Brain Canada 2014 Global Dementia Legacy Event

London, UK, June 19th, 2014 Inez Jabalpurwala, President &

CEO

Vision: To understand the brain, in health and illness, to improve lives and achieve societal impact.

Mission: Brain Canada is achieving its vision by:Increasing the scale and scope of funding to accelerate the pace of Canadian brain research;Creating a collective commitment to brain research across the public, private and voluntary sectors;Delivering transformative, original and outstanding research programs.

Brain Canada

An independent Board of Directors with distinguished members drawn from the business, science, and academic communities

Chair, Rupert Duchesne, Group Chief Executive, AIMIA Inc. Honourary Chair, Hon. Michael H. Wilson

Ongoing consultation with the research community in Canada and internationally and other stakeholders

Research Policy Committee and Science Advisory Forum, with Canadian and international members (to replace Science Advisory Council) Chair, Brian MacVicar, University of British Columbia

Stakeholder consultationsStrategic planning process

Brain Canada – joining business and science leadership

On June 6, 2011, the Canadian government allocated up to $100 million in new funding over six years to establish the Canada Brain Research Fund “to support the very best Canadian neuroscience,” to be matched by $100 million in private and non-governmental sources, with funding stewarded by Brain Canada

The Canada Brain Research Fund (CBRF) is a partnership between Brain Canada, the Government of Canada, and all those who share the commitment to advancing brain research and brain health; the Fund is intended to stimulate increased awareness and investment in brain research

The Canada Brain Research Fund

The Canada Brain Research FundA Public-Private Partnership to Support Canada’s World Class Brain Research

CBRF - expected outcomes

A substantial increase in private investment in brain research in Canada

An increase in the number of multidisciplinary, networked researchers

and research projects in universities and academic health centres

Training for the next generation of researchers

A stronger neuroscience community through increased partnerships and

collaborations, leading to

A reduced individual and societal burden of brain disease

Highlights since launch of CBRF in May 2012

Closing on $45 million raised. These funds are being matched on a 1:1 basis by the Government of Canada to reach $90 million

Includes largest private commitment to support Alzheimer prevention research - $25 million from Chagnon Family Includes largest private donation to support neurodevelopmental research (with a focus on Autism Spectrum Disorder and Fragile X syndrome) –

$7.5 million from the Azrieli Foundation

$35.5 million already allocated – this is new funding for brain research

Funded research – by theme

Brain Canada’s support of research on Alzheimer’s disease and dementia

$25 million – partnership with the Chagnon Family for research on prevention interventions for Alzheimer Disease and Related Disorders

$7.5 million – partnership in British Columbia to support projects focused on Alzheimer Disease research led by Principal Investigators in British Columbia

$5.6 million – partnership with funding organizations in Alberta to support project(s) studying healthy brain aging and dementia in Alberta

$1.5 million – partnership with The W. Garfield Weston Foundation and Krembil Foundation for early detection methods for brain amyloid in neurodegeneration

~$8 million – partnerships with universities, hospitals for support of national and regional infrastructure (under review)

What we have learned

At more than $40 million (funds already allocated + donor and partner commitments), largest allocation from CBRF is expected to support Alzheimer’s disease/dementia research

Public-private partnership means harnessing the power of philanthropy to direct Government funding

Patient/family/donor voice key to size of investment and major focus on prevention

What’s next

A more strategic approach:

What is happening around the world—from silos to collaborations—risk of another type of fragmentation

Where are the gaps and opportunities for a coordinated strategy for research AND investment which integrates the patient/family/donor voice; what outcomes do we want to achieve

How can Canada connect to this

Our team

For more information: braincanada.ca