Henry Simmons Chief Executive Alzheimer Scotland.
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Transcript of Henry Simmons Chief Executive Alzheimer Scotland.
Outline of presentation
• Explore the evolution of personalisation and dementia care
• Look back to 2008 and highlighting key challenges at that time
• Consider the approach and strategies we adopted to shift this culture
• Look at where we are in 2013
• Consider some issues for workshops
Background
• People with dementia and their families not part of SDS or personalisation agenda
• Stigma and negative attitudes
• Myth that nothing can be done about dementia
• Myth over capacity and choice
• Denial of basic human rights
• Not on Alzheimer Scotland agenda
Need for a new vision and a new conceptual construct of dementia
From this• Nothing you can do• Lacks capacity• In a care home• Dependant• Burden• Pressure
To this• Citizen• Active• Included• Self manager• Natural supports• Ability to plan• Means to be included
“Form follows Function” Building a new vision
Personalisation• Individuality• Choice• Power• Control• Self determination• Capacity• Value• Citizenship• Inclusion
BASW Basic values
• Human dignity and worth
• Social Justice• Service to humanity• Integrity• Competence
Universal Declaration of Human Rights (1948)
States human rights are based on a “recognition of the inherent dignity and of the equal and inalienable rights of all members of the human family” and “[a]ll human beings are born free and equal in dignity and rights”.
Human Rights- a legal basis to personalisation?
The European Convention on Human Rights (ECHR), incorporated into domestic law through the Human Rights Act (1998), and the Scotland Act (1998)
• The right to take part• The right to a personal life• The right to live independently and be included • No exceptions
Personalisation/SDS is the form for delivering a human rights approach
Function and vision
Ensure that the human rights of people with dementia and their families are met within both their community and support arrangements
Form
• Introduction of person
centred care• Develops into
personalisation• Leads to legislation
and implementation SDS
Building the vision- internal and external
• Appointed Director of Personalisation• Developed internal strategic objective to share a
new vision around personalisation• With CPG developed a Charter of Rights and
Human Rights based approach• Developed a PDS pilot using person centred
planning basis• Produced research report “ Let’s get Personal”• Developed SG funded pilot in Ayrshire• Worked closely with SG to get Dementia on the
agenda
Gathering momentum• Internally every service has a personalisation
strategy• Charter of rights informs National Dementia
Strategy• New standards and skills framework underpinned by
human rights • PDS pilot evidences value of person centred
approach• Ayrshire pilot evidences effectiveness and demand
for SDS• SG increase investment in and place high priority on
dementia
Our SDS infrastructure
• Advisors in 1. National role- Yvonne Stewart2. Glasgow3. Ayrshire and Dumfries4. Renfrewshire and East Renfrewshire5. Perth and Dundee
• 90% of staff trained in personalisation• Every service has local plan in place
( still a way to go)
Where are we now in 2013?
• Dementia is embedded in SDS strategy and thinking
• Core partnership with the SG and bill team• Increased take up by around 150%• Now 244 people with dementia using SDS• We have a firm human rights focus leading
all policy• Dementia has not been left out but we
have so much still to do.
Some thoughts for the workshops?
• What are the current values and vision of health and social care?
• Do you think we are following a “form always follows function” process with regards the integration agenda?
• Do you agree that personalisation /SDS is the manifestation of human rights in a care system?
• Should a Human Rights Approach be the vision for an integrated system?