Designing Tools Useful for People with Brain Injury: The Latest & Greatest McKay Moore Sohlberg,...
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Transcript of Designing Tools Useful for People with Brain Injury: The Latest & Greatest McKay Moore Sohlberg,...
Designing Tools Useful for People with Brain Injury:
The Latest & Greatest
McKay Moore Sohlberg, Ph.D.
University of Oregon
Sample Current Projects Involving the Development of Tools
Email tools– Simple email program– Help system
Navigation tools– A device to give directions– A reminder bag
Designing effective tools FOR people with cognitive impairments means…
You must design the tools in partnership WITH the individuals who will be using the tools
Participatory Action Research:The partnership research model
The people who stand to benefit should be involved at all stages of the research (defining the problem, the research methods, analysis etc.)
The research should have some direct & positive benefits to the people who are being studied
Knowledge is more socially usable when it is produced together
The Research Process:Initial Steps
Human Subjects Protection– People must understand exactly what they
are agreeing to do– They must understand their participation is
voluntary– They must understand that they can
withdraw without penalty or feeling uncomfortable at anytime
The Research & Development Process: Initial Steps
Focus Groups
Surveys
Focus Group Example
Group # of Participants
Descriptions Location
#1 8 People living @ assisted
facility
Big city
#2 10 Family, care
providers
Rural town
#3 12 Bus drivers Mid sized town
Research & Development:The next steps
Prototype design
Initial pilot
Initial Pilot Studies
Development of
Sample tools
(Prototype)
Testing out with real people in real environments
Longitudinal Trials
Evaluate the use of tool in real environments over a long period of time
Longitudinal data from a participant using our email tool
Composition Speed
0
5
10
15
20
25
1 3 5 7 9 11 13 15 17 19 21 23 25 27 29 31 33 35 37 39
Week
Av
g. c
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rac
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The GO Device:A Sample Research Project
Survey & Focus GroupPrototype DevelopmentPilot Testing
www.go-outside.org/
Go Device:Surveys & Focus Groups Helped
Identify barriers to navigating in the community when people have memory impairments
Identify possible solutionsSolicit feedback on potential device
ideas
Sample Results for Questions on Transportation Challenges
Fear of getting lostForgetting purpose of tripGetting lost in communityGetting lost in large buildings Expense of taxiHard to ask friends for rides
Initial research steps: Navigational profiles of real people in real environments
Errand 9
Visit Friend4
Church 5
Restaurant 2
MedicalAppointment
2
Number and types of destinations traveled by one of the participants over a 4 month period
Developing Navigational“Wish Lists”
Participants Navigational Wishes
Participant A Wal-Mart, Fred Meyer, Go out more often with other people
Participant B Family’s house, A volunteer job, YMCA, Movie theater, Sightseeing, Festivals
Developed a Prototype Tool
Prototype Tool
Prototype Tool
The Research Questions
Which mode of directions will result in the most efficient/accurate ability to navigate in the community?– Auditory (earpiece) directions– Point of view map showing each step– Text (written) step by step directions– Aerial map (from above) showing each
direction
Preliminary Results
Auditory mode of giving directions seems to be the most helpful
Next steps…
Determine the best “wording” for directions to use in the auditory mode
Hypothesis: Use of Landmarks will be more helpful than non-landmark cues
Next steps…
Develop tools that can be used in combination with the GO Device to help people navigate
We learned that one of the main barriers was getting out the door…so we are working on “The Travel Bag”
The Travel Bag
The Travel Bag
Research Process for the Travel Bag
Survey/Focus Groups
Pilot Work
Prototype Development
More Pilot Testing
Plan for current pilot testing
Your Turn!
We need more input from those who know the best
If you would like, find a buddy and complete the survey in your handout!