CBF Newsletter Winter 08 Web:CBF Newsletter · Cut yourself, your children and the family a break....

8
Challenge The complexities of parenthood are huge anyway, and when your child has a disability those complexities can be magnified and increased to almost overwhelming proportions. Sometimes in addition to the issues that arise from the disability itself, it feels as though someone, somewhere is thinking up ways to make life more difficult and complicated – exclusion, labels, funding streams, systems and processes. If there was a job description and person specification for being a parent of a person with a severe learning disability and behaviour described as challenging it would be pages long, and there wouldn’t be many applicants! The terms and conditions aren’t good either! Common sense tells us that families supporting a person with a learning disability and challenging behaviour will need some ‘time off’ – but this is easier said than done. If you can get some time for yourself (and that’s a big ‘if’!) you need to be confident that your family member is not being disadvantaged – that it’s not a ‘him/ her or me’ situation - because otherwise you just heap guilt onto everything else. Families are in it for the long term – we need to keep going, and to do that we do need to look after ourselves. This can take many forms (when Daniel was very young, just spending 20 minutes in the supermarket on my own getting a few basic provisions was a luxury I needed for my own sanity!) and knowing when you need support or a break is really important. But put it in place before you need it. The new Carers Strategy emphasises the importance of the role of family carers – and should lead to better opportunities for families to get the support they need, including short breaks. But in the long term we need to support families better by meeting the needs of everyone. As many family carers have said, ‘get it right for my son/ daughter/ relative with a disability, and you get it right for me.’ • Vivien Cooper Chair of Trustees and Founder of the Challenging Behaviour Foundation Winter 2008 ‘Challenge’ is the newsletter of the Challenging Behaviour Foundation, supporting those caring for individuals with severe learning disabilities who are described as having challenging behaviour Tying ourselves in knots Someone sticks a gun through the car window and shouts, ‘Give me the motor!’ – well, you won’t see me ignore this as an inappropriate behaviour Practical coping strategies for carers It can be difficult for families, who are under significant stress, to put behaviour change interventions into place Resources New DVD: Challenging Behaviour – Supporting Change New 0845 number for families Individual telephone support around understanding and managing challenging behaviour for the cost of a local call PAGE 2 PAGE 4 PAGE 5 PAGE 6 www.challengingbehaviour.org.uk Any parent will tell you that whilst bringing up a child is incredibly rewarding and fulfilling, it certainly isn’t simple! The stress factor The newsletter of The Challenging Behaviour Foundation Vivien Cooper Families are in it for the long term – we need to keep going, and to do that we do need to look after ourselves. If you can get some time for yourself (and that’s a big ‘if”!) you need to be confident that your family member is not being disadvantaged

Transcript of CBF Newsletter Winter 08 Web:CBF Newsletter · Cut yourself, your children and the family a break....

Page 1: CBF Newsletter Winter 08 Web:CBF Newsletter · Cut yourself, your children and the family a break. There’s no such thing as SuperMum, SuperDad, (nor, I pray, SuperNanny) outside

Challenge

The complexities ofparenthood are hugeanyway, and when yourchild has a disability thosecomplexities can bemagnified and increased toalmost overwhelmingproportions. Sometimes inaddition to the issues thatarise from the disabilityitself, it feels as thoughsomeone, somewhere is thinking upways to make life more difficult andcomplicated – exclusion, labels,funding streams, systems andprocesses.

If there was a job description andperson specification for being a parentof a person with a severe learningdisability and behaviour described aschallenging it would be pages long,and there wouldn’t be manyapplicants! The terms and conditionsaren’t good either!

Common sense tells us that familiessupporting a person with a learningdisability and challenging behaviour willneed some ‘time off’ – but this iseasier said than done. If you can getsome time for yourself (and that’s a big‘if’!) you need to be confident that your

family member is not beingdisadvantaged – that it’snot a ‘him/ her or me’situation - becauseotherwise you just heapguilt onto everything else.

Families are in it for thelong term – we need tokeep going, and to do thatwe do need to look after

ourselves. This can take many forms(when Daniel was very young, justspending 20 minutes in thesupermarket on my own getting a fewbasic provisions was a luxury I neededfor my own sanity!) and knowing whenyou need support or a break is reallyimportant. But put it in place beforeyou need it.

The new Carers Strategy emphasisesthe importance of the role of familycarers – and should lead to betteropportunities for families to get thesupport they need, including shortbreaks. But in the long term we needto support families better by meetingthe needs of everyone. As many familycarers have said, ‘get it right for myson/ daughter/ relative with a disability,and you get it right for me.’

• Vivien Cooper

Chair of Trustees and Founder of theChallenging Behaviour Foundation

Winter 2008

‘Challenge’ is the newsletter of theChallenging Behaviour Foundation,supporting those caring forindividuals with severe learningdisabilities who are described ashaving challenging behaviour

Tying ourselves in knotsSomeone sticks a gun throughthe car window and shouts,‘Give me the motor!’ – well,you won’t see me ignore thisas an inappropriate behaviour

Practical copingstrategies for carersIt can be difficult for families,who are under significantstress, to put behaviour changeinterventions into place

ResourcesNew DVD: ChallengingBehaviour – SupportingChange

New 0845 number forfamiliesIndividual telephone supportaround understanding andmanaging challengingbehaviour for the cost of alocal call

PAGE 2

PAGE 4

PAGE 5

PAGE 6

www.challengingbehaviour.org.uk

Any parent will tell you that whilst bringing up achild is incredibly rewarding and fulfilling, itcertainly isn’t simple!

The stress factorThe newsletter of The Challenging Behaviour Foundation

Vivien Cooper

Families are in it for the longterm – we need to keepgoing, and to do that we doneed to look after ourselves.

If you can get some time foryourself (and that’s a big‘if”!) you need to beconfident that your familymember is not beingdisadvantaged

Page 2: CBF Newsletter Winter 08 Web:CBF Newsletter · Cut yourself, your children and the family a break. There’s no such thing as SuperMum, SuperDad, (nor, I pray, SuperNanny) outside

2 Challenge Winter 08 CHALLENGING BEHAVIOUR FOUNDATION

I want my children to belong and notbe isolated, yet also to be unique. Yetsociety tends to accept those whosebehaviour is viewed as appropriate -dressed in a common manner,communicating in traditional ways….So I spend a lot of time worrying aboutmy children’s behaviour, tying myself inknots trying to make challengingbehaviour the exception and not therule.

Sometimes when we’re tied up, weneed to invest in scissors.

Snip 1: Define success First, try to put things in perspective.Challenging behaviour does not definethe person. Because challengingbehaviour is serious and noticeable wefocus on it, and may forget to considerthe positive things. So sometimes,getting perspective may help, and wecan work towards helping Little Maxscream for two minutes less this weekthan last week and this would be asuccess. Success must be realistic.

Snip 2: Sometimes weneed someone else tocome and help us freeourselves. I’ve learned independence is a bit of amyth. I think my kids and I areinterdependent: we rely on each otherand people around us - so I don’t mindasking for help now.

Snip 3: Considerstrategic capitulationSomeone sticks a gun through the carwindow and shouts, ‘Give me themotor!’ – well, you won’t see me

ignore this as an inappropriatebehaviour, and you won’t hear me say,‘No way, buster! I’m not reinforcingyour challenging behaviour,’ because Iprefer to get through the day with myhead intact. So in the middle of acrisis, sometimes, sometimes, it’s okayto put the fear of reinforcinginappropriate behaviour to one sideand think about ways of getting out ofthe situation with some dignity foreveryone. Sometimes it’s ok to givethe person what they’re asking for. (Butif the only time Bob gets a sweet iswhen he’s screaming, then there mightbe a potential issue, so make sure Bobgets good things at other times).

Snip 4: When the worldis dark, take off thesunglasses Cut yourself, your children and thefamily a break. There’s no such thing

as SuperMum, SuperDad, (nor, I pray,SuperNanny) outside TV. We’re alllearning and struggling; don’t beatyourself up. You’re doing the best youcan in an extraordinary situation. Youcan do this; you might need moresupport than others at times, but youCAN help your child achieve.

Snip 5: Why wait for the war? Make things easier for the person.Arrange things so your children aremore likely to do something other thanchallenge. We teach our children towalk by praising each first step, notexpecting our babies to run marathons.When a child can’t read we teach themto read; when they can’t ride a bicycle,we teach them to ride, and behaviouris not different. We need to teachchildren to cope with frustration andnot getting everything because that’scalled life. But we can teach by smallsteps. Antecedent interventions(strategies to avoid a problem) arevaluable, and help us avoid tyingourselves in knots in the first place,often.

Snip 6: Be realistic. Your children will never truly appreciatethe love, patience, commitment, time,money and tears you pour into them.So be realistic what to expect for interms of feedback and gratitude.

Snip 7: Never stoplistening I’m sure there are lots of other snips.But these are my snips for getting meout of the knots I’ve thrashed my wayinto.

Snips… all these snips remind me of avasectomy, so I need to go lie downnow as I feel a little faint. Speak soon.

• Tony Osgood

Lecturer in Intellectual &Developmental Disability, Tizard CentreUniversity of Kent

Tying ourselves in knots I want my children to be accepted as individuals,as the wonderful people I know them to be.

ANALYSIS

Someone sticks a gunthrough the car window andshouts, ‘Give me the motor!’– well, you won’t see meignore this as aninappropriate behaviourBecause challenging

behaviour is serious andnoticeable we focus on it,and may forget to considerthe positive things.

Page 3: CBF Newsletter Winter 08 Web:CBF Newsletter · Cut yourself, your children and the family a break. There’s no such thing as SuperMum, SuperDad, (nor, I pray, SuperNanny) outside

Winter 08 Challenge 3CHALLENGING BEHAVIOUR FOUNDATION Winter 08 Challenge 3

What parents say

Our son Warren is 30 years old,gorgeous, funny, noisy and neverdull. He also has severe learningdisabilities and autism, with nospeech and can be challenging.People who work with him love him,even though he can beunpredictable. You get a lot ofcuddles, though often ending with apinch (always a lovely smile!)

He has overcome so much: beingexcluded from a special school,having almost a year at home, thentrying to cope with all the changeswhen he reached nineteen. He isnow happily settled at a dailyresource centre, and very happywith regular respite. He has learnt tocope with changes in his life and allimportant routines, hair cuts,showering, having to wait, the listgoes on.

He has found so many thingsdifficult over the years, and haslearnt to communicate in his ownway. He loves watching cars,swimming, having a beer, seeing hisbrothers, and lying in bed. We wishhe knew how proud we are of him,but just hope he knows how muchhe is loved.

• Linda & Mike Sanders

Do you have a photo and story youwould like to share? Please get intouch.

YOUR QUESTIONS

Q: My daughter is almostfive, and hardly sleeps –

am I entitled to respite care? Iwas rejected as my daughterwasn't in full time education asshe is repeating nursery. I am alone parent and I really needthe break!A1: Hi, I had varying amounts ofrespite care since nursery school. Atthis age we asked for someone tocome in the house to give me a breakbecause I was so tired. After this wegot a weekend off every six weekswhere my child went to a residentialfacility. Social services are there to helpyou, not to make you feel inadequate.Stay strong and you will get there.

A2: Do you have a Social Worker? Ifnot ring your local Social ServicesDepartment and explain you have childwith Special Needs and you need to beallocated a Social Worker. The Social

Worker will complete a CarersAssessment with you and shoulddiscuss what help is available foryourself and your daughter.

A3: Contact Social Services again andtell them how things are. Do whateveryou can to get through to them justhow bad things are. Make sure theyare in no doubt about how badly thissituation is affecting your morale andyour health.

A4: Make sure you and your daughterare always on the top of the socialworker’s or health visitor’s list, pesterthem, phone them, don’t let themforget you. Eventually they will providethe overnight care you both need.

From the CBF: We regularly hear fromfamilies who are denied access to orexcluded from much needed shortbreak (respite) provision. In order tocampaign for change we need to get abetter idea of the problem and so weare asking families to complete aquestionnaire about their experiences.Please contact Gemma: 0845 602 7885or e-mail: [email protected]

Want to join the debate? Membership of our email networks is free to bothparents and professionals. Application forms from

www.challengingbehaviour.org.uk or email [email protected]

Q: I support a man withsevere learning disabilities

and autism. He has developeda behaviour of constantlywetting his clothes in the bath,sink and even the toilet andhas begun to urinate in hisclothes. Any suggestions? A1: It’'s probably worth having a goodlook at whether the behaviour doeshave a function of attracting and/ormaintaining attention, or whether theremay be some other function. Thefunction of the behaviour is importantin determining the type of intervention.Individuals with autism often havesensory based behaviours (where thesensation of the behaviour isreinforcing) or ‘order’ basedbehaviours, where the behaviour isreinforced because it introduces orderinto an unpredictable situation (e.g.staff behaviour becomes more

predictable) or the ritualised behaviouris more ordered and replaces thedisorder of having to respond to avariable situation.

A2: He could be doing this for severaldifferent reasons. For example,perhaps he likes the sensation of theurine, perhaps he's wearing newclothes that he doesn't like, perhaps hedoes it with some staff more than withothers etc. You need to get a specialistclinical psychologist or behaviour nursetherapist to carry out a thoroughfunctional assessment.

A3: It may be that the material in theclothing might irritate the individual’sskin. However I agree on the need fora full behavioural assessment and afunctional assessment.

From the CBF: Any behaviour we findchallenging, such as wetting clothes,may serve a number of differentpurposes (or functions). To find outmore about functional assessment seeour new DVD ‘Challenging Behaviour –Supporting Change’ (details on page 5).

Warren

Page 4: CBF Newsletter Winter 08 Web:CBF Newsletter · Cut yourself, your children and the family a break. There’s no such thing as SuperMum, SuperDad, (nor, I pray, SuperNanny) outside

CHALLENGING BEHAVIOUR FOUNDATION

The Specialist Support andDevelopment Team (SS&DT) in EastSurrey is a community based supportteam, offering support and interventionto children and adults whose behaviourpresents a challenge. During thecourse of the team’s work, it hasbecome apparent that it can be difficultfor families, who are under significantstress, to put behaviour changeinterventions into place. Parents mayjust have enough energy to get throughthe day, without having to meet thedemands of a well meaning BehaviourSpecialist!

Most pieces of work carried out bySS&DT start by encouraging parents toconsider the importance of their ownwell-being, prior to implementing anyform of behaviour support plan. One of the most useful ways ofencouraging families to think aboutstress has been to use standard stress questionnaires (see p7 – FurtherReading). Areas of the questionnairewhich score poorly are a good startingpoint for parents to think aboutpossible coping strategies.

Coping strategies are extremelyindividual, and each parent needs toselect strategies that suit thempersonally. The following suggestionsare intended as a guide, to helppinpoint areas of your life where stressmanagement may be needed:

Eating well. A good diet and goodmental health are shown to be linked,as well as good physical health.

Sleep. Addressing any sleep problem,and developing some good sleephabits, are just as important for parentsas they are for children. If lack of sleepis directly caused by your son ordaughter’s behaviour, this would needto be tackled first.

Social contact. Regular contact withfriends and family can offeropportunities to talk openly, receivesupport and feel far less isolated.Sharing concerns with others andfeeling connected is helpful in reducingstress.

Minimising alcohol, cigarettes,caffeine, sugary foods. These copingstrategies produce a short period offeeling good, but are detrimental tohealth and should be minimised.

Doing something fun. An activity youreally enjoy can be uplifting andenergising, and may well be possiblewithout huge resources of time ormoney. A fun activity that fullyengages your attention provides anescape and allows a temporary andhealthy measure of detachment from acurrent stressful situation.

Exercise. Aerobic exercise results inendorphin release, which is the body’snatural happy hormone. If getting outof the house is tricky, consider exerciseequipment at home, or using DVDs - oran exercise programme on thechildren’s Nintendo Wii.

Spiritually uplifting activities. Forsome people their faith can be a greatsource of strength, often going hand inhand with being linked into asupportive network. Alternatively,meditation, being in beautiful places,walking outdoors, particularly greenspaces, on a beach, music, can all bespiritually uplifting, and can help toreduce stress. Although finding timefor these activities might be difficult,they could prove helpful, even ifundertaken for short periods of 20-30minutes.

• Maria Hurman, Team leader/Honorary Lecturer. Specialist Supportand Development Team, SABP NHSTrust / Tizard Centre University of Kent

Research While those caring for someone witha high level of need withoutsufficient support appear toexperience stress most often, noteveryone in these situationsexperiences stress. Some carers forpeople with complex needs maintaingood mental health. This suggeststhat the relationship betweenchallenging behaviour and carerstress is not simple and that manyfactors may help people copeemotionally. More recent researchhas looked at the things that helpprotect carers from stress in eventhe most difficult situations.

Taken together, this work has provideda ‘cognitive-behavioural’ model ofcare-giver stress. The model helpsexplain why two people may respondto similar situations in quite differentways: the carer’s thoughts and beliefs(cognitions) surrounding challengingbehaviour seem to be strongly relatedto their emotional reaction.

Carers who view themselves asbeing competent or in control of asituation and those who reach a pointof acceptance for the difficulties theyface are found to experience lessstress. It is likely that these carers areable to develop good copingstrategies by acknowledging stress atan early stage when it can bemanaged more easily.

Most importantly, the researchhighlights that with the right support,carers can respond to situations innew ways to bring about positivechange. This doesn’t mean thatcaring for someone with challengingbehaviour will become lessdemanding but it does mean that theexperience of stress is not aninevitable consequence.

• Nick Gore,Lecturer inIntellectual andDevelopmentalDisability, TizardCentre Universityof Kent

Further reading– see page 7

4 Challenge Winter 08

COPING WITH STRESS

Practical copingstrategies for carers

Page 5: CBF Newsletter Winter 08 Web:CBF Newsletter · Cut yourself, your children and the family a break. There’s no such thing as SuperMum, SuperDad, (nor, I pray, SuperNanny) outside

CHALLENGING BEHAVIOUR FOUNDATION

In this new 2-disc DVD set meet Oliver,Dougie and Dominic and hear MarkAddison (psychologist) explain thefunctional assessment process.Interviews with family carers highlightthe range of causes of challengingbehaviour, and how a functionalassessment can help put in placeappropriate behaviour managementstrategies for individuals with severelearning disabilities.

Produced primarily for family carers,

this resource also provides a usefulintroduction or refresher forprofessionals. The families’ storiesdemonstrate the importance offunctional assessment and provideinsight into positive ways to supportfamilies. Free of charge tofamilies/unpaid carers.

To order your copy of the DVD‘Challenging Behaviour – SupportingChange’, please see page 7.

NEW RESOURCES FROM THE CBF

New DVD: ChallengingBehaviour –

Supporting Change

Don’t give upMarie is my daughter; she is myeducator, boss and sometimes jailer.Marie is profoundly deaf, has amoderate to severe learningdisability, autism, epilepsy andscoliosis. Compulsive obsessionsare very much part of Marie’s life.One summer we could not open anywindows; the following winter wehad to keep the back door open allday. Some days Marie insists onhaving up to five baths.

This photo depicts what happened when Irefused to give Marie another bath.

Life with Marie is a rollercoaster ridethrough unknown territory, not leastbecause of having to fight to get thesupport she needs. Like most parentcarers, I had no experience ofdisability before Marie was born.

After twelve years of fighting, Mariemoved to a small home last yearwhere she is now happier than shehas been for a long time. It hadtaken over two years from the timewe first found the service for ourlocal authority to agree funding. Ikept a record of all relevant eventsand conversations with socialservice officers, and used anyonewho might be able to add pressureto local commissioners. My MP wasgreat, he kept writing to the head ofsocial services on our behalf. TheDisability Law Centre took up ourcase. The Commission for SocialCare Inspection also wrote to theCouncil. The final result was awritten apology from heads ofservices and funding being agreedfor Marie to move and get thesupport she needs. Marie has taughtme not to give up and not to acceptless than what is best for her – andme!

• Miriam Long

PARENT PERSPECTIVES

“As soon as Dominic pulled somebody’s hair it meantthat he was either removed from the room or aperson was removed from the room. So actually whatDominic was getting was an outcome for that hairpulling. He was indicating to us that he wasuncomfortable. But he was having to pull hair toachieve that.”

Audrey Giles and son Dominic fromour new DVD ‘Challenging Behaviour– Supporting Change’. See order formon page 7.

EXTRACT FROM OUR NEW DVD

Winter 08 Challenge 5

Page 6: CBF Newsletter Winter 08 Web:CBF Newsletter · Cut yourself, your children and the family a break. There’s no such thing as SuperMum, SuperDad, (nor, I pray, SuperNanny) outside

6 Challenge Winter 08 CHALLENGING BEHAVIOUR FOUNDATION

Supporters’ NewsWhile we cannot mention all ourdonors by name we would like to say aspecial thank you at this time to theSoroptimists International Medway(£250), the Rotary Club of Gillingham(£200), Wycombe Abbey School(£597) and the Rotary Club ofRochester (£100).

A big thank you also to all those whopaddled for us at this year’s FunraisersDragonboat event at Bewl Water –sponsor money still coming in, and wehope to have photos in the next issueof ‘Challenge’. The team won first prizefor their costumes – for which a bigthank you and ‘well done’ to thestudents at the University for theCreative Arts, Rochester.

Carers StrategyCarers At The Heart of 21st CenturyFamilies & Communities was publishedin June 2008. This ten-year cross-government strategy aims for carers to be:

• respected as expert care partnerswith access to the services theyneed

• able to have a life of their own

• supported so that they are not forcedinto financial hardship

• supported to stay well and treatedwith dignity

Contact your local LD PartnershipBoard to find out how you can benefitfrom the new Carers Strategy.

100 Club winnersRecent winners of the ChallengingBehaviour Foundation 100 Club,winning £25 each were:

June 2008 – Mrs B Norman, Sevenoaks

July 2008 – Mrs D Martin, Gillingham

August 2008 – Mrs F Walker, StoneyStanton

All proceeds from the 100 Club helptowards our office running costs.Shares cost just £1 per month. Pleaseget in touch if you would like to join.

Valuing People Now As we go to press the government ispublishing Valuing People Now, which

IN PIECES

Families caring for sons/daughterswith severe learning disabilities cannow receive individual telephonesupport around understanding and managing challengingbehaviour from the CBF FamilySupport Worker for the cost of alocal call*.

Gemma Honeyman, whose previousexperience includes

supporting childrenwith severe learningdisabilities andworking on an autismresearch project atOxford University, alsodevelops newresources and runsthe ChallengingBehaviourFoundation family supportnetwork.

‘Families come to theChallenging BehaviourFoundation for lots of differentreasons,’ explains Gemma.‘Many receive little or nosupport around challengingbehaviour and are looking fornew ideas. Others areseeking help because theirchild has been excluded from short break provision,school, school transport,day centre or residentialcare home.’

‘Many families feelisolated and want to beput in touch with afamily who hasexperienced similar

difficulties or just need alistening ear. A lot is known aboutchallenging behaviour and the

Challenging Behaviour Foundationwants to make sure it gets to thepeople who need it most – families.’

‘Clearly there is a limit as to howmuch help I can give by telephone,but a lot of parents have neverreceived basic information aboutchallenging behaviour or how toaccess local information andsupport.’

The Challenging BehaviourFoundation Family Support Workerpost is funded by BBC Children inNeed, so if you have made adonation to BBC Children in Need –thank you very much!

Families can contact Gemma on: Tel 0845 602 7885 (individualtelephone support for families at thecost of a local call*)

*local call rate applies to calls made from alandline; calls made from mobiles may costconsiderably more. Gemma Honeyman, CBF Family Support Worker

New 0845 number for families

Page 7: CBF Newsletter Winter 08 Web:CBF Newsletter · Cut yourself, your children and the family a break. There’s no such thing as SuperMum, SuperDad, (nor, I pray, SuperNanny) outside

Resource order formPlease note: all our information and resources relate to the care ofindividuals with severe learning disabilities who are described as havingchallenging behaviour. We are happy to send resources free of charge toparents/unpaid carers.

updates the white paper ValuingPeople published in 2001. ValuingPeople was the government's plan formaking the lives of people withlearning disabilities, their families andcarers better. Valuing People Now islikely to place more emphasis onsupporting individuals with complexneeds and greater partnership withfamilies. Valuing People Now will beavailable fromwww.valuingpeople.gov.uk or contactyour local LD Partnership Board.

Further Reading (from page 4)Lloyd, T & Hastings, RP (2008):Psychological variables as correlates ofadjustment in mothers of children withintellectual disabilities: Cross-sectionaland longitudinal relationships. Journalof Intellectual Disability Research, 52(1), 37-48.

Hassall, R & Rose, J (2005): Parentalcognitions and adaptations to thedemands of carrying for a child with anintellectual disability: A review of theliterature and implications for clinicalinterventions. Behavioural andCognitive Psychotherapy, 33, 71-88.

The following web link gives anexample of a stress questionnaire thatyou might like to try:http://www.internethealthlibrary.com/sq/stress/stress-assess.htm

Have your sayWe welcome articles from parents andprofessionals. Please get in touch ifthere is something you would like towrite about.

DisclaimerWhile every care is taken in thecompilation of this newsletter, theChallenging Behaviour Foundationcannot be held responsible for anyerrors or omissions, nor acceptresponsibility for any goods or servicesmentioned.

© The Challenging BehaviourFoundation. All rights reserved.

/ Continued overleaf…

Cost Number Total £

CHALLENGING BEHAVIOUR DVD RESOURCES

An Introduction to Challenging Behaviour: DVD £31.50*

What is challenging behaviour? Why does it happen? What can be doneabout it? Uses interviews with two parent carers, with specialist input fromPeter McGill (University of Kent Tizard Centre). 40 minutes

Self-injurious Behaviour: DVD £31.50*

What causes self-injurious behaviour? What action should parents and carerstake? Professors Chris Oliver and Glynis Murphy join forces with two familycarers to offer clear and practical information and advice to families. A usefulintroduction also for professionals. 40 minutes

Communication and Challenging Behaviour:DVD £31.50*

Four family carers and a speech and language therapist explain therelationship between communication and behaviour and highlight practicalapproaches to improve communication and minimize challenging behaviour. 40 minutes.

Challenging Behaviour – Supporting Change:DVD £63.00*

In this new 2-disc DVD set meet Oliver, Dougie and Dominic and hear thefunctional assessment process explained. Interviews with family carershighlight the range of causes of challenging behaviour, and how a functionalassessment can help put in place appropriate behaviour managementstrategies for individuals with severe learning disabilities. (Approx 70 mins)

CHALLENGING BEHAVIOUR INFORMATION SHEETS

Basic information about challengingbehaviour

All

information

sheets are

available

free of

charge on

the CBF

website.

To order by

post please

add £1.00

per sheet

Getting a statement

Communication and challenging behaviour

The use of physical interventions

Book list for parents / professionals (please specify)

Specialist equipment and safety adaptations

Functional Assessment (understanding thefunction of the behaviour)

Self-injurious behaviour

Psychiatric disorders in people with learningdisability

Health and challenging behaviour

The use of medication in the treatment ofchallenging behaviour

Pica behaviour (eating inedible objects)

Parents’ perspectives

FULL INFORMATION PACK £10.00*

SUB TOTAL CARRIED FORWARD

*Free to parents/unpaid carers. Registered charities: DVDs £16.50 (or£33.00 for 2-disc set). Prices include postage & packing in the UK only.

Page 8: CBF Newsletter Winter 08 Web:CBF Newsletter · Cut yourself, your children and the family a break. There’s no such thing as SuperMum, SuperDad, (nor, I pray, SuperNanny) outside

The CBF –how youcan help

Did you know…?

• We are a registered charity andrely on donations, grants andfundraising to finance our work

• We support families andprofessionals across the UK –with just three full timemembers of staff!

• We do not charge parents forservices or resources

• To keep costs down much of ourwork is carried out byvolunteers

• If everyone reading ‘Challenge’gave just £30 a year theguaranteed income wouldenable us to take forward anumber of important projects.(please ask for details)

• Regular giving by standingorder makes your money gofurther by keeping downadministrative costs

• Your support really would makea big difference to us!

Please consider how you couldsupport our work

The Challenging BehaviourFoundation is a company limited byguarantee. Registered in England &Wales No 3307407. Registered as acharity No 1060714

Address: The Old Courthouse, New Road Avenue, Chatham, Kent,ME4 6BE

Email: [email protected]; Tel: 01634 838739; www.challengingbehaviour.org.uk

Parents/ family carers please note: while we are happy to send you ourresources free of charge, if you can afford to send a donation this will helpus to provide free resources to other families. Thank you.

Name

Organisation

Address

Postcode

TelephoneYour personal data may be held on computer and will be kept in accordance with the Data ProtectionAct 1998 under which we are registered as a data controller. This data will not be passed on to any thirdparty without prior consent.

You can keep informed about new resources through our free newsletter,three times a year. If you do NOT want to receive this, please tick here

If you would like to support the CBF regularly please tick here to receive astanding order form

Please make cheques payable to the Challenging Behaviour Foundation andreturn to the Challenging Behaviour Foundation, The Old Courthouse, New Road Avenue, Chatham, Kent, ME4 6BE

Thank you for your support

Please indicate if you are a parent or unpaid carer. If you are a registered charity please give your charity registration number:

/ Resource Order Form continued…

All proceeds go towards helping families caring for individuals with severelearning disabilities and challenging behaviour. Thank you for your supportGift Aid means we can claim back the tax on your gift (25p for every £1 you give) at no extra cost toyou. If you are a UK tax payer and would like to Gift Aid your donation, please sign here:

*Free to parents/unpaid carers. Prices include postage & packing in the UK only.

SUB TOTAL CARRIED FORWARD

PLANNING FOR THE FUTURE

Cost Number Total £

Planning for the Future: IntroductionInformation sheet £1.00*

Planning for the FutureInformation pack: Wales / Scotland / N Ireland / (please specify)

£10.00*

Planning for the FutureInformation pack: EnglandNote: replaces our earlier Transition & Adult Options informationpacks – content remains the same

£10.00*

Challenge: Spring 2008 special issue‘Location, Location’ while stocks last

FREE

A New Pathway: DVDDVD overview of the Medway ChallengingBehaviour FE service. 20 minutes

£5.00*

A New Pathway: ReportA review of the planning model used todevelop the Medway Challenging Behaviour FEservice. 40 pages

£ 5.00*

DONATION – please consider a donation to support our work.Thank you

TOTAL