Dr. Birgit Weihrauch, EPHC NRW EHFG October 2005 Forum 3 European Health Forum Gastein 2005 Dr....

Dr. Birgit Weihrauch, EPHC NRWDr. Birgit Weihrauch, EPHC NRW EHFG October 2005EHFG October 2005

Forum 3Forum 3

European Health Forum Gastein 2005European Health Forum Gastein 2005

Dr. Birgit WeihrauchDr. Birgit WeihrauchMember of the BoardMember of the Board

European Public Health Centre (EPHC) European Public Health Centre (EPHC) NRWNRW

INVOLVED CITIZENS: PARTNERS FOR HEALTHINVOLVED CITIZENS: PARTNERS FOR HEALTH

INTRODUCTION BY THE CHAIRINTRODUCTION BY THE CHAIR


EUROPEAN PUBLIC HEALTH CENTRE (EPHC) NRWEUROPEAN PUBLIC HEALTH CENTRE (EPHC) NRW

WHO ARE WEWHO ARE WE??

MEMBERS: MEMBERS: REPRESENTATIVES OF AUTHORITIES ,UNIVERSITIES, ASSOCIATIONS OF REPRESENTATIVES OF AUTHORITIES ,UNIVERSITIES, ASSOCIATIONS OF THE HEALTH CARE SECTOR THE HEALTH CARE SECTOR

PURPOSE AND OBJECTIVES: PURPOSE AND OBJECTIVES: PROMOTION OF DIALOGUE BETWEEN POLITICS, PROMOTION OF DIALOGUE BETWEEN POLITICS, SCIENCE AND PRACTICE IN EUROPEAN HEALTH POLICY AND PUBLIC HEALTHSCIENCE AND PRACTICE IN EUROPEAN HEALTH POLICY AND PUBLIC HEALTH

INFORMATION:INFORMATION: www.ephz.dewww.ephz.de


NORTH- RHINE WESTPHALIA (NRW)NORTH- RHINE WESTPHALIA (NRW)

Who are we?Who are we? NRW – the most populated German state (Land NRW – the most populated German state (Land

NRW) - 18 million inhabitantsNRW) - 18 million inhabitants

Located in the middle of Europe – bordering Located in the middle of Europe – bordering Belgium and the NetherlandsBelgium and the Netherlands

A European region with numerous initiatives for A European region with numerous initiatives for supporting the European integration process in the supporting the European integration process in the field of health carefield of health care


FORUM 3 FORUM 3 INVOLVED CITIZENS: PARTNERS FOR HEALTHINVOLVED CITIZENS: PARTNERS FOR HEALTH

EXPERT COUNCIL FOR THE EXPERT COUNCIL FOR THE

CONCERTED ACTION IN THE HEALTHCONCERTED ACTION IN THE HEALTH

SYSTEM - GERMANY 1992:SYSTEM - GERMANY 1992:

PARTNERSHIP INSTEAD OFPARTNERSHIP INSTEAD OF

PATERNALISMPATERNALISM

NEEDED IN THE RELATIONSHIP BETWEENNEEDED IN THE RELATIONSHIP BETWEEN

PHYSICIAN AND PATIENTPHYSICIAN AND PATIENT - -



MESSAGE TODAYMESSAGE TODAY::

COMPETENT CITIZENS AND PATIENTS AND THEIRCOMPETENT CITIZENS AND PATIENTS AND THEIRACTIVE INVOLVEMENT STRENGTHEN THEACTIVE INVOLVEMENT STRENGTHEN THEPOSSIBILITIES OF SELF-RESPONSIBILITY ANDPOSSIBILITIES OF SELF-RESPONSIBILITY ANDWELLBEING ALSO IN THE CASE OF DISEASE ANDWELLBEING ALSO IN THE CASE OF DISEASE ANDCONTRIBUTE TO A FUTURE - ORIENTED HEALTHCONTRIBUTE TO A FUTURE - ORIENTED HEALTHSYSTEMSYSTEM



EUROPEWIDE A CHANGE INEUROPEWIDE A CHANGE INUNDERSTANDING:UNDERSTANDING:

A SOCIETAL PROCESS FOR PATIENTSA SOCIETAL PROCESS FOR PATIENTSAND PROVIDERSAND PROVIDERS

THAT TAKES IST TIME ANDTHAT TAKES IST TIME AND THAT IS DIFFERING IN FOCUS AND QUICKNESSTHAT IS DIFFERING IN FOCUS AND QUICKNESS



EXAMPLES OF INTERNATIONAL ACTIVITIESEXAMPLES OF INTERNATIONAL ACTIVITIES

1979 - CHARTER OF HOSPITAL PATIENT (EU)1979 - CHARTER OF HOSPITAL PATIENT (EU)

1986 - DECLARATION ON THE PROMOTION OF PATIENTS RIGHTS…(WHO)1986 - DECLARATION ON THE PROMOTION OF PATIENTS RIGHTS…(WHO)

1994 – DECLARATION ON THE PROMOTION OF PATIENTS´ RIGHTS…(WHO)1994 – DECLARATION ON THE PROMOTION OF PATIENTS´ RIGHTS…(WHO)

1997 – CONVENTION FOR THE PROTECTION OF HUMAN RIGHTS…(OECD)1997 – CONVENTION FOR THE PROTECTION OF HUMAN RIGHTS…(OECD)

1997 – GOTHENBURG WORKSHOP: PATIENTS´ RIGHTS IN EUROPE…(WHO)1997 – GOTHENBURG WORKSHOP: PATIENTS´ RIGHTS IN EUROPE…(WHO)

2000 – RECOMMENDATION REC (2000) 5…(OECD)2000 – RECOMMENDATION REC (2000) 5…(OECD)

Since 2001 – EUROPEAN HEALTH FORUM …(EU)Since 2001 – EUROPEAN HEALTH FORUM …(EU)



1990– 20051990– 2005

IN MANY COUNTRIESIN MANY COUNTRIES

PATIENTS‘RIGHTS LAWSPATIENTS‘RIGHTS LAWS:: (E.G.: FINLAND, NETHERLANDS, ISRAEL, LITHUANIA, ICELAND, LATVIA, HUNGARY, (E.G.: FINLAND, NETHERLANDS, ISRAEL, LITHUANIA, ICELAND, LATVIA, HUNGARY,

GREECE,DENMARK, NORWAY, GEORGIA, FRANCE, BELGIUM, SWITZERLAND, RUSSIA, GREECE,DENMARK, NORWAY, GEORGIA, FRANCE, BELGIUM, SWITZERLAND, RUSSIA, ESTONIA, CYPRUS)ESTONIA, CYPRUS)

OROR

CHARTERS OF THE RIGHTS OF PATIENTSCHARTERS OF THE RIGHTS OF PATIENTS::

(E.G.:FRANCE, SAN MARINO, UK, CZECH REPUBLIC, SPAIN, IRELAND, MALAYSIA, SOUTH (E.G.:FRANCE, SAN MARINO, UK, CZECH REPUBLIC, SPAIN, IRELAND, MALAYSIA, SOUTH AFRICA, PORTUGAL, HONG KONG, GERMANY, POLAND, SLOVAKIA, AUSTRIA, CYPRUS, AFRICA, PORTUGAL, HONG KONG, GERMANY, POLAND, SLOVAKIA, AUSTRIA, CYPRUS, ITALY)ITALY)

Source: Internet - without Source: Internet - without

guarantee guarantee



WHAT ARE THE MAIN ISSUES?WHAT ARE THE MAIN ISSUES?

CHANGING ROLE CHANGING ROLE (PARTNERSHIP INSTEAD OF PATERNALISM)(PARTNERSHIP INSTEAD OF PATERNALISM)

INFORMATION AND TRANSPARENCYINFORMATION AND TRANSPARENCY

ACTIVE INVOLVEMENT OF CITIZENS AND PATIENTS ACTIVE INVOLVEMENT OF CITIZENS AND PATIENTS (INDIVIDUAL MATTERS AND MATTERS OF THE SYSTEM(INDIVIDUAL MATTERS AND MATTERS OF THE SYSTEM))

QUALITY, SAFETY, PROTECTION (QUALITY, SAFETY, PROTECTION (STILL PATERNALISTICSTILL PATERNALISTIC

APPROACHAPPROACH))



WHAT ARE THE CHALLENGES ?WHAT ARE THE CHALLENGES ?

PREDOMINANT CHRONIC DISEASESPREDOMINANT CHRONIC DISEASES(PATIENT AS A (PATIENT AS A COPRODUCER)COPRODUCER)

RISING IMPORTANCE OF PREVENTION AND HEALTH RISING IMPORTANCE OF PREVENTION AND HEALTH PROMOTIONPROMOTION

MORE COMPETITION AND FINANCIAL MORE COMPETITION AND FINANCIAL CONTRIBUTION OF PATIENTS (CONTRIBUTION OF PATIENTS (HEALTH MARKET)HEALTH MARKET)

NEW ETHICAL QUESTIONS WITH TECHNICAL NEW ETHICAL QUESTIONS WITH TECHNICAL PROGRESSPROGRESS

THE MODEL OF A SELF RESPONSIBLE CITIZENTHE MODEL OF A SELF RESPONSIBLE CITIZEN


FORUM 3FORUM 3INVOLVED CITIZENS: PARTNERS FOR HEALTHINVOLVED CITIZENS: PARTNERS FOR HEALTH

TWO MAIN ASPECTSTWO MAIN ASPECTS

INFORMATION AND TRANSPARENCYINFORMATION AND TRANSPARENCY

-HOW AND WHO--HOW AND WHO-

ACTIVE INVOLVEMENTACTIVE INVOLVEMENT

PREREQUISITES AND BENEFITSPREREQUISITES AND BENEFITS



INFORMATION AND COMPETENCEINFORMATION AND COMPETENCE

PREREQUISITES FOR:PREREQUISITES FOR:

SELF- DETERMINED ACTINGSELF- DETERMINED ACTING

ACTIVE INVOLVEMENT AS A CITIZENACTIVE INVOLVEMENT AS A CITIZEN

FULL USE OF POSSIBILITIES AND RIGHTSFULL USE OF POSSIBILITIES AND RIGHTS


FORUM 3FORUM 3INVOLVED PATIENTS: PARTNERS FOR HEALTHINVOLVED PATIENTS: PARTNERS FOR HEALTH

THE RIGHT INFORMATION AT THE RIGHT TIMETHE RIGHT INFORMATION AT THE RIGHT TIME

WHAT ARE THE PROBLEMSWHAT ARE THE PROBLEMS??

ACCESSIBILITYACCESSIBILITY

UNDERSTANDABLE LANGUAGEUNDERSTANDABLE LANGUAGE

QUALITY AND RELIABILITYQUALITY AND RELIABILITY

EQUITY- REACH THE LOWER SOCIAL CLASSESEQUITY- REACH THE LOWER SOCIAL CLASSES


FORUM 3FORUM 3INVOLVED CITIZENS: PARTNERS FOR HEALTHINVOLVED CITIZENS: PARTNERS FOR HEALTH

THE RIGHT INFORMATION AT THE RIGHT TIMETHE RIGHT INFORMATION AT THE RIGHT TIME

WHO IS RESPONSIBLE?WHO IS RESPONSIBLE? PHYSICIANPHYSICIAN HEALTH CARE ORGANISATIONS/PROVIDERSHEALTH CARE ORGANISATIONS/PROVIDERS EDUCATIONAL INSTITUTIONSEDUCATIONAL INSTITUTIONS

--------------------------------------------------------------------------------------------------------------------------------------------------------------

FRAME CONDITIONS THROUGH HEALTH POLICYFRAME CONDITIONS THROUGH HEALTH POLICY



ACTIVE INVOLVEMENT ACTIVE INVOLVEMENT

OFOF CITIZENS AND PATIENTS IN HEALTH POLITICAL CITIZENS AND PATIENTS IN HEALTH POLITICAL DEVELOPMENT PROCESSESDEVELOPMENT PROCESSES

AIMS:AIMS:

MORE ORIENTATION AT INTERESTS AND MATTERS OF THE MORE ORIENTATION AT INTERESTS AND MATTERS OF THE PATIENTS LEADS TOPATIENTS LEADS TO

MORE COMPLIANCE AND MORE SATISFACTION OF PATIENTSMORE COMPLIANCE AND MORE SATISFACTION OF PATIENTS MORE QUALITY OF THE HEALTH SYSTEMMORE QUALITY OF THE HEALTH SYSTEM MORE EFFICIENCY OF RESOURCESMORE EFFICIENCY OF RESOURCES



THE GERMAN EXAMPLE:THE GERMAN EXAMPLE:

CHANGES IN SOCIAL CODE V (2003)CHANGES IN SOCIAL CODE V (2003)

REPRESENTATIVE OF PATIENTS IN THE GOVERNMENTREPRESENTATIVE OF PATIENTS IN THE GOVERNMENT

ACTIVE INVOLVEMENT OF PATIENTS IN DIFFERENT HEALTH ACTIVE INVOLVEMENT OF PATIENTS IN DIFFERENT HEALTH COMMITTEESCOMMITTEES

NEW INSTITUTE FOR QUALITY AND EFFICIENCY – A.O.WITH THE NEW INSTITUTE FOR QUALITY AND EFFICIENCY – A.O.WITH THE TASK OF PATIENT INFORMATIONTASK OF PATIENT INFORMATION



SOME NRW EXAMPLES:SOME NRW EXAMPLES:

ACTIVE INVOLVEMENT OF PATIENTS ACTIVE INVOLVEMENT OF PATIENTS IN THE STATE IN THE STATE HEALTHHEALTH CONFERENCE (BY LAW) A.O.COMMITTESCONFERENCE (BY LAW) A.O.COMMITTES

WWW: GESUNDHEIT. NRW.DE – WWW: GESUNDHEIT. NRW.DE – HEALTH PORTAL BY THEHEALTH PORTAL BY THE STATE AND THE STATE HEALTH CONFERENCE STATE AND THE STATE HEALTH CONFERENCE

BREAST CENTRES NRWBREAST CENTRES NRW STANDARDIZED QUALITYSTANDARDIZED QUALITY STRUCTURED PATIENT INVOLVEMENTSTRUCTURED PATIENT INVOLVEMENT

Dr. Birgit Weihrauch, EPHC NRW EHFG October 2005 Forum 3 European Health Forum Gastein 2005 Dr....

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