Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

Indiana Action Learning Collaborative

Children’s Special Health Care Services

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

Partners• Title V, Children’s Special Health Care Services• About Special Kids (ASK)• Family Voices Indiana• Early Childhood Comprehensive System: Sunny Start• American Academy of Pediatrics (AAP), IN Chapter• Indiana LEND Program• IN Commission on Hispanic and Latino Affairs• IN Latino Institute• Latino Coalition Against Domestic and Sexual Violence, Inc.• La Plaza Inc.• Autism Society of Indiana• Eskenazi Health (Wishard) Patient Navigation

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

Densely Populated CountiesMarion = 84,466

Lake = 82,663

Elkhart = 27,886

Allen = 23,093

St. Joseph = 19,395

Porter = 13,933

Tippecanoe = 12,947

Hamilton = 9,426

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

Priority 5: Services Are Easy to Use

35.6%

US Census Data¨ The U.S. population will be considerably older and more

racially and ethnically diverse by 2060

¨ The U.S. population is projected to grow much more slowly over the next several decade

¨ Baby boomers, defined as persons born between 1946 and 1964, number 76.4 million in 2012 and account for about one-quarter of the population

¨ The non-Hispanic white population is projected to peak in 2024, at 199.6 million, up from 197.8 million in 2012. Unlike other race or ethnic groups, however, its population is projected to slowly decrease, falling by nearly 20.6 million from 2024 to 2060. Source: 2012 U.S. Census Bureau

¨ Meanwhile, the Hispanic population would more than double, from 53.3 million in 2012 to 128.8 million in 2060. Consequently, by the end of the period, nearly one in three U.S. residents would be Hispanic, up from about one in six today

¨ The U.S. is projected to become a majority-minority nation for the first time in 2043. While the non-Hispanic white population will remain the largest single group, no group will make up a majority.

¨ Source: 2012 U.S. Census Bureau

¨ There are 381 languages spoken at home in the United States. Behind English, the most common languages are Spanish, French, Chinese, German, Tagalog, Vietnamese, Italian, Korean and Russian. (Source: Census 2000)

DID YOU KNOW?...

Language Use in the US: 2007April 2010 – Shin and Kominski – American Community Survey Reports

¨ Over 55 million (20% of population) individuals spoke a language other than English at home in 2007, an increase of 140 percent from 1980.

¨ The number of Spanish speakers rose by more than 23.4 million between 1980 and 2007, a 211 percent increase.

¨ 62% of those speaking a language other than English at home spoke Spanish.

¨ Twenty-one percent of children age 5 to 17 spoke a language other than English at home.

DID YOU KNOW?...

¨ The MSD of Pike Township represents a district rich in racial, cultural, ethnic and socio-economic diversity. Pike schools are multi-ethnic with a 60 percent population of students of color. The district has more than 850 international students who represent 64 countries and speak 68 languages. 

Current and Future Trends

¨ Our institutions must educate a larger and more diverse student population

¨ Shifts in economy make postsecondary education necessary for competing in labor market and making a living wage

¨ The increase in demand on educational institutions came at a time of declining public budgetary support

¨ These trends are not recent, nor cyclical. They have been developing since 1970 - are due to changing immigration policy and world-wide competition

In Education Policy:

Current and Future Trends

¨ Mental Health Services in hospitals and some CMHC’s have closed due to financial bankruptcy, however the need for services are high

¨ Those who have chronic mental health issues and those with dual diagnoses have few community resources for coordinated, comprehensive services

In Mental Health Policy - since 2000:

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

Indiana’s Overarching Goals• Create a strategic plan for ease of use of

services for Latino families who have CYSHCN• Develop an implementation schedule for the

developed strategic plan

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

Short & Long Term Outcomes• Increased coordination of resources that are family-centered

and linguistically and culturally competent• Expand stakeholder awareness and access to necessary

informational resources• Support public and private partnerships and create a cross

agency infrastructure for training and technical assistance• Sustainability of efforts

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

Making Services Easier to Use For Hispanic/Latino Families

• If you are a Hispanic/Latino parent or caregiver of a child with a special health care need(s)/chronic condition/disability, we would greatly appreciate you taking the time to respond to this brief, anonymous 10 question survey. Your responses will help us better assess what barriers you face in receiving the resource and services you and your child may need. The survey is available in both English and Spanish.

• English: http://www.surveymonkey.com/s/CNZTKWM • En español: http://www.surveymonkey.com/s/JY8X9DK• Indiana was 1 of 4 states to receive a grant to create an Action Learning Collaborative (ALC) around Ease of

Use of Services for Latino Families Who Have Children and Youth with Special Health Care Needs (CYSHCN). Data from the National Survey of Children with Special Health Care Needs (2009-10) indicates that Latino families who have CYSHCN are less likely than their non-Latino counterparts to find services easy to use and often have unmet health care needs. This grant is funded through the Association of Maternal and Child Health Programs (AMCHP) and the National Center for Ease of Use of Community-Based Services.

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

Survey Says….• Total respondents: n = 90

– 83 had children, 18 of these had a child with a disability/chronic illness/special need

• Looking at the 18 who have a child with a disability/chronic illness/special

(check all that apply questions):– The majority stated that they ask their clinic (n=10) or doctor (n=14) for

information when their child needs medical help– When asked where they usually find information their child, the majority said

they find information at the doctor’s office (n=9) and child’s school (n=4)

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

– When asked what stands in the way when they try to get help:• n=6 stated they do not know about the available programs• n=4 stated they do not understand the programs• n=4 stated they do not know where to go sign up• n=2 stated they do not have materials in their language• n=1 stated there is no one there that speaks their language• n=2 stated they were concerned about the citizenship requirements• n=1 stated they do not know if they can trust them• n=3 stated they do not have reliable transportation

– Programs most used:• Wishard (n=6)• WIC (n=11)• Food Stamps (n=7)

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

What We Are Learning• This issue is VERY complex! No simple solution.• Major barriers:– Lack of qualified and competent interpreters– Lack of cultural competency in agencies– Gaining access into the community

Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative

We need You!!• We invite your participation, ideas, wisdom

and energy to develop a strategic plan for Indiana to improve the ease of use of services for Latino Families.