EUROPEAN DONATIONec.europa.eu/chafea/documents/...06_2013/...for_European_Donation_… · the...
Transcript of EUROPEAN DONATIONec.europa.eu/chafea/documents/...06_2013/...for_European_Donation_… · the...
Toolk i t for Event Organizers
DONATION DAY
EUROPEANTISSUE
ORGAN
“This publication arises from the project “Developing Guidelines for the Organisation of a European Donation Day” which has received funding from the European Union in the framework of the Health Programme.”.
Danica Avsec, MD Institut of the Republic of Slovenia for the Transplantation of Organs and TissuesContact: [email protected]
The major outcomes of the survey show that after the EDD event in 2010:
• Publicreceivedmoreinformationonorgandonation.• Informationofsomeparticularsubjectsoforgandonationwasbetterspreadout.• AwarenessofEDDcelebrationamonggeneralpublicwashigher.• Apartofthegeneralpublicgotnewandinterestinginformationaboutorgandonation; newinformationinfluencedtheiropinion,feelingsanddecisionmakinginapositive way.
TheconductedsurveycouldbeusedasabaselineforfutureevaluationofimpactofEDDs.Thesampleofthequestionnairefortheevaluationoftheeventisavailableonthewebsitewww.europeandonationday.org.
The most interesting results of the survey in a graphical presentation
TOOLKIT FOR EVENT ORGANIZERS ThemainresultoftheprojectwasabookletToolkitforeventorganizersofEuropeanDona-tionDaywhichfilledtheabsenceoftheappropriateframeworkonaEuropeanlevel.TheguidelinesareseenasausefultoolfortheorganizationoffuturecelebrationsofEuropeanDonationDay.Withtheeventthegeneralpublic,healthcareprofessionals,mediaandpo-liticalaudienceshouldbeaddressed.Theyallplayacrucialroleinthefurtherdevelopmentofefficienttreatmentwithtransplantation.
ToolkitoffersmoreinformationaboutthemotivationbehindtheorganisationofEDD,itshistoryandrelevancetocommunicationwithpublic.Moreoveritproposesallpracticalguidelineshowtoorganizeandstructuretheeventfromthestarttillitsend.Toconclude,thereareinstructionshowtoevaluatetheeffectoftheeventonthepublic.
Toolkit is available on the EDD website www.europeandonationday.org.
PROJECT PARTNERS Associated partners
Slovenija-transplant(Slovenia),TransplantCoordinatingCentrePraga(CzechRepublic),MartinFacultyDepartmentofTransplantandVascularSurgery(Slovakia),MinistryofHealthandSocialWelfareRepublicofCroatia,DepartmentforSpecialHealthCareandTransplantation(Croatia),MedicalUniversityofVienna,DepartmentofSurgery,UnitofTransplantation(Austria)
Collaborating partners
EuropeanDirectoratefortheQualityoftheMedicines,EurotransplantInternationalFoundation,ClinicalCentrePodgorica(MonteNegro),MinistryofHealthoftheRepublicofSerbia(Serbia),MinistryofHealthoftheRepublicofBosniaandHerzegovina(BosniaandHerzegovina),GeorgianAssociationofTransplantologists(Georgia)
BACKGROUND Themajorobstacleinthetransplantationmedicineremainstheshortageoforgans.NearlyallEuropeancountriesarefacingwiththechallengeofhowtoincreasepublicawarenessandparticipationinorgandonation.AlthoughseveralstudiesdemonstratethatthemajorityoftheEuropeanpublicsupportstheideaoforgandonation,thereisavastgapbetweentheideaandpublicparticipation,sincethenumberoforgandonorsisbyandlargeindecline.TheEuropeanaverageisaround16deceaseddonorspermillionpopula-tion(pmp),whichisconsideredaratherlowrate.
Oneofthemostimportantfactorsthatinfluencestheorgandonationrateissocialawareness.
Promotionofthetransplantationmedicineandincreasingpublicawarenessforthedonationofhumanbodypartsforthetreatmentisamultilevel,ongoingandchallengingactivity.
OneoftheresponsesoftheEuropeanhealthpolicyofhowtoaddressthesechallengesisincludedintheActionPlan(2009-2015)whichtheCommissionoftheEuropeanCommunitieshaslaunched.ToachievegoalsofActionplan,therewasaneedtoestablishonedaydedicatedspecificallytoorganandtissuedonationandtransplantationinordertoattractmoreattentiontotheissue,tospreadcredibleinformationandtosensitizethepublic.HowevertherewasnovasttraditionorguidelinesdevelopedfortheogranisationofaEuropeanDonationDay(EDD).
EU FUNDED PROJECT: DEVELOPING GUIDELINES FOR THE ORGANISATION OF A EUROPEAN DONATION DAY
Inordertohelpraisepublicawarenessandattracttheattentionofthepublictotheissueoforgandonationandtransplantation,acommonframeworkfortheEuropeanDonationDay(EDD)celebrationwasneeded.Schemeofthecelebrationhasbeendevelopedduringtheproject“DevelopingguidelinesfortheorganizationofaEuropeanDonationDay”(2009–2011)fundedbyEUHealthProgrammeframework.Moreoverthegoaloftheprojectwastoevaluateevent’sawarenessraisingpotential.
EuropeanDonationDayisshorternameforEuropeanDayforOrganDonationandTransplantation.Tissueandcelldonationandtransplantationareintegratedintheconceptofthedayaswell.
The main goals and objectives of a unified EDD celebration are:
• Toraisepublicawarenessinthefieldoforganandtissuedonationandtransplantation.• Toexpressacknowledgmenttoallthepeopleinvolvedintransplantprocess (whoaretransplantpatientsandtheirfamilies,organdonorfamilies,healthcare professionals).• Toestablishtrustamonggeneralpublictowardsresponsible,highethical, non-commercialandprofessionalorgandonationandtransplantation.• Toshareanddiscusschallengesandinnovationsintransplantmedicineamonghealth careprofessionals.• Inalongtermtoincreasethenumberoforganandtissuedonors;withcontinuousand yearlyrepetitiveEDDeventswecanachieveabiggerimpact.
WithyearstheoccasionofEDDisseentobecomeaprimaryawareness-raising“voice”andeventregardingorganandtissuedonationandtransplantationinEurope.
Towards a unified European Donation Day: second Saturday in October.
PROJECT SURVEY: MEASURING AWARENESS POTENTIAL OF EDDPartoftheprojectwasanevaluationsurveyoftheEuropeanDonationDaythatwascon-ductedinSlovenia,Austria,Croatia,CzechRepublicandSlovakia(in2010).TheaimofthesurveywastomeasureawarenessraisingpotentialofEDDcelebrationamonggeneralpublic.Webinterviewing(CAWI)wasperformedintwowaves:Amonthbeforetheeventandagainrightaftertheevent.Questionsaboutpublic’sinformation,knowledge,opin-ionaboutorgandonationandawarenessofEDDcelebrationwereasked.Ineachcountryasampleof700respondents,representativeaccordinggender,ageandregionwasused.ThecomparisonoftheresultsbeforeandafterthecelebrationshowedanimpactoftheEDDcelebrationonmeasuredvariables.Thesurvey’sstatisticalresultsconfirmedthepur-poseofhavingEDDcelebration.
Thisposterarisesfromtheproject“DevelopingguidelinesfortheOrganizationofaEuropeanDonationDay”,whichhasreceivedfoundingfromtheEuropeanUnion,intheframeworkoftheHealthProgramme.
Allrightsreserved.
Picture 3:Percentageofrespondentswhore-ceivedneworinterestinginformationaboutorgandonationduringtheEDDreportedthatthegainedinformationhasinfluencedtheiropinion,feelingsordecisionmaking.Thema-jorityreportedaboutthepositiveinfluenceoftheinformation.
Picture 1: Theamountofinformationreceivedaboutorgandonationandtransplantationinthelastyear:comparisonoftheresults(before-1stwave/after-2ndwave)inallparticipatingcountries.
1INFORMATIONABOUTORGANDONATIONANDTRANSPLANTATION
Picture 2: InformationaboutEDDcelebration:comparisonoftheresults(before-1stwave/after-2ndwave)inallparticipatingcountries.
2EUROPEANDONATIONDAY
3INFLUENCEOFEDDEVENTONTHEBEHAVIOUR/OPINION
Slovenia
Toolk i t for Event Organizers
DONATION DAY
EUROPEANTISSUE
ORGAN
“This publication arises from the project “Developing Guidelines for the Organisation of a European Donation Day” which has received funding from the European Union in the framework of the Health Programme.”.