RESULTSRESULTShighlightshighlights

Slide no 2

Our aspiration is to lead the Our aspiration is to lead the fight against diabetes by fight against diabetes by

putting people with diabetes putting people with diabetes firstfirst

Introduction

Objectives

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Establish a new unique knowledge base around young people with diabetes

Draw upon knowledge to guide actions on a national and global level

Improve awareness of the particular needs for young people with diabetes

Methodology – DAWN Youth WebTalk survey

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• Young adults with diabetes aged 18 to 25

• Parents or carers of a child or adolescent with diabetes

• Health professionals who provide care to children and young people with diabetes

3 online surveys3 online surveys

Overseen by the intl. DAWN Youth Committee, IDF and ISPAD

• To understand the unique challenges of youth with diabetes and their carers• Data collected July 07 – March 08 • Recruitment done with national committees and patient associations

Scope - DAWN Youth WebTalk survey

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Brazil

Denmark

Germany

Italy

Japan

Netherlands

Spain

USA

TOTAL

HCP

289

30

78

78

119

38

51

102

785

Parents/ Carers

of a person with diabetes (aged 0-18)

Young adults

with diabetes(aged 18 – 25)

653

601

196

147

260

252

377

1,613

4,099

394

204

195

311

235

96

154

314

1,903

1,336

835

469

536

614

386

582

2,027

6,787

TOTAL

Methodology – World-wide fact-finding study

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- To benchmark national guidelines and strategies for children with diabetes

- To create a global baseline to measure impact of DAWN Youth over time

- Consultation with national stakeholders

• Patient associations, natl. advisors

- Desktop research (validation of data)

Objective

Methodology

10. Israel

11. Italy

12. Japan

13. Luxembourg

14. Mexico

15. Netherlands

16. Poland

17. Singapore

18. South Africa

1. Brazil

2. Croatia

3. Czech R.

4. Denmark

5. Egypt

6. Germany

7. Greece

8. India

9. Ireland

19. Spain

20. Sweden

21. Turkey

22. UK

23. US

24. Ukraine

24 countries

Overall key observations

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Approx 30% of young adults felt their diabetes was rarely/never in control and had poor well-being

My diabetes is well under control

My diabetes is mostly under

control

My diabetes is rarely/ never under

controlLikely depression

Poor well-being

Good well-being

ALL ALL

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Overall key observations cont.

HCPs perceive psychosocial issues in many young people with diabetes

Experience difficulties due tolack of involvement of parents

Poor control due to pooradherence to insulin regimen

Poor control due to unresolvedpsychological/social issues

Experience difficulties due toover-protective/nagging parents

Base: all healthcare professionals (HCPs)

% of children/adolescents

Diabetes affects parents / carers too

• More than 40% of parents/carers had poor well-being or likely depression

• More than 80% of parents feel overwhelmed by their child’s diabetes at least sometimes

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Overall key observations cont.

59%

53%

45%

41%

40%

15%

Worry about hypoglycaemia

Lack of support from family/friends

Lack of support from school

Lack of knowledge and skills

Worry about weight gain

Lack of access to insulin/BGM supplies

HCPs: Reasons for poor insulin adherence

Base: all healthcare professionals (HCPs)

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Overall key observations cont.

My child sometimes has to

miss school because of

diabetes

Diabetes has a major/moderate

impact on school performance

Parent/carer Young adult HCPs

Diabetes often affects schooling

• 3 out of 4 parents cannot rely on a nurse/health worker to assist their child during school time

• 3 out of 4 parents and young adults called for teachers who were better informed about diabetes

Parents call for improvement in schools

The fact-finding study revealed an urgent need for legislative and national action

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Adequate Limited Inadequate/none

Brazil

Denmark

Germany

Italy

Japan

Netherla

..

S. Afri

ca US UK

Croatia

Egypt

Greece

India

Ireland

Luxe

mburg

Spain

Ukraine

Are staff/nurses in schools permitted to assist with insulin injections if needed?

Extensive

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Overall key observationsPerceived improvement areas

Improvement areas: HCPs

HCPs

Transition process from paediatric to adult care

Camps/networking opportunities

Support and understandingfrom school

Age-appropriateself-management education

Medical management

Psychosocial support fromhealthcare team

45%

44%

52%

55%

40%

21%

30%

34%

46%

44%Better financial diabetes

support from insurance or government

Improved public awareness and knowledge of diabetes

Better/more convenient treatment methods

Better/easier ways to monitor blood sugars

Easier availability of better types of food

Areas for improvement (beyond schooling)

Parent/carer Young adult

Additional findings

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Young adults with diabetes

• Less than 50% are involved in community activities related to diabetes

• Approx 25% find that diabetes regularly causes them embarrassment

• Approx 12% experience discrimination

Parents of children with diabetes

• Approx 70% worry about the risk of severe long-term health problems for their child

• Approx 75% experience work and living disruptions due to their child’s diabetes

• Approx 40% regularly feel overwhelmed by their child’s diabetes

The DAWN Youth survey reinforces the diverse range of influencers and influencees

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Extendedfamily

• Overall, a critical need for major improvements in care and psychosocial support was identified

• Family, health-care, school and social factors were shown to influence quality of life and self-care independently

• To improve outcomes, a holistic approach is key

From study to action: The DAWN Youth initiative defines 5 key areas for global action

Improve Improve support for support for children children with with diabetes in diabetes in schoolsschools

Peer support Peer support & networking & networking for young for young people with people with diabetesdiabetes

Promote Promote access to age-access to age-appropriate appropriate education & education & psychosocial psychosocial carecare

Address Address psychosocial psychosocial issues of issues of type 2 type 2 diabetes in diabetes in youthyouth

Support Support parents & parents & familiesfamilies

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Advocacy, engagement & media

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