Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall...
Transcript of Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall...
![Page 1: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/1.jpg)
Great Lakes Collaboration Focus on Autism October 4, 2012
![Page 2: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/2.jpg)
POPULATION BREAKDOWN Overall state population:
12,869,257 Chicago Metropolitan Area
population: 9,729,825 (76%) Economic differences
• Chicago public school district: 617 schools, ~400,000 students (86% low income).
• New Trier school district: 2 schools, approx. 4,000 students (4% low income).
• Pope county school district: 2 schools, 569 students (54% low income).
![Page 3: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/3.jpg)
Autism prevalence urban vs. rural 1 in 144 8-year olds in Illinois has autism (2009-2010 public school data)
• Cook county: 6,558 students with autism • Pope county: 2 students with autism
Data from ISBE IDEA Count December 2002, 2004, 2010 provided by the Illinois Autism Training and Technical; Assistance Project IATTAP
![Page 4: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/4.jpg)
Graph provided by the Illinois Autism Training and Technical Assistance Project IATTAP
1960 2305 29043662
43305175
61257193
82939455
10608
1223913764
1522416432
17895
0
2000
4000
6000
8000
10000
12000
14000
16000
18000
20000
1996-1997
1997-1998
1998-1999
1999-2000
2000-2001
2001-2002
2002-2003
2003-2004
2004-2005
2005-2006
2006-2007
2007-2008
2008-2009
2009-2010
2010-2011
2011-2012
num
ber o
f chi
ldre
n
school year
Number of Children in Ilinois Receiving Special Education under the Category of Autism Ages 3-21
Source: Illinois State Board of Education IDEA Child Count Data December 1, 2011
![Page 5: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/5.jpg)
Graph provided by the Illinois Autism Training and Technical Assistance Project IATTAP
641
1248
1757
2545
4171
8027
947
2496
6627
197 378
1484
0
1000
2000
3000
4000
5000
6000
7000
8000
9000
1999-2000 2004-05 2011-12
# o
f stu
dent
s
Students with Autism in Illinois by Age Group
03-05
06-11
12-17
18-21
![Page 6: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/6.jpg)
PUNS is a database of people in Illinois with DD who need services. 4,898 individuals receiving waiver; 1,685 on wait-
list Wait-list and provision of services not
guaranteed.
Children’s Home-Based Support Services Waivers Allows state to provide home and community-
based services/supports for children and young adults (3-21 yrs.) so they may live at home with their families and avoid residential placement.
8/6/12
![Page 7: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/7.jpg)
Data counts of children approaching national prevalence rates.
Developing family/workforce competencies:
• ASD Certificate program across disciplines; • Training and support across the lifespan for families in each
region; and • Training in academic, residency and practice settings for health
care providers.
![Page 8: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/8.jpg)
Funding for community-based services and supports ensured through:
• Reforms to Medicaid for better home and community based services & supports;
• Leverage EPSDT mandate for the diagnosis and treatment of children (0-21) with ASD; and
• Opportunities to utilize Community Health Centers and/or FQHCs in the provision of coordinated care for persons with ASD and DD (lifespan with a target of individuals 21+)
![Page 9: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/9.jpg)
IL Dept. of Human Services Autism Task Force
The Autism Program of Illinois (TAP)
Illinois Autism Training & Technical Assistance Project (IATTAP)
Early Intervention Bureau
Autism Speaks – Chicagoland Chapter
Illinois Chapter of the American Academy of Pediatrics (ICAAP)
![Page 10: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/10.jpg)
Data collection
• Improved diagnostic reporting in EI system
Funding
• Ligas lawsuit allowed adults with DD access services in the community
• Behavioral treatments now reimbursed through early intervention system
![Page 11: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/11.jpg)
Family competencies in supporting people with ASDs
• IATTAP model family support program;
• TAP network of family support and bilingual workshops
• Strong Autism Speaks Chicagoland Chapter
• Grupo SALTO
![Page 12: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/12.jpg)
Workforce Competencies • IATTAP developed a graduate level program for educators that is available
through IL State University (ISU);
• Autism Task Force is tracking trainings related to ASD to be posted in an online Clearinghouse;
• ICAAP offers (at no charge) online training on screening and referral for developmental concerns
• IL LEND targeted health care providers in underserved areas in southern IL for training on early identification; and
• Updates in diagnostic trainings (e.g., toddler ADOS) have been made available for providers in diagnostic programs.
8/6/12
![Page 13: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/13.jpg)
Inconsistent data collection;
Disparities & gaps in family supports;
Non-standardized professional training;
ESL issues;
Disparities in diagnostics and service provision;
Limited post-secondary transition services;
Limited services for adults; &
FUNDING!!!
![Page 14: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/14.jpg)
Improve systematic collection of Early Intervention data;
Expand Early Identification training to health care professionals in underserved areas;
Expand Basic Level Online Autism Training Courses from IATTAP across state;
Implement competency-based pediatric residency training on ASDs across residency programs state-wide
Address funding disparities:
• Partner with Autism Speaks to enhance insurance coverage
• Work with legislators regarding approval mechanisms for FQHCs
![Page 15: Great Lakes Collaboration Focus on Autism October 4, 2012 Lakes/Illinois GLCC LEND... · Overall state population: 12,869,257 Chicago Metropolitan Area population: 9,729,825 (76%)](https://reader036.fdocuments.net/reader036/viewer/2022071023/5fd7bf8b7b28ac3967691bcb/html5/thumbnails/15.jpg)
8/6/12
Questions