Dysautonomia today i'm a daisy
Transcript of Dysautonomia today i'm a daisy
I am a woman.
I am a wife.
I am a mother.
I am a daughter.
I am a sister.
I am a friend.
I love coffee.
I love chocolate.
I love chocolate with my coffee.
I love the occasional glass of wine....
....or three.
I love Autumn and Winter.
I play AC/DC when I do yoga.
I love the smell of the air just after the rain.
I smile.
I laugh.
I tell really bad jokes.
I dance to my own rhythm.
I find beauty in the small things.
I have Dysautonomia.
Standing up is often a challenge.
My blood pressure goes up.
My blood pressure goes down.
My heart goes, blah.........blah..........blah.
But some days...
...it beats like I am running a marathon.
Simply because I stand up.
I am always dizzy, or feel faint.
On bad days I pass out.
My blood doesn't like to go to my brain.
But it is really loves to sit in my feet.
I live in a permanent brain fog.
I shake.
I am often weak and fatigued.
I am always nauseous.
And have a close personal relationship with my toilet.
I have headaches daily.
And migraines on a regular basis.
I wear shorts and t-shirts in Winter,
As I am constantly hot.
I can't work.
I am often unable to drive.
I don't go out much.
Some days I can barely walk.
I take multiple medications,
to try and control the symptoms.
Sometimes the side effects
Are worse than the disorder.
I have no known cause for my Dysautonomia.
There is currently no cure.
But I am still a woman.
I am still a wife.
I am still a mother.
I am still a daughter.
I am still a sister.
I am still a friend.
I still like coffee, chocolate, and wine.
I still love Autumn and Winter, and the smell of rain in the air.
I still do yoga whilst listening to AC/DC and tell really bad jokes.
I still smile and I still laugh.
I still find beauty in the small things.
Dysautonomia is only a small part of the picture.
I am all this and more.
But mostly,
I am me.
Dysautonomia may one day have a cure.
It may not.
Either way I'm going to give myself permission to breathe,
and just be.
Video by:Living with Bob (Dysautonomia)
http://bobisdysautonomia.blogspot.com/
Music;“Today I'm a Daisy” - Deborah Conway