Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National...

11
Centre for Genetics Education NSW Health Australia Kate Dunlop: Director A Needs-Based Approach to genomics education

Transcript of Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National...

Page 1: Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program

CentreforGeneticsEducationNSWHealthAustralia

KateDunlop:Director

ANeeds-BasedApproachtogenomicseducation

Page 2: Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program

TheCentreforGeneticsEducationNSWHealth:

• astate-widegovernmenteducationprogramoftheNSWGeneticsService• providesgeneticinformationandeducationtoawiderangeofaudiences• currentfocusistoassistnon-geneticshealthprofessionalswiththeskillsandknowledgetomanagetheimpactofgeneticandgenomictechnologiesontheirpractice.

www.genetics.edu.au

Page 3: Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program
Page 4: Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program

TheAustralianContext

• Mixofpublic(Commonwealthandthestates)andprivate• CommonwealthfundsMedicare(GPs),nationalscreeningprograms• Statesresponsibleforfundinghospitals• GeneticservicesrelativelyconsistentacrossAustralia• Stateshavedifferentprioritieseg education• NationalProfessionalCollegesandAssociations• Challenge:statevnationalorganisations/funding/approaches• Goodnews:DevelopmentofaNationalGenomicStrategyFrameworkjustcommenced

Page 5: Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program

Centre’sStrategyforNSW

• Programgoals:AssisthealthprofessionalsmanagetheimpactofgenomicsontheirclinicalpracticethroughContinuingProfessionalDevelopment(CPD)andpointofcaretools• Needsbasedapproach• Identifygaps/needs(2016)• Developresourcestoprovideafoundationforfurthereducationalstrategies(2017)• Implementingprograms2018

• Genomicexpertise:NSWClinicalGeneticsService,Garvan InstituteofMedicalResearch,AustralianGenomicHealthAlliance(AGHA)Program4

Page 6: Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program

Needsofmedicalspecialistsorderinggenomictesting

• PartnershipwiththeGarvan InstituteofMedicalresearch• Qualitativesemistructuredinterviewsearlyadopters• ClinicalGeneticists(15),MedicalSpecialistorderingtesting(10)• Unanimousagreementforneedforeducation• Occurthroughanumberofavenues• Needfordifferentmodelsofcare• Spectrumofeducationalneeds• “noteveryonewantstoknowthefinerdetails.Theyjustneedtoknowenoughtogetonandbeconversantwiththeirpatients”

• Challenges– Interpretinggeneticvariants• 2017:Currentlydecidingontheresourcetodeveloptofocuson“interpretingvariants”

Page 7: Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program
Page 8: Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program

Exploringtheeducationalneedsofalliedhealthprofessionals,nursesandmidwives

• Semi-structuredinterviews• Recruitment viaprofessionalorganisationsandhospitalsinNSW• Findings– Genomicfundamentals/impactonroles&practicesetting• Consistentwithinternationalcompetenciesandprograms• Priority:Howtotalktopatientsaboutgenomics• OnlineinteractiveeducationalmodulewithcasesforHETI(HealthandEducationTrainingInstituteallonlineresourcesNSW)beingdeveloped2017• Trialbeforeandafterknowledgewith6monthfollowupofimpactonpractice• Hopetoinfluencedevelopmentofcompetencies

Page 9: Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program

• AustralianGenomicHealthAlliance(AGHA)- anationalnetworkofclinicians,diagnosticiansandresearchersledbytheMurdochChildren’sResearchInstitute,Melbourne• Fundedtodeveloparoadmapfortheintegrationofgenomicsintoclinicalcare• Program4iscurrentlyundertakinganationalgapanalysisandneedsassessmenttoidentifytrainingandeducationrequirementsforhealthprofessionals

.

Page 10: Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program

Information.Education.Insight

• Australianbased• facilitateeducationservicestopharmaceutical,medicaldeviceand

biotechnologyindustryandalliedhealthcarepractitioners• tosupporttheintegrationofgenomicmedicineintoclinicalpractice,clinical

research,regulatoryandreimbursementactivities• toensurepatientsgetappropriateandtimelyaccesstonewtreatments• facilitatepatienteducationandunderstandinginconjunctionwithpatient

advocacygroupsDirector:Nicholette ConwayStage: DevelopingandplanningPlannedActivities:

• PiloteducationseminarMaywithlaunchofEducationSeriesinAugust(1dayseminars)• Focusontheinterpretationofgenomicresearchforuseinclinicaltrials,regulatoryandreimbursement

(Payer)submissions• Hostedbytheindustry’skeyeducationprovider

• Variedservicesfromspecificfocus(Analyseagenomicjournalarticle/Casestudyinadiseasestate),tobroadbased“Lunch&Learn”forcrossfunctionalcorporategroups

• HostasessionatHealthcareIndustryConferencewithfocusoneducationalneedstosupportregulatoryandreimbursementrequirements.

Response:Positive– 12monthsagonointerest,nowstronginterest.Comments:Nofundingforthis,thereforefeeforservicemodel.Multiplepartnersneededtosupportmodel–

fromeducationspecialiststoclinical,scientificandregulatoryspecialists…andalotofcooperationandgoodwill!

Page 11: Centre for Genetics Education NSW Health Australia€¦ · •Good news: Development of a National Genomic Strategy Framework just commenced. Centre’s Strategy for NSW •Program

Thankyou


Workplace Strategy NSW 2021 - ForeFront

Workplace Strategy NSW 2021 - ForeFront

The NSW Domestic Violence Justice Strategy

The NSW Domestic Violence Justice Strategy

NSW Primary Care Strategy for the bowel, breast and ...€¦ · 6 NSW Primary Care Strategy for the bowel, breast and cervical screening programs Cancer nstitute NSW Participation

NSW Primary Care Strategy for the bowel, breast and ...€¦ · 6 NSW Primary Care Strategy for the bowel, breast and cervical screening programs Cancer nstitute NSW Participation

NSW community mental health strategy 2007–2012

NSW community mental health strategy 2007–2012

Developing the NSW Carers Strategy€¦ · Developing the NSW Carers Strategy: Creating Innovative Solutions with Carers Background Paper 4 Developing the NSW Carers Strategy Introduction

Developing the NSW Carers Strategy€¦ · Developing the NSW Carers Strategy: Creating Innovative Solutions with Carers Background Paper 4 Developing the NSW Carers Strategy Introduction

The NSW Domestic Violence Justice Strategy€¦ · The NSW Domestic Violence Justice Strategy. Acknowledgements. The development of the Domestic Violence Justice Strategy (the Strategy)

The NSW Domestic Violence Justice Strategy€¦ · The NSW Domestic Violence Justice Strategy. Acknowledgements. The development of the Domestic Violence Justice Strategy (the Strategy)

NSW Minerals Strategy

NSW Minerals Strategy

NSW GOVERNMENT ICT STRATEGY 2012

NSW GOVERNMENT ICT STRATEGY 2012

NSW Transmission Infrastructure Strategy

NSW Transmission Infrastructure Strategy

NSW School-Link Strategy and Action Plan · NSW SCHOOL-LINK STRATEGY AND ACTION PLAN 2014 ... NSW School-Link Strategy 2014-2017 6 Vision 6 Mission 6 ... Link. This strategy …

NSW School-Link Strategy and Action Plan · NSW SCHOOL-LINK STRATEGY AND ACTION PLAN 2014 ... NSW School-Link Strategy 2014-2017 6 Vision 6 Mission 6 ... Link. This strategy …

LawAccess NSW Communications Strategy - Aboriginal ...€¦  · Web viewLawAccess NSW Communication Strategy - Aboriginal Communities 2013 - 2015. 8. LawAccess NSW Communication

LawAccess NSW Communications Strategy - Aboriginal ...€¦  · Web viewLawAccess NSW Communication Strategy - Aboriginal Communities 2013 - 2015. 8. LawAccess NSW Communication

NSW Teacher Supply Strategy

NSW Teacher Supply Strategy

NSW Oyster Industry Sustainable Aquaculture Strategy · NSW Oyster Industry Sustainable Aquaculture Strategy Executive Summary . The NSW oyster aquaculture industry is Australia’s

NSW Oyster Industry Sustainable Aquaculture Strategy · NSW Oyster Industry Sustainable Aquaculture Strategy Executive Summary . The NSW oyster aquaculture industry is Australia’s

NSW ROAD SAFETY STRATEGY

NSW ROAD SAFETY STRATEGY

NSW Community Housing Industry Development Strategy 2013 ...€¦ · The NSW Industry Development Strategy 2013/14 – 2015/16 (the ‘Strategy’) is the vehicle by which the NSW

NSW Community Housing Industry Development Strategy 2013 ...€¦ · The NSW Industry Development Strategy 2013/14 – 2015/16 (the ‘Strategy’) is the vehicle by which the NSW

NSW State Infrastructure Strategy Report 2012

NSW State Infrastructure Strategy Report 2012

NSW Government Innovation Strategy Document

NSW Government Innovation Strategy Document

NSW SHARK MANAGEMENT STRATEGY

NSW SHARK MANAGEMENT STRATEGY

NSW cleaner vehicles and fuels strategy

NSW cleaner vehicles and fuels strategy

Housing Affordability Strategy - NSW Government

Housing Affordability Strategy - NSW Government