Health Care Informatics | April 19, 20231 |

WHO Indicator and Metadata Registry (IMR)SDMX-HD Aggregate Data Exchange

WHO Indicator and Metadata Registry (IMR)SDMX-HD Aggregate Data Exchange

Patrick Whitaker

IER/HSI/HCI

Health Care Informatics | April 19, 20232 |

DefinitionsDefinitions

M&E – Monitoring and Evaluation

Indicator – An indicator quantifies and simplifies phenomena and helps us understand complex realities.  Indicators are aggregates of raw and processed data but they can be further aggregated to form complex indices. International Institute for Sustainable Development  (IISD)

SDMX – Statistical Data and Metadata Exchange

(ISO/TS 17369:2005)

Aggregate data – Data summarized from raw, e.g. clinical, data

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What problems are we trying to solve?What problems are we trying to solve?

Varying definitions from multitude of guidelines documents.

Interoperability in a heterogeneous environment.

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Multitude of Guidelines Documents

Multitude of Guidelines Documents

Metadata ViewsMetadata Views

All concepts can have different names and values

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Inconsistent and Incomplete DefinitionsInconsistent and Incomplete Definitions

Indicator Source

HIV prevalence among population aged 15-24 years www.mdgmonitor.org/goal6.cfm

Percentage of young women and men aged 15–24 who are HIV infected data.unaids.org/pub/Manual/2007/20070411_ungass_core_indicators_manual_en.pdf

Proportion of population aged 15-24 years with comprehensive correct knowledge of HIV/AIDS www.mdgmonitor.org/goal6.cfm

Percentage of population aged 15-24 years with comprehensive correct knowledge of HIV/AIDS www.unmillenniumproject.org/goals/gti.htm

Percentage of young people who both correctly identify ways of preventing the sexual transmission of HIV and who reject major misconceptions about HIV www.theglobalfund.org/documents/me/M_E_Toolkit.pdf

Percentage of young women and men aged 15–24 who both correctly identify ways of preventing the sexual transmission of HIV and who reject major misconceptions about HIV transmission

data.unaids.org/pub/Manual/2007/20070411_ungass_core_indicators_manual_en.pdf

Ratio of orphaned children compared to non-orphaned children aged 10-14 who are currently attending school www.theglobalfund.org/documents/me/M_E_Toolkit.pdf

Ratio of school attendance of orphans to school attendance of non-orphans aged 10-14 years www.unmillenniumproject.org/goals/gti.htm

Current school attendance among orphans and among non-orphans aged 10–14 data.unaids.org/pub/Manual/2007/20070411_ungass_core_indicators_manual_en.pdf

Percentage of people with advanced HIV infection receiving antiretroviral combination therapy www.theglobalfund.org/documents/me/M_E_Toolkit.pdf

Proportion of population with advanced HIV infection with access to antiretroviral drugs www.mdgmonitor.org/goal6.cfm

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SDMX-HD* - PurposeSDMX-HD* - Purpose

Computer-readable indicator definitions.

Aggregate data exchange standard for monitoring systems.

Organization-specific format mappable across organizations.

*Statistical Data and Metadata Exchange – Health Domain

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WHO Indicator and Metadata Registry (IMR)- PurposeWHO Indicator and Metadata Registry (IMR)- Purpose

Definition, management, and harmonization of indicator definitions by WHO and partners.

Incorporation of international standards.

Human and computer readable definitions.

Global definition distribution.

Main WHO ScreenMain WHO Screen

Public ScreenPublic Screen

Web ServiceWeb Service

Create IndicatorCreate Indicator

WHO ProfileWHO Profile

Program-specific profile

Program-specific profile

Program-specific metadata

Program-specific metadata

PEPFAR ProfilePEPFAR Profile

Program-specific profile

Program-specific profile

Program-specific metadata

Program-specific metadata

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SDMX-HD GroupSDMX-HD Group

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SDMX-HD ImplementationsSDMX-HD Implementations

WHO Indicator and Metadata Registry (IMR)

USG PEPFAR Country Operational Plan Reporting System (COPRS)

Summary Data– Country Response Information System (CRIS)– District Health Information System (DHIS)

Patient Care, i.e. facility-level– OpenMRS– EpiS3 (OpenEHR)

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LinksLinks

WHO Indicator and Metadata Registry– Public: www.who.int/gho/indicatorregistry– Public with write access: extranet.who.int/IndicatorRegistry

Request extranet account from: extranet.who.int/ads

SDMX: www.sdmx.org

SDMX-HD: www.sdmx-hd.orgNew release with normative document mid-March!

Health Care Informatics | April 19, 202325 |

Thanks!Thanks!