14 PST 2012

rfberry @FMDChat interesting. Do you feel open in wanting to discuss it with people? #hpmWed Feb 29 18:25:26 PST 2012

ShyDi47 Hi everyone nice to see everyone. #HpmWed Feb 29 18:25:30 PST 2012

KnowYourWishes when I say rewarding, i mean rewarding to counsel patients and families. #hpmWed Feb 29 18:25:53 PST 2012

authordhallman @FMDChat Thanks. A friend has been diagnosed w ALS. Deteriorating v rapidly. Hispartner doing most things for him but VERY stressed. #hpm

Wed Feb 29 18:26:04 PST 2012

kcscadx2 Look very healthy on the outside, inside is not healthy but very hard for someone tounderstand #hpm

Wed Feb 29 18:26:07 PST 2012

rfberry I tend to be very closed about the amount of my daily pain. I don't know why, sometimes Ijust feel overwhelmed/emotional discussing it #hpmWed Feb 29 18:26:08 PST 2012

ShyDi47 So many PTS suppress their feelings once dx with a disease. #HpmWed Feb 29 18:26:13 PST 2012

FMDChat @rfberry I'll discuss my diagnosis w/ just abt anyone who will listen! I hope that myopenness helps others reach a diagnosis. #hpm

Wed Feb 29 18:26:38 PST 2012

rfberry great starting point RT @RossJeanette: T1 I like to ask tell me what a typical day is like foyou? #hpm

Wed Feb 29 18:26:45 PST 2012

ShyDi47 Educating yourself of the disease is a start of getting as much info on the disease. #HpmWed Feb 29 18:27:02 PST 2012
http://twitter.com/265843895/status/175044445119594497http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://twitter.com/121558178/status/175044373040476161http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/RossJeanettehttp://www.twitter.com/rfberryhttp://twitter.com/241208166/status/175044346180149248http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/rfberryhttp://www.twitter.com/FMDChathttp://twitter.com/265843895/status/175044237962919936http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://twitter.com/121558178/status/175044217083674624http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/rfberryhttp://twitter.com/399813933/status/175044213753384960http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/kcscadx2http://twitter.com/284885422/status/175044202256809984http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/authordhallmanhttp://twitter.com/262368526/status/175044153565134848http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KnowYourWisheshttp://twitter.com/265843895/status/175044059155533825http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://twitter.com/121558178/status/175044040667054081http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/rfberryhttp://twitter.com/241208166/status/175043993938313216http://www.symplur.com/healthcare-hashtags/hpm/http://t.co/OlW0zAPphttp://www.twitter.com/FMDChathttp://twitter.com/262368526/status/175043961306611713http://www.symplur.com/healthcare-hashtags/hpm/http://t.co/MqJ83fGmhttp://www.twitter.com/authordhallmanhttp://www.twitter.com/FMDChathttp://www.twitter.com/KnowYourWisheshttp://twitter.com/121558178/status/175043950174932992http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KnowYourWisheshttp://www.twitter.com/rfberry

7/31/2019 #Hpm Tweet Chat 2:29:12

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rfberry RT @kcscadx2: Look very healthy on the outside, inside is not healthy but very hard forsomeone to understand #hpm

Wed Feb 29 18:27:08 PST 2012

kcscadx2 Always open to discuss it, word of mouth is a great tool. #hpmWed Feb 29 18:27:11 PST 2012

FMDChat In talking about caring, we're transitioning nicely into T2, coming up in just a minute... #hpmWed Feb 29 18:27:47 PST 2012

KnowYourWishes @authordhallman ALS center at my hospital 2. See lots of amazing things even in thosewho can't speak. Robotics amazing!Inspirational #hpm

Wed Feb 29 18:28:06 PST 2012

ShyDi47 @authordhallman so sad one of my pt died with ALS very heartbreaking it was only 47 @time of death #Hpm

Wed Feb 29 18:28:26 PST 2012

cysticbot #cysticbot RT: Cystic fibrosis is another on the list of rare diseases. http://t.co/Id1j4Tfh#hpm: Cystic fibros... http://t.co/N4OaqQe8Wed Feb 29 18:28:38 PST 2012

rfberry @FMDChat you're brave :) I admire that about you. #hpmWed Feb 29 18:28:45 PST 2012

aliciabloom i like to ask: "what's most distressing for you?" allows patients to speak about more thanjust the disease & physical impact. #hpm

Wed Feb 29 18:28:53 PST 2012

FMDChat T2 Preface) 350 million people in the world suffer from >7,000 rare diseases, 95% of whichave no therapy #hpm

Wed Feb 29 18:29:15 PST 2012

authordhallman @KnowYourWishes What hospital are you with in Philly? My friends live in RehobathBeach. #hpm

Wed Feb 29 18:29:44 PST 2012

ShyDi47 So many diseases out there @ hard to stay on top of each @ everyone of them. Eachdisease affects pt differently. #Hpm

Wed Feb 29 18:30:12 PST 2012

KnowYourWishes Skilled social workers/RNs very impt in tx'ing rare diseases.experience and extra time MDtreating may not have. RNs/SW invaluable! #hpm

Wed Feb 29 18:30:16 PST 2012

FMDChat T2) What are some of the subtle ways in which caregivers may provide comfort to patientswithout pharmacological treatments? #hpm#hpm
http://www.symplur.com/healthcare-hashtags/hpm/http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://twitter.com/262368526/status/175045257384300545http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KnowYourWisheshttp://twitter.com/265843895/status/175045242553249793http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://twitter.com/284885422/status/175045125066600448http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KnowYourWisheshttp://www.twitter.com/authordhallmanhttp://twitter.com/241208166/status/175045004279025664http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://twitter.com/24399366/status/175044910725070849http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/aliciabloomhttp://twitter.com/121558178/status/175044875711025152http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/rfberryhttp://twitter.com/102604430/status/175044847214936064http://t.co/N4OaqQe8http://www.symplur.com/healthcare-hashtags/hpm/http://t.co/Id1j4Tfhhttp://www.symplur.com/healthcare-hashtags/cysticbot/http://www.twitter.com/cysticbothttp://twitter.com/265843895/status/175044797155913729http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/authordhallmanhttp://www.twitter.com/ShyDi47http://twitter.com/262368526/status/175044715316649985http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/authordhallmanhttp://www.twitter.com/KnowYourWisheshttp://twitter.com/241208166/status/175044635465494529http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://twitter.com/399813933/status/175044480649527296http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/kcscadx2http://twitter.com/121558178/status/175044468439912450http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/kcscadx2http://www.twitter.com/rfberry

7/31/2019 #Hpm Tweet Chat 2:29:12

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Wed Feb 29 18:30:17 PST 2012

rfberry RT @AlexSmithMD: Increase NIH budget next fiscal year! A flat $30.7 billion will kill geriparesearch. http://t.co/Kh0IrVQQ#hpm#geria ...

Wed Feb 29 18:30:32 PST 2012

ShyDi47 Holistic approach @ active listening works with pt @ family. #Hpm

Wed Feb 29 18:31:14 PST 2012

kcscadx2 Positive approach, even if all treatments don't work. There is always a success if you lookfor it. #hpm

Wed Feb 29 18:31:52 PST 2012

rfberry RT @FMDChat: T2 Preface) 350 million people in the world suffer from >7,000 rarediseases, 95% of which have no therapy #hpm

Wed Feb 29 18:31:56 PST 2012

aliciabloom i encourage family caregivers to be just be present. offers support, reassurance & comfort#hpmWed Feb 29 18:33:00 PST 2012

KnowYourWishes @FMDChat T2: Time. Extra Time. #hpmWed Feb 29 18:33:05 PST 2012

rfberry T2 be present. #hpmWed Feb 29 18:33:25 PST 2012

KnowYourWishes RT @rfberry: T2 be present. #hpmWed Feb 29 18:33:43 PST 2012

rfberry RT @aliciabloom: i encourage family caregivers to be just be present. offers support,reassurance & comfort. #hpm

Wed Feb 29 18:34:12 PST 2012

ShyDi47 Mind vs power, don't give up. #HpmWed Feb 29 18:34:18 PST 2012

aliciabloom looks like great minds think alike @rfberry ;) #hpmWed Feb 29 18:34:23 PST 2012

jfclearywisc RT @aliciabloom: i encourage family caregivers to be just be present. offers support,reassurance & comfort. #hpm

Wed Feb 29 18:34:35 PST 2012

FMDChat @rfberry Explain, if you will, "be present." Literally, emotionally? #hpmWed Feb 29 18:34:39 PST 2012
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ShyDi47 Working as a multi disciplinary team is vital in treating the pt, family @ the disease. #HpmWed Feb 29 18:35:17 PST 2012

schwartzbrown Very hard for youngsters to grow up with illness like CF. Desire is to be like everyone elseCaregivers often seen as "enforcers." #hpm

Wed Feb 29 18:35:25 PST 2012

aliciabloom @ShyDi47 i am careful about language like "don't give up." patients don't give up,sometimes we run out curative options and/or time. #hpm

Wed Feb 29 18:36:39 PST 2012

KnowYourWishes @schwartzbrown yes, and have to deal with grown up issues very early in life. #hpmWed Feb 29 18:37:02 PST 2012

FMDChat @schwartzbrown I love that you've brought up the topic of "enforcers" concept appliesto so many pts' caregivers, regardless of age. #hpm

Wed Feb 29 18:37:16 PST 2012

ShyDi47 Getting everyone's input @ feedback, @ asking questions is important in any therapeuticrelationship. #Hpm

Wed Feb 29 18:37:34 PST 2012

rfberry as soon as I pushed send I saw yours haha! RT @aliciabloom: looks like great minds thinkalike @rfberry ;) #hpm

Wed Feb 29 18:37:45 PST 2012

KnowYourWishes CF kids need 1-2 hour neb treatments 4X per day or more. Slows down a kid who justwants to play. Hard for 'enforcers' #hpmWed Feb 29 18:38:20 PST 2012

aliciabloom @rfberry it's awesome! #hpmWed Feb 29 18:38:40 PST 2012

rfberry Both: Consistently, Truly Demonstrating Active Listening RT @FMDChat Explain, if youwill, "be present." Literally, emotionally? #hpmWed Feb 29 18:38:41 PST 2012

ShyDi47 @aliciabloom yes I have seen this with my EOL PTS where they r giving up very sad towatch for sure, heartbreaking 4 family 2 watch #Hpm

Wed Feb 29 18:38:51 PST 2012

FMDChat I've found I need my caregivers to be supportive by leaving me alone sometimes... beinghovered over gets old... #hpm

Wed Feb 29 18:39:15 PST 2012
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jfclearywisc RT @FMDChat: I've found I need my caregivers to be supportive by leaving me alonesometimes... being hovered over gets old... #hpm

Wed Feb 29 18:39:36 PST 2012

KnowYourWishes @FMDChat Spending time alone is one of the 'domains' of quality of EOL care. #hpmWed Feb 29 18:40:05 PST 2012

ShyDi47 @FMDChat and quiet time is healthy in a therapeutic relationship as well good point #HpmWed Feb 29 18:40:54 PST 2012

aliciabloom @ShyDi47 i don't think we should look at it as "giving up." treatments fail, organs fail,but...patients do not fail. #hpmWed Feb 29 18:40:56 PST 2012

FMDChat @KnowYourWishes Indeed! I'm not incapable of being left alone just yet please don'ttake that ability from me before necessary. #hpm

Wed Feb 29 18:41:14 PST 2012

AnkurB_MD RT @FMDChat: T2 Preface) 350 million people in the world suffer from >7,000 rarediseases, 95% of which have no therapy #palliative#hpmWed Feb 29 18:41:18 PST 2012

rfberry @aliciabloom absolutely. #hpmWed Feb 29 18:41:39 PST 2012

jfclearywisc RT @aliciabloom: @ShyDi47 i don't think we should look at it as "giving up." treatmentsfail, organs fail, but...patients do not fail. #hpm

Wed Feb 29 18:41:39 PST 2012

maggiemahar RT @DianeEMeier: Open #Palliative care to all patients, regardless of prognosis:http://t.co/SQ1YytFA#HPMWed Feb 29 18:41:47 PST 2012

rfberry RT @aliciabloom: @ShyDi47 i don't think we should look at it as "giving up." treatmentsfail, organs fail, but...patients do not fail. #hpm

Wed Feb 29 18:41:47 PST 2012

KathyKastner RT @aliciabloom: @ShyDi47 i don't think we should look at it as "giving up." treatmentsfail, organs fail, but...patients do not fail. #hpm

Wed Feb 29 18:42:39 PST 2012

tsuliena @aliciabloom when I do open up (introverted) describe how serious my pain is_since Idon't look the part, I get the brush off.#hpm#spoonie

Wed Feb 29 18:42:39 PST 2012

AlexYperifanos RT @DianeEMeier: Open #Palliative care to all patients, regardless of prognosis:http://t.co/SQ1YytFA#HPM
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Wed Feb 29 18:42:46 PST 2012

FMDChat We've talked about caring for the patient... now let's talk about caring for the caregiver! T3coming right up... #hpm

Wed Feb 29 18:42:55 PST 2012

KathyKastner RT @DianeEMeier: Open #Palliative care to all patients, regardless of prognosis:http://t.co/SQ1YytFA#HPM

Wed Feb 29 18:43:03 PST 2012

KnowYourWishes @KathyKastner Hi Kathy!!! #hpmWed Feb 29 18:43:09 PST 2012

AnkurB_MD Love it!! RT @aliciabloom i don't think we should look at it as "giving up." treatments fail,organs fail, but...patients do not fail. #hpm

Wed Feb 29 18:43:24 PST 2012

ShyDi47 I have observed an elderly man refuse 2 eat anymore. His family was livid, but that was his

choice @ wishes nothing we could of done. #HpmWed Feb 29 18:43:30 PST 2012

KathyKastner @KnowYourWishes Hey! LJ Gr8 new name #hpm!Wed Feb 29 18:43:48 PST 2012

ShyDi47 Caregivers need to have a good support system in place, @ they need to be listened to aswell. #Hpm

Wed Feb 29 18:44:16 PST 2012

FMDChat T3 How can nonpharmacological care extend beyond patients to include families andhow can we measure effectiveness of nonpharm care? #hpmWed Feb 29 18:44:31 PST 2012

aliciabloom @tsuliena thank you for sharing. it's important for us clinicians to never make assumptionsabout the people we care for-- always ask #hpm

Wed Feb 29 18:44:59 PST 2012

aliciabloom @AnkurB_MD thanks! #hpmWed Feb 29 18:45:11 PST 2012

rfberry @ShyDi47 While I understand it may feel like nothing can be done by the family, thereabsolutely is 'something' that can be done #hpm

Wed Feb 29 18:45:35 PST 2012

rfberry @ShyDi47 appropriate comfort care is something #hpmWed Feb 29 18:45:56 PST 2012

I think the term "orphan disease" captures the loneliness many caregivers feel. They need
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schwartzbrown to feel understood. #hpmWed Feb 29 18:46:16 PST 2012

KathyKastner RT @schwartzbrown: I think the term "orphan disease" captures the loneliness manycaregivers feel. They need to feel understood. #hpmWed Feb 29 18:46:44 PST 2012

ShyDi47 @rfberry His wishes he did die, had a terminal illness @ he was 96 yrs old he was done#Hpm

Wed Feb 29 18:46:51 PST 2012

aliciabloom there is always something we can do! even when treatments fail & organs fail, we can doaggressive symptom management, dignity, comfort #hpmWed Feb 29 18:46:52 PST 2012

FMDChat @schwartzbrown Do you think caregivers feel the same sense of isolation regarding theparticular disease as the patient? #hpm

Wed Feb 29 18:47:14 PST 2012

KnowYourWishes T3: huge research lit on ways/methods to "measure" quality of EOL care. A huge passionof mine! Lots of interest'g ideas out there #hpm

Wed Feb 29 18:47:16 PST 2012

authordhallman When I was caring for my dying partner, the pall/care staff spent a lot of time just listeningto me as the caregiver. #hpm

Wed Feb 29 18:47:36 PST 2012

aliciabloom @ShyDi47@rfberry the desire to eat is a normal part of the dying process. decreasedappetite common, not necessarily an active choice. #hpm

Wed Feb 29 18:48:01 PST 2012

kcscadx2 no question about it, it's a dark tunnel. #hpmWed Feb 29 18:48:20 PST 2012

KathyKastner 4 sure RT @FMDChat: @schwartzbrown Do u think caregivers feel the same sense ofisolation regarding particular disease as the patient? #hpm

Wed Feb 29 18:48:22 PST 2012

schwartzbrown@FMDChat Yes I do think caregivers feel similar isolation in addition to guilt and

helplessness #hpmWed Feb 29 18:48:31 PST 2012

ShyDi47 Once all the domains have been addressed in EOL pt the only thing that can be done iscomfort measures @ that is it #Hpm

Wed Feb 29 18:48:48 PST 2012

KathyKastner RT @schwartzbrown: @FMDChat Yes I do think caregivers feel similar isolation in additio
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to guilt and helplessness #hpm

Wed Feb 29 18:48:55 PST 2012

aliciabloom family caregivers can become isolated as they spend so much time meeting the patient'sneeds. important to encourage self-care. #hpm

Wed Feb 29 18:49:05 PST 2012

rfberry @aliciabloom I think you mean loosing the desire to eat is a normal part of the dyingprocess #hpmWed Feb 29 18:49:47 PST 2012

schwartzbrown often diseases have genetic origins that create guilt for family members #hpmWed Feb 29 18:50:34 PST 2012

ShyDi47 I also find families/caregivers stop taking care of themselves so they get o/whelmed @stressed out which is not good. #Hpm

Wed Feb 29 18:50:40 PST 2012

rfberry agree RT @schwartzbrown: @FMDChat Yes I do think caregivers feel similar isolation inaddition to guilt and helplessness #hpmWed Feb 29 18:50:50 PST 2012

FMDChat @KathyKastner@schwartzbrown You're motivating me to see what I can do w/in my owndisease group to help caregivers! #hpm

Wed Feb 29 18:51:06 PST 2012

aliciabloom @rfberry yes, i did. losing the desire to eat is a normal part of the dying process.decreased appetite is a 'symptom' not a choice #hpmWed Feb 29 18:51:17 PST 2012

rfberry @schwartzbrown@FDMChat Incredible #Caregiver Advocates at @CaregiverAlly, greatresearch, stats, resources #hpm

Wed Feb 29 18:51:31 PST 2012

ShyDi47 Once a patient's PPS is below 30 they don't eat anymore. They r shutting down. #HpmWed Feb 29 18:52:08 PST 2012

rfberry @aliciabloom yes. Support groups are sometimes hard to get to, but can also be so helpfufor caregivers. #hpm

Wed Feb 29 18:52:34 PST 2012

KathyKastner @FMDChat ANd I just learned that 'hovering' gets old. Such complicated co-reliance wehave #hpm

Wed Feb 29 18:52:51 PST 2012

FMDChat @KathyKastner We love you for the hovering. We know you mean well. : ) #hpmWed Feb 29 18:53:40 PST 2012
http://twitter.com/241208166/status/175051147789336576http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KathyKastnerhttp://www.twitter.com/FMDChathttp://twitter.com/101386174/status/175050940238405633http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/KathyKastnerhttp://twitter.com/121558178/status/175050872408113153http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/aliciabloomhttp://www.twitter.com/rfberryhttp://twitter.com/265843895/status/175050760722198528http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://twitter.com/121558178/status/175050607424573441http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/CaregiverAllyhttp://www.symplur.com/healthcare-hashtags/Caregiver/http://www.twitter.com/FDMChathttp://www.twitter.com/schwartzbrownhttp://www.twitter.com/rfberryhttp://twitter.com/24399366/status/175050549379608576http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/rfberryhttp://www.twitter.com/aliciabloomhttp://twitter.com/241208166/status/175050500067176449http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/schwartzbrownhttp://www.twitter.com/KathyKastnerhttp://www.twitter.com/FMDChathttp://twitter.com/121558178/status/175050432354320384http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/schwartzbrownhttp://www.twitter.com/rfberryhttp://twitter.com/265843895/status/175050390461612033http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://twitter.com/273605086/status/175050367267119105http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/schwartzbrownhttp://twitter.com/121558178/status/175050170642345984http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/aliciabloomhttp://www.twitter.com/rfberryhttp://twitter.com/24399366/status/175049995215585280http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/aliciabloomhttp://twitter.com/101386174/status/175049950802092032http://www.symplur.com/healthcare-hashtags/hpm/

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7/31/2019 #Hpm Tweet Chat 2:29:12

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KnowYourWishes @aliciabloom Yeah. Would cheer us up in ICU too though...not just inpatient hospice. Alsowould be good for ICU staff #hpmWed Feb 29 18:56:52 PST 2012

rfberry @FMDChat interesting, when will all hospitals provide personal computers (w/fast) interneaccess to any patient that requests it? #hpm

Wed Feb 29 18:57:04 PST 2012

KathyKastner Self-care often fraught w guilt and worry about perecption of abandoning pt #hpmWed Feb 29 18:57:09 PST 2012

FMDChat We're coming up on the end of our hour. Please share your thoughts as we close outtonight's sessionrare disease related or otherwise! #hpmWed Feb 29 18:57:51 PST 2012

DrBeckerSchutte We need a reframe here for sure! RT @KathyKastner: Self-care often fraught w guilt andworry about perecption of abandoning pt #hpm

Wed Feb 29 18:58:09 PST 2012

KathyKastner @authordhallman same with my bro and his late wife. she eventually said: please go, brinback fresh air #hpmWed Feb 29 18:58:15 PST 2012

KnowYourWishes RT @FMDChat: @KnowYourWishes I would have paid GOOD MONEY for a TV set toAnimal Planet in ICU. #hpm

Wed Feb 29 18:58:24 PST 2012

ShyDi47Self care is great only if they r able to. Trying 2 promote independence is all good if they r

still able to. #HpmWed Feb 29 18:58:44 PST 2012

NaheedD @KathyKastner is there an #hpm chat? when does it usually occur?Wed Feb 29 18:58:50 PST 2012

aliciabloom need to help family caregivers see their own self-care as important to continued care oftheir loved one. relieve guilt, reframe it! #hpm

Wed Feb 29 18:58:52 PST 2012

KathyKastner @DrBeckerSchutte re-frame: oh yeah! #hpmWed Feb 29 18:58:58 PST 2012

maggiemahar RT @ShyDi47: Self care is great only if they r able to. Trying 2 promote independence isall good if they r still able to. #Hpm

Wed Feb 29 18:59:23 PST 2012

FMDChat I encourage you all to spend a few moments learning about Rare Disease Day by visiting
http://www.twitter.com/FMDChathttp://twitter.com/117179079/status/175052585684840448http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://www.twitter.com/maggiemaharhttp://twitter.com/101386174/status/175052481284415490http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/DrBeckerSchuttehttp://www.twitter.com/KathyKastnerhttp://twitter.com/24399366/status/175052455845953536http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/aliciabloomhttp://twitter.com/166985027/status/175052449256701952http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KathyKastnerhttp://www.twitter.com/NaheedDhttp://twitter.com/265843895/status/175052423398834176http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://twitter.com/262368526/status/175052340326440960http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KnowYourWisheshttp://www.twitter.com/FMDChathttp://www.twitter.com/KnowYourWisheshttp://twitter.com/101386174/status/175052301663354880http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/authordhallmanhttp://www.twitter.com/KathyKastnerhttp://twitter.com/126842522/status/175052277504163840http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KathyKastnerhttp://www.twitter.com/DrBeckerSchuttehttp://twitter.com/241208166/status/175052198210842624http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://twitter.com/101386174/status/175052023182532610http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KathyKastnerhttp://twitter.com/121558178/status/175052002487844864http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/rfberryhttp://twitter.com/262368526/status/175051954219794432http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/aliciabloomhttp://www.twitter.com/KnowYourWishes

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http://t.co/gmz1pWCz.#hpm

Wed Feb 29 18:59:25 PST 2012

DrBeckerSchutte @KathyKastner Caregivers need to understand when they avoid self-care, they increaseguilt in patients--and their care is diminished. #hpm

Wed Feb 29 18:59:30 PST 2012

KathyKastner@NaheedD Every Wednesday 8-9pm. Amazing tweeps.. #hpm

Wed Feb 29 18:59:34 PST 2012

jfclearywisc RT @FMDChat: I encourage you all to spend a few moments learning about Rare DiseaseDay by visiting http://t.co/Em4Swg9o.#hpm

Wed Feb 29 19:00:10 PST 2012

KathyKastner @DrBeckerSchutte Yeah, I think there are many communication /misperception issues wcaretivers/pts #hpm

Wed Feb 29 19:00:20 PST 2012

DrBeckerSchutte I live for the reframe! RT @KathyKastner: @DrBeckerSchutte re-frame: oh yeah! #hpmWed Feb 29 19:00:34 PST 2012

authordhallman Thanks HPM friends. Good tweetchat. #hpmWed Feb 29 19:00:46 PST 2012

rfberry Info here: http://t.co/lecNv5U0 (thanks Kathy!) RT @KathyKastner@NaheedD EveryWednesday 8-9pm CST. Amazing tweeps #hpm

Wed Feb 29 19:00:47 PST 2012

schwartzbrown Will do. Thanks all #hpmWed Feb 29 19:00:52 PST 2012

ctsinclair The #hpm Daily is out! http://t.co/hXekg5Al Top stories today via @rfberry@seasonshospice@emilyamuse@compandchoices

Wed Feb 29 19:01:18 PST 2012

rfberry RT @FMDChat I encourage you all to spend a few moments learning about Rare DiseaseDay by visiting http://t.co/Dxh42lDN#hpm

Wed Feb 29 19:01:26 PST 2012

KathyKastner Geez,. Didn't realize that one. thanks Mindy RT @schwartzbrown: often diseases havegenetic origins tht create guilt for family members #hpmWed Feb 29 19:01:44 PST 2012

DrBeckerSchutte @KathyKastner Caregiving is such an isolated and heartbreaking path at times. But it canalso be an an amazing gift to self & loved one #hpm

Wed Feb 29 19:01:45 PST 2012
http://twitter.com/126842522/status/175053181049520129http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KathyKastnerhttp://www.twitter.com/DrBeckerSchuttehttp://twitter.com/101386174/status/175053179350827008http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/schwartzbrownhttp://www.twitter.com/KathyKastnerhttp://twitter.com/121558178/status/175053101689085952http://www.symplur.com/healthcare-hashtags/hpm/http://t.co/Dxh42lDNhttp://www.twitter.com/FMDChathttp://www.twitter.com/rfberryhttp://twitter.com/17206739/status/175053067534864385http://www.twitter.com/compandchoiceshttp://www.twitter.com/emilyamusehttp://www.twitter.com/seasonshospicehttp://www.twitter.com/rfberryhttp://t.co/hXekg5Alhttp://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/ctsinclairhttp://twitter.com/273605086/status/175052959644786688http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/schwartzbrownhttp://twitter.com/121558178/status/175052939726041091http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/NaheedDhttp://www.twitter.com/KathyKastnerhttp://t.co/lecNv5U0http://www.twitter.com/rfberryhttp://twitter.com/284885422/status/175052935774994432http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/authordhallmanhttp://twitter.com/126842522/status/175052882662531073http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/DrBeckerSchuttehttp://www.twitter.com/KathyKastnerhttp://www.twitter.com/DrBeckerSchuttehttp://twitter.com/101386174/status/175052826467246080http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/DrBeckerSchuttehttp://www.twitter.com/KathyKastnerhttp://twitter.com/27231379/status/175052781588189184http://www.symplur.com/healthcare-hashtags/hpm/http://t.co/Em4Swg9o.http://www.twitter.com/FMDChathttp://www.twitter.com/jfclearywischttp://twitter.com/101386174/status/175052630484197376http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/NaheedDhttp://www.twitter.com/KathyKastnerhttp://twitter.com/126842522/status/175052615074332674http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KathyKastnerhttp://www.twitter.com/DrBeckerSchuttehttp://twitter.com/241208166/status/175052593867923458http://www.symplur.com/healthcare-hashtags/hpm/http://t.co/gmz1pWCz.

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rfberry @FMDChat Thanks for hosting! Appreciate being able to take some time & discuss topicsfor Rare Disease Day. Keep up the advocacy! #hpm

Wed Feb 29 19:02:13 PST 2012

FMDChat Thank you for your participation tonight! Best wishes to all for a safe and healthful rest ofthe week. #hpmWed Feb 29 19:02:26 PST 2012

ShyDi47 Making sure the pt @ family r happy @ content with the care they r receiving. Make sure pneeds r being fully met. #Hpm

Wed Feb 29 19:02:35 PST 2012

KathyKastner RT @schwartzbrown: In some ways, everyone with a chronic illness considers it rare. Andthat's legit #hpm

Wed Feb 29 19:03:02 PST 2012

ShyDi47 Just like any occupation caregiving can be rewarding and fulfilling but it is not a job foreveryone #Hpm

Wed Feb 29 19:03:42 PST 2012

rfberry Shared Decision Making featured on @NEJM The Pinnacle of Patient-Centered Carehttp://t.co/4TFhqv2F via @afrakt#hpm#s4pm#NHDD

Wed Feb 29 19:04:05 PST 2012

KathyKastner @FMDChat Amazinhg hosting. So much I get to learn. Thanks all. #hpmWed Feb 29 19:04:23 PST 2012

ShyDi47 Great chat everyone hopefully I will see each of you next week. Have a great rest of theweek. #Hpm

Wed Feb 29 19:04:27 PST 2012

KnowYourWishes Thx for the chat as always! I missed #hpm. Hope to be back more consistently! G'night all#hpm

Wed Feb 29 19:04:30 PST 2012

KathyKastner +1 RT @KnowYourWishes: Thx for the chat as always! I missed #hpm. Hope to be backmore consistently! G'night all! #hpm

Wed Feb 29 19:04:49 PST 2012

FMDChat @FMDChat Thank you again for the opportunity. Please visit us at http://t.co/vsdVPbgV&on the new webpage at http://t.co/ZZOJRUzA.#hpmWed Feb 29 19:04:50 PST 2012

KThomtweets RT @schwartzbrown: In some ways, everyone with a chronic illness considers it rare. Andthat's legit #hpmWed Feb 29 19:05:36 PST 2012
http://twitter.com/50016323/status/175054150697099264http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/schwartzbrownhttp://www.twitter.com/KThomtweetshttp://twitter.com/241208166/status/175053959088701440http://www.symplur.com/healthcare-hashtags/hpm/http://t.co/ZZOJRUzA.http://t.co/vsdVPbgVhttp://www.twitter.com/FMDChathttp://www.twitter.com/FMDChathttp://twitter.com/101386174/status/175053953057292288http://www.symplur.com/healthcare-hashtags/hpm/http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KnowYourWisheshttp://www.twitter.com/KathyKastnerhttp://twitter.com/262368526/status/175053874212765696http://www.symplur.com/healthcare-hashtags/hpm/http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/KnowYourWisheshttp://twitter.com/265843895/status/175053863152390144http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://twitter.com/101386174/status/175053843409801216http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/KathyKastnerhttp://twitter.com/121558178/status/175053770378579968http://www.symplur.com/healthcare-hashtags/NHDD/http://www.symplur.com/healthcare-hashtags/s4pm/http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/afrakthttp://t.co/4TFhqv2Fhttp://www.twitter.com/NEJMhttp://www.twitter.com/rfberryhttp://twitter.com/265843895/status/175053674324832257http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://twitter.com/101386174/status/175053503264333824http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/schwartzbrownhttp://www.twitter.com/KathyKastnerhttp://twitter.com/265843895/status/175053390731161600http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://twitter.com/241208166/status/175053354928582656http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://twitter.com/121558178/status/175053297739235328http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/rfberry

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aliciabloom thanks to @FMDChat for hosting tonight's #hpm chat!Wed Feb 29 19:05:40 PST 2012

KathyKastner LOL. I'm with ya RT @DrBeckerSchutte: I live for the reframe! RT @KathyKastner:@DrBeckerSchutte re-frame: oh yeah! #hpmWed Feb 29 19:05:52 PST 2012

ShyDi47 Be thankful for what u do have @ not for what u don't have. Something to think about. xo#HpmWed Feb 29 19:06:10 PST 2012

milhealth RT @rfberry: RT @FMDChat encourage all 2spend a few moments learning about RareDisease Day by visiting http://t.co/qVboLThp#hpmWed Feb 29 19:07:10 PST 2012
http://twitter.com/27807159/status/175054544454164482http://www.symplur.com/healthcare-hashtags/hpm/http://t.co/qVboLThphttp://www.twitter.com/FMDChathttp://www.twitter.com/rfberryhttp://www.twitter.com/milhealthhttp://twitter.com/265843895/status/175054291856400384http://www.symplur.com/healthcare-hashtags/Hpm/http://www.twitter.com/ShyDi47http://twitter.com/101386174/status/175054218745487361http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/DrBeckerSchuttehttp://www.twitter.com/KathyKastnerhttp://www.twitter.com/DrBeckerSchuttehttp://www.twitter.com/KathyKastnerhttp://twitter.com/24399366/status/175054165595262976http://www.symplur.com/healthcare-hashtags/hpm/http://www.twitter.com/FMDChathttp://www.twitter.com/aliciabloom

#Hpm Tweet Chat 2:29:12

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