C.S. Mott’s Patient & Family Centered Care Program “Changing a Culture One Story at a Time”
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Transcript of C.S. Mott’s Patient & Family Centered Care Program “Changing a Culture One Story at a Time”
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C.S. Mott’s C.S. Mott’s Patient & Family Centered Care Patient & Family Centered Care
ProgramProgram
““Changing a Culture Changing a Culture One Story at a Time”One Story at a Time”
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….stories lead to wisdom.”
“Facts bring us to knowledge but….
~Rachel Naomi Remen, Author Kitchen Table Wisdom
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What is PFCC?What is PFCC?
Dignity and RespectDignity and Respect Information SharingInformation Sharing ParticipationParticipation CollaborationCollaboration
Source: IFCCSource: IFCC
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““Being a sick kid sucks. Having a Being a sick kid sucks. Having a sick child is about the most sick child is about the most
frightening thing that can happen. frightening thing that can happen. Never lose your compassion or Never lose your compassion or
empathy. It may be routine to you, empathy. It may be routine to you, but not to the patient.”but not to the patient.”
~ Alicia, Mom of Ben~ Alicia, Mom of Ben
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2007 2008 2009 Surveys/Materials Review 9 41 32 In-services/meetings 32 51 40Focus Groups 6 4 2Unit committees added 4 6 1Hospital committees adding families - 10 9Lean committees adding families - - 7External conference presentations - 2 4
PFCC Program Participation and Growth
Volunteer Family Advisors: >170 on-line membersVolunteer Family Advisors: >170 on-line members 50 on-site members50 on-site members
Staff Participants: >100Staff Participants: >100
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Patient & Family Advisory CouncilPatient & Family Advisory CouncilInaugural Meeting - January, 2008Inaugural Meeting - January, 2008Over 4000 hours of effort in Term 1: 2008-2009!
MissionMissionEmpowermentEmpowermentEngagementEngagementFlexibilityFlexibilityFulfillmentFulfillmentInclusivenessInclusivenessInformedInformedPartnershipPartnershipVoiceVoice
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Phases of PFCC Program Roll-outPhases of PFCC Program Roll-out
Raise AwarenessRaise Awareness Educate Staff and FamiliesEducate Staff and Families Hold Staff AccountableHold Staff Accountable
Continuous improvement of care and Continuous improvement of care and processes.processes.
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Phase 1: AwarenessPhase 1: Awareness