CURRICULUM VITAE Name: Susanne Maria Benseler · CURRICULUM VITAE Name: ... Dolezalova P, Durrant...

Susanne Benseler May 07, 2018

CURRICULUM VITAE Name: Susanne Maria Benseler Date of Last Update: May 07, 2018 Office: Alberta Children’s Hospital Section of Rheumatology, Department of Paediatrics 2888 Shaganappi Trail Calgary, Alberta, T3B 6A8, Canada Telephone: (403) 955-2253 Fax: (403) 955-7649 Email: [email protected] APPOINTMENTS University Appointments July 2016-present Full Professor, Department of Paediatrics, Cumming School of

Medicine, University of Calgary, Alberta July 2013 – June 2016 Associate Professor, Department of Paediatrics, Cumming School of

Medicine, University of Calgary, Alberta July 2010 – July 2013 Associate Member, School of Graduate Studies (SGS), University of

Toronto, Toronto, Ontario July 2010 – July 2013 Associate Professor, Department of Paediatrics, University of

Toronto, Toronto, Ontario Jan 2005 – July 2010 Assistant Professor, University of Toronto, Toronto, Ontario Jan 2000 - Dec 2004 Assistant Professor, University of Bonn, Bonn Germany Hospital Appointments

August 2015-present Deputy Head Research, Department of Paediatrics, Alberta Children’s Hospital, Cumming School of Medicine, University of Calgary, Alberta

mailto:[email protected]


July 2013-present Staff, Section Chief, Department of Paediatrics, Alberta Children’s Hospital, Cumming School of Medicine, University of Calgary, Alberta

Sept 2012-Jul 2013 Cross Appointment: Pediatric Neurology, Dept. of Paediatrics, The Hospital for Sick Children, Toronto, Ontario

May 2007-June 2013 Cross Appointment: Pediatric Emergency Medicine, Dept. of

Paediatrics, The Hospital for Sick Children, Toronto, Ontario

May 2007-Jul 2013 Staff, Rheumatology, Dept. of Paediatrics, The Hospital for Sick Children, Toronto, Ontario

Jan 2005-Apr 2007 Cross Appointment: Staff, Rheumatology, Dept. of Paediatrics, The Hospital for Sick Children, Toronto, Ontario

Jan 2005-Apr 2007 Primary Appointment: Staff, Emergency Medicine, Dept. of Paediatrics, The Hospital for Sick Children, Toronto, Ontario

Jan 2004-Jun 2004 Staff, Pediatrics, Dept. of Pediatrics, CCU and

Rheumatology/Immunology/HIV, Children's Hospital, University of Bonn, Bonn, Germany (Leave of absence for fellowship training)

Sep 1997-Jun 2001 Staff, General Pediatrics, Dept. Pediatrics, Children's Hospital, University of Bonn, Germany

Sep 1993-Dec 1996 Staff, General Pediatrics, Dept. of Pediatrics, Children's Hospital,

University of Freiburg, Germany Research Appointments Sept 2013-present Full Member, Alberta Children’s Hospital Research Institute

University of Calgary, Alberta

Jan 2009-July 2013 Faculty, Health Policy Management & Evaluation (HPME), University of Toronto, Toronto, Ontario

Jul 2006-July 2013 Associate Scientist, Child Health Evaluative Sciences (CHES), Research

Institute, The Hospital for Sick Children, Toronto, Ontario


EDUCATION Degrees, Diplomas, Licensures and Certifications Mar 2009 M.Sc., University of Toronto Toronto, Ontario, Canada Subject: Clinical Epidemiology

1988 - 1994 Doctoral Thesis (PhD) Medical School, University of Innsbruck, Austria

Experimental Pathology, Lab of Prof. Dr. George Wick 1984-1992 Medical School, University of Freiburg and Berlin, Germany Fellowships Jul 2003-Dec 2004 Clinical Research Fellowship Pediatric Rheumatology in Pediatric

Lupus, The Hospital for Sick Children, Toronto, Ontario, Canada Jul 2001-Jun 2003 Clinical Fellowship Pediatric Rheumatology, The Hospital for Sick

Children, Toronto, Ontario, Canada

Mar 2001-May 2001 Cancer and Blood, Pediatric Rheumatology Research Fellowship, Cancer and Blood, Pediatric Rheumatology,

Vascular remodeling in Kawasaki disease Mar 1999-Feb 2001 Pediatric Intensive and Emergency Care Fellowship, Children's

Hospital, University of Bonn Germany Mar 1997-Feb 1999 Pediatric Rheumatology Fellowship, Children's Hospital, University of

Bonn Germany PUBLICATIONS Peer Reviewed-Journal Publications Submitted for Publication/under review/accepted

1. Cabral D,Föll D, K Brown, A Giulia, R Luqmani, B Hancock, SM Benseler, C Ross D Liu J Graham, J Lubieniecki . S100A12 and Common Inflammatory Markers Improve Assessment of Disease Activity in a PedVas Cohort of Childhood Systemic Vasculitis. December 2018 (under review,Seminars in Arthritis and Rheumatism)

2. Barber CE, Thorne,CJ, Ahluwaliea V, Burt Jm Lacaille D, Marshall DA, Hazlewood G, Mosher D, Denning L, Szamko I, Chin R, Hamilton S, Benseler SM, Twilt M, Shiff N,


Bykerk V, Homik J, Barnabe C. Feasibility of Measurement and Adherence to System Performance measures for Rheumatoid Arthritis in 5 Models of Care. The Journal of rheumatology, April 2018 (under review)

3. Grotenhuis HB, Aeschlimann, FA, Hui, W Slorach C, Yeung RSM, Benseler SM, Bradley, TJ, Grosse-Wortmann L .Pediatric patients with Takayasu arteritis have increased arterial stiffness and impaired ventriculo-arterial coupling, Arthritis Care and Research, May 2018 (under review)

4. Erbis G, Schmidt K, Michler C, Kuemmerle-Deschner JB, Benseler SM. Living with autoinflammatory diseases: Identifying unmet needs of children, adolescents and adults. Rheumatology May 2018 (under review)

Published https://www.ncbi.nlm.nih.gov/pubmed/?term=benseler+s

2018

1. Han L, Benseler SM, Tyrrell, PN. Cluster and Multiple Correspondence Analyses in Rheumatology: Paths to Uncovering Relationships in a Sea of Data. Rheum Dis Clin North Am. 2018 May;44(2):349-360

2. Kuemmerle-Deschner JB, Hansmann S, Wulffraat N, Vastert SJ, Hens K, Anton J, Avcin T,

Martini A, Kone-Paut I, Uziel Y, Ravelli A, Wouters C, Shaw D, Ozen S, Eikelberg A, Prakken B, Ruperto N, Horneff G, Constantin T, Beresford MW, Sikken M, Foster H, Haug I, Schuller S, Jaegle C, Benseler SM. Recommendations for collaborative paediatric research including biobanking in Europe – A Single Hub and Access point for paediatric Rheumatology in Europe (SHARE) Initiative, Ann Rheum Dis. Ann Rheum Dis. 2018 Mar;77(3):319-327

3. Kuntze G, Nesbitt C, Whittaker JL, Nettel-Aguirre A, Toomey C, Esau S, Doyle-Baker PK,

Shank J, Brooks J, Benseler S, Emery CA. Exercise Therapy in Juvenile Idiopathic Arthritis: A Systematic Review and Meta-Analysis. Arch Phys Med Rehabil. 2018 Jan;99(1):178-1

4. Elbers J, Armstrong D, Benseler SM, Dlamini N, Steinberg GK, Yeom KW. The Utility of

Collaterals as a Biomarker in Pediatric Unilateral Intracranial Arteriopathy. Pediatr Neurol. 2018 Jan;78:27-34

2017

5. Aeschlimann, FA, Eng, SWM, Sheikh, S, Laxer, RM, Hebert, D, Noone, D, Twilt, M, Pagnoux, C, Yeung, RSM, Benseler SM. Childhood Takayasu Arteritis: Disease Course and Response to Therapy, 2017 Arthritis Research & Therapy (2017)19:25

6. Ingegnoli F, Ughi N, Dinsdale G, Orenti A, Boracchi P, Allanore Y, Foeldvari I, Sulli A, Cutolo M, Smith V, Herrick AL, EULAR Study Group on Microcirculation in Rheumatic Diseases, An international SUrvey on non-iNvaSive tecHniques to assess the


mIcrocirculation in patients with RayNaud's ph Enomenon (SUNSHINE survey). Rheumatol Int. 2017 Nov; 37(11):1890-1897

7. Kuemmerle-Deschner JB, Verma D, Endres T, Jesus AA, Hofer, F, Blank N, Krause K,

Rietschel C, Horneff G, Rietschel C, Horneff G, Lohse P, Aksentijevich I, Goldbach-Mansky R, Hoffman HM, Benseler SM. Clinical and molecular phenotypes of low-penetrance variants in NLRP3: Diagnostic and Therapeutic Challenges. Arthritis Rheumatol. 2017 Nov; 69(11):2233-2240

8. Luca NJ, Stinson JN, Feldman BM, Benseler SM, Beaton SM, Beaton D, Campillo S,

LeBlanc C, van Wyk M, Bayoumi AM. Validation of the Standardized Universal Pain Evaluations for Rheumatology Providers for Children and Youth (SUPER-KIDZ). J Orthop Sports Phys Ther, 2017 Oct; 47(10):731-740

9. Guzman J, Kerr T, Ward LM, Ma J, Oen K, Rosenberg AM, Feldman BM, Boire G, Houghton K, Dancey P, Scuccimarri R, Bruns A, Huber AM, Watanabe Duffy K, Shiff NJ, Berard RA, Levy DM, Stringer E, MOrishita K, Johnson N, Cabral DA, Larche M, Petty RE, Laxer RM, Silverman E, Miettunen P, Chetaille AL, Haddad E, SPeigel L, Turvey SE, Schmeling H, Lang B, Ellsworth J, Ramsey SE, Roth J, Sampillo S, Benseler SM, Chedvelle G, Schneider R, Tse SML, Bolaria R, Gross IK, Feldman D, Cameron B, Jurencak R, Dorval J, LeBlanc C, St Cyr C, Gibbon M, Yeung RSM, Duffy CM, Tucker LB. Growth and Weight Gain in Children with Juvenile Idiopathic Arthritis: Results from the ReACCh-Out cohort. Pediatric Rheumatology online J, 2017 Aug 22; 15(1):68

10. Sakulchit T, Benseler SM, Goldman RD. Acetylsalicylic Acid for Children with Kawasaki

Disease. Can Fam Physician. 2017 Aug; 63(8):607-609

11. Sakulchit T, Benseler SM, Goldman RD. L’acide Acetylsalicylique pour les Enfants atteints de la Maladie de Kawasaki. Can Fam Physician, 2017 Aug;63(8):e359-e362. French

12. Morishita KA, Moorthy LN, Lubieniecka JM, Twilt M, Yeung RS, Toth MB, Shenoi S, G Ristic, Nielson SM, Luqmani RA, Li SC, Lee T, Lawson EF, Kostik MM, Klein-Gitelman M, Huber AM, Hersh AO, Foell D, Elder ME, Eberhard BA, Dancey P, Charuvanij S, Benseler SM, Cabral DA, for ARChiVe Investigators Network within the PedVas Initiative. Early Outcomes in Children with Antineutrophil Cytoplasmic Antibody (ANCA) Associated Vasculitis (AAV). Arthritis Rheumatol. 2017 July;69(7)1470-1479

13. Kuemmerle-Deschner JB, Ozen S, Tyrrell PN, Know-Paut I, Goldbach-Masky R, Lachmann H, Blank N, Hoffman HM, Weissbarth-Riedel E, Hugle B, Kallinich T, Gattorno M, Gul A, Ter Haar N, Oswald M, Dedeoglu F, Cantarini L, Benseler SM. Diagnostic criteria for cryopirin-associated periodic syndrome (CAPS). Ann Rheum Dis. 2017 June; 76(6):942-947

14. Barra L, Liang P, Benseler SM, Cabral DA, Fifi-Mah A, Li Y, Milman N, Twilt M, Yacyshyn E, Pagnoux C. Variations in the clinical practice of physicians managing Takayasu arteritis: a nationwide survey. Open Access Rheumatology: Research & Review. Open Access Rheumatol. 2017 May 5;9:91-99


15. Ter Haar NM, Annink KV, Al-Mayouf SM, Amaryan G, Anton J, Barron KS, Benseler SM, Brogan PA, Cantarini L, Cattalini M, Cochino AV, De Benedetti F, Dedeoglu F, De Jesus AA, Della Casa Alberighi O, Demirkaya E, Dolezalova P, Durrant KL, Fabio G, Gallizzi R, Goldbach-Mansky R, Hachulla E, Hentgen V, Herlin T, Hofer M, Hoffman HM, Insalaco A, Jansson AF, Kallinich T, Koné-Paut I, Kozlova A, Kuemmerle-Deschner JB, Lachmann HJ, Laxer RM, Martini A, Nielsen S, Nikishina I, Ombrello AK, Ozen S, Papadopoulou-Alataki E, Quartier P, Rigante D, Russo R, Simon A, Trachana M, Uziel Y, Ravelli A, Gattorno M, Frenkel J. Development of the autoinflammatory disease damage index (ADDI). Ann Rheum Dis. 2017 May;76(5):821-830.

16. Kuemmerle-Deschner JB, Benseler SM. Response to:Criteria for CAPS, is it all in the

name? by Touitou and Sarrabay. Ann Rheum Dis. 2017 May; 76(5):e10.

17. Kuemmerle-Deschner JB, Benseler SM. Response to “Why CAPS criteria are not diagnostic criteria? “ By Landewe and Van der Heijde. Ann Rheum Dis. 2017 April; 76(4):e8.

18. Goldbloom EB, Mokashi A, Cummings EA, Abish S, Benseler SM, Huynh HQ, Watson W, Ahmet. Symptomatic adrenal suppression among children in Canada. A.Arch Dis Child. 2017 Apr;102(4):338-339.

19. Oen K, Guzman J, Dufault B, Tucker LB, Shiff NJ, Watanabe Duffy K, Lee JJ, Feldman BM,

Berard RA, Dancey P, Huber AM, Scuccimarri R, Cabral DA, Morishita KA, Ramsey SE, Rosenberg AM, Boire G, Benseler SM, Lang B, Houghton K, Miettunen PM, Chédeville G, Levy DM, Bruns A, Schmeling H, Haddad E, Yeung RS, Duffy CM; Research in Arthritis in Canadian Children emphasizing Outcomes (ReACCh-Out) investigators. Health-related quality of life in an inception cohort of children with Juvenile Idiopathic Arthritis: A longitudinal analysis.Arthritis Care Res (Hoboken). 2017 Mar 20

20. Guzman J, Henrey A, Loughin T, Berard RA, Shiff NJ, Jurencak R, Benseler SM, Tucker LB; ReACCh-Out Investigators. Predicting Which Children with Juvenile Idiopathic Arthritis Will Have a Severe Disease Course: Results from the ReACCh-Out Cohort. J Rheumatol. 2017 Feb; 44(2):230-240.

2016

21. Cabral DA, Canter DL, Muscal E, Nanda K, Wahezi DM, Spalding SJ, Twilt M, Benseler SM, Campillo S, Charuvanij S, Dancey P, Eberhard BA, Elder ME, Hersh A, Higgins G, Huber AM, Khubchandani R, Kim S, Klein-Gitelman M, Kostik M, Lawson E, Lee T, Lubieniecka JM, McCurdy D, Moorthy LN, Morishita KA, Nielsen SM, O'Neil KM, Reiff A, Ristic G, Robinson AB, Sarmiento A, Shenoi S, Toth MB, Van Mater H, Wagner-Weiner L, Weiss JE, White AJ, Yeung RS, ARChiVe Investigators Network within the PedVas initiative An ARChiVe study, Comparing presenting clinical features of 48 children with microscopic polyangiitis (MPA) against 183 having granulomatosis with polyangiitis (Wegener’s):An ARChiVe Cohort, Arthritis Rheumatol. 2016 Oct 01; 68(10):2514-26


22. Cellucci T, Guzman J, Petty RE, Batthish M, Benseler SM, Ellsworth JE, et al. Management of Juvenile Idiopathic Arthritis 2015: A Position Statement from the pediatric Committee of the Canadian Rheumatology Association. J Rheum. 2016 Oct; 43(10):1773-6

23. Elbers J, Armstrong D, Yau I, Benseler SM. Vascular Imaging Outcomes of Childhood

Primary Angiitis of the Central Nervous System. Pediatr Neurol. 2016 Oct; 63:53-9

24. Bernard TJ, Beslow LA, Manco-Johnson MJ, Armstrong-Wells J, Boada R, Weitzenkamp D, Hollatz A, Poisson S, Amlie-Lefond C, Lo W, deVeber G, Goldenberg NA, Dowling MM, Steve Roach E, Fullerton HJ, Benseler SM, Jordan LC, Kirton A, Ichord RN.Inter-Rater Reliability of the CASCADE Criteria: Challenges in Classifying Arteriopathies. Stroke. 2016 Oct; 47(10):2443-9

25. Florence A, Aeschlimann FA, Grosse-Wortmann L, Benseler SM, Laxer RM, Hebert D,

Yeung RS, Arterial dissection in childhood Takayasu Arteritis: not as rare as thought, Pediatr Rheumatol Online J, 2016 Sep 22;14(1):56

26. Kuemmerle-Deschner JB, Benseler SM, Comment on: real-life effectiveness of canakinumab in cryopyrin-associated periodic syndrome;reply, Rheumatology (Oxford), 2016 Jul; 55(7):1340-1

27. Kuemmerle-Deschner JB, Hofer F, Endres T, Kortus-Goetze B, Blank N, Weißbarth-Riedel

E, Schuetz C, Kallinich T, Krause K, Rietschel C, Horneff G, Benseler SM, Real-life effectiveness of canakinumab in cryopyrin-associated periodic syndrome. Rheumatology (Oxford), 2016 July;55(4):689-96

28. Guzman J, Oen K, Huber AM, Watanabe Duffy K, Boire G, Shiff N, Berard RA, Levy DM, Stringer E, Scuccimarri R, Morishita K, Johnson N, Cabral DA, Rosenberg AM, Larché M, Dancey P, Petty RE, Laxer RM, Silverman E, Miettunen P, Chetaille AL, Haddad E, Houghton K, Spiegel L, Turvey SE, Schmeling H, Lang B, Ellsworth J, Ramsey SE, Bruns A, Roth J, Campillo S, Benseler S, Chédeville G, Schneider R, Tse SM, Bolaria R, Gross K, Feldman B, Feldman D, Cameron B, Jurencak R, Dorval J, LeBlanc C, St Cyr C, Gibbon M, Yeung RS, Duffy CM, Tucker LB; ReACCh-Out investigators. The risk and nature of flares in juvenile idiopathic arthritis: results from the ReACCh-Out cohort. Ann Rheum Dis, 2016 Jun;75(6):1092-8

29. Chan MO, Petty RE, Guzman J; ReACCh-Out Investigators. (Benseler SM) A Family History of Psoriasis in a First-degree Relative in Children with JIA: to Include or Exclude? J Rheumatol. 2016 May; 43(5):944-7.

30. Graus F, Titulaer MJ, Balu R, Benseler SM, Bien CG, Cellucci T, Cortese I, Dale RC, Gelfand JM, Geschwind M, Glaser CA, Honnorat J, Höftberger R, Iizuka T, Irani SR, Lancaster E, Leypoldt F, Prüss H, Rae-Grant A, Reindl M, Rosenfeld MR, Rostásy K, Saiz A, Venkatesan A, Vincent A, Wandinger KP, Waters P, Dalmau J. A clinical approach to diagnosis of autoimmune encephalitis. Lancet Neurol. 2016 Apr;15(4):391-404

31. McGeoch L, Twilt M, Famorca L, Bakowsky V, Barra L, Benseler SM, Cabral DA, Carette S,


Cox GP, Dhindsa N, Dipchand CS, Fifi-Mah A, Goulet M, Khalidi N, Khraishi MM, Liang P, Milman N, Pineau CA, Reich HN, Samadi N, Shojania K, Taylor-Gjevre R, Towheed TE, Trudeau J, Walsh M, Yacyshyn E, Pagnoux C; Canadian Vasculitis Research Network, CanVasc Recommendations for the Management of Antineutrophil Cytoplasm Antibody Associated Vasculitides, Rheumatol, 2016 Jan;43(1):97-120

32. Twilt M, Benseler SM. Central nervous system vasculitis in adults and children Handbook of Clin Neurol. 2016; 133:283-300.

2015

33. Twilt M., Benseler Sm., Treatment of CNS Vasculitis in Children, Current treatment option in Rheumatology guid, Dec 2015: 1(4)

34. Ombrello MJ, Remmers EF, Tachmazidou I, Grom A, Foell D, Haas JP, Martini A, Gattorno M, Özen S, Prahalad S, Zeft AS, Bohnsack JF, Mellins ED, Ilowite NT, Russo R, Len C, Hilario MO, Oliveira S, Yeung RS, Rosenberg A, Wedderburn LR, Anton J, Schwarz T, Hinks A, Bilginer Y, Park J, Cobb J, Satorius CL, Han B, Baskin E, Signa S, Duerr RH, Achkar JP, Kamboh MI, Kaufman KM, Kottyan LC, Pinto D, Scherer SW, Alarcón-Riquelme ME, Docampo E, Estivill X, Gül A; British Society of Pediatric and Adolescent Rheumatology (BSPAR) Study Group; Childhood Arthritis Prospective Study (CAPS) Group; Randomized Placebo Phase Study of Rilonacept in sJIA (RAPPORT) Investigators; Sparks-Childhood Arthritis Response to Medication Study (CHARMS) Group; Biologically Based Outcome Predictors in JIA (BBOP, member: Benseler SM) Group, de Bakker PI, Raychaudhuri S, Langefeld CD, Thompson S, Zeggini E, Thomson W, Kastner DL, Woo P; International Childhood Arthritis Genetics (INCHARGE) Consortium; British Society of Pediatric and Adolescent Rheumatology BSPAR Study Group. HLA-DRB1*11 and variants of the MHC class II locus are strong risk factors for systemic juvenile idiopathic arthritis. Proc Natl Acad Sci U S A, 2015 Dec 29;112(52):15970-5

35. Kuemmerle-Deschner JB, Thomas J, Benseler SM. Childhood vasculitis. Z Rheumatol. 2015 Dec; 74(10):863-77.

36. Kuemmerle-Deschner JB, Koitschev A, Tyrrell PN, Plontke SK, Deschner N, Hansmann S, Ummenhofer K, Lohse P, Koitschev C, Benseler SM, Early detection of sensorineural hearing loss in Muckle-Wells-syndrome, Pediatr Rheumatol Online J, 2015 Nov 4;13(1):43.

37. Guzman J, Oen K, Tucker LB, Huber AM, Shiff N, Boire G, Scuccimarri R, Berard R, Tse SM, Morishita K, Stringer E, Johnson N, Levy DM, Duffy KW, Cabral DA, Rosenberg AM, Larché M, Dancey P, Petty RE, Laxer RM, Silverman E, Miettunen P, Chetaille AL, Haddad E, Houghton K, Spiegel L, Turvey SE, Schmeling H, Lang B, Ellsworth J, Ramsey S, Bruns A, Campillo S, Benseler S, Chédeville G, Schneider R, Yeung R, Duffy CM; ReACCh-Out investigators, The outcomes of juvenile idiopathic arthritis in children managed with contemporary treatments: results from ReACCh-Out cohort, Ann Rheum Dis, 2015 Oct;74(10):1854-60


38. Kuemmerle-Deschner J, Hofer F, Endres T, Kortus-Goetze b, Blank N, Weibbarth- Riedel E, Schuetz C, Kallinich T, Krause , Rietschel C, Horneff G, Benseler SM, Canakinumab treat to target strategies increase complete response rate in CAPS. Pediatric Rheumatology 2015. 2015 September 28; 13:1:173.

39. Hansmann, S, Ambjoernsen K, Koitschev A, Benseler, SM., Kuemmerle-Deschner, JB.IL-1 inhibition in Muckle-Wells-Syndrome: Withdrawal resulting in rapid deterioration of hearing loss. Pediatr Rheumatol Online J. Sept 2015, 13(1):28

40. Erbis G, Sergiichuk T, Hansmann S, Haug I, Benseler SM, Kuemmerle-Deschner J, Unmet psychosocial needs in CAPS. Ped Rheum On-line J. 2015 Sept 28.

41. Erbis G, Sergiichuk T, Hansmann S, Haug I, Benseler SM, Kuemmerle-Deschner J; Determinants of health related quality of life in children & adults with autoinflammatory diseases. Ped Rheum On-line J, Sept 2015, 13(1):174

42. Day GS, Prüss H, Benseler SM, Paton TA, Paterson AD, Andrade DM. GRIN1 polymorphisms do not affect susceptibility or phenotype in NMDA receptor encephalitis. Neurol Neuroimmunol Neuroinflamm. 2015 Sep 24;2(5):e153

43. Ter Haar NM, Oswald M, Jeyaratnam J, Anton J, Barron KS, Brogan PA, Cantarini L, Galeotti C, Grateau G, Hentgen V, Hofer M, Kallinich T, Kone-Paut I, Lachmann HJ, Ozdogan H, Ozen S, Russo R, Simon A, Uziel Y, Wouters C, Feldman BM, Vastert SJ, Wulffraat NM, Benseler SM, Frenkel J, Gattorno M, Kuemmerle-Deschner JB: Recommendations for the management of autoinflammatory diseases, Ann Rheum Dis. 2015 Sep;74(9):1636-44

44. Bigi S, Licht C, Twilt M, Benseler SM: Plasma exchange (PLEX) in pediatric neurologic diseases: Assessment of safety and efficacy. European Journal of Paediatric Neurology 2015 May 29; 19:S22.

45. Famorca L, Twilt M, Barra L, Bakowsky V, Benseler S, Cabral D, Carette S, Dhindsa N, Fifi-Mah A, Goulet M, Khalidi N, Khraishi M, McGeoch L, Milman N, Pineau C, Shojania K, Taylor-Gjevre R, Towheed T, Trudeau J, Yacyshyn E, Liang P, Pagnoux C, Canadian Vasculitis network (CanVasc). Development of Canadian Recommendations for the Management of ANCA-Associated Vasculitides: Results of the National Needs Assessment Questionnaire. Open Rheumatol J. 2015 April 14;9:16-20

46. Bigi S, Hladio M, Twilt M, Dalmau J, Benseler SM, The growing spectrum of antibody-associated inflammatory brain diseases in children, Neurol Neuroimmunol Neuroinflamm, 2015 June 2;2(3):e92.

47. Bichler J, Benseler SM, Kumrey-Langkiammerer M, Hass JP, Hugle B, Leflunomide is associated with a higher flare rate compared to Methotrexate in the treatment of chronic uveitis in juvenile idiopathic arthritis, Scand J Rheum, May 2015 1-4

http://www.ncbi.nlm.nih.gov/pubmed/26443875



48. Hansmann S, Benseler SM, Kuemmerle-Deschner JB, Dynamic knee joint function in children with juvenile idiopathic arthritis (JIA), Pediatr Rheumatol Online J, 2015 March 13;13:8

49. Hugle B, Silverman ED, Tyrrell PN, Harvey EA, Hébert D, Benseler SM. Presentation and outcome of paediatric membranous non-proliferative lupus nephritis. Pediatr Nephrol. 2015 January;30(1):113-21

2014

50. Guzman J, Gómez-Ramírez O, Jurencak R, Shiff NJ, Berard RA, Duffy CM, Oen K, Petty RE, Benseler SM, Brant R, Tucker LB, What matters most for patients, parents, and clinicians in the course of juvenile idiopathic arthritis? A qualitative study, J Rheumatol, 2014 November;41(11):2260-9

51. Schmeling H, Horneff G, Benseler SM, Fritzler MJ. Pharmacogenetics: can genes

determine treatment efficacy and safety in JIA? Nat Rev Rheumatol. 2014 November; 10(11):682-90.

52. Noone DG, Twilt M, Hayes WN, Thorner PS, Benseler S, Laxer RM, Parekh RS, Hebert D.

The new histopathologic classification of ANCA-associated GN and its association with renal outcomes in childhood. Clin J Am Soc Nephrol. 2014 October 7;9(10):1684-91

53. Canna SW, de Jesus AA, Gouni S, Brooks SR, Marrero B, Liu Y, DiMattia MA, Zaal KJ,

Sanchez GA, Kim H, Chapelle D, Plass N, Huang Y, Villarino AV, Biancotto A, Fleisher TA, Duncan JA, O'Shea JJ, Benseler S, Grom A, Deng Z, Laxer RM, Goldbach-Mansky R, An activating NLRC4 inflammasome mutation causes autoinflammation with recurrent macrophage activation syndrome, Nat Genet, 2014 October;46(10):1140-6

54. Moorthy LN, Roy E, Kurra V, Peterson MG, Hassett AL, Lehman TJ, Scott C, El-Ghoneimy

D, Saad S, El Feky R, Al-Mayouf S, Dolezalova P, Malcova H, Herlin T, Nielsen S, Wulffraat N, van Royen A, Marks SD, Belot A, Brunner J, Huemer C, Foeldvari I, Horneff G, Saurenman T, Schroeder S, Pratsidou-Gertsi P, Trachana M, Uziel Y, Aggarwal A, Constantin T, Cimaz R, Giani T, Cantarini L, Falcini F, Manzoni SM, Ravelli A, Rigante D, Zulian F, Miyamae T, Yokota S, Sato J, Magalhaes CS, Len CA, Appenzeller S, Knupp SO, Rodrigues MC, Sztajnbok F, de Almeida RG, de Jesus AA, de Arruda Campos LM, Silva C, Lazar C, Susic G, Avcin T, Cuttica R, Burgos-Vargas R, Faugier E, Anton J, Modesto C, Vazquez L, Barillas L, Barinstein L, Sterba G, Maldonado I, Ozen S, Kasapcopur O, Demirkaya E, Benseler SM, Health related quality of life measure in systemic pediatric rheumatic diseases and its translation to different languages: an international collaboration.Pediatric Rheumatol Online J, 2014 Nov 25;12:49

55. Twilt M, Benseler SM. Childhood Primary Angiitis of the central nervous system. “Up to

Date”, Sep 2014

56. Twilt M, Benseler SM. Childhood inflammatory brain diseases: pathogenesis, diagnosis and therapy. Rheumatology (Oxford), 2014 Aug;53(8): 1359-68





57. Dale RC, Brilot F, Duffy LV, Twilt M, Waldman AT, Narula S, Stocco A, Deiva K, Andersen E, Eyre ME, Heineman K, Hemingway C, Riney CJ, Kornberg A, Tardieu M, Muscal E, Banwell B, Gorman MP, Benseler SM, Lim M. Utility and safety of Rituximab in pediatric autoimmune and inflammatory CNS disease, Neurology, 2014 July 8;83(2):142-50

58. Kuemmerle-Deschner J, Wittowski H, Tyrrell P, Koetter I, Lohse P, Gramlich K, Rees F, Hansmann S, Koitschev A, Deuter C, Jung T, Bialkowski A, Foell D, Benseler SM. ChalleAnges in diagnosing Muckle-Wells syndrome. Arthritis Care and Research, 2014 May;66(5):765-72

59. Mishra N, Rodan LH, Nita DA, Gresa-Arribas N, Kobayashi J, Benseler SM. Anti-Glutamic Acid Decarboxylase Antibody Associated Limbic Encephalitis in a Child: Expanding the Spectrum of Pediatric Inflammatory Brain Diseases. J Child Neurol, 2014 May;29(5):677-83

60. Dancey P, Benseler SM, Gattorno M, Junker AK, Laxer RM, Miettunen P, Turner LA, A40: Perioidc Fever Syndromes in Canada: Results from a National Surveillance Program. Arth Rheum Journ, March 3, 2014, 66(11):S60

61. Gerstein M, Sukhdeo S, Levy DM, Feldman BM, Benseler SM, Ng LW, Abdelhaleem M, Silverman ED, Hiraki L, A15: predicting macrophage activation syndrome in pediatric systemic lupus erythematosus patients at diagnosis, March 3, 2014, 66(11):S25

62. Hasija RP, Silverman ED, Cho S, Fung L, Benseler SM, Cameron B, Feldman BM, Laxer RM, Levy DM, Schneider R, Spiegel LR, Yeung RS, Anderson M, Bell-Peter A, Convery H, Queffelec K, Saunders M, Tse SM, A170: Neoplasms in Pediatric Patients with Rheumatic Diseases Exposed to Biologics-A Quarternary Centre's Experience, Arth Rheum Journ, March 3, 2014, 66(11):S220-1

63. Canna S, de Jesus AA, Deng Z, Gouni S, Marrero B, Brooks S, Dimattia M, Liu Y, Huang Y, Plass N, Chapelle DC, Montealegre G, Benseler S, Laxer RM, Goldbach-Mansky R, A157: Macrophage Activation Syndrome-like Illness Due to an Activating Mutation in NLRC4, Arth Rheum Journ, March 3, 2014, 66(11):S203

64. Bingham D, Muscal E, Nanda K, Wahezi DM, Spalding SJ, Twilt M, Benseler S, Cabral DA, A10: Younger Age and Severity of Renal Presentation Distinguishes Microscopic Polyangiitis From Granulomatosis With Polyangiitis in Children: An ARChiVe Study, Arth Rheum Journ, March 3, 2014, 66(11):S15-6

65. Gomez-Ramirez O, Gibbon M, Berard RA, Jurencak R, Green J, Benseler S, Duffy CM, Tucker LB, Petty RE, Shiff N, Oen K, Brant R, Guzman J, A96: the roller coaster of juvenile idiopathic arthritis: a qualitative examination of parents' emotional responses to the disease and its management, Arth Rheum Journ, March 3, 2014, 66(11):S131

66. Day GS, Benseler SM. The rapidly expanding world of rapidly progressive encephalopathy. Ann Neurol. 2014 Mar;75(3):334-6


67. Cellucci T, Tyrrell PN, Twilt M, Sheikh S, Benseler SM, Distinct phenotype clusters in childhood inflammatory brain diseases:implications for diagnostic evaluation, Arthritis Rheumatol, 2014 Mar;66(3):750-6

68. Twilt M, Hutchinson CM, Benseler SM. Primary CNS vasculitis of childhood. Medscape References. 2014 Mar 14

69. Twilt M, Benseler SM, Childhood antineutrophil cytoplasmic antibodies associated vasculitides, Curr Opin Rheumatol, 2014 Jan;26(1):50-5

70. Kim VHD, Brager R, Upton J, Ngan B, Newell A, Roifman M, Muise AM, Benseler SM, Grunebaum E, Roifman CM, Hematopoietic stem cell transplantation completely reversed colitis but not arthritis in IL-10Rα deficiency, LymphoSign Journal December 2014; 1(2):77-86.

71. Gomez‐Ramirez O, Gibbon M, Berard RA, Jurencak R, Green J, Benseler S, Duffy CM, Tucker LB, Petty RE, Shiff N, Oen K, Brant R, Guzman J, A96, The Roller Coaster of Juvenile Idiopathic Arthritis: A Qualitative Examination of Parents' Emotional Responses to the Disease and Its Management. March 2014;66(S11)

72. Dolezalova P, Wilkinson N, Brogan PA, Anton J, Benseler SM, Brunner J, Cabral DA, Cimaz R, O'Neil KM, Ozen S, Luqmani R: Paediatric Vasculitis Damage Index: A New Tool for Standardized Disease Assessment. Annals of the Rheumatic Diseases 06/2014; 73: 696-697.

2013

73. Dolezalova P, Price-Kuehne FE, Ozen S, Benseler SM, Cabral DA, Anton J, Brunner J, Cimaz R, O´Neil KM, Wallace C, Wilkinson N, Eleftheriou D, Demirkaya E, Böhm M, Krol P, Luqmani R, Brogan PA, Disease Activity Assessment in Childhood Vasculitis: Development and Preliminary Validation of the Paediatric Vasculitis Activity Score (PVAS), Ann Rheum Dis. 2013 Oct;72(10):1628-33

74. Verhey LH, Branson HM, Laughlin S, Shroff MM, Benseler SM, Feldman BM, Streiner DL, Sled JG, Banwell B. Development of a Standardized MRI Scoring Tool for CNS Demyelination in Children, AJNR Am J Neuroradiol, 2013 Jun-Jul;34(6):1271-7

75. Kirton A, Crone M, Benseler S, Mineyko A, Armstrong D, Wade A, Sebire G, Crous-Tsanaclis AM, Deveber G, Fibromuscular dysplasia and childhood stroke Brain, 2013 Jun;136(Pt 6):1846-56

76. Kuemmerle-Deschner JB, Wittkowski H, Tyrrell PN, Koetter I, Lohse P, Ummenhofer K, Rees F, Hansmann S, Koitschev A, Deuter C, Bialkowski A, Foell D, Benseler SM. Treatment of Muckle-Wells syndrome: analysis of two IL-1-blocking regimens. Arthritis Res Ther. 2013 May 29;15(3):R64.

77. Jones KC, Benseler SM, Moharir M. Anti-NMDA Receptor Encephalitis, Neuroimaging Clin N Am, 2013 May;23(2):309-20


78. Moharir M, Shroff M, Benseler SM, Childhood central nervous system vasculitis. Neuroimaging Clin N Am, 2013 May;23(2):293-308

79. Lim LS, Lefebvre A, Benseler SM, Silverman ED. Longterm outcomes and damage accrual in patients with childhood systemic lupus erythematosus with psychosis and severe cognitive dysfunction. J Rheumatol, 2013 Apr;40(4):513-9

80. Lim LSH, Lefebvre A, Benseler SM, Peralta M, Silverman ED, Psychiatric illness of systemic lupus erythematosus in childhood: spectrum of clinically important manifestations, J Rheumatol. 2013 Apr;40(4):506-12

81. Kuemmerle-Deschner J, Koitchev A, Gramlich K, Hansmann S, Plontke S, Koitchev C, Koetter I, Angermair E, Benseler SM, Hearing loss in Muckle-Wells Syndrome, Arthritis Rheum, 2013 Mar;65(3):824-31

82. Titulaer M, McCracken L, Gabilondo I, Armangué T, Glaser C, Iizuka T, Honig L, Benseler SM, Kawachi I, Martinez-Hernandez E, Aguilar E, Gresa-Arribas N, Ryan-Florance N, Torrents A, Saiz A, Rosenfeld M, Balice-Gordon R, Graus F, Dalmau J. Treatment and prognostic factors for long-term outcome in patients with anti-N-Methyl-D-Aspartate (NMDA) receptor encephalitis: a cohort study, Lancet Neurol, 2013 Feb;12(2):157-65

83. Hugle B, Haas JP, Benseler SM. Treatment preference in juvenile idiopathic arthritis;a comparative analysis in two health care systems, Pediatr Rheumatol Online J, 2013 Jan 15;11(1):3

84. Moran CJ, Walters TD, Guo CH, Kugathasan S, Klein C, Turner D, Wolters VM, Bandsma RH, Mouzaki M, Zachos M; NEOPICS, Langer JC, Cutz E, Benseler SM, Roifman CM, Silverberg MS, Griffiths AM, Snapper SB, Muise AM, IL-10R polymorphisms are associated with very-early-onset ulcerative colitis, Inflamm Bowel Dis. 2013 Jan;19(1):115-123.

85. Bernatsky S, Lix L, O'Donnell S, Lacaille, D, CANRAD Network. Consensus statement for the use of data in rheumatic disease research and surveillance The Journal of Rheumatology, Jan 3, 2013, 40(1):66-73.

2012

86. Batthish M, Banwell B, Laughlin S, Halliday W, Peschken C, Paras E, Benseler SM, Refractory Primary CNS Vasculitis of Childhood: Successful Treatment with Infliximab. The Journal of Rheumatology,2012 Nov;39(11):2227-9

87. Gowdie P, Twilt M, Benseler SM, Primary and secondary central nervous system vasculitis, Journal of Child Neurology, 2012 Nov;27(11):1448-59

88. Cellucci T, Tyrrell PN, Pullenayegum E, Benseler SM.von Willebrand factor antigen--a

possible biomarker of disease activity in childhood central nervous system vasculitis? Rheumatology (Oxford). 2012 Oct; 51(10):1838-45





89. Morishita K, Guzman J, Chira P, Zeft AS, Klein-Gitelman M, Uribe AG, Abramson L, Ballinger S, Benseler SM, Campillo S, Eberhard A, Eichenfield A, Hashkes PJ, Hersh AO, Higgins G, Jerath R, Jung L, Kim S, Kingsbury DJ, Li SC, Lovell DJ, Mason T, McCurdy D, Muscal E, Nassi L, O’Neil KM, Onel K, Rabinovich E, Ramsey S, Reiff A, Rosenkranz M, Schikler K, Singer N, Spalding S, Stevens A, Wahezi D, Zemel L, Cabral DA, Do Adult Disease Severity Subclassifications Predict Use of Cyclophosphamide in Children with ANCA-Associated Vasculitis? An Analysis of ARChiVe Study Treatment Decisions J Rheumatology,2012 Oct;39(10):2012-20

90. Lim LS, Benseler SM, Tyrrell PN, Harvey E, Herbert D, Charron M, Silverman ED: Predicting longitudinal trajectory of bone mineral density in paediatric systemic lupus erythematosus patients. Ann Rheum Dis. 2012 Oct;71(10):1686-91

91. Leblanc CM, Lang B, Bencivenga A, Chetaille AL, Dancey P, Dent P, Miettunen P, Oen K, Rosenberg A, Roth J, Scuccimarri R, Tse SM, Benseler S, Cabral DA, Campillo S, Chédeville G, Duffy CM, Duffy KW, Haddad E, Huber AM, Laxer R, Levy D, Johnson N, Ramsey S, Shiff N, Schmeling H, Schneider R, Stringer E, Yeung RS, Tucker LB. Access to biologic therapies in Canada for children with juvenile idiopathic arthritis. J Rheumatol, 2012 Sep;39(9):1875-9

92. Soon GS, Rodan LH, Laughlin S, Laxer RM, Benseler SM, Silverman ED. Reversible splenial lesion syndrome in pediatric systemic lupus erythematosus. J Rheumatol. 2012 Aug;39(8): 1698-9.

93. Uribe AG, Huber AM, Kim S, O'Neil KM, Wahezi DM, Abramson L, Baszis K, Benseler SM, Bowyer SL, Campillo S, Chira P, Hersh AO, Higgins GC, Eberhard A, Ede K, Imundo LF, Jung L, Kingsbury DJ, Klein-Gitelman M, Lawson EF, Li SC, Lovell DJ, Mason T, McCurdy D, Muscal E, Nassi L, Rabinovich E, Reiff A, Rosenkranz M, Schikler KN, Singer NG, Spalding S, Stevens AM, Cabral DA, Increased Sensitivity of the European Medicines Agency Algorithm for Classification of Childhood Granulomatosis with Polyangiitis, J Rheumatol, 2012 Aug:39(8):1687-97

94. Koitschev A, Gramlich K, Hansmann S, Benseler S, Plontke SK, Koitschev C, Koetter I, Kuemmerle-Deschner JB: Progressive familial hearing loss in Muckle-Wells syndrome. Acta Otolaryngol. 2012 Jul;132(7):756-62.

95. Stinson JN, Feldman BM, Duffy CM, Huber AM, Tucker LB, McGrath PJ, Tse SM, Hetherington R, Spiegel LR, Campillo S, Benseler SM, Gill N, White ME, Baker N, Vijenthira A, Jointly managing arthritis: Information needs of children with juvenile idiopathic arthritis (JIA) and their parents. Journal of Child Health Care, 2012 Jun;16(2):124-40

96. Cellucci T, Tyrrell PN, Sheikh S, Benseler SM, Childhood primary angiitis of the central nervous system: identifying disease trajectories and early risk factors for persistently higher disease activity, Arthritis Rheum, 2012 May;64(5):1665-72

97. Morishita K, Li SC, Muscal E, Spalding S, Guzman J, Uribe A, Abramson L, Baszis K, Benseler S, Bowyer S, Campillo S, Chira P, Hersh AO, Higgins G, Eberhard A, Ede K,


Imundo L, Jung L, Kim S, Kingsbury DJ, Klein-Gitelman M, Lawson EF, Lovell DJ, Mason T, McCurdy D, Nanda K, Nassi L, O'Neil KM, Rabinovich E, Ramsey SE, Reiff A, Rosenkranz M, Schikler K, Stevens A, Wahezi D, Cabral DA; ARChiVe Investigators Network: Assessing the performance of the Birmingham Vasculitis Activity Score at diagnosis for children with antineutrophil cytoplasmic antibody-associated vasculitis in A Registry for Childhood Vasculitis (ARChiVe). J Rheumatol. 2012 May;39(5):1088-94.

98. Twilt M, Benseler SM, Cabral, D, Granulomatosis with Polyangiitis in Childhood, Current

Rheumatology Reports, 2012 Apr;14(2):107-115

99. Dancey P, Benseler SM, Junker A, Laxer R, Miettunen P, Turner L, Gattorno M, The challenge of periodic fevers in children. Paediatr Child Health. 2012 Mar;17(3):123

100. Bernard TJ, Manco-Johnson MJ, Lo W, Mackay MT, Ganesan V, Deveber G, Goldenberg NA, Armstrong-Wells J, Dowling MM, Roach ES, Tripputi M, Fullerton HJ, Furie KL, Benseler SM, Jordan LC, Kirton A, Ichord R: Towards a consensus-based classification of childhood arterial ischemic stroke.Stroke, 2012 Feb;43 (2): pp:371-7

2011

101. Twilt M, Benseler SM, The spectrum of CNS vasculitis in children and adults, Nat Rev Rheum,2011 Dec 8 (2):pp:97-107

102. Kuemmerle-Deschner JB, Lohse P, Koetter I, Dannecker GE, Reess F, Ummenhofer K, Koch S, Tzaribachev N, Bialkowski A, Benseler SM, NLRP3 E311K mutation in a large family with Muckle-Wells syndrome:description of a heterogeneous phenotype and response to treatment, Arthritis Res Ther, 2011;13(6):R196

103. Lim SH, Benseler SM, Tyrrell PN, Charron M, Harvey E, Hebert D, Silverman ED: Low bone mineral density is present in newly diagnosed paediatric systemic lupus erythematosus patients. Ann Rheum Dis. 2011 Nov;70(11):1991-4

104. Wittkowski H, Kuemmerle-Deschner JB, Austermann J, Holzinger D, Goldbach-Mansky R, Gramlich K, Lohse P, Jung T, Roth J, Benseler SM, Foell D: MRP8 and MRP14, phagocyte-specific danger signals, are sensitive biomarkers of disease activity in cryopyrin-associated periodic syndromes. Ann Rheum Dis. 2011 Dec;70(12):2075-81

105. Butbul Aviel Y, Stremler R, Benseler SM, Cameron B, Laxer RM, Ota S, Schneider R, Spiegel L, Stinson JN, Tse SM, Feldman BM: Sleep and fatigue and the relationship to pain, disease activity and quality of life in juvenile idiopathic arthritis and juvenile dermatomyositis. Rheumatology (Oxford). 2011 Nov;50(11):2051-60.

106. Cellucci T, Benseler SM: Posterior reversible encephalopathy syndrome: increasing recognition of an important clinical entity in young patients with systemic lupus erythematosus. J Rheumatol. 2011 Aug;38(8):1544-5.

107. Hajj-Ali RA, Singhal AB, Benseler S, Molloy E, Calabrese LH: Primary angiitis of the CNS. Lancet Neurol. 2011 Jun;10(6):561-72.




108. Luca N, Daengsuwan T, Dalmau J, Jones K, deVeber G, Kobayashi J, Laxer RM, Benseler SM: Anti-N-methyl-D-aspartate receptor encephalitis: a newly recognized inflammatory brain disease in children. Arthritis Rheum. 2011 Aug;63(8):2516-22. Kuemmerle-Deschner JB, Tyrrell PN, Koetter I, Wittkowski H, Bialkowski A, Tzaribachev N, Lohse P, Koitchev A, Deuter C, Foell D, Benseler SM, Efficacy and safety of anakinra therapy in pediatric and adult patients with the autoinflammatory Muckle-Wells syndrome. Arthritis Rheum, 2011 Mar;63(3):840-9

109. Davì S, Consolaro A, Guseinova D, Pistorio A, Ruperto N, Martini A, Cron RQ, Benseler SM, Ravelli A, MAS Study Group. An international consensus survey of diagnostic criteria for macrophage activation syndrome in systemic juvenile idiopathic arthritis. J Rheumatol, 2011 Apr;38(4):764-8. C

2010

110. Cellucci T, Benseler SM: Diagnosing central nervous system vasculitis in children. Curr Opin Pediatr. 2010 Dec;22(6):731-8.

111. Kümmerle-Deschner JB, Tyrrell PN, Reess F, Kötter I, Lohse P, Girschick H, Huemer C, Horneff G, Haas JP, Koitschev A, Deuter C, Benseler SM: Risk factors for severe Muckle-Wells syndrome. Arthritis Rheum. 2010 Dec;62(12):3783-91.

112. Elbers J, Halliday W, Hawkins C, Hutchinson C, Benseler SM: Brain biopsy in children with primary small-vessel central nervous system vasculitis. Ann Neurol. 2010 Nov;68(5):602-10.

113. Hutchinson C, Elbers J, Halliday W, Branson H, Laughlin S, Armstrong D, Hawkins C, Westmacott R, Benseler SM: Treatment of small vessel primary CNS vasculitis in children: an open-label cohort study. Lancet Neurol. 2010 Nov;9(11):1078-84. Erratum in: Lancet Neurol. 2010 Nov;9 (11):1045.

114. Cellucci T, Benseler SM: Central nervous system vasculitis in children. Curr Opin Rheumatol. 2010 Sep;22(5):590-7.

115. Hugle B, Solomon M, Harvey E, James A, Wadhwa A, Amin R, Bell-Peter A, Benseler S: Pneumocystis jiroveci pneumonia following rituximab treatment in Wegener's granulomatosis. Arthritis Care Res (Hoboken). 2010 Nov;62(11):1661-4.

116. Ardelean DS, Gonska T, Wires S, Cutz E, Griffiths A, Harvey E, Tse SM, Benseler SM: Severe ulcerative colitis after rituximab therapy. Pediatrics. 2010 Jul;126(1):e243-6.

117. Brunner J, Feldman BM, Tyrrell PN, Kuemmerle-Deschner JB, Zimmerhackl LB, Gassner I, Benseler SM: Takayasu arteritis in children and adolescents. Rheumatology (Oxford). 2010 Oct;49(10):1806-14.

118. Oen K, Duffy CM, Tse SM, Ramsey S, Ellsworth J, Chédeville G, Chetaille AL, Saint-Cyr C, Cabral DA, Spiegel LR, Schneider R, Lang B, Huber AM, Dancey P, Silverman E, Rosenberg AM, Cameron B, Johnson N, Dorval J, Scuccimarri R, Campillo S, Petty RE,


Duffy KN, Boire G, Haddad E, Houghton K, Laxer R, Turvey SE, Miettunen P, Gross K, Guzman J, Benseler S, Feldman BM, Espinosa V, Yeung RS, Tucker L: Early outcomes and improvement of patients with juvenile idiopathic arthritis enrolled in a Canadian multicenter inception cohort. Arthritis Care Res (Hoboken). 2010 Apr;62(4):527-36.

2009

119. Sabharwal T, Manlhiot C, Benseler SM, Tyrrell PN, Chahal N, Yeung RS, McCrindle BW: Comparison of factors associated with coronary artery dilation only versus coronary artery aneurysms in patients with Kawasaki disease. Am J Cardiol. 2009 Dec 15;104(12):1743-7.

120. Cabral DA, Uribe AG, Benseler S, O'Neil KM, Hashkes PJ, Higgins G, Zeft AS, Lovell DJ, Kingsbury DJ, Stevens A, McCurdy D, Chira P, Abramson L, Arkachaisri T, Campillo S, Eberhard A, Hersh AO, Huber AM, Kim S, Klein-Gitelman M, Levy DM, Li SC, Mason T, Dewitt EM, Muscal E, Nassi L, Reiff A, Schikler K, Singer NG, Wahezi D, Woodward A; ARChiVe (A Registry for Childhood Vasculitis: e-entry) Investigators Network: Classification, presentation, and initial treatment of Wegener's granulomatosis in childhood. Arthritis Rheum. 2009 Nov;60(11):3413-24.

121. Hiraki LT, Benseler SM, Tyrrell PN, Harvey E, Hebert D, Silverman ED: Ethnic differences in pediatric systemic lupus erythematosus. J Rheumatol. 2009 Nov;36(11):2539-46.

122. Tzaribachev N, Benseler SM, Tyrrell PN, Meyer A, Kuemmerle-Deschner JB: Predictors of delayed referral to a pediatric rheumatology center. Arthritis Rheum. 2009 Oct 5;61(10):1367-72.

123. Oen K, Tucker L, Huber AM, Miettunen P, Scuccimarri R, Campillo S, Cabral DA, Feldman BM, Tse S, Chédeville G, Spiegel L, Schneider R, Lang B, Ellsworth J, Ramsey S, Dancey P, Silverman E, Chetaille AL, Cameron B, Johnson N, Dorval J, Petty RE, Duffy KW, Boire G, Haddad E, Houghton K, Saint-Cyr C, Turvey SE, Benseler S, Cheang M, Yeung RS, Duffy CM: Predictors of early inactive disease in a juvenile idiopathic arthritis cohort: results of a Canadian multicenter, prospective inception cohort study. Arthritis Rheum. 2009 Aug 15;61(8):1077-86.

124. Werner KG, Morel CF, Kirton A, Benseler SM, Shoffner JM, Addis JB, Robinson BH, Burrowes DM, Blaser SI, Epstein LG, Feigenbaum AS: Rolandic mitochondrial encephalomyelopathy and MT-ND3 mutations. Pediatric Neurology 2009 Jul: 41 (1): pp: 27-33. C R

125. French AE, Benseler SM, Birken CS: Case 2: A teenage boy with epistaxis. Paediatr Child Health. 2009 Feb;14(2):99-102.

126. Jurencák R, Fritzler M, Tyrrell P, Hiraki L, Benseler S, Silverman E: Autoantibodies in pediatric systemic lupus erythematosus: ethnic grouping, cluster analysis, and clinical correlations. J Rheumatol. 2009 Feb;36(2):416-21.

127. Gupta AA, Tyrrell P, Valani R, Benseler SM, Abdelhaleem M, Weitzman S: Experience


with Hemophagocytic Lymphohistiocytosis/Macrophage Activation Syndrome at a Single Institution. Journal of Pediatric Hematology/Oncology 2009 Feb: 31 (2): pp: 81-4.

128. Benseler SM, Bargman JM, Feldman BM, Tyrrell PN, Harvey E, Hebert D, Silverman ED: Acute Renal Failure in Paediatric Systemic Lupus Erythematosus (pSLE): Treatment and Outcome. Rheumatology (Oxford) 2009 Feb: 48 (2): pp: 176-82.

129. Kumar S, Benseler SM, Kirby-Allen M, Silverman E: B Cell Depletion for Autoimmune Thrombocytopenia and Autoimmune Hemolytic Anemia in Pediatric Systemic Lupus Erythematosus: A Single Center Experience. Pediatrics 2009 Jan: 123 (1): pp: e159-e163.

2008

130. Stephens S, Feldman BM, Bradley N, Schneiderman-Walker J, Wright V, Singh-Grewal D, Lefebvre A, Benseler SM, Cameron B, Laxer R, O'Brien C, Schneider R, Silverman E, Spiegel L, Stinson J, Tyrrell P, Whitney K, Tse SML: Feasibility and Effectiveness of an Aerobic Exercise Program in Children with Fibromyalgia: Results of a Randomized Controlled Pilot Trial. Arthritis and Rheumatism 2008 Oct: 59 (10): pp: 1399-1406

131. Freedman SB, Deiratany S, Goldman RD, Benseler SM: Development of a Caregiver Gastroenteritis Knowledge Questionnaire. Ambulatory Pediatrics 2008 Jul-Aug: 8 (4): pp: 261-265. SRI R

132. Kuemmerle-Deschner JB, Benseler SM: Abatacept in Difficult-to-treat Juvenile Idiopathic Arthritis Biologics 2008 Dec: 2 (4): pp: 865-74. SRI C

133. Cantez S, Benseler SM: Childhood CNS Vasculitis: A Treatable Cause of New Neurological Deficit in Children. Nature Clinical Practice Rheumatology 2008 Sep: 4 (9): pp: 460-461.

134. Gupta A, Tyrrell P, Valani R, Benseler SM, Weitzman S, Abdelhaleem M: The Role of the Initial Bone Marrow Aspirate in the Diagnosis of Hemophagocytic Lymphohistiocytosis. Pediatric Blood and Cancer 2008 Sep: 51 (3): pp: 402-404. C R

135. Brunner J, Armstrong D, Feldman BM, Schneider R, Benseler SM: Childhood Stroke as the Presentation of Takayasu's Arteritis: Diagnostic Delay Can Cause Catastrophic Complications. Journal of Rheumatology 2008 Jun: 35 (6): pp: 1228-1230. SRI C

136. Hiraki LT, Benseler SM, Tyrrell PN, Hebert D, Harvey E, Silverman ED: Clinical and Laboratory Characteristics and Long-Term Outcome of Pediatric Systemic Lupus Erythematosus. Journal of Pediatrics 2008 Apr: 152 (4): pp: 550-556

137. Avcin T, Benseler SM, Tyrrell PN, Cucnik S, Silverman ED: A follow-up study of antiphospholipid antibodies and associated neuropsychiatric manifestations in 137 children with systemic lupus erythematosus. Arthritis & Rheumatism (Arthritis Care and Research) 2008 Feb: 59 (2): pp: 206-213


138. Elbers J and Benseler SM: Central Nervous System Vasculitis in Children. Current Opinion in Rheumatology 2008 Jan: 20 (1): pp: 47-54

2007

139. Tyrrell PN, Beyene J, Benseler SM, Sarkissian T, Silverman ED: Predictors of Lipid Abnormalities in Children with New Onset Systemic Lupus Erythematosus. Journal of Rheumatology 2007 Oct: 34 (10): pp: 2112-2119

140. Benseler SM, Silverman ED: Systemic lupus erythematosus. Rheum Dis Clin North America 2007 Aug: 33 (3): pp: 471-98

141. Benseler SM and Silverman ED: Neuropsychiatric Involvement in Pediatric Systemic Lupus Erythematosus. Lupus 2007: 16 (8): pp: 564-571

142. Aviv RI, Benseler SM, deVeber G, Silverman ED, Tyrrell PN,Tsang LM, Armstrong D: Angiography of Primary Central Nervous System Angiitis of Childhood: Conventional Angiography versus Magnetic Resonance Angiography at Presentation. American Journal of Neuroradiology 2007 Jan: 28 (1): pp: 9-15

2006

143. Benseler SM: Central Nervous System Vasculitis in Children. Current Rheumatology Report 2006 Dec: 8 (6): pp: 442-9

144. Benseler SM, Silverman ED, Aviv RI, Schneider R, Armstrong D, Tyrrell PN, deVeber G: Primary Central Nervous System Vasculitis in Children. Arthritis and Rheumatism 2006 Apr: 54 (4): pp: 1291-7

145. Aviv RI, Benseler SM, Silverman ED, Tyrrell PN, deVeber G, Tsang LM, Armstrong D: MR Imaging and Angiography of Primary CNS Vasculitis of Childhood. American Journal of Neuroradiology AJNR 2006 Jan: 27 (1): pp: 192-9

2005

146. Benseler SM, McCrindle BW, Silverman ED, Tyrrell PN, Wong J, Yeung RSM: Infections and Kawasaki Disease: Implications for Coronary Artery Outcome. Pediatrics 2005 Dec: 116 (6): pp: e760-66

147. Goldman RD, Benseler SM, Schneider R: Intra-articular Calcifications in a Child with Juvenile Rheumatoid Arthritis. Archives of Disease in Childhood 2005 Oct: 90 (10): pp: 1033-38

148. Benseler SM, deVeber G, Hawkins C, Schneider R, Tyrrell PN, Aviv RI, Armstrong D, Laxer RM, Silverman ED: Angiography-Negative Primary Central Nervous System Vasculitis in Children: A Newly Recognized Inflammatory Central Nervous System Disease. Arthritis and Rheumatism 2005 Jul: 52 (7): pp: 2159-67

149. Rafay MF, Sutcliffe T, Shroff M, Hawkins C, Weiss S, Benseler SM, deVeber G: Primary


Central Nervous System Angiitis in a 10-year-old Girl. Canadian Journal of Neurological Sciences 2005 May: 32 (2): pp: 243-5

150. Benseler SM, Silverman ED: Systemic lupus erythematosus. Pediatri Clin North America 2005 Apr: 52 (2): pp: 443-67

2004

151. Sutcliffe T, Rafay MF, Hawkins C, Weiss S, Benseler SM, deVeber G: Primary Central Nervous System Angiitis in a 10-year-old girl. Neuropathology Highlight 2004: 31: pp 220

152. Heep A, Stoffel-Wagner B, Bartmann P, Benseler SM, Schaller C, Groneck P, Obladen M, Felderhoff-Mueser U: Vascular endothelial growth factor and transforming growth factor-beta1 are highly expressed in the cerebrospinal fluid of premature infants with posthemorrhagic hydrocephalus. Pediatric Research 2004 Nov: 56 (5): pp: 768-74

153. Benseler SM, Schneider R: Central Nervous System Vasculitis in Children. Current Opinion in Rheumatology 2004 Jan: 16 (1): pp: 43-50

2003 and earlier

154. Benseler SM, Gruschwitz M, Sgonc R, Dietrich H, Boeck G, Cooper MD, Gershwin ME, Boyd R, G Wick: CR gamma/delta positive cell in early avian scleroderma. Journal of Autoimmunity 1994: 7: pp 745-52.

155. Brezinschek HP, Gruschwitz M, Sgonc R, Moormann S, Herold M, Gershwin ME, G Wick: Effects of cytokine-application on glucocorticoid-secretion in an animal model for systemic sclerosis. Journal of Autoimmunity 1993: 6 (6): pp: 719-33.

156. Gruschwitz M, Moormann S, Dietrich H, Timpl R, Colombatti A, G Wick: Distribution of matrix proteins in the skin of UCD 200 chickens: A model for progressive systemic sclerosis. Arch Dermatol Res 1992 (284): pp: 64a.

157. Gruschwitz M, Moormann S, Kromer G, Sgonc R, Dietrich H, Boeck G, Gershwin ME, Boyd R, G Wick: Phenotypic analysis of skin infiltrates in comparison with peripheral blood lymphocytes, spleen cells and thymocytes in early avian scleroderma. Journal of Autoimmunity 1991: 4 (4): pp: 577-93.

Books/Chapters in Books/Proceedings Published

1. Twilt M, Diamond IR, Benseler SM. Research Methods in Radiology: A Practical Guide, Chapter 5 Observational Designs. 2017. 1st edition

2. Twilt M, Benseler S, CNS Vasculitis, Textbook Inflammatory Brain Diseases Edition one (Sean Pittock / Angela Vincent ed). Elsevier Saunders, Philadelphia, PA 2017


3. Twilt M, Benseler S, CNS Vasculitis, Indian Textbook of Rheumatic Diseases Edition one, 2016

4. AL-Shaalan HM, AL-Qahtani HM, AL-Okaili RN, Cox P, Benseler SM, Abdelhaleem M, Weitzman S, Friedman J, Schneider R, Manson D. Thoracic, abdominal and pelvic CT and US imaging features in children with hemophagocytic lymphohistocytosis. 2016. International Journal of Diagnostic Imaging Vol 3, No 1 (2016)

5. Kirton A, Benseler SM. CNS Vasculitis and stroke. Textbook of Pediatric Rheumatology Seventh Edition (James T. Cassidy/Ross E. Petty/Ronald M. Laxer/Carol B. Lindsley, ed). Elsevier Saunders, Philadelphia, PA 2015: Chapter 34

6. Twilt M, Nita D, Benseler SM: Neuroinflammatory diseases. In: Pediatric Critical Care Medicine: Basic Science and Clinical Evidence, 2014 2nd Edition/ Volume 2.

7. Kuemmerle-Deschner J Benseler SM,: Tagayashu Arteritis. In: Paediatrische Rheumatologie (Wagner N, Dannecker Hrsg GE, ed). Springer Medizin Verlag, Auflage, Germany 2nd edition 2013

8. Benseler SM: Seltene Formen der Vaskulitis. In: Paediatrische Rheumatologie ( Wagner N, Dannecker Hrsg GE, ed). Springer Medizin Verlag, Auflage, Germany 2013.

9. Benseler S, Pohl D. Childhood central nervous system vasculitis. Handb Clin Neurol. 2013;112:1065-78.

10. Pohl D, Benseler S. Systemic inflammatory and autoimmune disorders. Handb Clin

Neurol. 2013;112:1243-52.

11. Benseler SM, Pohl D: Childhood central nervous system vasculitis. In: Paediatric Neurology Part II (Dulac O, Sarnat H, Lassonde M, eds) Chapter 108. 2013 Elsevier Science Publishing, New York.

12. Pohl D, Benseler SM: Systemic inflammatory and autoimmune disorders. In: Paediatric Neurology Part II (Dulac O, Sarnat H, Lassonde M, eds) Chapter 131. 2013 Elsevier Science Publishing, New York.

13. Benseler SM, Laxer, R: Systemic Lupus Erythematosus, Juvenile Dermatomyositis, Scleroderma and Vasculitis. In: Kelly Textbook of Rheumatology (Chapter 108). United States Elsevier Health. 2012 Publisher: Saunders.

14. Cabral D, Benseler SM. Granulomatous Vasculitis, Microscopic Polyangiitis and Primary Angiitis of the Central Nervous System. Textbook of Pediatric Rheumatology Sixth Edition (James T. Cassidy/Ross E. Petty/Ronald M. Laxer/Carol B. Lindsley, ed). Elsevier Saunders, Philadelphia, PA 2010: chapter 34: pp: 521.

15. Elbers J, Benseler SM. Central Nervous System Vasculitis. In: Clinics in Developmental Medicine (Russell C. Dale/Angela Vincent, ed). Mac Keith Press, London 2010: No. 184-185, Chapter 15: pp: 246


16. Luca N, Benseler SM: Vasculitis and Thrombophlebitis. EMedicine 2011 and 2014

17. Hutchinson CM, Benseler SM: Primary CNS Vasculitis of Childhood. EMedicine 2009 and 2014

18. Elbers J, Benseler SM: Central Nervous System Vasculitis in Inflammatory and Autoimmune Disorders of the Nervous System in Children. In: Neuroimmunology (Raine CS, Brosnan CI, ed). Elsevier, Bronx, NY 2009

19. Benseler SM, Kuemmerle-Deschner J: Tagayashu Arteritis. In: Paediatrische Rheumatologie (Wagner N, Dannecker Hrsg GE, ed). Springer Medizin Verlag, Auflage, Germany 2007: pp: 379:10.3.1

20. Benseler SM: Seltene Formen der Vaskulitis. In: Paediatrische Rheumatologie ( Wagner N, Dannecker Hrsg GE, ed). Springer Medizin Verlag, Auflage, Germany 2007: pp 398:10.6. PI

21. Benseler SM: Rheumatologic Emergencies. In: Handbook of Pediatric Emergency Medicine (Lalani A, Schneeweiss S, eds). Jones and Bartlett 2007.

22. Benseler SM: Korperliche Untersuchung. In: Paediatrische Rheumatologie (N. Wagner N, Dannecker Hrsg, GE ed). Springer Medizin Verlag, Auflage, Germany 2007: pp: 70:3.1.

23. Benseler SM: Kawasaki Disease. In: Handbook of Pediatric Emergency Medicine (Lalani A, Schneeweiss S, eds). Jones and Bartlett 2007. PA

24. Benseler SM: Vaskulitis. In: Paediatrische Immunology/Rheumatology Wahn, Seeger, Wahn, Marseille Verlag 2001.

GUIDELINES

1. Ter Haar NM, Oswald M, Jeyaratnam J, Anton J, Barron KS, Brogan PA, Cantarini L, Galeotti C, Grateau G, Hentgen V, Hofer M, Kallinich T, Kone-Paut I, Lachmann HJ, Ozdogan H, Ozen S, Russo R, Simon A, Uziel Y, Wouters C, Feldman BM, Vastert SJ, Wulffraat NM, Benseler SM, Frenkel J, Gattorno M, Kuemmerle-Deschner JB: Recommendations for the management of autoinflammatory diseases, Ann Rheum Dis. 2015 Sep;74(9):1636-44

2. Cellucci T, Guzman J, Petty RE, Batthish M, Benseler SM, Ellsworth JE, et al. Management of Juvenile Idiopathic Arthritis 2015: A Position Statement from the pediatric Committee of the Canadian Rheumatology Association. J Rheum. 2016 Oct; 43(10):1773-6

3. Kuemmerle-Deschner J, Benseler SM: Treatment Guidelines Childhood Vasculitis, German

Society of Pediatric Rheumatology. February, 2011.


4. Anton, J, Benseler, SM: Pediatric Rheumatology European Society (PRES) Guidelines: Management of Childhood Vasculitis 2009

ABSTRACTS 2017

1. Koné-Paut I, Hofer M, Benseler S, Kuemmerle-Deschner JB, Jansson A, Rosner I, Manna R, Murias S, Karadag O, Tucker L, Orban I, Tormey V, Alessio M, Ozdogan H, De Benedetti F. Improvement of Disease Activity in Patients with Colchicine-Resistant FMF, Hids/Mkd and TRAPS Assessed By Autoinflammatory Disease Activity Index (AIDAI): Results from a Randomized Phase III Trial [abstract]. Arthritis Rheumatol.2017; 69 (suppl 10). American College of Rheumatology Annual Meeting. San Diego, CA, USA. Nov, 2017 (POSTER)

2. Guzman J, Henrey A, Loughin T, Oen K, Shiff NJ, Berard R, Jurencak R, Huber A, Gerhold K,

Benseler S, Duffy CM, Tucker L. Individualized Prediction of Early Remission on Medication in Juvenile Idiopathic Arthritis [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 10) American College of Rheumatology Annual Meeting. San Diego, CA, USA. Nov, 2017 (POSTER)

3. Chomistek K, Johnson N, Stevenson R, Luca N, Miettunen P, Benseler S, Veeramreddy D, Schmeling H. Barriers at School for Children with Juvenile Idiopathic Arthritis (JIA) – a Patient Reported Outcome [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 10). American College of Rheumatology Annual Meeting. San Diego, CA, USA. Nov, 2017 (POSTER)

4. Kone-Paut, M. Piram, S. Benseler, M. Hofer, H. Lachmann, H. M. Hoffman, M. Gattorno, J. Frenkel, J. B. Kuemmerle-Deschner, S. Ozen, J. Levy, C. S. Karyekar, F. De Benedetti. Improvement of Disease Activity in Patients with Colchicine-Resistant FMF, HIDS/MKD and TRAPS Assessed by Autoinflammatory Disease Activity Index (AIDAI): Results from the Cluster Trial. EULAR 2017 – June 15,2017

5. Liu E, Dropol A, Twilt M, Tyrrell P, Sheikh S, Benseler S. Risk Factors for Poor Health-Related Quality of Life in Children with Inflammatory Brain Diseases [abstract].Arthritis Rheumatol. 2017; 69 (suppl 4) 2017 Pediatric Rheumatology Symposium, Huston, TX, USA. May 2017 (Poster)

6. Gerschman T, Raugust J, Brooks J, Johnson N, Luca N, Stevenson R, Schmeling H, Miettunen P, Benseler S. Evaluating Levels of Activity and Health-Related Quality of Life in a Pilot Cohort of Youth Athletes with Juvenile Idiopathic Arthritis [abstract].Arthritis Rheumatol. 2017; 69 (suppl 4) 2017 Pediatric Rheumatology Symposium, Huston, TX, USA. May 2017 (Poster)

7. Chomistek K, Johnson N, Stevenson R, Luca N, Miettunen P, Benseler S, Veeramreddy D, Schmeling H. Barriers at School for Children with Juvenile Idiopathic Arthritis (JIA) –A Patient Reported Outcome [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 4). 2017 Pediatric Rheumatology Symposium, Huston, TX, USA. May 2017 (Poster)


8. Dropol A, Dhillon N, Twilt M, Nishat F, Sheikh S, Branson H, Benseler S. Spinal Cord Inflammation in Children with Small Vessel Primary CNS Vasculitis [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 4) 2017 Pediatric Rheumatology Symposium, Huston, TX, USA. May 2017 (Poster)

9. Ezaei E, Hogan D, Trost B, Kusalik A, Benseler S, Boire G, Cabral DA, Cameron B, Campillo S, Chédeville G, Dancey P, Duffy CM, Watanabe Duffy KN, Ellsworth J, Eng S, Feldman BM, Gordon J, Guzman J, Houghton K, Huber A, Morris Q, Lang B, Levy DM, Matheson L, Oen K, Petty R, Ramsey S, Roth J, Rumsey D, Saint-Cyr C, Schneider R, Scuccimarri R, Silverman E, Spiegel LR, Stringer E, Tse SML, Tucker L, Yeung RSM, Rosenberg A. Biologically-Based Approach for Classifying Chronic Childhood Arthritis [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 4). 2017 Pediatric Rheumatology Symposium, Huston, TX, USA. May 2017 (Poster)

10. Dropol A, Lang M, Benseler S, Gerschman T, Johnson N, Loewen J, Luca N, Ponzio A, Rusted B, Schmeling H, Stevenson R, Stringer L, Twilt M, Miettunen P. “Celebrate Ability”: Structured Art Workshop as a Therapeutic Coping Strategy for Patients with Juvenile Idiopathic Arthritis [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 4). 2017 Pediatric Rheumatology Symposium, Huston, TX, USA. May 2017 (Poster)

11. Muscal E, Van Mater H, Cellucci T, Co D, Frankovich J, Klein-Gitelman MS, Twilt M, Benseler S. Exploring the role of pediatric rheumatologists in the diagnosis and management of autoimmune encephalitis [abstract]. Arthritis Rheumatol. 2017; 69 (suppl 4). 2017 Pediatric Rheumatology Symposium, Huston, TX, USA. May 2017 (Poster)

12. Barber C, MacMullan P, Barnabe C, Marshall D, Benseler SM, Twilt M, Hazlewood G, Mah AF, Emrick A, Sandhu N, Stevenson M, Ziouzina O, Mosher D. Rheum4U – Preliminary Results of Piloting a Web-based Tool for Quality Improvement in Rheumatology Clinics. Canadian Rheumatology Association Annual Scientific Meeting. Ottawa, Ontario, Canada. Feb 8 – Feb 11, 2017 (Poster)

13. Chomistek K, Nicole J, Zia A, Stevenson R, Luca N, Miettunen P, Benseler SM, Gerschman T,

Veeramreddy D, Schmeling H. Barriers at School for Children with Juvenile Idiopathic Arthritis. Canadian Rheumatology Association Annual Scientific Meeting. Ottawa, Ontario, Canada. Feb 8 – Feb 11, 2017 (Oral)

2016

14. E. Lui, M Twilt, A Dropol, O Vanderkooi, M Anselmo, M Jackman, S.M. Benseler. Childhood Diffuse Alveolar Hemorrhage. Canadian Rheumatology Assosicaton 2016 (Poster)

15. Twilt M, Nabavi Nouri M, Tyrrell P, Dropol A, Sheikh S, Hawkins C, Benseler SM.

Histopathology of Childhood Small Vessel CNS Vasculitis. CRA 2016. 16. Gerschman T, J Raugust, Brooks J, Johnson N, Luca N, Stevenson R, Schmeling H, Miettunen

P, Benseler SM. Evaluating Levels of Activity and Health-Related Quality of Life in a Cohort of Youth Athletes with Juvenile Idiopathic Arthritis. American College of Rheumatology Annual Meeting. Washington, DC, USA. Nov 11 – Nov 16, 2016 (POSTER)


17. Kuemmerle-Deschner JB, Erbis G, Sergiichuk T, Hansmann S, Haug I, Benseler SM. Unmet

Psychosocial Needs in Patients with CAPS. American College of Rheumatology Annual Meeting. Washington, DC, USA. Nov 11 – Nov 16, 2016 (POSTER)

2015 18. Vazhappilly S,Vanderkooi O, Benseler SM, Gerschman T, Johnson N, Luca N, Miettunen P,

Veeramreddy D, Schmeling H. Immunization Status and Barriers in Childhood Rheumatic Diseases. Canadian Rheumatology Association Annual Scientific Meeting. Quebec City, Quebec, Canada. Feb 4 – Feb 7, 2015

19. Twilt M, Nouri MN, Tyrrell PN, Dropol A, Sheikh S, Hawkins C, Benseler SM. Diagnosing Childhood Small Vessel CNS Vasculitis. American College of Rheumatology Annual Meeting San Francisco, CA, USA. Nov 6 – Nov 11, 2015. (ORAL)

20. Kuemmerle-Deschner JB, Ozen S, Tyrrell PN, Koné-Paut I, Goldbach-Mansky R, Lachmann

H, Blank N, Hoffman HM, Weissbarth-Riedel E, Huegle B, Kallinich T, Gattorno M, Gul A, Nienke M. ter Haar, Oswald M, Dedeoglu F, Benseler SM. Development and Validation of Diagnostic Criteria for Cryopyrin Associated Periodic Syndromes. American College of Rheumatology Annual Meeting San Francisco, CA, USA. Nov 6 – Nov 11, 2015. (ORAL)

21. Aeschlimann FA, Eng S, Grosse-Wortmann L, Benseler SM, Laxer R, Hebert D, Yeung RSM.

Patterns of Vascular Involvement in Childhood Takayasu Arteritis. American College of Rheumatology Annual Meeting San Francisco, CA, USA. Nov 6 – Nov 11, 2015. (POSTER)

22. Tucker LB, Shiff N, Benseler SM, Berard R, Jurencak R, Loughin T, Guzman J, Henrey A.

Scoring Medication Requirements and Side-Effects in Juvenile Idiopathic Arthritis: Perspectives of Patients, Parents and Clinicians. American College of Rheumatology Annual Meeting San Francisco, CA, USA. Nov 6 – Nov 11, 2015. (POSTER)

23. Guzman J, Henrey A, Loughin T, Berard R, Shiff R, Jurencak R, Benseler SM, Tucker LB,

ReACCh-Out Investigators. Using Patient-Relevant Variables to Describe the Disease Course in Children with Juvenile Idiopathic Arthritis. American College of Rheumatology Annual Meeting San Francisco, CA, USA. Nov 6 – Nov 11, 2015. (POSTER)

24. Dancey P, Benseler SM, Gattorno M, Junker AK, Laxer R, Miettunen P, Turner LA.

Surveillance of Periodic Fever Syndromes in Canada. American College of Rheumatology Annual Meeting San Francisco, CA, USA. Nov 6 – Nov 11, 2015. (POSTER)

25. O'Neill L, Twilt M, Benseler SM, Föll D, Cabral DA, Luqmani R. Damage Develops Early and

Is Common in Children with Chronic Systemic Vasculitis. American College of Rheumatology Annual Meeting San Francisco, CA, USA. Nov 6 – Nov 11, 2015. (POSTER)

2014

26. Luca N, Stinson J, Feldman B, Benseler SM, Beaton D, Bayoumi. Reliability and


Responsiveness of the Standardized Universal Pain Evaluations for Rheumatology Providers for Children and Youth (SUPER-KIDZ). Canadian Rheumatology Association Annual Scientific Meeting. Whistler, BC, Canada. Feb 26 – Mar 1, 2014

27. Sickand M, Bigi S, Dropol A, Sheikh S, Benseler SM. Antibody-Mediated Inflammatory Brain Diseases in Children. Canadian Rheumatology Association Annual Scientific Meeting. Whistler, BC, Canada. Feb 26 – Mar 1, 2014

28. Nienke ter Haar, Oswald M, Cantarini L, Gattorno M, Hofer M, Kone-Paut I, Lopez JA,

Barron K, Brogan P, Frenkel J, Galeotti C, Grateau G, Hentgen V, Kallinich T, Lachmann H, Ozdogan H, Ozen S , Russo R, Simon A, Uziel Y, Wouters C, Feldman Bas Vastert B, Wulffraat N, Benseler SM, Kuemmerle-Deschner J. Evidence Based Recommendations for the Management of Cryopyrin Associated Periodic Syndromes (CAPS). American College of Rheumatology Annual Meeting. Boston, MA, USA. Nov 14 – Nov 19,2014

29. Miettunen P, Luca N, Benseler SM, Ellsworth J,Gerschman T, Johnson N, Schmeling H,

Shiff NJ. Advocating for Pediatric Rheumatology Care in the Mid-Canadian Provinces: Large Geographic Area, Large Pediatric Population, Low Number of Pediatric Rheumatologists and Allied Health Workers Identified As Unique Challenges. American College of Rheumatology Annual Meeting. Boston, MA, USA. Nov 14 – Nov 19,2014

30. Canna S, Almeida de Jesus A, Gouni S, Brooks S, Zaal KJ, Marrero B, Liu Y, Dimattia M,

Montealegre Sanchez GA, Kim H, Chapelle DC, Plass N, Huang Y, Biancotto A, Duncan JA, Benseler SM, O'Shea JJ, Grom AA, Deng Z, Laxer R, Goldbach-Mansky R. NLRC4-Related Macrophage Activation Syndrome (NLRC4-MAS): A Novel Primary Autoinflammatory Syndrome Caused By Activating Mutations in NLRC4. American College of Rheumatology Annual Meeting. Boston, MA, USA. Nov 14 – Nov 19,2014

31. Gerstein M, Borgia RE, Feldman B, Levy DM, Sukhdeo S, Benseler SM, Ng LWK,

Abdelhaleem M, Silverman ED, Hiraki LT. Predicting Macrophage Activation Syndrome in Pediatric Systemic Lupus Erythematosus Patients at Diagnosis. American College of Rheumatology Annual Meeting. Boston, MA, USA. Nov 14 – Nov 19,2014

32. Vazhappilly S,Vanderkooi O, Benseler SM, Gerschman T, Johnson N, Luca N, Miettunen P, Veeramreddy D, Schmeling H. Immunization Status and Barriers in Childhood Rheumatic Diseases. American College of Rheumatology Annual Meeting. Boston, MA, USA. Nov 14 – Nov 19,2014

33. Morishita K, Benseler SM, Yeung RSM, Mason II T, Wahezi D, Schikler K, Lawson E,

Nielsen S, Charuvanij S, Dancey P, Shenoi S, Wagner-Weiner L, Sarmiento A, Cabral DA. Early Outcomes in Pediatric Antineutrophil Cytoplasmic Antibody (ANCA) Associated Vasculitis (AAV). American College of Rheumatology Annual Meeting. Boston, MA, USA. Nov 14 – Nov 19,2014

2013


34. Benseler SM. Applying Integrative Knowledge Translation to Pediatric Antibody-

Mediated Inflammatory Brain Disease: Identifying and Filling the Knowledge Gap. Canadian Rheumatology Association-Arthritis Health Professions Association Annual Scientific Meeting, Ottawa, Ontario, Canada, February 13-16, 2013.

35. Twilt M, Schneider R, Bell-Peter A, Yang C, Dell S, Benseler SM. Rituximab for Severe Disease Flares in Childhood ANCA Vasculitides. Canadian Rheumatology Association-Arthritis Health Professions Association Annual Scientific Meeting, Ottawa, Ontario, Canada, February 13-16, 2013.

36. Twilt M, Bell-Peter A, Laxer R, Pagnoux C, Hebert D, Harvey E, Sheikh S, Benseler SM. Treatment and Outcome of ANCA-Associated Vasculitis in Children: A Pilot Study. Canadian Rheumatology Association-Arthritis Health Professions Association Annual Scientific Meeting, Ottawa, Ontario, Canada, February 13-16, 2013.

37. M. Twilt, S. Sheikh, T. Cellucci, G. Chedeville, A. Kirton, A. Mineyko, H. Schmelig, D. Pohl, J. Roth, D. Cabral, A. Huber, A. Rosenberg, N. Schiff, S. Benseler. Recognizing childhood Inflammatory Brain diseases in Canada. La Presse Medicale 2013; 42(4): pp 670 PA

38. Twilt M, Schneider R, Hebert D, Harvey E, Laxer R, Dell S, Licht C, Benseler SM: Maintenance treatment in Childhood Granulomatosis with Polyangiitis. La Presse Medicale 2013: 42 (4): pp712

39. Luca N, Stinson J, Feldman BM, Benseler SM, Beaton ID, Bayoumi AM. Reliability and responsiveness of the standardized universal pain evaluations for rheumatology providers for children and youth (Super-Kidz). Paediatric Rheumatology European Society, 2013.

2012

40. Cellucci T, Tyrrell P, Twilt M, Soon G, Yau I, Sheikh S, Benseler SM. Distinct phenotypic clusters in childhood inflammatory brain diseases (IBrainD): Implications for diagnostic evaluation. Canadian Rheumatology Association Annual Scientific Meeting. Victoria, BC, Canada. March 28-30, 2012

41. Cellucci T, Tyrrell P, Twilt M, Soon G, Yau I, Sheikh S, Benseler SM. Identification of Disease-Specific Neuroimaging Phenotypes in Childhood Inflammatory Brain Diseases. ACR/ARHP 2012 Annual Scientific Meeting, Washington, D.C., November 10-14, 2012.

42. Twilt M, Bell-Peter A, Laxer R, Pagnoux C, Hebert D, Harvey E, Sheikh S, Benseler SM. Treatment and Outcome of ANCA-Associated Vasculitis in Children: A Pilot Study. ACR/ARHP 2012 Annual Scientific Meeting, Washington, D.C., November 10-14, 2012.

43. Twilt M, Schneider R, Bell-Peter A, Dell S, Benseler SM. Rituximab for Severe Disease Flares in Childhood ANCA Vasculitides. ACR/ARHP 2012 Annual Scientific Meeting, Washington, D.C., November 10-14, 2012.


44. Lee S, Hawkins C, Laughlin S, Sheikh S, Benseler SM. Brain Biopsy Diagnosis in Magnetic Resonance Imaging Negative Childhood Primary Angiitis of the Central Nervous System. ACR/ARHP 2012 Annual Scientific Meeting, Washington, D.C., November 10-14, 2012.

45. Gowdie P, Twilt M, Tyrrell P, Westmacott R, Cellucci T, Sheikh S, Blancette N, Benseler SM. Burden of Childhood Central Nervous System Vasculitis: Identifying High Risk Factors for Poor Cognitive Outcome. ACR/ARHP 2012 Annual Scientific Meeting, Washington, D.C., November 10-14, 2012.

46. Kuemmerle-Deschner JB, Dembi Samba S, Kone-Paut I, Marie I, Tyrrell P, Benseler SM. Recognizing Two Distinct Clinical Phenotypes in Muckle-Wells Syndrome. ACR/ARHP 2012 Annual Scientific Meeting, Washington, D.C., November 10-14, 2012.

47. Twilt M, Bell-Peter A, Laxer R, Pagnoux C, Hebert D, Harvey E, Sheikh S, Benseler SM. Treatment and Outcome of ANCA-Associated Vasculitis in Children: A Pilot Study. European League Against Rheumatism, Berlin, Germany, June 6-9, 2012.

48. Lee S, Hawkins C, Laughlin S, Sheikh S, Benseler SM. Primary CNS Vasculitis in Children: MRI Sensitivity and the Importance of Brain Biopsy. European League Against Rheumatism, Berlin, Germany, June 6-9, 2012.

49. Gowdie P, Twilt M, Sheikh S, Kailasanathan T, Cellucci T, Blanchette N, Westmacott R, Benseler SM. Burden of Childhood CNS Vasculitis: Identifying High Risk Factors for Poor Cognitive Outcome. European League Against Rheumatism, Berlin, Germany, June 6-9, 2012.

50. Benseler SM. Pediatric Central Nervous System Vasculitis. European League Against Rheumatism, Berlin, Germany, June 6-9, 2012.

51. Twilt M, Schneider R, Bell-Peter A, Yang C, Dell S, Benseler SM. Rituximab for Severe Disease Flares in Childhood ANCA Vasculitides. European League Against Rheumatism, Berlin, Germany, June 6-9, 2012.

52. Zhang J, Benseler SM. The SickKids Summer Research (SSuRe) Program Symposium Day, The Hospital for Sick Children, August 2, 2012: Development of a web-based knowledge platform for childhood CNS Vasculitis: first step in a knowledge translation project.

2011

53. Sy J, Benseler SM, Sheikh S, Anderson M, Convery H, Whitney K, Marcuz J, Tse SML: Health-related Quality of Life in Children with Primary CNS Vasculitis and Juvenile Spondyloarthritis. (Poster Presentation) 66th Annual Meeting and Scientific Program, Canadian Rheumatology Association (CRA) 2nd Mexican-Canadian Congress of Rheumatology, Cancun, Mexico, February 11-15, 2011. C E

54. Sy J, Benseler SM, Sheikh S, Whitney K, Marcuz J, Anderson M, Convery H, Tse S: Health-related quality of life in children with primary CNS vasculitis and juvenile spondyloarthritis. (Oral Presentation) 2nd Mexican-Canadian Congress of


Rheumatology, Cancun, Mexico, February 10-15, 2011: 38: (6): pp: 1143.

55. Ho M, Tse SML, Saurenmann T, Sheikh S, Wasylwic M, Benseler SM: Uveitis Screening in Juvenile Idiopathic Arthritis (JIA): A Quality Improvement Project. (Poster Presentation) 66th Annual Meeting and Scientific Program, Canadian Rheumatology Association (CRA) 2nd Mexican-Canadian Congress of Rheumatology, Cancun, Mexico, February 11-15, 2011. SRI E

56. Ho M, Tse S, Saurenmann T, Sheikh S, Wasylciw M, Benseler SM: Uveitis screening in juvenile idiopathic arthritis (JIA): A quality improvement project. (Oral Presentation) 2nd Mexican-Canadian Congress of Rheumatology, Cancun, Mexico, February 11-15, 2011: 38: (6): pp: 1143.

57. Cellucci T, Tyrrell P, Laughlin S, Armstrong D, Halliday W, Sheikh S, Benseler SM: Childhood primary angiitis of the CNS: Identifying disease trajectories and early risk factors for persistently higher disease activity. (Poster Presentation). CHES Clinical Research Scientific Day, Toronto, Ontario, February 15, 2011.

58. Soon G, Yau I, deVeber G, Armstrong D, Tyrrell P, Templeton J, Laughlin S, Benseler SM: Early predictors of neurological long-term deficits in children with primary CNS vasculitis. (Poster Presentation). CHES Clinical Research Scientific Day, Toronto, Ontario, February 15, 2011.

59. Lim L, Benseler SM, Tyrrell P, Charron M, Silverman E: Identification of predictors of bone mineral density trajectories in pediatric systemic lupus erythematosus patients. (Poster Presentation). CHES Clinical Research Scientific Day, Toronto, Ontario, February 15, 2011.

60. Twilt M, Salvarani C, Cellucci T, Hunder G, Benseler SM: Comparison of CNS vasculitis in children and adults; is this the same disease entity? (Poster Presentation). 15th International vasculitis & ANCA Workshop, Chapel Hill, North Carolina, May 15-18, 2011.

61. Twilt M, Salvarani C, Cellucci T, Hunder G, Benseler SM: Comparison of CNS vasculitis in children and adults; is this the same disease entity? (Poster Presentation). Annual European Congress of Rheumatology (EULAR) 2011, London UK, May 25-28, 2011. Abstract #FRI0159.

62. Reaume M, Benseler SM, Sheikh S: Motor deficits in children with CNS vasculitis: A pilot study. (Poster Presentation). ACR/ARHYP 2011 Pediatric Rheumatology Symposium (PRSYM), Miami, FL, June 2-5, 2011. Abstract #45.

63. Twilt M, Salvarani C, Cellucci T, Hunder G, Benseler SM: Comparison of CNS vasculitis in children and adults; is this the same disease entity? (Poster Presentation). 2011 ACR Pediatric Rheumatology Symposium (PRSYM), Miami, FL, June 2-5, 2011.

64. Cellucci T, Benseler SM: Clinical presentations of the inflammatory brain diseases. (Poster Presentation). 2011 ACR Pediatric Rheumatology Symposium (PRSYM), Miami, FL, June 2-5, 2011. Poster Session 2, Abstract #187.


65. Cellucci T, Tyrrell P, Twilt M, Soon G, Yau I, Sheikh S, Benseler SM: Distinguishing features in the presentation of childhood inflammatory brain diseases at a tertiary-care centre. (Poster Presentation). 2011 ACR Pediatric Rheumatology Symposium (PRSYM), Miami, FL, June 2-5, 2011.

66. Rachlis A, Lobo-Mueller E, Stimec J, Babyn P, Anderson M, Reaume M, Whitney-Mahoney K, Marcuz J, Benseler SM, Tse S: Whole body MR imaging in juvenile spondyloarthropathy: Will it provide vital information compared to clinical exam alone? (Poster Presentation). 2011 ACR Pediatric Rheumatology Symposium (PRSYM), Miami, FL, June 2-5, 2011. Abstract #109.

67. Kuemmerle-Deschner J, Samba S, Kone-Paut I, Marie I, Gramlich K, Hansmann S, Xenitidis T, Benseler SM: Delayed diagnosis of Muckle-Wells-Syndrome - analysis of influencing factors. (Poster Presentation). 2011 ACR Pediatric Rheumatology Symposium (PRSYM), Miami, FL, June 2-5, 2011. Abstract #15.

68. Luca N, Daengsuwan T, Dalmau J, Jones K, deVeber G, Kobayashi J, Laxer RM, Benseler SM: Anti-N-Methyl-D-Aspartate receptor encephalitis: A newly recognized inflammatory brain disease in children. (Poster Presentation). 2011 ACR Pediatric Rheumatology Symposium (PRSYM), Miami, FL, June 2-5, 2011.

69. Lim L, Benseler SM, Tyrrell P, Charron M, Silverman E: Identification of predictors of bone mineral density trajectories in pediatric systemic lupus erythematosus patients. (Poster Presentation). 2011 ACR Pediatric Rheumatology Symposium (PRSYM), Miami, FL, June 2-5, 2011.

70. Reaume M, Benseler SM, Sheikh S: Motor deficits in children with CNS vasculitis: A pilot study. (Poster Presentation). University of Toronto, Division of Rheumatology Ogryzlo Day, Toronto, Ontario, June 27, 2011.

71. Twilt M, Salvarani C, Cellucci T, Hunder G, Benseler SM: Comparison of CNS vasculitis in children and adults; is this the same disease entity? University of Toronto, Division of Rheumatology Ogryzlo Day, Toronto, Ontario, June 27, 2011.

72. Cellucci T, Tyrrell P, Twilt M, Soon G, Yau I, Sheikh S, Benseler SM: Distinguishing features in the presentation of childhood inflammatory brain diseases at a tertiary-care centre. University of Toronto, Division of Rheumatology Ogryzlo Day, Toronto, Ontario, June 27, 2011.

73. Hugle B, Haas J, Benseler SM: Treatment preferences in juvenile idiopathic arthritis – A comparative analysis in two health care systems. (Poster Presentation). 18th European Pediatric Rheumatology Congress, Bruges, Belgium, September 14-18, 2011.

74. Twilt M, Salvarani C, Cellucci T, Hunder G, Benseler SM: Comparison of CNS vasculitis in children and adults; is this the same disease entity? 18th Pediatric Rheumatology European Society (PReS) Congress, Bruges, Belgium, September 14-18, 2011.

75. Dolezalova P, Brogan P, Ozen S, Benseler SM, Anton J, Brunner J, Cabral D, Cimaz R,


O’Neil K, Wallace C, Wilkinson N, Luqmani R: Disease activity in paediatric vasculitis: development of a generic assessment tool – PVAS. Pediatric Rheumatology European Society (PRES) Conference, Bruges, Belgium, September 14-18, 2011.

76. Lim L, Benseler SM, Tyrrell P, Charron M, Silverman E: Predictors for longitudinal trajectory of bone mineral density in pediatric systemic lupus erythematosus patients. 9th International Conference on Health Policy Statistics, Cleveland, Ohio, October 5-7, 2011.

77. Kainth R, Duong T, Benseler SM, Oen K, Morris Q, Yeung R, and the ReACCH OUT Consortium: Using data-driven methods to identify and characterize clinically and biologically homogeneous subgroups of juvenile idiopathic arthritis patients. (Poster Presentation) CAPRI/CANIOS/CSRG.CAN Meetings, Quebec City, Quebec, October 26-30, 2011.

78. Twilt M, Salvarani C, Cellucci T, Hunder G, Benseler SM: Comparison of CNS vasculitis in children and adults; is this the same disease entity? (Poster Presentation). ACR/ARHP 2011 Annual Scientific Meeting, Chicago, IL, November 4-9, 2011.

79. Ho M, Saurenmann R, Tyrrell P, Benseler SM: The Impact of ANA Titer Levels on Risk of Uveitis Development in Juvenile Idiopathic Arthritis. (Poster Presentation). ACR/ARHP 2011 Annual Scientific Meeting, Chicago, IL, November 4-9, 2011.

80. Soon G, Yau I, Armstrong D, Tyrrell P, Laughlin S, deVeber G, Benseler SM: Vessel Remodelling in Childhood Primary CNS Vasculitis: Impact of Corticosteroid Therapy. (Poster Presentation). ACR/ARHP 2011 Annual Scientific Meeting, Chicago, IL, November 4-9, 2011.

81. Kuemmerle-Deschner J, Koitschev A, Tyrrell P, Ummenhofer K, Lohse P, Hansmann S, Plontke S, Koitschev C, Benseler SM: Early Recognition of Hearing Loss in Muckle-Wells Syndrome. (Poster Presentation). ACR/ARHP 2011 Annual Scientific Meeting, Chicago, IL, November 4-9, 2011.

82. Rachlis A, Babyn P, Lobo-Mueller E, Benseler SM, Stimec J, Anderson M, Reaume M, Whitney-Mahoney K, Marcuz J, Tse S: Whole Body Magnetic Resonance Imaging in Juvenile Spondyloarthritis: Will It Provide Vital Information Compared to Clinical Exam Alone? ACR/ARHP 2011 Annual Scientific Meeting, Chicago, IL, November 4-9, 2011.

83. Cellucci T, Tyrrell P, Twilt M, Soon G, Yau I, Sheikh S, Benseler SM. Distinct phenotypic clusters in childhood inflammatory brain diseases (IBrainD): Implications for diagnostic evaluation. ACR/ARHP 2011 Annual Scientific Meeting, Chicago, IL, November 4-9, 2011.

2010

84. Blanchette N, Westmacott R, Milkereit M, Benseler SM: Cognitive burden of childhood CNS vasculitis (Oral Presentation) Canadian Rheumatology Association (CRA) Annual Meeting, Quebec City, Quebec, February 3-6, 2010. Journal of Rheumatology 2010: 37 (6):pp.1271.SRI-R


85. Hutchinson C, Hebert D, Harvey E, Dell S, Benseler SM: Open Label Study for Treatment of Pediatric Wegener’s Granulomatosis with Rituximab (Poster Presentation). 65th Annual Meeting of the Canadian Rheumatology Association (CRA), Quebec City, Quebec, February 3-6, 2010. Journal of Rheumatology 2010: 37 (6): pp: 1290. SRI R

86. Cellucci T, Pullenayegum E, Tyrrell PN, Benseler SM: Von Willebrand Factor Antigen – A

novel biomarker of disease activity in childhood CNS vasculitis. (Poster Presentation) Canadian Rheumatology Association (CRA) Annual Meeting, Quebec City, Quebec, February 3-6, 2010. Journal of Rheumatology 2010: 37 (6): pp: 1280. SRI R

87. Luca N, Tse SM, Stephens S, Wrights V, Bradley N, Laxer R, Silverman E, Benseler SM,

Spiegel L, Schneider R, Lefebvre A, Schneiderman J, Stinson, Tyrrell PN: Juvenile fibromyalgia: great areas of impairment and impact of exercise program. . (Poster Presentation) Canadian Rheumatology Association (CRA) Annual Meeting, Quebec City, Quebec, February 3-6, 2010. Journal of Rheumatology 2010: 37 (6): pp: 1298. C R

88. Lim SH, Lefebvre A, Benseler SM, Tyrrell PN, Peralta M, Silverman ED: Psychiatric Illness

of Systemic Lupus Erythematosus in Childhood. (Poster Presentation) Canadian Rheumatology Association (CRA) Annual Meeting, Quebec City, Quebec, February 3-6, 2010. Journal of Rheumatology 2010: 37: (6): pp: 1316. C R

89. McGregor T, Sheikh S, Zarrabian B, Jegathesan T, Benseler SM: The impact of central

nervous system vasculitis on health related quality of life. (Poster Presentation) Canadian Rheumatology Association (CRA) Annual Meeting, Quebec City, Quebec, February 3-6, 2010. Journal of Rheumatology 2010: 37 (6): pp: 1320. SRI R

90. Yau I, Soon GS, Benseler SM, Armstrong D, MacGregor D, DeVeber G: Outcomes of Children with ‘Transient Cerebral Arteriopathy’: Does Immunosuppression Make a Difference? (Oral Presentation) International Child Neurology Association World Congress Meeting, Cairo, Egypt, May, 2010. R

91. Cellucci T, Pullenayegum E, Tyrrell P, Benseler SM: Von Willebrand Factor Antigen – A novel biomarker of disease activity in childhood CNS vasculitis. (Poster Presentation) The Hospital for Sick Children Paediatric Research Day, Toronto, Ontario, May 26, 2010. R

92. Batthish M, Banwell B, Laughlin S, Halliday W, Peschken C, Paras E, Benseler SM: Successful Treatment with Infliximab in Refractory Angiography-Negative Primary Central Nervous System Vasculitis of Childhood. (Poster Presentation). University of Toronto Division of Rheumatology Ogryzlo Research Day, Toronto, Ontario, June 21, 2010. R

93. Cellucci T, Pullenayegum E, Tyrrell P, Benseler SM: Von Willebrand Factor Antigen – A Novel Biomarker of Disease Activity in Childhood CNS Vasculitis. (Oral Presentation) The University of Toronto Division of Rheumatology Ogryzlo Research Day, Toronto, Ontario, June 21, 2010. R

94. Cellucci T, Tyrrell PN, Laughlin S, Armstrong D, Halliday W, Sheikh S, Benseler SM:


Childhood primary angiitis of the CNS: Identifying Disease Trajectories and Early Risk Factors for Persistently Higher Disease Activity. (Oral Presentation) American College of Rheumatology, 2010 Annual Scientific Meeting, November 07-11, 2010 Atlanta, GA. Arthritis & Rheumatism 2010: 62 (S10): pp: 881.

95. Soon GS, Yau I, DeVeber G, Armstrong D, Tyrrell P, Templeton J, Laughlin S, Benseler SM:

Early Predictors of Neurological Long-Term Deficits in Children with Primary CNS Vasculitis. (Poster Presentation) American College of Rheumatology 2010 Annual Scientific Meeting, November 07-11, 2010 Atlanta, GA. Arthritis & Rheumatism 2010: 62 (S10): pp: 2019.

96. Stinson J, Feldman M, Duffy C, Huber A, Tucker L, McGrath P, Tse SM, Hetherington R,

Spiegel L, Campillio S, Benseler SM, Gill N, White ME, Vijenthira A: Jointly Managing Arthritis: Information Needs of Children with Juvenile Idiopathic Arthritis (JIA) and Their Parents. (Oral Presentation) American College of Rheumatology, 2010 Annual Scientific Meeting, November 07-11, 2010 Atlanta, GA. Arthritis & Rheumatism 2010: 62 (S10): 1408. C R

97. Gramlich K, Klein R, Hansmann S, Benseler SM Kuemmerle-Deschner JB: Autoimmune

Phenomena in Muckle-Wells Syndrome (MWS), (Poster Presentation) American College of Rheumatology, 2010 Annual Scientific Meeting, November 07-11, 2010 Atlanta, GA. Arthritis & Rheumatism 2010: 62 (S10): 894.

98. Koitschev A, Gramlich K, Hansmann S, Benseler SM, Plontke S, Koitschev C, Koetter I,

Kuemmerle-Deschner JB: Hearing Loss in Muckle-Wells-Syndrome. (Poster Presentation) (Poster Presentation) American College of Rheumatology, 2010 Annual Scientific Meeting, November 07-11, 2010 Atlanta, GA. Arthritis & Rheumatism 2010: 62 (S10): 899. C R

99. Koitschev A, Gramlich K, Hansmann S, Benseler SM, Plontke S, Koitschev C, Koetter I,

Preiss R, Kuemmerle-Deschner JB: Hearing Loss in Muckle-Wells-Syndrome –Effects of IL-1 Inhibition. (Poster Presentation) American College of Rheumatology, 2010 Annual Scientific Meeting, November 07-11, 2010 Atlanta, GA.

100. Cabral DA, Uribe A, Abrahamson LS, Adams MD, Benseler SM for the ARCHIVe

Investigators: Characterization at diagnosis of children with microscopic polyangiitis (MPA) defined uniquely among patients with ANCA-associated vasculitis (AAV) in a registry for children with vasculitis (ARCHIVe) (Poster Presentation) American College of Rheumatology, 2010 Annual Scientific Meeting, November 07-11, 2010 Atlanta, GA. Arthritis & Rheumatism 2010: 62 (S10): 1673.

101. Uribe A, Cabral DA, Morishita K, Abrahamson LS, Adams MD, Baszis K, Benseler SM for

the ARCHIVe Investigators: Relative performance of two validated classification systems for Wegener’s Granulomatosis among patients with ANCA-associated vasculitis (AAV) in a registry for children with vasculitis (ARCHIVe) (Poster Presentation) American College of Rheumatology, 2010 Annual Scientific Meeting, November 07-11, 2010 Atlanta, GA.


Arthritis & Rheumatism 2010: 62 (S10):1691.

102. Morishita K, Uribe A, Guzman, J, Abrahamson LS, Adams MD, Benseler SM for the ARCHIVe Investigators: Describing the performance of the Birmingham Vasculitis Activity Score (BVAS) at diagnosis for children with ANCA-associated vasculitis (AAV) in a registry for children with vasculitis (ARCHIVe) (Poster Presentation) American College of Rheumatology, 2010 Annual Scientific Meeting, November 07-11, 2010 Atlanta, GA. Arthritis & Rheumatism 2010: 62 (S10): 2017.

2009

103. Hutchinson C, Gupta S, Dror Y, Benseler SM: Aplastic Anemia and Angiography Positive CNS Vasculitis in Children: A Novel Clinical Association. (Poster Presentation) 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009, Journal of Rheumatology 2009: 36 (11): pp: 2573

104. Hutchinson C, Elbers J, Kwan D, Halliday W, Branson H, Laughlin S, Armstrong D, Hawkins

C, Benseler SM: Long-Term Neurological Outcome of Children with Biopsy-Confirmed Small Vessel Primary CNS Vasculitis (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2585.

105. Hugle B, Silverman E, Tyrrell P, Harvey E, Hebert D, Benseler SM: Class V Nephritis in Pediatric SLE: Treatment and Long-Term Outcome (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2597. SRI R

106. Mazarova A, Silverman E, Chang K, Schneider R, Laxer R, Benseler SM: Childhood cutaneous Polyarteritis Nodosa (cPAN): Impact of Streptococcus A infections (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2576. SRI R

107. Yeung R, Benseler SM, Oen K, Tucker L, Duffy C: Cytokine profiles at diagnosis of juvenile idiopathic arthritis (JIA) (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2583. C R

108. Ardelean D, Schneider R, Silverman E, Laxer R, Seed M, Yoo S-J, Benseler SM: Pediatric Takayasu Arteritis: Significance of Central Nervous System Manifestations (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2588 SRI R


109. Schmeling H, Abdelhaleem M, Benseler SM, Tyrrell P, Silverman E: Role of TPMT genotyping and azathioprine metabolites in predicting toxicity of azathioprine in pSLE patients (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2604. C R

110. Tyrrell PN, Manuel L, McCrindle B, Benseler SM, Bradley TJ, Silverman ED: Dietary Energy and Corticosteroids in Pediatric Systemic Lupus Erythematosus (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2612. C R

111. Lim LSH, Benseler SM, Tyrrell PN, Charron M, Silverman ED: Osteopenia and Osteoporosis Already Present in Newly Diagnosed Juvenile Systemic Lupus Erythematosus patients (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2586. C R

112. Tyrrell PN, Bradley TJ, Slorach C, Ng LWK, Nukumizu L, Boros CA, Benseler SM, Silverman

ED: Longitudinal Study of Vascular Markers of Premature Atherosclerosis in Pediatric Systemic Lupus Erythematosus (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2587. C R

113. Lim LSH, Benseler SM, Tyrrell PN, Charron M, Silverman ED: Early Recognition of

Juvenile Systemic Lupus Erythematosus (JSLE) Patients at Risk for Poor Long-Term Bone Outcome (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2575. C R

114. Blanchette N, Westmacott R, Milkereit M, Benseler SM: Neuropsychological Outcome of Childhood Primary CNS Vasculitis (cPACNS) (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2564-2565. SRI R

115. Jurencak R, Tyrrell PN, Benseler SM, Hiraki L, Silverman ED: Pediatric Lupus Nephritis: Impact of Ethnicity on Histological Subtype and Initial Presentation (Poster Presentation). 64th Annual Meeting/17 Winter Workshop of the Canadian Rheumatology Association (CRA), Kananaskis, Canada, February 18-21, 2009. Journal of Rheumatology 2009: 36 (11): pp: 2573. C R

116. Hugle B, Silverman, ED, Tyrrell, PN, Harvey, EA, Hébert, D, Benseler SM: Class V

Nephritis in Pediatric SLE: Treatment and Long-Term Outcome. (Oral Presentation) Kongress der Deutschen Gesellschaft fur Rheumatologie 2009. Zeitung fuer Rheumatology Mai 19 (25): pp: 54. SRI R


117. Hutchinson C, Elbers J, Kwan D, Halliday W, Branson H, Laughlin S, Armstrong D, Hawkins C, Benseler SM: Long-Term Outcome of Children with Biopsy-Confirmed Small Vessel Primary CNS Vasculitis (Poster Presentation) Hospital for Sick Children Annual Research Day, Toronto, Ontario, June 2009. R

118. Blanchette N, Westmacott R, Milkereit MS, Benseler SM: Neuropsychological Outcome

of Childhood Primary CNS Vasculitis (cPACNS). (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 23, 2009. R

119. Lim L, Lefebvre A, Benseler SM, Tyrrell PN, Peralta M,Silverman ED: Psychiatric Illness of Systemic Lupus Erythematosus in Childhood. (Oral Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 23, 2009. R

120. Hutchinson C, Gupta S, Dror Y, Benseler SM: Aplastic Anemia and Angiography Positive CNS Vasculitis in Children: A Novel Clinical Association. (Poster Presentation) Annual Research Competition of the Rheumatic Disease Unit, Toronto 2009, Ogryzlo Day, Toronto, Ontario, June 2009. R

121. Hugle B, Silverman E, Tyrrell P, Harvey E, Hebert D, Benseler SM: Class V Nephritis in

Pediatric SLE: Treatment and Long-term Outcome. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 23, 2009. R

122. Tyrrell P, Manuel L, McCrindle B, Benseler SM, Bradley T, Silverman ED: Dietary Energy

Intake and Corticosteroids in Children with Systemic Lupus Erythematosus. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 23, 2009. R

123. Lim L, Benseler SM, Tyrrell PN, Charron M, Silverman ED: Early Recognition of Juvenile

Systemic Lupus Erythematosus (JSLE) Patients at Riusk for Poor Long-Term Bone Outcome. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 23, 2009. R


C, Benseler SM: Open Label Study for Treatment of Pediatric Wegener's Granulomatosis with Rituximab. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 23, 2009. R

125. Ardelean D, Laxer R, Silverman ED, Benseler SM: Pediatric Takayasu Arteritis:

Significance of Central Nervous System Manifestations. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 23, 2009. R

126. Ardelean D, Schneider R, Silverman ED, Laxer R, Seed M, Yoo SJ, Benseler SM: Pediatric

Takayasu Arteritis: Significance of Central Nervous System Manifestations. (Oral Presentation) American College of Rheumatology, 2009 Annual Scientific Meeting, October 17-21, 2009 Philadelphia. Arthritis and Rheumatism 2009: 60 (10): pp: 5738. SRI

127. Blanchette N, Westmacott R, Milkereit M, Benseler SM: Neuropsychological Outcome of


Childhood Primary CNS Vasculitis (cPACNS), (Poster Presentation) American College of Rheumatology, 2009 Annual Scientific Meeting, October 17-21, 2009 Philadelphia, PE. Arthritis and Rheumatism 2009. SRI R

128. Lim SH, Benseler SM, Tyrrell PN, Lefebvre A, Peralta M, Silverman ED: Psychiatric Illness of Systemic Lupus Erythematosus in Childhood. (Oral Presentation) American College of Rheumatology, 2009 Annual Scientific Meeting, October 17-21, 2009 Philadelphia. Arthritis and Rheumatism 2009: 60 (10): pp: S708. C R

129. Cellucci T, Pullenayegum E, Tyrrell PN, Benseler SM: Von Willebrand Factor Antigen – A Novel Biomarker of Disease Activity in Childhood CNS Vasculitis. (Poster Presentation) American College of Rheumatology, 2009 Annual Scientific Meeting, October 17-21, 2009 Philadelphia. Arthritis and Rheumatism 2009: 60 (10): pp: S573-74. SRI R

130. Luca N, Tse SML, Stephans S, Wright V, Bradley N, Laxer RM, Silverman ED, Benseler SM, Spiegel LR, Schneider R, Lefebvre A, Schneiderman J, Stinson JN, Tyrrell PN, Whitney K, O’Brien C, Cameron B, Feldman B: Juvenile Fibromyalgia: Areas of Greatest Impairment, and Impact of An Aerobic Exercise Program. (Poster Presentation) American College of Rheumatology, 2009 Annual Scientific Meeting, October 17-21, 2009 Philadelphia. Arthritis and Rheumatism 2009: 62 (S10): pp: 1681. C R

131. Hutchinson C, Hebert D, Harvey E, Dell S, Benseler SM: Open Label Study for Treatment of Pediatric Wegener’s Granulomatosis with Rituximab. (Poster Presentation) American College of Rheumatology, 2009 Annual Scientific Meeting, October 17-21, 2009 Philadelphia. Arthritis and Rheumatism 2009. SRI R

132. Hugle B, Silverman, ED, Tyrrell, PN, Harvey, EA, Hébert, D, Benseler SM: Class V Nephritis in Pediatric SLE: Treatment and Long-Term Outcome. (Poster Presentation) American College of Rheumatology, 2009 Annual Scientific Meeting, October 17-21, 2009 Philadelphia. Arthritis and Rheumatism 2009: 60 (10): pp: S570. SRI R

2008

133. Elbers J, Benseler SM: Small Vessel CNS Vasculitis: Clinical and Pathological Correlation. (Oral Presentation) Pritchard Day Neurology Residents Research Competition (Awarded 1st Prize), Annual John Stobo Prichard Day, Toronto, Ontario, Feb 22, 2008. C

134. Hutchinson C, Elbers J, Halliday W, Branson H, Laughlin S, Armstrong D, Hawkins C, Benseler SM: Open Label Study for Treatment of Angiography-Negative, Biopsy-Positive Primary CNS Vasculitis in Children. (Oral Presentation) American College of Rheumatology (American College of Rheumatology Fellows Award), Keystone, Colorado, Mar 1-5, 2008. R

135. Cabral DA, O'Neil KM, Higgins G, Hashkes PJ, Zeft AS, Stevens A, Lovell D, Kingsbury D,

Benseler SM, Uribe AG, Kiamanesh O and participating Childhood Arthritis and Rheumatology Research Alliance (CARRA) Members: Pediatric Wegener's Granulomatosis (WG): Preliminary Data from a US/Canadian Registry of Patients with


Anti-Neutrophil Cytoplasmic Antibody (ANCA) - Associated Vasculitis. (Poster Presentation) American College of Rheumatology, Keystone, Colorado, Mar 1-5, 2008. R

136. Tse SML, Fung L, Manuel C, Benseler SM, Cameron B, Feldman BM, Laxer R, Schneider R,

Spiegel L, Silverman E: Important Adverse Events in Children with Rheumatological Diseases Receiving Anti-Tumor Necrosis Factor Therapy at a Single Centre. (Poster Presentation) American College of Rheumatology, Keystone Pediatric Symposium, Keystone, Colorado, Mar 1-5, 2008. R

137. Stephens S, Feldman BM, Bradley N, Schneiderman-Walker J, Wright V, Singh-Grewal D,

Lefebvre A, Benseler SM, Cameron B, Laxer RM, O'Brien C, Schneider R, Silverman E, Spiegel L, Stinson J, Tyrrell P, Whitney K, Laxer R, Cheah Y, Tse SML: The Feasibility and Effect of Conducting a Pilot RCT of an Exercise Intervention in Childhood Fibromyalgia. (Poster Presentation) (Program Book) American College of Rheumatology, Keystone Pediatric Rheumatology Symposium, Keystone, Colorado, Mar 1-5, 2008. R

138. Hutchinson C, Dror Y, Branson H, Laughlin S, Armstrong D, Benseler SM: Aplastic Anemia

and Large-Vessel CNS Vasculitis: Report of a Novel Clinical Association (Poster Presentation). Canadian Rheumatology Association (CRA), March 5-8, 2008, Mont Tremblant, Quebec. SRI R

139. Blanchette N, Westmacott R, Milkereit MS, Benseler SM: Neuropsychological Outcome

of Childhood Primary CNS Vasculitis. (Poster Presentation) Canadian Rheumatology Association (CRA), March 5-8, 2008, Mont Tremblant, Quebec. SRI R

140. Ardelean D, Schneider R, Silverman E, Yoo SJ, Seed M, Benseler SM: Pediatric Central

Nervous System Manifestations: A Leading Feature in Takayasu Arthritis. (Poster Presentation) Canadian Rheumatology Association (CRA), March 5-8, 2008, Mont Tremblant, Quebec. SRI R

141. Hutchinson C, Elbers J, Halliday W, Branson H, Laughlin S, Armstrong D, Hawkins C,

Benseler SM: Long-Term Neurological Outcome of Children with Biopsy-Confirmed Small Vessel Primary CNS Vasculitis. (Poster Presentation) Canadian Rheumatology Association (CRA), March 5-8, 2008, Mont Tremblant, Quebec. SRI R


Benseler SM: Open Label Study for Treatment of Angiography-Negative, Biopsy-Positive Primary CNS Vasculitis in Children. (Oral Presentation) Canadian Rheumatology Association (CRA) Meeting, March 5-8, 2008, Mont Tremblant, Quebec. SRI R

143. Freedman S, Deiratany S, Goldman RD, Benseler SM: Development of a Caregiver Gastroenteritis Knowledge Questionnaire. (Poster Presentation) ICEM 2008, 12th International Conference of Emergency Medicine, San Francisco, CA, Apr 3, 2008 - Apr 6, 2008. R



Benseler SM: Open Label Study for Treatment of Angiography-Negative, Biopsy-Positive Primary CNS Vasculitis in Children (Poster Presentation) (Fellow Award) Hospital for Sick Children Annual Research Day, May 2008, Toronto, Ontario. R

145. Elbers J, Benseler SM: Brain Biopsies in Small-Vessel Primary CNS Vasculitis of Childhood.

(Poster Presentation)(Awarded 1st Prize) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 24, 2008. R


C, Benseler SM: Open Label Study for Treatment of Angiography-Negative, Biopsy-Positive Primary CNS Vasculitis in Children. (Oral Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 24, 2008. R

147. Kumar S, Benseler SM: Clinical Profile and Predictive Factors for Symptomatic Avascular

Necrosis in Pediatric Systemic Lupus Erythematosus (pSLE). (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 24, 2008.R

148. Stephens S, Feldman BM, Bradley N, Schneiderman-Walker J, Wright V, Singh-Grewal D,

Lefebvre A, Benseler SM, Cameron B, Laxer RM, O'Brien C, Schneider R, Silverman E, Spiegel L, Stinson J, Tyrrell P, Whitney K, Laxer R, Cheah Y, Tse SML: Effectiveness of an Aerobic Exercise Program in Children with Fibromyalgia, Results of the Fibromyalgia Impact Trial (FIT). (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 24, 2008. R

149. Fung L, Benseler SM, Feldman B: Important Adverse Events in Children with

Rheumatological Diseases Receiving Anti-Tumor Necrosis Factor Therapy at a Single Centre. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 24, 2008. R

150. Tyrrell P, Benseler SM, Silverman E: Longitudinal Study of Vascular Markers of Premature

Atherosclerosis in Pediatric Systemic Lupus Erythematosus. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 24, 2008. R

151. Soon G, Yau I, Branson H, deVeber G, Laughlin S, Benseler SM: Non-Progressive Primary

CNS Vasculitis in Children: Immunosuppression Reduces Recurrent Ischemic Event Risk. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 24, 2008. R

152. Lim SH, Benseler SM, Silverman E: Osteopenia and Osteoporosis Already Present in

Newly Diagnosed Juvenile Systemic Lupus Erythematosus (JSLE) Patients. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 24, 2008. R

153. Jurencak R, Tyrrell PN, Benseler SM, Hiraki L, Silverman ED: Pediatric Lupus Nephritis:


Impact of Ethnicity on Histological Subtype and Initial Presentation. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 24, 2008. R

154. Hiraki L, Tyrrell PN, Feldman BM, Benseler SM, Ng L, Abdelhaleem M, Silverman E:

Predicting Macrophage Activation Syndrome (MAS) in Pediatric Systemic Lupus Erythematosus (pSLE) Patients at Diagnosis. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 24, 2008. R

155. Kumar S, Tyrrell PN, Benseler SM, Harvey EA, Hebert D, Silverman E: Risk Factors for

Symptomatic Avascular Necrosis of Bone in Pediatric Systemic Lupus Erythematosus. (Poster Presentation) University of Toronto, Ogryzlo Day Research Competition, Toronto, Ontario, Jun 24, 2008. R

156. Bradley TJ, Tyrrell PN, Slorach C, Ng LWK, Nukumizu L, Boros CA, Benseler SM, Silverman ED: Longitudinal Study of Vascular Markers of Premature Atherosclerosis in Pediatric Systemic Lupus Erythematosus. (Poster Presentation) Artery 8 Meeting, September 2008, Ghent, Belgium. Artery Research 2008: 2 (3): pp: 106. C R

157. Tyrrell PN, Bradley TJ, Slorach C, Ng LWK, Nukumizu L, Boros CA, Benseler SM, Silverman ED: Longitudinal Study of Vascular Markers of Premature Atherosclerosis in Pediatric Systemic Lupus Erythematosus. (Poster Presentation) American College of Rheumatology. 72nd Annual Scientific Meeting. October 24-29, 2008, San Francisco, CA. Arthritis and Rheumatism 2008: 58 (9): pp: S253. C R

158. Convery H, Marwick R, Hetherington R, Korolewa M, Krass P, Hutchinson C, Benseler SM:

A Novel Educational Tool for Childhood CNS Vasculitis. (Oral Presentation) American College of Rheumatology, 2008 Annual Scientific Meeting, October 24-29, 2008, San Francisco, CA. Arthritis and Rheumatism 2008: 58 (9): pp: S626. SRI E

159. Hiraki LT, Tyrrell PN, Feldman BM, Benseler SM, Ng L, Abdelhaleem M, Silverman E: Predicting Macrophage Activation Syndrome (MAS) in Pediatric Systemic Lupus Erythematosus (pSLE) Patients at Diagnosis. (Poster Presentation) American College of Rheumatology, 2008 Annual Scientific Meeting, San Francisco, CA, Oct 24, 2008 - Oct 29, 2008: 58 (12): pp: 3988. C R

160. Elbers J, Hutchinson C, Halliday W, Hawkins C, Benseler SM: Brain Biopsies in Children with Small-Vessel Primary CNS Vasculitis. (Poster Presentation) American College of Rheumatology, 2008 Annual Scientific Meeting, October 24-29, 2008, San Francisco, CA. Arthritis and Rheumatism 2008: 58 (9): pp: S712. SRI R

161. Tse S, Fung L, Uta S, Manuel C, Benseler SM, Cameron B, Feldman B, Laxer R, Schneider

R, Spiegel L, Silverman E: Important Adverse Events in Children with Rheumatological Diseases Receiving Anti-Tumor Necrosis Factor Therapy at a Single Centre. (Poster Presentation) American College of Rheumatology, 2008 Annual Scientific Meeting, October 24-29, 2008, San Francisco, CA. Arthritis and Rheumatism 2008: 58 (9): pp: S720. C C


162. Hutchinson C, Elbers J, Dwan D, Halliday W, Branson H, Laughlin S, Armstrong D, Hawkins

C, Benseler SM: Long-Term Outcome of Children with Biopsy-Confirmed Small Vessel Primary CNS Vasculitis. (Poster Presentation) American College of Rheumatology, 2008 Annual Scientific Meeting, October 24-29, 2008, San Francisco, CA. Arthritis and Rheumatism 2008: 58 (9): pp: S942. SRI R

163. Soon G, Yau I, Branson H, deVeber G, Laughlin S, Benseler SM: Non-Progressive Primary

CNS Vasculitis in Children: Immunosuppression Reduces Recurrent Ischemic Event Risk. (Oral Presentation) American College of Rheumatology, 2008 Annual Scientific Meeting, October 24-29, 2008, San Francisco, CA. Arthritis and Rheumatism 2008: 58 (9): pp: S942. SRI R

164. Lim SH, Tyrrell P, Benseler SM, Silverman ED: Poor Bone Mineral Density Already Present

in Newly Diagnosed Juvenile Systemic Lupus Erythematosus Patients. (Poster Presentation) American College of Rheumatology. 72nd Annual Scientific Meeting, October 24-29, 2008, San Francisco, CA. Arthritis and Rheumatism 2008: 58 (9): pp: S258. C R

165. Kumar S, Tyrrell PN, Benseler SM, Harvey EA, Hebert D, Silverman ED: Risk Factors for

Symptomatic Avascular Necrosis in Pediatric Systemic Lupus Erythematosus (pSLE). (Poster Presentation) American College of Rheumatology, 2008 Annual Scientific Meeting, October 24-29, 2008, San Francisco, CA. Arthritis and Rheumatism 2008: 58 (9): pp: S254-S255. C R

166. Bradley TJ, Tyrrell PN, Slorach C, Ng, LWK, Nukumizu L, Boros CA, Benseler SM, Silverman

ED: Longitudinal Study of Vascular Markers of Premature Atherosclerosis in Pediatric Systemic Lupus Erythematosus. (Poster Presentation) Canadian Cardiovascular Conference, October 2008, Toronto, Ontario, Canada. Canadian Journal of Cardiology 2008: 24 (SE): pp: 160E. C R

2007

167. Gupta A, Weitzman S, Valani R, Benseler SM, Abdelhaleem M: The role of bone marrow (BM) morphology in the diagnosis of hemophagocytic lymphohistiocytosis (HLH). 22nd Annual Meeting Histiocyte Society, October 15-17, 2006, Buenos Aires, Argentina. Pediatric Blood Cancer 2007: 48 (7): pp: 748-762. C R

168. Cantez SM, Schneider R, Silverman E, Tyrrell P, Laxer R, Benseler SM: Cutaneous

Polyarteritis Nodosa in Children - Inception Cohort Results from SickKids Toronto. (Poster Presentation) European Congress of Rheumatology (EULAR), Barcelona, Spain. Annals of Rheumatic Diseases 2007: 66 (S2): pp: 548. SRI R

169. Valani R, Tyrrell PN, Weigzman S, Gupta A, Lopez A, Abdelhaleem M, Cox P, Friedman J,

Benseler SM: Early Predictors of Rapid Disease Progression in Children with Hemophagocytic Lymphohistiocytosis. (Poster Presentation) Pediatric Academic Society Annual Meeting, May 5, 2007, Toronto, Ontario. Pediatric Blood and Cancer 2007: 48


(6): pp: 603. SRI R

170. Benseler SM, Tyrrell PN, McCrindle BW, Silverman ED, Yeung RSM: Kawasaki Disease: High Risk Profile of Children with Coronary Artery Aneurysms. (Poster Presentation) Pediatric Academic Society Annual Meeting, Toronto, Ontario, Canada, May 5, 2007. R

171. Gupta A, Tyrrell P, Valani R, Benseler SM, Adbelhaleem M, Weitzman S: Treatment

Decisions and Outcome in Hemophagocytic Lymphohistiocytosis. (Poster Presentation) Pediatric Academic Society, Annual Meeting May 5, 2007, Toronto, Ontario. Pediatric Blood and Cancer 2007: 48 (6): pp: 635. C R

172. Kumar S, Benseler SM, Kirby-Allen M, Silverman E: B Cell Depletion in autoimmune

Thrombocytopenia and Autoimmune Hemolytic Anemia in Pediatric Systemic Lupus Erythematosus. (Poster Presentation) American College of Rheumatology (ACR), Annual Scientific Meeting, Boston, MA, Nov 6, 2007 - Nov 11, 2007. C R

173. Schmeling H, Abdelhaleem M, Benseler SM, Tyrrell P, Silverman E: Role of TPMT

Genotyping and Azathioprine Metabolites in Predicting Toxicity of Azathioprine in pSLE Patients. (Poster Presentation) American College of Rheumatology (ACR), Annual Scientific Meeting, Boston, MA, Nov 6, 2007 - Nov 11, 2007. C R

2006

174. Avcin T, Benseler SM, Tyrrell PN, Silverman ED: Longitudinal Follow-up of Antiphospholipid Antibodies in 137 Children with Pediatric SLE. (Poster Presentation) Canadian Rheumatology Association. Annual Meeting, Acapulco, Mexico, Feb 18, 2006. C R

175. Benseler SM, Tyrrell PN, McCrindle BW, Silverman ED, Yeung RSM: Kawasaki Disease: High-Risk Profile of Children with Coronary Artery Aneurysms. (Poster Presentation) European Congress of Rheumatology (EULAR), Amsterdam, Netherlands. Annals of Rheumatic Diseases 2006: 65 (S2): pp: 245. PA R

176. Hiraki LT, Benseler SM, Tyrrell PN, Hebert D, Harvey E, Silverman ED: Predictors of

Disease Activity and Disease Damage in Pediatric Systemic Lupus Erythematosus. (Poster Presentation) European Congress of Rheumatology (EULAR), Amsterdam, Netherlands. Annals of Rheumatic Diseases 2006: 65 (S2): pp: 116. C R

177. Compeyrot S, Tyrrell P, Benseler SM, Atenafu E, Doria A, Gilday D, Stephens D, Silverman

ED: Bone Mineral Density (BMD) in Pediatric Systemic Lupus Erythematosus (SLE): Prevalence and Etiology of Low BMD. (Poster Presentation) European Congress of Rheumatology (EULAR), Amsterdam, Netherlands. Annals of Rheumatic Diseases 2006: 65 (S2): pp: 247. C R

178. Benseler SM, Tyrrell PN, McCrindle BW, Silverman ED, Yeung RSM: Kawasaki Disease:

Early Recognition of Children with Coronary Artery Aneurysms. (Poster Presentation) Pediatric Rheumatology European Society (PRES) Annual Conference, Amersterdam,


Netherlands, Jun 21, 2006. R

179. Kirton A, Hawkins C, Benseler SM, Armstrong D, deVeber G: Pediatric Stroke and Renal Artery Stenosis. (Poster Presentation) Child Neurology Society, Annual Meeting, Pittsburg, Kansas, Oct 18, 2006 - Oct 21, 2006. R

180. Hiraki L, Benseler SM, Tyrrell PN, Silverman ED: Pediatric Systemic Lupus Erythematosus

(pSLE) Disease Presentation and Disease Activity May be Influenced by Ethnic Origin. (Poster Presentation) American College of Rheumatology (ACR), Annual Scientific Meeting, Washington, DC, Nov 10, 2006 - Nov 15, 2006. R

2005

181. Benseler SM, deVerber G, Aviv RI, Schneider R, Armstrong D, Tyrrell PN, Silverman ED:

Primary CNS Vasculitis. (Oral Presentation) European Congress of Rheumatology (EULAR), Vienna, Austria. Annals of Rheumatic Diseases 2005: 64 (S): pp: 159. PA R

182. Benseler SM, Bargman J, Feldman BM, Tyrrell PN, McIntyre S, Tsang LM, Harvey E,

Hebert D, Silverman E: Renal Failure in Pediatric SLE: Treatment and Outcome. (Poster Presentation). European Congress of Rheumatology (EULAR), Vienna, Austria. Annals of Rheumatic Diseases 2005: 64 (S): pp: 1666. PA R

183. Benseler SM, Bargman J, McIntyre S, Tsang L, Tyrrell PN, Harvey E, Hebert D, Silverman

ED: Renal Failure in Pediatric SLE (pSLE): Treatment and Outcome. (Poster Presentation) Annual Research Competition of the Rheumatic Disease Unit Toronto, Toronto, Ontario, Canada, Jun 2005. R

184. Benseler SM, Parker S, Whitney Mahoney K, Laxer RM: Infliximab Therapie der refraktaeren Polyarteritis Nodosa (PAN). (Poster Presentation) German Pediatric Society, Bremen, Germany, Sep 29, 2005 - Oct 2, 2005. R

185. Avcin T, Benseler SM, Tyrrell PN, Silverman ED: Longitudinal Follow-up Study of Antiphospholipid Antibodies and Associated Neuropsychiatric Manifestations in 237 Children with Systemic Lupus Erythematosus. (Poster Presentation) The American College of Rheumatology. 69th Annual Scientific Meeting, November 12-17, 2005, San Diego, CA. Arthritis and Rheumatism 2005: 52 (12): pp: 4075 C R

186. Benseler SM, Tyrrell PN, Hebert D, Harvey EA, Silverman ED: Class V Nephritis in Pediatric Systemic Lupus Erythematosus (pSLE): Treatment and Outcome. (Poster Presentation) The American College of Rheumatology. 69th Annual Scientific Meeting, November 12-17, 2005, San Diego, CA. Arthritis and Rheumatism 2005: 52 (9): pp: S530.

187. Benseler SM, Tyrrell PN, Lefebvre A, Hebert D, Harvey E, Silverman ED: Neuro-Psychiatric

Systemic Lupus Erythematosus (NP-SLE) in Children: Risk Factors for Long-term Damage. (Poster Presentation) The American College of Rheumatology. 69th Annual Scientific Meeting, November 12-17, 2005, San Diego, CA. Arthritis and Rheumatism 2005: 52 (9): pp: S723-S724.


188. Hiraki LT, Benseler SM, Tyrrell PN, Hebert D, Harvey E, Silverman ED: Pediatric Systemic

Lupus Erythematosus: Clinical and Laboratory Manifestations and Disease Damage. The American College of Rheumatology. (Poster Presentation) 69th Annual Scientific Meeting, November 12-17, 2005, San Diego, CA. Arthritis and Rheumatism 2005: 52 (S9): pp: S529. C R

189. Benseler SM, Tyrrell PN, Harvey EA, Hebert D, Silverman ED: Pharmacokinetics of Mycophenolate Mofetil (MMF) Treatment in Pediatric Systemic Lupus Erythematosus (SLE). The American College of Rheumatology. (Poster Presentation) 69th Annual Scientific Meeting, November 12-17, 2005, San Diego, CA. Arthritis and Rheumatism 2005: 52 (9): pp: S530. PA R

190. Benseler SM, Bargman JM, Feldman BM, Tyrrell PN, Harvey E, Hebert D, McIntyre S, Tsang LM, Silverman ED: Lupus Nephritis Presenting as Renal Failure in Pediatric Systemic Lupus Erythematosus: Analysis of Treatment Protocols and Outcome. (Poster Presentation) American Society of Nephrology, Renal Week 2005, Philadelphia, Pennsylvania, Nov 8, 2005 - Nov 13, 2005. R

191. Tyrrell PN, Benseler SM, Beyene J, Sarkissian T, Silverman ED: Predictors of Individual

Lipid Abnormalities in Children with Pediatric SLE. (Poster Presentation) The American College of Rheumatology. 69th Annual Scientific Meeting, November 16-21, 2005, San Diego, CA. Arthritis and Rheumatism 2005: 52 (S9): pp: S532. C R

2004

192. Benseler SM, Bargman J, McIntyre S, Tsang L, Tyrrell PN, Harvey E, Hebert D, Silverman ED: Renal Failure in Pediatric SLE (pSLE): Treatment and Outcome. (Poster Presentation) Annual Research Competition of the Rheumatic Disease Unit Toronto 2004 Ogryzlo Day, Toronto, Ontario, Canada, Feb 26, 2004. R

193. Benseler SM, deVeber G, Tyrrell PN, Feldman BM, Aviv RI, Armstrong D, Schneider R,

Tsang LM, Silverman ED: Primary CNS Vasculitis in Children: Predictors of Disease Progression. (Oral Presentation) EULAR, Annual Meeting, Berlin, Germany, Jun 9, 2004. Annals of Rheumatic Diseases 2004: 63 (S2): pp: 1224. PA R

194. Benseler SM, Tyrrell PN, Lee A, Leung V, Zastepa A, Silverman ED: Pediatric

Neuropsychiatric SLE: Diagnosis, Treatment and Outcome. (Oral Presentation) Paediatric Rheumatology European Society (PRES). XIth European Paediatric Rheumatology Congress. Annual Scientific Meeting, September 9-12, 2004, Kosice, Slovakia. Clinical and Experimental Rheumatology 2004: 22 (4): pp: 511. PA R

195. Benseler SM, Bargman JM, McIntyre S, Tsang LM, Tyrrell PN, Harvey E, Hebert D,

Silverman ED: Renal Failure in Pediatric SLE (pSLE): Treatment and Outcome. (Oral Presentation) The American College of Rheumatology. 68th Annual Scientific Meeting, October 16-21, 2004, San Antonio, TX. Arthritis and Rheumatism 2004: 50 (S9): pp: S685. PA R

2003


196. Benseler SM, Reutter G, Fritzler MJ, Silverman ED: Drug-induced Lupus Erythematosus

(DIL) in Children. (Poster Presentation) The Canadian Rheumatology Association. Annual Meeting February 26-March 1, 2003, Mont Tremblant, Quebec. Journal of Rheumatology 2003: 30 (8): pp: 1876. PA R

197. Benseler SM, Tsang LM, Tyrrell PN, Armstrong D, Laxer RM, Schneider R, Feldman BM,

deVeber G, Silverman ED: Primary CNS Vasculitis in Children. The Canadian Rheumatology Association. (Oral Presentation) Annual Meeting February 26-March 1, 2003, Mont Tremblant, Quebec. Journal of Rheumatology 2003: 30 (8): pp: 1875. PA R

198. Compeyrot S, Benseler SM, Tyrrell P, Sarkissian T, Silverman E: Incidence of Osteoporosis

in Pediatric System Lupus Erythematosus (SLE). (Poster Presentation) The American College of Rheumatology. Pediatric Rheumatology 2003: Park City and Beyond. March 22-26, 2003, Snowmass, CO. Pediatric Rheumatology Online Journal 2003: 1 (4): pp: 93. C R

199. Benseler SM, McCrindle BW, Silverman ED, Tyrrell PN, Wong J, Yeung RSM: Infections

and Kawasaki Disease: Implications for Coronary Artery Outcome. American College of Rheumatology. Pediatric Rheumatology 2003: Park City and Beyond. March 22-26, 2003, Snowmass, CO. Pediatric Rheumatology Online Journal 2003: 1:4: pp 130. R

200. Compeyrot S, Tyrrell P, Benseler SM, Atenafu E, Gilday D, Stephens D, Silverman ED: Prevalence and etiology of osteoporosis in pediatric systemic lupus erythematosus (SLE). (Poster Presentation) Park City and beyond, Pediatric Rheumatology Conference, Snowmass, Colorado, USA, Mar 23, 2003 - Mar 27, 2003. R

201. Benseler SM, Duong TT, Silverman ED, Yeung RSM: Superantigen Mediated Vasculitis:

The Role of Endothelial Cell Activation in Vessel Remodelling. (Poster Presentation) American College of Rheumatology. Pediatric Rheumatology 2003: Park City and Beyond. March 22-26, 2003, Snowmass, CO. Pediatric Rheumatology Online Journal 2003: 1 (4): pp: 134. PA R

202. Aviv RI, Benseler SM, Tsang LM, Tyrrell PN, Armstrong D: Radiology of Idiopathic

Vasculopathy of the CNS. (Poster Presentation) American Society of Neuroradiology, 41st Annual Meeting, Washington, DC, Apr 29, 2003 - May 5, 2003. R

203. Compeyrot S, Benseler SM, Tyrrell P, Sarkissian T, Atenafu E, Stephens D, Silverman ED:

Incidence of Osteoporosis in Pediatric Systemic Lupus Erythematosus (SLE). (Poster Presentation) University of Toronto Department of Paediatrics, Residents & Fellows Research Competition, Toronto, Ontario, Canada, May 21, 2003. R

204. Benseler SM, McCrindle B, Silverman ED, Tyrrell PN, Wong J, Yeung RSM: Infections and

Kawasaki Disease: Implications for Coronary Artery Outcome. (Poster Presentation) University of Toronto Department of Paediatrics, Residents & Fellows Research Competition, Toronto, Ontario, Canada, May 21, 2003. R


205. Benseler SM, deVeber G, Feldman BM, Tsang LM, Tyrrell PN, Schneider R, Aviv R,

Armstrong D, Laxer RM, Silverman ED: Primary CNS Vasculitis in Children. (Poster Presentation) University of Toronto Department of Paediatrics, Residents & Fellows Research Competition, Toronto, Ontario, Canada, May 21, 2003. R

206. Benseler SM, McCrindle B, Silverman ED, Tyrrell PN, Wong J, Yeung RSM: Infections and

Kawasaki disease: Implications for coronary artery outcome. (Poster Presentation) Annual Research Competition of the Rheumatic Disease Unit Toronto 2003 Ogryzlo Day, Toronto, Ontario, Canada, Jun 10, 2003. R

207. Compeyrot S, Tyrrell P, Benseler SM, Atenafu E, Gilday D, Stephens D, Silverman ED:

Prevalence and Etiology of Osteoporosis in Pediatric Systemic Lupus Erythematosus. (Poster Presentation) The University of Toronto Rheumatic Disease Unit. Annual Ogryzlo Research Day. Poster Competition Abstracts, Toronto, Ontario, Canada, Jun 10, 2003. R

208. Johnson NA, Banwell B, Schneider R, Benseler SM, Boros C, Silverman ED: Stiff as a

Board: Diagnosis and Intravenous Immunoglobuline Therapy in a Teenager with Stiff-Person-Syndrome. (Poster Presentation) Annual research competition of the Rheumatic Disease Unit Toronto 2003 Ogryzlo day, Toronto, Ontario, Canada, Jun 10, 2003. R

209. Benseler SM, deVeber G, Schneider R, Hawkins C, Laxer RM, Tsang LM, Tyrrell PN, Aviv

RI, Armstrong D, Silverman ED: Biopsy Confirmed Primary CNS Vasculitis in Children. (Poster Presentation) Pediatric Rheumatology European Society (PRES) Annual Conference 2003, Stresa, Italy, Oct 3, 2003. R

210. Benseler SM, deVeber G, Feldman BM, Schneider R, Hawkins C, Laxer RM, Tsang LM, Tyrrell PN, Aviv RI, Armstrong D, Silverman ED: Primary CNS Vasculitis: Predictors of Neurologic Outcome. (Oral Presentation) Pediatric Rheumatology European Society (PRES) Annual Conference 2003, Stresa, Italy, Oct 3, 2003. R

211. Benseler SM, Parker S, Whitney Mahoney K, Laxer RM: Infliximab Therapy of Refractory Polyarteritis Nodosa (PAN). (Poster Presentation) Pediatric Rheumatology European Society (PRES) Annual Conference 2003, Stresa, Italy, Oct 3, 2003 - Oct 5, 2003. R

212. Benseler SM, Silverman ED, Tsang LM, Tyrrell PN, Aviv RI, Armstrong D, Schneider R,

Feldman BM, Laxer RM, deVeber G: Transient Cerebral Arteriopathy and Primary Angiitis of the CNS in Children: A Spectrum of Cerebral Arterial Disease? (Poster Presentation) Pediatric Neurology Conference, Miami, Florida, USA, Oct 10, 2003. R

213. Parker S, Whitney Mahoney K, Benseler SM, Laxer RM: The Role of Infliximab in a

Pediatric Patient with Polyarteritis Nodosa (PAN). (Poster Presentation) The American College of Rheumatology. 67th Annual Scientific Meeting, October 23-28, 2003, Orlando, FL. Arthritis and Rheumatism 2003: 48 (S9): pp: S421. C R

214. Benseler SM, McCrindle BW, Silverman ED, Tyrrell PN, Wong J, Yeung RSM: Infections

and Kawasaki Disease (KD): Implications for Coronary Artery Outcome. (Poster


Presentation) The American College of Rheumatology. 67th Annual Scientific Meeting, October 23-28, 2003, Orlando, FL. Arthritis and Rheumatism 2003: 48: (S9): pp: S516. PA R

215. Compeyrot S, Tyrrell P, Benseler SM, Atenafu E, Gilday D, Stephens D, Silverman ED:

Prevalence and Etiology of Osteoporosis in Pediatric Systemic Lupus Erythematosus (SLE). (Poster Presentation) The American College of Rheumatology. 67th Annual Scientific Meeting, October 23-28, 2003, Orlando, FL. Arthritis and Rheumatism 2003: 48 (S9): pp: S508. C R

216. Benseler SM, deVeber G, Aviv RI, Armstrong D, Schneider R, Tsang LM, Tyrrell PN,

Silverman ED: Primary CNS Vasculitis in Children: Predictors of Disease Progression. (Oral Presentation) The American College of Rheumatology. 67th Annual Scientific Meeting, October 23-28, 2003, Orlando, FL. Arthritis and Rheumatism 2003: 48 (S9): pp: S648.

2002

217. Benseler SM, Laxer RM, Schneider R, Feldman BM, Silverman ED: Cutaneous Polyarteriitis Nodosa in Children. (Poster Presentation) Canadian Rheumatology Association Annual Meeting, February 20-23, 2002, Lake Louise, Alberta. Journal of Rheumatology 2002: 29 (7): pp: 1565. PA R

218. Benseler SM, Laxer RM, Silverman ED, Feldman B, Yeung RSM: Cutaneous Polyarteritis

Nodosa (PAN) in children. (Poster Presentation) ANCA Workshop, Cleveland, Ohio, USA, Apr 25, 2002 - Apr 27, 2002. R

219. Benseler SM, Levy Miller D, Tse S, McCrindle B, Silverman ED, Yeung RSM: Myocardial

Dysfunction in Children with Kawasaki Disease. (Poster Presentation) Annual research competition, Ogryzlo Day, Toronto, Ontario, Canada, Jul 18, 2002. R

220. Benseler SM, Tsang LM, Tyrrell PN, Laxer RM, Schneider R, Feldman BM, deVeber G,

Silverman ED: Primary CNS Vasculitis in Children. (Oral Presentation) The American College of Rheumatology. 66th Annual Scientific Meeting, October 24-29, 2002, New Orleans, LA. Arthritis and Rheumatism 2002: 46 (S9): pp: S311. PA R

2001

221. Benseler SM, Laxer RM, Schneider R, Feldman B, Silverman ED: Cutaneous Polyarteritis (PAN) in children. (Poster Presentation) Annual meeting of the Canadian Rheumatology, Lake Louise, Alberta, Canada, Feb 20, 2001 - Feb 24, 2001. PA R

222. Benseler SM, Fritzler M, Silverman ED: Drug-induced Lupus in children. (Poster

Presentation) Annual Meeting of the American College of Rheumatology, San Francisco, California, USA, Nov 11, 2001 - Nov 15, 2001. R

223. Benseler SM, Tsang LM, Tyrrell PN, Armstrong D, Laxer RM, Schneider R, DeveberG,


Silverman ED: Primary CNS vasculitis in children. (Poster Presentation) Annual meeting of the American College of Rheumatology, New Orleans, Louisiana, USA, Oct 24, 2001 - Oct 28, 2001. PA R

224. Benseler SM, Levy Miller D, Tse S, McCrindle B, Silverman ED, Yeung RSM: Myocardial

dysfunction in children with Kawasaki disease. (Poster Presentation) VII International Conference on Kawasaki Disease, Hakone, Japan, Dec 2, 2001 - Dec 6, 2001. R

225. Benseler SM, Levy D, Tse SML, McCrindle BW, Silverman ED, Yeung RSM: Severe Myocarditis in Children with Kawasaki Disease. (Oral Presentation) Seventh International Kawasaki Disease Symposium December 4-7, 2001, Hakone, Japan. Pediatric Research 2001: 53 (1): pp: 177. PA R

226. Benseler SM, Fritzler MJ, Silverman ED: Drug-induced Lupus Erythematosus (DIL) in Children. American College of Rheumatology. (Poster Presentation) Annual Meeting 2001, San Diego, CA. Arthritis and Rheumatism 2001: 44 (S9): pp: S262. PA R

1994

227. Benseler SM, Gruschwitz M, Sgonc R, Dietrich H, Hala K, Cooper MD, Gershwin E, Forster J, Brandis M, Wick G: Immunopathogenesis of Progressive Systemic Sclerosis (PSS) in UCD 200 Chicken Animal Model: Gamma/Delta T-Cell Receptor Positive Cells in the Initial Paravascular Infiltration. (Oral Presentation) Jahrestagung der Deutschen Gesellschaft f'fcr Immunologie, Konstanz , Germany, Sep 12, 1994. R

228. Benseler SM, Gruschwitz M, Sgonc R, Dietrich H, Hala K, Cooper MD, Gershwin E, Forster

J, Brandis M, Wick G: Immune pathogenesis of progressive systemic sclerosis (PSS) in UCD 200 chicken animal model: gamma/delta T-cell receptor positive cells in the initial paravascular infiltration. (Poster Presentation) Jahrestagung der Deutschen Gesellschaft f'fcr Immunologie, Konstanz, Germany, Sep 12, 1994 - Sep 16, 1994. R

229. Benseler SM, Terreri T, Reiff A, Speckmaier-Prokop M, Schuchmann L, Zimmerhackl LB,

Steinhausen F, Kuhnert-Kienzler A, Forster J, Brandis M: Nebenwirkungen der Naproxentherapie bei juveniler chronischer Arthritis (JCA). (Poster Presentation) Jahrestagung der Arbeitsgemeinschaft Pediatrische Rheumatologie, Garmisch-Partenkirchen, Germany, Nov 27, 1994 - Nov 29, 1994. R

1993

230. Benseler SM, Gruschwitz M, Sgonc R, Dietrich H, Hala K, Cooper MD, Gershwin E, Brandis

M, Wick G: Immunpathogenese der progressiven systemischen Sklerodermie im Tiermodell UCD 200 Huhn: Gamma/Delta T-Zellrezeptor (TCR 1) positive Zellen im perivaskul'eren Infiltrat. (Oral Presentation) Jahrestagung der Arbeitsgemeinschaft P'ediatrische Rheumatologie, Berlin, Germany, Nov 25, 1993. R

1991


231. Gruschwitz M, Moormann S, Dietrich H, Timpl R, Colombatti A, Wick G: Distribution of

Matrix Proteins in the Skin of UCD 200 Chickens: A Model for Progressive Systemic Sclerosis. (Oral Presentation) 19. Jahrestagung der ADF, Graz, Austria, Nov 18, 1991. R

1990

232. Krude H, Moormann S, Merz WE, Wick G, Schwarz S: Monoclonal Antibodies (MCA) Against Glycoprotein Hormones: A Tool for Examining Hormone-Receptor Interactions. (Oral Presentation) 34. Symposium der Deutschen Gesellschaft f'fcr Endokrinologie, Hannover, Germany, Mar 7, 1990. R

233. Gruschwitz M, Moormann S, Cooper MD, Wick G: Phenotypical Characterization of the

Skin Infiltrating Cells and Peripheral Blood Lymphocytes in UCD 200 Chickens: A Model for Progressive Systemic Sclerosis. (Oral Presentation) XIIth Meeting of the Federation of European Connective Tissue Societies, Bialystok, Poland, Jul 9-13, 1990. R

234. Gruschwitz M, Moormann S, Cooper MD, Wick G: Phenotypic characterization of the skin

infiltrating cells and peripheral blood lymphocytes in UCD 200 chickens: A model for progressive systemic sclerosis (Poster Presentation). XIIth Meeting of the Federation of European Connective Tissue Societies, Bialystok, Poland, Jul 9-13, 1990. R

1989

235. Brezinschek HP, Moormann S, Gruschwitz M, Sgonc R, Boeck G, Dietrich H, Wick G: Cytokine-Induced Alterations in the Endocrine and the Immune System of UCD 200 Chickens Afflicted with Progressive Systemic Sclerosis. (Oral Presentation) Oesterreichische Gesellschaft f'fcr Allergologie und Immunologie, Vienna, Austria, May 19, 1989.

236. Moormann S, Gruschwitz M, Brezinshek HP, Sgonc R., Dietrich H, Boeck G, Wick G:

Phenotypical and Functional Characterization of Peripheral Blood Lymphocytes (PBL) in UCD 200 Chickens: A model for Progressive Systemic Sclerosis. (Oral Presentation) Oesterreichische Gesellschaft f'fcr Allergologie und Immunologie, Vienna, Austria, May 19, 1989.

237. Krude H, Moormann S, Merz WE, Wick G, Schwarz S: Monoclonal Antibodies (MCA)

Against Glycoprotein Hormones: A Tool for Examining Hormone-Receptor Interactions. (Oral Presentation) Herbsttagung der oesterreichischen Gesellschaft f'uer Allergologie und Immunologie, Wien, Austria, Nov 12, 1989.

238. Moormann S, Gruschwitz M, Sgonc R, Gerth R, Brezinschek HP, Boeck G, Dietrich H,

Cooper MD, Wick G: Phenotypical and Functional Characterization of Peripheral Blood Lymphocytes (PBL) in UCD 200 Chickens: A model for Progressive Systemic Sclerosis. (Oral Presentation) Jahrestagung der Arbeitsgemeinschaft Dermatologische Forschung (ADF), Hamburg, Germany, Nov 17, 1989.


239. Gruschwitz M, Moormann S, Dietrich H, Cooper MD, Salomonsen J, Wick G: Phenotypical

Characterization of the Skin Infiltrates in UCD 200 Chickens: A Model for Progressive Systemic Sclerosis. (Oral Presentation) Jahrestagung der ADF, Hamburg, Germany, Nov 17, 1989.

PRESENTATIONS Invited Visits to Other Hospitals/Universities/Etc. International 1. Pediatric Immunology Rheumatology joint meeting, Neuroinflammation. Innsbruck, Austria

May 03-05, 2018 (Invited Speaker)

2. Clinical Immunology Society Annual Meeting. Inflammatory brain diseases. Toronto, April 26-

29, 2018 (Invited Speaker)

3. Pediatric Grand Rounds – “Brain on Fire”. Children's Hospital San Diego, California. January

11-January 12, 2018 (Invited Speaker)

4. Spanish Pediatric Rheumatology Society,SERPE, A Coruna, Spain. “Vasculitis Cerebrales”

“Autoimmune in Pediatric Rheumatology” November 22 – November 26, 2017. (Invited

Speaker)

5. Pediatric Rheumatology European Society (PRES) Annual Meeting, September 13-14, 2017,

Athens, Greece. (Invited Speaker)

6. German Society For Rheumatology (DRGH) September 5-September 9, 2017, Stuttgart,

Germany, (Invited Speaker)

7. European Neuroinflammatic Conference, June 7-June10, 2017, Tuebingen, Germany. (Invited

Speaker)

8. Pediatric Rheumatology Symposium (PRSYM) Annual Meeting, May 17-May 20, Huston, Texas

(Invited speaker)

9. CARRA (Childhood Arthritis & Rheumatology Research Allliance) 2017 Annual Scientific

Meeting. May 15-May 17, Huston, Texas (Invited Speaker)

10. Israeli Annual Rheumatology Meeting. Schneider Children's Medical center, Sackler Faculty of

Medicine, Tel Aviv University, Israel. April 26 – April 29, 2017 (Invited Speaker)


11. Autoimmune encephalitis consensus conference Washington, DC. "Data capture of antibody-

mediated inflammatory brain diseases - BrainWorks". November 12, 2016, Washington, DC,

US. (Invited Speaker)

12. Vasculitis Clinical Research Consortium VCRC meeting 2016. "Childhood CNS vasculitis

update" November 14, 2016, Washington, DC, US

13. Pediatric Rheumatology European Society PRES Annual Scientific Meeting. "CNS vasculitis".

Sept 29, 2016, Genoa, Italy. (Invited Speaker)

14. The Sociedad Mexicana de Pediatría Annual Meeting. "Central Nervous System Vasculitis in

Children, diagnosis and treatment ". June 07-10, 2016, Mexico City, Mexico. (Invited Speaker)

15. The Sociedad Mexicana de Pediatría Annual Meeting. "Kawasaki Disease". June 07-10, 2016,

Mexico City, Mexico. (Invited Speaker)

16. The Sociedad Mexicana de Pediatría Annual Meeting. "Emergencies in Pediatric

Rheumatology". June 07-10, 2016, Mexico City, Mexico

17. EULAR Vasculitis Course 2016. "CNS vasculitis and inflammatory brain diseases"April 07-18,

2016, Istanbul, Turkey. (Invited Speaker)

18. EULAR Vasculitis Course 2016. "Update Kawasaki disease"April 07-18, 2016, Istanbul, Turkey.

(Invited Speaker)

19. Biologic therapies in systemic JIA. Expert meeting: Understanding Rare Autoinflammatory

Conditions: Exploring the Underlying Pathology and Clinical Considerations—the LACAN

Autoinflammatory Experts Meeting, November 27‒28, 2015, São Paulo, Brazil. (Invited

Speaker)

20. LACAN Autoinflammatory Experts Meeting, November 27‒28, 2015, São Paulo, Brazil,

“Vasculitis Update: Understanding Rare Autoinflammatory Conditions: Exploring the

Underlying Pathology and Clinical Considerations”. (Invited Speaker)

21. EULAR Scientifically Endorsed,Vasculitis Course, Nov 7, 2015, Istanbul, Turkey, “Kawasaki

Disease Update”. (Invited Speaker)

22. Vasculitis Research Consortium “Childhood vasculitis”. American College of Rheumatology

annual meeting, San Francisco, USA, Speaker November 02, 2015

23. 8th International Congress of Familial Mediterranean Fever and Systemic Autoinflammatory

Diseases (ISSAID) "Clinical research in rare diseases”, Dresden, October 02, 2015. (Invited

Speaker)


24. VI Colombian Congress in Pediatric Rheumatology. Cerebral Autoimmune Disease: Clinical and

serological diagnosis. August 13th-16th 2015, in Cali, Colombia. (Invited Speaker/Visiting

Professor)

25. VI Colombian Congress in Pediatric Rheumatology. Autoimmune Disease of the brain:

therapeutic aspects. August 13th-16th 2015, in Cali, Colombia. (Invited Speaker/Visiting

Professor)

26. VI Colombian Congress in Pediatric Rheumatology. Lupus nephritis. August 13th-16th 2015, in

Cali, Colombia. (Invited Speaker/Visiting Professor)

27. Barrie to collaborative pediatric research in rare diseases. European League against

Rheumatism Annual Scientific Meeting. July 9, 2015. Rome, Italy. (Invited Speaker)

28. Keynote presentation. Pediatric Vasculitis Symposium, CNS vasculitis – treatment and

outcome, Seattle Children’s Hospital, Seattle, USA, May 29 2015. (Invited Speaker)

29. Pediatric Vasculitis Symposium, CNS vasculitis – diagnosis and mimics, Seattle Children’s

Hospital, Seattle, USA, May 29 2015. (Invited Speaker)

30. Pediatric Vasculitis Symposium Assessing disease - interactive use of the Disease Activity and

Damage Scoring Tools (case based, with M. Twilt), Seattle Children’s Hospital, Seattle, USA,

May 29 2015. (Invited Speaker)

31. Vasculitis of the CNS: Diagnosis, Management, and Research, Cleveland Clinic, Cleveland, USA, April 2015. (Guest Faculty)

32. European League Against Rheumatism (EULAR) Annual Scientific Meeting, Apr 8, 2015, Istanbul, Turkey, “Vasculitis CNS Vasculitis and Inflammatory Brain Diseases”. (Invited Speaker)

33. XLIII Mexican Rheumatology Congress, México City from February 24, 2015.(Expert Panellist)

34. Neurology Grand Rounds, University of California, Jan 21, 2015, Los Angeles, California, “Childhood Inflammatory Brain Disease”. (Speaker for Named Session)

35. Workshop presentations: Classification criteria for cryopyrin associated periodic fever

syndromes: an international interdisciplinary intiative, Harvard Medical School, Boston Nov 2014, Program coordination and lead, two oral presentations. (Invited Speaker)

36. Rounds, National Institute of Health, Inflammatory Branch, Bethesda ML, Nov 10 2014,

“Inflammatory brain diseases and immune dysregulation”. (Invited Speaker)

37. Grand Rounds National Institute of Neurology, Mexico City, Mexico, Sept 22, 2014, “Inflammatory brain diseases in children”. (Invited Speaker and Visiting Professor).


38. Research presentation, National Academy of Medicine, Mexico City, Mexico, Sept 22, 2014,

“international research in childhood inflammatory brain diseases”. (Invited Speaker and Visiting Professor)

39. Keynote presentation, Congress of Postgraduate Studies of the National University of Mexico,

Sept 24, 2014, “Childhood CNS vasculitis”. (Invited Speaker and Visiting Professor) 40. International expert panel: Childhood inflammatory diseases, Mexican Congress of

Rheumatology, Mexico City, Mexico, Sept 24, 2014 “Utility of autoimmune testing”. (Invited Speaker and Visiting Professor)

41. Keynote presentation, Mexican Congress of Rheumatology, Mexico City, Mexico, Sept 25,

2014 “Clinical and diagnostic aspects of inflammatory/autoimmune cerebral disease in childhood”, Invited Speaker. (Visiting Professor)

42. Mexican Congress of Rheumatology, Mexico City, Mexico, Sept 25, 2014 “Treatment and

outcome of childhood inflammatory brain diseases”. (Invited Speaker and Visiting Professor) 43. Mexican Congress of Rheumatology, Mexico City, Mexico, Sept 25, 2014 “International

research in childhood inflammatory brain diseases”.(Invited Speaker and Visiting Professor)

44. Deutsche Gesellschaft fuer Kinderheilkunde (German Pediatric Society annual meeting), Leipzig, Germany, Sept 13, 2014 “Childhood vasculitis”. (Invited Speaker)

45. Neuroinflammatory expert meeting, Children’s National Hospital and National Institute of

Health, Washington, June 18, 2014, Washington, DC, “ Research agenda Childhood inflammatory brain diseases”.(Invited Speaker)

46. Childhood inflammatory diseases symposium,May 23, 2014, Tuebingen, Germany, “Childhood

inflammatory brain diseases and vasculitis. (Invited Speaker) 47. CAPS Diagnosis Consensus Conference, Istanbul, Turkey, April 4, 2014 ( Leader, Speaker)

48. Autoimmune encephalitis expert meeting, Duke University, North Carolina, Mar 28, 2014,

“Childhood inflammatory brain diseases and vasculitis”. (Invited Speaker)

49. American College of Rheumatology Annual Meeting, San Diego, California, Nov 30, 2013, “Inflammatory Brain Disease”. (Session Chair)

50. VCRC (Vasculitis Consortium) Meeting, San Diego, California, Oct 26, 2013, “Research Update

on Childhood Vasculitis”. (Invited Speaker)

51. Canadian Consensus Conference, Oct 16, 2013, “Neuropathology of CNS Vasculitis”. (Session Chair)


52. Grand Rounds, Zentrum fuer seltene Erkankungen (center for rare diseases), University of Tübingen, July 11, 2013, Tübingen, Germany . “Innovative approaches to rare disease: Inflammatory brain diseases in children” (Invited Speaker)

53. Grand Rounds, Royal Manchester Children’s Hospital, June 20, 2013, Manchester, UK,

“Diagnosis of childhood inflammatory brain diseases” (Invited Speaker) 54. Paediatric Neurofest Manchester, June 21, 2013, Manchester, UK, “ Diagnosing childhood

inflammatory brain disease” (Invited Speaker) 55. Congress of the Society for Neuropediatrics, April 25-27 2013, Innsbruck, Austria, “ Update

CNS Vasculitis” (Invited Speaker) 56. Grand Rounds, University Children’s Hospital, April 26, 2013, Innsbruck, Austria, “The

spectrum of childhood inflammatory brain diseases” (Invited Speaker)

57. 16th International Vasculitis and ANCA Workshop, Paris, France. Recognizing childhood Inflammatory Brain diseases in Canada, and Maintenance treatment in Childhood Granulomatosis with Polyangiitis. April 14-17 2013. (Invited Speaker)

58. Grand Rounds – University of Tuebingen, Mar 28, 2013, Tuebingen, Germany, “Update on JIA”. (Invited Speaker)

59. 40. Kongress der Deutschen Gesellschaft fürRheumatologie DGRh mit der Deutschen Gesellschaft fürOrthopadische Rheumatologie (DGORh) und Gesellschaft fürKinder- und Jugendrheumatogie (GKJR). Entzuendliche Manifestationen und Vaskulitiden am ZNS. Bochum, Germany. September 21, 2012. (Invited Speaker)

60. German Society of Paediatrics Annual Meeting. Hamburg, Germany, September 15, 2012:

Entzuendliche Hirnerkrankungen im Kindesalter. (Invited Speaker) 61. Grand Rounds, University Children’s Hospital in Tübingen. September 18, 2012.(Invited

Speaker) 62. European League against Rheumatism Annual Meeting 2012, Berlin, Germany June 09, 2012

“Childhood Inflammatory Brain Diseases”.(Invited Speaker)

63. International Child Neurology Association Annual Meeting 2012, Brisbane. Australia, May 30,2012, “Childhood CNS Vasculitis”. (Invited Speaker)

64. Neurology Grand Rounds, Royal Children’s Hospital, May 23, 2011, Melbourne, Australia,

“Childhood Inflammatory Brain Diseases”. 65. Neurology Grand Rounds, Children’s Hospital, May 18, 2012, Sydney, Australia, “Childhood

CNS vasculitis”. (Invited Speaker) 66. Australian Pediatric Rheumatology Association Annual Meeting, May 16, 2012, Canberra,


Austrailia, “Childhood CNS Vasculitis and Inflammatory Brain Diseases”. (Invited Speaker) 67. Grand Rounds, Hackensack Medical Center, March 05, 2012, Hackensack, NJ, USA, “CNS

Vasculitis and Inflammatory Brain Diseases” (Invited Speaker) 68. Grand Rounds, University of Zurich, Switzerland Children’s Hospital (Kantonsspital), , March

05, 2012, Zurich, Switzerland, “Childhood CNS Vasculitis”. (Invited Speaker) 69. Grand Rounds, University of Freiburg Children’s Hospital, March 04, 2012, Freiburg, Germany

“Childhood CNS Vasculitis”. (Invited Speaker) 70. Multiple Sclerosis Summit,January 18-20, 2012, Washington, DC, “Future of childhood MS

research – Therapeutics”. (Invited Speaker) 71. Grand Rounds Rheumatology, University of Texas Medical School, November 17, 2011,

Houston, Texas, “Childhood CNS vasculitis”. (Visiting Professor)

72. American College of Rheumatology, Vasculitis Study Group, Annual Scientific Meeting, November 7, 2011, Chicago, IL , “Childhood CNS Vasculitis”. (Invited Speaker)

73. Imaging rounds Baylor College of Medicine, Houston, Texas, November 17, 2011: Neuroimaging features and cognitive burden in pediatric CNS Vasculitis. (Visiting Professor)

74. Neuroscience rounds Baylor College of Medicine, November 17, 2011, Houston, Texas, “ Brain biopsies in childhood CNS vasculitis”. (Visiting Professor)

75. Brazilian Congress of Pediatric Rheumatology, October 9, 2011, Sao Paulo, Brazil, “Diagnosis of CNS vasculitis and inflammatory brain diseases in children”. (Invited Speaker)

76. Brazilian Congress of Pediatric Rheumatology, October 10, 2011, Sao Paul, Brazil, “Update on childhood lupus”.(Invited Speaker)

77. Pediatric Grand Rounds, University of California Medical Center, October 3, 2011, San Francisco, CA, “Childhood CNS vasculitis and inflammatory brain diseases”. (Invited Speaker)

78. European Pediatric Rheumatology Congress (PReS) Annual Meeting, September 14-18, 2011, Bruges, Belgium, “BrainWorks, The International Childhood CNS Vasculitis Outcome Study”.

79. Bristol Child NeuroScience Paediatric Neurology Masterclass 2011, University of Bristol, September 15, 2011, Bristol, UK, “Update on CNS vasculitis”. (Invited Speaker)

80. Grand Rounds, State University Hospital, Rigshospitalet, Department of Paediatrics and Adolescent Medicine, September 14, 2011, Copenhagen, Denmark, “Primarily CNS vasculitis in childhood – Diagnosis and differential diagnosis and treatment”. (Invited Speaker)

81. Gesellschaft fur Kinder – und Jugend Rheumatologie (GKJR), Lecture, September 2, 2011, Munich, Germany,“Klassifikation der ZNS-Vaskulitiden”. (Invited Speaker)


82. IV Colombian Congress of Pediatric Rheumatology, August 12, 2011, Barranquilla, Colombia, at 2:30 p.m. “ Polyarteritis Nodosa”. (Invited Speaker)

83. IV Colombian Congress of Pediatric Rheumatology, August 12, 2011, Barranquilla, Colombia, at 3:00 p.m. “Childhood CNS Vasculitis”. (Invited Speaker)

84. IV Colombian Congress of Pediatric Rheumatology, August 13, 2011 at 7:00 a.m. , Barranquilla, Colombia,”SLE - difficult to manage”. (Invited Speaker)

85. IV Colombian Congress of Pediatric Rheumatology, August 13, 2011 at 8:00 a.m., Barranquilla, Colombia, “Systemic Lupus Erythematosus (SLE)”. (Invited Speaker)

86. Grand Rounds, Duke University Children’s Medical Center, July 17-19, 2011, Durham, North Carolina, “CNS Vasculitis and Inflammatory Brain Disease”. (Invited Speaker)

87. State-of-the Art Lecture 2011 American College of Rheumatology Pediatric Rheumatology Symposium (PRSYM), June 2-5, 2011, Miami, FL, “CNS Inflammatory Disease: An expanding spectrum”. (Invited Speaker)

88. Canadian Rheumatology Association Annual Meeting and Scientific Program, February 11-15, 2011, Cancun, Mexico, “CNS Vasculitis”. (Invited Speaker)

89. Annual Norwegian Conference of Pediatrics, January 20, 2011, Trondheim, Norway, “Inflammatory Brain Diseases in Children - State of the Art”. (Keynote Speaker/Visiting Professor)

90. Grand Rounds, St. Olav’s University Hospital Trondheim, Norway, January 19, 2011, CNS Vasculitis and Inflammatory Brain Diseases in Children. (Visiting Professor)

91. Annual Norwegian Conference of Pediatrics, Clinical Update, St. Olav’s University Hospital, January 19, 2011, Trondheim, Norway, “Juvenile Systemic Lupus Erythematosus (JSLE)” . (Visiting Professor)

92. Annual Norwegian Conference of Pediatrics, Clinical Update, St. Olav’s University Hospital, January 19, 2011, Trondheim, Norway, “ Kawasaki Disease: Up-Date on Classic and Partial Disease with Focus on Children at High-Risk of Cardiac Complications”. (Visiting Professor)

93. Interdisciplinary Pediatric Rounds. Universitetshospital Skejby, January 17, 2011, Aarhus, Denmark, “Update on Pediatric Systemic Lupus Erythematosus in 2011”. (Invited Speaker)

94. Grand Rounds, Universitetshospital Skejby, January 18, 2011 Aarhus, Denmark,”CNS Vasculitis and Inflammatory Brain Diseases in Children”. (Invited Speaker)

95. Grand Rounds, The Cleveland Clinic, December 08 2010, Cleveland, OH, “Diagnosis, Differential Diagnosis and Treatment of Childhood Inflammatory Brain Diseases”. (Visiting Professor)

96. Rheumatology Research Rounds, The Cleveland Clinic, December 7, 2010, Cleaveland, Ohio, “Diagnostic Approach to CNS Vasculitis and Inflammatory Brain Diseases in Children”. (Visiting


Professor)

97. State-of-the-Art Lecture, American College of Rheumatology Annual Scientific Meeting, November 11, 2010, Atlanta, GA, “New Insights into Primary Central Nervous System Vasculitis in Children”. (Invited Speaker)

98. Pediatric Neurology Masterclass, University Hospitals Bristol Education Centre, September 30, 2010, Bristol, UK, “CNS Vasculitis”. (Invited Speaker)

99. Childhood Neuro-Immunology Symposium, September 27-30, 2010, , Berlin, Germany, „Therapie der Vaskulitiden (die Sicht der Kinderrheumatologin)“. (Visiting Professor)

100. Childhood Neuro-Immunology Symposium, September 27-30, 2010, Berlin, Germany, „Diagnostische Algorithmen“. (Visiting Professor)

101. Childhood Neuro-Immunology Symposium, September 27-30, 2010, Berlin, Germany, “Primare ZNS-Vaskulitiden”. (Visiting Professor)

102. Grand Rounds, University Children’s Hospital Charite, September 27, 2010, Berlin, Germany, . Primare ZNS-Vaskulitiden. (Visiting Professor)

103. Pediatric Rheumatology Course, XVI Pan American Congress of Rheumatology, PANLAR 2010, , April 25-28, 2010, Santiago, Chile, “Therapy of Pediatric Systemic Lupus Erythematosus Year 2010”. (Visiting Professor)

104. Pediatric Rheumatology Course, XVI Pan American Congress of Rheumatology, PANLAR 2010, April 25-28, 2010, Santiago, Chile, “Clinical Presentations of Systemic Lupus Erythematosus in Children and Adolescents”. (Visiting Professor)

105. us System Vasculitis. (Visiting Professor) Pediatric Rheumatology Course, XVI Pan American Congress of Rheumatology, PANLAR 2010, April 25-28, 2010, Santiago, Chile, “Central Nervo”. (Invited Speaker)

106. Grand Rounds, University Hospital, March 03, 2010, Hanburgh, Germany, “ZNS-Vaskulitis und entzuendliche Hirnerkrankungen im Kindesalter“. (Invited Speaker)

107. Grand Rounds, Ljubljana University Hospital, March 03, 2010, Ljubljana, Slovenia, “CNS Vasculitis – Current Knowledge and Future Challenges”. (Visiting Professor)

108. Neurology Rounds, Ljubljana University Hospital, March 02, 2010, Ljubljana, Slovenia, “Diagnosis of CNS Vasculitis and Inflammatory Brain Diseases”. (Visiting Professor)

109. Research Rounds, Ljubljana University Hospital, Ljubljana, Slovenia, March 02, 2010, Ljubljana, Slovenia, “BrainWorks – International Collaborative Research in Childhood CNS Vasculitis”. (Visiting Professor)

110. Symposium Pediatric Neuroimmunology, Autoimmunitat – das ZNS im Fokus, University of Halle (Saale), February 26, 2010, Halle (Saale), Germany, “Primare ZNS-Vaskulitis im Kindes – und Jugendalter”. (Invited Speaker) R


111. Grand Rounds, University Children’s Hospital Tuebingen, February 25, 2010, Tuebingen, Germany, “Primare ZNS-Vaskulitis im Kindes- und Jugendalter“. (Visiting Professor) C

112. Symposium Pediatric Neuroimunnology University of Tuebingen, February 24, 2010, Tuebingen, Germany, “Das klinische Spektrum der entzuendlichen Hirnerkrankungen im Kindesalter“. (Visiting Professor) R

113. Symposium Pediatric Neuroimmunology, University of Tuebingen, February 24, 2010, Tuebingen, Germany, “Diagnostisches Vorgehen bei Autoimmunerkrankungen des ZNS“. (Visiting Professor) R

114. Symposium Pediatric Neuroimmunology, University of Tuebingen, February 24, 2010, Tuebingen, Germany, „Neue Therapieansatze bei autoimmunologisch vermitteltelten ZNS Erkrankungen“. (Visiting Professor) R

115. Research Grand Rounds, The Academic Medical Center (AMC) Hospital, Research Institute, February 23, 2010, Amsterdam, Netherlands, “Childhood Lupus Nephritis: Etiology, Treatment and Outcome”. (Visiting Professor)

116. Academic Hospital Grand Rounds, AMC Hospital, Amsterdam, Netherlands, February 22, 2010, Amsterdam, Netherlands,”Diagnostic Approach and Treatment of Childhood CNS Vasculitis”. (Visiting Professor)

117. German Society of Rheumatology Annual Scientific Meeting, September 24, 2009, Cologne, Germany, “CNS Vasculitis and Inflammatory Brain Diseases in Children”. (Invited Speaker)

118. European Congress of Rheumatology (EULAR) Annual Scientific Meeting, Jun 11, 2009, Copenhagen, Denmark, “Long-Term Outcome of Childhood Vasculitis”. (Invited Speaker)

119. Neurology Grand Rounds, Harvard Medical School, Jan 21, 2009, Boston, MA, “Childhood CNS Vasculitis”. (Invited Speaker)

120. German Society of Pediatric Rheumatology Annual Scientific Meeting, Oct 31, 2008,

Wuerzburg, Germany, “Childhood Vasculitis” . (Invited Speaker) 121. Pediatric Rheumatology European Society Congress (PRES) Annual Scientific Meeting, Sep

13, 2008, London, UK, “Lupus in Children”. (Invited Speaker)

122. European Congress of Rheumatology (EULAR) Annual Scientific Meeting, Jun 12, 2008, Paris, France, “CNS Vasculitis in Children”. (Invited Speaker)

123. Grand Rounds, University Children’s Hospital Ann Arbor, University of Michigan, Apr 15,

2008, Ann Arbor, MI, “CNS Vasculitis in Children”. 124. Neurology Grand Rounds, Denver Medical Center, March 06, 2008, Denver, CO, “Primary

CNS Vasculitis in Children”. (Invited Speaker) 125. American College of Rheumatology, Keystone Pediatric Rheumatology Symposium, Feb 29,


2008 - Mar 6, 2008, Keystone, CO, “Childhood Vasculitis”. 126. German Society of Pediatric Rheumatology Annual Scientific Meeting, Oct 31, 2007,

Duesseldorf, Germany, “Neurological Emergencies in Pediatric Rheumatology”. (Invited Speaker)

127. Grand Rounds, Harvard Children's Hospital, Sep 28, 2007, Boston, MA, “CNS Vasculitis in

Children”. (Invited Speaker)

128. International Pediatric Stroke Study Group (IPSS), Annual Meeting, May 8, 2007, Toronto, Ontario, “Brainworks: Identifying a Reversible Cause of Childhood Stroke”.

129. German Society of Pediatric Rheumatology Annual Scientific Meeting, Nov 3, 2006, Leipzig,

Germany, “Research in Pediatric Rheumatology”. (Invited Speaker) 130. European Congress of Rheumatology (EULAR) Annual Scientific Meeting, , Jun 21, 2006 - Jun

24, 2006, Amsterdam, Netherlands, “CNS Vasculitis in Children”. (Invited Speaker) 131. Grand Rounds, University Children’s Hospital Kinderspital Zurich, Jun 15, 2006, Zurich,

Switzerland, “Kawasaki Disease: Diagnosis and Therapy”. (Invited Speaker)

132. Grand Rounds, Hospital for Special Surgery, Mar 15, 2006, , New York, NY, “CNS Vasculitis in Children”. (Invited Speaker)

133. German Society of Pediatric Rheumatology Annual Scientific Meeting Bremen, Sep 29, 2005 - Oct 2, 2005, Bremen, Germany, “CNS Lupus in Children”. (Invited Speaker)

134. European Congress of Rheumatology (EULAR) Annual Scientific Meeting, Jun 8, 2005 - Jun

10, 2005, Vienna, Austria, “Primary CNS Vasculitis”. (Invited Speaker) 135. Kinderrheumatologisches Symposium Nuernberg, Jun 3, 2005 - Jun 4, 2005, Nuernberg,

Germany, „Vaskulitis und Therapie”. (Invited Speaker) 136. II Indian Pediatric Rheumatology Conference, Nov 2004, New Delhi, India, ."Treatment of

Pediatric Rheumatic Disease". (Invited Speaker)

137. II Indian Pediatric Rheumatology Conference, Nov 2004, New Delhi, India,"Kawasaki Disease". (Invited Speaker)

138. Pediatric Rheumatology European Society Congress (PRES) Annual Scientific Meeting, Sep 3,

2004 - Sep 5, 2004, Kosice, Slovakia, “CNS Lupus”. (Invited Speaker) R 139. Grand Rounds, Children’s Hospital Dortmund, Staedtische Kinderkliniken, May 2004,

Dortmund, Germany, „ZNS Vasculitis“. (Invited Speaker)

140. German Society of Pediatric Rheumatology Annual Scientific Meeting, Nov 2001, Garmisch Partenkirchen, Germany,”CNS Vasculitis”. (Invited Speaker)


National

1. Skin, Joints and Beyond – Novartis Pharmaceutical Canada Inc, Oct 18, 2017, Winnipeg, Manitoba, “How to differentiate autoimmune from autoinflammatory diseases”. (Invited Speaker)

2. Arthritis Society Symposium/Annual Meeting, September 15-September 16,2017, Toronto, Ontario, “Brain On Fire”. (Speaker)

3. SOBI Canada Pharmaceutical Meeting, July 24-July 25,2017, Montreal, Quebec. (Invited Speaker)

4. Skin Joints and Beyond - Novartis Pharmaceutical Canada Inc, May 9, 2017, Saskatoon, Saskatchewan. (Invited Speaker)

5. Canadian Rheumatology Assoication, Apri 18, 2017, Vancouver, British Columbia, “Autoinflammatory vs Autoimmunity”. (Invited Speaker)

6. Canadian Rheumatology Assoication, Apri 19, 2017, Saskatoon, Saskatchewan, “Autoinflammatory vs Autoimmunity” (Invited Speaker)

7. Autoinflammatory Diseases – Rare Disease Day Conference. March 30, 2017. Toronto, Ontario. (invited speaker)

8. Canadian Organization for Rare Diseases (CORD) Rare Disease Day, “Research in childhood inflammatory diseases”, June 09, 2016, Ottawa, Ontario

9. Canadian Organization for Rare Diseases (CORD) Rare Disease Day, March 09, 2016, Ottawa, Ontario

10. Grand Rounds, Children’s Hospital University of Saskechewan, November 19, 2016, Saskatoon, Saskatchewan, “Brain on fire: childhood inflammatory brain diseases”. (Invited Speaker)

11. Pediatric Grand Rounds, University of Saskatchewan, Nov 19, 2015, Saskatoon, Saskatchewan, “Childhood Inflammatory Disease” and “Childhood Vasculitis”. (Teacher/Invited Speaker)

12. Canadian Child Health Scientist Program, CCHSCP Annual Meeting, June 6, 2015, Halfiax, Nova Scotia, “Mentorship in Pediatric Research”. (Invited Speaker, Lead for Calgary)

13. Canadian Organization for Rate Diseases (CORD) Conference, Mar 5, 2015, Toronto, Ontario, “Chronic Childhood Vaculitis in Association with CORD”. (Invited Speaker)

14. Canadian Vasculitis Network (CanVasc) Annual Scientific Meeting, October 24, 2014, Toronto, Ontario, “Childhood Vasculitis Research”. (Invited Speaker)

15. Pediatric Grand Rounds, University of Western Ontario, London Health Center, April 16, 2014, London, Ontario,“Childhood inflammatory brain diseases”.(Invited Speaker)


16. Pediatric Residency Rounds, University of Western Ontarion, London Health Center, April 16, 2014, London, Ontario, “Diagnosis and Management of Childhood Systemic Vasculitis”. (Invited Speaker)

17. Canadian Rheumatology Association Annual Scientific meeting, Pediatric Rheumatology Resident Teaching Day, Feb 26, 2014, Whistler, British Columbia, “Imaging in childhood rheumatic diseases”. (Invited Speaker)

18. Canadian Rheumatology Association Annual Scientific meeting, Mar 01, 2014, Whistler, British Columbia, “CNS vasculitis”. (Invited Speaker)

19. National Rheumatology resident weekend, Jan 25, 2014, Ottawa, Ontario “Childhood CNS Vasculitis”. (Invited Speaker)

20. National Rheumatology Resident Weekend, Jan 24, 2014, Ottawa, Ontario, “Challending Cases of Childhood Vasculitis”. (Invited Speaker)

21. Canadian Organization for Rare Diseases (CORD) Annual Meeting, Toronto, Ontario, Nov 11, 2013, “Access to Care for Patieints with Rare Diseases in Canada”. (Invited Speaker)

22. Pediatric Emergency Conferene, Oct 13, 2013, Toronto, Ontario, “ Kawasaki’s Disease: How not to miss the diagnosis”. (Invited Speaker)

23. Canadian Neurology Sciences Federation, June 12 2013, Montreal,Quebec, “Update on CNS Vasculitis – Hot Topics in Child Neurology”. (Invited Speaker)

24. Developmental Pediatrics Division Rounds, Holland Bloorview Kids Rehabilitation Hospital, Mar 21, 2013, Toronto, Onatrio, “Inflammatory Brain Disease”. (Invited Speaker)

25. Rare Diseases Network Annual Meeting, Feb 27, 2013, Toronto, Ontario, International research in childhood vasculitis. (Invited Speaker)

26. CIHR Café Scientifique on Rare Diseases, Feb 26, 2013, Toronto, Ontario, “The role of Genese in Dusease”. (Panel Member)

27. Acute Care Research Rounds, Department of Critical Care Medicine, The hospital for Sick Children, Feb 10, 2013, Toronto, Ontario, “Diagnostic Evaluation, Treatment and Outcome of CNS Vasvculitis”. (Invited Speaker)

28. Grand Rounds, Montreal Children’s Hospital, Dec 18, 2012, Childhood Inflammatory Brain

Diseases. 29. Canadian National Vasculitis Meeting (CanVasc), Nov 22, 2012, Montreal,Quebec, “Research

in Childhood Vasculitis and Inflammatory Brain Diseases”. (Invited Speaker) 30. Canadian Rheumatology Association Annual Meeting, March 30, 2012, Victoria, British

Colombia, “Challenging cases of childhood vasculitis”.


31. Rare Diseases Network Annual Meeting, April 13, 2012, Ottawa, Ontario, “Childhood vasculitis”.

32. Joint Neurology/Rheumatology Rounds CNS Vasculitis, January 27, 2012, “Update of International Research”.

33. CAPRI, CAN, CaNIOS, CSRG Annual Meeting,2nd Plenary Session, CAN Symposium 3 Multisystem Care, October 26-30, 2011, Quebec City, Quebec, “Administrative database in pediatric rheumatology”. (Panel Member)

34. AACAP/CACAP Joint Annual Meeting, Sheraton Centre Hilton, October 21, 2011, Toronto, Ontario, “Medical Clearance of Pediatric Patients with New Psychiatric Symptoms”. (Invited Speaker)

35. Lecture, 6th Conference of the Autoantibody Network, Novotel Toronto, September 22, 2011, Mississauga, ON, “Childhood CNS Vasculitis”. (Invited Speaker)

36. Canadian Vasculitis Network (CanVasc) First Annual Scientific Meeting, June 10, 2011, Toronto, Ontario, “CNS Vasculitis Registry – BrainWorks”.

37. Annual Paediatric Update Workshop, The Hospital for Sick Children, April 27-30, 2011, Toronto, Ontario, “Childhood arthritis: Let’s learn about the joints!”. (Invited Speaker)

38. National Pediatric Neurology Grand Rounds, The Hospital for Sick Children, December 12, 2010, Toronto, Ontario, “CNS Vasculitis”.(Invited Speaker)

39. Understanding Childhood Arthritis Network (UCAN) Meeting, November 4-6, 2010, Niagara-on-the-Lake, Ontario, “Developing a Common Dataset for Paediatric Rheumatology”. (Invited Speaker)

40. The 7th Annual Paediatric Emergency Medicine (PEM) Conference, The Hospital for Sick Children, October 16, 2010, Toronto, Ontario, “The Swollen, Tender Joint: Infection or Inflammation? “. Teaching effectiveness score: 4.74 / 5 (Invited Speaker)

41. The 45th Annual Congress of the Canadian Neurological Sciences Federation (CNSF), June 8-11, 2010, Quebec City, Quebec, “CNS Vasculitis in Children”. (Invited Speaker)

42. Grand Rounds, Pediatrics, Montreal Children’s Hospital, March 09, 2010, Montreal, Quebec, “Inflammatory Brain Diseases”. (Invited Speaker) Teaching effectiveness score: 4.9 / 5

43. Research Rounds, Pediatrics, Montreal Children’s Hospital, March 09, 2010, Montreal, Quebec, “CNS Vasculitis and Inflammatory Brain Diseases Research: BrainWorks”. (Invited Speaker)

44. Canadian Vasculitis Foundation, Preston Legion #126, October 24, 2009, Cambridge, ON, “CNS Vasculitis and Inflammatory Brain Diseases in Children”.

45. Autoantibody Network Symposium, September 17, 2009, Toronto, Ontario, “CNS Vasculitis


and Inflammatory Brain Diseases in Children”.(Invited Speaker) 46. Grand Rounds, Children's Hospital of Eastern Ontario (CHEO),Jul 17, 2009, Ottawa, Ontario,

“CNS Vasculitis and Inflammatory Brain Diseases in Children”. (Invited Speaker)

47. Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI), Research Workshop and Future Directions Symposium, Jun 18, 2009, Saskatoon, Saskatchewan, “Childhood Vasculitis Research”. (Invited Speaker)

48. Ontario Rheumatology Association (ORA) Annual Meeting, May 23, 2009, Gravenhurst,

Ontario,”Periodic Fever Syndrome”. (Invited Speaker) Teaching effectiveness score: 4.73 / 5

49. Annual Paediatric Update, The Hospital for Sick Children, Apr 29, 2009 - May 2, 2009,

Toronto, Ontario, “Fever: When Genes or Germs Turn on the Heat”. 50. Grand Rounds, British Columbia's Children's Hospital, Mar 2, 2009 - Mar 4, 2009,

Vancouver, BC, “Childhood CNS Vasculitis”. (Invited Speaker) 51. Annual Conference on Pediatric Emergency Medicine, Division of Pediatric Emergency

Medicine, The Hospital for Sick Children, Oct 17-18, 2008, Toronto, Ontario, “Rapid recognition of childhood stroke”. (Invited Speaker) Teaching effectiveness score: 4.8 / 5

52. Ontario Rheumatology Association (ORA) Annual Meeting, May 24, 2008, Gravenhurst,

Ontario, “CNS Vasculitis in Children”. (Invited Speaker) 53. Rounds, Civic Hospital and Children's Hospital of Eastern Ontario (CHEO), May 20, 2008 -

May 21, 2008, Ottawa, ON, “CNS Vasculitis in Children”. (Invited Speaker) Teaching effectiveness score: 6.2 / 7

54. Paediatric Update Conference, The Hospital for Sick Children, May 1, 2008, Toronto,

Ontario, “Childhood Stroke and CNS Vasculitis”. (Invited Speaker) Teaching effectivess score: 4.6 / 5

55. Paediatric Emergency Conference, The Hospital for Sick Children, Oct 20, 2007, Toronto,

Ontario, “Chest Pain”. (Invited Speaker) 56. Pediatric Update 2007, The Hospital for Sick Children, Apr 23, 2007 - Apr 28, 2007, Toronto,

Ontario, “HLH, an Inflammatory Emergency of Childhood”. 57. Third Annual Conference on Pediatric Emergency Medicine, Division of Pediatric

Emergency Medicine, The Hospital for Sick Children, Oct 20, 2006, Toronto, Ontario, “Chest Complaints: Chest Pain, Syncope and ECG's”. (Invited Speaker)

58. Annual Paediatric Emergency Medicine Conference, Sep 15, 2005 - Sep 16, 2005, Toronto, Ontario, “Casting”. (Invited Speaker)


59. Annual Pediatric Emergency Medicine Conference, Sep 15, 2005 - Sep 16, 2005, Toronto, Ontario, “Update on Kawasaki Disease: Challenging the Diagnostic Criteria and Introducing Novel Therapies”. (Invited Speaker)

Local: Alberta Children’s Hospital, University of Calgary, Calgary and the Hospital for Sick Children and Greater Toronto Area

1. Women in Medicine, December 12, 2017,Calgary, Alberta. (Invited Speaker)

2. SPONDYLOARTHRITIS (SpA) Research day, University of Calgary, November 16, 2017, Calagry, Alberta.(Keynote invited speaker)

3. Research Day, Alberta Childrens Hospital,November 16, 2017, Calgary, Alberta, “Brain on Fire” (Invited Speaker)

4. IBrain Teaching, Calgary, Alberta, Novemeber 7, 2017 (Speaker)

5. Resident Teaching Sessions, Alberta Childrens Hospital, October 31, 2017, Calgary, Alberta, “Housewife’s guide to paper writing”. (Invited Speaker)

6. Annual Rheumatology Retreat, Calgary Zoo, October 19-October 20, 2017, Calgary, Alberta,“On the Edge of Transforming Care” (Invited Speaker)

7. 2017 Prairie Rheumatology Education Day – Hotel Alma, Calgary, Alberta. October 6, 2017. (Speaker)

8. PANDAS/PANS Awareness Declaration Day, Mcdougall Centre, October 6, 2017, Calgary, Alberta.(Invited Speaker)

9. Annual Calgary Vasculitis Symposium -Treatment of Takayasu Arteritis – Calgary, Alberta October 5, 2017. (Invited Speaker) Overall Presentation Effectivness (4.94/5)) Presentation met the stated learning objectives (4.87/5) The content met learning needs (4.81/5) Comments: Excellent discussion, well timed for questions; I appreciated the discussion about treatment for TKA and the rationale for the treatment; Good review of options including evidence for biologics in TAK;

10. GCHU Annual Conference 2017, October 4, 2017, Calgary, Alberta.

11. Resident Teaching Session, Alberta Childrens Hospital, July 6, 2017, Calgary, Alberta,” How to Write research Papers”. (Invited Speaker)

12. Abatcept Annual Conference, June 26, 2017, Banff, Alberta “Review of Safety and Efficacy of Abatacept in Pediatric Rheumatologic Conditions”. (Invited Speaker)

13. Complex Immunity Cultivation Event,May 30, 2017, Calgary, Alberta. (Invited Speaker)

14. Media Event, Heritiage Medical Centre, Foothills Hospital. May 24, 2017, Calgary, Alberta, “Childhood Arthiritis”. (Invited Speaker)


15. Resident Teaching Session, Alberta Childrens Hospital, April 7, 2017, Calgary, Alberta, “Housewives guide to writing research papers”. (Invited Speaker)

16. Provinical Immunology Meeting – Alberta Children’ Hospital, February 27,2017 (Invited Speaker)

17. Sam Darwish Sympsoium for Childhood Demyelinating Diseases. "Autoinflammatory Diseases". November 17, 2016 Alberta Children’s Hospital, Calgary AB. (Invited Speaker)

18. Residents research course 2016. "A guide to effective paper writing", Alberta Children’s Hospital. Nov 04, 2016, Calgary. (Invited Speaker)

19. CCHSCP Presentation (Alberta Wide), Nov 3, 2016, Edmonton, Alberta, “Critical Appraisal”. (Invited Speaker)

20. Epilepsy Symposium 2016, University of Calgary. "Brain on fire, childhood antibody mediated inflammatory brain disease". October 20, 2016, Calgary, Alberta. (invited speaker)

21. Dawson Jarrock Vasculitis Symposium 2016 "Expert panel Childhood Vasculitis". October 20, 2016, Calgary, Alberta. (invited speaker)

22. Canadian Child Health Scientist Program Presentation (CCHSCP) Telecast, June 24, 2016, Calgary, Alberta “A housewifes guide to grant writing”.(Invited Speaker)

23. Pediatric Update Alberta Children’s Hospital May 6, 2016, Calgary, AB,“Kawasaki Disease”(Invited Speaker)

24. CARRA Meeting: BrainWorks CARRA update: introduction to brainworks-practical exercise. April 16, 2016, Toronto, Ontario,“Knowledge tranlastion in rare diseases” (Speaker)

25. Lecture Session, March 30, 2016, Calgary, Alberta, “Scholary Oversight: Principles and Opportunities” (Invited Lecturer/speaker)

26. CRA 2016, Arthritis Alliance of Canada IA MOC Data Harmonization Meeting: Pediatrice JIA core dataset. February 17, 2016. Lake Louise, AB.

27. Dawson-Jarock Calgary Vasculitis Symposium, Alberta Children’s Hospital, University of Calgary, October 9, 2015, “Childhood CNS vasculitis”, (Speaker and Conference Chair)

28. CCHSCP presentation (Alberta wide), Alberta Children’s Hospital and Stollery Hospital, Edmonton, Nov 03, 2014, “Critical appraisal”. (Invited Speaker)

29. Neuroscience Grand Rounds, Alberta Children’s Hospital, Oct 20, 2014, Calgary, Alberta, “Brain on fire”. (Invited Speaker)

30. Calgary Vasculitis Symposium and Patient/parent forum, Alberta Children’s Hospital, Oct 02, 2014, Calgary, Alberta. (Moderator and Co-organizer)


31. Wood Forum, University of Calgary, Oct 20, 2014, Calgary, Alberta, “Update Childhood Arthritis Care and Research”. (Invited Speaker)

32. Wood forum and McCaig institute: Expressions of arthritis, Telus Spark, Sept 20, 2014, Calgary, Alberta.

33. Mentorship Program Celebration 2013-2014, Department of Pediatrics, Alberta Children’s Hospital, June 5, 2014, Calgary, Alberta.

34. Neuroinflammatory symposium, Alberta Children’s Hospital, May 13, 2014, Calgary, Alberta, “Brain on fire: Childhood Inflammatory Brain Diseases”.(Invited Speaker)

35. Rheumatology rounds, Division of Rheumatology University of Calgary, Jan 22, 2014, Calgary, Alberta,“Inflammatory Brain Diseases”. (Invited Speaker)

36. 2nd Annual Alberta Children’s Hospital Vasculitis Symposium, October 3, 2013, Calgary, Alberta. (Invited Speaker)

37. Annual 4C (day treatment) Education Day: May 10, 2013, Calgary, Alberta, “ Vasculitis and beyond”. (Invited Speaker)

38. Interdisciplinary Vasculitis Rounds, May 02 2013, Calgary, Alberta,”Update Childhood Inflammatory Brain Diseases”. (Invited Speaker)

39. Developmental Paediatrics Division Rounds, Holland Bloorview Kids Rehabilitation Hospital, March 21, 2013, Toronto, Ontario, “Inflammatory Brain Disease”.

40. Immunology graduate currimulum, University of Toronto, March 15 2013, Toronto, Ontario, “Recent advances in clinical immunology: Inflammatory brain diseases”. (Invited Speaker)

41. Acute Care Research Rounds, Department of Critical Care Medicine, The Hospital for Sick Children, February 10, 2013, Toronto, Ontario, “Diagnostic evaluation, treatment and outcome of CNS vasculitis”. (

42. Canadian Organization for Rare Disorders 5th Rare Disease Day Conference, February 27-28, 2013, Calgary, Alberta, “Panel: What are Rare Disease Research project opportunities?” (Panel Member)

43. Annual Neuroscience Day 2012, The Hospital for Sick Children, Nov 13, 2012, Childhood CNS Vasculitis

44. Regional Paediatric Rheumatology Semi-Annual Meeting, October 16, 2012Challenging Cases from Paediatric Rheumatology Ward”.

45. Grand Rounds, North York General Hospital, Toronto, Ontario, Sept 10, 2012, “Update JIA

46. Psychiatry Grand Rounds, The Hospital for Sick Children, May 03, 2012, Toronto, Ontario, “Medical Clearance”


47. Grand Rounds Pediatric Emergency Medicine, The Hospital for Sick Children, April 05, 2012, Toronto, Ontario, “Update on childhood arthritis”.

48. Research Rounds, Department of Radiology, The Hospital for Sick Children, November 14, 2011, Toronto, Ontario, “Observational Design”.

49. Clinical Epidemiology & Health Care Research Program (HAD5301H), Session 6, University of Toronto, July 22, 2011, Toronto, Ontario, “Measurement”.

50. Clinical Epidemiology & Health Care Research Program (HAD5301H), Session 4, University of Toronto, July 15, 2011, Toronto, Ontario, “Causation”.

51. Division of Rheumatology, Academic Half-Day, Toronto, Ontario, June 7, 2011, Toronto, Ontario, “Approach to Paper Writing”.

52. Introduction to Clinical Epidemiology (HAD 5301H), University of Toronto, March 2, 2011,Toronto, Ontario, “Non-Experimental Methods and Measurements”.

53. Lecture, Rheumatology Group Management Session, Mount Sinai Hospital, March 15, 2011 Toronto, Ontario, “Refractory Takayasu Arteritis in a Child”.

54. Acute Care and Resuscitation Course (ACRP) for Pediatric Residents, University of Toronto, March 1, 2011, Toronto, Ontario, “Pediatric Stroke – Case Based Scenarios”.

55. Acute Care Research Rounds, Department of Critical Care Medicine, The Hospital for Sick Children, February 10, 2011, Toronto, Ontario, “Diagnostic Evaluation, Treatment and Outcome of Childhood CNS Vasculitis”.

56. City-wide Rheumatology Rounds, ICC Rounds, The Hospital for Sick Children, February 8, 2011, Toronto, Ontario, “CNS Vasculitis”. (Invited Speaker) Teaching effectiveness score: 5 / 5

57. Recent Advances in Immunology Lecture, The Hospital for Sick Children, February 3, 2011, Toronto, Ontario, “Inflammatory Brain Diseases”.

58. Paediatric Rheumatology Academic Half-Day Rounds, The Hospital for Sick Children, February 2, 2011, Toronto, Ontario, “Qualitative Research”.

59. Nephrology Research Rounds, The Hospital for Sick Children, January 13, 2011, Toronto, Ontario, “Childhood CNS Vasculitis -The Endeavor of Studying a Rare Disease”.

60. Introduction to Research in Radiology Lecture, The Hospital for Sick Children, University of Toronto, October 25, 2010, Toronto, Ontario, “Cohort studies and Bias”.

61. Rheumatology Education Day for Patients and Families, The Hospital for Sick Children, October 16, 2010, Toronto, Ontario, “Systemic Lupus Erythematosus (SLE) in Children”.

62. Emergency Department Grand Rounds, The Hospital for Sick Children, September 3, 2009, Toronto, Ontario, “Joints in Motion: What’s New in Arthritis”. James C Fallis Teaching


Award 2010.

63. Hospital Grand Rounds, William Osler Health Centre-Brampton Civic Hospital, January 20, 2010, Brampton, Ontario, “CNS Vasculitis in Children”.

64. Grand Rounds, Alberta Children's Hospital, Calgary, AB, Jun 17, 2009. CNS Vasculitis in Children. (Invited Speaker)

65. Neuroimmunology Symposium, Alberta Children’s Hospital, Calgary, AB, Jun 16, 2009.

Childhood CNS Vasculitis. (Invited Speaker) 66. Neuroimmunology Symposium, Alberta Children’s Hospital, Calgary, AB, Jun 16, 2009.

Novel inflammatory brain diseases in children. (Invited Speaker)

67. Paediatric Educational Grand Rounds, Toronto East General Hospital, Jun 25, 2009, Toronto, Ontario, “Rapid Recognition of a Childhood Stroke and Initial Management Steps”.

68. Image Guided Therapy Rounds, Diagnostic Imaging Department, The Hospital for Sick Children, May 22, 2009, Toronto, Ontario, “SLE & Vasculitis”.

69. Image Guided Therapy Rounds, Diagnostic Imaging Department, The Hospital for Sick Children, Mar 6, 2009, Toronto, Ontario, “JIA & Joint Injections”.

70. Annual Paediatric Update Conference, Apr 30, 2008 - May 3, 2008, Toronto, Ontario, “Managing a CNS Emergency”.

71. National Rheumatology Curriculum. National Rheumatology Residents Weekend, Jan 25-27, 2008 Calgary. Childhood CNS Vasculitis. (Invited Speaker)

72. Mount Sinai Hospital Emergency Medical Grand Rounds, Jan 8, 2008, Toronto, Ontario, “An

Inflammatory Emergency of Childhood”.

73. Hospital Grand Rounds, Markham Stouffville Hospital, Sep 19, 2007, Markham, Ontario, “CNS Vasculitis in Children”.

74. Research Rounds, Research Institute CHES, The Hospital for Sick Children, May 7, 2007,

Toronto, Ontario, “Childhood CNS Vasculitis: A Multicenter Approach to Define Diagnostic and Therapeutic Standards and Determine Early Predictors of Adverse Outcome”.

75. Research Institute Crosstalk, The Hospital for Sick Children, Apr 2007, Toronto, Ontario,

“The Role of Endothelial Cells in Inflammatory Brain Diseases”.

76. Teaching Rounds Bloorview Kids Rehab, Jan 15, 2007, Toronto, Ontario, “CNS Vasculitis in Children”. (Invited Speaker)

77. Emergency Medical Grand Rounds, Mount Sinai Hospital, Jun 6, 2006, Toronto, Ontario,


“What's New in Kawasaki's Disease?”

78. North York General Hospital Emergency Medicine Update, Paediatric Emergency Sedation Evaluation, May 3, 2006, Toronto, Ontario, “Pediatric Sedation”.

79. Intracity Rheumatology Rounds, Rheumatic disease unit Toronto, The Hospital for Sick Children, Jan 29, 2002, Toronto, Ontario, “Castleman disease”.

KNOWLEDGE TRANSLATION

1. Leader: Classification criteria for cryopyrin associated periodic fever syndromes: an international interdisciplinary intiative, Istanbul, Turkey, April 2014 and Harvard medical school, Boston Nov 2014, publication submitted Arthritis Care and Research

2. Klassifikation der ZNS-Vaskulitiden. Interview for Gesellschaft fur Kinder – und Jugend

Rheumatologie (GKJR), Lecture, Munich, Germany, September 2, 2011 3. Family Health – Rare Diseases. Video on Global Toronto News.

http://www.globaltoronto.com/video/index.html?releasePID=E0Jn90Wem7oXhQLiWc2zrFmrQZ8BhOhl February 28, 2011.

4. Small Vessel Childhood Primary Angiitis of the CNS: First Steps Toward a Standardised

Treatment Regimen. Neil R. Friedman. Editorial in The Lancet Neurology. Nov 2010; 9(11) pp 1042-44.

5. Primary Central Nervous System Vasculitis: Is it a Single Disease? Gene G. Hunter,

Carlo Salvarani, Robert D. Brown Jr. Editorial in Annals of Neurology. 2010; 68(5) pp 573-574.

6. Early Recognition and Treatment Crucial in CNS Vasculitis. Susanne M. Benseler - Daily

News – An official publication of the American College of Rheumatology, Page 24, Thursday, November 11, 2010.

7. Hope for Kids with Dangerous Inflammatory Disease. Susanne M. Benseler. CTV News

Interview, Sunday, October 17, 2010.

8. Immunosuppressive Regimen Could Be Used To Treat a Serious Illness in Children. Susanne M. Benseler. The Lancet Neurology: Press Release, Monday, October 4, 2010.

JUDGING

1. HPME Student Applications Committee, University of Toronto, 2012

2. American College of Rheumatology Pediatric Rheumatology Symposium May 2011, Miami, Florida, 100 Abstracts for Clinical and Therapeutic Aspects – February, 2011.

http://www.globaltoronto.com/video/index.html?releasePID=E0Jn90Wem7oXhQLiWc2zrFmrQZ8BhOhl

http://www.globaltoronto.com/video/index.html?releasePID=E0Jn90Wem7oXhQLiWc2zrFmrQZ8BhOhl


3. Clinician-Scientist Training Program (CSTP), The Hospital for Sick Children, Toronto, Ontario, September, October, 2010.

4. SickKids Summer Research Program (SSuRE) Poster Judging, The Hospital for Sick Children,

Toronto, Ontario, July 22, 2010. 5. OGRYZLO Day Rheumatic Disease Unit, Toronto, Ontario, June 21, 2010. 6. Research Day Department of Paediatrics, Judging, The Hospital for Sick Children, Toronto,

Ontario, May 07, 2010. 7. University of Toronto Neuroscience Day Trainee Awards, University of Toronto, Toronto,

Ontario, April 14, 2010. 8. OGRYZLO Day, Rheumatic Disease Unit, Toronto, Ontario, June 23, 2009.

9. Research Day Department of Paediatrics, Judging, The Hospital for Sick Children, Toronto,

Ontario, May, 2009.

10. OGRYZLO Day, Rheumatic Disease Unit, Toronto, Ontario, June 24, 2008.

11. Research Day Department of Paediatrics, Judging, The Hospital for Sick Children, Toronto, Ontario, May, 2008.

12. OGRYZLO Day, Rheumatic Disease Unit, Toronto, Ontario, June 24, 2008.

RESEARCH ENDEAVORS 1. Childhood CNS vasculitis: Advancing Care, Education and Research of Childhood CNS

Vasculitis. 2. Research in rare disease in childhood: Building International Platforms to study

Inflammatory Brain Diseases and Vasculitis in children internationally. 3. Childhood systemic vasculitis: Advancing Care, Education and Research. 4. Understanding the biologic basis of childhood arthritis (UCAN). RESEARCH AND INVESTIGATION Research Funding/Peer Reviewed 2018 – 2022 Co-Principal Investigator and Co-Project Leaders: Benseler SM and Yeung RSM.

UCAN CURE: Precision decisions for childhood arthritis. Co-Investigators: Marshall D, Cafazzo J, Scherer S, Goldenberg A, Stinson J, Guidos C, Morris Q,


Brudno M, Ijzerman M, Fritzler M, Wulffraat N, Swart J, Vastert S, Twilt, M. Genome Canada and Ontario Genomics, Large-Scale Applied Research Project Competition, Genomics and Precision Health. $10,000,000 CAD

2017-2022 Co-Primary Investigator. Benseler SM, Understanding Childhood Arthritis

Network (UCAN): Canada - Netherlands. Funded by the Canadian Institute for Health Research (CIHR). $8,000,000 CAD

2017-2018 Co-Principle investigator. Benseler SM, Understanding the Biologic Basis of CO-

exsistent Childhood Arthritis & Uveitis through Animal Model Experimentation & Human Discovery. Funded by the Canadian Institute for Health Research (CIHR). $99,977 CAD

2017-2018 Co-investigators: Benseler SM. The Alberta precision health initiative for

arthritis and complex immune diseases. Funded by Alberta Innovates, APHI Development. $319,600 CAD

2015-2020 Co-PI. Benseler SM, efficacy, safety and tolerability of Tofacitinib for treatment

of polyarticular course juvenile idiopathic arthritis (JIA) in children and adolescent subjects. Sponsor: Pfizer $93,740 CAD

2015-2020 Co-PI. Benseler SM, A multicenter, open-label trial of intravenous Golimumab, a

human anti-TNF alpha antibody, in pediatric subjects with active polyarticular course juvenile idiopathic arthritis despite Methotrexate therapy.

Sponsor: Janssen Pharmaceutical Inc. $117, 440 CAD 2015-2018 Co-PI. Benseler SM, Long-term extension study to evaluate the safety and

efficacy of subcutaneous tocilizumab in patients with polyarticular-course and systemic juvenile idiopathic arthritis Sponsor: Hoffman- la Roche. $107, 211 CAD

2015-2016 Co-Applicant. Benseler S, Testing of System-Level Performance Measures for

Inflammatory Affairs. Funded by the Canadian Initiative for Outcomes in Rheumatology Care (CIORA). $110,000 CAD

2015-2017 Center-PI. Benseler S, A randomized, double-blind, placebo controlled study of

canakinumab in patients with Hereditary Periodic Fevers (TRAPS, HIDS, or crFMF), with subsequent randomized withdrawal/ dosing frequency reduction and open-label long term treatment epochs (since October/2015) – Sponsor: Novartis

2015-2017 Center-PI. Benseler S, A Multi-center, Randomized Parallel Group, Placebo-

Controlled Double-Blind Trial to Evaluate the Safety, Efficacy, and Pharmacokinetics of Belimumab, a Human Monoclonal Anti-BLyS Antibody, Plus Standard Therapy in Pediatric Patients with Systemic Lupus Erythematosus (SLE) (since October 2015) – Sponsor: GSK


2015-2017 Center-PI. Benseler S, A phase IIa, international, multi-center, open-label, uncontrolled study to evaluate the safety and pharmacokinetics of 4 x 375 mg/m2 intravenous rituximab in pediatric patients with severe granulomatosis with polyangiitis or microscopic polyangiitis. Sponsor: Hoffmann-La Roche. $62,000 (local budget). Center PI.

2015-2016 Co-Applicant. Benseler S, Improving the Care of Patients with Systemic Vasculitis

through the Development of Management Recommendations and Educaiton Maerials. Funded by the Canadian Initiative for Outcomes in Rheumatology Care (CIORA). $60,000 CAD.

2015-2016 Co-Applicant. Benseler S, Expression of arthritis. Funded by the Canadian Initiative for Outcomes in Rheumatology Care (CIORA). $60,000 CAD.

2014-2015 Co-Applicant. Guzman J, Loughin T, Berard R, Shiff NJ, Jurencak R, Benseler S, Tucker LB. Predicting disease course in children with Juvenile Idiopathic Arthritis. Funded by the Canadian Initiative for Outcomes in Rheumatology Care (CIORA). $65,053 CAD.

2013-2014 PI. Benseler SM, Fritzler, M, Dalmau, J, Fritzler, M, Hawkins, C, Goldbach-Mansky, R, Vanderkooi, O, Mineyko, O, Kirton. A “CSF antibodies in childhood CNS infection and inflammation, a Calgary Neuroinflammation (CAN) research team project” Derpartment of Pediatrics 2013 Innovation Awards $25,000 CAD

2013-2014 PI. Benseler SM, Twilt, M, Hawkins,C. Development of a uniform histology scoring systems for Small Vessel CNS Vasculitis in adulthood and childhood. Vasculitis foundation. $40,128.10 US

2013-2016 Co-PI. Benseler SM, A phase Ib, open-label, multicenter study to investigate the pharmacokinetics, pharmacodynamics, and safety of tocilizumab following subcutaneous administration to patients with polyarticular-course juvenile idiopathic arthritis Sponsor: Hoffman- la Roche. $56, 954 CAD

2013-2016 Co-PI. Benseler SM, A phase Ib, open-label, multicenter study to investigate the pharmacokinetics, pharmacodynamics, and safety of tocilizumab following subcutaneous administration to patients with polyarticular-course juvenile idiopathic arthritis Sponsor: Hoffman- la Roche. $52,192 CAD

2013-2016 Co-Applicant. Stinson, J, Benseler, S, Berard, R, Campillo, S, Dancey, P, Duffy, C, Feldman, B, Huber, A, Johnson, N, Luca, N, McGrath, P, Shiff, N, Spiegel, L, Tse, S, Tucker, L, Victor, C. An Internet-based Psycho-educational Game for Children with Juvenile Idiopathic Arthritis (JIA) and their Parents: A Randomized Controlled Trial, $692,988 CAD.

2012-2018 Co-PI. Benseler SM, A multicenter, open-label study to assess the pharmacokinetics, safety, and efficacy of certolizumab pegol in children and adolescents with moderately to severely active polyarticular-course juvenile idiopathic arthritis. Sponsor: UCB Biosciences $499, 301 CAD


2012-2017 Co-PI. Benseler SM. Chronic childhood vasculitis: Characterizing the individual rare diseases to improve patient outcome. Canadian Institutes of Health Research (CIHR). Collaborators: Foell Dr, Hancock R, Colin R. $2,500,000 CAD.

2012-2015 Co-PI. Benseler SM. An internet-based psycho-educational program for children

with juvenile idiopathic arthritis (JIA) and their parents: A randomized controlled trial. Canadian Institutes of Health Research (CIHR). Principal Investigator: Stinson J. Collaborators: Campillo S, Duffy C, Feldman B, Hetherington R, Huber A, Luca L, McGrath P, Palermo T, Spiegel L, Tse S, Tucker L, Victor C, Shiff N, Johnson N, Dancy P, Berard R. $614,303 CAD.

2012-2013 Co-PI. Benseler SM. towards developing MR imaging guidelines and outcome

measures in juvenile idiopathic arthritis: a special interest pediatric research group. Canadian Institutes of Health Research (CIHR). Principal Investigator: Doria A. Collaborators: Van Rossum M, Miller E, Rosenberg A, Roth J, Stinson J, Tse S, Yeung R. $24,954 CAD.

2012–2013 PI. Benseler SM. Diagnostic accuracy of peripheral quantitative computed tomography (pQCT) in pediatric osteoporosis. Canadian Institutes of Health Research (CIHR). Principal Investigators: Doria AS, Cheung A, Gordon C, Beyene J. Co-Investigators: Feldman B, Laxer R, Silverman E, Yeung R, Harvey E, Paresh R, Tomlinson C, Sochett E, Howard A, Sung L, Stinson J, Furlan A, Grynpas M, Gahunia H. $199,000 CAD.

2012-2013 Co-PI. Benseler SM. What matters the most for parents, patients and clinicians in predicting the course of juvenile idiopathic arthritis? CIORA Awareness/Advocacy/Education Grant. Principal Investigator: Guzman J, Berard R, Duffy C, Jurencak R, Oen K), Petty R, Shiff N, Tucker L. $54,366 CAD.

2012-2013 Co-PI. Benseler SM. Biological markers of pediatric cerebrovascular inflammation and stroke. Alberta’s Children’s Hospital Research Institute (ACHRI) . Principal Investigator: Kirton A. Collaborators: Mineyko A DeVeber G, Narendran A, Schmeling H. $36,095 CAD.

2012 Co-PI. Benseler SM. Validation of standardized universal pain evaluations for rheumatology providers for children and youth (SUPER-KIDZ). Canadian Arthritis Network (CAN), Discovery Advancement Program (DAP). Principal Investigator: Stinson J. Collaborators: Luca N, Beaton D, Bayoumi A, Feldman B, Campillo S, Leblanc C. $50,000 CAN.

2011-2012 Co-PI. Benseler SM. Towards a wireless pain diary support system for youth with

juvenile idiopathic arthritis. Canadian Institutes of Health Research (CIHR). Principal Investigator: Stinson J. Collaborators: Feldman B, Laxer R, Luca N, Spiegel L. $15,000 CAD.

2011-2012 Co-PI. Benseler SM. Administrative data for rheumatic disease research and surveillance. Canadian Arthritis Network (CAN). Prinicipal Investigator: Bernatsky


S, Lacaille D $57,205 CAN

2011-2012 Co-PI. Benseler SM.The study of toddlers with autism and regression (STAR) protocol: Biomarkers of inflammation and immune activation in ASD. Health Resources and Services Administration (HRSA award UA3MC11054), Autism Intervention Research Network for Physical Disorders (AIR-P). Principal Investigator: Loh A. Collaborators: James J, Logan W, Brian J, Anagnostou E, Pardo C, Schulz A,Feigenbaum A, Burns K, Banwell B, Spence S, Bauman M, Zimmerman A, Bevesdorf D, Sohl K . $213,854 CAD.

2010-2015 Co-PI. Benseler SM. CIHR team in linking exercise, physical activity and pathophysiology in childhood arthritis (LEAP): A Canadian Collaborative Team. Canadian Institutes of Health Research (CIHR). Principal Investigator: Duffy C. Collaborators: Tucker LB, Baxter-Jones AD, Houghton K, McKay H, Oen K, Rosenberg A , Roth J, Ward LM , Yeung R, Feldman D, Guzman J, Stringer E. $2,500,000 CAD.

2010-2012 Co-PI. Benseler SM. Pharmacogenetics of juvenile idiopathic arthritis – A genome wide association study on the efficacy and toxicity of methotrexate therapy. Networks of Centres of Excellence (NCE) Canadian Arthritis Network (CAN) Strategic Research Program. Principal Investigator: Schmeling H. Collaborators: Feldman, B, Siminovitch, K . $240,000 CAD.

2010-2013 Co-PI. Benseler SM. Tocilizumab in polyarticular JIA. Silverman E, Schneider R. Roche Pharmaceuticals. $195,000 CAD.

2010 PI. Benseler SM. SickKids childhood CNS vasculitis platform: Promoting

excellence in clinical care, empowering and educating patients and health care providers, and enhancing research internationally. Paediatric Consultants Partnership’s Grants for Creative Professional Activity Grant. $10,000 CAN.

2009-2011 Co-PI. Benseler SM. Development of an internet-based psycho-educational program for school-age children with arthritis and their parents: Phase 1. Networks of Centres of Excellence (NCE), Canadian Arthritis Network (CAN) Strategic Research Program. Principal Investigator: Stinson J. Collaborators: Feldman B, Duffy C, Huber A, Tucker L, McGrath P, Tse S, Hetherington R, Spiegel L, Campillo S. $120,000 CAD)

2009-2010 Co-PI. Benseler SM. A Registry for Children with Vasculitis: e-entry (ARChiVe).

Vasculitis Foundation (USA).Prinicipal Investigator: Cabral D. $50,000 USD. 2008-2012 Co-PI. Benseler SM. Immune system involvement in skeletal muscle adaptation

to contractile activity during human growth. Natural Sciences & Engineering Research Council of Canada – Discovery Grant. Principal Investigator: Timmons B. $125,000 CAN.

2008-2012 Co-PI. Benseler SM. A 12-week randomized double blind, placebo-controlled,


parallel group, 2-arm study to evaluate the efficacy and safety of tocilizumab in patients with active systemic juvenile idiopathic arthritis (sJIA); with a 92-week single arm open-label extension to examine the long term use of tocilizumab. Prinicipal Investigators: Schneider R, Silverman E. Collaborator: Hoffmann-La Roche. $552,992 CAN.

2007-2009 Co-PI. Benseler SM. Canadian Arthritis Network Partnership Initiative (CANPI).

Networks of Centres of Excellence (NCE). Principal Investigator: Yeung R. $590,000 CAN.

2006-2008 PI. Benseler SM. CNS Vasculitis of Childhood: Creation, implementation and

evaluation of the first North American Childhood CNS Vasculitis Care & Research Clinic. Paediatrics Consultants Partnership’s Grants for Creative Professional Activity Grant. Collaborators:Feldman B, Banwell B, Westmacott R, Armstrong D. $10,000 CAD.

2006 PI. Benseler SM. Childhood CNS Vasculitis Program Development. Collaborators:

Feldman B. The Hospital for Sick Children. $10,000 CAN.

HONOURS AND AWARDS RECEIVED 1. Paul-Rosen-Award 2003, Canadian Rheumatology Association, Project: Primary CNS

vasculitis in children. 2003

2. Orgyzlo Fellowship Award 2003, Rheumatic Disease Unit Toronto, Project: Primary CNS vasculitis in children. 2003

3. Orgyzlo Poster Award 2003, Rheumatic Disease Unit Toronto, Project: Infections and

Kawasaki disease. 2003

4. Earl J. Brewer Award 2003, Pediatric Fellowship Award, American Academy of Rheumatology (ACR) Project: Primary CNS vasculitis: Predictors of disease progression. 2003

5. Poster Award, The Hospital for Sick Children Research Competition 2003, 2nd prize,

Project: Infections and Kawasaki disease. 2003

6. Geoff-Carr-Fellowship Award 2003/2004, Ontario Lupus Association, Project: Long-term outcome of children with SLE. 2003

7. Creative Professional Activity Grant Award, Pediatric Consultants, The Hospital for Sick

Children. 2005

8. Clinical Recognition Award, Department of Paediatric Emergency Medicine, The Hospital for Sick Children. 2005


9. Clinical Recognition Award, Runner-up, Department of Paediatric Emergency Medicine,

The Hospital for Sick Children. 2006


11. Professional Association of Interns and Residents of Ontario (PAIRO), Excellence in

Clinical Teaching Award, Nomination. 2008


13. Subspecialty Teaching Award for Excellence in Clinical Teaching, Department of

Paediatrics, University of Toronto, The Hospital for Sick Children. 2009

14. Citizenship Award, Medical Staff Association (MSA), Runner-Up, The Hospital for Sick Children. 2009

15. James C. Fallis Teaching Award, Division of Paediatric Emergency Medicine, The Hospital

for Sick Children. 2009-2010 16. Clinical Recognition Award – Staff Physician Part-time, Division of Paediatric Emergency

Medicine, The Hospital for Sick Children. 2009-2010

17. Citizenship Award, Medical Staff Association (MSA), Nomination, The Hospital for Sick Children. 2010

18. Junior Researcher Award, runner up, Department of Pediatrics, The Hospital for Sick Children. 2011

19. Citizenship Award, Medical Staff Association (MSA), Nomination, The Hospital for Sick Children. 2012

20. Future Leader in Rheumatology Award 2013, Canadian Rheumatology Association

21. Young Investigator Award 2013, Canadian Rheumatology Association CRA

VIDEOS/MOVIES PRODUCED 1. Corticosteroids. Benseler SM. National Immunology Curriculum, Immunologic Basics of

Rheumatic Diseases, The Hospital for Sick Children, Toronto, Ontario. 2010

2. T -Cells and Vasculitis. Benseler SM. National Immunology Curriculum, Immunologic Basics of Rheumatic Diseases, The Hospital for Sick Children, Toronto, Ontario. 2010


3. DMARDs-1. Benseler SM. National Immunology Curriculum, Immunologic Basics of

Rheumatic Diseases, The Hospital for Sick Children, Toronto, Ontario. 2010 COMMITTEE INVOLVEMENT INTERNATIONAL 1. AEA (Autoimmune Encephalitis Alliance) Medical Advisory Committee, October 2017 2. Childhood Arthritis and Rheumatism Research Alliance (CARRA), Vasculitis Working Group,

2005 – Present

3. UCAN database committee, Chair, 2009 – Present

4. European League Against Rheumatism (EULAR) Pediatric Standing Committee, 2004 – 2008

5. Pediatric Rheumatology European Society, PRES 2004-2005, Secretary Lupus Working

Group, 2004 – 2008

6. Arbeitsgemeinschaft Kinder- und Jugendrheumatology, Research Coordinator German Pediatric Rheumatology Working Group 2004 - 2009

NATIONAL 1. Chair Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) since 2017

2. Member Working Group, Goverence Committee, Alberta Born and Joint Insittuite,

December, 2015.

3. Vice Chair Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) 2015-2017

4. Vice Chair of the Canadian Rheumatology Association Pediatric Committee, 2013-2014

5. Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI), Co-Chair, Scientific Training Committee 2011 – 2014

6. Canadian Rheumatology Association (CRA) Scientific Committee, 2010- 2013 7. The Arthritis Society (TAS), Ontario, Member, Board of Directors, 2010 – 2013

8. Ontario Rheumatology Association (ORA) Executive Board Member, 2010 – 2013


9. Ontario Rheumatology Association (ORA) Scientific Committee, 2010 – 2013 HOSPITAL COMMITTEE 1. Denfence Board Evaluator, Karim Narsingani Thesis, University of Calgary, June 2017

2. Goverence Working Group Meeting, combined group of University of Calgary and Alberta

Children Hospital, December 2014

3. Institute of Health Policy Management and Evaluation, University of Toronto, iHPME Admissions committee, 2010-present

4. Division of Rheumatology Research Council, Co-Chair The Hospital for Sick Children, Toronto, Ontario Jul 2008 – Present

5. Division of Rheumatology Clinical Council, The Hospital for Sick Children, Toronto, Ontario, Chair Jul 2007 - Jun 2008, Member 2008 – Present

6. Division of Rheumatology Scientific Review Rounds, Chair, The Hospital for Sick Children, Toronto, Ontario, 2009 – Present

7. Division of Rheumatology Web Team, The Hospital for Sick Children, Toronto, Ontario, Chair, Jul 2007 – Present

8. Division of Rheumatology Scholarly Oversight Committee, Co-Chair, The Hospital for Sick

Children, Toronto, Ontario Jul 2009 – Present

9. Ambulatory Referral Management System (ARMS) super user committee, The Hospital for Sick Children, 2008 – 2010

10. HLH Working Group, The Hospital for Sick Children, Toronto, Ontario, Jan 2006 – Present

11. Paediatric Emergency Research Council, The Hospital for Sick Children, Toronto, Canada, Vice-Chair, Dec 2005 - Dec 2007

12. Flu Pandemic Education Committee, The Hospital for Sick Children, Toronto, Canada, 2005 – 2009

CURRENT MEDICAL/SCIENTIFIC ORGANIZATIONS-MEMBERSHIPS

1. American College of Rheumatology (ACR)

2. Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI)

3. Canadian Rheumatology Association (CRA)


4. Childhood Arthritis and Rheumatology Research Alliance (CARRA)

5. Pediatric Rheumatology European Society (PRES)

6. German Society for Pediatric Rheumatology (DGKJR)

7. Medical Staff Association (MSA)

8. Ontario Rheumatology Association (ORA)

9. Paediatric Rheumatology Collaborative Study Group (PRCSG)

10. Alberta, Ontario and Canadian Medical Association (AMA, CMA and OMA)

11. Canadian Medical Protective Association Canadian (CMPA)

12. Toronto Musculoskeletal Centre (TMC)

ADVOCACY 1. The Arthritis Society (TAS), Ontario, Member, Board of Directors, 2010 – 2013

2. Ontario Rheumatology Association (ORA) Executive Board Member and Scientific

Committee Member, 2010 – 2013 3. Vasculitis Foundation, Medical Advisor, 2009 – Present

CURRICULUM VITAE Name: Susanne Maria Benseler · CURRICULUM VITAE Name: ... Dolezalova P, Durrant...

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