Healthcare for London – Stroke Project Rehabilitation and Community Care Event 8 th August 2008.
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Transcript of Healthcare for London – Stroke Project Rehabilitation and Community Care Event 8 th August 2008.
Healthcare for London – Stroke ProjectRehabilitation and Community Care Event 8th August 2008
Welcome!
Rachel TyndallHealthcare for London Stroke Project
Senior Responsible Officer
Chief Executive, Islington PCT
Developing an Improved Stroke Pathway
• The Stroke Project has been established to develop and deliver a pan-
London Strategy for the end-to-end stroke pathway
• The scope for this phase of work includes:
Scope for Today
PREVENTIONPREVENTIONPREVENTIONPREVENTION ACUTE CAREACUTE CAREACUTE CAREACUTE CAREREHABLITITATIONREHABLITITATION
& COMMUNITY & COMMUNITY CARECARE
REHABLITITATIONREHABLITITATION& COMMUNITY & COMMUNITY
CARECARE
1 2 3
HASU SU• Primary Prevention• Secondary Prevention• Awareness
• Community Therapy• Healthcare – GP and Community Nursing• Social care• Voluntary services• In-patient specialist Stroke rehabilitation
• Hyper-Acutestroke care (first 72 hrs)
• Stroke Unit(post 72 hrsacute rehab)
Programme and Project Governance
ProjectBoard
CAG
ProjectTeam
LCG
PEG
ExpertPanel
Clinical & Social Care
Patient / Carer
Commissioning / Finance
Jul Aug Sep Oct Nov Dec Jan Feb Mar Apr
Preliminary Acute Stroke StrategyPreliminary Rehab Stroke StrategyPreliminary Prevention Stroke Strategy
Stroke Strategy
Phase 1
Phase 2a Engagement Process
Pathway Investment Case
Acute Designation Document
Phase 2b Initial Designation
Phase 2c Consultation
Phase 3
Preliminary Evaluation
Pre-consultation Business Case
from 2nd Quarter
Project Plan – Phases 1 and 2
Prep Consultation Docs Consultation Options
Proposals from Trusts
Specification of model
Investment case
Produced
Designation Process
New Service
Kevin HunterHealthcare for London Stroke Project
Project Manager
The Stroke Strategy
Strategy for Community will follow a
similar structure:
•As-Is Assessment
• Early support
• Long-term care
• To-Be Design
• Resolutions to current challenges
• Performance Standards
• Impact Assessment of Gaps
• Action Plan to Address Gaps
• Process for Making the Changes
http://www.healthcareforlondon.nhs.uk/ (this can be found under “Reports” on right side of the homepage)
We’ve just issued our Preliminary Acute Stroke Strategy…
And now we are engaging with a range of stakeholders to gain feedback prior to the Acute designation process
Key Difference for Community Rehabilitation
Because we are commissioning a new service model for ACUTE we need…
• A service specification (entry criteria) for service providers
• Performance standards to monitor improvements once a service provider is designated and the new service is established
• A detailed need and affordability assessment
For COMMUNITY we are not commissioning a new service model but would like to improve the current models of care:
• Focus on a set of performance standards that all care settings can refer to
• High level understanding of need and service costs
A Generic Pathway for Rehab and Community Care
Referral Assessment Plan InterventionDischarge &
Follow upRe-
assessment
Referralreceived
and prioritised
by service
Assessmentof patientand carer
needs
Plan ofintervention
agreed
Interventionundertaken
Re-assessneeds,
review andadjust
plan of intervention
Decisionon ongoinginterventionand follow
up
The Scope of Stroke Rehabilitation and Community Care
Community therapy
Social care
Voluntary services
In-patient specialist Stroke rehabilitation
Health care - GPand community nursing
09.30 – 09.50h Introduction
09.50 – 11.05h As-is Challenges – Early Support
11.05 – 11.20h Coffee Break
11.20 – 12.20h As-is Challenges – Long-term Care
• Speaker: Chris Clark, Stroke Association
• Speaker: Carole Pound, Connect
12.20 – 13.05h Lunch
13.05 – 14.00h To-be Resolutions of Challenges
14.00 – 14.30h To-be Performance Standards
14.30 – 14.45h Tea Break
14.45 – 16.00h To-be Performance Standards cont.
16.00 – 16.55h Data Sets
16.55 – 17.00h Close Reception to follow at the Inn the Park, St James Park
Agenda
Gill CluckieStroke Nurse Specialist, Guys & St
Thomas’ NHS Foundation Trust
&
Heather CampbellNeuro Rehabiliation Team Manager
Southwark PCT
As-Is Challenges – Early Support
• Issues and challenges impacting current service provision were collated from:- Site visits- Previous stroke event- Expert working group
• Aim of this session is to complete sign off of the list of current challenges impacting stroke services across London
Patient pathways into Community Therapy
Stroke unit
No therapy
End of life care
Inpatientspecialist
rehab
Voluntary services
GP and community nursing
Community therapy
Early supported discharge
Community stroke team
Intermediate care
Generic team
Neuro team
Social care
Vocationalrehab psychology
Hyper-acutestroke unit
(HASU)
therapy long term Outside project scope Service gaps
Challenge Summary Poor practice Good practice
Workforce and skills
Need for appropriately skilled staff to provide required intensity and duration of treatment, care or support
Lack of clinical psychology input in stroke rehabilitation
Availability of rehabilitation support workers in patients’ home 7 days per week where necessary
Information and technology
Appropriate information is not available at key points in the patients’ pathway
Lack of integration of IT systems between providers
Patient management IT tool in use for information and audit
Major challenges - Workforce & Information/Technology
Major challenges – Transfer of Care and Linkages
Challenge Summary Poor practice Good practice
Transfer of care Need for seamless transfer of care between providers along the patients’ pathway
Inconsistencies with access to seamless liaison between in-reaching and out-reaching teams from the acute to the community setting
Availability of specialist medical outreach for community follow up of stroke patients
Linkages Cross- organisational working to encompass the complexities between providers e.g. networks
Inequality of access to social services provision dependant upon boroughs
Community rehabilitation teams which are fully integrated with social services
Major challenges – Finance and Infrastructure
Challenge Summary Poor practice Good practice
Financial structures, costs and income
Costs of provision of rehabilitation in the community setting are more complex to track than other areas
No clear system of recording intensity, duration and outcomes of community based rehabilitation
The use of the RIO system within a stroke rehabilitation pathway to identify details of likely costs
Infrastructure Appropriate equipment and system organisation to deliver care and treatment
Delays in the delivery of essential equipment for patient independence and safety at home
The use of OT technicians to assess and fit appropriate pieces of equipment
Major challenges – Personal and Social
Challenge Summary Poor practice Good practice
Personal and social
Personal, social and family challenges
Difficulty in equipment supply via private landlords
Regular access to a benefits advisor to help with access to appropriate benefits and financial support
Workshop 1: Early Support & Challenges
1.Critique the high level pathway presented:
• Does it represent the services patients receive across London?
• Is there anything missing which should be included?
On your table, you will find a grid documenting the current challenges that were provided from the previous stroke event.
2. In your table groups, we would like you to critique the challenges:
• Do the categories reflect the key areas of challenge?
• Do these reflect current issues across London?
Time for workshop – 60 min
09.30 – 09.50h Introduction
09.50 – 11.05h As-is Challenges – Early Support
11.05 – 11.20h Coffee Break
11.20 – 12.20h As-is Challenges – Long-term Care
• Speaker: Chris Clark, Stroke Association
• Speaker: Carole Pound, Connect
12.20 – 13.05h Lunch
13.05 – 14.00h To-be Resolutions of Challenges
14.00 – 14.30h To-be Performance Standards
14.30 – 14.45h Tea Break
14.45 – 16.00h To-be Performance Standards cont.
16.00 – 16.55h Data Sets
16.55 – 17.00h Close Reception to follow at the Inn the Park, St James Park
Agenda
COFFEE BREAK
11:05 – 11:20am
09.30 – 09.50h Introduction
09.50 – 11.05h As-is Challenges – Early Support
11.05 – 11.20h Coffee Break
11.20 – 12.20h As-is Challenges – Long-term Care
• Speaker: Chris Clark, Stroke Association
• Speaker: Carole Pound, Connect
12.20 – 13.05h Lunch
13.05 – 14.00h To-be Resolutions of Challenges
14.00 – 15.30h To-be Performance Standards
15:30 – 15:45h Tea Break
15.45 – 16.45h Data Sets
16.45 – 17.00h Q&A Session
17:00h Close Reception to follow at the Inn the Park, St James Park
Agenda
Chris StreatherHealthcare for London Stroke Project
Clinical Director
Medical Director, St Georges Healthcare NHS Trust
Patient pathways into Community Therapy
Stroke unit
No therapy
End of life care
Inpatientspecialist
rehab
Voluntary services
GP and community nursing
Community therapy
Early supported discharge
Community stroke team
Intermediate care
Generic team
Neuro team
Social care
Vocationalrehab psychology
Hyper-acutestroke unit
(HASU)
therapy long term Outside project scope Service gaps
Long-term Care
Why a Focus on Long-term Care is Required
• “Much more physiotherapy – we had to pay for more physiotherapy”
• “Counselling would have made a difference”
• “A local group for family/carers to give them support”
• “More therapy for the sufferer on an ongoing basis – six weeks is not enough for victims with dysphasia/memory/movement difficulties!”
• “More speech care”
Q: In relation to your long-term care what financial, social, medical care or help would you have liked?
• “ Now my husband has finished rehab again we feel again complete abandon – there is no follow-up – it’s like saying ‘you’ve had your twelve weeks – that’s your lot, get on with it!’”
• “I had to chase for any help!”
• “I left hospital and went home and basically nothing was done for me!”
• “His rehab did not start for 3.5 months later”
Q: What one thing made your experience of having a stroke worse for you?
Results from stroke survivors and carers consultation
Chris ClarkStroke Association
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
SERVICES
• Unique in spread and inclusion of all ages and conditions
• Crossing health and social care
• Complementary, adding value to statutory services
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Philosophy
• Client led
• Promoting empowerment and control
• Enabling, not disabling
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Philosophy
• Service design must reflect complex and interacting problems and needs …..
• From service centred to client centred
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Establishing Need
• Listening to users and including in service design, but
• A “reductionist” and patchy research base - gaps in mental and emotional well-being, social and carer needs
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Our Services
• Organised Regionally and in Countries
• 250 contracts with PCTs and SSs
• Cost supplemented by grants programme and “extras”, primarily social reintegration
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Staff and Volunteers
• Staff: mostly former health professionals, nurses and AHPs
• Volunteers: high proportion of people affected by stroke
• High premium on training and support
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Our Clients
• 16,000 referrals p.a. ….and rising
• 87% from health professionals
• 95% of referrals are accepted
• 16,000 caseload ……and rising
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Access• 31% of referrals received within a week
of the stroke
and
• 40% more within 4 weeks of stroke
• 82% “active” within one week of referral
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Who?
• 4% aged <45• 22% aged 45 - 64
• 25% live alone
• 33% from black and ethnic minorities in London
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Completion
27% Completed - with improvement
24% No longer requires the service
14% Died
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Access to our services(estimated:)
1:20 London
• 10:20 North-West
• 12:20 Wales
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Our Services
• Continued modernisation…….
• Centred around the client …….
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Family & Carer SupportInformation, advocacy, representation, liaison, signposting
Assessment & Goal SettingCommunication
Support
Working Age
&
Return to work
Community Integration
Activities e.g. arts
Family & Carer Support
Health Promotion
BME
Training
Aids & Appliances
EmotionalSupport
&Counselling
Goal Review & Reassessment
Long Term support“Goodbye” Stroke
Club
S I S
SelfReferral
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Quality
• Charter Mark – achieved
• IIP – in progress
• Service Standards – achieved and improving
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Research Overview
• RCTs on newly formed services in the 1990s failed to demonstrate measurable health gains
• But they did show patient satisfaction, information needs met and that “someone had really listened”
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Impact Survey 2008 - satisfaction
• Information
• 76% - all needs met
• 18% - needs partly met
• Expectations
• 27% -met
• 49% - exceeded
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Impact Survey 2008 - outcomes
• Communication Support
• 92% report that we have fully or partly helped them face the world
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Impact Survey 2008 - outcomes
• Signposting – Family & Carer Support
• 85% recorded having received information about other support organisations
Stroke helpline Website0845 3033 100 www.stroke.org.ukStroke helpline Website0845 3033 100 www.stroke.org.uk
Impact Survey 2008 - outcomes
“I was able to recover my confidence, make friends and thanks to the art class recover the use of my hands…………... I have a normal life back”
Stroke helpline Website0845 3033 100 www.stroke.org.uk
Carole PoundConnect
www.ukconnect.org
Carole Pound
Jane Stokes Harry Clarke
Responding to Healthcare for
London consultation themes
www.ukconnect.org
About Connect• Our vision
– to enable people living with aphasia and communication disability across the UK to find opportunity and fulfilment
• Our mission – To improve the lives of people living with aphasia and
communication disability through…• Innovation projects – piloting new ideas and service
improvements• Training, consultancy, publications• Collaboration and authentic involvement of people living with
aphasia at every level
www.ukconnect.org
Consultation themes
• ‘Not knowing’
• Communication skills and communication access
• Time and timing
• Value of peer support and peer led services
• Long term support beyond health
www.ukconnect.org
Practical solutions from Connect - communication
• Training in communication skills and communication access for all
• ‘consultant to tea lady’; Social care staff ; employers ; Relatives and friends
• Paperwork!!
www.ukconnect.org
Practical solutions from Connect - information
• Information, advice and support developed by people living with stroke and aphasia for people living with stroke and aphasia
– Information resources e.g. Stroke and Aphasia Handbook; Having a stroke being a parent; Caring and Coping
– Information events e.g. Connect for a day GP events; community roadshow events
– Information people e.g. trained and supervised volunteers, befrienders and peer supporters; expert storytellers
www.ukconnect.org
www.ukconnect.org
Practical solutions from Connect – peer led support
• Counselling and emotional support• Relatives groups, information sessions and
befriending• Conversation and self help groups• Leading and modelling self management e.g.
work, volunteering, photography, Women’s Group• Community awareness raising• Social networking activities• Hospital and home befriending
www.ukconnect.org
Stories from Connect
• Jane – co-facilitator of conversation groups; befriender
• Harry – trained counsellor; staff member; facilitator Men’s Group
www.ukconnect.org
Hospital and Home Befriending
• Provide emotional and practical support in hospital or at home
• Share experience, know how and knowledge• Befrienders with a variety of experiences, time
since onset of stroke, communication abilities• Trained and supported – CRB check,interview,
training, feedback sheets, support groups
www.ukconnect.org
Hospital and Home Befriending
• Evaluation by people with stroke and aphasia– ‘hope …there is a future’– Encouragement to do new things – ‘I told him how I’d
got my driving licence – he’s got his now’ – ‘Mood lifts , not so depressed, not so stuck’– ‘Her confidence was very low ..I picked it up’– ‘Someone different to the family …befriender fills a
space’– ‘Man to man or woman to woman chat – chatting to
someone outside the family’– ‘Nurses and care home staff learn can learn from
what befriender is doing , like communication skills’
www.ukconnect.org
More about Connect
• Visit our website – www.ukconnect.org
• Subscribe to our e-newsletter – [email protected]
• Contact us about training, publications and consultancy –– [email protected]
Workshop 2: Long-term Care Challenges
1. Taking the 7 categories as in workshop 1 : discuss their appropriateness for long-term care
2. Identify the current challenges relating to long-term care
Time for workshop: 25 min
09.30 – 09.50h Introduction
09.50 – 11.05h As-is Challenges – Early Support
11.05 – 11.20h Coffee Break
11.20 – 12.20h As-is Challenges – Long-term Care
• Speaker: Chris Clark, Stroke Association
• Speaker: Carole Pound, Connect
12.20 – 13.05h Lunch
13.05 – 14.00h To-be Resolutions of Challenges
14.00 – 14.30h To-be Performance Standards
14.30 – 14.45h Tea Break
14.45 – 16.00h To-be Performance Standards cont.
16.00 – 16.55h Data Sets
16.55 – 17.00h Close Reception to follow at the Inn the Park, St James Park
Agenda
Lunch 12:20 – 13:05
09.30 – 09.50h Introduction
09.50 – 11.05h As-is Challenges – Early Support
11.05 – 11.20h Coffee Break
11.20 – 12.20h As-is Challenges – Long-term Care
• Speaker: Chris Clark, Stroke Association
• Speaker: Carole Pound, Connect
12.20 – 13.05h Lunch
13.05 – 14.00h To-be Resolutions of Challenges
14.00 – 14.30h To-be Performance Standards
14.30 – 14.45h Tea Break
14.45 – 16.00h To-be Performance Standards cont.
16.00 – 16.55h Data Sets
16.55 – 17.00h Close Reception to follow at the Inn the Park, St James Park
Agenda
Example of Suggested Resolutions to Welfare Challenges
Summary Issues
Specific examples of
good practice
Specific examples
of bad practice
Resolution
Linking health and social care
Difficult or no access to benefits and vocational training
Differences in rehabilitation provision dependent on age
Units operating on age criteria (health inequality)
Provide capacity and resources to meet need and negotiated health outcomes
Lack of skilled and knowledgeable staff to deal with stroke-related issues for younger people
Staff/patients/carers to liaise with Different Strokes to understand the experience of the young stroke sufferer
Workshop 3: To-Be Resolutions to As-Is Challenges
• Following on from the identified challenges, we need to identify likely resolutions to these• Some were suggested at the last stroke event and some from the expert working panel
Workshop:
On your table, you will find a large poster version of the challenges and potential resolutions
1. Critique the suggested resolutions
2. Are there any additional resolutions to the challenges?
Time for workshop: 50 minutes
09.30 – 09.50h Introduction
09.50 – 11.05h As-is Challenges – Early Support
11.05 – 11.20h Coffee Break
11.20 – 12.20h As-is Challenges – Long-term Care
• Speaker: Chris Clark, Stroke Association
• Speaker: Carole Pound, Connect
12.20 – 13.05h Lunch
13.05 – 14.00h To-be Resolutions of Challenges
14.00 – 14.30h To-be Performance Standards
14.30 – 14.45h Tea Break
14.45 – 16.00h To-be Performance Standards cont.
16.00 – 16.55h Data Sets
16.55 – 17.00h Close Reception to follow at the Inn the Park, St James Park
Agenda
Cathy IngramHead of Adult Therapies, Lambeth PCT
&
Diane PlayfordConsultant Neurologist,
University College London Hospitals NHS Trust
The Generic Pathway for Rehab and Community Care
Referral Assessment Plan InterventionDischarge &
Follow upRe-
assessment
Referralreceived
and prioritised
by service
Assessmentof patientand carer
needs
Plan ofintervention
agreed
Interventionundertaken
Re-assessneeds,
review andadjust
plan of intervention
Decisionon ongoinginterventionand follow
up
Outcomes across settings
CARE
PATHWAY
SETTING
In-patient specialist stroke rehab
Community therapy -generic or specialist
ESD teams
Healthcare by GP and community
nursing
Social CareVoluntary services
Referral
Assessment
Plan
Intervention
Discharge & follow-up
Re-assessment
APPROPRIATE SHARING OF RELEVANT INFORMATION FROM JOINT ASSESSMENT PROCESS OCCURS ACROSS THE PATHWAY SERVICE PROVIDERS
CONTINUITY OF CARE AND LONG TERM NEEDS OF PATIENTS AND CARERS ARE SUPPORTED ORGANISATIONS WORK PROACTIVELY TO
MAKE APPROPRIATE REFERRALS AND SIGNPOST EFFECTIVELY
ALL PATIENTS’ AND CARERS’ NEEDS ARE ASSESSED IN A TIMELY MANNER
THERAPY / CARE PROVISION IS NEEDS LED AND RESPONSIVE
CONSISTENT, APPROPRIATE AND TIMELY ACCESS TO HIGH QUALITY THERAPY / SUPPORT / CARE AVAILABLE TO ALL
PLANS TAKE ACCOUNT OF PATIENT AND CARER NEEDS AND WISHES, ARE COMMUNICATED IN AN APPROPRIATE FORMAT IN A TIMELY MANNER AND TAKE ACCOUNT OF OTHER SERVICES
BEING PROVIDED
Outcomes/Outputs - Community Therapy
Referral Assessment Plan InterventionRe-
assessmentDischarge
& follow-up
Early dischargesupported
Therapy needsand disablement/
impairments assessed within 24 hours
of discharge
Therapy plans take account of long term
need and are tailored to individuals’ goals
Therapy to start within 7 days of
assessment and meet minimum requirements
Review at 6 monthsof needs with
reassessment where required and then annually
Follow-up contact made post discharge.
Signposting/referral if appropriateO
utpu
tsC
are
path
way
Out
com
es
Appropriate sharingof relevant
information from joint assessment process
occurs across pathway
Service providers work in partnership
to seek/make appropriate referrals
Patients andcarers are
appropriatelysupported during
care transitionperiod
All patients andcarer needs
assessed in a timely manner
Place patient andcarer needs and
wishes at centre of therapy plans. Plansare communicated
Plans are communicated in an appropriate
media/format and are timely, taking
into accountother services being
provided
Consistent, appropriate and
timely accessto high quality
therapy/support/care available to all
Therapy/care provision is needsled and responsive
Continuity of careand long term needsof patients and carers
are supported
Appropriatenessof care provision
reviewed, referralsmade as necessary
Organisations workproactively to makeappropriate referrals
and signposteffectively
Outcomes/Outputs - Inpatient Specialist Stroke Rehab
- GP informed of admission
- Care Coordinator allocated
- Appropriate bed found
- Medical, non-medical and carer support
assessments completed and communicated
Place patient andcarer needs and
wishes at centre of therapy plans. Plansare communicated
- Client centredintegrated care plan
completed- Signposting to
services
- Residual medical andnon-medical support
needs assessed
- Patients and carers areprepared for discharge
and supported during theprocess
- Discharge planning starts from admission- Medical and support
needs assessment
- Individuals have tailored care plan covering at least
6 months
- Patients and carers are aware of diagnosis
and prognosis; appropriate care
is planned
- Rehab starts from day 1
- Reassessment occursevery two weeks
& immediatelyprior to discharge
- Follow on care planned
- Care coordinatorvisits on day 2 after
discharge
Referral Assessment Plan InterventionRe-
assessmentDischarge
& follow-up
Out
com
esO
utpu
tsC
are
path
way
Outcomes/Outputs - Voluntary Services
Referral Assessment Plan InterventionRe-
assessmentDischarge
& follow-up
Organisations work proactively withclinical and non-clinical service
providers to seek appropriate referrals
Patient and carer needs assessed.
Signposting to other organisations
if necessary
Support provision is patient/carer driven
Peer/group/familysupport & volunteering
opportunities madeavailable as appropriate
Appropriateness ofongoing support
reviewed annually
Annual review.Re-referral if appropriate
Out
puts
Car
e pa
thw
ayO
utco
mes
Appropriate sharingof relevant
information from joint assessment process
occurs across pathway
Service providers work in partnership
to seek/make appropriate referrals
Patients andcarers are
appropriatelysupported during
care transitionperiod
All patients andcarer needs
assessed in a timely manner
Place patient andcarer needs and
wishes at centre of plans.
Plans are communicated in an appropriate
media/format and are timely, taking
into accountother services being
provided
Consistent, appropriate and
timely accessto high quality
therapy/support/care available to all
Service provision is needsled and responsive
Continuity of careand long term needsof patients and carers
are supported
Appropriatenessof service provisionreviewed, referrals
made as necessary
Organisations workproactively to makeappropriate referrals
and signposteffectively
Outcomes/Outputs - Healthcare by GP & Com. Nursing
Referral Assessment Plan InterventionRe-
assessmentDischarge
& follow-up
GP visit within 3 days of discharge
Community nursing visiton day of discharge.Care plan reviewed and communicated
Patient and carerare appropriately
supportedupon return home
Clinical nursing careprovided as needed
from time ofdischarge
Quarterly review ofpatient and
carer needs with referral where required
Quarterly review of patient/carer needswith referral where
requiredOut
puts
Car
e pa
thw
ayO
utco
mes
Appropriate sharingof relevant
information from joint assessment process
occurs across pathway
Service providers work in partnership
to seek/make appropriate referrals
Patients andcarers are
appropriatelysupported during
care transitionperiod
All patients andcarer needs
assessed in a timely manner
Place patient andcarer needs and
wishes at centre of plans.
Plans are communicated in an appropriate
media/format and are timely, taking
into accountother services being
provided
Consistent, appropriate and
timely accessto high quality
therapy/support/care available to all
Service provision is needsled and responsive
Continuity of careand long term needsof patients and carers
are supported
Appropriatenessof service provisionreviewed, referrals
made as necessary
Organisations workproactively to makeappropriate referrals
and signposteffectively
Outcomes/Outputs - Social Care
Referral Assessment Plan InterventionRe-
assessmentDischarge
& follow-up
Home adaptationscomplete before
discharge. Patient &carer are
appropriately supported
to return home
Re-ablement visiton day of discharge.Care plan reviewedand communicated
Care plans to be delivered as
required (24/7)
Social care supportstarts within 1 week
of discharge. Signposting to otherservices and advice
Appropriateness ofongoing care
reviewed annually
Follow-up contact madepost discharge.
Signposting / referralif appropriateO
utpu
tsC
are
path
way
Out
com
es
Appropriate sharingof relevant
information from joint assessment process
occurs across pathway
Service providers work in partnership
to seek/make appropriate referrals
Patients andcarers are
appropriatelysupported during
care transitionperiod
All patients andcarer needs
assessed in a timely manner
Place patient andcarer needs and
wishes at centre of plans.
Plans are communicated in an appropriate
media/format and are timely, taking
into accountother services being
provided
Consistent, appropriate and
timely accessto high quality
support/care available to all
Serviceprovision is needsled and responsive
Continuity of careand long term needsof patients and carers
are supported
Appropriatenessof care provision
reviewed, referralsmade as necessary
Organisations workproactively to makeappropriate referrals
and signposteffectively
Performance Standards - Community Therapy
Measure/ Origin of data Reporting
Indicator BSRM Other Full Interim Frequency
1 I * 100% 80% Regular
2 I * 90% 80% Regular
Target
% of patients assessed within 24 hrs of discharge
% appropriate patients withTreatment started within7 days of assessment
Performance Standards - In-patient Rehabilitation
Measure/ Origin of data Reporting
Indicator BSRM Other Full Interim Frequency
1 I % of patients appropriately
seated within 5 working days of admission
* 100% 80% Regular
2 I% of patients with predicted
discharge date within2 weeks of admission
* 90% 80% Regular
Target
Workshop 4: Performance Standards Each table has been given one care setting to review
1) Review the outcomes for the care setting you have been allocated- Do they reflect what that setting is aiming to achieve?
2) Review the outputs for the care setting- Do they reflect what the care setting is aiming to deliver?
3a) Review performance standards for In-Patient Rehab and Community Rehab
OR
3b) Develop performance standards if your care setting is Voluntary, Social Care or Healthcare
Time for workshop: 75 minutes
Workshop 4: Table Allocations
Table no. Workshop 4
1 Community therapy
2 Community therapy
3 Community therapy
4 Voluntary services
5 Voluntary services
6 Voluntary services
7 Healthcare by GP and community nursing
8 Social care
9 Inpatient specialist stroke rehab
10 Inpatient specialist stroke rehab
11 Inpatient specialist stroke rehab
12 Social care
13 Social care
14 Healthcare by GP and community nursing
15 Healthcare by GP and community nursing
09.30 – 09.50h Introduction
09.50 – 11.05h As-is Challenges – Early Support
11.05 – 11.20h Coffee Break
11.20 – 12.20h As-is Challenges – Long-term Care
• Speaker: Chris Clark, Stroke Association
• Speaker: Carole Pound, Connect
12.20 – 13.05h Lunch
13.05 – 14.00h To-be Resolutions of Challenges
14.00 – 14.30h To-be Performance Standards
14.30 – 14.45h Tea Break
14.45 – 16.00h To-be Performance Standards cont.
16.00 – 16.55h Data Sets
16.55 – 17.00h Close Reception to follow at the Inn the Park, St James Park
Agenda
Tea 14:30 – 14:45
09.30 – 09.50h Introduction
09.50 – 11.05h As-is Challenges – Early Support
11.05 – 11.20h Coffee Break
11.20 – 12.20h As-is Challenges – Long-term Care
• Speaker: Chris Clark, Stroke Association
• Speaker: Carole Pound, Connect
12.20 – 13.05h Lunch
13.05 – 14.00h To-be Resolutions of Challenges
14.00 – 14.30h To-be Performance Standards
14.30 – 14.45h Tea Break
14.45 – 16.00h To-be Performance Standards cont.
16.00 – 16.55h Data Sets
16.55 – 17.00h Close Reception to follow at the Inn the Park, St James Park
Agenda
Workshop 4: Performance Standards Each table has been given one care setting to review
1) Review the outcomes for the care setting you have been allocated- Do they reflect what that setting is aiming to achieve?
2) Review the outputs for the care setting- Do they reflect what the care setting is aiming to deliver?
3a) Review performance standards for In-Patient Rehab and Community Rehab
OR
3b) Develop performance standards if your care setting is Voluntary, Social Care or Healthcare
Time for workshop: 75 minutes
09.30 – 09.50h Introduction
09.50 – 11.05h As-is Challenges – Early Support
11.05 – 11.20h Coffee Break
11.20 – 12.20h As-is Challenges – Long-term Care
• Speaker: Chris Clark, Stroke Association
• Speaker: Carole Pound, Connect
12.20 – 13.05h Lunch
13.05 – 14.00h To-be Resolutions of Challenges
14.00 – 14.30h To-be Performance Standards
14.30 – 14.45h Tea Break
14.45 – 16.00h To-be Performance Standards cont.
16.00 – 16.55h Data Sets
16.55 – 17.00h Close Reception to follow at the Inn the Park, St James Park
Agenda
Timothy D’EstrubeHealthcare for London Stroke Project
Project Data Analyst
Stroke Project Data Products – Acute
• For the Preliminary Acute Stroke Strategy Healthcare for London developed the Acute Care Model and Volumes, with assistance from London School of Economics and Political Science.
• The model provides a reasonable depiction of the new acute care pathway in the terms of estimated volumes of patients and required bed days.
Stroke Project Data Products - Rehab & Comm. Care
• For the Rehab& Stroke Strategy we need to understand what happens to patients following their acute care.
• Unfortunately the variables that predict a Stroke event do not easily predict the level of disability an individual may be left with at discharge from Acute Care.
Propose Data Products: Rehab and Community Care
Stroke unit
7,237 people
No Therapy (1,578 people)
End of life care
Hyper-acutestroke unit
(HASU)
11,503 people
Mild Disability (2,745 – 2,840 people)
Moderate Disability (1,562 – 1,657 people)
Severe Disability (331 – 379 people)
Year One Year Two Year Three
6,3
11
Pe
op
le
25%
43.5% - 45%
24.75% - 26.25
5.25% - 6%
• For Phase Two we are proposing to use a model that assigns patients a disability category based on discharge statistics from selected acute care providers.
• This will provide insight into patient disability and the yearly survivorship rates.
This model is populated with preliminary data only.
We will be collecting discharge statistics from selected providers and publish the results as part of the final Stroke Strategy.
Simon MilliganHealthcare for London Stroke Project
Finance Lead
Context – Where Do Stroke Costs Lie?
Prevention
SecondaryCare
PrimaryCare
SocialServices
Wider Economy
LAS
Where the health service costs of Stroke exist:
Category Secondary Care
Primary Care Ambulance
Admitted Patient Care (APC)
Outpatients Critical Care Any Rehab specifically excluded from APC
Rehab in Intermediate Care beds
Transport A/E Early supported discharge team
Community Rehab team
GP
= estimated relative size
Stroke Costs in Acute Hospitals
HRG and description £m (inc MFF)
£m (exc MFF)
Stroke events A19 - Haemorrhagic Cerebrovascular Disorders 11.0 8.8 A20 - Transient Ischaemic Attack >69 or w cc 2.3 1.8 A21 - Transient Ischaemic Attack <70 w/o cc 0.6 0.4 A22 - Non-Transient Stroke or Cerebrovascular Accident >69 or w cc 26.0 20.9 A23 - Non-Transient Stroke or Cerebrovascular Accident <70 w/o cc 6.3 4.9 A99 - Complex Elderly with a Nervous System Primary Diagnosis (*) 16.3 13.0 Sub-total 62.5 49.8 Procedure related events A01 - Intracranial Procedures Except Trauma - Category 1 (**) 0.1 0.1 A02 - Intracranial Procedures Except Trauma - Category 2 (**) 1.2 0.9 A03 - Intracranial Procedures Except Trauma - Category 3 (**) 1.5 1.1 A04 - Intracranial Procedures Except Trauma - Category 4 (**) 2.0 1.5 Q05 - Extracranial or Upper Limb Arterial Surgery(**) 2.0 1.5 Sub-total 6.8 5.1 Total 69.3 54.9
Possible changes to costs
Area Cost type affected
Likely Increase / decrease
Provision of 24/7 imaging Pay, capital charge / lease
Provision of 24/7 thrombolysis Pay, Drugs High dependency care Pay Ward stay Pay, hotel
costs
Ambulance Pay, capital charge / lease
Early supported discharge teams
Pay
Rehab Pay ?
Examples of Rehab models from 2 PCTs
Model 1
Model 2
Secondary care Primary Care
A/EAcute
episodeRehab
episode
Acute Hospital
Community Rehab
Intermediate Care
Home
A/EAcute
episodeRehab
episode
Acute HospitalCommunity Rehab
Intermediate Care
Home
Early Supported Discharge
=> Wide variation of provision and hence cost
Establishing the costs
• How far do we need to go into setting out the current costs?– Needed for context– Needed for Investment Case for Acute
Service• How much are costs likely to change?• For the acute side - service specification• For the rehab side - performance standards
Workshop 5: Service Costing
1. How do we establish current rehab costs?a) Extrapolate from selected PCTsb) Conduct a survey using a proforma –
comments on the proforma2. Have any PCTs done any detailed work costing
Stoke rehab?3. What are the possible consequences of the
Investment Case on:a) Rehabilitation and Community Care costsb) Social Service costsc) Voluntary Sector costs
Time for workshop: 15 minutes
Proforma for each PCT
1) establish how each LHE operates
what services are providedhow does primary care work with acute hospitallist down the "assets" used for inpatient Stroke rehab - owned/leased/spot purchased
2) establish what each PCT is paying for in primary care 3) establish activity / capacity
Stroke£k
Non-Stroke
£knumber of beds
number of bed
days
number of
patients
number of
people looked
afternumber of visits
own provider -arm community beds x x Can this be broken down intonon-own provider arm community beds x x staff by grade?ESD team x x non-payCommunity Rehab team x x overheadsOther x x
note:GP costs?
4) Brief summary of future plans
Questions?
?
Close
Please join us for drinks and at:Inn the Park, St James Park