Development and Adolescent Sexual Health
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Transcript of Development and Adolescent Sexual Health
DEVELOPMENT AND ADOLESCENT SEXUAL HEALTH:THE STUDY GETS YMSM ONLINE
Matthew Golden, MD, MPH
Sara Nelson Glick, PhD, MPH
Brittany Walsh, MSW candidate
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
PRESENTATION GOALS
Share successes and challenges of
recruitment for the DASH study
Share successes and challenges of retention
for the DASH study
Discuss lessons learned around feasibility of
year-long, web-based, follow up and quality of
that data over time
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
ABOUT
Ultimate Goal: Learn about the early sexual
experiences and behavior patterns of yMSM
Prospective Cohort Study: 95 sexually
inexperienced, yMSM
Between the ages of 16-30 at enrollment
10 or fewer male lifetime partners OR
5 or fewer years since same-sex sexual
debut
Feasibility Study: determine if it was possible to
recruit and retain a traditionally hard to reach
populationMatthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
RECRUITMENT METHODS
Community CollaborationListservs and Flyers
Participant Referrals
“ If you know someone who might be
interested and we enroll them in the study,
we’ll compensate you $20 for your referral.”
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
RECRUITMENT METHODS
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
RECRUITMENT SUCCESS
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
Other, 5%
Unknown, 3%
American Friends, 2%
SU Triangle Club, 1%
Facebook, 36%
Listserv, 3%
Lifelong AIDS Alliance, 4%
STD Clinic, 10%
UW Q Center, 7%
Participant, 21%
Friend, 5%
Craigslist, 3%
RECRUITMENT SUCCESS
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
White, 59%
Multiracial, 11%
Latino, 16%
Asian/ PI, 9%
African American,
3%
Other, 2%
AgeMean = 21 years
35% were 16-19 years old
Race / Ethnicity
RECRUITMENT SUCCESS
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
≤10 male lifetime
partners, 20%
Both criteria, 59%
≤5 years since same-sex
sexual debut, 21%
Diversity in eligibility criteria
RECRUITMENT SUCCESS
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
0
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1/1-1/15
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Date
To
tal
(cu
mu
lati
ve
)Screened
Enrolled
Expanded eligibility criteria &Facebook advertisements
RECRUITMENT CHALLENGES
Referrals from community
organizations were few
Slow-going until we expanded
inclusion criteria
Cost of Facebook
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
RETENTION METHODS
DatStat system emailed reminders for
diaries and surveys
6 month and 12 month appointments -
email from a real person
3 month and 9 month survey - reminders
emailed from a real person
Phone calls and/or emails as needed
$$$
Emergency Contact information
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
RETENTION SUCCESS
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
0%
20%
40%
60%
80%
100%0.852631578
947368
0.905263157894737
0.905263157894737
0.810526315789474
0.9052631578947370.863157894
736842Perc
en
t co
mp
lete
(to
date
)
BL 3mo
6mo
9mo
12mo
N = 95
Surveys
Exams
RETENTION SUCCESS
Web-Based Diaries:
78% of participants completed at
least 80% of their diary days during
the first 6 months. During the second
6 months, less than 60% completed
at least 80% of their diary days
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
RETENTION CHALLENGES
Typical loss to follow up
DatStat randomized diary schedules with more
“Nevers” in the second half of the study
Changing Patterns in Internet Access
Probably expanding but moving away from
the traditional email + web browser access.
Moving toward text
messaging+apps+phone web browser
access.
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
IS A YEAR ONLINE FEASIBLE?
Successful recruitment
~ 100 guys over 8-9 months
Successful retention
over 80% completion on all surveys and
exams
Reached the goals we set for ourselves
CAN follow these hard to reach guys for 1
year
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
DISCUSSION
Diaries and extra contact- an intervention of their
own or just added TLC?
Relationship building with yMSM participants is
key
The challenge will be expanding the study to new
cities and in the context of constantly changing
media
Behavior changes differently in everyone and
over time. It seems to be worth engaging with
yMSM early in their development
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
WHERE’S
It’s submitted! Matt and Sara have several others in the
works.
Questions? Matthew Golden at PHSKC HIV/STD Program
(206) 744-6829 , (206) 296-4805 Sara Nelson Glick at Center for AIDS and STD
(206) 744-8055 Brittany Walsh at Center for AIDS and STD
(734) 751-9629
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic
Now ?
(BIG) THANKS!
Sara Nelson Glick and Matthew Golden
Tara Hicks and others at the PHSKC STD
Clinic
Our wonderful participants
Our wonderful community collaborators
And Sara Nelson Glick, once more.
Matthew Golden, MD, MPH, Sara Nelson Glick, PhD, MPH, Brittany Walsh, MSW candidateUW Center for AIDS and STD, Public Health of Seattle and King County STD Clinic