EU Joint Programme - Neurodegenerative Disease Research (JPND)

Coordinating approaches to research across Europe

Derick MitchellCommunications Executive, JPND

13/09/2013

We cannot tackle neurodegenerative diseases by acting as single countries

AlbaniaAustriaBelgiumCanadaCroatiaCzech

RepublicDenmarkFinlandFrance

GermanyGreece

HungaryIrelandIsraelItaly

LuxembourgNetherlands

NorwayPoland

PortugalSlovakiaSlovenia

SpainSweden

SwitzerlandTurkeyUnited

Kingdom

JPND is a global research initiative led by EU countries, with 27 participatingEU member statesAssociated countries Third countries

increasing coordination of national research programmes to improve impact and effectiveness

JPND brings together….

• Researchers (Basic, Clinical, Healthcare/Social)

• National Funding Bodies

• National Research Strategies and Investments

• Current JPND strategy:• To increase coordinated investment in ND research aimed at finding

causes of disease, developing cures, and identifying appropriate ways to care for those with neurodegenerative diseases

• Immediate JPND goals:• To add value to national investments through coordinated action• To encourage the development of national research strategies in ND• To engage in partnership to reach the full potential of JPND

JPND currently partly-supported by FP7-JUMPAHEAD (GA. 260774)

Management Board 27 countries representedMembers mandated to actChair Philippe Amouyel - France

Executive BoardVice-Chair Adriana Maggi - Italy Enda Connolly - Ireland Edvard Beem - Netherlands Mogens Horder - Denmark

Scientific Advisory Board18 Members Chosen for scientific excellence,

competence

Organisation

Steering CommitteeExecutive Board + Rob Buckle - UK

Rainer Girgenrath - Germany

Melike Sevimli - Turkey

European Research Landscape

• Greatest amount of funds are available through national government budgets:• 2011 Total ND Research Funding: 1.621 Billion

• Basic research: 1.362 Billion• Clinical research: 183 Million• Healthcare/Social Research: 76 Million

• JPND Research Strategy Goals• To develop new treatments and preventive strategies• To improve health and social care approaches• To raise awareness and de-stigmatise neurodegenerative disorders• To alleviate the economic and social burden of these diseases

Alzheimer’s disease and other dementias (AD)Parkinson’s disease (PD) and PD-related disorders Prion diseaseMotor neurone diseases (MND)

Huntington’s disease (HD)Spinocerebellar ataxia (SCA)Spinal muscular atrophy (SMA)

How can JPND reach its goals?

• Alignment of research in Member Countries

• Partnership with European Commission

• Partnership with Industry

• Partnership with other international organisations

• Involvement of Patients and Public

JPND Actions to date

• Common European Strategy

• Phase I Implementation (2012-2014)

• Transnational Calls

• Alignment Actions

• National Plans and Strategies

• Communication + Dissemination

Alignment Actions

• Action Groups have begun in priority areas:

• Longitudinal Cohort Studies

• Animal and Cell Models

• Assisted Living Technologies

• Palliative Care

• Patient and Public Involvement in Research

The Next Challenges

• To continue implementation beyond phase I

• To partner with the European Commission

• To partner with Industry

• To ensure JPND sustainability

Dissemination and Communication Guidelines

JPND Acknowledgement

• To reference JPND on any scientific report or publication as part of a JPND-supported project

This is an EU Joint Programme - Neurodegenerative Disease Research (JPND) project. The project is supported through the following funding organisations under the aegis of JPND - www.jpnd.eu

(list of national/regional organisations who are funding the project, by country, in alphabetical order)

BIOMARKAPD

• Canada, Canadian Institutes of Health Research

• Denmark, Danish Council for Strategic Research

• Finland, Academy of Finland

• France, French National Research Agency

• Germany, Bundesministerium für Bildung und Forschung

• Greece, Ministry of Education, Life Long Learning & Religious Affairs

• Ireland, Health Research Board

• Italy, Italian Ministry of Health

• Luxembourg, Fonds National de la Recherche

• Netherlands, The Netherlands Organisation for Health Research and Development

• Norway, The Research Council of Norway

• Poland, Ministry of Science and Higher Education

• Portugal, Foundation for Science and Technology

• Slovakia, Ministry of Education, Science, Research and Sport

• Slovenia, Ministry of Higher Education, Science and Technology

• Spain, Instituto de Salud Carlos III

• Sweden, Swedish Research Council

• Switzerland, Swiss National Science Foundation

• Turkey, The Scientific & Technological Research Council of Turkey

Standard Text

• To reference JPND and describe its work• non-scientific publications, press releases, websites

• The EU Joint Programme – Neurodegenerative Disease Research (JPND) is the largest global research initiative aimed at tackling the challenge of neurodegenerative diseases. JPND aims to increase coordinated investment between participating countries in research aimed at finding causes, developing cures, and identifying appropriate ways to care for those with neurodegenerative diseases - www.jpnd.eu

Translated versions

• Hrvatski / Croatian • Italiano / Italian• Ceský / Czech • Norske / Norwegian • Dansk / Danish • Polsk / Polish • Nederlands / Dutch • Português / Portuguese • Suomi / Finnish • Slovensky / Slovak • Français / French • Slovenski / Slovenian• Deutsch / German • Español / Spanish• ελληνικά / Greek • Svenska / Swedish

• Türkçe / Turkish

Online Tools

Keep up to date

• Visit the JPND website:• http://www.neurodegenerationresearch.eu• http://www.jpnd.eu

• Search our Mapping Database

• Sign up to the JPND News Feeds

• E-mail us: secretariat@jpnd.eudmitchell@hrb.ie

• Follow us on Twitter:

@JPNDEurope