ECLN

ENGAGING COMMUNITIES LEARNING NETWORK

Choice, Risk and Accountability Event 15th January 2004 Bristol Marriott Royal Hotel

Using “Expert” patients

Telling the truth

Equity

Patient expectations

How patients can help us

Chronic Disease

Trust

Political reality

Respect

Affordability of real choice

ECLN

ENGAGING COMMUNITIES LEARNING NETWORK

Choice, Risk and Accountability Event 15th January 2004 Bristol Marriott Royal Hotel

Strengthen role of patient and carer

Left over paternalism

Patient/public responsibility

Main stream involvement to front line staff

Worried where PCTs aren’t finding their place in “the game”

ECLN

ENGAGING COMMUNITIES LEARNING NETWORK

Choice, Risk and Accountability Event 15th January 2004 Bristol Marriott Royal Hotel

* Identification of expert patients is the wrong way to

raise awareness – Patients need to identify themselves in many ways• Target people• Way idea promoted• Self management main stream• No public motivation• Re-target health promotion £s

* PCTs really understanding what commissioning is

about

Forget Me Not

NSF

ECLN

ENGAGING COMMUNITIES LEARNING NETWORK

Choice, Risk and Accountability Event 15th January 2004 Bristol Marriott Royal Hotel

Re-educate the “worried well”

Expert Patient needs to be generic

How about (Patients) people with long term “Problems”

Stop using phrase “Patients with chronic disease” please

ECLN

ENGAGING COMMUNITIES LEARNING NETWORK

Choice, Risk and Accountability Event 15th January 2004 Bristol Marriott Royal Hotel

Link in to new and existing networks

Drop-in centres

Ages in education

Talk to educators

“TV campaign” – central government push

Government (JANUS)

PCTs to share “invention” - or