e the te! Thank You!€¦ · your questions. Macht Auditorium Cambridge Hospital, 1493 Cambridge...
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NEWSLETTER NATIONAL ALLIANCE ON MENTAL ILLNESS OF MASSACHUSETTS, INC. z CAMBRIDGE-MIDDLESEX AFFILIATE FALL 2017 www.nami-cambridgemiddlesex.org EDUCATION l SUPPORT l ADVOCACY Save the date! t t Tuesday, November 14, 2017 6:30-8:30 EDUCATION PROGRAM Fighting for a Future Courtney Joly-Lowdermilk will join us to discuss Boston University’s Center for Psychiatric Rehabilitation College Mental Health Programs—NITEO, an intensive one-semester program to help students who have left college because of their mental health problems to return success- fully, College Coaching, and LEAD BU, a 14-week college mental health course which focuses on developing well being and academic and interpersonal skills. Program graduates will also be available to talk about their experiences and answer your questions. Macht Auditorium Cambridge Hospital, 1493 Cambridge St., Cambridge (Vouchers available for garage parking) Tuesday, December 5, 2017 6:30-8:30 pm EDUCATION PROGRAM Wills and Trusts Assuring Your Loved One’s Future Ken Shulman, JD of Day Pitney LLP Pamela Tames, JD, executive director of PLAN of Massachusetts and Rhode Island Macht Auditorium, Cambridge Hospital 1493 Cambridge St., Cambridge (Vouchers available for garage parking) For more information go to 617-984-0527 or www.nami-cambridgemiddlesex.org T hank You! T hank You! Hundreds of sponsors, donors, bidders, and friends raised their hands for NAMI-CM’s Social Inclusion Fund at our 6th Annual Auction. It was a beautiful day as old and new friends mingled at the rambling Brattle Street home of Debbie and Paul Walker, munched on exquisite cuisine, and made their way through 64 silent auction items before assembling on the lawn to try to snatch Red Sox or Celtics tickets, trips to Paris or Plum Island, or tennis on grass at Longwood in the live auction. Special Thanks to our Sponsors Cambridge Health Alliance Riverside Community Care Vinfen Autodesk Cambridge Trust Company Mary Cassesso Eric and Cathy Haines Bill Lahey Dr. Deborah Levy Tom and Jane Martin Mary Pat Prado Steve Rosenfeld and Margot Botsford Ellen Semenoff John Sharp Carolyn White Special thanks for our gracious hosts Debbie and Paul Walker, auctioneer Lee Joseph of Easy Chairs, and Deborah Becker of WBUR. See you next year! 2017 6TH ANNUAL AUCTION! Call NAMI Mass COMPASS for help navigating the mental health system in Massachusetts. You’ll talk with a real, trained person. 617-704-NAMI (6264) 9 am–5 pm • Mon-Fri
Transcript of e the te! Thank You!€¦ · your questions. Macht Auditorium Cambridge Hospital, 1493 Cambridge...
newsletternational alliance on mental illness of massachusetts, inc. z cambridge-middlesex affiliate
fall 2017
www.nami-cambridgemiddlesex.org
e d u c at i o n l s u p p o r t l a dvo c ac y
Save the
date!t
t
Tuesday, November 14, 2017 6:30-8:30
EDUCATION PROGRAMFighting for a FutureCourtney Joly-Lowdermilk will join us to discuss Boston University’s Center for Psychiatric Rehabilitation College Mental Health Programs—NITEO, an intensive one-semester program to help students who have left college because of their mental health problems to return success-fully, College Coaching, and LEAD BU, a 14-week college mental health course which focuses on developing well being and academic and interpersonal skills. Program graduates will also be available to talk about their experiences and answer your questions.Macht Auditorium Cambridge Hospital, 1493 Cambridge St., Cambridge (Vouchers available for garage parking)
Tuesday, December 5, 2017 6:30-8:30 pm
EDUCATION PROGRAMWills and Trusts Assuring Your Loved One’s FutureKen Shulman, JD of Day Pitney LLP Pamela Tames, JD, executive director of PLAN of Massachusetts and Rhode Island
Macht Auditorium, Cambridge Hospital 1493 Cambridge St., Cambridge (Vouchers available for garage parking)
For more information go to 617-984-0527 or www.nami-cambridgemiddlesex.org
thanKs to our 250+ sponsors, donors, bidders, attendees, and all of you who helped make our 6th annual auction event a smashing success. special thanks to our hosts debbie and Paul Walker, auctioneer lee Joseph of easy chairs, and deborah becker of Wbur.
T hank You!T hank You!hundreds of sponsors, donors, bidders, and friends
raised their hands for nami-cm’s social inclusion fund at our 6th annual auction.
it was a beautiful day as old and new friends mingled at the rambling brattle street home of debbie and Paul Walker, munched on exquisite cuisine, and made their
way through 64 silent auction items before assembling on the lawn to try to snatch red sox or celtics tickets,
trips to Paris or Plum island, or tennis on grass at longwood in the live auction.
special thanks to our sponsors
cambridge health alliance
riverside community care
Vinfen
autodesk
cambridge trust company
mary cassesso
eric and cathy haines
bill lahey
dr. deborah levy
tom and Jane martin
mary Pat Prado
steve rosenfeld and
margot botsford
ellen semenoff
John sharp
carolyn White
special thanks for our gracious hosts debbie and Paul Walker, auctioneer lee Joseph of easy chairs, and deborah becker of
Wbur. see you next year!
2017 6Th
ANNUAL AUCTION!
Call NAMI Mass COMPASS for help navigating the mental health
system in massachusetts. You’ll talk
with a real, trained person.
617-704-nami (6264)
9 am–5 pm • mon-fri
2 www.nami-cambridgemiddlesex.org sUMMER 2017
r e s o u r c e s
this newsletter is published quarterly by the national alliance on mental illness of massachusetts, inc./cambridge-middlesex affiliate for its members and others interested in our education, support, and advocacy work on behalf of the mentally ill. You can find back issues at www.nami-cambridgemiddlesex.org.
Education and Supportt
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t
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Family Support Groups (FSG)For family members and friends of people with mental illnessFirst, third, and fourth Mondays, 7:30-9:30 pmCambridge Hospital, 3rd Floor Learning Center1493 Cambridge Street, Cambridge. Free and confidential See www.nami-cambridgemiddlesex.org for more information.
Family-to-Family Education Program (F2F)For family members and friends of people with mental illnessTwelve-week comprehensive education program offered in fall and spring.Advance Registration is required. Contact Carolyn at [email protected] with your phone number and best time to call. Free and confidential
Area Family Support Groupsacton Contact Susan McDougall at [email protected] or 978-263-8830; Clare Cooper at [email protected] or cell 978-692-8994.BEdford Call the NAMI of Central Middlesex affiliate helpline 781-982-3318.dorchEStEr Contact Monica, 857-342-2796 or [email protected]; Mark, 617-522-7439 or [email protected] Call Trish Woods at 978-897-2962.wakEfiEld Contact Kay at 781-438-1851, or Diane at 978-658-3567 or email: [email protected] for thE Soul-camBridgE Info: [email protected].
For PeersfrEE pEEr-to-pEEr claSSES Cambridge Hospital Contact Judi Maguire at [email protected] for schedule and registration.
nami connEctionS Support group for peers/consumers Wednesdays and Fridays 10:30-Noon Cambridge/Somerville RLC, 35 Medford St., Ste. 111, First Floor, Somerville Contact Janel at 617-863-5388 or [email protected]
NAMI Cambridge-Middlesex. . . . . . . . 617-984-0527Recorded information about education meetings, family support groups, and membership. You can leave a message.
NAMI Mass COMPASS for help navigating the mental health system in Massachusetts:9 am-5 pm, Mon-Fri. . . . . .617-704-NAMI (6264)
NAMI MASS Office (9am-5pm, M-F) . . . . . . . . . . . . . . . . . 617-580-8541 The Schrafft’s Center, 529 Main St., Ste. 1M17 Boston, MA 02129
Psychiatric Emergencies Call 911 for immediate medical help.
Cambridge hospital . . . . . . . . . . . . . . . . . .617-665-1560 The Psychiatric Emergency Service (PES) of the Cambridge Health Alliance (CHA) is located in the Emergency Department at Cambridge Hospital, 1493 Cambridge St., Cambridge. Psychiatrists and clinical social workers are on duty 24 hours a day.
BEST Team (Boston Emergency Service Team) . . . . .800-981-4357 Primary emergency service team that serves Boston, Cambridge, and Somerville. In-person behavioral health crisis assessment, intervention, and stabilization service in the community or at their two centers, 24 hours a day for individuals of all ages covered by MassHealth (Medicaid) plans, Medicare, and the uninsured.
Emergency Psychiatric Services for other communities call . . . . . . . . . . . . 877-382-1609
SuicidE prEvEntion
National Suicide Prevention Lifeline 1-800-273-TALK Free, confidential 24-hr. emotional distress lineSamaritans of Massachusetts 1-877-870-hOPE 24 hour Crisis Intervention/HotlineSamaritans of Massachusetts 1-800-252-8336 Teen Line (statewide)Samaritans of Massachusetts 1-617-247-0220 24 hour Helpline
SuBStancE aBuSE hElpMass Substance Abuse hELPLINE 1-800-327-5050 Free, confidential information and referrals
othEr rESourcESNAMI National Legal Center (namimass.org under “Resources”) Among other useful information is a comprehensive “Road Map through the Massachusetts Criminal Justice System for Persons with Mental Illness and Their Family.”
important phonE numBErS
www.nami-cambridgemiddlesex.org
visit our website
www.nami-cambridgemiddlesex.org 3 sUMMER 2017
Join NAMI Cambridge-Middlesex:Please print clearly and mail to the address below with your check or visit www.nami.org to join online
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o i would like to become a Nami-Cm member. please send $40 for individual membership
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o i want the Cambridge-middlesex Nami newsletter only, since i am already a member of another affiliate. please send $10.
Make checks payable to: Nami-Cm Mail to: Nami-Cm, 174 appletoN St., Cambridge, ma 02138
This is not an office, but a mailing address only. NAMI-CM is a volunteer organization; we do not maintain an office.
mEmBErS—watch for renewal date on the mailing label of your newsletter —envelope enclosed.
nAMI-cM ProGrAMs
ron powers: no one cares about crazy peopleSEptEmBEr 19, 2017 Despite his family’s experience with schizo-phrenia, Ron Powers was stunned by the “criminalization” of mental illness he observed after going public with his book, No One Cares About Crazy People: The Chaos and Heartbreak of Mental Health in America. In his blog (http://www.noonecaresaboutcrazypeople.com/blog/) he reports on the mentally ill and learning-disabled teenager who lost all reasoning power during months in jail, much of it in solitary confinement.
Powers’ book traces the heartbreaking story about his two sons with schizo- phrenia. His younger son had his first break in 2002 while at the Berklee College of Music. He committed suicide a week before his 21st birthday. His older son is now in recovery and living with his parents. Powers reports he has not missed a medication appointment in four years.
“I didn’t come here tonight to plug my book,” the author said, “but to tell you about my family’s experience with this incurable, genetically delivered brain
disease and how uninformed and unconcerned our country is about it.
“I’ve been stunned by the education I received after my book was published last March. I didn’t know how bad things were. Not down at Ground Zero. Not in the daily life inside our sub-nation, where abominations pile up and travesties of justice go uncorrected and mothers of insane children plead for help and even mercy that fall on the deaf ears of bureaucrats and doctors and law enforcement.
“I challenge you as individuals and as members of NAMI to join me. Write letters—to
your governor, legislators, judges, and sheriffs.”
mgH 15th annual schizophrenia education daySaturday, novEmBEr 4, 2017
Massachusetts General Hospital, The Starr Center Auditorium Charles River Plaza, 185 Cambridge Street, 2nd Fl, BostonFree of charge
Call 866-644-7792 or register online: https://events.r20.constantcontact.com/register/eventReg?oeidk= a07eemk0pl92264192f&oseq=&c=&ch=
mindful: exploring mental Health through art Fuller craft museum, brockton, ma
novEmBEr 18, 2017-april 22, 2018
For location, hours, and tours, see https.//fullercraft.org/event/mindful-exploring-mental-health-art/. A video about the project is here: https://www.youtube.com/watch?v=g-9YI5Suy6Y.
ron powers and his wife Honoree Fleming
Sometimes even to live is an act of courage.Roman statesman Seneca the Younger
“”
4 www.nami-cambridgemiddlesex.org sUMMER 2017
Find Your Legislator http://www.wheredoivotema.com/bal/ MyElectionInfo.aspx
SEnatE
Sal n. didomenico DISTRICT: Middlesex and Suffolk State House Room 208 Boston, MA 02133 Phone: 617-722-1650 Fax: 617-722-1323 Email: [email protected]
patricia d. Jehlen DISTRICT: Second Middlesex State House Room 424 Boston, MA 02133 Phone: 617-722-1578 Fax: 617-722-1117 Email: [email protected]
Joseph Boncore DISTRICT: First Suffolk and Middlesex State House Room 109D Boston, MA 02133 Phone: 617-722-1634 Email: [email protected]
houSE
david m. rogers DISTRICT: 24th Middlesex State House Room 472 Boston, MA 02133 Phone: 617-722-2013 Fax: 617-626-0275 Email: [email protected]
marjorie c. decker DISTRICT: 25th Middlesex State House Room 155 Boston, MA 02133 Phone: 617-722-2450 Fax: 617-626-0337 Email: [email protected]
Jonathan hecht DISTRICT: 29th Middlesex State House Room 22 Boston, MA 02133 Phone: 617-722-2140 Fax: 617-626-0199 Email: [email protected]
mike connolly DISTRICT: 26th Middlesex State House Room 437 Boston, MA 02133 Phone: 617-722-2425 Email: [email protected]
Jay livingstone DISTRICT: 8th Suffolk State House Room 136 Boston, MA 02133 Phone: 617-722-2396 Email: [email protected]
Sean garballeyArlingtonState House Room 540 Boston, MA 02133Phone: 617-722-2090 Fax: 617-722-2848Email: [email protected]
Jay r. kaufmanLexingtonState House Room 34 Boston, MA 02133Phone: 617-722-2320 Fax: 617-722-2415Email: [email protected]
Your representative and senator want to hear
from you. Write or call.
t t
nAMI cAMbrIdGe/MIddlesex news
a nami-cm contingent was treated to a tour of the 99 Faces exhibit on mental illness at the museum of science by the creator, nami member and artist lynda cuttrell.
advocacy state House testimony: Doris Webb, Sharon DeVos, and Tim Smith gave moving testimony at a committee hearing at the State House in support of Bill S1091, which would create an innovative Restoration Center in Middlesex County, a proposed solution for the “revolving door” of ERs, jail, and the streets. Others attending included Elizabeth Fong, Rae Simpson, Jim Kobler, Carolyn White, Jane Roble, June Binney, and Kati Mapa. Write [email protected] or [email protected] for additional information.
next steps: Organized by Rae Simpson, almost 20 NAMI-CM members have signed on to meet with their state legislators to build relationships and to learn how best, as constituents, to increase support for mental health needs. If you are interested in joining a visit to one or more of our 15 legislators, contact Rae at [email protected].
nami-cm members (l-r) bill lahey, larry ouellette, sharon devos, and rae simpson toured the tewksbury state Hospital with associate director of mental Health services ron seletsky (far left) to learn more about the strengths and needs at tewksbury and in the state hospital system generally.
www.nami-cambridgemiddlesex.org 5 sUMMER 2017
MentAl HeAltH In tHe news
caregiving is Hard enough. isolation can make it unbearable.
Modest interventions, including counseling, support groups and hugs, can reduce the sense of isolation that caregivers often feel. New York Times https://t.co/0wbdo8JH4f
state sees boom in number of psychiatric beds
Responding to new parity laws in health insurance coverage for physical and mental illnesses, the number of psychiatric beds in Massachusetts rose 14 percent in the last three years. A declining supply of psychiatrists, however, has left many of the new beds unfilled.Boston Globe http://bit.ly/2vFyhmx
new ads accuse big tobacco of targeting soldiers and people with mental illness
While 15 percent of adults smoke nationwide, among the mentally ill, smoking remains high at 33 percent. Roughly 40 percent of cigarettes sold in the U.S. are smoked by people with mental health issues.Washington Post http://wapo.st/2xtxygr
Food aid, with a side of culture
Making arts and culture accessible to people of all incomes; expansion of the EBT Card to Culture program.Boston Globe https://t.co/pzp1abm6iv
ebt card to culture
Listing of discounted admissions to EBT card holders.Mass.Gov http://bit.ly/2x9ezJm
state permanently closes psychiatric hospital, just weeks after declaring it safe
Closure of Westwood Lodge, an 89-bed Arbour Health System psychiatric hospital.Boston Globe http://bit.ly/2vemwyp
the ‘madman’ is back in the building
‘…the “madman” they’d been covering for was actually a very sick young man who did things he feels guilty about, but who also knows that he had no more control over the doing of those things than a cancer patient has over the state of his lymph nodes.’New York Times https://t.co/ex31ovwvjn
‘Katrina brain’: the invisible long-term toll of megastorms
“The mental health effects of natural disasters are really important and vastly overlooked, not only acutely but over the long term,”Politico http://politi.co/2ijia9h
no tattoo shop would Help teen who self-Harmed, then artist saw Her scars & stepped in.
Tattoo artists help those who have self-harmed replace their scars with something beautiful.Inspire More http://bit.ly/2x2uF4v
when ‘not guilty’ is a life sentence
“The laws that govern the practice of committing people who are acquitted because of mental illness dictate that they be hospitalized until they’re deemed safe to release to the public, no matter how long that takes.”New York Times https://t.co/t5spivwox5
Humane care given a place at state’s harshest hospital
“Perhaps most significant, hospital administrators are instilling in the staff a new commitment to treat the men at Bridgewater like people afflicted by illness rather than dangerous convicts, referring to each one as a “person served.”Boston Globe http://bit.ly/2gvcepp
Federal prisons keeping mentally ill in solitary confinement for long stretches of time, report says.
Inmates, including those with mental illness, may spend years and even decades in “restrictive housing”.Washington Post http://wapo.st/2hsv6J3
when athletes share their battles with mental illness
“…consciousness in the broader world can be raised by prominent voices from the sports world … and perhaps begin to chip away the societal stigma too often attached to mental illness.”USA Today https://usat.ly/2j0acnd
schizophrenia ‘voices’ quietened by magnetic stimulation
In a study of 59 schizophrenia.patients, 34.6 percent receiving rTMS had a significant reduction in auditory verbal hallucinations, compared with 9.1 percent undergoing the sham procedure.Medical News Today http://bit.ly/2xpaes3
england’s mental Health experiment: no-cost talk therapy
“…the program has gone a long way to shrink the stigma of psychotherapy in a nation culturally steeped in stoicism”New York Times https://t.co/r24mliQgjd
lawsuit over a suicide points to a risk of antidepressants
“...older adults, who use antidepressants in far greater numbers than young people, may also be at greater risk of self-harm when taking the drugs.,”New York Times https://t.co/aryeaFzHwh
Have smartphones destroyed a generation?
With the twin rise of the smartphone and social media, teens spend more time on-screen, having less in-person time with friends - and are more likely to be unhappy, lonely and depressed.Atlantic http://theatln.tc/2u3Jdx6
How we inadvertently increase mental Health stigma
Through careless vocabulary, we dilute the severity of mental health conditions for those who are suffering and reinforce the stigma that prevents them from seeking care. PsychCentral http://bit.ly/2ikemQ6
bringing my own Kind of ‘madness’ to the office
The trials of working while managing schizophrenia. New York Times https://t.co/tdxjvbgbbn
the (continuing) education of a white writer regarding black americans and mental illness
An author, who wrote of the “sub-nation” in describing challenges to those with mental illness, learns of an even deeper sub-nation where “Black folks don’t like to get treatment… [they] see it as a white man’s disease.”Ron Powers http://bit.ly/2yuzFwr
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NAMI-CAMBRIDGE/MIDDLESEX174 Appleton StreetCambridge, MA 02138
Inside this issue:Save the Date ................p.1Resources ...................... p.2NAMI-CM News..............p.4Mental health News........p.5
u p c o m i n g e v e n t s
www.nami-cambridgemiddlesex.org
Ken Shulman, JD of Day Pitney LLP has devoted his entire legal career to the estate planning and related needs of disabled individuals and their families. He frequently represents clients in guardianship matters and serves as a trustee for families and has been widely recognized for his work in special needs planning, public benefits, and protective proceedings.
Pamela C. Tames, JD is the executive director of PLAN (Planned Lifetime Assistance Network) of Massachusetts and Rhode Island, a non-profit organization that provides planning and trust management services to individuals with special needs throughout Massachusetts and Rhode Island. Today, PLAN of MA and RI manages over $43 million for more than 700 beneficiaries.
boTh evenTS TaKe PlaCe aT:
Macht Auditorium, Cambridge Hospital, 1493 Cambridge St., Cambridge (Vouchers available for garage parking)
Tuesday, December 5, 2017 6:30-8:30 pm
Courtney Joly-lowdermilk will join us to discuss Boston University’s Center for Psychiatric Rehabilitation College Mental Health Programs—NITEO, an intensive one-semester program to help students who have left college because of their mental health problems to return successfully, College Coaching, and LEAD BU, a 14-week college mental health course which focuses on developing well being and academic and interpersonal skills. Program graduates will also be available to talk about their experiences and answer your questions.
Tuesday, november 14, 2017 6:30-8:30
Fighting for a Future
For your loved ones
wills and trusts
e d u c at i o n p r o g r a m
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