Enhancing research through public involvement: A workshop for researchers Welcome from Bec, Derek...
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Transcript of Enhancing research through public involvement: A workshop for researchers Welcome from Bec, Derek...
Enhancing research through public involvement:A workshop for researchers
Welcome from
Bec, Derek and Sarah
www.becandderek.co.uk
Bec and Derek a collaboration
Bec and Derek
Bec HanleyResearch adviser
Derek StewartPatient advocate
“There is no either / or between being
competitive and collaborative.
You have to be both and decide which in each
situation.”
Cathie Black, Former Chairman and President, Hearst Magazines
Housekeeping
• What to do if the fire alarm goes off• Toilets• Mobile phones – please turn them
off • Any questions?
Bec and Derek
Aim for today
Our aim:• To think with you about how involvement can
improve research ideas, design, delivery and dissemination/application.
• What do you want from this session?
Bec and Derek
Terms we will usePARTICIPATION
Access to and taking part in a
research study
UK Clinical Trials Gatewaywww.ukctg.nihr.ac.uk
INVOLVEMENT
Actively assisting with the research process
Involvewww.invo.org.uk
Meeting and talking about research
National Centre for Public Engagementwww.publicengagement.ac.uk
ENGAGEMENT
Bec and Derek
Involvement• People who use services are active partners in
research rather than the ‘subjects’ of research.
• It is about doing research with or by patients and the public, not doing research to patients and the public.
This is NOT the same as participation (e.g. taking part in a clinical trial)
Bec and Derek
Some labels…
Bec and Derek
Many different words are used to describe people who get involved…
• Patients• Public• Service users•Carers• Lay people• Consumers• Research partners
How can involvement improve research?
• Ideas stage• Design stage• Delivery stage• Dissemination stage
Think about…
• How might involving patients/the public help?• Who specifically could help you?• How might you go about finding them?
Thank you for attending
• Contact…[email protected]
Who were they? What were their names, again?
@ppisqueek @bechanley1