Celebrating 30 Years of the NJC: Empowering Individuals ...Mary Ann Romski, PhD, CCC-SLP Georgia...
Transcript of Celebrating 30 Years of the NJC: Empowering Individuals ...Mary Ann Romski, PhD, CCC-SLP Georgia...
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http://www.asha.org/njc
Celebrating30YearsoftheNJC:EmpoweringIndividualswithSevere
Disabilities,Families,andStakeholders
Thursday,November17,2016Session#1062
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Disclosures
• Financial:DianePaul,ASHAstaff,participatesintheNJCaspartofherjobduties
• Non-financial:AllothermembersoftheNJCreceivenocompensationforservingontheNJC.
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PurposeofToday’sPresentation
• FamiliarizeattendeeswiththeNJC– NJCrepresentativeswillshare• History• Recentproductsandactions• Webresources
– SharewaysattendeescannetworkwiththeNJCaroundpolicy,practiceandresearch
– Describeanemergingscholarshipopportunityforfuturestudentsinterestedinpeoplewithsevere
disabilities
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NJCHistory• Formedin1986byASHAandTASH• FirstguidelineswithCommunicationBillofRightsin1992
• Celebrating30th Anniversaryin2016
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NJCPurpose
• Advocateforindividualswithsignificantcommunicationsupportneedsresultingfromintellectualdisability,thatmaycoexistwithautism,sensoryand/ormotorlimitation
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NJCFocus
• Research• Policy• Practice• Education
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NJCMemberOrganizations
• AmericanAssociationonIntellectualandDevelopmentalDisabilities (AAIDD)
• AmericanOccupationalTherapyAssociation (AOTA)• AmericanPhysicalTherapyAssociation (APTA)• AmericanSpeech-Language-HearingAssociation (ASHA)• AssociationofAssistiveTechnologyActPrograms (ATAP)• CouncilforExceptionalChildren/Divisionfor
CommunicativeDisabilitiesandDeafness (CEC/DCDD)• TASH• UnitedStatesSocietyforAugmentativeandAlternative
Communication (USSAAC)
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NJCRepresentatives
• AAIDDMaryAnnRomski,PhD,CCC-SLPGeorgiaStateUniversityAtlanta,GA
• AOTABarbaraE.Chandler,PhD,OTR/L,FAOTATherapeuticServicesandDesignWinchester,VA
• JudithSchoonover,MEd,OTR/L,ATPLoudounCountyPublicSchoolsAshburn,VA
• APTALorraineSylvester,PT,PhDUniversityofOklahomaOklahomaCity,OK
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NJCRepresentatives
• APTAMariTherrien,PT,DSc,PCSPrivatePracticeTallahassee,FL
• ASHABillT.Ogletree,PhD,CCC- SLP(CommitteeChair)WesternCarolinaUniversityCullowhee,NC
• ASHAAmyS.Goldman,MA,CCC-SLPTempleUniversityPhiladelphia,PA
DianePaul,PhD,CCC-SLP,CAE(ExOfficio);ASHAStaffAmericanSpeech-Language-HearingAssociationRockville,MD
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NJCRepresentatives• ATAP
BethMineo,PhD,CCC-SLPUniversityofDelawareNewark,Delaware
• CEC/DCDDSusanBruce,PhDBostonCollegeChestnutHill,MA
• TASHKarenErickson,PhDUniversityofNorthCarolinaChapelHill,NC
Ellin Siegel,PhDUniversityofNebraska-LincolnLincoln,NE
• USSAACRoseA.Sevcik,PhDGeorgiaStateUniversityAtlanta,GA
Pastmemberscontributingto2015-16activities:KristaWilkinson;NancyBrady
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NJCGuidance
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CommunicationBillofRights
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CommunicationBillofRights
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ConferenceandEditedVolume• ResearchConferenceJune9-11,2011fundedbytheNational
InstituteonDeafnessandOtherCommunicativeDisorders(NIDCD).• Shapedbytheconference,thisinterdisciplinarybook
– includescontributionsfrommorethan30topscholarsfromdiversefields,includingpsychology,specialeducation,andspeech-languagepathology.
– investigatestheeffectivenessoftoday’scommunicationinterventions,– synthesizesevidencefromcurrentstudies,and– Identifiesurgentresearchdirectionsforthefuture.
• Chaptersgivereadersabriefsummaryofresearchstudiesonakeyinterventiontopic,insightsonresearchdesignandmeasurementchallenges,thoughtsonfutureadvances,andreal-worldclinicalandeducationalrecommendations.
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ChapterTopics
• prelinguistic communicationinterventionforyoungchildrenwithintellectualdisabilities
• challengingbehaviorandcommunicativealternatives• interventionsforchildrenwhoaredeafblind• augmentedlanguageinterventionsforchildrenwithseveredisabilities• parentsaspartnersincommunicationintervention• theroleofcultural,ethnic,andlinguisticdifferences• targetedandphenotypiccommunicationinterventionsforchildrenwithDown
syndromeorASD• issuesrelatedtoresearchstudydesign,includingsamplesize,the
effectivenessofrandomizedcontrolledtrials,andintegrationofsingle-caseandgroupdesigns
• assessmentandmeasurementofcommunicationandlanguageskills
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NextSteps
• Thisbookofferspowerfulinsightsabouttoday’scommunicationinterventions—andsetsaclearagendafortomorrow’sgroundbreakingresearch.
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• June11– 23,2014• “Peoplewithseveredisabilitiesfacecomplex
communicationissues,whicharebestmetwithintegrated,collaborativeservices.Afterattendingthisconference,you’llpossessabroadercontextforservingthisuniqueclientwhilebeingmorepreparedtobeanintegralpartofaninterprofessional circleofcare.”
• “Thisonlineconferencewillhelpyouprovideteam-basedservicesthatleadtothegreatestandmostsociallyvalidtherapeuticgainsforindividualswith
severedisabilities.”
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MoreonInterprofessionalServices
• In2014-15,theAmericanJournalonSpeechLanguagePathologycontactedtheNJCregardingitsinterestindedicatingaclinicalforumissuetothetopicofinterprofessionalpracticeandseveredisabilities
• Theissueisslatedforpublicationin2017–lookforit!!
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NJCProvider/ScholarNetwork
Purpose:TobroadenandcontinuetheworkoftheNJC
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Memberswill:• PromotetheCommunicationBillofRights• Supportdevelopmentofonlineinstructionalmodelssupportingevidencebasedpractice
• Gathersuccessstoriesfromthefield• Sharechallengesandconcerns• Contributetothedevelopmentofadataclearinghouse
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BenefitsofJoiningtheNetwork• Interactwithleadersinthefield• Impactpolicy• Helpsetprioritiesatthenationallevel• Enhanceyourprofessionalnetwork• ReceiveearlyaccesstoNJCresources• IncreasepotentialforfuturemembershipontheNJC
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JointheNJCNetworkhttp://bit.do/b8446
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E-Modules
• Supportsstakeholderswhowishtopromotecommunicationwithpeoplewithseveredisabilities
• BasedontheDynamicLearningMapsConsortiumwithsupportfromagrantfromtheUSDepartmentofEducation,OfficeofSpecialEducationProgramshttp://dlmpd.com/beginning-communicators/
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E-Modules
• Focusonpeople(allages)withIDDwithseveredisabilitiesandtheircommunicationpartners
• Newopportunitytoaccessassessmentandinterventioncontent:
ü Nonsymbolic communicatorsü Emergentsymboliccommunicatorsü Symboliccommunicatorsü Literacy
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E-Modules:Components
• Videoexamplehttps://wcu.hosted.panopto.com/Panopto/Pages/Viewer.aspx?id=8f7690ac-54a4-41f1-b44d-bad4aedadf47
• Powerpoint• Transcript
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AACMythsProject
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MythsaboutCommunicationandAdultswithSevereDisabilities
• TheNJCisspearheadinganewinitiativetoaddressmythsaboutcommunicationandadultswithseveredisabilities.
• ForadultswithIDDwhodonotspeak,theliteraturerecommendsthatinterventionsincludeAACtoimprovecommunicationandinteractionswithothers(Snell,Brady,McLean,Ogletree,Siegel,Sylvester,etal.,2010).
• SomeadultswithIDDexhibitlimitedfunctionalspeechandareoftenoverlookedascandidatesforAACinterventionsbecausetheydohavesomespeech
abilities.
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Myths(continued)
• Theperceptionisthattheyaretoooldtoimprovetheirlanguageandcommunicationskills(Cheslock,Barton-Hulsey,Romski,&Sevcik,2008).
• Intruth,manyadultswithseveredisabilitieshavebeendeniedaccesstoappropriatecommunicationsupportsandserviceslimitingthepossibilityofthedevelopmentofnewskills.
• Becauserecentresearchsupportsthatcommunicationinterventionshavebeeneffectivewiththispopulationregardlessofage,theseservicesmustbeavailableacrossthelifespan(Sevcik &Romski,2016).
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BirthofaNewTool?
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1998
Atoolguidingteamsinassessingtheirownpracticesinsupportingthosewithcomplexcommunicationneeds…
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1998
Quality Indicators
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YOURTHOUGHTS?
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McLeanYoderAwardforProfessionalExcellence(MYAPE)
Exemplifyinghighqualityprofessionalservicetoindividuals
withseveredisabilities
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MYAPE
• NamedafterDrs.JamesMcLeanandDavidYoder,preeminentresearchscientistsintheareaofcommunicationandintellectualimpairment.
• JudgedaccordingtotheNJC’spublishedqualityindicatorsspecifictocommunicationassessment,goalsetting,andprogramimplementation.
• Nextdeadline:May31,2017• Applicationavailableatwww.asha.org/njc
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WWW.ASHA.ORG/NJCNEWNJCWebsite
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TopicAreas
AccessingServices• RelationofAgetoServiceEligibility• RelationofDevelopmentalSkillstoServiceEligibility
• DecisionMakinginTerminationofServices• FundingforServices
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TopicAreasInterventionIssuesandPractices• AppliedBehaviorAnalysisandCommunicationServices• AssessmentandTeaming• AugmentativeandAlternativeCommunication• ChallengingBehaviorasCommunication• DefinitionofCommunicationandAppropriateTargets• Evidence-BasedPractice• InclusionandInteractionsWithFriendsWithoutDisabilities• InterventionWithSpecialPopulations• LiteracyinIndividualsWithSevereDisabilities• ServiceWithCulturallyDiverseIndividuals• Transitions/GeneralizationofSkill
• TypesofService
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TopicAreasRelationofAgetoServiceEligibilityServicesinBirth-to-3Increasingly,serviceprovisionoccurswellbefore2yearsofage.Forindividualswiththemostsignificantdisabilities,theneedforsometypeofcommunicationservicesisusuallyevidentbeforethechild'ssecondbirthday.Thoseinvolvedincarefortheseindividualsshouldconductacomprehensive,interdisciplinaryassessmentofthechild'sreceptiveandexpressivecommunicationskills,aswellasrelatedareasofcognitiveandsocialdevelopment,usevalidandreliableassessmentinstruments—includingthosedesignedforgeneralusewithinfantsandtoddlersorforspecificusewithchildrenwithseveredisabilities,andprovideinformationthatcanbeusedtodesignanappropriate,individualizedinterventionplanforthechildandfamily.
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TopicAreas
OnThisPage• ServicesinBirth-to-3• ServicestotheSchool-AgePopulation• ServicestoAdultsReturntotheNJCTopicList.
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TopicAreas
BottomLine: Communicationservicesshouldbestartedassoonasacommunicationdelayordisorderisdiagnosed.Aprofessionalevaluationcandetermineifachildisdevelopingappropriately.Ifnot,aninterventionprogramcanbedesignedtohelpthechilddevelopage-appropriateorfunctionalskills.
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TopicAreaResources onServicestoYoungChildren• AmericanSpeech-Language-HearingAssociation.(2004).Rolesofspeech-language
pathologistsintheneonatalintensivecareunit[Technicalreport].Availablefromwww.asha.org/policy.
• AmericanSpeech-Language-HearingAssociation.(2008).Rolesandresponsibilitiesofspeech-languagepathologistsinearlyintervention[Guidelines].Availablefromwww.asha.org/policy.
• Cress,C.J.(2002).Expandingchildren'searlyaugmentedbehaviorstosupportsymbolicdevelopment.InJ.Reichle,D.Beukelman,&J.Light(Eds.),Exemplarypracticesforbeginningcommunicators:ImplicationsforAAC (Vol.2).Baltimore,MD:Brookes.
• Romski,M.A.,&Sevcik,R.A.(1996).Breakingthespeechbarrier:Languagedevelopmentthroughaugmentedmeans.Baltimore,MD:Brookes.
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TopicAreaResources onServicestoYoungChildren• Romski,M.A.,Sevcik,R.A.,&Forrest,S.(2001).Assistivetechnologyand
augmentativecommunicationinearlychildhoodinclusion.InM.J.Guralnick (Ed.),Earlychildhoodinclusion:Focusonchange (pp.465–479).Baltimore,MD:Brookes.
• Romski,M.A.,Sevcik,R.A.,&Pate,J.L.(1988).Theestablishmentofsymboliccommunicationinapersonwithsevereretardation.JournalofSpeechandHearingDisorders,53,94–107.
• Rowland,C.,&Schweigert,P.(2000).Tangiblesymbols,tangibleoutcomes.AugmentativeandAlternativeCommunication,16,61–78.
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http://www.asha.org/njc
OtherActivitiesoftheNJC
• Presentationsatnationalconferences(ATIA,ASHA,AOTAforexample)
• Advocacy• SocialMedia• Scholarship:McLeanYoderSchiefelbuschFund
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http://www.asha.org/njc
LearnMore- JointheNetwork
Saturday,November19thNoon– 1:00PM
Room307,PhiladelphiaMarriottDowntown.