Dates Institution and Location Degreenursing.emory.edu/directory/assets/biopdf/msong-CV.pdf ·...

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Song, Mi-Kyung, PhD, RN, FAAN –June 2019 1 MI-KYUNG SONG, PhD, RN, FAAN Professor Edith F. Honeycutt Endowed Chair in Nursing Director, Center for Nursing Excellence in Palliative Care Nell Hodgson Woodruff School of Nursing Emory University Telephone: (404) 727-3134 Email: [email protected] EDUCATION Dates Institution and Location Degree 2004 University of Wisconsin-Madison Madison Wisconsin PhD in Nursing focused on Palliative and End-of-Life Care Biostatistics (Minor) 1997 Catholic University Seoul, Korea MSN – Nursing, Critical Care 1992 Catholic University Seoul, Korea BSN - Nursing LICENSES AND CERTIFICATIONS 2016-Present Registered Nurse, Georgia RN25415 2011 Certificate, Intensive Bioethics Course, Kennedy Institute of Ethics, Georgetown University 2008 – 2016 Registered Nurse, North Carolina 1992 – 2016 Registered Nurse, Korea HONORS AND AWARDS 2019 2019 Distinguished Researcher Award, Southern Nursing Research Society 2018 International Nurse Researcher Hall of Fame, Sigma Theta Tau International Nursing Honor Society 2017 - Edith F. Honeycutt Chair of Nursing 2017 Ray Lehnard Lectureship, Oncology Nursing Society 2017 Woodruff Leadership Academy, Emory University 2014 Distinguished Alumna Award, Catholic University of Korea, Seoul, Korea 2013 Helen Denne Schulte Visiting Professorship, School of Nursing, University of Wisconsin-Madison, Madison, WI 2012 Inducted to Fellowship in the American Academy of Nursing (FAAN) 2012-2015 Beerstecher-Blackwell Term Distinguished Scholar, University of North Carolina at Chapel Hill 2003 Eckburg Dissertation Trust, University of Wisconsin-Madison School of Nursing 2000 Inducted to Sigma Theta Tau International Nursing Honor Society, Eta Chapter

Transcript of Dates Institution and Location Degreenursing.emory.edu/directory/assets/biopdf/msong-CV.pdf ·...

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Song, Mi-Kyung, PhD, RN, FAAN –June 2019

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MI-KYUNG SONG, PhD, RN, FAAN Professor

Edith F. Honeycutt Endowed Chair in Nursing Director, Center for Nursing Excellence in Palliative Care

Nell Hodgson Woodruff School of Nursing Emory University

Telephone: (404) 727-3134 Email: [email protected]

EDUCATION

Dates Institution and Location Degree

2004 University of Wisconsin-Madison Madison Wisconsin

PhD in Nursing focused on Palliative and End-of-Life Care

Biostatistics (Minor)

1997 Catholic University Seoul, Korea

MSN – Nursing, Critical Care

1992 Catholic University Seoul, Korea

BSN - Nursing

LICENSES AND CERTIFICATIONS

2016-Present Registered Nurse, Georgia RN25415

2011 Certificate, Intensive Bioethics Course, Kennedy Institute of Ethics, Georgetown University

2008 – 2016 Registered Nurse, North Carolina

1992 – 2016 Registered Nurse, Korea

HONORS AND AWARDS 2019 2019 Distinguished Researcher Award, Southern Nursing Research Society 2018 International Nurse Researcher Hall of Fame, Sigma Theta Tau International

Nursing Honor Society 2017 - Edith F. Honeycutt Chair of Nursing 2017 Ray Lehnard Lectureship, Oncology Nursing Society 2017 Woodruff Leadership Academy, Emory University 2014 Distinguished Alumna Award, Catholic University of Korea, Seoul, Korea 2013 Helen Denne Schulte Visiting Professorship, School of Nursing, University of

Wisconsin-Madison, Madison, WI 2012 Inducted to Fellowship in the American Academy of Nursing (FAAN) 2012-2015 Beerstecher-Blackwell Term Distinguished Scholar, University of North Carolina

at Chapel Hill 2003 Eckburg Dissertation Trust, University of Wisconsin-Madison School of Nursing 2000 Inducted to Sigma Theta Tau International Nursing Honor Society, Eta Chapter

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Alpha Epsilon Chapter (2017~) PROFESSIONAL POSITIONS

Month, Year Position Institution June 2016 – present

Professor (tenured) Director, Center for Nursing Excellence in Palliative Care

Nell Hodgson Woodruff School of Nursing Emory University

Jan 2016 – May 2016 Acting Professor Director, Center for Nursing Excellence in Palliative Care

Nell Hodgson Woodruff School of Nursing Emory University

April 2016 – present Senior Faculty Fellow Emory Center for Ethics

Nov 2015 – Dec 2015 Visiting Professor Nell Hodgson Woodruff School of Nursing Emory University

Jan 2011 – Dec 2015 2012 – Dec 2015 2008 – 2010

Associate Professor (tenured) Beerstecher-Blackwell Term Distinguished Scholar Assistant Professor (tenure track)/Graduate Faculty

University of North Carolina at Chapel Hill School of Nursing

2010 – present Faculty Associate UNC Center for Bioethics

2008 – present Faculty Fellow UNC Parr Center for Ethics

2012 – 2015 2004 – 2007 2006 – 2007

Adjunct Associate Professor Assistant Professor (tenure track) Graduate Faculty

University of Pittsburgh School of Nursing Pittsburgh, Pennsylvania

2004 – 2009 Adjunct Faculty Center for Bioethics & Health Law, University of Pittsburgh, Pittsburgh, Pennsylvania

2003 – 2004 1999 – 2003

Project Director Research Assistant

School of Nursing University of Wisconsin-Madison, Madison, Wisconsin

1997 – 1998 Course Instructor Seo-Il University, Department of Nursing, Seoul, Korea

1996 – 1999 Clinical Instructor Inha University, Department of Nursing, Incheon, Korea

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1993 – 1996 Nurse Manager Intensive Care Unit, St. Mary’s Hospital, Seoul, Korea

1992 – 1993 Staff Nurse Cardiothoracic Surgery Unit, St. Mary’s Hospital, Seoul, Korea

SCHOLARSHIP: GRANTS AND OTHER FUNDING

Research Grants Pending SPIRIT for Persons with Dementia and Complex Multimorbidity (Song, M.K.) Principal Investigator (15%) NIH/NIA, 3R01NR017018-03S1 Total costs: $390,000 Funding period:

Research Grants Funded Current: Roybal Translational Research Center to Promote Context-Specific Caregiving Mastery for Informal Caregivers of Community-Dwelling Persons Living with Alzheimer's Disease or Related Disorders (Hepburn, K. & Perkins, M.) Co-investigator (10%) NIH/NIA, 1P30AG066200-01 Total costs: $3.3M Funding period: Informal Caregiving Networks for Dementia Superimposed on Complex Multimorbidity (Song, M.K.) Principal Investigator (25%) NIH/NIA, 3R01NR017018-02S1 Total costs: $357,593 Funding period: 09/13/2018-03/31/2019 (03/31/2022) Center for the Study of Symptom Science, Metabolomics and Multiple Chronic Conditions (Corwin, E.) Co-Investigator/Associate Director (10%) NIH/NINR, 1P30NR018090-01 Total costs: $2.73M Funding period: 07/01/2018-06/30/2023 Preparation for End-of-Life Decision Making in Mild Alzheimer’s Disease (Song, M.K.) Principal Investigator (30%) NIH/NIA, 1R01AG057714 Total costs: $3M Funding period: 09/30/2017-04/30/2022 An Effectiveness-Implementation Trial of SPIRIT in ESRD (Song, M.K.)

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Principal Investigator (20%) NIH/NINR, R01NR017018 Total costs: $3.4M Funding period: 06/01/2017-03/31/2022 A Psychosocial Intervention to Improve Outcomes for Patients with Advanced Cancer (Park, E.M.) NIH/NCI, 1K07CA218167-01 (Cancer prevention, control, behavioral sciences, and population sciences career development award) Co-Primary Mentor (0%) Total costs: $848,485 Funding period: 08/01/2017-07/31/2022 Completed: Adapting the Parenting Concerns Questionnaire for Patients with Advanced Cancer (Park, E.M.) Co-Investigator (0%) NC TraCS 2KR891706 Total costs: $2,000 Funding period: 2017-2018 Understanding Networks of Self-Management and Care Coordination among Patients on Dialysis: A Pilot Study (Song, M.K.) Principal Investigator Period: 2018-2019 Understanding Treatment Decision-Making in Parents with Advanced Cancer (Park, E.M.) Primary Mentor (0%) North Carolina Translational & Clinical Sciences (NC TraCS) Institute, KL2TR001109 Total costs: $153,700 Funding period: 2015-2017 A Nursing Home Trial of Decision Support for Advanced Dementia (Hanson, L.C.) Co-Investigator NIH/NIA, R01AG037483 Total costs: $2.96M Funding period: 2011- 2017 (NCE) SPIRIT-HF, an Intervention to Prepare LVAD Patients and Their Surrogates for End-of-Life Decision-Making: A Pilot RCT (Metzger, M.) Co-Investigator Sigma Theta Tau International/Hospice and Palliative Nursing Foundation ($10,000) National Center for Research Resources, TraCS a pilot project ($2,000) Sigma Theta Tau International-Alpha Alpha Chapter ($1,000) Total costs: $13,000 Funding period: 2014-2015 Mapping Multidimensional Illness Trajectories of Patients with ESKD (Song, M.K.) Principal Investigator NIH/NINR, R01NR013359

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Total costs: $1.7M Funding period: 2011-2015 Decision-Making about Starting Dialysis and Its Relationships to End-of-Life Treatment Preferences (Song, M.K.) Principal Investigator NIH/Office of the Director, R01NR011464-03S1 (Bioethics supplement) Total costs: $145,630 Funding period: 2011-2014 Examination of the Management of Clinical Ethical Issues in Free-Standing Dialysis Facilities (Song, M.K.) Principal Investigator The Greenwall Foundation/The Kornfeld Program in Bioethics and Patient Care Total costs: $49,993 Funding period: 2011- 2013 A Randomized Controlled Trial of SPIRIT: A Representational Intervention to Promote Preparation for End-of-Life Decision Making (Song, M.K.) Principal Investigator NIH/NINR, R01NR011464 Total costs: $3.14M Funding period: 2009-2015 (NCE) Assessing Daily Burdens of Patients with End-Stage Renal Disease (Song, M.K.) Principal Investigator National Center for Research Resources, The NC TraCS (The North Carolina Translational & Clinical Sciences Institute), A pilot project under UL1RR025747 Total costs: $10,000 Funding period: 2009- 2011 Randomized Controlled Trial of Pocket PATH: A Computerized Intervention to Promote Self-Care (DeVito Dabbs, A.) Co-Investigator NIH/NINR, R01NR010711 Total costs: $2.35M Funding period: 2008–2014 National Survey of the Prevalence and Characteristics of Lung Recipient Referrals to Palliative Care (Song, M.K.) Principal Investigator International Society for Heart & Lung Transplantation Total costs: $12,000 Funding period: 2007–2009 Improving End-of-Life Communication with ESRD African American Patients (Song, M.K.) Principal Investigator NIH/NINR, R21NR009662

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Total costs: $387,244 Funding period: 2006–2009 Program to Improve Communication about End-of-Life among African American Patients with ESRD (Song, M.K.) Principal Investigator University of Pittsburgh, Central Research Development Fund (CRDF) Total costs: $11,530 Funding period: 2005–2007 An Exploration of the Illness Trajectory after the Onset of Chronic Lung Rejection (Song, M.K.) Principal Investigator University of Pittsburgh School of Nursing, Center for Research & Evaluation (CRE) Total costs: $12,000 Funding period: 2005–2007 Exploring Caregiver Perspectives of Treatment Decision Making after the Onset of Chronic Lung Rejection (Song, M.K.) Principal Investigator University of Pittsburgh School of Nursing Total costs: $12,000 Funding period: 2005–2007 Effects of Patient-centered Advance Care Planning in Open-Heart Surgical Patients (Song, M.K.) Principal Investigator Sigma Theta Tau International Total costs: $5,000 Funding period: 2003-2004

Other Research Projects Current

Educational, Training, and Program Grants Current Training in Interventions to Improve Outcomes in Chronic Conditions (Dunbar, S. & Song, M.K.) Emory School of Nursing Multiple PI/Co-Director (10%) NIH/NINR, T32NR012715-06A1 Total costs: $3,308,773 Funding period: 07/01/2018-06/30/2023 Completed Interventions for Preventing and Managing Chronic Illness (Mishel, M. & Santacroce, S.) at UNC-CH Participating Faculty

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NIH, NINR Total costs: $2.1M Funding Period: 2011-2016 Health Care Quality and Patient Outcomes (Mark, B.) at UNC-CH Participating Faculty NIH, NINR Total costs: $2.0M Funding Period: 2009-2014 Inventions/Instruments/Products 2009 Surrogate Decision-Making Confidence Scale

2006 SPIRIT: Shared Patient’s Illness Representations to Increase Trust (a theory-guided end-of-life communication intervention), SPIRIT training manualTM and SPIRIT Intervention GuideTM

2005 Decisional Conflict Scale, end-of-life version

SCHOLARSHIP: PUBLICATIONS

Original Articles in Peer-Reviewed Journals (*data-based publications; +corresponding or senior author; authors underlined are students or mentees)

1. *Kim, S., Savage, T.A., Song, M.K., Vincent, C., Park, C.G., Ferrans, C.E., & Kavanaugh, K. (in press).

Nurses’ experiences of end-of-life care in neonatal intensive care units in Korea. Applied Nursing Research.

2. *+Song, M.K., Ward, S.E., Hepburn, K., Paul, S., Kim, H., Shah, R.C., Morhardt, D.J., Medder, L., Lah, J., & Clevenger, C. (in press). Can persons with dementia meaningfully participate in an advance care planning discussion? A mixed-methods study of SPIRIT. Journal of Palliative Medicine. PMID: _____; PMCID: _________

3. *+Song, M.K., Paul, S., Plantinga, L., Henry, C., & Turberville-Trujillo, L. (2019). Social networks of self-care and perceived treatment burden among patients on in-center hemodialysis. Kidney Medicine. PMID: __________

4. *+Kim, H, Park, E.M., Henry, C., Ward, S.E., & Song, M.K. (2019). Control conditions that are neither usual care nor no treatment in randomized trials of psychoeducational palliative care interventions: A systematic review. American Journal of Hospice and Palliative Medicine, 36(4), 339-347. PMID: 30343586; PMCID: PMC6444917.

5. *+Jo, M., Song, M.K., Knafl, G., Van Riper, M., & Beeber, L. (2019). Family-clinician communication in the UC and its relationship to psychological distress among family members: A cross-sectional study. International Journal of Nursing Studies. PMID: 31005678

6. Seaman, J.B., Arnold, R.M., Buddadhumaruk, P., Shields, A., Palkoska, R.M., Felman, K., Newdick, W., SanPedro, R., Happ, M.B., Song, M.K., Kahn, J.M., Reynolds III, C.F., Angus, D., Landefeld, S., & White, D.B. (2018). Protocol and fidelity monitoring plan for a trial of an intervention to support surrogate decision makers in intensive care units. Annals of the American Thoracic Society, 15(9), 1083-1091. PMID: 30088971

7. *Tole, M., Song, M.K., Lin, F-C., & Hanson, L.C. (2018). Perceptions of family decision makers of nursing home residents with advanced dementia regarding the quality of communication around

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end-of-life care. Journal of the American Medical Directors Association, 19(10), 879-883. PMID: 30032597

8. +Song, M.K., Ward, S.E., Hepburn, K., Paul, S., Shah, R.C., & Morhardt, D.J. (2018). SPIRIT advance care planning intervention in early stage dementia: An NIH Stage I behavioral intervention development trial. Contemporary Clinical Trials, PMID: 29870867; PMCID: PMC6067971

9. *Ernecoff, N.C., Zimmerman, S., Mitchell, S.L., Song, M.K., Lin, F-C., Wessell, K., & Hanson, L.C. (2018). Concordance between goals of care and treatment decisions for persons with dementia. Journal of Palliative Medicine, 21(10), 1442-1447, PMID: 29957095

10. *Park, E.M., Deal, A., Yopp, J., Edwards, T., Song, M.K., Nakamura, Z., & Rosenstein, D. (2018). Understanding health-related quality of life in adult women with metastatic cancer who have dependent children. Cancer, 124(12), 2629-2636. PMID: 29732554; PMCID: PMC5990432

11. +Kim, H., & Song, M.K. (2018). Medical decision making for unbefriended adults: State of the science. American Journal of Hospice and Palliative Medicine, 35(9), 1227-1234. PMID: 29390870

12. *+Kim, S., Kang, S., & Song, M.K. (2018). Intensity of care at the end of life among older adults in Korea. Journal of Palliative Care, 33(1), 47-52. PMID: 29361883

13. *+Song, M.K., Paul, S., Ward, S.E., Gilet, C.A., & Hladik, G.A. (2018). One-year linear trajectories of self-reported symptoms, physical functioning, cognitive functioning, emotional well-being, and spiritual well-being among patients on dialysis. American Journal of Kidney Diseases, 72(2), 198-204. PMID: 29395483; PMCID: PMC4294946

14. +Song, M.K., Unruh, M., Manatunga, A., Plantinga, L., Lea, J., Jhamb, M., Kshirsagar, A.V., & Ward. S.E. (2018). SPIRIT trial: A phase III pragmatic trial of an advance care planning intervention in ESRD, Contemporary Clinical Trials, 64, 188-194. PMID: 28993286; PMCID: PMC5742022

15. Head, B.A., Song, M.K., Wiencek, C., Nevidjon, B., Fraser, D., Mazanec, P. (2018). Palliative nursing summit-nurses leading changes and transforming care: Nursing’s role in communication and advance care planning. Journal of Hospice & Palliative Nursing, 20(1), 23-29. PMID: 30063610

16. Santacroce, S.J., Leeman, J., & Song, M.K. (2018). A training program for nurse scientists to promote intervention translation. Nursing Outlook, 66(2), 149-156. PMID: 29096878; PMCID: PMC5858986

17. *+Park, E.M., Tan, X.M., Stephenson, E.M., Deal, A.M., Rosenstein, D.L., Yopp, J.M., & Song, M.K. (2018). Psychometric analysis of the parenting concern questionnaire in women with metastatic cancer. Journal of Pain and Symptom Management, 55(2), 451-457. PMID: 28947143

18. +Jo, M., Yoo, Y-S., Knafl, G., Van Riper, M., Beeber, L., & Song, M.K. (2017). Family-clinician communication about end-of-life care in Korea. Journal of Hospice & Palliative Nursing, 19(6), 597-601. PMID: _____________

19. *+Jo, M., Song, M.K., Van Riper, M., Yoo, Y-S., Knafl, G., & Beeber, L. (2017). Translation and cultural adaptation of the quality of communication questionnaire for ICU family members in Korea. Heart & Lung, 46(6), 458-463. PMID: 28912058

20. +Song, M.K., & Happ, M.B. (2017). Generating high quality evidence in palliative and end-of-life care. Heart & Lung, 46(1), 1-2. PMID: 27989398

21. O’Hare, A.M., Song, M.K., Kurella Tamura, M., & Moss, A.H. (2017). Research priorities for palliative care for older patients with advanced chronic kidney disease. Journal of Palliative Medicine, 20(5), 453-60. PMID: 28463635

22. *Hanson, L.C., Zimmerman, S., Song, M.K., Lin, F-C., Rosemond, C., Carey, T., & Mitchell, S. (2017). Effect of the goals of care intervention for advanced dementia: A randomized clinical trial. JAMA-Internal Medicine, 177(1), 24-31. PMID: 27893884; PMCID: PMC5234328

23. *+Song, M.K., Metzger, M., & Ward, S.E. (2017). Process and impact of an advance care planning intervention evaluated by bereaved surrogate decision-makers of dialysis patients. Palliative Medicine, 31(3), 267-274. PMID: 27272317; PMCID: PMC Journal – In Process

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24. *Alrawashdeh, M., Zomak, R., DeVito Dabbs, A., Dew, M.A., Song, M.K., & Pilewski, J. (2017). Pattern and predictors of readmission during the first year after lung transplantation. The Journal of Heart and Lung Transplantation, 17(5), 1325-1333. PMID: 27676226

25. *Hamilton, J.B., Worthy, V.C., Moore, A.D., Nakia, C.B., Steward, J., & Song, M.K. (2017). Messages of hope: Helping family members to overcome fears and fatalistic attitudes toward cancer. Journal of Cancer Education, 32(1), 190-197. PMID: 26314571

26. *Gilliam, R., Song, M.K., Zimmerman, S., Rosemond, C., Chrisholm, L., Lin, F-C., & Hanson, L.C. (2016). Fidelity to a behavioral intervention to improve goals of care decisions for nursing home residents with advanced dementia. Clinical Trials, 13(6), 599-604. PMID: 27271683; PMCID: PMC5133163

27. +Song, M.K., DeVito Dabbs, A., & Ward, S.E. (2016). A SMART design to optimize interventions for patients and family caregiver outcomes. Nursing Outlook, 64(4), 299-305. PMID:27264454

28. *+Metzger, M. Song, M.K., Devane-Johnson, S. (2016). Perspectives of Patients with LVAD and surrogates on their experiences with an advance care planning intervention. Heart & Lung, 45(4), 305-10. PMID:27377333

29. *Park, E.M., Check, D.K., Song, M.K., Reeder-Hayers, K.E., Hanson, L.C., Yopp, J.M., Rosenstein, D.L., & Mayer, D.K. (2016). Parenting while living with advanced cancer: A qualitative study. Palliative Medicine, 31(3), 231-238. PMID: 27484674

30. Song, M.K. (2016). Quality of life of patients with advanced chronic kidney disease receiving conservative care without dialysis. Seminars in Dialysis, 29(2), 165-9. PMID: 26860542.

31. *+Metzger, M., Song, M.K., Ward, S.E., Chang, P., Hanson, L.C., & Lin, F-C. (2016). A randomized controlled pilot trial to improve advance care planning in LVAD patients and their surrogates. Heart & Lung, 45(3), 186-92. PMID:26948697

32. *+Song, M.K., Ward, S.E., Hanson, L.C., Metzger, M., & Kim, S. (2016). Determining consistency of surrogate decisions and end-of-life care received with patient goals-of-care preferences. Journal of Palliative Medicine, 19(6), 610-6. PMID: 26982909; PMCID: PMC 4904157

33. *Parvez, S., Abdel-Kader, K., Pankratz, S., Song, M.K., & Unruh, M. (2016). A survey of providers’ knowledge, attitudes, and practices surrounding conservative management for patients with advanced chronic kidney disease. Clinical Journal of American Society of Nephrology, 11(5), 812-820. PMID:27084874

34. *+Song, M.K., Ward, S.E., Lin, F-C, Hamilton, J.B., Hanson, L.C., Hladik, G.A., & Fine, J.P. (2016). Racial differences in outcomes of an advance care planning intervention for dialysis patients and their surrogates. Journal of Palliative Medicine, 19(2), 134-142. PMID:26840848; PMCID: PMC4753624

35. *DeVito Dabbs, A., Song, M.K., Mayers, B., Li, R., & Dew, M.A. (2016). A randomized controlled trial of a mobile health technology to promote self-management after lung transplantation. American Journal of Transplantation, 16(7), 2172-80. PMID: 26729617; PMCID: PMC4925283

36. *Park, E.M., Deal, A.M., Check, D.K., Hanson, L.C., Deal, A.M., Reeder-Hayes, K.E., Mayer, D.K., Yopp, J.M., Song, M.K., Muriel, A.C., & Rosenstein, D.L. (2016). Parenting concerns, quality of life, and psychological distress in parents with advanced cancer. Psycho-Oncology, 25(8), 942-8. PMID: 26282575

37. *+Song, M.K., Ward, S.E., Hladik, G. A., Bridgman, J.C., & Gilet, C.A. (2016). Depressive symptom severity, contributing factors, and self- management among chronic dialysis patients. Hemodialysis International, 20(2), 286-92. PMID: 25998623; PMCID: PMC4654980

38. *+Song, M.K., Ward, S.E., Fine, J.P., Hanson, L.C., Lin, F-C., Hladik, G.A., Hamilton, J.B., & Bridgman, J.C. (2015). Advance care planning and end-of-life decision making in dialysis: A randomized controlled trial targeting patients and their surrogates. American Journal of Kidney Diseases, 66(5), 813-22. PMID: 26141307; PMCID: PMC5972830

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39. +Song, M.K., & Ward, S.E. (2015). Making visible a theory-guided advance care planning intervention. Journal of Nursing Scholarship. 47(5), 389-96. PMID: 26219616; PMCID: PMC Journal – In Process

40. +Song, M.K., & Ward, S.E. (2015). Assessment effects in educational and psychosocial intervention trials: An important but often-overlooked problem. Research in Nursing & Health, 38(3), 241-7. PMID: 25728502; PMCID: PMC4439294

41. Parvez, S, Abdel-Kader, K., Song, M.K., & Unruh, M. (2015). Conveying uncertainty in prognosis to patients with ESRD. Blood Purification. 39(1-3), 58-64. PMID: 25661575

42. *+Song, M.K., Ward, S.E., Bair, E., Weiner, L.J., Bridgman, J.C., Hladik, G.A., & Gilet, C.A. (2015). Patient-reported cognitive functioning and daily functioning in chronic dialysis patients. Hemodialysis International, 19(1), 90-9. PMID: 25110172; PMCID: PMC4294946

43. +Song, M.K., & Ward, S.E. (2014). Decisions about dialysis and other life-sustaining treatments should not be made separately. American Journal of Kidney Disease, 64(5), 817-820. PMID: 25343998; PMCID: PMC Journal – In Process

44. *+Lutz, E.R., Costello, K.L., Jo, M., Gilet, C.A., Hawley, J.M., Bridgman, J.C., & Song, M.K. (2014). A systematic evaluation of websites offering information on chronic kidney disease. Nephrology Nursing Journal, 41(4), 355-363. PMID:25244890; PMCID: PMC4176705

45. *+Song, M.K., & Ward, S.E. (2014). Extent of informed decision-making about starting dialysis: Does patients’ age matter? Journal of Nephrology. 27(5), 571-576. PMID: 24519843; PMCID: PMC4130809

46. *+Song, M.K., Hanson, L.C., Jo, M., Gilet, C.A., Reed, T., & Hladik, G.A. (2014). Management of ethical issues related to care of seriously ill dialysis patients in free-standing facilities. Journal of Pain and Symptom Management, 48(3), 343-352. PMID: 24411183

47. DeVito Dabbs, A., Song, M.K., DeGeest, S., & Davidson, P.M. (2013). Promoting patient and caregiver engagement in self-management of chronic illness. Nursing Practice and Research. 180757. PMID: 2381334; PMCID: PMC3679773

48. *+Song, M.K., Lin, F-C., Gilet, C.A., Arnold, R.M., Bridgman, J.C., & Ward, S.E. (2013). Patients’ perspectives on informed decision-making surrounding dialysis initiation. Nephrology Dialysis Transplantation, 28(11), 2815-23. PMID: 23901048; PMCID: PMC3811056

49. *+Song, M.K., & Ward, S.E. (2013). Disconnect between emergency contacts and surrogate decision-makers in the absence of advance directives. Palliative Medicine, 27(8), 789-92. PMID: 233376786; PMCID: PMC Journal – In Process

50. DeVito Dabbs, A., Song, M.K., Myers, B., Hawkins, R.P., Aubrecht, J., Begey, A., Connolly, M., Li, R., Pilewski, J.M., Bermudez, C.A., & Dew, M.A. (2013). Clinical trials of health information technology interventions intended for patient use: Unique issues and considerations. Clinical Trials: Journal of the Society for Clinical Trials. 10(6), 896-906. PMID: 23867222; PMCID: PMC38084

51. +Song, M.K., Lin, F-C., Ward, S.E., & Fine, J.P. (2013). Composite variables: When and how. Nursing Research, 62(1), 45-9. PMID: 23114795; PMCID: PMC5450815

52. *DeVito Dabbs, A., Terhorst, L. Song, M.K., Shellmer, D.A., Aubrecht, J., Connolly, M., & Dew, M.A. (2013). Quality of recipient-caregiver relationship and psychological distress are correlates of self-care agency after lung transplantation. Clinical Transplantation, 27(1), 113-20. PMID: 23004565; PMCID: PMC3530624

53. *Lindley, L.C., Mark, B., Lee, S-Y., Domino, M., Song, M.K., & Vann J.J. (2013). Institutional and resource factors associated with the provision of hospice care for children. Journal of Pain and Symptom Management, 45, 701-11. PMID: 22921174; PMCID: PMC3467095

54. *+Song, M.K., Ward, S.E., Lin, F-C., Hanson, L.C., Hladik, G.A., Hamilton, J., Bridgeman, J.C., & Miles, M.S. (2012). Psychological symptoms and end-of-life decision-making confidence of surrogates of

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dialysis patients. Journal of Nephrology Social Work, 37, 24-30. PMID: 25242897; PMCID: PMC4169048

55. *Cox, C.E., Lewis, C.L., Hanson, L.C., Hough, C.L., Kahn, J.M., White, D.B., Song, M.K., Tulsky, J., & Carson, S.S. (2012). Development and pilot testing of a decision aid for surrogates of patients with prolonged mechanical ventilation. Critical Care Medicine, 40(8), 2327-2334. PMID:22635048

56. *+Song, M.K., Ward, S.E., & Lin, F-C. (2012). End-of-life decision-making confidence in surrogates of African-American dialysis patients is overly optimistic. Journal of Palliative Medicine, 15(4), 412-17. PMID: 22468770; PMCID: PMC3322516

57. *Xu, J., Adeboyejo, O., Aubrecht, J., Song, M.K., Thiry, L., & DeVito Dabbs, A. (2012). Daily burdens of recipients and family caregivers after lung transplantation. Progress in Transplantation, 22(1), 41-47. PMID: 22489442; PMCID: PMC3331720

58. *Cipkala-Gaffin, J., Talbott, E., Song, M.K., Bromberger, J., & Wilson, J. (2012). Associations among depressive symptoms, anxiety, anger, hostility, and satisfaction with life in women with polycystic ovary syndrome. Journal of Women’s Health, 21(2), 179-87. PMID: 22004245

59. DeVito Dabbs, A., Song, M.K., Hawkins, R., Aubrecht, J., Kovach, K., Terhorse, L., & Callen, J. (2011). An intervention fidelity framework for technology-based behavioral interventions. Nursing Research, 60(5), 340-347. PMID 21879786; PMC3164967

60. *+Song, M.K., Gillet, C., Lin, F., MacHardy, N., Stalberg, K., DeVito Dabbs, A.J., Fine, J.P., & Fuller, E. (2011). Characterizing daily life experience of maintenance dialysis patients. Nephrology Dialysis Transplantation, 26, 3671-3677. PMID: 21382996; PMCID: PMC3247795

61. *+Shields, A.M., Park, M., Ward, S.E., & Song, M.K. (2010). Recruitment and retention against quadruple challenges in a clinical trial of end-of-life communication intervention. Journal of Hospice & Palliative Nursing, 12(5), 312-318. PMID: 20936087; PMCID: PMC2950605

62. *+Song, M.K., DeVito Dabbs, A., Studer, S.M., Arnold, R.M., & Pilewski, J. (2010). Exploring the meaning of chronic rejection after lung transplantation and its impact on clinical management and caregiving. Journal of Pain and Symptom Management, 40(2), 246-255. PMID: 20541897

63. *Lindell, K.O., Olshansky, E., Song, M.K., Zullo, T.G., Gibson, K.F., Kaminski, N., & Hoffman, L.A. (2010). Impact of a disease management program on symptom burden and health-related quality of life in patients with idiopathic pulmonary fibrosis and their care partners. Heart & Lung, 39(4), 304-313. PMID20561836

64. *+Song, M.K., Donovan, H.S., Piraino, B., Choi, J., Bernardini, J., Verosky, D., & Ward, S.E. (2010). Effects of an intervention to improve communication about end-of-life among African Americans with chronic kidney disease: A pilot study. Applied Nursing Research, 23, 65-72. PMID: 20420992

65. *+Song, M.K., Happ, M.B., & Sandelowski, M. (2010). Development of a tool to assess fidelity to a psycho-educational intervention. Journal of Advanced Nursing, 66, 673-682. PMID: 20423402; PMCID: PMC2861796

66. *+Song, M.K., & Hanson, L.C. (2009). Relationships between psychosocial-spiritual well-being and end-of-life preferences and values in African-American dialysis patients. Journal of Pain and Symptom Management, 38, 372-380. PMID: 19356896; PMCID: PMC2847486

67. *+Song, M.K., Ward, S.E., Happ, M.B., Piraino, B., Donovan, H.S. Shields, A-M., & Connolly, M.C. (2009). Randomized controlled trial of SPIRIT: An effective approach to prepare African-American dialysis patients and families for end of life. Research in Nursing & Health, 32, 260-273. PMID: 19205027; PMCID: PMC2719959

68. *+Song, M.K., DeVito Dabbs, A.J., Studer, S.M., & Arnold, R.M. (2009). Palliative care referrals after lung transplantation in major lung transplant centers. Critical Care Medicine, 37, 1288-1292. PMID: 19242344

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69. Lingler, J.H., Sherwood, P.R., Crighton, M.C., Song, M.K., & Happ, M.B. (2008). Conceptual challenges in the study of caregiver-care recipient relationships. Nursing Research, 57, 367-372. PMID: 18794721

70. *+Song, M.K., DeVito Dabbs, A., Studer, S.M., & Zangle, S.E. (2008). The course of illness after the onset of chronic rejection in lung transplant recipients. American Journal of Critical Care, 17, 246-253. PMID: 18450681

71. DeVito Dabbs, A.J., & Song, M.K. (2008). Risk profile for cardiovascular morbidity and mortality after lung transplant. Nursing Clinics of North America, 43, 37-53. PMID: 18249224

72. Donovan, H.S., Ward, S.E., Song, M.K., Heidrich, S.M., Gunnarsdottir, S., & Phillips, C.M. (2007). The representational approach to patient education: An update and review of the empirical research. Journal of Nursing Scholarship, 39, 259-265. PMID: 17760800

73. *+Song, M.K., & DeVito Dabbs, A.J. (2006). Advance care planning after lung transplantation: A case of missed opportunities. Progress in Transplantation, 16, 222-225. PMID: 17007156

74. *+Song, M.K., & Sereika, S.M. (2006). An evaluation of the decisional conflict scale for measuring the quality of end-of-life decision making. Patient Education & Counseling, 61, 397-404. PMID: 15970420

75. *+Song, M.K., Kirchfoff, K.T., Douglas, J., Ward, S.E., & Hammes, B.J. (2005). A randomized, controlled trial to improve advance care planning among patients undergoing cardiac surgery. Medical Care, 43, 1049-1053. PMID: 16166875

76. *Oakley, L.D., Song, M.K., & Debose-McQurter, M. (2005). Positive and negative depression coping in low income African American women. Research in Nursing & Health, 28, 106-116. PMID: 15779059

77. *Briggs, L.A., Kirchhoff, K.T., Hammes, B.J., Song, M.K., & Colvin, E. (2004). Patient-centered advance care planning in special patient population: A pilot study. Journal of Professional Nursing, 20(1), 47-58. PMID: 15011193

78. +Song, M.K. (2004). Effects of end-of-life discussions on patients’ affective outcomes. Nursing Outlook, 52, 118-125. PMID: 15197360

79. Kirchhoff, K.T., Song, M.K., & Kehl, K. (2004). Caring for the family of the critically ill patient. Critical Care Clinics of North America, 20, 453-466. PMID: 15183213

80. *Kim, H., & Song, M.K. (2001). A study on the use of sedatives, analgesics, & muscle relaxant for mechanically ventilated patients. Korean Journal of Aerospace and Environmental Medicine, 11(2), 114-120.

81. *+Song, M.K., & Choi, E. (1999). Factors affecting pre-hospital delay time in patients with acute myocardial infarction. Journal of Korean Academy of Nursing, 14, 335-340.

82. *Kim, H., & Song, M.K. (1998). Comparison of rectal temperature and tympanic membrane temperature in ICU patients. Nursing Science, 10(2), 22-30. Under review (*data-based; +corresponding or senior author; authors underlined are students or

mentees) 1. *+McLaughlin, S.N., Herzberg, V., Piazza, A.J., & Song, M.K. Use of palliative care consultation

services for infants with life-threatening conditions in a metropolitan hospital. Advances in Neonatal Care.

2. Kovaleva, M.A., Epps, F.R., Jennings, B.M., Song, M.K., Clevenger, C., Griffiths, P.C., & Hepburn, K. Outpatient dementia care programs in the U.S. since 2011: A scoping review. The Gerontologist.

3. *Kovaleva, M.A., Higgins, M., Jennings, B.M., Song, M.K., Clevenger, C.K., Griffiths, P.C., & Hepburn, K. Patient and caregiver outcomes at an integrated memory care clinic, Journal of American Geriatrics Society.

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Book Chapter 1. DeVito Dabbs, A., Song, M.K., & Switzer, S.D. (2011). Integrative therapies for lung transplantation

Recipients. In L. Chlan & M.I. Hertz (Eds), Integrative therapies in lung health and sleep (pp. 145-154). New York, NY: Springer.

2. Song, M.K., Sandelowski, M., & Happ, M.B. (2010). Current practices and emerging trends in conducting mixed methods intervention studies. In A. Tashakkori & C. Teddlie (Eds), Handbook of mixed methods in social & behavioral research (2nd ed., pp. 725-747). Thousand Oak, CA: Sage.

Research Abstracts and Proceedings (*data-based; +corresponding or senior author; authors underlined are students or mentees)

1. *+Park, E.M., Deal, A.M., Hanson, L.C., Rosenstein, D.L., Quillen, L.J., Hailey, C.E., Chien, S.A.,

Sanoff, H.K., Carey, L.A., & Song, M.K. (2019). A Comparison of Treatment Preferences, Decision-making, and Psychosocial Outcomes in Advanced Cancer Patients with and without Minor Children: A Matched Cohort Study, ASCO (refereed).

2. *+Henry, C., Gustafson, C., Paul, L., Plantinga, L., Turbeville-Trujillo, L., Ojeniyi, T., Song, M.K. (2019). Treatment burden and social networks of self-management and care coordination among patients on hemodialysis. American Journal of Kidney Diseases, 73(5), 680.

3. *+Spero, H., Kim, H., Song, M.K. (2019). Comparison of State POLST Forms: Scope of life-sustaining treatment. Journal of Pain and Symptom Management, 57(2), 518-519.

4. *+Henry, C., Kim, H., Park, E., Ward, S.E., & Song, M.K. (2019). Control groups in RCTs of psychoeducational palliative care intervention: A systematic review. Journal of Pain and Symptom Management, 57(2), 497-498.

5. *+Park, E.M., Deal, A.M., Rosenstein, D.L., Hailey, C.E., Schille, C.D., Chien, S.A., Song, M.K. (2018). The influence of parental status on treatment preferences, advance care planning, and health-related quality of life among adults with metastatic cancer. Journal of Pain and Symptom Management, 55(2), 608.

6. *Ernecoff, N.C., Zimmerman, S., Mitchell, S.L., Song, M.K., Lin, F-C., Wessell, K., & Hanson, L.C. (2017). Goals of care and the dying experience in advanced dementia: What might be learned by implementing goals of care. Journal of Pain and Symptom Management, 53(2), 416.

7. *Alrawashdeh, M., DeVito Dabbs, A., Dew, M.A., Song, M.K., Zomak, R., Pilewski, J., Bermudez, C. (2015). Predictors of discharge destination after lung transplantation. The Journal of Heart and Lung Transplantation, 34(4), S73.

8. *+Song, M.K., Ward, S.E., Bridgman, J.C., Gilet, C.A., & Hladik, G.A. (2014). Depressive symptoms and self-management among chronic dialysis patients. Journal of American Society of Nephrology.

9. *+Metzger, M., Song, M.K., Ward, S.E. (2015). Events preceding final hospitalizations or deaths and end-of-life decision in patients on chronic dialysis. Journal of Pain and Symptom Management, 49(2), 442-443.

10. *DeVito Dabbs, A, Dew, M.A., Myers, B.A., Song, M.K., Li, R., Zomak, R., Pilewski, J., & Bermudez, C.A. (2014). Randomized controlled trial of Pocket PATH®, an mHealth intervention to promote self-management after lung transplantation. American Journal of Respiratory & Critical Care Medicine,189, A5361.

11. *+Song, M.K., Ward, S.E., Bair, E., Weiner, L.J., Bridgman, J.C., Hladik, G.A., & Gilet, C.A. (2014). Relationships of objective and subjective cognitive impairment to daily functioning among maintenance dialysis patients. Palliative Medicine. 28(6), 818-819.

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12. *+Song, M.K., Arnold, R.M., & Gilet, C.A. (2012). Physicians’ communication during decision making to start dialysis: Patients’ perspectives. Journal of American Society of Nephrology, 23, 51A-52A.

13. *+Song, M.K., Gillet, C., Lin, F., MacHardy, N., DeVito Dabbs, A., Fine, J.P., Stalberg, K., & Fuller, E. (2011). Assessing daily illness burden of patients with ESRD. Advances in Chronic Kidney Disease. 18(2), 154.

14. *DeVito Dabbs, A., Dew, M.A., Terhorst, L., Song, M.K., et al. (2011). Self-care agency and its predictors among lung transplant recipients. The Journal of Heart and Lung Transplantation, 30(4), S165.

15. *Cipkala-Gaffin, J., Talbott, E., Song, M.K., Bromberger, J., & Wilson, J. (2010). Associations among depressive symptoms, anxiety, anger, hostility and satisfaction with life in women with polycystic ovary disease (PCOS). Journal of Women’s Health, 18(5), 747.

16. *+Song, M.K., De Vito Dabbs, A., Studer, S.M., & Arnold, R.M. (2009). Palliative care referrals after lung transplantation in major transplant centers in the U.S. The Journal of Heart and Lung Transplantation, 28(2S), 268-269.

17. *Cipkala-Gaffin, J.A., Talbott, E.O., Barinas-Mitchell, E., Song, M.K., Brown, C., Wilson, J. (2009). Psychological factors and intima-media thickness in polycystic ovary syndrome. American Journal of Epidemiology, 169, S68.

18. *+Song, MK., DeVito Dabbs, A. (2008). Ethical considerations of institutionalized death after lung transplant. American Journal of Respiratory & Critical Care Medicine, 177, 7, A841.

19. *Gallek, M.J., Song, M.K., Sherwood, P.R., et al. (2007). The use of a cognitive functional index following aneurismal subarachnoid hemorrhage. Critical Care Medicine, 35(12), A167.

20. *DeVito Dabbs, A., Johnson, B.A., Dew, M.A., Song, M.K., & Studer, S.M. (2007). Evaluation and dissemination of the electronic version of the questionnaire for lung transplant patients (e-QLTP). The Journal of Heart and Lung Transplantation, 26 (2), S161-S162.

21. *+Song, M.K., DeVito Dabbs, A., Studer, S., Zangle, S. (2007). Clinical course and health care utilization after chronic lung rejection. American Journal of Respiratory & Critical Care Medicine, 5, A520.

22. *+Song, M.K., DeVito Dabbs, A., Studer, S., Choi, J., Kruise, M., & O’Connell, K. (2006). Describing the illness trajectory after the onset of chronic lung rejection: A preliminary study. American Journal of Respiratory & Critical Care Medicine, 3, A369.

Dissertation and Master’s Thesis 1. Song, M.K. (2004). Effects of patient-centered advance care planning in open-heart surgical

patients. Dissertation, University of Wisconsin-Madison, Madison, WI. 2. Song, M.K. (1992). Factors associated with pre-hospital delay time in patients with acute

myocardial infarction. Master’s Thesis, Catholic University, Seoul, Korea.

SCHOLARSHIP: PRESENTATIONS

International Presentations (*data-based; +corresponding or senior author; authors underlined are students or mentees)

1. Song, M.K. (2018). End-of-Life Communication and Treatment Decision Making: The Most Enduring Challenge in Health Care. the 29th International Nursing Research Congress, Sigma Theta Tau International, Melbourne, Australia. (invited)

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2. *Paul, S., & Song, M.K. (2018). Joint modeling of longitudinal multidimensional quality of life measures in chronic dialysis patients. Joint Statistical Meeting 2018, Vancouver, Canada. (refereed)

3. *+Song, M.K., Paul, S., Ward, S.E., Gilet, C.A., & Hladik, G.A. (2017). Trajectories of multidimensional quality of life among patients receiving chronic dialysis. 54th European Renal Association-European Dialysis and Transplant Association Congress, Madrid, Spain. (refereed)

4. *+Song, M.K., Paul, S., Ward, S.E., Gilet, C.A., & Hladik, G.A. (2016). Trajectories of multidimensional quality of life among patients receiving chronic dialysis. American Society of Nephrology 2016 Kidney Week, Chicago, IL. (refereed)

5. Song, M.K. (2015). Advance care planning for older adults with CKD (speaker), Geriatric Nephrology Early Program: Caring for Older Adults with Kidney Disease, American Society of Nephrology 2015 Kidney Week, San Diego, CA. (invited)

6. Song, M.K. (2015). When to implement palliative care in heart and lung transplant recipients. Symposium: Psychosocial assessment tools, tips, and opportunities, 2015 International Society for Heart and Lung Transplantation, Nice, France. (invited)

7. Song, M.K. (2014). Plenary session: Promoting palliative care for patients with serious chronic illness and their caregivers, The 60th anniversary of the College of Medicine and College of Nursing, Catholic University, Seoul, Korea. (invited)

8. Song, M.K. (2014). Interest group session: Building a program of intervention research in palliative care, The 60th anniversary of the College of Medicine and College of Nursing, Catholic University, Seoul, Korea. (invited)

9. *+Song, M.K., Ward, S.E., Bair, E., Weiner, L.J., Bridgman, J.C., Hladik, G.A., & Gilet, C.A. (2014). Relationships of objective and subjective cognitive impairment to daily functioning among maintenance dialysis patients (poster presentation). 8th World Research Congress of the European Association for Palliative Care, Lleida, Spain. (refereed)

10. *DeVito Dabbs, A, Dew, M.A., Myers, B.A, Song, M.K., Li, R., Zomak, R., Pilewski, J., & Bermudez, C.A. (2014). Randomized controlled trial of Pocket PATH®, an mHealth intervention to promote self-management after lung transplantation (oral presentation). American Thoracic Society, San Diego, CA. (refereed)

11. Jo, M., Van Riper, M., & Song, M.K. (2013). A review of family-provider communication in the ICU: U.S. and Korean literature (poster), 24th International Nursing Research Congress, Sigma Theta Tau International, Prague, Czech Republic. (refereed)

12. *+Song, M.K., Arnold, R.M., & Gilet, C.A. (2012). Physicians’ communication during decision making to start dialysis: Patients’ perspectives (oral). American Society of Nephrology 2012 Kidney Week. San Diego, CA. (refereed)

13. *Jian, Y, Dew, M.A., Song, M.K., Terhorst, L., Aubrecht, J., Connolly, M., et al. (2012). Relationship between satisfaction with recipients’ acceptance and adoption of Pocket PATH Personal Assistant for Tracking Health (oral). International Transplant Nursing Society, 2012. (refereed)

14. Song, M.K. (2012). Plenary session: Shared decision making in the aging population – how to help patient make decision right for them. 2012 International Society for Heart and Lung Transplantation, Prague, Czech Republic. (invited)

15. *Aubrecht, J., Song, M.K., DeVito Dabbs, A. (2011). Adjustment after lung transplantation: A study of couples of lung transplant recipients and their spouses. (poster) International Transplant Nursing Society 2011. Montreal, Canada. (refereed)

16. *DeVito Dabbs, A., Dew, M.A., Terhorst, L., Song, M.K., et al. (2011). Self-care agency and its predictors among lung transplant recipients. International Society for Heart and Lung Transplantation (oral), San Diego, Ca. (refereed)

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17. Song, M.K. (2011). Mid-day symposium 5: Palliative care across the illness trajectory. 2011 International Society for Heart and Lung Transplantation, San Diego, CA. (invited)

18. Song, M.K. (2011). From the development and efficacy testing of an end-of-life communication for patients with end-stage organ failure and their surrogate decision makers (poster). 1st International Nursing Intervention Research Symposium, Montreal, Canada. (refereed)

19. *+Song, M.K., De Vito Dabbs, A., Studer, S.M., & Arnold, R.M. (2009). Palliative care referrals after lung transplantation in major transplant centers in the U.S. (oral). International Society for Heart and Lung Transplantation, San Diego, CA. (refereed)

20. *Connolly, M., McNulty, M., Aubrecht, J., Song, M.K., & DeVito Dabbs, A. (2009). Evaluating treatment fidelity for technology-based nursing interventions (poster). International Transplantation Nursing Society. Montreal, Canada. (refereed)

21. *Xu, J., Adeboyejo, O., Wagley, E., Aubrecht, J., Song, M.K., & DeVito Dabbs, A. (2009). Assessing daily burdens of recipients and family caregivers after lung transplantation (poster). International Transplantation Nursing Society, Montreal, Canada. (refereed)

22. *+Song, MK., DeVito Dabbs, A. (2008). Ethical considerations of institutionalized death after lung transplant (oral). American Thoracic Society, San Diego, CA. (refereed)

23. *DeVito Dabbs, A., Johnson, B.A., Dew, M.A., Song, M.K., & Studer, S.M. (2007). Evaluation and dissemination of the electronic version of the questionnaire for lung transplant patients (oral). International Society for Heart and Lung Transplantation, San Francisco, CA. (refereed)

24. *+Song, M.K., DeVito Dabbs, A., Studer, S., Zangle, S. (2007). Clinical course and health care utilization after chronic lung rejection (oral). American Thoracic Society, San Francisco, CA. (refereed)

25. *+Song, M.K., DeVito Dabbs, A., Studer, S., Choi, J., Kruise, M., & O’Connell, K. (2006). Describing the illness trajectory after the onset of chronic lung rejection: A preliminary study (oral). American Thoracic Society, San Diego, CA. (refereed)

26. Song, M.K. (2005). Plenary session: Integrating research evidence into clinical practice: Strategies to overcome translational block. 6th Asia Pacific Hospice Conference, Seoul, Korea. (invited)

National Presentations (*data-based; +corresponding or senior author; authors underlined are students or mentees)

1. *+Henry, C., Higgins, M., & Song, M.K. (2019). Have disparities in stillbirth risk factors between

Black and White Mothers Changed Since 2005? 2019 Association of Women’s Health, Obstetric, and Neonatal Nurses Annual Convention

2. *Ernecoff, N.C., Zimmerman, S., Mitchell, S.L., Song, M.K., Lin, F-C., Wessell, K.L., Hanson, L.C. (2018). Concordance between goals of care and treatment decisions for persons with dementia. The Gerontological Society of America, Boston, MA. (refereed)

3. Song, M.K. (2017). SMART designs: Optimizing treatment strategies to improve patient and family caregiver outcomes. Emerging Research Methods. Ray Lehnard Lecture, the 2017 Oncology Nursing Society Congress, Denver, CO. (invited)

4. *Ernecoff, N.C., Zimmerman, S., Mitchell, S.L., Song, M.K., Lin, F-C., Wessell, K., & Hanson, L.C. (2017). Goals of care and the dying experience in advanced dementia: What might be learned by implementing goals of care. The 2017 American Academy of Hospice and Palliative Medicine and the Hospice and Palliative Nurses Association Annual Assembly, Phoenix, AZ. (refereed)

5. *Ernecoff, N.C., Zimmerman, S., Mitchell, S.L., Song, M.K., Lin, F-C., Wessell, K., & Hanson, L.C. (2015). The dying experience for nursing home residents with advanced dementia. The 2015

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American Academy of Hospice and Palliative Medicine and the Hospice and Palliative Nurses Association Annual Assembly. Chicago, IL. (refereed)

6. Song, M.K. (2015). A SMART Design to Optimize a Palliative Care Intervention for Patient and Family Caregiver Outcomes. Emerging Approaches to Family Health Research across the Lifespan (panel presentation), Special Topics Conference, the 2015 Council for the Advancement of Nursing Science, Washington, D.C. (invited).

7. *Song, M.K. (2015). Research in End-of-Life Communication and Treatment Decision-Making: A 10-Year Journey Supported by NIH/NINR. NIH NINR 20215 National Advisory Council Meeting, NIH, Bethesda. (invited)

8. *+Metzger, M., Ward, S.E., Song, M.K., (2015). Events preceding final hospitalizations or deaths and end-of-life decisions in patents on chronic dialysis (poster). The 2015 American Academy of Hospice and Palliative Medicine and the Hospice and Palliative Nurses Association Annual Assembly, Philadelphia, PA. (refereed)

9. Song, M.K. (2014). Policy dialogue on culturally sensitive approaches to advance care planning. Expert Panels on Palliative and End-of-Life Care and Cultural Competence and Health Equity, American Academy of Nursing Policy Conference, Washington D.C. (invited)

10. *DeVito Dabbs, A, Dew, M.A., Mayers, B.A., Song, M.K., Li, R., Aubrecht, J., Begey, A., Zomak, R., Pilewski, J.M., & Bermudez, C.A. (2014). Evaluation of Pocket PATH®, an mHealth intervention for self-management of chronic illness using a rigorous trial design in a real world clinical setting (oral). Wireless Health 2014: Connecting People, Systems and Information to Enhance Health, NIH, Bethesda. (refereed)

11. *Lindley, L.C., Mark, B., Less, S-Y., Domino, M., Song, M.K., & Vann J.J. (2011). Factors influencing pediatric hospice care (poster). 2011 State of the Science Congress, Washington, D.C. (refereed)

12. +Song, M.K. (symposium organizer), Happ, M.B., DeVito Dabbs, A., & Donovan, H.S. (2010). Customizing treatment fidelity evaluation to individualized complex interventions. (symposium). 2010 State of the Science Congress, Washington, D.C. (refereed)

13. +Song, M.K., Happ, M.B., Sandelowski, M. (2010). Evaluating treatment fidelity of a traditional “talk” intervention: The SPIRIT Study (symposium). 2010 State of the Science Congress, Washington, D.C. (refereed)

14. DeVito Dabbs, A., Aubrecht, J.A., Dew, M.A., & Song, M.K. (2010). Pocket PATHTM Pocket Personal Assistant for Tracking Health (symposium). 2010 State of the Science Congress, Washington, D.C. (refereed)

15. DeVito Dabbs, A., Callen, J., Kovach, K., Aubrecht, J., Song, M.K. (2010). Evaluating treatment fidelity of a technology-based behavioral intervention: The Pocket PATHTM study (symposium). 2010 State of the Science Congress, Washington, D.C. (refereed)

16. *+Park, M., Shields, A.M., Ward, S.E., & Song, M.K. (2010). Recruitment and retention efforts and their outcomes in an end-of-life communication intervention trial (poster). 2010 State of the Science Congress, Washington, D.C. (refereed)

17. *Cipkala-Gaffin, J.A., Talbott, E.O., Barinas-Mitchell, E., Song, M.K., Brown, C., & Wilson, J. (2009). Psychological factors and IMT of PCOS (oral). Society for Epidemiologic Research 2009 Meeting, Anaheim, CA. (refereed)

18. Song, M.K. (2008). Plenary session: Withholding and withdrawing dialysis. National Kidney Foundation 2008 Meeting, Dallas, TX. (invited)

19. *Gallek, M.J., Song, M.K., Sherwood, P.R., Hricik, A.J., & Bender, C.M. (2008). The use of a cognitive functional index following aneurysmal subarachnoid hemorrhage (oral). Society of Critical Care Medicine’s 37th Critical Care Congress. Honolulu, Hawaii. (refereed)

20. *+Shields, A-M., Holbrook, M.M., Prince, J.S., Donovan, H.S., & Song, M.K. (2007). Relationships among perceived risk of mortality, comorbidity-based prognosis, and end-of-life choices among

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African Americans with end-stage renal disease (poster). The 29th Annual Meeting of the Society for Medical Decision Making, Pittsburgh, P.A. (refereed)

21. *+Song, M.K., & Sereika, S.M. (2006). An evaluation of the decisional conflict scale for measuring the quality of end-of-life decision making (oral). 27th Annual Meeting of the Society for Medical Decision Making, San Francisco, CA. (refereed)

22. *+Song, M.K., Bernardini, J., Piraino, B., & Choi, J. (2006). Preferences for future medical care among African Americans with end-stage renal disease and their surrogates (oral). 2006 State of the Science Congress, Washington, DC. (refereed)

23. *+Song, M.K., Kirchhoff, K.T., Douglas, J., Ward, S., & Hammes, B.J. (2004). Effects of patient-centered advance care planning among open-heart surgical patients (oral). 2004 State of the Science Congress, Washington, D.C. (refereed)

24. *+Song, M.K., Wood, K.E., Kirchhoff, K.T., Pechan, M., & Krueger, S. (2002). Comparison of perceptions of withdrawal of life-support among ICU health care providers (oral). 2002 State of the Science Congress, Washington, DC. (refereed)

25. *Song, M.K. (1999). Factors affecting pre-hospital delay time in patients with acute myocardial infarction (oral). 1999 national meeting of the Korean Emergency Medicine Association, Seoul, Korea. (refereed)

Local, State, and Regional Presentations 1. Song, M.K. (2019). Addressing the Most Enduring Problem in Health Care: Feasibility to

Effectiveness-Implementation Trials of SPIRIT. 2019 Public Health Sciences Grand Rounds. Rollins School of Public Health, Emory University, Atlanta, GA. (invited)

2. Song, M.K. (2019). Supporting Care with Evidence-A Reach for Excellence. A Veteran-Centered Approach to Palliative Care, Atlanta VA Health System, Atlanta, GA. (invited)

3. Song, M.K. (2019). 15-year Journey to Put a Dent in End-of-Life Communication and Treatment Decision Making. The 2019 Southern Nursing Research Society Annual Conference, Orlando, Florida. (plenary session)

4. Song, M.K. (2018). Adaptive Interventions and Trial Designs. Blue Bag Seminar Series, School of Nursing, Emory University, Atlanta, GA. (invited).

5. Song, M.K. (2017). A Pragmatic Trial of SPIRIT. Research Round Table, School of Nursing, Emory University, Atlanta, GA. (invited).

6. Song, M.K. (2017). Research Priorities in Geriatric Palliative and Supportive Care. The Birmingham/Atlanta Geriatric Research Education and Clinical Center (GRECC) planning meeting. Atlanta, GA (invited).

7. Song, M.K. (2017). The Unbefriended Patient-When There is No One to Speak for the Patient. 2017 How Illness Changes Us: Implications for Ethical Care. Healthcare Ethics Consortium Annual Conference, Stone Mountain, GA. (invited).

8. Song, M.K. (2017). An Intervention to Improve End-of-Life Communication and Treatment Decision Making in Older Adults with Serious Chronic Illness. Geriatrics Grand Rounds. School of Medicine, Emory University, Atlanta, GA. (invited).

9. Song, M.K. (2016). Communication and Treatment Decision Making in Advanced CKD. Renal Grand Rounds. School of Medicine, Emory University, Atlanta, GA. (invited).

10. Song, M.K. (2016). NIH Research Priorities for Geriatric Palliative Care for Surgical and Select Medical Sub-Populations. Opportunities for new collaborations. Blue Bag Seminar, School of Nursing, Emory University, Atlanta, GA. (invited).

11. Song, M.K. (2016). Toward Better, Not More, End-of-Life Care. 3rd Annual Advancing Health Care Quality Research at Emory University. Emory University, Atlanta, GA. (invited).

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12. *Song, M.K. (2016). End-of-Life Communication and Treatment Decision-Making for Patients on Dialysis and Their Surrogates. Brown Bag Seminar, Center for Ethics, Emory University, Atlanta, GA. (invited)

13. *Metzger, M., Song, M.K., Ward, S.E., Chang, P, & Hanson, L.C. (2016). Feasibility and acceptability of SPIRIT-HF: An intervention to prepare LVAD patients and their surrogates for end-of-life decision making. The Southern Nursing Research Society 2016 Annual Conference, Williamsburg, VA. (refereed)

14. Song, M.K. (2015). End-of-Life Care and Treatment Decision-Making for Patients on Dialysis. Nephrology Grant Rounds, UNC Kidney Center, University of North Carolina at Chapel Hill, Chapel Hill, NC. (invited)

15. Song, M.K. (2015). Developing and Testing Interventions to Improve Palliative and End-of-Life Care. Visiting Scholar Lecture, Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA. (invited)

16. Song, M.K. (2015). Interventions to Improve Palliative and End-of-Life Care. School of Nursing, Johns Hopkins University, Baltimore, MD. (invited)

17. Song, M.K. (2014). Competing interests, commitments and values, Managing Chronic Illness T32 Integrative Seminar Series, School of Nursing, University of North Carolina at Chapel Hill, Chapel Hill, NC. (invited)

18. Song, M.K. (2014). Taxonomy of End-of-life communication interventions: Appraising end-of-life communication interventions for clinical implementation. UNC Comprehensive Cancer Support Program and Palliative Care Grand Rounds, University of North Carolina at Chapel Hill, Chapel Hill, NC. (invited)

19. Song, M.K. (2013). A program of research to improve palliative and end-of-life care, Research Seminar Series, School of Nursing, University of Pittsburgh, Pittsburgh, PA. (invited)

20. Song, M.K. (2013). A program of research to improve palliative and end-of-life care, Research Seminar Series, School of Nursing, University of California San Francisco, San Francisco, CA. (invited)

21. Song, M.K. (2013). A program of research to improve palliative and end-of-life care, Research Seminar Series, School of Nursing, University of California Los Angeles, Los Angeles, CA. (invited)

22. Song, M.K. (2013). A program of research to improve palliative and end-of-life care, Research Seminar Series, College of Nursing, Ohio State University, Columbus, OH. (invited)

23. Song, M.K. (2013). Theory-guided intervention research. Helen Denne Schulte Visiting Professorship Lecture, University of Wisconsin-Madison, Madison, WI. (invited)

24. Song, M.K. (2013). Trajectories of information needs: Can we develop interventions that are highly adaptive to those changing needs? Technology: Research in Chronic and Critical Illness (T32NR08857) T32 Speakers Series, University of Pittsburgh, Pittsburgh, PA. (invited)

25. Song, M.K. (2012). Clinical ethics: Framework for ethical questions and core principles. Professional Development Seminar Series for Nephrology Fellows. University of North Carolina at Chapel Hill, Chapel Hill, NC. (invited)

26. Song, M.K. (2012). The SPIRIT Study: Helping our patients with end-of-life decisions. American Nephrology Nurses’ Association North Carolina Statewide Symposium 2012 and Southeastern Kidney Council NC Annual Meeting, Greensboro, NC. (invited)

27. Song, M.K. (2011). Assessing everyday quality of life of patients with ESRD using the day reconstruction method. The Research Support Center Seminar Series, School of Nursing, University of North Carolina at Chapel Hill, Chapel Hill, NC. (invited)

28. Song, M.K. (2010). A case of complex course of illness and treatment decision making after lung transplant. Transplant Educational Conference Series. University of North Carolina Hospitals, Chapel Hill, NC. (invited)

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29. *Dumrongpakapakorn, P., Donovan, H.S., Heidrich, S., Knapp. J., Song, M.K., & Ward, S.E (2010). The development of a comprehensive fidelity assurance plan for the theoretically guided Written Representational Intervention to Ease Symptoms (WRITE Symptoms©) research study (poster). Eastern Nursing Research Society, Providence, RI. (refereed)

30. Song, M.K. (2010). Complex treatment decision making with chronically ill young adults and Families. University of North Carolina Hospitals Ethics Committee Meeting, Chapel Hill, NC. (invited)

31. Song, M.K. (2010). Relationships among age, spiritual well-being, and end-of-life preferences in African-American dialysis patients. Institute on Aging, University of North Carolina at Chapel Hill, Chapel Hill, NC. (invited)

32. Song, M.K. (2009). Developing and expanding a program of research in end-of-life and palliative care areas. The Research Support Center Seminar Series, School of Nursing, University of North Carolina at Chapel Hill, Chapel Hill, NC. (invited)

33. Song, M.K. (2009). Withholding and withdrawal from dialysis in geriatric patients. Nephrology Medical Grand Rounds. School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC. (invited)

34. Song, M.K. (2009). End-of-life care and treatment decision making. School of Dentistry, University of North Carolina at Chapel Hill, Chapel Hill, NC. (invited)

35. Song, M.K. (2009). End-of-life decision making for elderly dialysis patients. Palliative care case conference series. University of North Carolina Hospitals, Chapel Hill, NC. (invited)

36. Song, M.K. (2008). A representational intervention for African Americans with end-stage renal disease. Nursing Interventions Conference, University of Wisconsin-Madison, Madison, WI. (invited)

37. *+Song, M.K., Donovan, H.S., Ward, S.E., Piraino, B, Choi, J., Bernardini, J., Verosky, D. (2008). A representational approach to advance care planning among African Americans (oral). 32nd Annual MNRS Research Conference, Chicago, IL. (refereed)

38. Song, M.K. (2010). A theory-based end-of-life communication intervention. Scientific Seminar Series, Center for Mental Health and Aging, University of Alabama, Tuscaloosa, AL. (invited)

39. Song, M.K. (2007). Improving Care at the End-of-Life. The Office of Research Visiting Scholar Seminar Series, Nell Hodgson Woodruff School of Nursing, Emory University, Atlanta, GA. (invited)

40. *Song, M.K., Kirchhoff, K.T., Douglas, J., Ward, S.A., & Hammes, B.J. (2006). Patient-centered advance care planning (oral). 30th Annual MNRS Research Conference, Milwaukee, WI. (refereed)

41. Song, M.K. (2006). A program of research in palliative and end-of-life care. Catholic University College of Nursing, Seoul, Korea. (invited)

42. Song, M.K. (2005). Applying evidence into practice, Inha University College of Nursing, Incheon, Korea. (invited)

43. Song, M.K. (2005). An effective approach to communication regarding end-of-life care: Preliminary findings. Health Research Seminar, Center for Research on Health Care, University of Pittsburgh, Pittsburgh, PA. (invited)

44. Song, M.K. (2005). Improving end-of life communication among African Americans with ESRD, Center for Health Equity Research and Promotion (CHERP), University of Pittsburgh, Pittsburgh, PA. (invited)

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TEACHING ACTIVITIES

Courses Taught (Guest lectures are not listed) Dates Name of Course Role in course Emory University, School of Nursing

Summer 2019 Applied Practice Program, Rollins School of Public Health, 1 MPH student

Faculty mentor/supervisor

Summer 2019 NRSG 497R. Directed Study (1 Cr), 2 ABSN students Fuld fellows

Primary teacher

Summer 2018

NRSG 497R. Directed Study (1 Cr), 2 ABSN students Fuld fellows

Primary teacher

Summer 2017 NRSG 497R. Directed Study (1 Cr), 2 ABSN students Fuld fellows

Primary teacher (Smith, K. co-teacher)

Summer 2017 NRSG 697R. Directed Study (2 Cr), 1 MSN student Fuld fellow, Pain management

Co-teacher (Gunter, D. primary teacher)

Fall 2016 NRSG 422. Palliative Care & Meaningful Conversations (2 Cr.), 37 ABSN students Course evaluation (mean range, 4.3 – 5).

Primary teacher/course coordinator

University of North Carolina at Chapel Hill, School of Nursing

Fall 2015

NUR959. Research Grant Writing. 11 students (+ 1 visiting scholar auditor), PhD (3 Cr).

Primary teacher/Course coordinator

NUR994. Dissertation. 1 student, PhD (3 Cr) Primary teacher/Course coordinator

Spring 2015 NUR950. Analysis of the Academic Role in Nursing Education. 7 students (+ 3 visiting scholar auditors), PhD (3 Cr), Course evaluation (mean, 4.12).

Primary teacher/Course coordinator

Fall 2014 NUR994. Dissertation. 1 student, PhD (3 Cr) Primary teacher/Course coordinator

Spring 2014 NUR985. Research Seminar & Practicum: Guided Individual Research Experience, 1 student, MSN (3 Cr)

Primary teacher/Course coordinator

NUR994. Dissertation. 1 student, PhD (3 Cr) Primary teacher/Course coordinator

Fall 2013 NUR994. Dissertation. 1 student, PhD (3 Cr) Primary teacher/Course coordinator

Spring 2013 NUR994. Dissertation. 1 student, PhD (3 Cr) Primary teacher/Course coordinator

NUR992. Master’s paper, 1 student, MSN (3 Cr) Primary teacher/Course coordinator

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Spring 2012 NUR985. Research Practicum/Independent Study, 1 student, PhD (3 Cr)

Primary teacher/Course coordinator

Fall 2011 – Fall 2014 Sabbatical from teaching as course coordinator (fully funded with research grants)

Spring 2011 NUR953. Ethics and Law in Health Care and Research, 5 students (+ 2 visiting scholar auditors), PhD (3 Cr), Course evaluation (mean, 4.25)

Primary teacher/Course coordinator

NUR992. Master’s paper, 1 student, MSN (3 Cr) Primary teacher/Course coordinator

Fall 2009 NUR985. Independent Study, 1 student, PhD (3 Cr) Primary teacher/Course coordinator

Spring 2009 NUR685/SW856. Care of the Dying and Bereaved, 24 students, MS/PhD (3 Cr), Course evaluation (mean, 4.6)

Primary teacher/Course coordinator

NUR953. Ethics and Law in Health Care and Research, 5 students, PhD (3 Cr), Course evaluation (mean, 4.9)

Primary teacher/Course coordinator

University of Pittsburgh School of Nursing

2006-2007 NUR 3110 Research Instrumentation, 8 students, PhD (3 Cr)

Primary Teacher/Course coordinator

NUR 1085 Ethics in Nursing and Health Care, 40 students, BSN (3 Cr)

Primary teacher/Course coordinator

2005-2006 NUR 3110 Research Instrumentation, 8 students, PhD (3 Cr)

Primary teacher/Course coordinator

NUR 2008 Ethics for Advance Practice Nursing, 35 students, MSN (1 Cr)

Primary teacher/Course coordinator

2004-2005 NUR 0082 Nursing Management of the Adult with Acute and Chronic Health Problems, 126 students, BSN (7 Cr)

Primary teacher/Course coordinator

Korea

1997-1998 Nursing Research Method, 70 students, BSN (3 Cr), Se-Il University Department of Nursing, Seoul, Korea

Primary Teacher

1996-1999 Medical-Surgical Nursing, 60 students, BSN (3 Cr), Inha University Department of Nursing, Incheon, Korea

Primary Teacher

Workshops/CE Taught Emory University

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2016 ANAC (Association of Nurses in AIDS Care) preconference workshop (11/10), 25 attendees, Atlanta, GA

Faculty

University of North Carolina at Chapel Hill School of Nursing 2011 16th Annual Institute in Qualitative Research:

Mixed-Methods Research and Mixed-Methods Intervention Research Programs (07/11-07/14), 38 attendees, Chapel Hill, NC

Co-Faculty

2009 NC AHEC (Area Health Education Centers) program, Ethical Issues in Health Care (11/06), 10 attendees, Chapel Hill, NC

Speaker

2008 NC AHEC program: End-of-Life and Palliative Care: Caring for Patients with End-Stage Chronic Illness, 36 attendees, WakeMed Hospital, Cary, NC

Speaker

Doctor of Philosophy in Nursing Advisement Date Student Name Dissertation Title Role

2018-present Carolina Gustafson

Advisor, Emory University, Nell Hodgson Woodruff School of nursing

2017-present Carrie Henry Bereavement and coping after stillbirth in African American mothers

Advisor/Dissertation Committee Chair, Emory University, Nell Hodgson Woodruff School of nursing

2016-present Sharon White Perceived behavioral control and nurse practitioner in hospital medicine referring to palliative care

Dissertation Committee Member, Georgia State University

2016-present Yohannes Ayalew Quality of life among women with breast cancer undergoing chemo-therapy

Advisor/Dissertation Committee Chair, Addis Ababa University, Addis Ababa, Ethiopia

2016-2019 Mariya Kovaleva Caregiver experiences with nurse-led integrated memory clinic for people with dementia

Dissertation Committee Member, Emory University Nell Hodgson Woodruff School of nursing

2015-2017 Sujeong Kim Assistant Professor at Seattle University (2017~)

Nurses’ perspectives on end-of-life care in NICUs in Korea

Dissertation Committee Member, University of Illinois at Chicago College of Nursing

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2013-2015 Elize De Villiers Current position unknown

Theory and practice of professional nursing ethics education in undergraduate nursing programs in Namibia and South Africa: A critical assessment

External examiner, University of Stellenbosch, Department of Philosophy, South Africa

2011-2015 Kaitlin Costello (T32 pre-doc) Assistant Professor, School of Communication and Information, Rutgers Univ. (2016~)

Information seeking, social support, and disclosure behaviors in chronic kidney disease patients

Dissertation Committee Member, University of North Carolina at Chapel Hill School of Information and Library Science

2010-2016 Minjeong Jo Assistant Professor (2018~), Department of Nursing, Pusan National University, Pusan, Korea

ICU family satisfaction with communication with clinicians and its relationships to family anxiety, depression, and well-being (2016 Sigma Theta Tau International Dissertation grant award, $5,000)

Advisor & Dissertation Committee Chair, University of North Carolina at Chapel Hill School of Nursing

2009-2010 Nancy Havill Assistant Professor (2017~), School of Nursing, UNC-CH

Ethnographic exploration of labor and delivery experiences of mothers of babies with poor outcomes

Dissertation Committee Member, University of North Carolina at Chapel Hill School of Nursing

2008-2012 Lisa Lindley (T32 pre-doc) Assistant Professor (2013~), College of Nursing, Univ. of Tennessee

Pediatric palliative care and its financial benefits for family caregivers

Dissertation Committee Member, University of North Carolina at Chapel Hill School of Nursing

2008-2010 Mihyun Park Assistant Professor (2011~), College of Nursing, Catholic Univ., Korea

Effects of ethics education in undergraduate nursing programs

Dissertation Committee Member, University of North Carolina at Chapel Hill School of Nursing

2007-2009 Jennifer Cipkala-Gaffin Clinical specialist

An evaluation of psychological and sociodemographic factors associated with health correlates in women with polycystic ovarian syndrome

Dissertation Committee Member, University of Pittsburgh School of Public Health

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University of Pittsburgh Medical Center

2006-2007 Kathleen Lindell University of Pittsburgh Medical Center

Improving end-of-life care for patients with idiopathic pulmonary fibrosis and their care partners

Dissertation Committee Member, University of Pittsburgh School of Nursing

Doctor of Nursing Practice Advisement Date Student Name Capstone Project Title Role 2016-2017 Sonya

McLaughlin, DNP Children’s Healthcare of Atlanta

Use of palliative care consultation for infants with life-threatening conditions

DNP Project Committee Chair

Master of Science in Nursing Thesis Advisement Date Student Name Thesis Title Role 2012-2013 Michael

Thorarinson Nurses role in end-of-life conversations in the ICU

Thesis Chair

2010-2011 Kinsey Goodman Racial effects on patient-provider communication

Thesis Chair

2011-2012 Maria Arroyo Improving communication with family members of ICU patients

Thesis Committee Member

2009-2010 Laura Haythorn Improving quality of life at the end-of-life for patients with end-stage heart failure

Thesis Committee Member

Other Student Advisement: Fuld Palliative Care Fellows (Accelerated BSN and MSN [AMSN] students) Date Student Name 2018-2020 Ashley Cohen, Fuld Palliative Care Fellow Calla Michalak, Fuld Palliative Care Fellow 2017- Grace Mattimore, MA in bioethics and MSN dual degree program 2017-2019 Haley Lynn, Fuld Palliative Care Fellow Hannah Spero, Fuld Palliative Care Fellow 2016-2018 Rachel Behrend, Fuld Palliative Care Fellow Emily Buzhardt, Fuld Palliative Care Fellow 2016-2017 Maggie Carrilllo, Fuld Palliative Care Fellow

Acute Care Nurse Practitioner-BC, Emory Health Care (2018~)

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Visiting Scholar Mentoring

Date Scholar Name/Institution Focus Role

2014-2015 Su Hyun Kim, Associate Professor, Kyungpook National University, South Korea

Developing an advance care planning model for elderly patients in Korea

Primary Mentor

2008-2009 Wimonwan Lertwongpaopun, Faculty, Srinakharinwirot University in Thailand

Developing palliative care programs for cancer patients in Thailand

Primary Mentor

Post-doc and Junior Faculty Research Mentoring

Date Faculty Name Focus Role

2017-2018 Lindsay Prizer, PhD, MSW Assistant Professor School of Medicine Emory University

A palliative care intervention for individuals with Parkinson’s Disease

Mentor

2017-present Hyejin Kim, PhD, RN, Postdoctoral trainee Emory University

Treatment decision-making for unbefriended nursing home residents

Primary mentor

2014 Katherine Hinderer, PhD, RN, Assistant Professor, Department of Nursing, Salisbury University, Maryland

The Hospice and Palliative Nursing Association Research Scholars Program 2015

Mentor

2013-present Leeza Park, MD, Assistant Professor, Department of Psychiatry, School of Medicine, University of North Carolina at Chapel Hill

NCI K07 Career Development Award CTSA KL2 Career Development Programs and National Palliative Care Research Center Junior Faculty Career Development Award: Understanding treatment decision-making and psychological distress among advanced cancer patients with dependent children; 2016 Carolina Caregiver Award (supplement grant)

Co-lead mentor (2016-) Lead mentor (-2015)

2013-2015 Maureen Metzger, PhD, RN T32 postdoctoral trainee Assistant Professor (2015~) School of Nursing, University of Virginia

Developing and testing an advance care planning intervention for patients with LVAD and their surrogates

Lead mentor

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2013 Tracy Fasolino, PhD, RN, Assistant Professor, School of Nursing, Clemson University, South Carolina

Research area: Integration of outpatient palliative care clinic with pulmonary medicine office to improve symptom management, 2014 NPCRC Junior Faculty Career Development Award

Research mentor

PROFESSIONAL AND UNIVERSITY SERVICE ACTIVITIES

Membership in Professional Organizations

Service to the discipline of nursing and the fields of palliative care, nephrology, and transplantation

2016-present Palliative Care Research Cooperative Group (PCRC) Member 2014-2016 Coalition for Supportive Care of Kidney Patients

Research Interest Group

Member

2011-present American Society of Nephrology (ASN) 2016 Kidney Week 2016 Abstract reviewer 2014-2017 Geriatric Nephrology Advisory Group Elected member 2015 Care Complexity and Care Transitions in Older

Patients with CKD, Geriatric Nephrology Early Program: Caring for Older Adults with Kidney Disease, American Society of Nephrology 2015 Kidney Week, San Diego, CA.

Scientific session moderator

2015 ASN Kidney Week 2015 geriatric nephrology early program working group

Group Member

2011-2012 2012 Kidney Week

Program Committee Member

2009-present American Nurses Association (ANA) Member 2016, May The Institute of Medicine meeting: Progress in

Improving EOL Care, 50 organizations’ perspectives and commitments, Washington, D.C.

Representing ANA/President Cipriano

2016-2017 2016 American Nurses Association-Hospice and Palliative Nurses Association (ANA-HPNA) Palliative and Hospice Professional Issues National Steering Committee

Co-Chair

2007-present Hospice and Palliative Nurses Association (HPNA) 2018- Advance Care Planning Follow-up to Palliative

Nursing Summit Work Group to develop HPNA high-level direction

Invited expert member

2017 Updated HPNA position statement: The Nurse’s Role in Advance Care Planning

ACP expert

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2017, May (National Nurses Day)

Palliative Nursing Summit, Washington, D.C. With 26 nursing specialties organizations

Invited content expert in communication and advance care planning

2016 2016 American Academy of Hospice and Palliative Medicine (AAHPM) and HPNA Annual Assembly Scientific Program

Abstract Reviewer

2015 Research Scholar Award Reviewer 2014 Sigma Theta Tau International & Hospice and

Palliative Care Nursing Foundation Research Grant reviewer

2014 2015 AAHPM and HPNA Annual Assembly Abstract Reviewer 2013-2014 Research Advisory Committee Chair 2012-2013 Research Committee Chair 2012 Sigma Theta Tau International & Hospice and

Palliative Care Nursing Foundation Research Grant reviewer

2011-2012 Research Committee Member 2011-2012 Research Scholar Award Reviewer 2011 Sigma Theta Tau International & Hospice and

Palliative Care Nursing Foundation

Research Grant reviewer

2005-present International Society for Heart & Lung Transplantation

Member

2015 Nursing and Social Science Grant reviewer 2014 Nursing and Social Science Grant reviewer 2013 Nursing and Social Science Grant reviewer 2011-2013 Abstract Reviewer Abstract Reviewer 2005-present Nursing and Social Science Council Member Nursing and Social Science Research Committee

Member

2005-2015 Asian American/Pacific Islander Nurses Association, Inc. (AAPINA)

Member

2005-2015 National Coalition of Ethnic Minority Nurse Associations (NCEMNA)

Member

2009-2010 Planning Committee, AAPINA 2010 Annual Conference

Chair, Abstract Review Committee

2004-present Council for the Advancement of Nursing Science, American Academy of Nursing

Member

2010 2010 State of the Science Congress on Nursing Research

Research abstract reviewer

Additional Membership 2018-present Southern Nursing Research Society Member 2004-2008 Eastern Nursing Research Society Member 2004-present American Thoracic Society Member Member, Nursing and Social Science Council Member 2004-2008 Society for Medical Decision Making Member

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2000-present Sigma Theta Tau Nursing Honor Society Member 1999-2004 Midwest Nursing Research Society Member

Editorships and Editorial Boards 2019-present Editorial board, Journal of Korean Academy of Nursing 2018-present Editorial board, Kidney Medicine, An Official Journal of National Kidney

Foundation 2016 Guest Editor, Special Issue on Palliative Care, Heart & Lung: The Journal of Acute

and Critical Care 2012-present Editorial board, Heart & Lung: The Journal of Acute and Critical Care 2012 Guest Editor, Nursing Research and Practice

Manuscript Reviewer 2016-present Journal of General Internal Medicine Health Psychology 2015-present Nursing Outlook American Journal of Kidney Diseases Clinical Journal of American Society of Nephrology BMC Nephrology BMC Palliative Care Clinical Transplantation Transplantation Journal of Heart and Lung Transplantation 2014-present Nursing Research Hemodialysis International 2013-present Journal of Pulmonary & Respiratory Medicine Journal of the American Medical Informatics Association 2011-present Journal of Mixed Methods Research Heart & Lung: The Journal of Acute and Critical Care 2009-present Research in Nursing & Health Journal of Pain and Symptom Management 2008-present Journal of Palliative Medicine 2007-present Critical Care Medicine Contemporary Clinical Trials

American Journal of Critical Care 2005-present Patient Education & Counseling

National and International Consultation Year Activity 2015 Building the evidence for spiritual cancer care: Using religious songs to alleviate

mental suffering among African-American cancer patients and family caregivers. NIH, NCI, R21, Hamilton, J. (PI).

2013-2014 Development of an advance care planning primary care communication framework for dissemination through the patient health record: A pilot study. PICORI, Brill, S. (Lead PI) and Happ, M.B. (Co-PI).

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2012-2013 Nelson, J. (PI), NIH, NINR, R01NR012413. Improving decisions in chronic critical illness: An RCT.

2012-2018 A Trial to Improve Surrogate Decision-Making for Critically Ill Older Adults, NIH, NIA, R01AG045176, White, D. (PI).

2012-2013 Ameliorating Chronic Kidney Disease by Offering Reminiscence and Direction (ACKORD), NIH, NIA, R01AG038574, Allen, R. (PI).

2010-2012 Decision Aid for Prolonged Mechanical Ventilation: A Randomized Controlled Trial, NIH, R01HL109823-01A1, Cox, C. (PI), 07/01/12-6/30/17.

2010 Carolina Meadow Assisted Living and Skilled Nursing Facility, Chapel Hill, NC, Developing a palliative care program for residents with life-limiting illnesses

2010-2012 FAITH Project: Family-Centered Intervention to Ease Transition of Nursing Home Residents, NIH, NIA, Allen, R. (PI).

2009 Cathy L. Campbell, PhD, APRN-BC, University of Virginia Developing a decision aid intervention for stage IV cancer patients and caregivers to promote hospice care

2008-2013 Web-Based Ovarian Cancer Symptom Control: Nurse Guided vs. Self-Directed, NIH, NINR, Donovan, H. (PI), 1R01NR010735, September 2008–June 2013, $2.3M.

2008 International Transplantation Nursing Society, Institute of Nursing Science, University of Basel, Switzerland Study design and survey item development for Survey of the level of chronic illness management in 40 heart transplant centers in North America and Europe

2003-2004 American Association of Critical-care Nurses National Survey on Critical Care in the USA, American Association of Critical Care Nurses, Statistical consultation

2001-2002 Wisconsin Nurses Association’s State Survey on Nursing Shortage and Mandatory Overtime, Wisconsin Nurses Association, Statistical consultation

2001 University of Wisconsin-Madison, Depression Coping in Low Income Community Women, Statistical consultation

National and International Scientific Review Year Name of Panel 2019 Swiss National Science Foundation, Humanities and Social Science, scientific

reviewer 2019 NIH NIA ZAG1 ZIJ-G (M2) Evaluation of NIA Clinical Trials reviewer 2018 NIH NIA ZAG1 ZIJ-G (M3) Evaluation of NIA Clinical Trials reviewer 2018 2018/01 ZNR1 REV-M (33) F31 Fellowship Training Grants reviewer 2017 NIH Science of Behavior Change, Good Clinical Practice 2-day Workshop. Invited

key expert. 2017 2017/10 ZNR1 REV-M (30) Fellowship Training Grants reviewer 2017 2017/05 NIH ZRG1 DKUS-H (54) R scientific reviewer. PAR-16-064: Small Grants for

New Investigators to Promote Diversity in Health-Related Research (R21) 2016 NIH & NPCRC 2-day meeting; Setting research priorities for geriatric palliative care

in surgery and select medical sub-specialties. Invited investigator participant.

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2016 NIH ZNR1 REV-M (23) Centers in Self-Management of Symptoms: Building Research Teams for the future (P20), Centers of Excellence in Self-Management of Symptoms (P30) scientific reviewer

2015 NIH ZNR 1 REV-M (22) Building evidence: Effective palliative/end-of-life care interventions (R01) scientific reviewer

2015 NIH ZNR 1 REV-M (19) Building evidence: Effective palliative/end-of-life care interventions (R01) scientific reviewer

2014 NIH ZNR 1 REV-T (19) Building evidence: Effective palliative/end-of-life care interventions (R01) scientific reviewer

2014 NIH ZNR1 REV-M (16) Building evidence: Effective palliative/end-of-life care interventions (R01) scientific reviewer

2013 External grant reviewer, Influence of music on inflammation in mechanically ventilated ICU patients (R21NR014298-01A1), PI: Chlan, L. Ohio State University

2012 NIH P30 (Centers of excellence in symptom science) and P20 (Centers of excellence in symptom science: Building research teams for the future) scientific reviewer

2012 PCORI (Patient Centered Outcomes Research Institute) Pilot Projects Grants, ZRG1 CB-J (70) R study section reviewer

2011 Grant reviewer, The Institute of Nursing Science, Basel, Switzerland 2011 NIH ZNR1 REV-T Heart failure and palliative care R01s scientific reviewer 2011 NIH/NIDDK scientific peer review group member (ZDK1 GRB-N M5): U34 clinical

study planning grants 2010 External referee panel member, Research Grants Committee, Kidney Research U.K.,

United Kingdom Reviewer, Research Project and Innovation Grants 2009 TraCS 10K pilot grant reviewer, University of North Carolina at Chapel Hill 2007 Kuehn Award Grant reviewer, University of Pittsburgh School of Nursing

Service at Universities

University Committees

Emory University

2018 June Interviewer for Sr. Director of public health and nursing Research Administration System

2016-present Member, Hosch Endowment Grant Review Committee

University of North Carolina at Chapel Hill

2015 Member, Graduate School Advisory Board 2014-2015 Member, University Research Council 2013-2014 Co-Chair, Faculty Search Committee: Department of Biostatistics and School of

Nursing 2010 Reviewer, the Pauline W. Brown Diversity Scholarship Award 2009-2013 UNC Hospitals Ethics Committee member 2010-2012 Ethics consultation team leader

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2010 Planning committee member, Fall Ethics Visit from Nursing Scholar 2008-2009 Member, School of Nursing Dean Search Committee

University of Pittsburgh 2007-2008 School of Nursing Faculty Representative, The Coalition for Quality at the End-of-

Life Palliative care content in undergraduate nursing curricula in Allegheny County 2007 Planning Committee member for International Week 2007

School of Nursing Committees/Service Emory University 2019-present Member, PhD Admission Committee 2018-present Member, Executive Council 2018, June Office of Nursing Research Grant Writing Retreat Faculty Mentor 2018-present Chair (2-yr term), Faculty Committee on Appointment, Promotion and Tenure

(FCAPT) 2017-2018 Co-Chair, Faculty Committee on Appointment, Promotion and Tenure (FCAPT) 2016-Sep. 2017 Member, Faculty Committee on Appointment, Promotion and Tenure (FCAPT) 2016-2018 Member, Curriculum Committee 2016-present Member, PhD Executive Committee 2016 Member, Honors Program Selection Committee 2016-present Office of Nursing Research Mock Reviews University of North Carolina at Chapel Hill 2015-2016 Member, PhD Executive Committee 2014-2015 Member, Research Support & Consultation Policy Board 2013-2015 Member, Adult and Geriatric Health Division Chair Search Committee 2013-2014 Member, Appointments, Promotion and Tenure Committee 2010-2013 Member, Doctoral/PhD Admissions’ Committee 2010-2013 Member, Staff of Year Award Selection Committee 2009-2011 Member, Lineberger & Nursing Faculty Search Committee University of Pittsburgh 2007 Research abstracts reviewer for Greater Pittsburgh 19th Annual Nursing Research

Conference: Evidence-Based Practice: Opportunities and Challenges 2007 Member, Tenure track faculty mentorship task forces 2006-2007 Member, PhD council 2006 Academic Integrity Committee Informal Reviewer 2005-2007 Member, Evidence Based Practice Task Force: Patient Values and Preferences 2004-2007 Member, BSN council