Combating Autism Act Initiative Building Partnerships for Effective Change National Early Childhood...
26
Combating Autism Act Initiative Building Partnerships for Effective Change National Early Childhood Meeting December 9, 2009 Bonnie Strickland, Ph.D. U.S. Department of Health and Human Services Health Resources and Services Administration Maternal and Child Health Bureau
-
Upload
chester-taylor -
Category
Documents
-
view
215 -
download
0
Transcript of Combating Autism Act Initiative Building Partnerships for Effective Change National Early Childhood...
Combating Autism Act Initiative
Building Partnerships for Effective Change
National Early Childhood MeetingDecember 9, 2009
Bonnie Strickland, Ph.D.U.S. Department of Health and Human ServicesHealth Resources and Services Administration
Maternal and Child Health Bureau
Combating Autism Act History
S. 843 introduced April 19, 2005 by Sens. Santorum (R-PA) and Dodd (D-CT)
H.R. 2421 introduced in House by Mary Bono (R-CA) May 18, 2005
Passed Senate Aug. 3; then again Dec. 7, 2006 Passed House Dec. 6, 2006 Signed into law PL 109-416 Dec. 19, 2006 Amends PHS Act to “combat autism through
research, screening, intervention & education”
Combating Autism Act of 2006
The Combating Autism Act of 2006 authorizes programs to combat autism through research, screening, intervention and education.
Combating Autism Act Initiative
The goal of the Combating Autism Act Initiative (CAAI) is to enable all infants, children, and adolescents who have, or are at risk for developing, autism spectrum disorders (ASD) and other developmental disabilities to reach their full potential.
Combating Autism Act Initiative
CAAI will achieve this goal by developing a system of services that includes screening children early for possible ASD and other DD; conducting early, interdisciplinary, evaluations to confirm or rule out ASD and other DD; and, if a diagnosis is confirmed, providing evidence-based, early interventions.
Core Systems Outcomes
Facilitate the development of systems of services through:
1. Partnerships with families and consumers,
2. Access to care through the medical home,
3. Adequate financing,
4. Early and continuous screening,
5. Organization of services for easy use,
6. Transition to adult health care, work, and independence.
Combating Autism Act Initiative
$114.5 million for NIH research into causes, diagnosis, early detection, intervention and treatment
$16.5 million for CDC’s Disabilities Surveillance and Research Program
$37 million for HRSA to increase awareness, promote evidence based interventions, reduce barriers to screening & diagnosis, and train professionals to diagnose and provide evidence based interventions
Combating Autism Act Initiative
Under this authority, HRSA/MCHB has developed the Combating Autism Act Initiative (CAAI), a $37 million initiative to address ASD and other developmental disabilities by:
Increasing awareness; Reducing barriers to screening and diagnosis; Supporting research on evidence-based interventions for
children and adolescents with ASD or other developmental disabilities;
Promoting evidence-based guideline development for interventions; and
Training professionals to utilize valid screening tools to diagnose and to provide evidence base interventions.
Combating Autism Act Initiative
Funding Summary:$34 Million Available for Project Funding________________________________________$20 Million LEND/Developmental Behavioral
Pediatrics (DBP) Training $ 6 Million New LEND and LEND Expansions$ 6 Million Autism Research Networks$ 2+Million Info/Education/Tool Dissemination (State Demonstration, Evaluation)
Combating Autism Act Initiative
Under the CAAI, the Maternal and Child Health Bureau is initiating programs in four areas:
Combating Autism Training Programs; Autism Intervention Research Network Program; Combating Autism State Demonstration and Policy
Programs; and Combating Autism National Evaluation.
Combating Autism Training Program
Expansions of 18 existing Leadership Education in Neurodevelopmental Disabilities (LEND) training programs;
Four new LEND programs; Expansions to Developmental Behavioral Pediatrics
training programs; and A National Combating Autism Interdisciplinary
Training Resource Center cooperative agreement.
Combating Autism Training Programs
Leadership Education in Neurodevelopmental & Related Disorders Training Program (*=new LEND)
Organization City State Amount
University of Alabama at Birmingham Birmingham AL $200,000
University of Arkansas for Medical Sciences* Little Rock AR $550,000
Children’s Hospital of Los Angeles-School of Physical Therapy Los Angeles CA $200,000
University of Colorado Denver* Aurora CO $550,000
University of Connecticut Health Center* Farmington CT $550,000
Children’s Research Institute Washington DC $200,000
University of Illinois at Chicago* Chicago IL $549,999
Indiana University, School of Medicine Indianapolis IN $200,000
University of Kansas Medical Center Research Institute Kansas City KS $195,155
Children’s Hospital Boston MA $200,000
Combating Autism Training Programs
University of Nebraska Omaha NE $200,000
Albert Einstein College of Medicine Hanover NH $200,000
Albert Einstein College of Medicine Bronx NY $200,000
University of Rochester Rochester NY $200,000
University of North Carolina at Chapel Hill Chapel Hill NC $200,000
The Children’s Hospital of Philadelphia Philadelphia PA $200,000
University of Tennessee at Knoxville Memphis TN $200,000
Vanderbilt University Medical Center Nashville TN $200,000
University of Utah Salt Lake City UT $200,000
University of Vermont Burlington VT $200,000
University of Washington Seattle WA $200,000
West Virginia University Morgantown WV $199,997
TOTAL: $5,795,151
Combating Autism Developmental Behavioral Pediatrics Training Grants
Organization City State Amount
Albert Einstein College of Medicine New York NY $192,467
Leland Stanford Junior University* Palo Alto CA $142,467
Boston University Boston MA $192,467
Children’s Hospital Boston Boston MA $192,467
Case Western Reserve University Cleveland OH $192,467
Rhode Island Hospital* Providence RI $142,467
University of Arkansas for Medical Sciences* Little Rock AR $111,143
University of Oklahoma Health Sciences Center* Oklahoma City OK $142,467
University of Pennsylvania School of Medicine Philadelphia PA $221,943
Yale University New Haven CT $192,467
TOTAL: $1,722,822
Combating Autism Training ProgramsThe Association of University Centers on Disabilities
(AUCD) in Silver Spring, Md., will receive a grant for the National Interdisciplinary Training Resource Center. Through this grant AUCD will:
provide technical assistance; build and sustain partnerships with service systems
already serving children with ASD and other DD; translate research into evidence-based practice; and utilize existing and develop new data systems to capture
and report project outcomes.
Autism Intervention Research (AIR) Networks Program
The purpose of the AIR Networks is to establish and maintain a network infrastructure, designed to be a platform from which to conduct research on evidence based practice for interventions to improve the health of children and adolescents with ASD and other DD.
Autism Intervention Research Networks Program
The AIR Networks will:
Conduct research on evidence based practices; Develop evidenced based guidelines and validate
tools for interventions to improve health; and Disseminate information on research, guidelines, and
tools to health professionals and the public, especially families impacted by ASD and other DD.
Autism Intervention Research Networks Program
The general Hospital Corporation of Boston will receive an award of $4 million to conduct research on interventions to improve the physical health and well-being of children and adolescents with ASD and other developmental disabilities.
The Regents of the University of California at Los Angeles will receive $2 million to conduct research on the behavioral, mental, social, and/or cognitive health and well-being of children and adolescents with ASD and other developmental disabilities.
Combating Autism State Demonstration and Policy Programs
State Autism Demonstration grants will implement State autism plans and develop models for how to develop systems of services for children with ASD and other developmental disabilities.
A State Public Health Coordinating Center will coordinate with the State Autism Demonstration grants and will develop and implement a strategy for defining, supporting, and monitoring the role of State public health agencies in assuring that children and youth with ASD receive early and appropriate identification, diagnosis, and intervention.
Combating Autism State Demonstration and Policy Programs
State Implementation Grants for Improving Services for Children and Youth with ASD
Organization City State Amount
Alaska Department of Health and Social Services Anchorage AK $300,000
The Hope School Springfield IL $300,000
The Curators of the University of Missouri Columbia MO $397,957
Utah Department of Health Salt Lake City UT $300,000
Washington Department of Health Olympia WA $300,000
Wisconsin Department of Health and Family Servs. Madison WI $300,000
TOTAL: $1,797,957
Combating Autism State Demonstration and Policy Programs
The State Association of Maternal and Child Health Programs (AMCHP) will receive a $250,000 award to develop the State Public Health Coordinating Center for Autism.
Combating Autism National Evaluation
Information from this evaluation study will contribute to the HHS Secretary’s Report to Congress on progress related to ASD and other developmental disabilities as required by the “Combating Autism Act of 2006.”
Partnerships
A working group has been established with CDC to look at areas of collaboration and cooperation between HRSA and CDC on autism related activities, some examples are:
Collaborate on Act Early Regional Summits; Joint site visits for States with HRSA/CDC grants; Investigate using HRSA State infrastructure to drill
down to the State and local levels for public information campaigns;
Partnerships (cont’d) Work together to improve knowledge of physician-
in-training and other health care provider knowledge of child development and early warning signs of autism through work with Developmental-Behavioral Fellowship grantees;
Work together on evaluation components for both agency’s activities; and
Create a map of overlap for activities related to autism activities for both agencies.
Combating Autism Act Initiative
Bonnie Strickland, Ph.D.Director, Division of Services for Children with
Special Health Care NeedsMaternal and Child Health BureauHealth Resources and Services Administration5600 Fishers Lane, Room 18-31Rockville, MD 20857Telephone: 301-443-9331
Email: [email protected]
