CRISP Seminar: Towards Inclusive Political Participation in ......CRISP Seminar: Towards Inclusive...
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CRISP Seminar:
Towards Inclusive Political Participation in Mental Health
Helsinki, August 21st 2018
Silvia Krumm
Ulm University, Department of Psychiatry and Psychotherapy II,
Germany
How can MHSU influence parenting/family policies?
Stigma Low
SES
Few social networks
Single
parent
families
Marital conflicts, separation
Centrality of motherhood
Fears
Dilemmata Shame
Guilt
Stigmatization
Parenting values
Eugenics
Difficulties to access suitable services for affected parents
Parental stress
Community-Based Rehabilitation:
„Political participation“ WHO 2010
• Interrelationships between people – between men and
women, parents and children, people with and without
disabilities – and the operation of power at every
level of human interaction.
• Broad range of activities through which people
develop and express their opinions on the world and
how it is governed, and try to take part in and shape
the decisions that affect their lives.
• …from developing thinking about disability or other
social issues at the individual or family level, joining
disabled people's organizations or other groups and
organizations, and campaigning at the local, regional
or national level, to the process of formal politics,
such as voting, joining a political party, or standing for
elections.
MH and parenting – sociocultural/historical context
bis 1945 1960 1970 1980 1990 2000 2010 2020
„Total institutions“ hospitalization
Psychiatric reforms Community services
Family planning?
Increasing fertility rates?
Prevention of parenthood Children of mothers with MH
problems
Mothers, fathers?
Focus on Individual ressources and social
context
Dorothea Buck * 5.4.1917
Writer, Sculptor 1936: Schizophrenia Coerced sterilization at age 19, without knowlede
• From 1960s stage plays about the murder of hundreds of thousand mentally ill people and disabled persons during the Nazi era
• Numerous books, articles, talks, interviews
• 1989 Psychosis Seminar („Trialogue“)
• 1992: Bundesverband Psychiatrie-Erfahrener • 2007: „Coercive Treatment in Psychiatry: A
Comprehensive Review“ at the Congress of the World Psychiatric Association (Dresden, Germany)
Dorothea Buck * 5.4.1917
• Part of disabled persons‘ movement / 1977
• Exclusively for persons with disabilities
scandalization of sterilization practises against genetic counseling practises
„Krüppelbewegung“ („Cripple movement“)
Psychiatry: Why was the girl sterilized? Many unanswered questions in the case of Elvia J. Die Zeit. Von Claus Leggewie 26. März 1982
„Secret actions“
„Krüppelbewegung“ („Cripple movement“)
MH and parenting - sociocultural/historical context
bis 1945 1960 1970 1980 1990 2000 2010 2018
„Total institutions“ hospitalization
Psychiatric reforms Community services
Children of mothers with MH problems
Family planning?
Increasing fertility rates?
Prevention of parenthood
Mothers, fathers?
Focus on Individual ressources and social
context
Netz-und-Boden.de
Initiative for children of
mentally ill parents
lobbying
providing materials networking training
mentoring projects
Katja Beeck Starting in 1999 „Mit Steinen, die dir in den Weg gelegt werden, kannst du auch etwas Schönes bauen"
Netz-und-Boden.de
bis 1945 1960 1970 1980 1990 2000 2010 2020
„Total institutions“ hospitalization
Focus on Individual ressources and social
context
Psychiatric reforms Community services
Children of mothers with MH problems
Family planning?
Mothers (fathers?) Increasing fertility rates?
Prevention of parenthood
MH and parenting - sociocultural/historical context
‘Perfect parent'
It can be easy to blame any difficulties you have as a parent on your mental health
problems, or try to over-compensate by becoming a ‘perfect parent’.
However, it’s important to remember that all parents have difficult times and there
is no such thing as being perfect.
Try not to put too much pressure on yourself or give yourself too much of a hard
time. Remember that you have general skills as a parent – regardless of any mental
health issues – that will remain useful.
https://youtu.be/WHpHP4HFRT4
Member of EUFAMI -
family self-help
„Bundesteilhabegesetz“ 2017 (Federal law on social/political participation)
UN Convention on the rights of persons with disabilities
Welfare Reform Act
Support for parents with disabilities („Elternassistenz“)
Working group; participation of
different consumer organizations:
"Nothing about us without us!”
Juli 2014 - April 2015 • 9 meetings on
reform aims and issues
! Focus on physical disabilities / specific needs re mental health problems?
Maybery & Reupert 2009
Peer support
for parents
Lloyd-Evans et al. (2014); Davidson et al. (2012), Pitt et al. (2013); Chinman et al. (2014); Miyamoto & Sono (2012); Castelein et al. (2008), Walker & Bryant 2013, Repper & Carter 2011
Service user Peer provider Services
• Similar outcomes
• Hope, recovery,
empowerment
• Re-Admissions
• Social network
and social support
• Symptoms
• Functioning
• Self-esteem
• Social networks
• MHP attitudes
• Recovery
focuses changes
• Normalizing
• De-
Stigmatization
Peer support
Develop Peer Support Principles for the Perinatal Mental Health sector
• Co-design is defined as a method where decision making is shared equally throughout
the process, everyone taking part (people working in the sector and people with lived experience) have an equal level of power within the process. Using co-design to create the principles means people with the relevant skills and experience can come together to create a tangible outcome that everyone feels is relevant to their work.
• By taking part in this event you will:
Help us articulate values that represent people’s experiences of peer support Influence the perception of peer support for maternal mental health Co-design bespoke principles of maternal mental health peer support
• Who should attend?
People working in perinatal services • People offering Peer Support • People with lived experience of mental health problems pre / postnatally
Sharing own stories and experiences: Raising (media) awareness for sterilization, situation and needs of children and parents
Building (self-help) networks: influencing policies and laws for victims of NS regime, parents with disabilities
Providing and developing peer support for mothers: Changing services towards family focused practises
Thank you.
Dr. phil. Silvia Krumm MAsoz Clinic for Psychiatry and Psychotherapy II at Universität Ulm Bezirkskrankenhaus Günzburg Ludwig-Heilmeyer-Str. 2 89312 Günzburg, Germany [email protected] http://www.uniklinik-ulm.de/psychiatrieII/forschung