Erie St. Clair End-of-Life Care Network Hospice Palliative ... HPC Volunteer Education...

Erie St. Clair End-of-Life Care Network Hospice Palliative Care Education Blueprint

Volunteer Education

Evaluation Report

April 30, 2009

Prepared By:

Loretta M. Hillier, M.A. Evaluation Consultant

London, Ontario (519)433-1174

[email protected]

For:

Erie St. Clair End-of-Life Care Network

Table of Contents

Section Page Education Blueprint Evaluation Executive Summary I – vi Volunteer Education Executive Summary 1 1.0 Introduction 2 2.0 Evaluation Objectives and Methods 3 3.0 Results 7 4.0 Conclusions 20 Acknowledgements 22 List of Appendices 23 A Cross Sector Volunteer Education Planning Workshop Summary 24 B Volunteer Planning Session Feedback Survey 48 C Volunteer Education: Hands-On-Care Training Feedback Survey 50

D Volunteer Education: Share the Care Information Session Feedback Survey 52

E Guide for the Focus Group Interview with Volunteer Education Blueprint Organizers 55

F Results of the Volunteer Planning Session Feedback Survey 57 G Results of the Hands On Care Training Session Feedback Survey 60 H Results of the Share the Care Information Session Feedback Survey 63

Glossary of Terms

Average (+/-)

Average is calculated as the mean score ; +/- = standard deviation, which is the average distance between individual scores from the overall average score.

CAPCE Comprehensive Advanced Palliative Care Education CCAC Community Care Access Centre COPD Chronic Obstructive Pulmonary Disease DNR Do Not Resuscitate EOL/ EOLC End of Life / End-of-Life Care ESC EOLCN Erie St. Clair End-of-Life Care Network ESAS Edmonton System Assessment Scale LHIN Local Health Integration Network LTC Long-Term Care NP Nurse Practitioner OSCMC Ontario Cancer Symptom Management Collaboration OT Occupational Therapy OTN Ontario Telehealth Network PCR

Palliative Care Resource

PPS Palliative Performance Scale

PPSMC Palliative Pain and Symptom Management Consultant

RT Respiratory Therapy SRK Symptom Response Kit SWO PPSMCP Southwestern Ontario Palliative Pain and Symptom Management Consultation Program PSW/HSW Personal Support Worker/ Home Support Workers RN/ RPN Registered Nurse/ Registered Practical Nurse WIFN Walpole Island First Nation WRCC Windsor Regional Cancer Centre

L O R E T T A M. H I L L I E R Health Care Research and Evaluation [email protected]

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Education Blueprint Evaluation Executive Summary

Erie St. Clair End-of-Life Care Network Hospice Palliative Care Education Blueprint

INTRODUCTION The Erie St. Clair End-of-Life Care Network has secured funding for several initiatives aimed at creating and supporting an integrated hospice palliative care system in this region. One of these initiatives is a multi-year framework for palliative / end-of-life care education consisting of the following initiatives: 1. Volunteer Education: Implementation of strategic volunteer education planning sessions;

training programs to enhance the scope of volunteer training (e.g., Hands on Care training, Story Telling Project,) and promotion of the ‘Share the Care’ model to support informal caregivers/ volunteers.

2. Cultural Education: Working with First Nation representatives to identify the palliative care needs of this community develop strategies to meet these needs and to assess the training needs of health care providers working within the Walpole Island First Nation community.

3. Skill Specific Education for Care Providers: Implementation of two education programs to build capacity for palliative care: Physical Skills Education (pain and symptom management for community-based nurses: Year 1) and ER Avoidance Education (chemotherapy/radiation therapy side effects management education; Year 2). In addition, in Year 1, Community Resource Education sessions were delivered to increase awareness of available community resources and services.

4. Nursing Guidelines for End-of-Life Care in Long-Term Care Settings Homes: Training to support the implementation of EOL Care Nursing guidelines across all ESC Long-Term Care Homes.

5. Expansion of Video-Conferencing Capacity: Development of video-conferencing sites to support education across the system, including training of in-house support for video-conferencing operation.

A comprehensive evaluation of the Education Blueprint was undertaken, examining both outcomes (summative evaluation) and development and implementation (formative evaluation). The evaluation report provides detailed information about the methods and results. This report focuses on the results of the evaluation of the Volunteer Education component of the blueprint. EVALUATION METHODS Evaluation objectives across all of the components of the Blueprint were aimed at:

i) Providing feedback on planning/ training sessions ii) Identifying impacts associated with education iii) Describing the development and implementation of initiatives iv) Describing progress to date

A mixed methods approach (quantitative and qualitative) was used to achieve the objectives of this evaluation. Sources of information included:

• Feedback surveys completed by education participants to obtain reactions to the sessions (Volunteer training sessions, physical skills sessions, nursing guidelines for end-of-life care sessions); responses rates ranged from 73 -89%.


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• Follow-up surveys to assess impacts of the education (physical skills, nursing guidelines for end-of-life care education programs); response rates ranged from 30-41%.

• Individual and focus group interviews with participants and managers (physical skills), managers to gather in-depth information on impacts and with initiative organizers to assess impacts and describe development and implementation (volunteer education, cultural education, expansion of videoconferencing capacity and the overall Blueprint initiative); in total 36 individuals participated in the evaluation interviews.

KEY FINDINGS AND CONCLUSIONS Volunteer Education • A total of 46 individuals participated in volunteer planning sessions; 51 individuals

participated in various sessions aimed at volunteers. • Training and information sessions (Hands on Care, Share the Care) were viewed

positively; participants held favourable reactions to various aspects of these sessions including supporting resource material. Suggestions were made regarding improvements to delivery and potential topic areas for inclusion.

• • A partnership was formed with the Victoria Order of Nurses (VON) to deliver the Story-

Telling Project; VON provided a coordinator to deliver the training and the Education Blueprint provided funding for resource materials.

• Cross-Sector Volunteer Planning sessions were well received; they were described as a significant opportunity for bringing all the sectors together to identify common needs, challenges, sharing of ideas, and solutions.

• Key impacts associated with the volunteer initiative have included: enhanced volunteer training, improved recruitment and retention, improved credibility of volunteers, and standardization of training and care.

• A number of factors were identified as facilitating the development and implementation of the volunteer training events: funding support, dedicated leadership and project management, and effective session facilitation. Challenges have included; tight timelines, lack of clarity/ understanding of in-kind contributions, limited follow-up support available, particularly for Share the Care, and limited local human resources to plan and prepare training events.

• Strategies for further implementation were suggested, including the need for clarity regarding in-kind contributions and continued opportunities for networking and planning.

Conclusions: The potential for enhanced training and concomitant enhancements to volunteer confidence, comfort, and performance are great. One of the most significant outcomes of this initiative has been the involvement of a broad range of stakeholders across sectors in the strategic planning of volunteer training in this region. Excitement was generated regarding the potential for shared training and resources as it was believed that this will have a significant impact on improvements to volunteer training across sectors and across the region. Further evaluation efforts might consider direct impacts of the training sessions on objective changes to volunteers practice (i.e., an examination of the ways in which volunteer work changes). Cultural Education • Two meetings were held to develop relationships within the Walpole Island First Nation

(WIFN) community and 15 members of this First Nation’s community are currently participating in the Fundamentals of Hospice Palliative Care education program


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(PPSMCP). Seven members of the WIFN community were individually interviewed to identify palliative care/ end-of-life care needs and gaps.

• A major accomplishment has been the development of relationships with Walpole Island First Nation leaders and health professionals. These relationships have facilitated the identification of the palliative care needs of the First Nation population, strategies to address these needs as part of the Education Blueprint and those that could be addressed through the PPSMCP.

• Introduction/ delivery of the Fundamentals of Hospice Palliative Care Education program on Walpole Island for PSWs represents a significant opportunity to fill an identified gap and is the first palliative care specific education program that has been delivered on Walpole Island. The availability of funding and support from Chief Joseph Gilbert were identified as facilitating the introduction of Blueprint organizers into this First Nation Community.

• Initiative specific and service delivery challenges were identified: time constraints, the slower pace of activity within the First Nation community, limited system capacity for palliative care and socioeconomic challenges that hinder optimal palliative care, and the cultural relevance of the Fundamentals program (content and delivery).

• Key to ongoing capacity building will be opportunities for exploring the relevance of the Fundamentals program for the WIFN community.

• Needs and gaps in palliative care within the WIFN community were identified specific to resources for institutional care (retirement home, LTC) and better supported home care.

Conclusions: Significant headway was made in establishing relationships with First Nation’s leaders and health professionals on Walpole Island. This process of relationship building will take time and will be critical for continued support and sustainability. Resolution of the issues associated with the Fundamentals program will be important to developing the trust of the First Nation leaders and health care providers so that continued capacity building can occur. Skill Specific Education • A total of 242 community-based frontline workers participated in the Physical Skills

education program; 207 attended the Community Resources Education sessions. • The Physical Skills sessions were well received by survey respondents; very few

participants provided negative ratings and at least half of the respondents were able to identify changes to their knowledge and assessment and management skills.

• Interview participants described the Physical Skills sessions as largely review, particularly for those with previous palliative care education, and did not significantly impact practice change.

• The Community Resource Education session was described as most useful and the one in which participants learned the most “new’ information.

• Overall, the sessions were described as a good opportunity to network with nurses from other agencies and share common experiences, challenges, and potential solutions, however, there were suggestions that this education did not need to be mandatory; it would have been preferable to target the Physical Skills sessions to new learners or to have basic and advanced levels to reflect existing capacity.

• Additional suggestions were made for improving the content, additional topic areas, learning supports and resources and the learning environment. Education delivered in conjunction with team meetings was a preferred format for delivery of education.

Conclusions: A number of positive impacts were associated with these sessions, including improved pain and symptom assessment and management and increased awareness of


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available community support services. However, these perceptions were in contradiction of those managers and nurses who were interviewed; these individuals perceived that there was limited new information, thus they believed the sessions should not have been mandatory. Generally, there was much support for more palliative / end-of-life care education, for standardization of education, and ensuring that all community nurses are familiar with key palliative care concepts; both survey respondents and interview participants suggested additional topic areas that would be beneficial. Greater collaboration with the provider agencies around topic areas, scheduling, formats, and eligibility criteria may ensure greater “buy in” and support for future education. Nursing Guidelines for End-of-Life Care in Long-Term Care Settings • The Nursing Guidelines for End-of-Life Care education program was delivered to 62

individuals representing 16 LTC homes in the region. • The sessions were well received by survey respondents; ratings of various aspects of the

sessions and the session leader were positive. • The nursing guidelines were also well received; intuitively they make sense, create a

common language and common goals for end-of-life care thus creating consistency in care (standardized care, provide direction for less experienced staff) and are easy to use.

• The guidelines are being used with most/ almost all residents or at least some residents who were at end-of-life. Some homes have not yet implemented the guidelines because of competing initiatives (e.g., the implementation of the MDS-RAI), but they have plans in place to do so in the near future.

• Key practice changes resulting from this initiative were related to use of the standardized tools (PPS, ESAS), use of the admission review check list, use of the EOL care pamphlet which has opened dialogue with family members, and increased knowledge regarding the signs and symptoms of impending death. Health system improvements include improved quality of care in long-term care, standardized end-of-life care, and improved communication among providers.

Conclusions: Overall, this education program was well received and positively evaluated by participants. The training assisted participants to change their practice/ use the nursing guidelines. Homes have been challenged to implement the guidelines and in-house training by time constraints and competing initiatives. However, the guidelines are viewed as a priority and many homes have plans in place to implement them in the near future. Many benefits (impacts) have been associated with the use of the guidelines; they have the potential to increase quality of life for residents and quality of end-of-life care in long-term care through the use of standardized assessment tools, provision of a common language with which to describe end of life, and development of consistent/ standardized care plans. Expansion of Video-Conferencing Capacity • The expansion of video-conferencing capacity is currently in progress in two sites, one in

Windsor, the other in Sarnia. • A number of factors facilitated the development and implementation of this initiative

including: Windsor Hospice’s history of providing education, existing network infrastructure (Windsor site), dedicated project management support, partnership and mentorship across sites and support at all levels (Blueprint and site-specific leadership, IT, OTN).

• Challenges to date have included delays created by technological issues, tight-time lines, and planning for installation in a building that is not yet built.

• Key lessons learned in the implementation of this initiative have included: the importance of utilizing existing experience and having basic IT support available, acknowledging that


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installation takes time, the need to ensure equipment is compatible across the system, and planning for use.

• Strategies to sustain use were identified reflecting the importance of ongoing funding, champions, IT and administrative support, and promotion.

Conclusions: The major objective of this videoconferencing initiative was to have one site fully operational by the end of the first funding year. Technical delays external to and beyond the control of project organizers have prevented the achievement of this objective. Information and resource sharing between sites has facilitated implementation at the Sarnia site. This experience as well as additional lessons learned, particularly the importance of dedicated project management and technical support can be used to facilitate successful expansion across the region. Leveraging of existing infrastructures, particularly as related to technological supports will assist in the selection in additional sites. Although videoconferencing has yet to be utilized for education, there is much anticipation that it will greatly impact accessibility to education across sectors and across the region and that travel cost savings will be realized. Important strategies for ensuring sustained use of the equipment were identified in this evaluation. Strategies related to planning for marketing and promotion, identification of key champions for its use and availability of IT and administrative support will also be important to facilitating initial use and success. When operational, opportunities to gather feedback from users on technology performance (sound and picture quality), satisfaction, comfort, benefits, and suggestions for improvement can be used to inform further development and implementation of this initiative. Evaluation of the Overall Education Blueprint • Across all of the initiatives of the Education Blueprint, various information, education, and

planning sessions were delivered with 581 individuals in attendance. • Development and implementation of the blueprint were facilitated by: existing information

on education needs and gaps; existing and new infrastructure; financial support; effective leadership, and good communication, support at all levels; project management support and forced deadlines.

• Challenges to implementation included: short timelines, lack of existing infrastructure, relationships and champions in some areas, technological and personnel issues impeding completion of the video-conferencing initiative, competing projects, nursing layoffs, and limited cross-sector involvement.

• Key lessons learned that will assist with continued implementation have highlighted the importance of champions, funding commitment, dedicated human resources, support at all levels, networking and partnerships, leveraging existing structures, effective communication strategies, and evaluation.

• Suggestions for improvements and further implementation of the blueprint included: better admin support and financial accounting system, continued leveraging of programs and the need for: increased cross county and sector collaboration, more skill specific education, strategies to ensure knowledge transfer, greater emphasis on a systems-level approach, continued leadership and promotion and the need to clarify responsibilities regarding in-kind contributions.

• Although the short time makes it difficult to demonstrate improved competency at a system level, early impacts were identified related improved quality of care, increased access to palliative care education and capacity building for health care providers and volunteers, enhanced relationships/ partnerships for education, improved coordination and integration of education; increased participation of the volunteer sector and increased awareness of palliative care issues across the system.


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CONCLUSIONS: Based the results of this evaluation the following conclusions can be made: • The ESC EOLCN Education Blueprint has accomplished a great deal in a short period of

time. Overall objectives were largely achieved and those that were not were beyond the control of Blueprint organizers (e.g., technological delays with the videoconferencing installation). A number of important training/ education programs were held for volunteers and frontline workers in the community and long-term sectors. The sessions were generally well attended and well received. Although there were some challenges experienced in implementing these initiatives, some unique to the specific programs (e.g., the mandatory nature of the Skills Specific sessions) and others common across all program (e.g., tight lines, competing priorities), changes in practice and benefits to care recipients and their families, care providers and the health system were identified. Major achievements identified across the initiatives of the Blueprint highlight the support for more palliative / end-of-life education in this region and the importance of relationship and partnership building, opportunities for networking across sectors and across the region to share ideas and resources, and inclusion of all key stakeholders in planning and decision making in order to maximize education strategies, including leveraging existing infrastructure and resources for capacity building.

• The need for enhanced palliative care is well documented in the published literature and there is much support for education as a strategy to improve care. The initiatives of the Education Blueprint have the potential to have a significant impact on palliative care across the region. The Blueprint provides an opportunity to provide a coordinated, integrated, and standardized approach to education. This type of approach to palliative care education is unprecedented in southwestern Ontario, and most likely the entire province. This evaluation has identified a number of important and practical strategies for sustainability and further development, many of which will further enhance education efforts (e.g., planning for shared implementation of volunteer education, exploring how existing education programs meet the needs of the WIFN learners, building skill specific education on existing capacity, mentorship support for ensuring practice change and greater inclusion of the long-term care, complex continuing care, and acute care sectors). Increasing capacity for palliative care across the continuum of care by ensuring the consistent use of assessment tools, common language, and care models will serve to support and enhance other initiatives of the ESC EOLCN aimed at enhancing palliative care (e.g., the expansion of Palliative Consultation Teams across the region).

• This evaluation identified many factors that facilitated and challenged the development and implementation of education programs. Attention to these factors as well as identified lessons learned will serve to inform and maximize education efforts going into Year 2 of this initiative. Similarly, this evaluation identified factors that facilitated and challenged application of education to clinical practice. Attention to these factors as well as strategies identified by evaluation participants to support knowledge transfer (e.g., resource materials, mentorship and follow-up support) will also serve to support education efforts going into Year 2.

Evaluation Limitations: The identified impacts associated with the training provided as part of the Education Blueprint were largely self-reported by key stakeholders and anecdotal; objective measures of impacts (i.e., performance/ outcome indicators providing empirical evidence of practice changes and impacts) while difficult to develop would provide validation of the qualitative data generated by this evaluation.


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Volunteer Education

Executive Summary: Volunteer Education

Introduction: The Volunteer Education component of the ESC EOLCN Education Blueprint consisted of several volunteer-related events: Cross-sector strategic planning sessions, Hands on Care Training, Story-Telling Project, and Share the Care events. Evaluation Methods: The evaluation objectives were to: i) describe the key stakeholder perceptions of the planning workshop; ii) describe perceptions of the training initiatives, and iii) describe key stakeholders’ perceptions of the overall development and implementation of this initiative. A feedback survey was available for participants of all of the sessions/events. A focus group interview was conducted with the core group of individuals involved with developing and implementing this initiative. Key Findings Cross-Sector Volunteer Planning: These sessions were well received; respondents were pleased with the level of group discussion and collaboration, the identification of volunteer training needs, the opportunity to meet others working/ volunteering in the field, the diversity among participants, and group facilitation. Improvement suggestions focused primarily on the delivery (more breaks, clear rules of engagement). Hands on Care Training: These sessions were viewed positively; almost all of the survey respondents reported that the session met their expectations and that they learned something new. It was agreed that the resource material provided will assist in their training efforts as adapted to meet the needs of their organization. Suggestions were made regarding improvements to delivery and potential topic areas for inclusion. Share the Care: Survey respondents viewed these sessions positively; they were satisfied with the supportive resources, organization of the session, and opportunities for meaningful participation. The majority agreed that the information gained in the session and the resources/ tools provided will be helpful to the care they are currently or will be providing and that their confidence in their ability to be an effective caregiver has increased. Suggestions were made primarily as related to improving the delivery of the session. Story-Telling: A partnership was created with the VON to implement this initiative. Development and Implementation: The strategic planning sessions were described as a significant opportunity for bringing all the sectors together to identify common needs, challenges, sharing of ideas, and solutions. Key impacts have included: enhanced volunteer training, improved recruitment and retention, improved credibility of volunteers, and standardization of training and care. A number of factors were identified as facilitating the development and implementation of the volunteer training events: funding support, dedicated leadership and project management, and effective session facilitation. Challenges have included; tight timelines, lack of clarity regarding in-kind contributions, , limited follow-up support available, particularly for Share the Care, and limited human resources to plan and prepare training events. Strategies for further implementation were suggested, including the need for clarity regarding in-kind contributions, and continued opportunities for networking and planning. Conclusions: The training sessions were extremely well received. The potential for enhanced training and concomitant enhancements to volunteer confidence, comfort, and performance are great. One of the most significant outcomes of this initiative has been the involvement of a broad range of stakeholders across sectors in the strategic planning of volunteer training in this region. Excitement was generated regarding the potential for shared training and resources as it was believed that this will have a significant impact on improvements to volunteer training across sectors and across the region. Further evaluation efforts might consider direct impacts of the training sessions on objective changes to volunteers practice (i.e., an examination of the ways in which volunteer work changes).


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1.0 Introduction Year 1 activities related to volunteer education were aimed primarily at cross-sector strategic planning sessions (key stakeholder planning event), training curricula and resources. Education delivery will commence in Year 2. A core volunteer education planning group met regularly to discuss and develop the volunteer education initiatives for the ESC EOLCN Education Blueprint, which consisted of several training events: i) Cross-Sector Volunteer Education: delivery of three strategic volunteer education

planning sessions (one in each county) to: deepen understanding of the local context of volunteering and volunteer requirements, to develop a deeper understanding of the ESC and county-specific volunteer challenges and opportunities, to provide input into the development of potential Blueprint projects for Year 2, and to identify potential cross sector and cross county initiatives for Year 2 Blueprint funding consideration. Three sessions were held:

• Essex County (Windsor): March 30, 2009 with 16 individuals in attendance • Lambton County (Sarnia): March 4, 2009 with 16 individuals in attendance • Kent County (Chatham): March 9, 2009 with 14 individuals in attendance.

In total, 46 individuals participated in these planning sessions. These planning sessions were lead by Julie Johnston, Coordinator, PPSMCP, and Maura Purdon, Consultant, Bright Harbour Partners. A PowerPoint presentation outlining these sessions and summarizing the results for each county is presented in Appendix A. (This presentation was prepared by Julie Johnston and Maura Purdon.)

ii) Enhancing the Scope of Volunteer Training: a volunteer training program to enhance the

scope of care provided to clients including Hands on Care Training, and Story telling.

Hands-On-Care: This session is focused on providing volunteers with the practical knowledge and skills needed to volunteer in palliative / end-of-life care, including use of equipment (hospital beds, oxygen tanks, commodes) that are commonly used in palliative care. Using a train the trainer model developed by the Hospice of Windsor and Essex, this session was targeted to volunteer coordinators and educators. One Hands-On-Care session was held in Windsor on March 24, 2009 with 9 individuals in attendance. Story-Telling: Although initially designed as part of this education blueprint, a partnership was created with the VON, who spearheaded this initiative. The VON had received funding to hire a coordinator to deliver the training; the Education Blueprint provided funding for resource materials. Evaluation of this initiative was not conducted as part of the evaluation of the ESC Education Blueprint.

iii) Expansion of the Volunteer Recruiting Pool: promotion of the ‘Share the Care’ model to

support informal caregivers/ volunteers. The information session included a discussion and video of the Share the Care model and promotional material, including the book (Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill, by Cappy Capossela and Sheila Warnock). Year 1 activities focused on the delivery of these information sessions with the goal of building on interest in Year 2 to deliver more comprehensive workshops on Share the Care. Two information sessions were implemented:

• Lambton County (Sarnia): March 4, 2009 with 26 individuals in attendance • Kent County (Chatham): March 9, 2009 with 16 individuals in attendance.


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A third session scheduled in Windsor on March 30, 2009 was cancelled due to low registration. These sessions were facilitated by Julie Johnson and Maura Purdon. In total, 42 individual participated in the Share the Care sessions.

2.0 Evaluation Objectives and Methods i) Cross-Sector Volunteer Education Evaluation Objective: The evaluation objective of the volunteer education initiative was to describe key stakeholder perceptions of the cross-sector volunteer planning session:

• How satisfied were key stakeholders with the planning event? • Did this event meet its stated objectives? • How close is this initiative to achieving its overall goal (for year 1)? • How useful was participation in the planning (brainstorming) event to the stated

objectives? • What did participants like about this event? What goals, visions, dreams do participants

have for volunteer training in this region? • What are some of the key gaps and needs related to recruiting, training, and retaining

volunteers? How can the recruitment, training, and retention of volunteers be efficient? • What challenges do participants anticipate as this initiative is implemented? What

suggestions or strategies do they have for overcoming these challenges? • What additional supports or resources are needed to make this initiative successful? • Are there existing opportunities for expanding/ enhancing the delivery of volunteer

training programs outside of individual organizations and across this region (e.g., videoconferencing)?

• Overall perceptions of the initiative (in terms of potential to enhance the provision of care/support provided by volunteers and informal caregivers, increase the capacity of volunteer and informal caregivers to provide hospice palliative care).

This information will be used to inform further development of the initiative, including supports and resources needed to maximize success.

Source of Information: To meet the objective of this evaluation, the following source of information was employed: Feedback Survey: Participants of the stakeholder planning events completed a feedback survey to gather their perceptions of the event and of the initiative (as described above). This paper based survey was completed towards the end of the planning events with time allotted within the event agendas for survey completion. This survey is presented in Appendix B. A total of 46 individuals participated in the planning sessions across all three counties; 35 (76% response rate) completed a feedback survey. Table 1 presents survey respondents’ demographic information. The session consisted of both volunteers (N = 17; 49%), who had been volunteering in Hospice Palliative Care for an average of 8 years (range = .5 – 30 years) and individuals employed in a volunteer-related role (N = 13; 37%), who had been working in the field of Hospice Palliative Care for an average of 8 years (range = 1 – 30 years). The majority of participants were female (71%) and ranged in age from 22 to 72 years of age (average age = 51 years).


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Table 1: Description of the Volunteer Strategic Planning Session Feedback Survey Respondents

Demographic Variable Percentage (#)

Gender Female

Male

71.4% (25) 14.4% (5)

Age (N = 28)

Average (+/-) Range

50.9 years (15.6) 22 – 72 years

Number of years volunteering in Hospice Palliative Care (N =17 )

Average (+/-) Range

8.4 years (8.7) .5 – 30 years

Number of years working in Hospice Palliative Care (N = 13)

Average (+/-) Range

7.7 years (8.3) 1 – 30 years

Note: Percentages may not sum to 100% due to missing values. i) Enhancing the Scope of Volunteer Training: Hands On Care

Evaluation Objective: The evaluation objective of this volunteer training initiative was to describe the participants’ perceptions of the training initiatives that they been involved with:

• How satisfied were participants with the training they received? • Did this event meet its stated objectives? Did the training prepare them for their

volunteer work/meet their needs (i.e., as related to volunteer coordinators/ managers involved in the Hands On training program)?

• Do participants feel that they received adequate support? • What challenges do participants anticipate as this initiative is implemented? What

suggestions or strategies do they have for overcoming these challenges? • What additional supports or resources are needed to make this initiative successful? • Are there existing opportunities for expanding/ enhancing the delivery of these volunteer

training programs (e.g., videoconferencing)? • What are the potential impacts to clients (recipients of the volunteers involvement)

associated with the volunteers’ work? Sources of Information: To meet the objective of this evaluation, the following source of information was employed: Feedback Survey: Participants of the training session were invited to complete a feedback survey to gather information about their perceptions of the session and the usefulness of sharing information to meet program training needs. This paper based survey was completed


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towards the end of the planning event with time allotted within the event agenda for survey completion. This survey is presented in Appendix C. A total of 9 individuals participated in the Hands on Care training; 8 (89% response rate) completed a feedback survey. Survey respondents included: 2 Managers, Volunteer Community Services Programs; 3 Volunteer Coordinators, 2 Volunteer educators and I Nurse educator. iii) Expansion of the Volunteer Recruiting Pool: Share the Care Evaluation Objective: The evaluation objective of the Share the Care initiative was to describe participants’ perceptions of the initiative:

• How satisfied were participants with the information session: • How satisfied were participants with the supportive resources (promotional material,

book, video) • Did this event meet its stated objectives? • What did participants like about this event? What goals, visions, dreams do participants

have for ‘informal caregiver’ training in this region? • What are some of the key gaps and needs related to recruiting, training, and retaining

‘informal caregivers’? • What challenges do participants anticipate as this initiative is implemented? What

suggestions or strategies do they have for overcoming these challenges? • What additional supports or resources are needed to make this initiative successful? • Overall perceptions of the initiative (in terms of potential to enhance the provision of

care/support provided by volunteers and informal caregivers, increase the capacity of volunteer and informal caregivers to provide hospice palliative care).


Source of Information: To meet the objective of this evaluation, the following source of information was employed: Feedback Survey: Participants of Share the Care information sessions completed a survey to gather their perceptions of the event (information session and resources: book, video, promotional material) and potential impacts of Share the Care. This paper based survey was completed towards the end of the planning event with time allotted within the event agenda for survey completion. This survey is presented in Appendix D. A total of 42 individuals participated in this information session; 36 (86% response rate) completed a feedback survey. Participants represented volunteers, health care providers and family members (See Table 2). There was much variability in the amount of time that respondents have been working or volunteering in palliative care (range = 1 - 18 years), with the average being 7 years. Many respondents learned about this event through their workplace.


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Table 2: Description of Share the Care Feedback Survey Respondents

Demographic Variable Percentage (#)

Discipline :

VolunteerVolunteer Coordinator

RN/ RPNPSW

Other*

33.3% (12) 2.8% (1) 11.1% (4) 22.2% (8) 22.2% (8)

Learned about the session through: Church

5.6% (2)

Service Club (St. Vincent de Paul, Rotary, Lions) 2.8% (1) Work place 47.2% (17)

Other** 27.8 (10) Number of years involved in training volunteers (N = 5)***

Average (+/-) Range

5.4 years (4.4) 1 – 12 years

Number of years working/ volunteering in palliative care(N = 16):

Average (+/-) Range

6.6 years (5.5) 1 – 18 years

Note: Percentages may not sum to 100% due to missing responses. * Other disciplines included: health care providers, family members, student ** Other sources of information included: family members, VON newsletter, community support service provider agency *** N = 24; 67% responded that this was ‘not applicable’

iv) Overall Volunteer Education Initiative: Evaluation Objective: The evaluation objective for the overall volunteer education initiative was to describe key stakeholders’ perceptions of the development and implementation of volunteer education initiatives:

• How satisfied were key stakeholders with the initiatives that were implemented? • Did these initiatives meet their stated objectives? • What are some of the key lessons learned from this initiative? What are some of the key

gaps and needs related to recruiting, training, and retaining volunteers? How can the recruitment, training, and retention of volunteers be efficient?

• What factors facilitated the implementation of these initiatives? • What were some of the challenges experienced and how can these be overcome in

future endeavours? • What additional supports or resources are needed to make this initiative successful? • What are the key next steps for this initiative?


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• Overall perceptions of the initiative (in terms of potential to enhance the provision of care/support provided by volunteers and informal caregivers, increase the capacity of volunteer and informal caregivers to provide hospice palliative care).


Source of Information: To meet the objective of this evaluation, the following source of information was employed: Focus group interview: The core group of individuals (N = 4) involved with the development and implementation of the volunteer education component of the blueprint were invited to participate in a focus group interview to obtain in-depth information on the implementation this initiative, potential impacts, and next steps (as described above). The interview guide (presented in Appendix E) was distributed to participants prior to the interview for review. This interview was conducted with 3 individuals on April 6, 2009 via teleconference; it was approximately 56 minutes in length. Data Collection and Analysis: Surveys completed by session participants were distributed and collected by initiative leaders and returned to the evaluation consultant for data entry and analysis. Survey data was analyzed using SPSS15.0.1 Descriptive statistics (frequencies, means, standard deviations) were generated for numeric variables. Content analyses were conducted on open-ended responses using an inductive analysis approach, in which common themes are identified and categorized.2 The evaluation consultant conducted the focus group interview with organizers of the volunteer education component of the ESC Education Blueprint; the interview was audio-recorded and transcribed. Interview data analysis was consistent with recommended practices for qualitative data.3 3.0 Results The following is a summary of the highlights and main themes that have emerged from the evaluation of the volunteer education component of the ESC EOLCN Education Blueprint. Detailed presentation of the results of the feedback surveys for the volunteer planning session, Hands on Care training, and the Share the Care Information session are located in Appendices F to H, respectively. 3.1 Objective I: Describe the key stakeholder perceptions of the cross-sector

volunteer planning workshop Overall survey respondents viewed the volunteer planning workshop positively, with the majority of respondents (71%) providing ratings of “very good” (54%) or “excellent” (17%; See Figure 1).

1 SPSS 15.0. Chicago, IL: SPSS Inc., 2007. 2 Cavanagh, S. (1997). Content analysis: Concepts, methods, and applications. Nurse Researcher, 4, 5-16. 3 Patton, M.Q. (2002). Qualitative Evaluation and Research. Thousand Oaks, CA: Sage.


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Figure 1: Overall Ratings of the Volunteer Planning Sessions

PoorFairGoodVery goodExcellent

Note: Percentages do not sum to 100% due to missing values. Figure 2 presents survey respondents’ ratings of various aspects of the planning workshop. Generally, the majority respondents (greater than 74%) provided ratings of “very good” and “excellent” across all of the elements (preparation, organization/ implementation, meeting its stated objective and opportunities for meaningful participation).

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Figure 2: Ratings of Various Aspects of the Planning Sessions


Survey respondents were asked to reflect on whether their participation contributed to the achievement of the objectives of the planning session and whether they supported the priorities that were discussed (See Table 3). Average ratings (4 on a 5-point scale) reflected that respondents thought their participation was helpful to the achievement of the session objectives and that they supported the priorities that were discussed.


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Table 3: Survey Respondents’ Perceptions of Their Contributions and Agreement with Priorities Discussed

Average (+/-) Range

How useful do you think your participation in this planning event was to the stated objectives?* (N = 31)

3.9 (.50)

3 - 5

Do you support the priorities that were discussed today?** (N = 33)

4.4 (.61) 3 - 5

* 5-point rating scale: 1 = not at all useful; 5 = extremely useful **5-point rating scale: 1 = not at all; 5 = completely

Table 4 provides a summary of the things that survey respondents reported that they really liked about this planning event. Generally, respondents were pleased with the level of group discussion and collaboration, the identification of volunteer training needs, the opportunity to meet other working/ volunteering in the field, diversity among participants, and group facilitation (organization, participation).

Table 4: Summary of What Survey Respondents Really Liked About the Planning Event

Group Collaboration “Group Involvement: The idea of pooling resources and training volunteers.” “The creative ideas of all who attended. Great brainstorming” “The sharing of ideas. Sometimes one is only involved in their own area. It is good to hear another's opinion.” Identification of Volunteer Needs “Seeing the needs of our community- hope.” Learned how much work needs to be done yet to get the "best" palliative support going among younger people.” “Project identification needs- particularly for Hospice.” Networking Opportunity “Opportunity to meet and work with other EOL Volunteer Coordinators.” “Meeting others from similar stand points.” Group Diversity “Good range of people in group.” “Cross- sector representation.” Facilitation “Allowing participation - input from our experiences and knowledge.” “Well organized.” “Open discussion.”


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Overall, participants had very few suggestions for improving any future planning events of this nature; those made focused primarily on the delivery of the session: more frequent short breaks, stating rules of engagement (e.g., opportunities for questions, discussion, participation) clearly, and keeping focused on meeting session goals/objectives. 3.2 Objective II: Describe participants’ perceptions of the Hands on Care training Figure 3 presents survey respondents ratings of various aspects of this training session: pace of activity, volume of information, complexity of material, and opportunities to participate (as rated on a 1 to 5 scale; 1 = minimum extreme, 2, 3 = just right, 4, 5 = maximum extreme). The majority of respondents rated pace, volume of material, and complexity of the material, as “just right”. Half of respondents rated opportunities to participate as “just right”, while the other half indicated that there were too many opportunities to participate.

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Figure 3: Survey Respondents Ratings of the Pace of Activity, Volume and Complexity of Material and

Opportunities to Participate Minimum ExtremeJust rightMaximum extreme

Note: Percentages do not sum to 100% due to missing values. * 5-point rating scale; 1 = minimum extreme, 2, 3 = just right, 4, 5 = maximum extreme)

Overall, survey respondents viewed the session positively, with the majority of respondents providing ratings of “very good” (38%) or “excellent” (50%; See Figure 4).

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Figure 4: Overall Ratings of the Hands on Care Sessions


Note: Percentages do not sum to 100% due to missing values.


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Using a 5-point rating scale (1 = not at all; 5 = extremely well), survey respondents were asked to rate the extent to which the training session prepared them to train others on Hands On Care. The average rating was 4.3 (+/- .76) reflecting that the session prepared participants to train others. All of the survey respondents agreed (ratings of “agree” and “strongly agree” on a 5 point scale ranging from strongly disagree to strongly agree) that the Instructors Manual, PowerPoint presentation, DVD (“Elements of Back Care’) will assist in their training efforts and that they will be able to adapt the Hands On Care training program to meet the needs of their organization. Similarly, almost all (87.5%) of the survey respondents reported that the session met their expectations and that they learned something new from the session (See Table 5).

Table 5: Ratings* of Various Aspects of the Program

Disagree Neutral

Agree This training session met my expectations. 0 12.5% (1) 87.5% (7) The information in the Instructor’s Manual will help me to train others about Hands -On Care.

0 0 100%

The PowerPoint presentation included in the manual will be useful to the training I will do.

0 0 100%

The DVD ‘Elements of Back Care’ included in the training package will be useful to the training I will do.

0 0 100%

I will be able to adapt this training program to meet the needs of my organization’s volunteer training program.

0 0 100%

I feel I have learned something new from this session.

0 0 87.5%

* 5 point rating scale; Strongly disagree, disagree, neutral, agree, strongly agree; Disagree = sum of strongly disagree and disagree ratings; Agree = sum of strongly agree and agree ratings.

Survey respondents were asked to fill in the following blanks: “The best part of this training session was…. because…….” Respondents identified a number of things that they liked about the session, primarily related to learning new information because it will be helpful to volunteers, they did not know this previously, and they trusted the source of information.


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Survey respondents’ suggestions for improving the session included: more ‘hands on’ opportunities, especially around the use of equipment, defined breaks, and inclusion of information around the emotional needs of volunteers, residents, family members, cultural and spiritual issues, family privacy around dying and who volunteers can contact if they have questions or concerns. Three survey respondents identified resources that they do not currently have, that they think would be helpful to their ability to train others on Hands-On-Care: equipment, space to host the training program, access to other community professionals, including training offered by occupational and respiratory therapists, and more information about the roles of nurses and PSWs. Three survey respondents indicated that they anticipated challenges associated with getting all volunteers trained and volunteering as they implement the Hands on Training. Generally additional comments related to this initiative were positive and reflected respondents’ satisfaction with the session:

“Excellent presenters and very good manual and information. Well done - very knowledgeable presenters.” “Great Job.” “Excellent” “I think it was the best it could be.”

3.3 Objective III: Describe participants’ perceptions of the Share the Care Information

Session Overall, survey respondents viewed the program positively, with the majority (61%) of respondents providing ratings of “very good” (50%) or “excellent” (11%; See Figure 5).

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Figure 5: Overall Ratings of the Share the Care Information Sessions


Note: Percentages do not sum to 100% due to missing values.


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Using a 5 point scale (1 = not at all, 5 = extremely), survey respondents were asked to rate their level of satisfaction with a number of elements of the information session. Generally, respondents were satisfied with the supportive resources (tools, book, video), organization of the session, meeting its stated objectives and opportunities for meaningful participation; average ratings were moderately high (over 4 on a 5 point scale) across all of the elements (See Figure 6).

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Figure 6: Average Ratings* (+/-) of Satisfaction with Various Aspects of the Share the Care Sessions

4.1 (.81) 4.1 (.76) 4.1 (.89)4.1 (.68)

* 5 point scale: 1 = not at all; 5 = extremely satisfied

The majority of participants agreed (ratings of “agree” and “strongly agree” on a 5 point scale ranging from strongly disagree to strongly agree) that the information gained in the session and the resources/ tools provided will be helpful to the care they are currently or will be providing and that their confidence in their ability to be an effective caregiver has increased (See Table 6).

Table 6: Ratings* of various aspects of the program

Not

applicable

Disagree Neutral Agree The information from this session will be helpful to the care that I am currently or will be providing.

2.8% (1) 2.8% (1) 2.8% (1) 86.1% (31)

The resources/ tools provided in this session will be helpful to the caregiving I am or will be providing.

0 2.8% (1) 11.1% (4) 77.8% (28)

This session has increased my confidence in my ability to be an effective caregiver.

2.8% (1) 0 8.3% (3) 86.1% (31)

* 5 point rating scale; strongly disagree, disagree, neutral, agree, strongly agree; Disagree = sum of strongly disagree and disagree ratings; Agree = sum of strongly agree and agree ratings.


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Table 7 provides a summary of the things that survey respondents reported that they really liked about the Share the Care information session. Generally, respondents were pleased with the resource material, particularly the video and book, the concept of the Share the Care Model (informal caregivers meeting the needs of a seriously ill person) and the facilitation/ presentation of the session.

Table 7: Summary of What Survey Respondents Really Liked About the Share the Care Information Session

Resource Material “The material - I am anxious to use it for a personal family situation.” “The book will be very helpful in setting up a group for my sister.” “Video detailing how the program works for different situations.” “I believe that the video really sold the idea of "share the care" Seeing people in special situations and wanting and needing to continue on with their lives made the idea more real and worthwhile. No matter what health situation we're in "anxiety of life" during your life and in dying is very important.” The Share the Care Concept/ Model “I loved the idea of the introduction of the good old fashioned way of supporting and taking care of your patient whether it be a family or friend or neighbor. A community support in a very busy society.” “I really like the idea of share the care to help out someone who is facing death to deal with everyday challenges as well as emotions.” “It opened your eyes to the possibility of caring for a seriously ill person at home with their help and input for their needs.” Facilitation ” Presented very well and in terms we could understand and appreciate.” “ Was very impressed with presentation overall and to know of the new program it was so inspired and have comfort in knowing so many care.” “The clarity of the presentation; The opportunity to ask questions and have great feedback.”

Suggestions for improving the session included opportunities for small group discussions, and having more books available for purchase. Generally most suggestions focused on the need for more Share the Care information sessions, focusing on the specific needs of the target audience, presentations specifically for church groups, and having the authors attend as guest speakers. Perceptions of Share the Care Model of Care Survey respondents were asked to rate the potential of Share the Care to increase the knowledge and skills of informal caregivers, to enhance care and expand the volunteer recruiting pool. Overall, respondents perceived the potential impacts to be very good, with the majority (greater than 70%) of respondents providing ratings of “very good” or “excellent” (See Figure 7).


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Figure 7: Ratings* of the Potential Outcomes Associated with Share the Care Poor

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Survey respondents were asked to identify their goals, visions, or dreams for volunteer training in this region. Respondents identified a number of goals, primarily related to increasing the number of volunteers available to “Share the Care”, organizing church groups to implement Share the Care, and increasing awareness of the Share the Care model of care. Survey respondents identified the following key gaps and needs related to recruiting, training, and retaining informal volunteers primarily related to providing more education and training sessions for volunteers, informing others of Share the Care, and few people available for volunteering due to lack of interest, fear, and lack of awareness that they could be helpful. Generally additional comments related to this initiative were positive, reflecting respondents’ satisfaction with the session and Share the Care model of care:

“Great model, will be very helpful for families, caregivers and volunteers.” “Love to have the author - we would love to hear and meet her.” “I believe that share the care is needed to provide not only extra support to the family and the patient, but will help fill the cracks in our health care services.”

3.4 Objective IV: Describe key stakeholders’ perceptions of the development and

implementation of the volunteer education initiative Major Accomplishments The volunteer planning sessions that were held across the region were identified as a major accomplishment of the volunteer component of the Education Blueprint. These sessions were described as a significant opportunity for bringing all the sectors together (outreach, acute care, long-term care, hospice) with input from volunteer coordinators and volunteers to identify


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common needs and challenges and to share ideas and potential solutions. It was noted that there are no formal opportunities for this type of cross sector collaboration.

“I liked the fact that we could bring together a very diverse group….. and from just talking with them and sharing our ideas, I found that everybody was extremely open, to the point where we all decided we could share each other’s training and we could support each other if they needed.” “It’s important work that’s being done and I think it’s really important for all of us to work together and learn from each other.”

Impacts Interview participants identified a number of key impacts associated with overall volunteer component of the Education Blueprint, as well as the specific events held as part of the Blueprint. Overall impacts included: • Enhanced volunteer training: Overall, the volunteer training programs were described as

good opportunities for enhancing the knowledge and skills of volunteers. This in turn will have benefits for clients and family members in that the quality of care they provide will be improved, particularly as related to continuity of care as volunteers will be able to work with clients not only in the community but when they are hospitalized or in hospice.

• Improved recruitment and retention: It was noted that improved training contributes to

effective recruitment and retention as volunteers feel better prepared and have greater job satisfaction.

“I think too when you look at the statistics of what the baby boomers want or need in a volunteer position, it’s often they want to know exactly what it is they’re doing…. they also want to be armed with all the knowledge to do that job really well. I think when we take the time out to teach them everything we possibly can, to better enable them to do the job, it’s going to make them feel better, they’re going to feel more comfortable in the role. That’s then going to impact on the client, but also it’s going to retain them.”

• Improved credibility of volunteers: Improved training was noted to contribute to the

credibility of volunteers; clients, family members and health professionals will be more confident in the role of the volunteer and the potential impacts of their work.

“The credibility of volunteers is often treated with skepticism, and I’m talking about maybe the medical staff, the doctors, even sometimes the family members. I think if we can give them the credibility and the skills and certainly the certificate to go along with it to say that they all have taken the training, I think the credibility of volunteers goes up. And I think that’s only good for volunteerism.”

• Standardized training and care: The sharing of training programs was viewed as an

opportunity to standardize volunteer training and provision of care across the region, which was viewed as important to ensuring continuity of care across sectors.

“I think really the overall impact is for us is to standardize training and care that the volunteers will be providing, also in creating an increased quality of life for the client, the


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resident, and support for the families as well. But I think also we really see a seamless delivery of services for volunteers who have had all of this same training and standardized training for them to be able to go from community to residential, or to hospital and that’s a positive impact.”

Volunteer Planning Sessions: These sessions were viewed as a significant opportunity to identify volunteer training needs and gaps and to begin to identify potential solutions. As an example, it was noted that the Fundamentals of Hospice Palliative Care education program is not necessarily “volunteer friendly”; volunteers find it too clinical and not especially relevant to their work. Opportunities to standardize volunteer training and care provided by volunteers were discussed in the training sessions. Moreover these sessions were described as an effective opportunity for planning. Cross sector collaboration and input from both volunteer coordinators and volunteers provided an effective opportunity for planning potential initiatives to meet volunteer needs for training. There is much interest in using the information gathered in the planning sessions to develop plans for volunteer recruitment and training. Shared planning and training was viewed as a way to maximize training efforts and would allow them, as a group, to do more than they would be able to do individually. The inclusion of volunteers in the planning session demonstrated that volunteers were supported and valued. Volunteers that attended the planning sessions were grateful for the opportunity to provide their input.

“I did find that we came out of that workshop with really good, clear targets.”

“I just think that there were some clear steps that we decided we would take, certainly to meet on a regular basis so the coordinators of all the programs in the area would meet and get together and share ideas and share training… because we might be able to offer opportunities for learning that we wouldn’t be able to individually.”

Share the Care: Interview participants were impressed with the diversity of attendees, including family members, volunteers, counsellors, long-term care workers, and church representatives. It was noted that those who participated in the sessions were quite enthusiastic about the potential role that they could play as informal caregivers in palliative / end-of-life care, highlighting the important role of volunteers in the provision of care. Hands on Care: The Hands on Care sessions were described as a good opportunity for volunteer coordinators and volunteers alike to learn practical skills and highlighted the gaps that currently exist in volunteer training.

“I realized that there was a big gap in the training that we’re giving volunteers because even though we might not be asking volunteers to do some of these things, they are in the home with people that might have all this equipment. They certainly need to know what they are, and if they’re visiting someone in the home with a hospital bed, they really should know how to put it up and down……I know it’s sad to say, but I’ve never seen a commode and didn’t really understand how they worked, I didn’t’ realize you could actually wheel them over the toilet. So I came away from that session just learning a whole ton of stuff and really enjoyed it and I will certainly be trying to implement it as soon as we can into our volunteer training.”

It was noted that as a result of the Hands on Care training sessions, volunteers have an increased confidence and comfort with their volunteer work; they feel better prepared and as a result experience better job satisfaction. This training program gives volunteers a better sense of the importance and scope of the bedside volunteer and can serve as an opportunity for


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screening or “filtering” volunteers as they get a sense of whether or not they are comfortable with volunteering at the bedside. This will assist in ensuring the most appropriate placements for volunteers. Moreover, it was noted that clients would feel better supported knowing that volunteers are knowledgeable and well prepared.

“It showed volunteers how important that role is. Not to just sort of sit and hold hands, I mean there’s tons of other things that you can be doing, helping them…. it really helped step inside the shoes of someone that might be in the hospital going through those stages and how frustrating and you know, it must be for them.”

Story telling: Implemented in partnership with the VON, this project has the potential to provide effective psychological and spiritual support at the end-of-life. Facilitating Factors A number of factors were identified as facilitating the development and implementation of the volunteer training events. These were: • Funding support provided by the LHIN for volunteer training was perceived as recognition

and acknowledgement of the value of the volunteer sector in the provision of palliative care. It was noted that decision makers are beginning to understand the full scope of the challenges experienced in recruiting and retaining volunteers (e.g., transportation needs, costs associated with advertising, training).

“I’ve been really pleased that the LHIN is looking at the volunteer side of things much more seriously than I think they have in the past…… putting a small percentage of money towards possible programs and training initiatives for volunteers, I think it’s a small step in a big direction.”

• Dedicated leadership and project management was perceived as essential; without

leadership and human resource support it was believed that the training events would not have occurred.

“I can only speak for myself, but I know there’s probably very few hours in the day that I can devote to organizing and developing something like this on a large scale, so that was really, really important that we had someone that could follow through and get things done.”

• Effective facilitation skills of the person who lead the planning sessions ensured that the objectives were met, discussions remained on track, results were summarized and next steps were articulated.

Challenges A number of challenges with the development and implementation of this initiative were identified: • Tight timelines: There was a lot to be accomplished in a short period of time; this coupled

with competing priorities challenged those involved to meet deadlines.


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“The timelines were really tight. They were really short and so that really put extra stress and extra work on our agency.”

• Lack of clarity/ understanding regarding in-kind contributions: It was noted that there

was a lot of extra work to organize the training sessions (i.e., planning meetings, teleconferences, arranging for lunch/ refreshments, monitoring registration, developing resource material, ordering books/ manuals, conducting workshops). Those involved in these tasks expressed disappointment that they were not compensated for their time. It was not clear that these types of costs, as well as travel costs for volunteer coordinators, were considered in-kind contributions from the participating agencies.

“It was really, was a lot of extra work and time for me. I don’t really have anyone I can delegate this stuff to. I did it and a few volunteers helped organize some of the workshops we put on. But I found that just a lot of extra stuff on top of everything else we do. Though they’re good, they’re positive and we need to do them, there was no funding for that extra work that we were going to have to put towards these projects to make them successful.”

• Limited follow-up support: Concern was expressed that there is limited human resource

and funding support to provide follow-up related to the events that were held. Related to Share the Care, it was not clear who would be available to provide continued support for those who implement a share the care approach to providing informal palliative care.4

“Where do we go now? What support is available now for us? Like the hands on training, we have to organize that, we are getting volunteers in for the training…. so there’s still a lot of work that’s involved in all of this, we don’t really get any money for that either, I see that as a challenge.” “For Share the Care… what supports are in place for us now? We’ve got the book, we’re out there implementing this program, and supporting palliative persons at home. But where do they go if they have questions? Who can support them? And it’s like I don’t know what to tell them?”

• Limited local human resources: It was noted that more help was needed to pull the

events together. One agency was able to find volunteers that could do some of the invitation phone calling, but they need someone with skills and commitment to “take the ball and run with it.”

“Because this is becoming like a standardized objective for training for volunteers, that they want, you know, all volunteers to have this training so therefore you know, we’ve taken the initial steps and there’s no funding anything further in that area…We almost need an extra person or a part time person to assist going forward with some projects.”

4 It is important to note that Year 1 objectives for the Share the Care Project were to deliver the information session with the goal of building on existing interest in Year 2 to consider more comprehensive workshop and support opportunities.


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Sustainability Interview participants identified a number of strategies for further development and implementation of the volunteer training events: • Clarity regarding in-kind contributions: the identified need for adequate funding to

address the needs of volunteers and that provides the support needed to prepare and deliver training sessions, such as funding for human resources, materials, incidental costs (space rental, transportation, materials, food/ refreshments) Highlights the need for clarity regarding in-kind contributions as many of the identified costs were considered in-kind contributions resulting from the agencies’ partnership with the Education Blueprint to provide volunteer education.

• Continued opportunities for networking and planning across the region: There was much support for more volunteer planning sessions, for shared training, and using the results of the planning session to drive a coordinated approach to volunteer training across the region.

• More opportunities for volunteers to network and discuss common issues: Informal

feedback provided following the Share the Care sessions suggested that participants would have liked to have had more opportunities to discuss issues regarding informal/ volunteer palliative care. Moreover, participants expressed an interest in discussing the Share the Care model of care with someone who had experience with implementing it or to have had an opportunity to hear the author of the book speak. There are concerns that there are no supports available for those who try to implement it.

• Promotion of volunteer competency: It was suggested clients and families, as well as

health professionals need to be informed that volunteers are trained and competent to implement their role. This would ensure that volunteers are valued and given responsibilities that match their scope of competency.

4.0 Conclusions Based on the results of this evaluation, the following conclusions can be made: • The training sessions (Hand on Training, Share the Care) were extremely well received.

Although the number of participants in these session across the region appear low (less than 50 for both programs) particularly in comparison to the larger number of participants in the other training programs within the Education Blueprint, these sessions were targeted to the most appropriate audience; those that attended were very enthusiastic, valued the opportunity to participate, and benefited from the sessions. The potential for enhanced training and concomitant enhancements to volunteer confidence, comfort, and performance are great.

• One of the most significant outcomes of this initiative has been the involvement of a broad

range of stakeholders across sectors in the strategic planning of volunteer training in this region. Participants of the planning sessions valued the opportunity to network and share


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ideas, challenges and solutions with other professionals and volunteers in the field. Excitement was generated regarding the potential for shared training and resources as it was believed that this will have a significant impact on improvements to volunteer training across sectors and across the region.

• The evaluation of this initiative has focused on reactions to the training sessions. Further

evaluation efforts might consider direct impacts of the training sessions on objective changes to volunteers practice (i.e., an examination of the ways in which volunteer work changes as result of the training).


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Acknowledgements

The feedback and advice of the ESC Education Committee is gratefully acknowledged. The consultant is especially grateful to Julie Johnston, Maura Purdon, and Carole Gill for their assistance in facilitating the implementation of the evaluation across the many projects. The contribution of those who participated in this evaluation by completing a survey or participating in interviews is especially appreciated. Their contribution of time and insight reflects their commitment to building capacity for palliative / end-of-life care across this region.


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List of Appendices Appendix A Cross Sector Volunteer Education Planning Workshop Summary Appendix B Volunteer Planning Session Feedback Survey Appendix C Volunteer Education: Hands-On-Care Training Feedback Survey Appendix D Volunteer Education: Share the Care Information Session Feedback Survey Appendix E

Guide for the Focus Group Interview with Volunteer Education Blueprint Organizers

Appendix F Results of the Volunteer Planning Session Feedback Survey Appendix G Results of the Hands On Care Training Session Feedback Survey Appendix H Results of the Share the Care Information Session Feedback Survey


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Appendix A

Cross Sector Volunteer Education Planning Workshop Summary

Prepared by Julie Johnson and Maura Purdon

Hospice Palliative and End-of-Life Care Education Blueprint

Volunteer Planning Workshop Summary

April 2009

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Overall Goal of Education Blueprint Volunteer Projects

Build and develop a sufficient pool of trained, committed Volunteers to facilitate the provision of quality Hospice Palliative and End-of-Life Care support in Erie St. Clair communities


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Planning Workshop Goals

Deepen understanding of local context of volunteering and volunteer requirements

Develop deeper understanding of Erie St. Clair and county-specific volunteer challenges and opportunities

Provide input into the development of potential Volunteer 2009/2010 Blueprint projects

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Planning Workshop Approach and Timing

1 Planning Workshop held in each County

Sessions held throughout March 2009. Each session was approximately a half day in length.

Participants were a mix of current Volunteers, Volunteer Coordinators and Non Volunteers. The total number of planning session participants across all sites was 46.

Blueprint Working Group members and other local ‘Champions’ from each County communicated and hosted the Volunteer Workshop.

Session co-designed and co-delivered by Julie (Johnston) and Maura (Purdon) with input on design from Blueprint Volunteer Working Group members

Session summary developed following completion of all sessions


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Overall Volunteer Planning Summary: All Counties

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Volunteering in Context: The Numbers

Today’s View Nationally:

60,000 not-for-profit organizations in CanadaMore than 12 million volunteersGenerates $112 Billion in revenueContributes almost 7% to the GDP

Competing for dwindling funds10,000 – 12,000 not-for –profit organizations will fall victim to the current economic down turn

Communities tent to rally to support local communities in tough timesSome organizations are already working to improve back-office efficiencies Ottawa Citizen, February 2, 2009


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1

Erie St. Clair Numbers What’s the Need? What are the Numbers?

Across all 3 Counties participants reported a need for more Volunteers overall and particularly at certain times of the year

All Counties reported projected need for volunteers in the future and a concern as to where Volunteers would come from

Session participants did not feel they had an accurate read on the # of Volunteers involved in Volunteering overall, or #’s of HP/ EOL Care Volunteers, by County. ‘Very rough’ estimates captured from each session but more work would need to be done to paint an accurate picture for each County or Erie St. Clair overall

All groups reported numbers/data and research on County Volunteering ‘picture’ weak

Parishes were a common source for Volunteers in all 3 Counties

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Why I Volunteer: Most Common Responses

To give back to others/help others Saw a need or gapGet a lot out of volunteering; personal satisfactionMy passionFamily modeling…parents volunteeredTo learn new skills


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Why I Don’t Volunteer

Not enough time Just started a new job Not volunteering yet but looking around Fear of death and illnessComplacencyLack of understanding as to need, opportunitiesBurn out!

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Summary SWOT: Strengths

Common Strengths

Availability/strength of education/training for Volunteers (3 Counties)

Caring/Volunteer minded community (2 Counties)


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1

Summary SWOT: Highest Ranked Weaknesses or Challenges

Chatham-KentSatellite community resentment…a lot of services have been moved from the small communities to Chatham…this means that local people must now travel for Volunteer training, meetings and Volunteer opportunitiesAging Volunteers…as volunteers age they are ill or absent more often…Availability issueChallenges with partnerships; communication and regulatory issues with volunteer impact

Windsor-EssexLack of young people involvement (Tied for Ranking as # 1)Not understanding what Hospice does (Tied for Ranking as # 1)Education around the benefits of volunteering (Ranked # 2)Need to develop programs for young people (Ranked # 3)

Sarnia-LambtonLack system level view; who offers what, where, to whom (to clients) Ensuring Volunteer seen as importa part of the team nt

12

Summary SWOT: Common Challenges/Weaknesses

Aging Volunteers and their availability (3)Economic impact and loss of jobs (3)Burnout/HPC work can be draining (2)Lack of understanding of HPC and life journey, HPC Volunteer role, benefits of volunteering (2)Increased complexity, cost and time to Volunteer today (rules & regs, travel, required training, etc.) (2)


30

13

Summary SWOT: Common Opportunities

Generally more divergence than commonality in responses to opportunities but 2 areas surface though some of this may be more about how groups determined what they put in each SWOT quadrant ;

Doing more work (together) on training e.g. cross sectoral, new training models, mentoring, etc. (3)

Working with Young people in schools/through 40 hour Volunteer requirement (2)

14

Summary SWOT: Common Threats

Aging population and aging Volunteers (3)

Layoffs/recession (2)

Volunteer burnout (2)

Culture/mindset/fear of dying (2)

Reduced funding (2)

No time (2)


31

15

Common Project and Initiative Areas

HPC Education for Youth – Various programs suggested across 3 Counties

Community/Public education – Intro to HPC and HPC Volunteering (2-3 hour or full day

sessions)– Care for the Caregiver– Understanding the life journey; understanding death

System wide work– Communication/web site development– Partnership/merger– Education/training– Strategy development (recruitment/retention)

Research and data collection/analysis– Underpins strategy work– Basis for planning and programs

16

Planning Workshop: Chatham-Kent

Identified 5 broad ‘areas’for potential projects

– Improved local & community HP/EOLC education

– Better data on volunteers and volunteering

– Improved communication and partnership

– Development of fact based recruitment and retention strategies


32

17

Why I Started Volunteering… Why I Volunteer…Chatham-Kent

My heart is with the elderly…my passion To give backTo learnTo help out; help others Saw a need or gap Help others face fears Get a lot out of volunteering; fulfilling Family upbringing…volunteering modeled by family

18

Chatham-KentWhat’s the Need? What are the Numbers?

Chatham-Kent County

Fairfield: 50 Volunteers; 9 Palliative Volunteers

VON: About 200 Volunteers of which 90 are Palliative and of those 90, about 50 are active

RVG: About 15 active Palliative volunteers

Copper Terrace: 10-15 Palliative Volunteers. People working at the facility often volunteer outside of working Hours and are a good source of volunteers


33

19

Chatham-Kent SWOT Analysis: Strengths

Strengths in General– Community volunteer minded– Training available for volunteers– Staff/management in organizations supportive of HPC– Historically, community model is one of pulling together to help– Geography is small; people know each other– A lot of faith based organizations– Similar/shared values– KAVCO (Kent Association of Volunteer Co-coordinators)

• Some 30 organizations represented • Runs Appreciation dinner & Volunteer Night

Strengths of HPC Volunteers– Trained HPC volunteers help by providing emotional support and

knowledge to ill person and family– Having HPC Volunteers means there is someone ill person can talk to

who is outside of family

20

Chatham-Kent SWOT Analysis: Weaknesses or Challenges

Satellite community resentm

for V

s voue

ent…a lot of services have been moved from the small communities to Chatham…this means that local people must now travel olunteer training, meetings and Volunteer opportunities++Aging Volunteers…a lunteers age they are ill or absent more often…Availability iss ++ Challenges with partnerships; communication and regulatory issues with volunteer impact++High expectations of Volunteer coordinators; multiple demands ontime of coordinators; always under the crunch around time, $$’s, now have to fundraise Loss of $$’s/economic impact due to weak economy; loss of jobs means young people moving awaySkill/knowledge gaps for co-coordinators around things like fundraisingNot good understanding of HPC role or life journey

++ Denotes most significant challenges for C ham- Kent County as rated by sessionattendees.

hat


34

21

Chatham-Kent SWOT Analysis: Weaknesses or Challenges cont’d

More complexity associated with volunteering today…more rules/regulations…more required training and documentation…more travel…all mean more time requiredHPC work can be drainingUndervaluing of volunteers and waste of volunteer time…’just’ a Volunteer Lack of data on volunteers e.g. age, background. Information sits in files. Not accessible system wide so hard to make projections Alot of volunteers massively engaged…volunteer a lot…risk of burnout…absenceFor coordinators, job sharing can be a challenge

22

Chatham-Kent SWOT Analysis: Opportunities

Benefit of HPC volunteering is visible. AS families experience the process of dying and the role/contribution for volunteers, they may become interested in volunteering some time later

There’s a pool of young people who must volunteer 40 hours of time. Could be involved in something like the Storytelling project

There’s a wide range of volunteering opportunities in HP care…not all bedside…

Need more funding for support/training of HP and EOLC volunteers (Care for the Caregiver)


35

23

Chatham-Kent SWOT Analysis: Threats

Feeling like volunteers being ‘overused’ ‘burning out’ with resulting impact on service and support available…Volunteers require more management in this context

Culture/mind set around ‘dying’ inhibits people from volunteering

Impact of the economic recession…more anxiety, loss of funding…few full time positions

Aging Baby Boomers…where’s the support going to come from?

Young people…are they more focused on self? The young are not typically focused on death and dying…Young seem to have a different work ethic and do more boundary setting

24

Potential 2009/2010 Hospice Palliative and End-of-Life Care Initiatives: Chatham-Kent

High School HP/EOLC Initiative– go to High School– present HP/EOLC volunteering from the student view using student

examples– partner/buddy volunteering model

Develop and Offer Small Community Intro to HP/EOLC Workshop– One day intro workshop (versus nights)– Locally offered and free!– Pull together content from a # of sources e.g. Fundamentals (does NOT

replace Fundamentals) and literature on self care/self awareness– Augment by focusing on role or organization specific content

Provide Consulting for Partnerships/ Mergers between Volunteer Groups– Help organizations with planning, integration and transition – Improve organization and volunteer satisfaction

Improve Intra Agency Client Communication– Focus on ensuring a system wide understanding of client needs and

responses through improved system wide communication (family, client, staff and volunteer communication)


36

25

Potential 2009/2010 Hospice Palliative and End-of-Life Care Initiatives: Chatham-Kent cont’d

Develop and Offer Community/Public Education– 2-3 hour session only; session delivered to churches/other groups; high level

intro to HP/EOLC; talk about range of volunteer roles in palliative work– Session for Doctors on HP/EOLC and volunteer role– Look at how we can take a systems approach to volunteering

Identify the Crunch! *Data project*– Goal: identify volunteer ‘workloads’ of individuals– Broader Objective: understand/project/predict supply and demand through better

understanding of system wide data. Build fact base to better understand the depth of the Volunteering challenge

– Look at United Way and data gathering work done by U/W

Develop Recruitment Strategy– Develop data driven, targeted recruitment by sector, by role and by organization

Develop Retention Strategy– Develop data driven picture

26

Parking Lot: Chatham-Kent

Look at Parish volunteers and hospital (palliative)

Look at questions around age group and aging volunteers. Will young people volunteer in the future? Where and why? Young people WILL volunteer in Victim Services because they get great training and can put this on their resumes. Is the reality of ‘no jobs’ a young person’s reality now?

The 40 hour volunteer requirement is helping but turnover is high and HPC volunteering may not be the best fit for all young people


37

27

Planning Workshop: Windsor-Essex

Identified 4 broad ‘areas’for potential projects

– Volunteer self care using data around recruitment and retention

– Training and education based on ‘stretch’ concept

– HP and EOLC awareness built around programs and services, stories, volunteer opportunities and connection to organizations

– Youth

28

Why I Started Volunteering… Why I Volunteer…Windsor-Essex

Retired 1…rewarding...connection to prior workProximity and time…Hospice is close Hospice supported my parents/family There’s a need Give back help others…service to others…Volunteered in Sports and I got something back…wanted to give backTo do what I am afraid to doSaw need and training availableSomeone asked Saw/witnessed parents volunteeringPassion


38

29

Windsor-EssexWhat’s the Need? What are the Numbers?

Windsor-Essex County

Likely 50 or so organizations in the County who use Volunteers e.g. Kidney, Heart, Cancer, Heart, Cultural organizations, etc. and everyone needs volunteers

Stats for Windsor Hospice ONLY

52 volunteer roles and 742 active volunteersVolunteers contribute 52,000 hours today versus 35,000 7 years ago965 clients in 2008; 1175 last yearWaiting time for admission? 1-3 daysVolunteer match? Able to match quickly. Low wait time comparedto other organizations. Don’t carry a list. May be 1-3 weeks for some types of Volunteer support

30

Windsor-Essex SWOT: Strengths

Training of volunteers; culture of training and continuing education (Ranked # 1 strength)Big hearted people in Windsor-Essex; generous and care for others (Ranked # 2 strength)Many services provided (Hospice reference) and our longstanding identity (Ranked # 3 strength)Diverse ethnic community; care for your ownEconomic downturn: resource of available people


39

31

Windsor-Essex SWOT: Weaknesses or Challenges

Lack of young people involvement (Tied for Ranking as # 1 challenge)Not understanding what Hospice does (Tied for Ranking as # 1)Education around the benefits of volunteering (Ranked # 2)Need to develop programs for young people (Ranked # 3)Good use of 40 hours of community timeIncrease in fuel costs-distance travellingNeed more role modelsNeed more CTY volunteersEngaging new volunteers (due to restrictions)Ethnic limitations (language/culture)

32

Windsor-Essex SWOT: Weaknesses or Challenges cont’d

Aging Volunteer base and fewer young peopleYoung people have less familiarity with death and dying; tend to be more globally focusedLoss of neighbourhood, family and community connectionCompeting with entertainmentEntitlementLack of awareness of services…people think we are only end-of-lifeEconomic downturn and loss of jobs/need for servicesDiverse ethnic community...people support their own community where there is similarity of culture, language and beliefs


40

33

Windsor-Essex SWOT: Opportunities

Churches (Ranked # 1) Schools (Ranked # 2)Retiree associations (Ranked # 3)Service agenciesPublic service announcementsFace to face (personal experience)Door to doorGalas and Fundraising eventsUnionsNewspaperTarget malesLook at different/new training models or combinations

34

Windsor-Essex SWOT: Threats

Burn out! (Ranked # 1) Aging population (Ranked # 2) Time commitments (Ranked # 3)Length of trainingSnowbird evacuationRecession/Loss of jobs- impact on funding and volunteersLack of fundsPolice clearancesFearAccountabilityGender roles


41

35

Potential 2009/2010 Hospice Palliative and End-of-Life Care Initiatives: Windsor-Essex

Volunteer Support Series of Events (SEED program partner?)– Health and Wellness Fair, Spa Day

Volunteer Self Care Workshop– Workshop for Volunteers, Volunteer Coordinators and Staff around “It’s

OK to Say No”Seasons of Volunteering– Workshop around ‘season’ of volunteering, how to have a change of

scenery, etc.Understanding, Recognizing and appreciating Death in Diverse Populations– A series of 2-4 workshops highlighting religious and cultural beliefs in

our communitiesLet’s Talk Illness and Death (could be paired with Open Up Your World By Volunteering)– Portable workshops on illness, grief, death and dying geared to students

Continuing Education and Retreats– Expansion on patient education topics e.g. self care, bereavement

36

Potential 2009/2010 Hospice Palliative and End-of-Life Care Initiatives: Windsor-Essex cont’d

Essex County Volunteer Outreach– Youthful Speakers Bureau

• Someone (a Speaker) who has relationships with teachers/principles to arrange speaking engagements to talk about volunteering/fundraising. Students to be involved in their own event

– Challenge of Youth• Development of a UTube presentation by an agency…County wide

competition?– Greening the Ground for the Future

• Grandparents working with Grandchildren and teaching/modeling volunteering

– Open Up Your World By Volunteering • Workshops in schools (senior elementary, high school, college, university on

the benefits of volunteering e.g. career, community services, helping others, building self esteem, etc.

– Youth Expo• Have agencies do ‘hands on’ demos. Get companies who have an interest in

youth to bring displays to cover cost of event e.g. Milk Council, Young Drivers of Canada, Much Music, Wonder Bread, etc.

– Website• Website with information on services/events for all agencies in County


42

37

Planning Workshop: Sarnia-Lambton

Proposed projects around– Cross Sectoral and

system wide work– Care for the care giver– Public education– Volunteer education

and training

38

Why I Started Volunteering… Why I Volunteer…Sarnia-Lambton

I love what I do; I enjoy it Able to give back Learn more about ourselvesPersonal satisfaction now that I am post retirement Volunteering modeled by parents so it is now what I do Just started volunteering and kept going Make new friendships and gather good memoriesDevelop skills; use skills; personal growth


43

39

Sarnia-LambtonWhat’s the Need? What are the Numbers?

Sarnia Hospice– About 300 Volunteers providing 6000 hours (?) of support/service. Will need 400

Volunteers once 10 bed unit in place– 50 clients per year

VON– About 150 Volunteers providing a variety of support e.g. visiting, caregiver relief,

palliative care, administration support– 30 clients (non children) and 15 on waiting list

Hospital– About 1190 Bluewater Health Volunteers of which about 20 are palliative

volunteers providing about 1000 hours of support for about 100 Palliative cases (check all #’s)

Lambton Elderly Outreach– About 200 Volunteers though not all HP/EOLC Volunteers– Support MOW’s, Friendly Visiting, Diners Club, Adult Day Programs

Twin Lakes Nursing Home– About 24 Volunteers providing 80-100 hours per month and supporting events,

outings, food programs, visiting. Student Volunteers as well. Sixty residents on the LTC side

40

Sarnia-Lambton SWOT: Strengths

Variety of Volunteer opportunities

Strong network between Volunteer organizations

Strong Volunteer/education programs


44

41

Sarnia-Lambton SWOT: Weaknesses or Challenges

Ensuring Volunteer seen as important part of the team Meeting community needs Lack system level view; who offers what, where, to whom (to clients) Lack of consistency in trainingLanguage/lack of clarity for VolunteerVolunteer availability due to time restrictions e.g. employed, snowbirds, etc. Client accepting Volunteer in his/her lifeRecruitmentLack of understanding Volunteer role Continuity of the different fields e.g. each Agency

42

Sarnia-Lambton SWOT: Opportunities

Cross-sectoral Volunteer poolMentoring programs for Volunteers County-wide Volunteer support groupExpert teamHarnessing business Provide more support to Volunteer CoordinatorsLearn from experience of Volunteers with community and hospital settings Community Partners provide Volunteer training togetherChance to develop skills you need in life; use skills you did not know you had Able to fill a niche that not everyone can doPersonal growth/learning opportunity Able to give backCan change your perspective, cause you to count your blessings


45

43

Sarnia-Lambton SWOT: Threats

Life pressures/stress of job No time Decreasing pool of retireesReduced employment due to layoff/recessionLack of understanding of HPC Support (peer or other) to VolunteerCaring for others...sandwich generationNot clear understanding of benefits to volunteeringAging and reduced % of population available/willing to volunteer

44

Potential 2009/2010 Hospice Palliative and End-of-Life Care Initiatives: Sarnia-Lambton

Project around improved network/supportLook at ‘system of care and transitions’ so the ‘same’ Volunteer can stay with the client as client moves across care settings e.g. from home to HospiceStrengthen education/training for Volunteers around how to care for ‘self’ manage ‘self’, care for the caregiverShared cross sectoral Volunteer training and orientation

Look at common Volunteer pool across sectors/programsLook at common recruitment

Strengthen community education around HP/EOLC VolunteeringShared and common education so that we all work from the ‘same book’around what palliative care means for the ill person, family, care team

Strengthen Public education around Volunteering and Volunteer supportProject around how to get connected, stay connected, be educated for the HP/EOLC Volunteer


46

45

Factors that Strengthen HP/EOLC Volunteer Commitment and Capability

Build Commitment through supporting empowerment, effectiveness and working to Volunteer’s comfort level

– Empowerment is around sense of control, being able to contribute, recognition that I am part of the team, I’m asked for input/ my opinion counts, I’m sometimes the ‘go to’ person

– Effectiveness supported by recognition or role by staff/patients/family, role clarity, clear understanding of scope of role, expectations, feeling of fit for role, sound education/training for role

– Comfort level enabled by consistency in role and staff, positivefeedback, good orientation, available resources/support, clear structure, Info sessions

46

Factors that Weaken HP/EOLC Volunteer Commitment and Capability

Feeling not part of team/not seen as part of teamLack of information; poor training/education in order to do roleUnclear role/role description Lack of communication between disciplinesNo real fulfillment or satisfaction from volunteer experience


47

47

Sarnia-Lambton Parking LotHP and EOLC Resources

Local HP/EOLC resources

Fundamentals training for VolunteersAHPCE and CAPCE trainingVON ‘In Services’ 4 times a year


48

unteer Planning Session Feedback Survey

Appendix B

Vol Perceptions of the Planning Event Overall, how would you rate this planning event?

Fair Good Very Good Excellent

Poor

How would you rate this

lanning event p in terms of: your

sponse) Poor Fair Good Very Good Excellent (please circlere Preparation Poor Fair Good Very Good Excellent Organization/ implementation Poor Fair Good Very Good Excellent Meeting its stated objectives Poor Fair Good Very Good Excellent Opportunities for meaningful participation Poor Fair Good Very Good Excellent How useful do you think your participation in this planning event was to the stated objectives (do you think your contribution helped to achieve the objectives of this event

Not at all Extremely useful

)?

1

useful

2 3 4 5

o you suppor es that were discussed today? D t the prioriti

1

Not at all 2 3

4

5 Completely

Please identify at least one thing that you really like about this planning event.


49

o you have any suggestions for improving any future planning events of this nature? D Tell us about yourself: Are you: male female In what year were you born: __________ How long have you been:

olunteering in Hospice Palliative Care? ________ years V Working in the Hospice Palliative Care? ________ years Have you had any special training or work experience that has prepared you as a volunteer in

No Yes, please describe:

Hospice Palliative Care?


50

raining Feedback Survey

Appendix C

Volunteer Education: Hands-On-Care T

Feedback on the Hands- On Care Training Session

verall, how would you rate the Hands-On-Care training session? O

Poor Fair Good Very Good Excellent How would you rate the following aspects of the training session (please circle your response): Pace of activity Too slow 1 2 About Right 3 4 Too fast 5

Amount of information Too little 1 2 About Right 3 4 Too much 5

Level of complexity Too simple 1 2 About Right 3 4 Too hard 5 Opportunities to participate

Too many 1 2 About Right 3 4 Too few 5

Please read each of the following statements and indicate the ex hich gree

isagree with each statement. ten o wt t y aou or

d

Strongly dis ee

1 Dis e

2 Neutral

3 A

4

StronglyA

5 agr agre gree gree

This training session met my expectations.

1 2 3 4 5

The information in the Instructor’s

ers 1 2 3 4 5 Manual will help me to train othabout Hands -On Care. The PowerPoint presentation 1 2 3 4 5 included in the manual will be useful to the training I will do. The DVD ‘Elements of Back

are’ included in the training 1 2 3 4 5 Cpackage will be useful to the training I will do. I will be able to adapt this training

rogram to meet the needs of my

1 2 3 4 5 porganization’s volunteer trainingprogram.


51

d something 1 2 3 4 5 I feel I have learnenew from this session. Fill in the blanks: The best part of this training session was ___________________________________________

__________. Because __________________________________________________________ To what ex t has this session prepared you to train others on Hands-On-Care?

ten

1 2 3 4 5

Extremely well

Not at all

Do you have any suggestions for improving this training session? Are there any resources (support from people, information, skills, time, materials) that you do not urrently have, that you think would be helpful to your ability to train others on Hands-On-Care?

No Yes, please describe:

c

Do you anticipate any challenges as you implement the Hands-On-Care training? Do you have

ny suggestions for overcoming these challenges? a Do you have any comments you would like to make about the Hands-On-Training session? Tell us about yourself:

Manager, Volunteer Community Services Program

Educator of Volunteers Volunteer Other, please specify:

Volunteer Coordinator


52

Volunteer Education: Share the Care Information Session Feedback

Survey

Appendix D

Perceptions of the Information Session Overall, how would you rate this formation sessionin ?

Good Very Good Excellent

Poor Fair

How satisfied were you with the following

ircle your response)

1 Not at all satisfied 2 3 4

5 Extr ely satisfied

aspects of this session in terms of: (pleasec

em

Supportive resources (tools, book, video) 1 2 3 4 5 Organization of the session 1 2 3 4 5 Meeting its stated objectives 1 2 3 4 5 Opportunities for meaningful participation 1 2 3 4 5 Please identify at least one thing that you really like about today’s session. Do you have any suggestions for improving this information session?


53

applicable

Strongly disagree Disagree Ne Ag e

Strongly agree

Please rate the following statements.

Not 1 2

utral3

re4 5

The information from this session n/a 1 2 3 4 5 will be helpful to the care that I am currently or will be providing. The resources/ tools provided in

is session will be helpful to the n/a 1 2 3 4 5 thcaregiving I am or will be providing. This session has increased my

ffective caregiver. 1 2 3 4 5 confidence in my ability to be an n/a

e Perceptions of the Share the Care Initiative How would you rate the potential of Share the Care in terms of: (please circle your response) Poor Fair Good

Very Good Excellent

Potential to increase knowledge and skills of informal caregivers. Poor Fair Good

Very Good Excellent

Potential to enhance the care and support provided

y informal caregivers, Poor Fair Good Good Excellent bVery

Potential to expand the volunteer recruiting pool. Poor Fair Good

Very Good Excellent

What goals, visions, or dreams do you have for volunteer training in this region? What do you think are some of the key gaps and needs related to recruiting, training, and retaining

formal volunteers? in


54

hat challenges do you anticipate as the Share the Care initiative is implemented? What uggestions or strategies do you have for overcoming these challenges?

Ws Do you have any additional comments to make about this planning event or the plans that were

iscussed today? d Tell us about yourself:

best describes your position/ discipline:

Social worker

e specify: ___________________________________________

sociation

Public Library

Other, please specify: ____________________________________________

Which of the following

Volunteer Volunteer coordinator

Case Manager Other, pleas

I learned about Share the Care through:

My church Neighbourhood As Service Club (St. Vincent de Paul, Rotary, Lions)

Hospice Windsor

How many years have you been involved with training volunteers? _______ not applicable How many years have you been working/ volunteering in palliative care? ________


55

n

he purpose of this interview is to gather in-depth information from the core group involved in

ent of the ESC Hospice Palliative

components:

• Hands- On Care - Train the Trainer session are Information Sessions

• Story Telling volunteer project

verall Initiative

Appendix E

Guide for the Focus Group Interview with Volunteer EducatioBlueprint Organizers

Tdeveloping and implementing the volunteer education componCare Education Blueprint. Just as a reminder, this initiative had four main

• Volunteer Planning Session

• Share the C

O

verall satisfaction:

verall, how satisfied were you with the way in which the volunteer initiative was rolled out?

hat do you think were some of the major accomplishments of this initiative?

evelopment and Implementation:

d the development and implementation of this initiative?

e be overcome in future endeavours?

would like comment on?

s are needed to make this initiative successful?

he components of this initiative at you would like to comment on?

hat are some of the key lessons learned from this initiative?

pact:

hat impact did the volunteer planning session

O O W D What factors facilitate Are there facilitating factors specific to any of the components of this initiative that you would like to comment on? What were some of the challenges experienced in developing and implementing this initiative and how can thes Were there any challenges specific to any of the components of this initiative that youto What additional supports or resource Are there any specific supports or resources needed for any of tth W Im W have on this initiative? On volunteers?

ou think that the Share the Care What impact do y initiative had on participants?


56

What impact do you think the Hands- On Care program will have on volunteers and the clienthey work with?

ts

verall, what impact do you think this initiative will have on the provision of hospice palliative in hat are some of the potential client-related impacts/ outcomes associated with

is initiative?

ext Steps:

o you have any additional comments that you would like to make about this volunteer ducation initiative or any of its specific components?

What impact do you think the Education Blueprint, overall, has had on volunteers’ ability to assist with the implementation of the Story Telling Project? Othis region? Wth N What are the key next steps for this initiative? De


57

Results of the Volunteer Planning Workshop Session Feedback Survey

=35

erceptions of the Planning Event

Appendix F

N P Overall, how would y rate this eveou planning nt?

Poor Fair Good Very Good Excellent 0 0 2.9% (1) 54.3% (19) 17.1% (6)

Note: Percentages do not sum to 100% due to missing responses.

ow would you rate this planning event H in terms of: (please circle your response)

Poor Fair Good Very Good Excellent

Preparation 0 0 20.0% (7) 51.4% (18) 22.9% (8) Organization/ implementation 0 0 14.3% (5) 57.1% (20) 22.9% (8) Meeting its stated objectives 0 0 17.1% (6) 45.7% (16) 25.7% (9) Opportunities for meaningful participation 0 0 5.7% (2) 48.6% (17) 40.0% (14) Note: Percentages do not sum to 100% due to missing responses. How useful do you think your participation in this planning event was to the stated objectives (do y ontribution helped to achieve the objectives of this event)? (5 point scale: 1 = not at all; 5 = extremely useful) (N = 31)

ou think your c

3.87 (.50) Average (+/-)

3 - 5 Range Do rt hat were discussed today? (5 point scale: 1 = not at all; 5 = comp ) (N =

you suppo the priorities tletely 33)

4.42 (.61) Average (+/-)

3 - 5 Range Please identify at least one thing that you really like about this planning event.

• Interaction • Group collaboration • Meeting others from similar stand points. • Group work • Cross- sector representation


58

• Group Involvement; The idea of pooling resources and training for volunteers • Opportunity to meet and work with other EOL Vol. Coordinators. • -Open discussion. -Group involvement • Good range of people in group • Everyone's participation • Positive, Potential Brainstorming and collection of ideas for Evaluation and process • Informality- Sharing ideas • Well organized, should have been better supported by local stakeholders • Seeing the needs of our community- hope. • Lots of opportunity for discussion • It was +++ goal oriented • Learned how much work needs to be done yet to get the "best" palliative support going

among younger people. • Allowing participation - input from our experiences and knowledge • The creative ideas of all who attended. Great brainstorming • Lots of participation from the group; good brainstorming • Project identification needs- particularly for Hospice • The sharing of ideas. Sometimes one is only involved in their own area. It is good to

• Opportunity to share information.

• Participation (sharing of ideas)

ature?

icate ne!!! Thanks for the planning latitude and receptivity.

• It was excellent!

Tell us about elf:

hear another's opinion. • The way it is open to all suggestions - you think share do and come to some concrete

possibilities. • Interaction and input from all.

• The input from all who participated.

Do you have any suggestions for improving any future planning events of this n

• To be honest, I think this was a worthwhile venture- I think there is room improvement. Such as; 1) Keeping focused and on topic. 2) State house keeping rules more emphatically. I'm not sure all the goals were met specifically.

• It's good to know who's in the room; more frequent short breaks • More information on how volunteers help in palliative care or techniques they could use

to commun• It was very well do

yours

Are you: 14.4% (5) Male 71.4% (25) Female

N t s o missing responses.

ge (N = 28): 50.9 (15.6) years Average (+/-)

ote: Percentages do no um to 100% due t

A

22 – 72 Range


59

H o

olunteering in Hospice Palliative Care? (N = 17)

ow long have y u been:

V8.4 (8.7) years Average (+/-) years .5 – 30 Range

orking in Hospice Palliative Care? (N = 13) W

7.7 (8.3) years Average (+/-) years 1 – 30 Range

H d cial training or work experience that has prepared you as a volunteer in Hospice Palliative Care? 28.6% (10)

ave you ha any spe

No 48.6% (17)

r. rogram

wellness.

• 12 week (volunteer training course/ Hospice); Bedsitting (bedside manners); AIDS

Yes, please describe: • Fundamentals of Hospice Palliative Care Facilitator Training, Alzheimer

Workshop • Palliative Care- Level 1 • I did a 1 year coop with Lambton EMS. • Fundamentals; taking the advanced • Nursing background • I have been involved in Salvation Army Community Care Ministry for 20

years. • Pastoring churches, Senior citizen's Ministry • Courses ++ • Palliative 1, 2 and Fundamentals, several workshops throughout career • Palliative level 1&2 • Pastoral care training and all that was offered through VON- Hospital. etc.

(can't remember them all) • 36 hours training (hospice); Fundamentals of Palliative Care; Volunteer

Management; etc. • 1 year nursing training; medical receptionist and hospital medical records

transcriptionist • Special events organizer • Hospice Volunteer Training Program; Volunteer Coordinator for a time in

area of orientation and Training; Life experience as caregiver for mothe• Volunteer Management Certification; Hospice Palliative Training P

for Volunteers. • Beginners and advanced meditation techniques, relaxation, self care,

self-message, aromatherapy, visualization. Continued studies in complementary care/

• Nursing

Note: Percentages do not sum to 100% due to missing responses.


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Results of the Hands On Care Training Session Feedback Survey

= 8 Overall, how would y u rate the Hands-On-Care training session?

Excellent

Appendix G

N

o

Poor Fair Good Very Good

(4) 0 0 0 37.5% (3) 50.0%Note: Percentages do not sum to 100% due to missing responses. Overall, how would you rate the following aspects of this session?

About right

1 2 3 4 5 Pace of activity:

Too slow Too fast

0 0 75.0% (6) 25.0% (2) 0 Volume of material:

Too little Too much

0 0 62.5% (5) 37.5% (3) 0 Complexity of material:

Too basic Too complex

0 0 75.0% (6) 25.0% (2) 0 Too few Opportunities

Too many

to participate 0 0 50.0% (4) 37.5% (3) 12.5% (1) Note: Percentages may not add to 100% due to missing responses.

Please read each of the following s and indicate the xtent to which yoor disagree with each statement.

Strongly disagree

1 Disagree

2

3

Strongl

tatements e u agree

Neutral Agree

4

y Agree

5 This training session met my expectations.

0 0 12.5 (1) % 25.0% (2)

62.5% (5)

The information in the Instructor’s 0 0 0 50.0% 50.0% Manual will help me to train others about Hands -On Care.

(4) (4)

The PowerPoint presentation included in the manual will be useful to the training I will do.

0 0 0 25.0% (1)

75.0% (6)


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Strongly disagree

Strongly

1 Disagree

2 Neutral

3 Agree

4 Agree

5 The DVD ‘Elements of Back

are’ included in the training 0 0 0 25.0% (1)

75.0% (6) C

package will be useful to the training I will do. I will be able to adapt this training

rogram to meet the needs of my

0 0 0 25.0% 75.0% porganization’s volunteer trainingprogram.

(1) (6)

I feel I have learned something 0 0 12.5% (1) 37.5%

50.0%

(4) new from this session. (3)

Fill in the blanks: The best part of this training session was.... because.....

• the food, lunch, coffee (Timmies) because I felt pampered, cared for! :) treated!! • for me, meditation! • learning the basics for training because useful for volunteers perspective. • experience shared by those who have been there because they know. • the training of volunteers because it helped to know source of information.

• learning about all the equipment because I had never seen some of it before.

T t ext you to train others on Hands-On-Care?

4.3 (.76) Average (+/-)

• learning new things i.e., bed making with a person in it.

o wha ent has this session prepared

3 - 5 Range Do you have any suggestions for improving this training session?

• defined breaks • It was very good! • I think they have touched all parts of training. • More hands on opportunities

• More hands on touching of equipment. • Discuss emotional needs of volunteers, residents, family members; discuss cultural/

spiritual possibilities; what dying looks like - family privacy


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A y urces (support from people, information, skills, time, materials) that y cu think would be helpful to your ability to train others on Hands- On Care? 37.5% (3)

re there an resoou do not rrently have, that you

No 37.5% (3)

ess to other community Yes, please describe:

• equipment, space to host training program, accprofessionals

• occupational therapy, respiratory therapy offer training • More information on the nurses and PSW roles.

Note: Percentages may not add to 100% due to missing responses.

• Yes, getting all new volunteers through training and prepared for their role in new Sarnia

l I will be able to accept the challenge.

• Yes, as I am not a nurse I know I can ask someone.

knowledgeable presenters.

• Give refresher workshops - give updates and reminders; who the volunteer can speak to c ser is good to have.

T t

s Program

Do you anticipate any challenges as you implement the Hands- On Care training? Do you have any suggestions for overcoming these challenges?

• Getting volunteers on board, change, implementing it in the community. • Getting all of the volunteers trained in timely manner

Hospice. • I fee

Do you have any comments you would like to make about the Hands- On Training session?

• Excellent! • I think it was the best it could be. • Excellent presenters and very good manual and information. Well done - very

• Great Job.

if con erns, questions arise; Follow-up care, debriefing, clo

ell us abou yourself:

25.0% (2) Manager, Volunteer Community Service

37.5% (3) Volunteer Coordinator 25.0% (2) Volunteer 12.5% (1) Other, please specify: Nurse Educator


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Appendix H

re Information Session Feedback Survey

Perceptions of the In tion Sess

Results of the Share the Ca

N

= 36

forma ion

nOverall, how would you rate this information sessio ?

N g response H

Poor Fair Good Very Good Excellent 0 0 8.3% (3) 50.0 11.1% (18) % (4)

ote: Percentages do not sum to 100% due to missin s.

ow satisfied were you with the following aspects of this session i s of:

Range

n term

Avg (+/-) Supportive resources (tools, book, video) 4.08 (.81) 2 – 5 Organization of the session 4.14 (.76) 3 – 5 Meeting its stated objectives 4.14 (.68) 3 – 5 Opportunities for meaningful participation 4.11 (.89) 1 – 5

Please identify at least one thing that you really like about today’s session.

• Video detailing how the program works for different situations

• Very informative and easy to use

• Giving ideas how to set up groups • The tools • Videos were very informative • Bringing this to use (our family) we can use this kind of information at this time. Good

timing • It opened your eyes to the possibility of caring for a seriously ill person at home with their

help and input for their needs. • The material - I am anxious to use it for a personal family situation

• Using all that are willing to help in an organized group • I really like the idea of share the care to help out someone who is facing death to deal

with everyday challenges as well as emotions.

• The video really sealed the session, bringing it all together • I believe that the video really sold the idea of "share the care" Seeing people in special

situations and wanting and needing to continue on with their lives made the idea more real and worthwhile. No matter what health situation we're in "anxiety of life" during your life and in dying is very important.

• Getting together and making a difference • That there is help out there when needed • Presented very well and in terms we could understand and appreciate • The Book- "Share And Care"


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was so

• I loved the idea of the introduction of the good old fashioned way of supporting and . A community

support in a very busy society.

alk to us more, more workshops • o! • mall group discussion groups would be nice

• No it was great. Short and to the point. • More time to look at the chapters

ents

Not Applicable

Strongly disagree

1 Disagree

2 Neutral

3 Agree

4

Strongly agree

5

• The book will be very helpful in setting up a group for my sister. • Was very impressed with presentation overall and to know of the new program it

inspired and have comfort in knowing so many care. • Informal way- but got the job done. • Videos • Learning about the book • The clarity of the presentation; The opportunity to ask questions and have great

feedback; The video • Presentation fitted audience well

taking care of your patient whether it be a family or friend or neighbor

• Free to participate, Websites made available, I got the book! • Camaraderie of helpers - a large family atmosphere

Do you have any suggestions for improving this information session?

• Have more • Local associations (the blue book) which is a local book that has resources for our local

crew. • More books available • I found this information session very helpful and informative • Just keep doing info sessions • Have books available for purchase • Keep on holding these information session; try to find out what the needs of group are

and concentrate and elaborate on their needs. • No- Very well done by staff • Would love to see more information for those who don't have computers, would love to

have church organized party groups sent personal invitations to attend each of the meetings. I've so enjoyed this meeting.

• Have more books on hand • Bringing in the author of the book, to t

NS

• Larger room

Please rate the following statem

.

The information from this session will be helpful to the care tam current

hat I ly or will be providing.

2.8% (1)

2.8% (1) 0 2.8%

(1) 55.6% (20)

30.6% (11)


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Not

Applicable

Strongly disagree

1 Disagree

2 Neutral

3 Agree

4

Strongly agree

5 The resources/ tools provided inthis session will be helpful to the caregiving I am or w

ill be

2.8% (1)

11.1%

providing.

0 0 (4) 47.2% (17)

30.6% (11)

This session has increased my 2.8% confidence in my ability to be an (1) 0 0 8.3%

(3) 63.9% (23)

22.2% (8)

effective caregiver. Note: Percentages do not sum to 100% due to missing responses. Perceptions of the Share the Care Initiative How would you rate the potential of Share the Care in terms of: (please o ns

Poor Fair Very

E t

circle y ur respo e)

Good Good xcellen

Potential to increase knowledge and skills of informal caregivers. 0 0

22.2% (8)

38.9% (14)

30.6% (33)

Potential to enhance the care and support provided 16.7% 41.7% 33.3%

(12) by informal caregivers, 0 0 (6) (15) 13.9% 47.2% 27.8% Potential to expand the volunteer recruiting pool. 0 0 (5) (17) (10)

What goals, visions, or dreams do you have for volunteer training in this region?

• Training offered to all service providers (hospitals, LTC, Home care)

any people as I can help. Love to have this concept in our church

• Some day I'd love to be more involved in the community outside my work as a PSW

• More knowledge and ideas to share • More volunteers • Coordinating church groups for care for its members • To share some of the ideas I have learned with people I feel could use the help of a

share the care group • More advertising, canvassing, make people aware of need • Someone to go to various churches, community groups and get the word out there.

Donate one book to the local library. • I believe that this is a very good tool and that many people would be very willing to be

trained to use this information. • My goal is to be there for as m•• Open communication, training workshops, Books. • Seminar

• Want to get it started


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on the team • Need more trainings

nteers no

matter how small the offer may be.

o

ls will be in the home; group should not interfere with health care already being provided by professionals; keep lines of communication open

What do you think are some of the key gaps and needs related to recruiting, training, and retaining informal volunteers?

• Information needs to be provided to partners that may initially set up care (CCAC, LHINS, Hospital, Discharge planners)

• Getting the information to the people who need it. • No right answers. Some are afraid to help they feel they aren't cut out for volunteering • More education • Not enough people interested • Distance from each other; good communication • Miscommunication, communication • Some people don't know what "they" could do to help someone who is seriously ill. • Advertising • Getting the word out... • I. You need people who find this information useful. 2. You need people who can

implement this knowledge into their lives. • Getting the word out • Letting everyone know they can be a help

• Bring in the author to talk about the book. • It needs to be informative and flexible. It needs to accept any form of volu

• information sessions- see it in action What challenges do you anticipate as the Share the Care initiative is implemented? What suggestions or strategies do you have for overcoming these challenges?

• Challenge - ensuring people are aware of the tool - getting the word out. Strategies - ++ Education to anyone who may be providing care

• Forming a group once formed less challenging in the sense share the care. • Getting people together • Getting everyone together and thinking along the same lines. • Getting patient to agree; try to get family members to accept group • Organization • Someone initiating a group (getting started). More information meetings like this one. • People deciding on roles, have to make clear what they are capable and willing to d• Possibly getting enough people to volunteer when someone you know has few friends

and family. I can see church groups possibly stepping up to help. • It might be difficult to get people to work together. • Getting enough volunteers; helping without intruding • Family conflict- strong personalities who think they each know what is best for the

person. • Family; lots of discussion • Working along health care professionals; ensure the team is aware of what times the

health care professiona

• Working with different dynamics in coordination with family • The newness of getting it started. People initially wary??


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es cancer (doing well at the time) but we know what the outcome will be - I will definitely attempt "share the care" when that time comes.

• I believe that share the care is needed to provide not only extra support to the family and

• Can we see it in action?

Tell us about W e ng best describes your position/ discipline?

.3% (12)

Do you have any additional comments to make about this planning event or the plans that were discussed today?

• Good to inform and would be good to have more knowledge provided • Interested in exploring different options other than nursing home • I think a lot of people would benefit from a share the care group at some point in their

lives. • Great model, will be very helpful for families, caregivers and volunteers. • Love to have the author - we would love to hear and meet her. • I have a family member who liv

• No!

the patient, but will help fill the cracks in our health care services.

yourself:

hich of th followi

33 Volunteer 2.8% (1) Volunteer coordinator 11.1% (4) RN/ RPN 22.2% (8) PSW 0 Social worker 0 Case Manager 22.2% (8)

nd Frontline nurse

• Worker at community service provider agency

• Family member of an ill person ent – PSW

Other, please specify: • A mom - a senior• Home care Manage a

• Health care provider

• Stud• Pastoral Nursing

I learned about Share the Care through: 5.6% (2) My church 0 Neighbourhood Association 2.8% (1) Service Club (St. Vincent de Paul, Rotary, Lions) 0 Public Library Hospice Windsor 47.2% (17) Work place 27.8% (10)

Other, please specify: • Sister who works for a service provider agency • A family member involved in palliative care • VON newsletter (2) • Information night


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• Daughter sent e-mail • LTC home

representative osephs Hospice.

• Provider agency info session

• Community Support Service Provider agency

• Sarnia St. J

ow many years have you been involved with training volunteers?

66.7% (24) Not applicable

H

5.4 (4.4) Average (+/-) (N = 5) 1 – 12 years Range

How many years have you been working/ volunteering in palliative care? 6.6 (5.5) Average (+/-) ( N=16) 1 – 18 years Range

Erie St. Clair End-of-Life Care Network Hospice Palliative ... HPC Volunteer Education...

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