EU Multiple Sclerosis Barometer 2009 -2010

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MS Barometer 2009-2010

12 January 2011John Golding, EMSP President

Feb 2010 MS Barometer 2009

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EMSP is…

Contrary to other disease areas, people with Multiple Sclerosis in Europe are

represented by only one European MS umbrella organisation.

is the umbrella organisation of the predominant

national MS-Societies in currently 37 European

countries and represents more than half a million

people with and more then 1,5 million people

daily affected by MS (such as family and other

care givers)


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Structure of the MS Barometer• 7 Areas:

– Section 1: Access to treatment & therapies (19 questions – 70 points)

– Section 2: Research (3 questions – 15 points)– Section 3: Employment & Job retention(8 questions – 35

points)– Section 4: Empowerment (7 questions – 35 points) – Section 5: Reimbursement of Costs (6 questions – 30

points) – Section 6: Data Collection (5 questions – 25 points) – Section 7: Medication coming to the market (3 questions

– 15 points)• Structure of the Barometer inspired by European Code of

Good Practice (1st four categories)• Extensive transnational consultation with the medical and

patient communities to review content in 2009


Barometer 2009 at glance

• 29 countries represented versus 32 countries in 2008Reasons: time consuming – some organisations would like to participate once every two years, difficulties to gather information, etc.

• Maximum scoring of 225 points• Comparison between results 2008/2009 has to be

cautious (questions have been reformulated, participating countries are not the same, etc.)

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Overall Barometer 2009 results

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Bosnia-H

Poland

Bulgaria

Lithuania

Spain

Latvia

Estonia

Malta

Romania

Portugal

Switzerland

Hungary

Ireland

Greece

Croatia

Czech R

France

Russia

Slovenia

UK

Finland

Belgium

Denmark

Italy

Norway

Sweden

Iceland

Austria

Germany

0 50 100 150 200 250

78

79

84

84

87

90

93

95

96

101

105

111

112

127

129

133

148

149

154

157

167

168

174

175

183

183

183

189

201


Access to treatment and therapies

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Bosnia-HIrelandPoland

BulgariaRussia

RomaniaLatvia

GreeceMalta

EstoniaHungary

SpainCroatia

PortugalDenmarkCzech R

FranceNorway

SloveniaSwitzerland

LithuaniaSwedenAustria

UKItaly

BelgiumFinland

GermanyIceland

0 10 20 30 40 50 60 70

112828

3434

3740

4445

464646

474848

5153

5658

5760

6162

6466

67676767


% PwMS receiving DMDs

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PolandBulgariaRussiaCroatia

UKBosnia-HHungaryCzech RRomaniaSweden

SloveniaIreland

NorwayDenmark

FranceIceland

SpainBelgiumFinlandEstonia

ItalyAustria

GermanyGreece

PortugalLithuania

LatviaMalta

0% 20% 40% 60% 80% 100% 120%

4%8%

10%11%12%

14%19%

25%25%

29%30%

33%38%

40%40%

45%45%

50%50%

60%60%

65%70%70%70%

95%100%100%


Existence of limitation to the numbers of persons eligible for DMD treatment

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27,59%(limitation of numbers of

persons eligible for DMD treat-

ment

72,41%(No limitation

regarding num-bers of persons eligible for DMD

treatment)

NoAustriaBelgiumBulgaria Croatia

Czech RepublicDenmarkEstoniaFinlandFrance

GermanyGreece

HungaryIceland

ItalyLithuania

MaltaNorwayPortugalRussia

SloveniaSpain

SwedenSwitzerland

UK

YesBosnia-Herzegovina

Bulgaria Croatia

Czech Republic

IrelandLatviaPoland

Romania


%PwMS receiving symptomatic treatment

9

Bulgaria

Hungary

Russia

Bosnia-H

Malta

Ireland

Romania

Norway

Greece

Estonia

France

Germany

Italy

Spain

Austria

Portugal

Croatia

Slovenia

Belgium

Czech R

Finland

Iceland

Latvia

Lithuania

0% 20% 40% 60% 80% 100% 120%

5%

20%

20%

40%

50%

60%

60%

70%

75%

80%

80%

80%

80%

80%

85%

85%

90%

90%

99%

100%

100%

100%

100%

100%


% of PwMS receiving in-patient rehab.

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Malta

Portugal

Russia

Austria

Hungary

Bosnia-H

Ireland

Latvia

Romania

Italy

Norway

Denmark

Greece

Iceland

Sweden

Estonia

Finland

France

Belgium

Germany

Slovenia

Croatia

Lithuania

Czech R

Spain

0% 20% 40% 60% 80% 100% 120%

0%

1%

1%

2%

4%

5%

5%

5%

5%

10%

10%

11%

15%

20%

20%

30%

30%

30%

33%

40%

40%

57%

60%

100%

100%


% PwMS receiving out-patient rehab.

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Russia

Bosnia-H

Hungary

Latvia

Romania

Ireland

Lithuania

Slovenia

Spain

Portugal

Greece

Croatia

Sweden

Finland

Italy

Denmark

Estonia

France

Iceland

Belgium

Austria

Malta

Czech R

Germany

0% 10% 20% 30% 40% 50% 60% 70% 80% 90%

2%

10%

10%

10%

10%

15%

20%

20%

20%

28%

30%

32%

48%

50%

50%

60%

60%

60%

65%

66%

70%

75%

80%

80%


Palliative Care programme available?

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Yes

Belgium

Czech R.

Finland

Germany

Iceland

Italy

Lithuania

Sweden

UK

No Austria

Bosnia-H.BulgariaCroatia

DenmarkEstoniaFranceGreece

HungaryIrelandLatviaMalta

NorwayPoland

PortugalRomania

RussiaSlovenia

SpainSwitzerland

31%

69%

YesNo


Research Agenda on MS(total score in the section per country)

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BulgariaCroatia

Czech REstonia

LatviaMalta

PolandPortugalRomaniaSlovenia

SpainHungary

Bosnia-HGreece

LithuaniaRussia

DenmarkFranceIreland

SwitzerlandGermany

NorwayAustria

ItalyBelgiumFinlandIceland

UKSweden

0 2 4 6 8 10 12 14 16

00000000000

35555

8888

1010

1313

1515151515


PwMS Employment & Job retention(Total score per country in the section)

14

LatviaLithuania

SpainPortugal

SwitzerlandEstonia

MaltaHungaryBulgariaGreeceCroatia

Bosnia-HIrelandRussiaFrance

Czech RSwedenNorwayPoland

SloveniaRomaniaBelgium

DenmarkUK

GermanyIceland

ItalyAustriaFinland

0 5 10 15 20 25 30 35

55

911

1317

1818

1923

2424242424

252525

2929

303232

3333333333

35


Pension fund as income for PwMS

15

YesAustriaBelgium

Bosnia-H.Bulgaria Croatia

Czech RepublicDenmarkFinlandFrance

GermanyGreece

HungaryIcelandIreland

ItalyMalta

NorwayPoland

RomaniaRussia

SloveniaSweden

SwitzerlandUK

No

Estonia

Latvia

Lithuania

Portugal

Spain

82,76%Pension

funds exist

17,24%

No pension fund


Empowerment of PwMS

16

LithuaniaMalta

SwitzerlandBulgaria

SpainCroatiaPolandGreeceLatvia

EstoniaHungaryRomania

FrancePortugal

Bosnia-HSwedenFinland

Czech RUK

BelgiumIreland

DenmarkAustria

ItalySloveniaNorway

GermanyRussiaIceland

0 5 10 15 20 25 30 35

000

55

88

1010

1313

141515

1818

192020

2323

25282828

303333

35


MS Society having consultative status with the national administration

17

Yes57%

No43%


Reimbursement of costs

18

MaltaBosnia-HRomaniaEstonia

LithuaniaPolandRussiaSpain

GreeceLatvia

BulgariaPortugalCroatiaIcelandIreland

SloveniaUK

ItalySwitzerland

FinlandHungaryBelgiumNorway

Czech RFrance

SwedenAustria

DenmarkGermany

0 5 10 15 20 25 30

69

1213

14151515

1616

1717

181818

1919

2121

2223

2424

252525

262727


Data collection

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Only 13 countries state

having MS registers (national

or regional):

Austria, Bosnia-Herzegovina, Croatia, Denmark, France, Greece, Germany, Latvia, Malta, Norway, Russia, Slovenia and Sweden.


Medication on the market

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Bosnia-HLithuaniaRomaniaEstonia

LatviaPoland

SloveniaUK

BelgiumHungary

MaltaBulgariaCroatia

DenmarkFinland

SwitzerlandCzech R

GreecePortugal

IrelandSpain

FranceAustria

ItalyGermany

IcelandNorwayRussia

Sweden

0 2 4 6 8 10 12 14 16

00

34

5666

777

99999

101010

1112

131414

1515151515


Total expenditure on health(% of GDP)

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Source:

- OECD database, June 2010

- WHO, NHA database, 2007Romania*Russia*EstoniaLatvia*

Lithuania*Poland

Czech RBulgaria*Hungary

Malta*Croatia*

SloveniaFinlandNorwayIreland

UKSpain

IcelandItaly

SwedenGreece*

Bosnia-H*Denmark*Portugal*BelgiumAustria

GermanySwitzerland

France

4.70%5.40%

6.10%6.20%6.20%

7.00%7.10%

7.30%7.30%

7.50%7.60%

8.30%8.40%8.50%

8.70%8.70%

9.00%9.10%9.10%

9.40%9.60%

9.80%9.80%

10.00%10.20%

10.50%10.50%

10.70%11.20%


Thank you!

[email protected]

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EU Multiple Sclerosis Barometer 2009 -2010

Health & Medicine

Transcript of EU Multiple Sclerosis Barometer 2009 -2010