Blac k His tory and Health c are Sum m it Marc h 2 8th , 2 014

K. A l len G reiner, M D, M PH

D e p a r t m e n t o f F a m i l y M e d i c i n e

U n i v e r s i t y o f K a n s a s M e d i c a l C e n t e r , K a n s a s C i t y

Community-Based Research Partnership Building as an

“Infectious” Model

Research and Partnerships

Research for “change” Partnerships can work on health determinants Partnerships for health can be difficult Health and Medicine are hierarchical Health problems/disparities are multifactorial and multi-level Social, cultural and behavioral determinants are often

ignored!!!! Improving health takes time and commitment

But when partnerships reach tipping points….. Many may be “infected” with a new energy, and Health improvement can happen

Community-Based Participatory Research

The goal of CBPR is to increase knowledge and understanding of a given phenomenon and integrate the knowledge gained with interventions and policy and social change to improve the health and quality of life of community members

In CBRP, research is not an end to itself but rather a means to empower communities through the participatory research process and to bring positive social change through mobilizing community-led evidence-based action.

With CBPR, the “idea” for what to study can come directly from the community

Israel et al. 2005

CBPR - Partnership

Shared decision-making Shared credit and authority Trust time Investment commitment shared experience

Shared vision Spreading the infection” Empowering continued work through skills and

infrastructure

Work with Community = Empowerment

The Jaydoc Free Clinic, “Partnering for Health” annually with HHN Wyandotte Safety-net Clinic Coalition, Back to School Fair CAICH, Juntos, U54, Bulldoc, Faithworks, Chautari, SPARK clinics

‘Maybe we got too focused on NIH grants! (the Dean didn’t care about partnership, so we built partnerships into the grants…)”

“When it comes to community partners; ‘do something’, do 'stuff' and don’t say ‘no’ or ‘that’s not what we do’”

“Be positive, try and help people do what they want to do, and write grants”

“Be an ‘interpreter’ or ‘translator’ for community partners and for ‘reductionist’ scientists”

“Think like a ‘multi-level relativist’” “Do stuff, build tailored interventions, collect & analyze

data, disseminate results, advocate for policy change, write more grants, talk to the community again and see what they need, then start over”

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BullDoc Wyandotte High School

School Based Health Center

A Better KCK, Inc (Pastor Golden Davis) Wyandotte High School (Principal Mary Stewart) KUMC Family Medicine USD 500 Wyandotte County Public Health Department Communities Creating Opportunities

Community Initiated!

Project Strengths

Community support Faith-based entities Parental

USD 500 Advocacy Principals Board of Education

Recent Growth: (we’re writing less, we need to do more research!)

USD 500 Grant To State Dept of Education Funds our time to work on elementary clinics and outreach

Silver City Elementary Launched 4 hours a week in December $78,000 to us so far Another grant pending

3/27/2014

14

Summary - Conclusions

Health in the community is multi-level, it’s complex, partnership work takes up time

Help others learn to say “yes” – or at least say “how [can I help]?”

Health improvement takes a “service first” orientation, but it’s empowerment and infrastructure that really matter!