FINAL Carers Strategy
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Transcript of FINAL Carers Strategy
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Inverclyde Carers Strategy 2012-15
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Foreword
On behalf of Inverclyde Community Health and Care Partnership (CHCP), thecarers of Inverclyde and our partners, we are delighted to introduce theInverclyde Carers Strategy !" # "$%
&or the first time our new Strategy has been coproduced with local carers%Carers have always had the opportunity to influence our Carers Strategies,but this time it has truly been a 'oint effort, through the involvement of an
ditorial roup of carers who have helped write the Strategy along with CHCPstaff, ma*ing use of evidence gathered from carers via a wide engagementprocess% In another first, we are delighted to present our +ocal Strategy foroung People who are carers (young carers), alongside the main strategy%
-s carers we have been pleased to fully participate in this process and willcontinue our involvement through the monitoring of the strategy% .here havebeen many positives coming from the last strategy and we are *een to *eep
wor*ing more on these% .here is still more that partners need to wor* togetheron and we hope to address this through the course of this strategy%
.he role that carers play in supporting loved ones to live their lives has neverbeen more important, or had such a high profile% Services are reliant on thepartnerships that e/ist between individuals, services and carers to ensure thebest possible outcomes for people% .he wellbeing and safety of carersthemselves should never be forgotten, however, and we hope our strategy
fl t thi i ti 0 t l d t t t b t t 1 t it 2i ht f
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CO!"!S
Foreword 2
#$%! 1& Inverclyde Carers Strategy
'(at is t(e Inverclyde Carers Strategy) 5
Our Co**it*ent to Carers Living in Inverclyde +
'(o is a Carer) ,
#roile o Carers in Inverclyde .
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#$%! 2& Inverclyde oung Carers Strategy
'(at is t(e oung Carers Strategy) 45
'(o is a oung Carer) 4+
ational and Local #olicy /rivers 4,
#roile o oung Carers in Inverclyde 4.
'oring or oung Carers in Inverclyde 4
'( t # l 6 t S 51
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19 '(at is t(e Inverclyde Carers Strategy)
Inverclyde Carer Strategy is simply a plan% It has been developed byInverclyde Community Health and Care Partnership and its partners toac*nowledge the important role played by carers in providing unpaid care inour community for loved ones, friends and relatives% It promotes the need torecognise carers, as *ey partners, in the delivery and planning of care% Itcontains the *ey messages identified by carers, as being important inassisting them to carry on with their caring role, whilst maintaining a life of
their own%
Carers have been involved in the coproduction of this strategy to address *eyissues, which have been prioritised for action in !"8!"$% -n ditorialroup of carers was set up to support the writing of this strategy as a true 'ointeffort between officers and carers% .his particular strategy has identified : *eycommon themes, which build on the wor* of the previous strategy, and will beaddressed through the action plan%
.he need for a local Carers Strategy is driven by a re4uirement from Scottishovernment to produce a local plan for carers, which reflects the commitmentmade by both 7HS reater lasgow and Clyde and Inverclyde Council toprioritise support and services for carers in recognition of the ma'orcontribution that they ma*e to our communities and the need to support themas partners in the delivery of care% In Inverclyde the CHCP is committed towor*ing in partnership with carers and other agencies to deliver 4uality
i d t f hil t h ldi th i i l f I l d
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29 Our co**it*ent to carers living in Inverclyde
-s set out in the Inverclyde Carers Charter, our commitment is that carersshould=
Have a life of their own
Have a right to choose whether or not to be a carer
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89 '(o is a Carer)
$ carer is anyone w(o 3rovides un3aid care to a relative: 3artner: a*ily*e*;er neig(;our or riend< w(o (as a 3(ysical or *ental disa;ility=illness or an addiction issue%
- carer can be of any age and come from any bac*ground or ethnic group% Infact anyone of us could become a carer, with estimates that " in > of us willbecome a carer at some point in our lives% Some carers have a lifetime of
caring, as in parents following the birth of a child with a disability, others canbe in a caring position for 'ust a short period% Support is available to assistindividuals with their caring responsibilities not only to cope with their caringrole, but also to have a life outside of caring% Children can often findthemselves in a caring role for a parent or a brother or sister and for the firsttime a oung Carers Strategy for Inverclyde is being developed with a rangeof partners, and young carers, to identify the best possible ways of supportingyoung carers%
.his plan also ac*nowledges the important contribution that former carers canma*e in a volunteer capacity supporting other carers through buddying,befriending or advocating and ac*nowledges the valuable contribution ande/perience they have to offer%
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49 #roile o Carers in Inverclyde
.he Scottish overnment3s 7ational Carers Strategy estimates that " in ? ofthe population is a carer at some point in their life% So on that basis, it isestimated that there are appro/imately @?@ carers in Inverclyde% It isanticipated that these figures will grow considerably over the ne/t "! years%.he e/pected demographic change in the numbers of older people and shift inthe balance of care towards providing more support in the community%
.he statistics below are based on the !!" census% -t the time of printing theresults of the !"" census were not yet available% 0e have used the censusinformation rather than 2OS (eneral 2egister of Scotland) data becausethe census has some specific information about carers% 0hile we accept thatthis information is 4uite old the general principles and scale, we believe,remain relevant% -n update will be provided following the first review of thestrategy, when new census information is available%
!a;le 1#rovision o (ours o un3aid care 3er wee in Inverclyde ;y agegrou3 and se suggests most carers provide care for between " and "@hours each wee* ($@A of all carers) with a significant number providing over$! hours per wee* (:A of all carers)%
$ge 7rou3 1-1(rs ocare
20-4(rs ocare
50> (ours ocare
!otal
5 l & l 5 l & l 5 l & l
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59 ational and Local #olicy /rivers
Our strategy is framed by national policies and legislation which recognisecarers as partners in the delivery of care, as well as being based on issuesidentified by local carers% .hese are some of the *ey policy drivers=8
7HS and Community Care -ct "@@!
Carers (Support and 2ecognition) -ct "@@$
Community Care and Health -ct !!
Care "81.he &uture of Fnpaid Care3 !!$
Caring togetherE Carers Strategy for Scotland !"!8"$
7HS Guality Strategy !"!
Inverclyde Community Care Plan (!!@8")
Inverclyde oint Carers Strategy (!!?8"")
Inverclyde Community ngagement Strategy (!!$8!"$)
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+9 'oring or and wit( carers in Inverclyde
.he partners are committed to enabling carers to continue with their caringrole with as little impact on their health and wellbeing as possible, whilsthaving a life outside of caring% 0hile caring for a loved one, friend orneighbour can be a positive and enriching e/perience if properly supported, itdoes not come without challenge% .he partners are heavily involved insupporting carers by wor*ing together across a range of issues% 0e arecommitted to continuing to respond to needs identified by carers, as has been
evidenced over the life of the past local carers strategies, within the financialconstraints that we face% Indeed Inverclyde has been cited in the 7ationalCarers Strategy for e/amples of best practice, namely the funding of arange of different types of brea*s for carers by the Carers Centre, and the.imeout training programme organised by staff within the CHCP% 0erecognise that more needs to be done and that we are facing new challengeswith the introduction of self directed support and the reablement agenda, notto mention the changing demographic and increase in the older population
over the ne/t "!8"$ years%
.he implementation of the strategy action plan will be centrally monitored bythe partners to ensure that the outcomes are delivered for carers%
.he partner organisations involved in the local response to the needs ofcarers are=8
I l d C C il
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the Centre and through its outreach wor* and is a *ey partner in theimplementation of the strategy%
Inverclyde Co**unity 6ealt( and Care #artners(i3 BC6C#
Inverclyde CHCP is a partnership of 7HS reater lasgow 6 Clyde andInverclyde Council% .he CHCP delivers community health and social careservices to the people of Inverclyde and employs over "!!! staff% .he CHCPwas established with the coming together under one management structure of
Inverclyde Community Health Partnership (CHP) and Inverclyde CouncilSocial 0or* Services in October !"!% .he CHCP leads on the review andcontinual development of the Inverclyde Carers Strategy through the Carers9evelopment roup%
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,9 Our #rogress and et Ste3s
.his section ta*es a loo* at what we said in the last strategy and what actions we have ta*en to achieve these goals and what stillre4uires to be done% .he 4uotes under 10hat have carers told us about thisJ3 have come from the range of engagement activities
we have underta*en with carers as part of the development of this strategy%
%es3ite=S(ortDreas
'(at did we say wewould lie to ac(ieve)
'(at did we actuallyac(ieve)
'(at (ave carers toldus a;out t(is)
'(at do we still need todo)
9evelop e4uity inaccessing short brea*sservice across clientgroups where gapse/ist%
- broader range of caregroups have accessed shortbrea*s including mentalhealth and families affectedby drug issues%
1I don3t feel carers ofpeople with mental healthissues get access toshort brea*s%3
1.here is a gap in respitefor *inship carers3
nsure all care groups areable to access short brea*sthrough all staff accessingthe Short
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%es3ite=S(ortDreas
'(at did we say wewould lie to ac(ieve)
'(at did we actuallyac(ieve)
'(at (ave carers toldus a;out t(is)
'(at do we still need todo)
their own or with other
members of their families inlodges or caravans as familyhas met the care needs%
1Our brea* at an adaptedhouse in 7orth
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%es3ite=S(ortDreas
'(at did we say wewould lie to ac(ieve)
'(at did we actuallyac(ieve)
'(at (ave carers toldus a;out t(is)
'(at do we still need todo)
husband *eeps getting
up during the night%3
/plore opportunity forformer carers to beinvolved in promotingShared Care through
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%es3ite=S(ortDreas
'(at did we say wewould lie to ac(ieve)
'(at did we actuallyac(ieve)
'(at (ave carers toldus a;out t(is)
'(at do we still need todo)
emergency respite% emergency cover overnight local respite3
-ssessment made meaware of what the Shortbrea*s
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Inor*ationor carers
'(at did we want toac(ieve)
'(at did we actuallyac(ieve)
'(at (ave carers told us) '(at still needs to ;edone)
Consolidate the carerassessment process andincrease access toassessments%
7ew tool has been piloted andevaluated% Process agreed%
1Carers should not have toas* for an assessment theyshould be offered one as amatter of course3
.he carers assessmentmade me thin* about theneed to plan foremergencies% It also mademe aware of servicesavailable and how to accessthese%3
Self assessment toolbeing developed incon'unction with CarersCentre%
$ction #lan %e&Inor*ed andSu33orted 1 and 2
Improve Hospitaldischarge and lin*s withhospital for carers
7HS 6C committed tounderta*ing assessment ofcarers needs to address *eyissues%
1Carers are often left out atthe point of discharge fromhospital3
1Staff ignore carers and donot give them their place inhospital3
-ssessment to beconducted and wor* tobe developed%
$ction #lan %e&6ealt( and 'ell;eing4
Improve the use ofdifferent media to
Solas screens in HealthCentres in use% 0ebsites%
1ood step forward but themonitoring of the material $ction #lan %e&
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develop promotionalmaterial%
needs to be regularlyreviewed% .he volume hasbeen muted on somescreens%3
Inor*ed andSu33orted 5
5ore focused use ofinformation pac*s
Carers Centre distributed over"!!! information pac*s%
1Sometimes you get all *indsof information and you don3tta*e it all in, or fullyunderstand what is actuallybeing offered%3
Subgroup needs toconsider more focuseddistribution ofinformation%
$ction #lan %e&Inor*ed andSu33orted 5
9evelop staff networ* toensure staff have up todate information oncarers issues%
Fsercarer forum wasestablished within social careprior to the reorganisation
1Is a bit hit and miss howyou find out about things8should be socialwor*erCP7nurse at thatfirst point of contact, passingon relevant information3
9evelop informationnetwor* on carersissues for staff to *eepup to date ondevelopments%
$ction #lan %e&Involve*ent 1
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Carerinvolve*ent
'(at did we want toac(ieve)
'(at did we actuallyac(ieve)
'(at did carers tellus)
'(at still needs to ;edone)
Consolidate funding foradvocacy
Centre has now absorbedadvocacy into the core role ofstaff
1-s carers you can feele/hausted and tiredand applying for thingsli*e aids andadaptations being fittedin your home canbecome another areawhere you have tofight your corner to getthings done3
Continue to support carerswith their issues%
$ction #lan %e&Involve*ent 2
&urther develop our;oice .raining for carers,particularly hidden carers
our ;oice has delivered aseries of courses for carers%
1I love getting out andmeeting people31Can tal* to othercarers and shareviews8learninformation3
&urther training anddevelopment of peersupport groups trainingplanned including Health inthe community courses%
$ction #lan %e&Inor*ed and Su33orted2
Consolidate a partnershipapproach to carerinvolvement and voice
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Carerinvolve*ent
'(at did we want toac(ieve)
'(at did we actuallyac(ieve)
'(at did carers tellus)
'(at still needs to ;edone)
Carers networ*
1Some care managersare really good, *eepme informed and up todate with changes inservice3
as well as listening to
views of carers%
$ction #lan %e&Inor*ed and su33orted2
nsure carers areinvolved inimplementation ofcommunity engagement
Carers are engaged in our;oice Sta*eholders 7etwor*and Carers 7etwor*
1.he carer supportgroups are e/cellent8areal lifeline3
Carer 7etwor* will feedinto sta*eholder advisorygroup%
$ction #lan %e&Involve*ent 5
Hold 'oint needs event toallow carers a voice abouttheir health needs%
Carers Carnival held on anannual basis to celebratecarers%
Continue to wor* inpartnership with carersorganisations andagencies to host carersevents%
$ction #lan %e&Involve*ent 5
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!raining and"*3loy*ent
'(at did we say wewould do)
'(at did we ac(ieve) '(at did carers tellus a;out it)
'(at still needs to ;edone)
Identify lin*s with
ames 0att College
9ue to restructuring of college
this did not develop% Howeverlin*s have been made with0oopi Community learningand other training providers9
1I felt the distance
learning course I did ondementia taught me somuch3
17eed support and helpat initial diagnosis3
&urther develop
opportunities for carersto access learning andtraining for employment
$ction #lan %e&"*3loy*ent and!raining 8
9evelop trainingcourses for carers
.raining sub group organiseda series of training includingCarers Survival courseE.imeout Health improvementand our ;oice confidencetraining
1.raining would havehelped me cope withthe condition of theperson I am caring for%.his would ma*e for abetter understanding ofthe condition and howto care for them%3
.raining subgroupcontinue to develop andpromote trainingavailable for carers
$ction #lan %e&"*3loy*ent and!raining 8
2aise staffawareness throughbriefing sessions
? different briefing sessionswere organised for staff insocial care with theinvolvement of cares%
1I thin* the socialwor*ers found it reallyuseful and were 4uiteshoc*ed at how caring
affected my financialsituation3%
9evelop furtherbriefings for staffaround carers issues inhealth and social care%
$ction #lan %e&"*3loy*ent and!raining 5
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!raining and"*3loy*ent
'(at did we say wewould do)
'(at did we ac(ieve) '(at did carers tellus a;out it)
'(at still needs to ;edone)
Promote the use ofIndependent +earning
-ccount to accesslearningopportunities%
Independent +earning-ccounts were accessed to a
limited e/tent
Carers who too* upcourses found them
very useful%
Continue the wor* ofthe training sub group%
$ction #lan %e&"*3loy*ent and!raining 8
9evelop employabilityissues with *eypartners
0or*ed closely with9epartment of 0or* andPensions (90P) to promotenew deal for carers%
1-s a carer I miss goingto wor* but had to giveit up to be a full timecarer8my mum getsstressed and an/ious ifI leave here withsomeone else8we dopractically everythingtogether%%3
7eed to wor* withemployers aroundbeing more careraware%
$ction #lan %e&"*3loy*ent and!raining 2
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6ealt( and'ell;eing
'(at did we say wewould do)
'(at did we ac(ieve) '(at did carers tellus)
'(at still needs to ;edone)
Promote annual recallfor carers healthchec*s with Ppractices, using carersregisters%
P-SS nurses been veryproactive in establishing carersregisters at P practices% -t7ov "! ""! carers had beenregistered with their Ps and" health chec*s wereconducted%P-SS nurses been valuable inunderta*ing health chec*s atCentre and at carers events%
1Is there a system inplace for carers healthto be chec*edregularlyJ3
15y P was theperson who got theball rolling to organiserespite for my husbandto attend day centre3
nsure opportunitiesfor carers healthchec*s to beconducted%
$ction #lan %e&6ealt( and 'ell;eing 1
Continue to offeralternative therapies tocarers including stressmanagement%
Carers Centre has beensuccessful in securing fundingfor stress management andother forms of rela/ation%
1-ccessing therapies atthe hospice was verybeneficial3%
nsure carers stillhave access to theseservices%
$ction #lan %e&6ealt( and 'ell;eing5
9evelop counselling forcarers
Counselling sessions availableat Carers Centre due to CIS
funding%
12eally valued thecounselling service3%
$ction #lan %e&6ealt( and 'ell;eing
5
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6ealt( and'ell;eing
'(at did we say wewould do)
'(at did we ac(ieve) '(at did carers tellus)
'(at still needs to ;edone)
.o promote the use of
technological support(.elecare) amongstcarers
Over !! familiescarers have
benefitted from the installationof telecare e4uipment%
1.elecare staff are very
helpful and proactive%31&ound out abouttelecare through P3
Continue to promote
telecare and telehealthbenefits to cares%
$ction #lan %e&6ousing 4
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.9 Key Outco*es
!(e ollowing ey outco*es or carers in Inverclyde will result ro* our co**it*ent to t(is strategy
Carers are supported to live healthy, active lives through access to 4uality services for their loved ones and through promotion
of their own health and well being(P registers hospital e/perience access to services and supports at carers centre)
Carers of people with long term caring needs such as children with disabilitiesolder carers have their specific needs met
(appropriate planning at transitional stages and by emergency planning through care planning processes)
Carers feel included and involved (assessment, care planning and review, emergency planning, communication with staff as
well as strategic and service development opportunities%)
Carers are well informed and can access supports they need (informationE carers assessment and financial advice)
Carers have opportunity to access employment, training, leisure and volunteering (trainingE leisureE volunteering for former
carers)
Carers housing re4uirements are addressed(aids adaptationsE housing re4uirements)
Carers are enabled to develop their own support and have access to short brea*s from their caring role (self directed support
and alternative brea*s)%
Our *ey outcomes are represented visually in diagram "%
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a* 1&Key es
Carers(ousingreEuire*entsareaddressed
Carers are su33orted tolive (ealt(y< active livest(roug( access toEuality services or t(eirloved ones and t(roug(3ro*otion o t(eir own(ealt( and well ;eing
Carers are wellinor*ed andcan accesssu33orts t(eyneed
Carers are ena;led todevelo3 t(eir ownsu33ort and (aveaccess to s(ort;reas ro* t(eircaring role
Carers (aveo33ortunity toaccesse*3loy*ent> "!> $: (A)
2O5 !"! :@,::! @,$! @$! 7-
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59 'oring or and wit( oung Carers in Inverclyde
.he current situation with young carers in Inverclyde is a changing one, asmore agencies have become involved in wor*ing in partnership to supportthem%
Inverclyde C6C# 8 Services and support to young carers has
traditionally been provided by dedicated social wor* resources withinthe Children and 9isabilities team% .his responsibility has now beenremitted to the outh Support team within Children and oung People
services% .he team ta*es responsibility for conducting young carersassessmentsE providing group support and activity brea*s% 0ith theformation of Inverclyde CHCP, the opportunity now e/ists to loo* moreclosely at partnership wor*ing across a range of agencies to bestsupport young carers, firstly as young people in their own right andobtain the necessary support to assist them in their caring role%
Co**unity Learning and /evelo3*ent !ea* 8has a youth teamwhich has committed itself to wor*ing closely with young people3sservices within social care to meet the wider educational and socialneeds of young carers and enable them to integrate with other youngpeople%
"ducation Services
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plays a *ey role in the identification and support of carers both at theCentre and through its outreach wor* and is a *ey partner in the
implementation of the Inverclyde Carers Strategy% .he Carers Centrewor*s with young carers, aged between "?8$, who in the main arecarers of children with disabilities%
oung Carers Strategy 7rou38 is an interagency group of staff from
ducationE Health ImprovementE C-5HSE CHCPE our ;oiceEInverclyde Carers Centre% .his group has responsibility for overseeingthe implementation of the strategy%
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+9 '(at oung #eo3le Boung Carers 6ave to Say
&rom structured discussion with young carers a number of *ey themesemerged, namely=8
.he sense of young people feeling different from other young people
oung carers spo*e about sometimes feeling vulnerable due to their
situation and spo*e about bullying
oung carers felt that teachers had a *ey role in terms of
understanding their situation and their reasons for being late due tolac* of sleep or having to do other tas*s at home
oung carers praised guidance teachers who seemed aware and
supportive of young carers needs and issues
oung carers en'oyed being part of the peer support group
oung carers tal*ed about the need for information about young carers
to help them e/plain to others
oung carers emphasised some positive aspects of their role e%g%
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,9 Our Co**it*ent to oung Carers and Key Outco*es
Our commitment to young carers is based on the principles of I2&C whichis the policy framewor* relating to etting It 2ight &or very Child% .hispromotes the need for all agencies to wor* together to overcome anyconcerns that they may have about any individual child including youngcarers% 0e need to ensure that all young carers achieve the *ey outcomes offeeling safeE nurturedE healthyE achievingE activeE respectedE responsible andincluded% (See diagram " on page :)%
.his we will achieve by the following= Identify young carers early, if possible, as soon as they become carers
ndeavour to identify young carers within agencies, refer them to theCHCP outh Support team for assessment and participate in deliveringthe care plan%
2educe the numbers of young carers in inappropriate caring roles
Provide an accessible universal service for young carers
Improve the lives of young carers and their families who have morecomple/ needs
Provide pastoral and curriculum support as necessary
Provide information and advice
Improve advocacy
Improve young carers health and wellbeing
Provide brea*s from caring
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/iagra* 1&-!(e 7etting it %ig(t or "very C(ild #ractice Model
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.9 $ction #lan
Our $ction #lan sets out w(at we will do in t(e lieti*e o t(e strategy< w(o will ;e involved< and (ow we will now we(ave ac(ieved eac( action9
'(ere do we want to;e)
7I%F"C'ell;eingIndicators*et
6ow will we gett(ere)
6ow will we nowt(at we (ave gott(ere)
oungcarersco**ents
'(o will;einvolved)
!i*escale
1Identify young carersearly, as soon aspossible after theybegin caring%
Safenurturedachievinghealthyactiverespected
responsibleincluded
-ssess need at theearliest opportunity%
-ny agency shouldma*e an initialresponse%outh Support
.eam assesses allreferrals%
-gencies that identifyyoung carers discusssupport availableE
2efer young carers toouth Support .eam%
outh Support recordsreferrals includingagency referring% -llassessments recorded%
1.eacherscould ta*etime to as*you how youare and loo*for signs of
youstruggling orlate3
-llagencies%Schools%outhSupport.eam
> months
22educe inappropriatecaring rolesunderta*en by youngpeople%
Safenurturedachievinghealthy
-ssessment ofneed and provisionof services toyoung carer andcared for person
oung carer needsreflected in an agencyplan%Supports to reduceinappropriate caringare recorded%
outhSupport.eam
> months
8Provide an accessible,universal service forall young carers%
Safenurturedachieving
-ll agencies canidentify youngcarers and can
-gencies can report onyoung carers identifiedEServices young carers
-llagencies%oung
months
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'(ere do we want to;e)
7I%F"C'ell;eingIndicators*et
6ow will we gett(ere)
6ow will we nowt(at we (ave gott(ere)
oungcarersco**ents
'(o will;einvolved)
!i*escale
healthyactiverespectedresponsibleincluded
assist young carerin accessingservices%
-ssist youngpeople toparticipate inuniversal youthwor* programmese%g% 9u*e ofdinburgh, youthclubs, outh 0ee*,
music, drama
referred to and ma*euse of% CarerStrategyroup%
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