Research Making a Difference

www.canchild.ca

Families and Researchers Making Connections:

How can we help?

Jenn Sprung - @mindthecompany

Olaf Kraus de Camargo - @DevPeds

Evidence-based Practice

http://www.cochrane.org/about-us/evidence-based-health-care

How can we help?

Chambers, S. (2000). Four tested and proven methods of

drowning in help. Mouth Magazine, Vol. X, 6, p. 24

https://www.patdeegan.com/pat-deegan/lectures/silence

“Help isn’t help if it’s not helpful” “Help that is not helpful can actually do harm”

“Being helpful requires professionals ask us what we need and listen.”

“Help becomes something that is co-created between the

disabled person and the professional”

Research Cycle

http://www.pencru.org/research/whatdowemeanbyresearch/

If you don’t listen to the questions, your suggestions won’t make sense!

Chambers, S. (2000). Four tested and proven methods of

drowning in help. Mouth Magazine, Vol. X, 6, p. 24

https://www.patdeegan.com/pat-deegan/lectures/silence

1.) What are your questions?

2.)How would you like to participate?

http://www.sheldoncomics.com/archive/100806.html

Take-Home Message