Data CommonsProgress Report on a Data Exchange Network

Medbiquitous Annual MeetingApril 2013

Dana Bostrom Len ArmstrongExecutive Director Director, Information Technologybostrom@mydatacommons.orglarmstrong@mydatacommons.org

T: @mydatacommonsw: www.mydatacommons.org

Today’s agenda•Vision of Data Commons•Organizational Update•How to. .

▫Be a Data Contributor▫Request Data

•Technical overview

Vision of Data Commons

•One Stop Shop. Allows organizations and individuals to request data for purposes such as:▫Receiving official documents▫Confirming status of medical professionals▫Longitudinal research

•Maximize Privacy.▫Minimizes storage of data and transmission

of identifying details

Organizational UpdateData Commons, LLC has formed and currently has these parties governing the entity:

▫American Board of Family Medicine▫American Board of Pediatrics▫Association of American Medical Colleges▫Educational Commission for Foreign

Medical Graduates▫Federation of State Medical Boards▫National Board of Medical Examiners

More New. . .• Data Contributors: We are matching data from

new organizations into the Data Commons ID system

• Data Users: We are accepting requests from organizations who want to “use” the Data Commons infrastructure to send & receive data

• Timeline: ▫We expect to be able to serve requests for data

through APIs in the 3rd quarter of 2013▫A “Research” app (for longitudinal research) will

launch in 2014

Data Contributors

How to. . . be a Data Contributor▫Get your data matched & prepare to make it

available Match your identity data to the Data Commons

infrastructure Decide what data to make available to the Data

Commons Link your data to Data Commons

▫On-going… Match new identities as they come in to your

organization’s systems Identify data prices and rules for availability As application are approved, grant permissions for

requesting apps to use your data

How to . . . .Request DataData Confirmation• What: An organization

requests that Data Commons confirm that information submitted by an individual is true

• Who works with Data Commons: A software “app” eg journal, social networking software, etc.

• How: Through an API

Data Verification• What: An individual

requests or authorizes another to request official documents / proof of status, certification, license, scores, etc.

• Who works with Data Commons: A software “app” eg a CVO

• How: Through an API

How to. . .request research data

•Data Commons is building a “research app” which will allow individuals to request longitudinal data sets for policy, academic, etc. research

•App is expected in early 2014•If you want to be involved now, please let

us know – we can use your thoughts as we build it!

Target Architecture, Logical View

THE HUB“DIRECTOR”

IDENTITY MANAGEME

NT

How the Identity Matching Service (IDMS) works

• Set up: Participating organizations provide identifying data about the population of interest, including the organization’s “native” ID (e.g., USMLE ID) so they can be added to IDMS▫ Currently matching 4 new partner organizations

• On-going: As new persons are added or existing persons updated, the organization submits additional identifying data records to IDMS

• On-demand: As data requests are processed, the IDMS translates “native” ID of the requestor to the “native” ID of the data contributor▫ Example:

NBME requests data about a student identified by a USMLE ID IDMS translates the request to identify the student by an AAMC ID IDMS forwards the translated request to AAMC

For MoreBusiness

Dana Bostrom202-741-6450bostrom@mydatacommons.org

Technical

Leonard Armstrong215-590-9623larmstrong@mydatacommons.org

T: @mydatacommonswww.mydatacommons.org