Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs Cancer Resourc… · Cancer...
30
Advising the Nation. Improving Health. INSTITUTE OF MEDICINE Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs The Institute of Medicine (IOM) was asked by the National Institutes of Health to form a committee to assess the current delivery of the wide range of psychosocial services that cancer patients and their families need and to recommend ways for improving how these services are provided. Resources for Information on Cancer and Free Psychosocial Health Services One of the IOM committee's overarching conclusions centers on the wide array of resources that already exist for cancer patients. The committee compiled two lengthy lists of some of these: Table 3-2 (see p. 2) from the report provides a list of selected sources of information on cancer and cancer-related services; Table 3-3 (see p. 10) also lists additional free psychosocial health services that are available to cancer patients and their families. Both of these tables highlight the potential for better delivery of psychosocial information and services if doc- tors give patients this kind of information and the patients follow up. The com- mittee acknowledged that some psychosocial problems, such as poverty, cannot be solved, but every cancer patient can be helped in some way. Approaches to Delivering Psychosocial Services An additional conclusion of the IOM committee identified three different approaches for delivering these psychosocial services to cancer patients. Services can be: 1) integrated into the current biomedical delivery system; 2) obtained from local resources; or 3) obtained from remote providers via the telephone or Internet. There are a number of examples of cancer care providers already deliv- ering psychosocial health services in these ways. These illustrate how each approach is possible (see p. 29).
Transcript of Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs Cancer Resourc… · Cancer...
Advising the Nation. Improving Health.
INSTITUTE OFMED
ICIN
E
Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs
The Institute of Medicine (IOM) was asked by theNational Institutes of Health to form a committee to assessthe current delivery of the wide range of psychosocialservices that cancer patients and their families need and torecommend ways for improving how these services areprovided.
Resources for Information on Cancer and Free Psychosocial Health Services
One of the IOM committee's overarching conclusions centers on the widearray of resources that already exist for cancer patients. The committee compiledtwo lengthy lists of some of these: Table 3-2 (see p. 2) from the report provides alist of selected sources of information on cancer and cancer-related services;Table 3-3 (see p. 10) also lists additional free psychosocial health services thatare available to cancer patients and their families. Both of these tables highlightthe potential for better delivery of psychosocial information and services if doc-tors give patients this kind of information and the patients follow up. The com-mittee acknowledged that some psychosocial problems, such as poverty, cannotbe solved, but every cancer patient can be helped in some way.
Approaches to Delivering Psychosocial ServicesAn additional conclusion of the IOM committee identified three different
approaches for delivering these psychosocial services to cancer patients. Servicescan be: 1) integrated into the current biomedical delivery system; 2) obtainedfrom local resources; or 3) obtained from remote providers via the telephone orInternet. There are a number of examples of cancer care providers already deliv-ering psychosocial health services in these ways. These illustrate how eachapproach is possible (see p. 29).
TABLE 3-2 Selected1 Nationwide Sources of Free Patient Information on Cancer and Cancer-Related Services Program Information Available On How to Access American Cancer Society (ACS) Cancer Reference Information
specific cancers, treatment, and psychosocial services
http://www.cancer.org/docroot/cri/cri_0.asp 1-800-ACS-2345 (toll free)
American Institute of Cancer Research
Nutrition, diet, and exercise to combat cancer
www.aicr.org 1–800–843–8114 (toll free) Its online Nutrition Hotline allows survivors to e-mail a personal nutrition and diet question to a registered dietician
Asian and Pacific Islander National Cancer Survivors Network
Information on where to obtain psychosocial services, and languages spoken by sources of the services
http://www.apiahf.com/devsearch/report.asp
Association of Cancer Online Resources
Types of cancer, treatment options, clinical trials, and locating support groups.
www.acor.org
Bladder Cancer Advocacy Network
Bladder cancer, other organizations with information on bladder cancer and that offer support services, finding clinical trials.
www.bcan.org 1-888-901-BCAN (toll free)
Bloch Cancer Foundation
Sources of information about cancer, treatments, and fighting cancer.
www.blochcancer.org 1-800-433-0464 (toll free)
Brain Tumor Society
General overview of brain tumors (symptoms, diagnosis, pathology, subtypes of brain tumors) and information on treatment options; complementary and alternative medicine; and finding brain tumor centers, financial and in surance resources; and support groups.
www.tbts.org 1-800-770-8287 (toll free)
1 The committee recognizes that there are many more organizations that provide free information services to cancer patients, and regrets the inability to acknowledge all of them in this report. The organizations included here are intended to illustrate the breadth of information services available at no cost to patients and should not be viewed as a complete list.
2
Cancer Research and Prevention Foundation
General overview of various types of cancer, treatment options, and emerging therapies.
www.preventcancer.org 1-800-227-2732 (toll free)
C3: Colorectal Cancer Coalition
Diagnosis, treatment options, dealing with side effects, and support services and resources
www.fightcolorectalcancer.org
CancerCare
Diagnoses, treatment types, and multiple psychosocial support services.
www.cancercare.org 1-800-813-HOPE (toll free)
Candlelighters Childhood Cancer Foundation
Treatments, finding support groups, financial assistance, cancer -related news, and where to find treatment clinics.
www.candlelighters.org 1-800-366-2223 (toll free)
Colon Cancer Alliance
Colorectal rectal cancer, treatment, clinical trials, finding support services.
www.ccalliance.org 1-877-422-2030 (toll free)
Colorectal Cancer Network
Colorectal cancer, treatment options, clinical trials, and finding treatment centers and support.
www.colorectal -cancer.net
CureSearch
Information on childhood cancers, treatments, side effects, hospitals, and clinical trials. Provides a directory of national and local support services
www.curesearch.org 1-800-458-6223 (toll free)
Facing Our Risk for Cancer Empowerment (Breast Cancer)
Telephone hotline matching patients to peer counselors and information about breast cancer.
www.facingourrisk.org 1-866-824-7475 (toll free)
fertileHope
Reproductive aspects of canc er and cancer treatment, parenthood options for persons at risk for infertility, clinical trials. Finding doctors/clinics specializing in fertility treatments Locating support services.
www.fertilehope.org 1-888-994-4673 (toll free) [email protected]
Program Information Available On How to Access
3
International Association of Laryngectomees
Locating a speech therapist or pathologists by state. Directory of laryngectomee suppliers.
www.larynxlink.com
International Myeloma Foundation
Myeloma, treatment options, managing side effects of t reatment and myeloma symptoms, finding clinical trials, locating support groups.
www.myeloma.org Telephone Hotline: Toll free at 1 (800) 452-CURE or 1 (800) 452 -2873 between 9 am and 4 pm PST. Contact via email: [email protected]
Kidney Cancer Association
Kidney cancer, types of surgical treatment, therapies for advanced kidney cancer, finding clinical trials, finding support groups, other cancer organizations, information on patient self-empowerment, Message board containing information on nutrit ion, diet, health insurance, financial resources.
www.akca.us www.nkca.org Nurse hotline: 1 -866-400-5151 (toll free), 9 am-4pm Pacific, Monday-Friday.
Lance Armstrong Foundation
Different types of cancer and their treatments; physical, practical and emotional concerns; clinical trials; and resource directories
www.livestrong.org one-on-one help at: 1-866-235-7205 (toll free)
The Leukemia and Lymphoma Society
Information on leukemia, lymphoma, and other blood cancers, finding support groups, development with treatment and disease, clinical trial updates.
Online chat with information specialist: www.leukemia-lymphoma.org; Monday through Friday, 10 a.m. to 5 p.m. ET Telephone inquirie s (Information Resource Center [IRC] ): 1-800-955-4572; Monday through Friday, 9 a.m. to 6 p.m. EST. IRC information specialists are social workers, nurses and health educators
Look Good …Feel Better Program
Appearance-related/cosmetic tips; e.g., skin care and make -up; hair care; hair loss; wig choice, styling and care.
www.lookgoodfeelbetter.org 1-800-395-LOOK phone access 24 hours/day, 7 days/week, in English, Spanish and other languages (toll free) Locating a Look Good Feel Better
Program in patients ’ areas.
Program Information Available On How to Access
4
Lymphoma Foundation of America
Finding lymphoma spec ialists. How to get a second opinion
www.lymphomahelp.org 1-800-385-1060 (toll free)
Lymphoma Research Foundation
Different types of lymphoma, treatment options, clinical trials, and finding peer support
www.lymphoma.org Helplines: Survivors hotli ne:1-800-500-9976 (toll free) [email protected]
Lung Cancer Alliance
Lung cancer, treatment options, clinical trials, finding support groups, other resources.
www.lungcanceralliance.org Hotline: 1-800-298-2436 (toll free)
The Lustgarten Foundation for Pancreatic Cancer Research
Pancreatic cancer and treatment Patient And Caregiver Education (PACE) program assists individuals to access information and support resources they need to make informed decisions. PACE is staffed by a full -time, licensed social worker, who addresses patient inquiries, conducts searches for individualized information and clinical trials, and provides referrals as needed.
www.lustgartenfoundation.org 1-866-789-1000 (toll free)
Melanoma Research Foundation
Melanoma, tests, and questions to ask patient’s doctor. List of melanoma centers by region.
www.melanoma.org 1-800-MRF-1290 (toll free)
Multiple Myeloma Research Foundation
Information on symptoms, diagnosis, prognosis, and stages; finding support groups; treatme nt options; matching clinical trials.
www.multiplemyeloma.org Information on clinical trials: Speak with a clinical trial specialist at 1-800-506-9044. Available Monday - Friday, 8:30 a.m. - 6:00 p.m. ET Locating clinical trials online: http://www.multip lemyeloma.org/clinical_trials/4.09.php
Program Information Available On How to Access
5
National Cancer Institute (NCI)
Different types of cancers; treatments; strategies for coping with fatigue, pain, emotional concerns; and clinical trials. Information specialists are available to answer a range of questions in “real time” about cancer including most recent treatment advances and can take as much time as needed for thorough and personalized responses.
http://www.cancer.gov/ Telephone inquiries: 1 -800-4-CANCER (1-800-422-6237) TTY: 1-800-332-8615 Monday through Friday, from 9:00 to 4:30 local time. (toll free) Online web inquiries via: https://cissecure.nci.nih.gov/livehelp/welcome.asp Email inquiries via: [email protected]
National Coalition for Cancer Survivorship
Online publicatio ns on types of health insurance and coverage; employment rights; advice on communicating with your doctor. Information on Palliative care and symptom management, diet/nutrition, clinical trials, importance of exercise. Finding cancer centers; support groups; other cancer organizations .
www.canceradvocacy.org To order hard copies of publications, call toll -free at 1-877.NCCS.YES or 1 -877-622-7937.
National Lung Cancer Partnership
General information about lung cancer. Resource to other cancer organizations, smoking cessation and prevention organizations.
www.nationallungccancerpartnership.org
National Lymphedema Network
Lymphedema, causes, symptoms, and treatment. Treatment centers, suppliers, and manual lymphatic drainage therapists. Finding emotional support groups, penpals, and netpals.
www.lymphnet.org 1-800-541-3259 (toll free)
National Ovarian Cancer Coalition (NOCC)
Ovarian cancer and clinical trials. Finding NOCC state chapters for support and educational programs.
www.ovarian.org 1-888-OVARIAN (toll free)
Database for findi ng gynecologic oncologists.
Program Information Available On How to Access
6
National Prostate Cancer Coalition
General facts and informatio n about prostate cancer; screening; risk factors; staging; side effects; information on diet/nutrition; treatment options.
www.fightprostatecancer.org
Needy Meds Programs that help with the cost of medicine and other healthcare expenses.
www.needymeds.com
North American Brain Tumor Coalition
Brain tumor facts, update on brain tumor policy issues.
www.nabraintumor.org
The Oral Cancer Foundation
Oral cancer, treatment, rehabilitation, dental issues, and emotional issues
www.oralcancerfoundation. org
Ovarian Cancer National Alliance
Ovarian cancer, symptoms, stages, diagnosis, approaches to treatment, and finding a clinical trial.
www.ovariancancer.org 866-399-6262 (toll free) [email protected]
Pancreatic Cancer Action Network (PanCAN)
Types of pancreatic cancer, treatment options, side effects of treatment, diet and Nutrition, pancreatic cancer specialists and cancer centers, clinical trials, location of educational symposiums in the U.S. about pancreatic cancer. Offers Patient and Lia ison Services (PALS), a comprehensive, call -in information program for patients, families and health professionals.
www.pancan.org 1-877-272-6226 (toll free) email [email protected] to connect with a PALS Associate Monday through Friday, 8:00 am to 5:00 p m (Pacific Time).
People Living With Cancer (sponsored by the American Society of Clinical Oncology (ASCO))
Cancer, types of cancer, diagnosis, finding an oncologist, treatment, coping, managing side effects, survivorship, clinical trials Finding emotional support services, financial assistance, treatment, and
www.plwc.org 1-888-651-3038 (toll free) [email protected] [email protected] [email protected]
Planet Cancer (targeted to young adults with cancer)
Practical advice on dealing with side effects and coping with cancer, news/articles on cancer research.
www.planetcancer.org email: [email protected]
Prostate Cancer Foundation
Prostate cancer, treatment options, side effects, nutrition and othe r lifestyle practices to improve health.
www.prostatecancerfoundation.org 1-800-757-2873 (toll free) [email protected]
Program Information Available On How to Access
7
Sarcoma Foundation of America
Types of sarcomas, symptoms, diagnosis; treatment options; links to other sarcoma organizations; information on clinical trials.
www.curesarcoma.org
Shop Well With You
Customized clothing tips arranged by cancer-related treatments and side-effects. Directory of cancer -specific products such as swimsuits and head coverings and where items can be located, Guidance on how to use clothing and accessories to maintain a positive body-image during and after treatment Articles and books on body -image, clothing, cancer, and wellness.
www.shopwellwithyou.org
The Skin Cancer Foundation
Various types of skin cancer, treatment, and health care after treatment. Finding a skin cancer physician.
www.skincancer.org 1-800-754-6490 (toll free) [email protected]
Support for People with Oral and Head and Neck Cancer
Oral, head, and neck cancers; treatments, clinical trials, rehabilitation and resources to improve or manage symptoms of cancer or its treatment. Developments in treating head and neck cancer.
Free booklet on www.spohnc.org 1-800-377-0928 (toll free) [email protected]
Susan G. Komen for the Cure
Breast cancer, treatment, care after treatment, support services, and research.
www.komen.org 1-800-462-9273 (toll free)
The Testicular Cancer Resource Center
Testicular cancer, treatment, clinical follow-up after treatment, coping, experts in testicular cancer, and life after treatment.
http://tcrc.acor.org email questions: [email protected]
Thyroid Cancer Survivors’ Association, Inc.
Thyroid cancer, treatment, nutrition and diet, finding a specialist and support groups.
www.thyca.org 1-877-588-7904 (toll free) [email protected]
Program Information Available On How to Access
8
US Too (for prostate cancer)
Prostate cancer, treatment options, post treatment issues, clinical trials,
www.ustoo.org Hotline: 1-800-808-7866 (toll free)
Women’s Cancer Network
Various types of cancers, treatment, symptom management, care issues affecting women with cancer, clinical trials, and finding an oncologist.
www.wcn.org 1-800-444-4441 (toll free)
Y-ME National Breast Cancer Organization, Inc.
Breast cancer, treatment, side effec ts, clinical trials, coping, and quality of life issues.
Brochures by mail (English and Spanish) Internet: www.y-me.org 24 hour toll free, national hotline staffed by trained survivors: 1-800-221-2141 (English) 1-800-986-9505 (Spanish) Interpreters available for 150 languages Free, monthly one -hour teleconferences on breast cancer issues with presentation by a medicaprofessional followed by a question and answer session.
Program Information Available On How to Access
9
TABL
E 3
-3 S
elec
ted
Psyc
hoso
cial
Ser
vice
s (O
ther
than
Info
rmat
ion)
Ava
ilabl
e at
no
Cos
t to
Indi
vidu
als/
Fam
ilies
with
Can
cer
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
Cou
nsel
ing
Cou
nsel
ing
Am
eric
an P
sych
osoc
ial
Onc
olog
y So
ciet
y C
ouns
elin
g—Te
leph
one
refe
rral
.
ww
w.a
pos-
soci
ety.
org
1-86
6-27
6-74
43 (t
oll f
ree)
In a
ll 50
stat
es.
Hel
plin
e se
rved
186
cal
lers
in 2
006
.
Cou
nsel
ing
Can
cerC
are
C
ouns
elin
g—Fa
ce-to
-fac
e,
onlin
e, te
leph
one.
ww
w.c
ance
rcar
e.or
g 1-
800-
813-
HO
PE (t
oll f
ree)
In a
ll 50
stat
es.
42,6
80 in
divi
dual
s fro
m a
ll 50
stat
es
rece
ived
cou
nsel
ing,
edu
catio
n, su
ppor
t gr
oup,
refe
rral o
r fin
anci
al a
ssis
tanc
e in
FY
2005
(und
uplic
ated
cou
nt).
C
ouns
elin
g Ly
mph
oma
Foun
datio
n of
A
mer
ica
(L
ymph
oma)
C
ouns
elin
g—on
e-on
-one
te
leph
one
and
peer
co
unse
ling.
ww
w.ly
mph
omah
elp.
org
1-
800-
385-
1060
(tol
l fre
e)
In a
ll 50
stat
es.
In 2
005,
pro
vide
d co
unse
ling
to 1
,300
pa
tient
s
Dec
ision
Sup
port
D
ecisi
on
supp
ort
AC
S’ R
each
to R
ecov
ery
(Bre
ast C
ance
r)
Dec
ision
supp
ort b
y pr
ovid
ing
info
rmat
ion
thro
ugh
face
-to-f
ace
visi
ts
or te
leph
one
conv
ersa
tions
.
ww
w.c
ance
r.org
/doc
root
/ESN
/co
nten
t/ESN
_3_1
x_R
each
_to_
Rec
over
y_5.
asp
1-80
0-A
CS-
2345
(tol
l fre
e)
Dec
ision
su
ppor
t Li
ving
Bey
ond
Brea
st
Can
cer
(Bre
ast C
ance
r)
Info
rmed
dec
ision
m
akin
g—ed
ucat
ion
conf
eren
ces a
nd
tele
conf
eren
ces.
ww
w.lb
bc.o
rg
1-88
8-75
3-52
22 (t
oll f
ree)
In a
ll 50
stat
es.
10
Dec
ision
su
ppor
t Pa
ncre
atic
Can
cer
Act
ion
Net
wor
k (P
ancr
eatic
C
ance
r)
Dec
ision
supp
ort—
in
form
atio
n fro
m tr
aine
d pr
ofes
sion
al v
ia te
leph
one
or e
mai
l.
ww
w.p
anca
n.or
g 1-
877-
272-
6226
(tol
l fre
e)
In a
ll 50
stat
es.
In 2
006,
pro
vide
d de
cisio
n su
ppor
t to
6,65
5 pe
ople
via
e-m
ail o
r tel
epho
ne
Educ
atio
n Ed
ucat
ion
AC
S’ L
ook
Goo
d…Fe
el
Bette
r Pr
ogra
m
Gro
up o
r one
-on-
one
prog
ram
pro
vidi
ng b
eaut
y tip
s and
cos
met
olog
ic
assi
stan
ce to
hel
p pa
tient
s co
pe w
ith sk
in c
hang
es a
nd
hair
loss
and
oth
er e
ffect
s of
can
cer t
reat
men
t.
ww
w.lo
okgo
odfe
elbe
tter.o
rg
1-80
0-39
5-LO
OK
(tol
l fre
e)
Educ
atio
n A
CS’
I C
an C
ope
Prog
ram
Ed
ucat
ion—
com
mun
ity o
r on
line
clas
ses o
n ca
ncer
m
anag
emen
t, tre
atm
ent,
finan
cial
con
cern
s, co
mm
unity
reso
urce
s, nu
tritio
n, e
mot
iona
l m
atte
rs, a
nd
com
mun
icat
ion
skill
s.
ww
w.c
ance
r.org
/doc
root
/ESN
/co
nten
t/ESN
_3_1
X_I
_Can
_Cop
e.a
sp
1-80
0-A
CS-
2345
(tol
l fre
e)
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
11
Educ
atio
n A
mer
ican
Inst
itute
of
Can
cer
Res
earc
h
Adv
ice
and
info
rmat
ion
on
heal
th q
uesti
ons a
nd
nutri
tion
answ
ered
by
a di
etiti
an.
ww
w.a
icr.o
rg
1–80
0–84
3–81
14 (t
oll f
ree)
In a
ll 50
stat
es.
Educ
atio
n Bl
adde
r C
ance
r A
dvoc
acy
Net
wor
k (B
ladd
er C
ance
r)
Educ
atio
n—te
leph
one
wor
ksho
ps.
ww
w.b
can.
org
In a
ll 50
stat
es.
Educ
atio
n Br
ain
Tum
or S
ocie
ty
(BTS
) O
ne-d
ay se
min
ars,
annu
al
conf
eren
ces,
and
sym
posiu
m.
ww
w.tb
ts.or
g 3
one-
day
sem
inar
s in
3 U
.S. c
ities
Ave
rage
s app
roxi
mat
ely
100
peop
le a
t ea
ch se
min
ar
Educ
atio
n C
ance
rCar
e
Educ
atio
n—ca
ncer
type
s, tre
atm
ent o
ptio
ns, q
ualit
y-
of-li
fe c
once
rns.
ww
w.c
ance
rcar
e.or
g 1-
800-
813-
HO
PE (t
oll f
ree)
In a
ll 50
stat
es.
42,6
80 in
divi
dual
s fro
m a
ll 50
stat
es
rece
ived
cou
nsel
ing,
edu
catio
n, su
ppor
t gr
oup,
refe
rral o
r fin
anci
al a
ssis
tanc
e in
FY
2005
(und
uplic
ated
cou
nt).
A
n ad
ditio
nal 4
5,30
0 un
dupl
icat
ed
indi
vidu
als p
artic
ipat
ed in
tele
phon
e ed
ucat
ion
wor
ksho
ps.
Ed
ucat
ion
Gild
a’s C
lub
Wor
ldw
ide
Le
ctur
es a
nd w
orks
hops
to
canc
er p
atie
nts a
nd th
eir
fam
ilies
on
how
to li
ve w
ith
canc
er. T
opic
s inc
lude
str
ess r
educ
tion,
nut
ritio
n,
and
prac
tical
issu
es.
ww
w.g
ildas
club
.org
1-
888-
GIL
DA
-4-U
(tol
l fre
e)
Free
stand
ing
Gild
a’s C
lubs
in
19 c
ities
in th
e U
.S.
In 2
006,
172
,000
mem
ber v
isits
to
Gild
a’s C
lubs
acr
oss t
he U
.S. (
not
incl
udin
g gu
ests
and
visit
ors)
.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
12
Educ
atio
n In
tern
atio
nal M
yelo
ma
Foun
datio
n (I
MF)
Se
min
ars a
nd sy
mpo
sia fo
r pa
tient
s and
fam
ilies
on
topi
cs in
clud
ing
man
agin
g sid
e ef
fect
s, be
com
ing
a be
tter p
atie
nt, a
nd
unde
rsta
ndin
g la
b re
sults
.
ww
w.m
yelo
ma.
org
1-80
0-45
2-28
73 (t
oll f
ree)
4-6
sem
inar
s /s
ympo
sia
year
ly
in d
iffer
ent
regi
ons o
f the
US
App
roxi
mat
ely
200-
250
peop
le a
ttend
ea
ch se
min
ar/sy
mpo
sia e
ach
year
.
Educ
atio
n K
idne
y C
ance
r A
ssoc
iatio
n —
Patie
nt/s
urvi
vor
conf
eren
ce o
n to
pics
in
clud
ing
kidn
ey c
ance
r pa
thol
ogy
and
type
s of
treat
men
t and
ther
apy.
ww
w.n
kca.
org
2-3
patie
nt/
surv
ivor
co
nfer
ence
s in
US
year
ly. T
hree
co
nfer
ence
s will
be
hel
d in
200
7.
95 p
eopl
e re
giste
red
for
Janu
ary
2007
Pa
tient
/Sur
vivo
r Con
fere
nce.
Educ
atio
n Th
e Le
ukem
ia a
nd
Lym
phom
a So
ciet
y P
rovi
des e
duca
tion
and
info
rmat
ion
targ
eted
to
patie
nts,
surv
ivor
s, an
d ca
regi
vers
. Top
ics
incl
ude
treat
men
t opt
ions
and
how
to
stre
ngth
en c
opin
g an
d de
cisi
on-m
akin
g sk
ills.
ww
w.le
ukem
ia-ly
mph
oma.
org
C
hapt
ers i
n al
l 50
stat
es
Educ
atio
n Li
ving
Bey
ond
Brea
st
Can
cer
Supp
ort s
ervi
ces.
N
ews o
n ed
ucat
iona
l bre
ast
canc
er c
onfe
renc
es a
nd
wor
ksho
ps in
the
coun
try.
ww
w.lb
bc.o
rg
1-88
8-75
3-52
22 (t
oll f
ree)
Con
fere
nces
/ w
orks
hops
m
ostly
in
Phila
delp
hia
area
. N
atio
nal
conf
eren
ces
annu
ally
in
varie
d ci
ties
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
13
Educ
atio
n Ly
mph
oma
Foun
datio
n of
A
mer
ica
(Lym
phom
a)
Educ
atio
n pr
ogra
ms—
qual
ity o
f life
issu
es.
Topi
cs in
clud
e ar
t the
rapy
, he
alin
g, a
nd su
ppor
t for
ca
regi
vers
.
ww
w.ly
mph
omah
elp.
org
1-
800-
385-
1060
(tol
l fre
e)
In a
ll 50
stat
es.
Educ
atio
n Ly
mph
oma
Res
earc
h Fo
unda
tion
(Lym
phom
a)
Educ
atio
n w
orks
hops
, w
ebca
sts/p
odca
sts,
tele
conf
eren
ces
and
foru
ms
disc
ussin
g a
rang
e of
topi
cs
incl
udin
g tre
atm
ent o
ptio
ns
and
supp
ort i
ssue
s.
ww
w.ly
mph
oma.
org
1-80
0-50
0-99
76 (t
oll f
ree)
he
lplin
e@ly
mph
oma.
org
Stat
e ch
apte
rs
acro
ss th
e U
.S.
As o
f 200
7 to
dat
e, 1
0,55
4 pa
tient
s, su
rviv
ors a
nd lo
ved
ones
hav
e re
ceiv
ed
educ
atio
n
Educ
atio
n M
en A
gain
st B
reas
t C
ance
r
(Bre
ast C
ance
r)
Educ
atio
n—w
orks
hops
gi
ving
info
rmat
ion
and
prac
tical
adv
ice
for p
atie
nts
and
fam
ilies
.
info
@m
enag
ains
tbre
astc
ance
r.or
g 1-8
66-5
47-6
222
In a
ll 50
stat
es.
Perfo
rmed
edu
catio
n w
orks
hops
in 1
5 sta
tes i
nclu
ding
Was
hing
ton,
DC
.
75 p
eopl
e w
ill b
e at
tend
ing
Con
fere
nce
in 2
007.
Educ
atio
n M
ultip
le M
yelo
ma
Foun
datio
n—Se
min
ars f
or
patie
nts a
nd c
areg
iver
s on
late
st re
sear
ch
deve
lopm
ents
ww
w.m
ultip
lem
yelo
ma.
org
In
200
7, th
ree
sem
inar
s to
be
held
in B
osto
n,
Phila
delp
hia,
and
Pa
lo A
lto, C
A.
In 2
006,
sym
posia
in A
tlant
a,
Cle
vela
nd, H
ousto
n, L
os A
ngel
es a
nd
New
Yor
k av
erag
ed 1
24 a
ttend
ees
each
.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
14
Educ
atio
n N
atio
nal C
oalit
ion
for
Can
cer
Surv
ivor
ship
—
Self-
lear
ning
aud
io
prog
ram
that
edu
cate
s ca
ncer
pat
ient
s on
deve
lopi
ng sk
ills,
such
as
com
mun
icat
ing,
ne
gotia
ting,
pro
blem
-so
lvin
g, a
nd d
ecisi
on-
mak
ing
skill
s, to
hel
p th
em
bette
r cop
e w
ith th
eir
canc
er.
ww
w.c
ance
rsur
viva
ltool
box.
org
In
all
50 st
ates
. D
istrib
uted
app
roxi
mat
ely
30,0
00
canc
er S
urvi
vor T
oolb
oxes
as a
CD
set
in 2
005
and
2006
Educ
atio
n Pa
ncre
atic
Can
cer
Act
ion
Net
wor
k (P
ancr
eatic
C
ance
r)
Educ
atio
nal w
orks
hops
and
co
nfer
ence
s.
ww
w.p
anca
n.or
g 1-
877-
272-
6226
(tol
l fre
e)
In 2
006
held
sy
mpo
sia in
C
hica
go, N
ew
Yor
k an
d Lo
s A
ngel
es; f
ive
sym
posia
sc
hedu
led
for
2007
App
roxi
mat
ely
170
atte
ndee
s at e
ach
2006
sym
posiu
m
Educ
atio
n Th
yroi
d C
ance
r Su
rviv
ors’
Ass
ocia
tion,
In
c. (T
hyro
id C
ance
r)
Educ
atio
nal w
orks
hops
ww
w.th
yca.
org
1-87
7-58
8-79
04 (t
oll f
ree)
th
yca@
thyc
a.or
g
Cha
pter
s in
36
citie
s and
tow
ns
in th
e U
.S. s
tate
s.
Ann
ual c
onfe
renc
e dr
aws o
ver 4
00
parti
cipa
nts.
Wor
ksho
ps h
ave
a to
tal o
f 20
0-40
0 pa
rtici
pant
s dep
endi
ng o
n ho
w m
any
wor
ksho
ps ta
ke p
lace
in a
pa
rticu
lar y
ear.
H
oldi
ng 5
free
one
-day
regi
onal
w
orks
hops
, plu
s an
annu
al 3
- day
In
tern
atio
nal T
hyro
id C
ance
r Su
rviv
ors’
Con
fere
nce,
in 2
007.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
15
Educ
atio
n U
S To
o
(Pro
stat
e C
ance
r)
Educ
atio
n w
orks
hops
—in
-pe
rson
and
tele
phon
e.
ww
w.u
stoo.
org
1-80
0-80
8-78
66 (t
oll f
ree)
Ove
r 300
stat
e ch
apte
rs a
cros
s U
.S.
Educ
atio
n Th
e W
elln
ess C
omm
unity
Ed
ucat
ion
wor
ksho
ps.
ww
w.th
ewel
lnes
scom
mun
ity.o
rg
1-88
8-79
3-W
ELL
(toll
free)
21 W
elln
ess
Com
mun
ities
and
28
sate
llite
ce
nter
s in
the
U.S
.
186,
000
uniq
ue v
isito
rs to
The
Virt
ual
Wel
lnes
s Com
mun
ity.
Educ
atio
n Y
-ME
Nat
iona
l Bre
ast
Can
cer
Org
aniz
atio
n, In
c.
(Bre
ast C
ance
r)
Educ
atio
n te
leco
nfer
ence
s.
ww
w.y
-me.
org
1-
800-
221-
2141
(tol
l fre
e)
16 Y
-ME
loca
l af
filia
tes i
n va
rious
regi
ons
of th
e U
.S.
Emot
iona
l Sup
port
Em
otio
nal
supp
ort
Am
eric
an C
ance
r So
ciet
y (A
CS)
Can
cer
Surv
ivor
s N
etw
ork
Find
ing
supp
ort g
roup
s, re
laxa
tion
clas
ses,
canc
er-r
elat
ed
com
mun
ity e
vent
s, ca
ncer
boo
ks
and
artic
les.
ww
w.a
cscs
n.or
g
Emot
iona
l su
ppor
t A
CS’
Man
-to-M
an
Prog
ram
(Pro
stat
e C
ance
r)
Pers
onal
visi
ts an
d te
leph
one
emot
iona
l su
ppor
t and
info
rmat
ion
on
pros
tate
can
cer.
ww
w.c
ance
r.org
/doc
root
/ESN
/co
nten
t/ESN
_3_1
X_M
an_t
o_M
an_
36.a
sp
1-80
0-A
CS-
2345
(tol
l fre
e)
Emot
iona
l su
ppor
t A
CS’
Rea
ch to
Rec
over
y
(Bre
ast C
ance
r)
Emot
iona
l sup
port
—fa
ce-
to-fa
ce o
r tel
epho
ne.
ww
w.c
ance
r.org
/doc
root
/ESN
/co
nten
t/ESN
_3_1
x_R
each
_to_
Rec
over
y_5.
asp
1-80
0-A
CS-
2345
(tol
l fre
e)
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
16
Emot
iona
l su
ppor
t A
ssoc
iatio
n of
Can
cer
Onl
ine
Res
ourc
es
Emot
iona
l sup
port
—on
line
chat
.
ww
w.o
ncoc
hat.o
rg
In a
ll 50
stat
es.
Emot
iona
l su
ppor
t Bl
och
Can
cer
Foun
datio
n
Emot
iona
l sup
port
—te
leph
one,
pee
r mat
chin
g
ww
w.b
loch
canc
er.o
rg
1-80
0-43
3-04
64 (t
oll f
ree)
In a
ll 50
stat
es.
In 2
006,
rece
ived
nea
rly 3
,700
cal
ls an
d e-
mai
ls fro
m p
eopl
e re
ques
ting
info
rmat
ion
and/
or a
mat
ch w
ith a
su
rviv
or o
f the
sam
e ty
pe o
f can
cer.
M
atch
ed m
ore
than
1,1
00 p
eopl
e w
ith
one
or m
ore
of th
e ne
arly
500
can
cer
surv
ivor
s aro
und
the
coun
try w
ho
volu
ntee
r for
Blo
ch C
ance
r Fo
unda
tion.
Em
otio
nal
supp
ort
Blad
der
Can
cer
Adv
ocac
y N
etw
ork
(Bla
dder
Can
cer)
O
nlin
e em
otio
nal s
uppo
rt gr
oup.
ww
w.b
can.
org
In a
ll 50
stat
es.
Emot
iona
l su
ppor
t Br
ain
Tum
or S
ocie
ty
CO
PE P
rogr
am is
a
mat
chin
g pr
ogra
m th
at
prov
ides
em
otio
nal s
uppo
rt
by e
mai
l or t
elep
hone
.
ww
w.tb
ts.or
g To
par
ticip
ate
in th
e C
OPE
Pr
ogra
m, c
all t
oll f
ree
at 1
-800
-77
0-TB
TS (8
287)
, ext
25,
or
emai
l sup
port@
tbts.
org.
In a
ll 50
stat
es.
31 p
eopl
e m
atch
ed in
200
6
Emot
iona
l su
ppor
t C
ance
r H
ope
Net
wor
k
Emot
iona
l sup
port
—on
e-on
-one
.
1-87
7-46
7-36
38 (t
oll f
ree)
In
all
50 st
ates
. C
urre
ntly
pro
vide
s ab
out 2
000
peer
-to-
peer
mat
ches
per
yea
r.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
17
Emot
iona
l su
ppor
t C
ance
r In
form
atio
n an
d C
ouns
elin
g Li
ne
(Affi
liate
of A
MC
Can
cer
Res
earc
h C
ente
r)
Gen
eral
info
rmat
ion,
em
otio
nal s
uppo
rt th
roug
h te
leph
one
coun
selin
g to
ca
ncer
pat
ient
s and
thei
r fa
mili
es.
1-80
0-52
5-37
77 (t
oll f
ree)
ci
cl@
amc.
org
In a
ll 50
stat
es.
Emot
iona
l su
ppor
t C
olon
Can
cer
Alli
ance
(C
olon
Can
cer)
Em
otio
nal s
uppo
rt—
peer
-to
-pee
r mat
chin
g pr
ogra
m.
ww
w.c
calli
ance
.org
1-
877-
422-
2030
(tol
l fre
e)
38 st
ate
chap
ters
in
the
U.S
.
Emot
iona
l su
ppor
t Fa
cing
Our
Risk
for
Can
cer
Em
pow
erm
ent
(Bre
ast C
ance
r)
Emot
iona
l sup
port
thro
ugh
onlin
e ch
at.
ww
w.fa
cing
ourri
sk.o
rg
1-86
6-82
4-74
75 (t
oll f
ree)
In a
ll 50
stat
es.
Emot
iona
l su
ppor
t G
ilda’
s Clu
b W
orld
wid
e
Lect
ures
and
wor
ksho
ps to
ca
ncer
pat
ient
s and
thei
r fa
mili
es o
n ho
w to
live
with
ca
ncer
. Top
ics i
nclu
de
stres
s red
uctio
n, n
utrit
ion,
an
d pr
actic
al is
sues
.
ww
w.g
ildas
club
.org
1-
888-
GIL
DA
-4-U
(tol
l fre
e)
Free
stand
ing
Gild
a’s C
lubs
in
19 c
ities
in th
e U
.S.
In 2
006,
172
,000
mem
ber v
isits
to
Gild
a’s C
lubs
acr
oss t
he U
.S. (
not
incl
udin
g gu
ests
and
visit
ors)
.
Emot
iona
l su
ppor
t La
nce
Arm
stro
ng
Foun
datio
n (L
AF)
Em
otio
nal s
uppo
rt an
d co
unse
ling
ww
w.li
vestr
ong.
org
1-86
6-23
5-72
05
1-80
0-62
0-61
67 (c
linic
al tr
ial)
In a
ll 50
stat
es.
In F
ebru
ary
2007
, 647
pat
ient
s co
ntac
ted
Live
stron
g. O
f tha
t, Li
vestr
ong
refe
rred
373
to C
ance
rCar
e,
257
wer
e re
ferre
d to
Pat
ient
Adv
ocat
e Fo
unda
tion,
and
82
wer
e m
atch
ed to
cl
inic
al tr
ials
.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
18
Emot
iona
l su
ppor
t
The
Leuk
emia
and
Ly
mph
oma
Soci
ety
Emot
iona
l sup
port
—In
-pe
rson
, onl
ine
chat
, or p
eer-
to-p
eer s
uppo
rt.
ww
w.le
ukem
ia-ly
mph
oma.
org
C
hapt
ers i
n al
l 50
stat
es
Emot
iona
l su
ppor
t Li
ving
Bey
ond
Brea
st
Can
cer
(Bre
ast C
ance
r)
Emot
iona
l sup
port
—on
e-on
-one
via
tele
phon
e.
ww
w.lb
bc.o
rg
1-88
8-75
3-52
22 (t
oll f
ree)
In a
ll 50
stat
es.
Emot
iona
l su
ppor
t Lu
ng C
ance
r A
llian
ce
(Lun
g C
ance
r)
Emot
iona
l sup
port
—te
leph
one
peer
-to-p
eer
(Pho
ne B
uddy
Pro
gram
), on
line
com
mun
ity.
ww
w.lu
ngca
ncer
allia
nce.
org
1-
800-
298-
2436
(tol
l fre
e)
In a
ll 50
stat
es.
Tele
phon
e re
ferra
l hot
line
field
s 5,0
00
calls
and
resp
onds
to a
t lea
st an
othe
r 20
00 re
ques
ts fo
r inf
orm
atio
n vi
a e
-m
ail a
yea
r. A
t lea
st 75
% o
f the
5,0
00
calls
are
refe
rred
to o
ther
org
aniz
atio
ns
for s
uppo
rt, fi
nanc
ial a
ssist
ance
, etc
. O
nlin
e em
otio
nal s
uppo
rt co
mm
unity
cu
rrent
ly h
as o
ver 1
,100
regi
stere
d us
ers a
nd o
ver 2
mill
ion
hits
to th
e si
te
a m
onth
. Ph
one
Bud
dy P
rogr
am h
as m
ade
350
indi
vidu
al m
atch
es in
200
6.
Emot
iona
l su
ppor
t Ly
mph
oma
Foun
datio
n of
A
mer
ica
(L
ymph
oma)
Em
otio
nal s
uppo
rt—
in-
pers
on g
roup
s.
ww
w.ly
mph
omah
elp.
org
1-
800-
385-
1060
(tol
l fre
e)
In a
ll 50
stat
es.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
19
Emot
iona
l su
ppor
t Ly
mph
oma
Res
earc
h Fo
unda
tion
(Lym
phom
a)
Emot
iona
l sup
port
—on
e-on
-one
pee
r sup
port
prog
ram
.
ww
w.ly
mph
oma.
org
1-80
0-50
0-99
76 (t
oll f
ree)
he
lplin
e@ly
mph
oma.
org
Stat
e ch
apte
rs
acro
ss th
e U
.S.
Bas
ed o
n se
rvic
e de
liver
ed d
urin
g th
e fir
st ha
lf of
200
7, a
n es
timat
ed 5
76
patie
nts a
nd c
areg
iver
s will
be
mat
ched
fo
r pee
r sup
port
as o
f 200
7.
Emot
iona
l su
ppor
t N
atio
nal O
vari
an C
ance
r C
oalit
ion
(Ova
rian
Can
cer)
Te
leph
one
peer
-to-p
eer
emot
iona
l sup
port
and
info
rmat
ion
on o
varia
n ca
ncer
.
ww
w.o
varia
n.or
g 1-
888-
682-
7426
(tol
l fre
e)
80 li
cens
ed
divi
sions
in 4
2 U
.S. s
tate
s.
Emot
iona
l su
ppor
t O
ral C
ance
r Fo
unda
tion
(O
ral C
ance
r)
Emot
iona
l sup
port
—on
line
peer
-to-p
eer s
uppo
rt.
ww
w.o
ralc
ance
rfoun
datio
n.or
g
In a
ll 50
stat
es.
Emot
iona
l su
ppor
t Pa
ncre
atic
Can
cer
Act
ion
Net
wor
k
(Pan
crea
tic C
ance
r)
Emot
iona
l sup
port
—te
leph
one
or e
mai
l.
ww
w.p
anca
n.or
g 1-
877-
272-
6226
(tol
l fre
e)
In a
ll 50
stat
es.
In 2
006,
pro
vide
d em
otio
nal s
uppo
rt to
6,
655
peop
le v
ia e
-mai
l or t
elep
hone
Emot
iona
l su
ppor
t Pl
anet
Can
cer
Emot
iona
l sup
port
—re
treat
s and
onl
ine.
ww
w.p
lane
tcan
cer.o
rg
Onl
ine
supp
ort -
in
all
50 st
ates
. R
etre
ats h
eld
annu
ally
.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
20
Emot
iona
l su
ppor
t Pr
egna
nt W
ith C
ance
r
Emot
iona
l sup
port
—pe
er-
to-p
eer v
ia te
leph
one
or
emai
l.
ww
w.p
regn
antw
ithca
ncer
.org
1-
800-
743-
4471
(tol
l fre
e)
In a
ll 50
stat
es.
Mak
es a
ppro
xim
atel
y 10
0 m
atch
es a
ye
ar. H
ave
appr
oxim
atel
y 50
,000
un
ique
visi
tors
to th
e Pr
egna
nt w
ith
Can
cer w
ebsit
e an
nual
ly.
Em
otio
nal
Supp
ort
Star
light
Sta
rbri
ght
Chi
ldre
n’s F
ound
atio
n
Find
ing
regi
onal
offi
ces a
cros
s th
e U
.S. f
or a
cces
sing
emot
iona
l su
ppor
t and
edu
catio
n.
ww
w.sl
sb.o
rg
Emot
iona
l su
ppor
t Su
ppor
t for
Peo
ple
with
O
ral a
nd H
ead
and
Nec
k C
ance
r (H
ead
and
Nec
k C
ance
r)
Emot
iona
l sup
port
—m
atch
ing
peer
-to-p
eer.
ww
w.sp
ohnc
.org
1-
800-
377-
0928
(tol
l fre
e)
info
@sp
ohnc
.org
54 c
hapt
ers i
n ci
ties/
tow
ns
acro
ss th
e U
.S.
Emot
iona
l Su
ppor
t Te
stic
ular
Can
cer
Res
ourc
e C
ente
r (T
estic
ular
Can
cer)
Em
otio
nal s
uppo
rt gr
oups
—em
ail f
or c
ance
r pa
tient
s and
car
egiv
ers.
ww
w.tc
rc.a
cor.o
rg
In a
ll 50
stat
es.
Emot
iona
l su
ppor
t Th
yroi
d C
ance
r Su
rviv
ors’
Ass
ocia
tion,
In
c. (T
hyro
id C
ance
r)
Emot
iona
l sup
port
—e-
mai
l or
face
-to-fa
ce.
ww
w.th
yca.
org
1-87
7-58
8-79
04 (t
oll f
ree)
th
yca@
thyc
a.or
g
Cha
pter
s in
36
citie
s and
tow
ns
in th
e U
.S. s
tate
s.
App
roxi
mat
ely
11,0
00 a
nnua
lly
rece
ive
help
from
em
ail a
nd fa
ce-to
-fa
ce e
mot
iona
l sup
port.
W
eb si
te re
ceiv
es o
ver 2
50,0
00 v
isits
each
mon
th.
Em
otio
nal
supp
ort
Ulm
an C
ance
r Fu
nd fo
r Y
oung
Adu
lts
Emot
iona
l sup
port
—e-
mai
l pe
er g
roup
s.
ww
w.u
lman
fund
.org
1-
888-
393-
FUN
D (t
oll f
ree)
Spon
sors
8
supp
ort g
roup
s na
tiona
lly in
6
diff
eren
t citi
es.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
21
Emot
iona
l su
ppor
t U
S To
o
(Pro
stat
e C
ance
r)
Emot
iona
l sup
port
grou
ps—
in-p
erso
n an
d on
line.
ww
w.u
stoo
.org
1-
800-
808-
7866
(tol
l fre
e)
Ove
r 300
stat
e ch
apte
rs a
cros
s U
.S.
Emot
iona
l su
ppor
t Th
e W
elln
ess C
omm
unity
Em
otio
nal s
uppo
rt gr
oups
—on
line
and
in-
pers
on.
ww
w.th
ewel
lnes
scom
mun
ity.o
rg
1-88
8-79
3-W
ELL
(toll
free)
21 W
elln
ess
Com
mun
ities
and
28
sate
llite
ce
nter
s in
the
U.S
.
In 2
005:
Ser
ved
mor
e th
an 2
16,0
00
peop
le: 3
0,00
0 in
supp
ort g
roup
s and
ot
her f
ace-
to-f
ace
prog
ram
s;
186,
000
uniq
ue v
isito
rs to
The
Virt
ual
Wel
lnes
s Com
mun
ity.
Emot
iona
l su
ppor
t W
omen
’s C
ance
r N
etw
ork
Em
otio
nal s
uppo
rt—
onlin
e po
sting
s.
ww
w.w
cn.o
rg
In a
ll 50
stat
es.
Emot
iona
l su
ppor
t Y
-ME
Nat
iona
l Bre
ast
Can
cer
Org
aniz
atio
n, In
c.
(Bre
ast C
ance
r)
Emot
iona
l sup
port
—m
atch
ing
canc
er p
atie
nts o
r fa
mily
mem
bers
with
su
rviv
ors.
ww
w.y
-me.
org
1-
800-
221-
2141
(tol
l fre
e)
16 Y
-ME
loca
l af
filia
tes i
n va
rious
regi
ons
of th
e U
.S.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
22
Fina
ncia
l Ass
istan
ce
Fina
ncia
l as
sist
ance
Br
ain
Tum
or S
ocie
ty
CA
RES
Fin
anci
al
Ass
istan
ce P
rogr
am
prov
ides
gra
nts u
p to
$2
,000
per
fam
ily, p
er y
ear
for s
peci
fic n
on-m
edic
al
cost
s rel
ated
to a
prim
ary
brai
n tu
mor
dia
gnos
is su
ch
as tr
ansp
orta
tion,
hom
e he
alth
ass
ista
nce
rela
ted
to
brai
n tu
mor
dia
gnos
is,
hom
e ad
apta
tion
rela
ted
to
brai
n tu
mor
dia
gnos
is, a
nd
child
car
e.
ww
w.tb
ts.or
g 1-
800-
770-
8287
(tol
l fre
e)
In a
ll 50
stat
es.
102
gran
ts aw
arde
d in
200
6.
Fina
ncia
l as
sist
ance
C
ance
rCar
e
Fina
ncia
l ass
ista
nce.
ww
w.c
ance
rcar
e.or
g 1-
800-
813-
HO
PE (t
oll f
ree)
In
all
50 st
ates
. In
fisc
al y
ear 2
006,
3,4
82 p
atie
nts
rece
ived
$1,
812,
206
for u
nmet
fin
anci
al n
eeds
such
as c
hild
car
e,
hom
e ca
re, a
nd li
ving
exp
ense
s. In
the
fir
st 8
mon
ths o
f fisc
al y
ear 2
007,
2,
069
rece
ived
$72
7,74
5 in
such
fin
anci
al a
ssis
tanc
e.
Fina
ncia
l as
sist
ance
H
ill-B
urto
n Pr
ogra
m
Fina
ncia
l ass
ista
nce
at fr
ee
or re
duce
d co
sts o
f hea
lth
care
serv
ices
to e
ligib
le
patie
nts.
ww
w.h
rsa.
gov/
hillb
urto
n/de
fau
lt.ht
m
1-80
0-63
8-07
42 (t
oll f
ree)
In a
ll st
ates
ex
cept
IN, N
E,
NV
, RI,
UT,
WY
. A
s of A
pril
2007
, 26
0 ob
ligat
ed
Hill
-Bur
ton
Faci
litie
s.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
23
Fina
ncia
l as
sist
ance
Th
e Le
ukem
ia a
nd
Lym
phom
a So
ciet
y Fi
nanc
ial a
ssis
tanc
e fo
r se
rvic
es su
ch a
s spe
cific
ap
prov
ed d
rugs
for
treat
men
t/con
trol o
f le
ukem
ia, H
odgk
in a
nd
non-
Hod
gkin
lym
phom
a an
d m
yelo
ma;
pro
cess
ing,
ty
ping
, scr
eeni
ng a
nd c
ross
-m
atch
ing
of b
lood
co
mpo
nent
s for
tra
nsfu
sion
s; tr
ansp
orta
tion
to a
trea
tmen
t cen
ter o
r fa
mily
supp
ort g
roup
; x-r
ay
ther
apy.
Also
offe
rs
finan
cial
ass
ista
nce
for
insu
ranc
e co
-pay
men
ts.
ww
w.le
ukem
ia-ly
mph
oma.
org
Cha
pter
s in
all 5
0 sta
tes.
Fina
ncia
l as
sist
ance
Lym
phom
a R
esea
rch
Foun
datio
n Fi
nanc
ial a
ssist
ance
for U
S ly
mph
oma
patie
nts t
o he
lp
pay
for t
reat
men
t-re
late
d ex
pens
es
ww
w.ly
mph
oma.
org
1-80
0-50
0-99
76 (t
oll f
ree)
In a
ll 50
stat
es
App
roxi
mat
ely
81 g
rant
s aw
arde
d ye
arly
Fina
ncia
l as
sist
ance
Patie
nt A
dvoc
ate
Foun
datio
n (P
AF)
Fi
nanc
ial a
ssis
tanc
e.
ww
w.p
atie
ntad
voca
te.o
rg
1-80
0-53
2-52
74 (t
oll f
ree)
he
lp@
patie
ntad
voca
te.o
rg
In a
ll 50
stat
es.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
24
Fina
ncia
l as
sist
ance
Su
pple
men
tal S
ecur
ity
Inco
me
(SSI
) Fi
nanc
ial a
ssis
tanc
e fo
r m
edic
ally
det
erm
inab
le
need
y ag
ed (6
5 ye
ars o
ld o
r ol
der)
, blin
d, o
r disa
bled
pe
rson
s.
1-80
0-77
2-12
13 (t
oll f
ree)
In
all
50 st
ates
. A
n es
timat
ed 5
3,37
6 in
divi
dual
s und
er
65 y
ears
old
wer
e re
ceiv
ing
SSI
bene
fits b
ecau
se o
f can
cer d
iagn
osis
in
Dec
embe
r 200
3 (IO
M, 2
006)
.
Fina
ncia
l Ass
istan
ce a
nd C
ouns
elin
g Fi
nanc
ial
assi
stan
ce a
nd
coun
selin
g
Lanc
e A
rmst
rong
Fo
unda
tion
(LA
F)
Fina
ncia
l cou
nsel
ing.
ww
w.li
vestr
ong.
org
1-86
6-23
5-72
05 (
toll
free)
1-
800-
620-
6167
(clin
ical
tria
l)
In a
ll 50
stat
es.
In F
ebru
ary
2007
, 647
pat
ient
s co
ntac
ted
Live
stron
g; 3
73 w
ere
refe
rred
to C
ance
rCar
e, 2
57 w
ere
refe
rred
to P
atie
nt A
dvoc
ate
Foun
datio
n.
Hou
sing
Hou
sing
AC
S’ H
ope
Lodg
e Te
mpo
rary
hou
sing
for
patie
nts d
urin
g tre
atm
ent.
http
://w
ww
.can
cer.o
rg/d
ocro
ot/S
HR
/con
tent
/SH
R_2
.1_x
_Hop
e_L
odge
.asp
1-
800-
AC
S-23
45
22 lo
catio
ns in
18
U.S
. Sta
tes
incl
udin
g Pu
erto
R
ico.
Lega
l Adv
ice/
Ass
istan
ce
Lega
l adv
ice/
as
sist
ance
Ly
mph
oma
Foun
datio
n of
A
mer
ica
(L
ymph
oma)
Le
gal e
xper
t ref
erra
l.
Rep
rese
ntat
ion
on jo
b se
curit
y an
d pa
tient
righ
ts
ww
w.ly
mph
omah
elp.
org
1-
800-
385-
1060
(tol
l fre
e)
In a
ll 50
stat
es.
In 2
005,
mad
e 24
-36
refe
rrals
Lega
l adv
ice/
as
sist
ance
C
ance
r L
egal
Res
ourc
e C
ente
r H
otlin
e th
at m
atch
es c
ance
r pa
tient
s and
surv
ivor
s to
volu
ntee
r atto
rney
s for
in
form
atio
n w
hen
poss
ible
. H
otlin
e al
so p
rovi
des
info
rmat
ion
and
reso
urce
s on
can
cer-
rela
ted
lega
l is
sues
.
ww
w.ll
s.edu
/aca
dem
ics/c
andp
/cl
rc.h
tml
866-
THE-
CLR
C (t
oll f
ree)
In a
ll 50
stat
es.
Rec
eive
s ap
prox
imat
ely
3,50
0 ca
lls p
er
year
on
its p
hone
line
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
25
Psyc
hoso
cial
Se
rvic
e Pr
ogra
mH
ow to
Acc
ess
Loca
tions
A
vaila
ble
Cap
acity
Tra
nspo
rtat
ion
Tran
spor
tatio
n A
CS
Am
eric
an C
ance
r So
ciet
y R
oad
to R
ecov
ery
Rou
ndtri
p tra
nspo
rtatio
n fo
r ca
ncer
pat
ient
s fro
m h
ome
to tr
eatm
ent c
ente
r.
http
://w
ww
.can
cer.o
rg/d
ocro
ot/C
OM
/con
tent
/div
_Sou
thea
st/C
OM
_4_2
x_R
oad_
to_R
ecov
ery_
Serv
ice
_Pro
gram
.asp
?site
area
=CO
M
1-80
0-A
CS-
2345
(tol
l fre
e)
Tran
spor
tatio
n C
ance
rCar
e
ww
w.c
ance
rcar
e.or
g
1-80
0-81
3-H
OPE
(tol
l fre
e)
In a
ll 50
stat
es.
14,9
19 p
atie
nts p
rovi
ded
$3,0
05,6
79 in
fina
ncia
l gra
nts i
n fis
cal y
ear 2
006
to p
ay fo
r tra
nspo
rtatio
n.O
ther
C
areg
iver
su
ppor
t N
atio
nal F
amily
C
areg
iver
Sup
port
Pr
ogra
mPr
ovid
es c
areg
iver
s who
ca
re fo
r old
er c
itize
ns (6
0 ye
ars o
ld +
) and
gr
andp
aren
ts (6
0 ye
ars o
ld
+) o
f gra
ndch
ildre
n no
ol
der t
han
18ye
ars o
ld w
ithin
form
atio
n fo
r ser
vice
s av
aila
ble;
indi
vidu
al
coun
selin
g, o
rgan
izat
ion
ofsu
ppor
t gro
ups,
and
care
give
r tra
inin
g; re
spite
ca
re; s
uppl
emen
tal s
ervi
ces,
on a
lim
ited
basi
s.
http
://w
ww
.aoa
.gov
/pro
f/aoa
prog
/car
egiv
er/c
areg
iver
.asp
A
vaila
ble
in 5
0 st
ates
. 3.
8 m
illio
n in
divi
dual
s rec
eive
d in
form
atio
n ab
out c
areg
iver
pro
gram
s an
d se
rvic
es.
436,
000
care
give
rs re
ceiv
ed a
ssis
tanc
e in
acc
essi
ng se
rvic
es.
Alm
ost 1
80,0
00 c
areg
iver
s rec
eive
d co
unse
ling
and
train
ing
serv
ices
.
70,0
00 re
ceiv
ed re
spite
.
50,0
00 c
areg
iver
s rec
eive
d su
pple
men
tal s
ervi
ces.
26
Logi
stic
al
supp
ort
U.S
Adm
inist
ratio
n on
A
ging
Su
ppor
tive
serv
ices
to o
lder
ci
tizen
s and
car
e gi
vers
. Se
rvic
es in
clud
e tra
nspo
rtatio
n to
med
ical
ap
poin
tmen
ts a
nd fi
nanc
ial
coun
selin
g.
ww
w.a
oa.g
ov
Ava
ilabl
e in
all
50 st
ates
.
Wig
s and
Pr
osth
esis
Y
-ME
Nat
iona
l Bre
ast
Can
cer
Org
aniz
atio
n, In
c.
(Bre
ast C
ance
r)
Prov
ides
free
wig
s and
pr
osth
esis
.
ww
w.y
-me.
org
1-
800-
221-
2141
(tol
l fre
e)
16 Y
-ME
loca
l af
filia
tes i
n va
rious
regi
ons
of th
e U
.S.
Psyc
hoso
cial
Se
rvic
e Pr
ogra
m
How
to A
cces
s Lo
catio
ns
Ava
ilabl
e C
apac
ity
27
Addressing Patients’ Needs:Three Approaches
The IOM committee on Cancer Care for the Whole Patient identifies three approaches for providingpsychosocial health services to cancer patients. For more information, please see Chapter 5 in the report.
Collocated, Integrated Psychosocial and Biomedical Health CareThe Rebecca and John Moores Cancer Center, University of California, San Diego
The Moores Cancer Center's Science of Caring program provides comprehensive psychosocialhealth care integrated with biomedical treatment for all cancer patients seen in its outpatient clinic.Every patient uses a laptop computer to complete a touch-screen questionnaire, which provides an auto-matic link to psychosocial health services. For problems requiring a more complex intervention, theautomated screening tool generates an e-mail to the appropriate team member. Psychosocial care is coor-dinated with medical care through meetings and direct, face-to-face communication among providers,and follow-up on the services occurs regularly. The West Clinic, Memphis, Tennessee
The West Clinic consists of three free-standing ambulatory oncology practices in metropolitanMemphis, plus three satellite offices nearby. Screening of patients for psychosocial health problems andquality-of-life assessments take place at every visit by means of a computer-based screening instrument,which collects information from individuals about their cancer-related symptoms while they are in thewaiting room. For some psychosocial health problems, patients receive the needed services directly onsite; for others, they are referred to resources in the community.
Provision of Psychosocial Health Services Using Local ResourcesKansas City Cancer Center
The KCCC addresses patients' psychosocial health problems by linking patients with communityproviders. Nurse practitioners screen patients at their initial and subsequent visits using a one-pagescreening tool to detect psychosocial health problems. Based on the results of the screen and periodicpsychosocial assessments, nurses link patients with multiple psychosocial services available in theKansas City area. Psychosocial health issues are addressed during and after treatment. The KCCC alsohas a survivorship program that provides education about the adjustments required after treatment. Tahoe Forest Cancer Center
The TFCC uses the resources of its community hospital to address patients’ psychosocial healthneeds as part of regular oncology care. The solo oncologist practice uses hospital personnel to helpaddress psychosocial needs of patients including social services; nutritional counseling; rehabilitationtherapy; and support group meetings for cancer patients, family and friends at the hospital's local Centerfor Health and Sports Performance. Patients' psychosocial needs are identified during office visits orweekly meetings of the entire team. Coordination efforts with biomedical care and follow up are per-formed by TFCC nurses.
Use of Remote Providers of Psychosocial Health Services When a clinical practice has few staff, limited resources, or is located where there are few or no psy-
chosocial health care resources, such as in rural or remote areas, the only way to provide psychosocialhealth services on a frequent and timely basis may be to link patients with remote providers throughtelephone or Internet access.
This option may also be preferred by some individuals, even when psychosocial health services areavailable in their communities. Those with rare cancers may wish to connect with others who have thesame type of cancer. Others may simply desire the convenience or anonymity of using the telephone orthe Internet in their own homes. In particular, adolescents and young adults who use the Internet routine-ly also may prefer this mode of communicating.
29
![University of Groningen Psychosocial interventions for fatigue … · 2017. 11. 7. · [Intervention Review] Psychosocial interventions for fatigue during cancer treatment with palliative](https://static.fdocuments.net/doc/165x107/5ff1250ca53a420cb65705c0/university-of-groningen-psychosocial-interventions-for-fatigue-2017-11-7-intervention.jpg)
