Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our...
Transcript of Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our...
![Page 1: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/1.jpg)
Dementia Alliance
International:
Finding our voice
John Sandblom
![Page 2: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/2.jpg)
No Medical Advice
Please note: The content of this presentation
and our website represents our opinions (however well-informed they may or may not be) and should NOT to be considered medical
advice. Medical advice should only be obtained during conversations with your own
medical doctor.
There is no conflict of interest.
![Page 3: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/3.jpg)
Many people with dementia
had a dream...
![Page 4: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/4.jpg)
Our Vision
“A world where a person with dementia continues
to be fully valued.”
![Page 5: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/5.jpg)
Reaching the world: over 130 members in over 6 countries
![Page 6: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/6.jpg)
Through strong advocacy, we have collaborated with ADI, and are now the
peak body globally for
people with dementia
![Page 7: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/7.jpg)
We speak up for full inclusion and a place at
every international dementia table…
No longer about us without us.
![Page 8: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/8.jpg)
By not including us, the stigma, discrimination, prejudice, myths of dementia and isolation are being exacerbated, by the organisatons,
researchers & service providers purporting to improve our lives or
advocate for us.
![Page 9: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/9.jpg)
What we do • Website, weekly blog, newsletters
• Weekly online support groups
• Advocacy and speaking roles
• Master Classes
• Monthly Webinars: A Meeting of the Minds
![Page 10: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/10.jpg)
Supported by technology • Zoom platform for online
– Board meetings
– Events
– Educational webinars
– Master Classes
– Weekly support groups
![Page 11: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/11.jpg)
Collaboration is the key to our
continuing success
![Page 12: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/12.jpg)
A global voice
• Advocated for a person with dementia to become a member of the World Dementia Council
• A member was invited to present at the World Health Organisations first Ministerial Conference on Dementia in March
![Page 13: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/13.jpg)
Living well with dementia…
It is possible
• The attitudes of, and support from researchers and health care professionals need to change on this
• The language of dementia needs to change; see Alzheimer's Australia updated language guidelines - https://fightdementia.org.au/sites/default/files/language%20guidelines.pdf
![Page 14: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/14.jpg)
"People will forget what you said; people will forget what you did… But people will never forget how
you made them feel."
![Page 15: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/15.jpg)
“Never doubt that a small group of thoughtful committed citizens can change the world – indeed it is the
only thing that ever does.”
Margaret Meade
![Page 16: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/16.jpg)
Membership • Membership of Dementia Alliance International is exclusive to
people with dementia; click on the GREEN icon on our website
• Family carers, professional service providers, researchers and health care professionals are welcome to join our newsletter mailing list, and support us through donations, click on the BLUE or BLACK icons
www.infodai.org/membership/
@DementiaAllianc
www.facebook.com/DementiaAllianceInternational [email protected]
![Page 17: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/17.jpg)
Don’t miss out...
Sign up to receive our weekly blogs when they are published...
Click on the BLUE button on the left had side of the website.
![Page 18: Dementia Alliance International · 2015-05-01 · Dementia Alliance International: Finding our voice John Sandblom . No Medical Advice Please note: The content of this presentation](https://reader033.fdocuments.net/reader033/viewer/2022050510/5f9ae091c80e471960745368/html5/thumbnails/18.jpg)
Thank you