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    Chronic Eye DiseaseChronic Eye DiseasePilot ProgrammePilot Programme

    ARMDARMDBrighton & Hove PCTBrighton & Hove PCT

    Gek OngGek OngProject ManagerProject ManagerBSUHBSUH

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    What is ARMD?What is ARMD?

    Most common cause of blindness inMost common cause of blindness in>65 yrs>65 yrs

    Mild changes: drusenMild changes: drusen Severe changesSevere changes

    dry AMDdry AMD

    wet AMD: Classic/Occultwet AMD: Classic/Occult

    No treatment for most patients untilNo treatment for most patients untilrecently: PDTrecently: PDT

    Treatment needs to be deliveredTreatment needs to be delivered

    quicklyquickly

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    Project AimsProject Aims

    Increase awareness of patients to check andIncrease awareness of patients to check andreport loss of vision in one eyereport loss of vision in one eye

    Training for optometrists to maximise abilityTraining for optometrists to maximise abilityto diagnose ARMD accuratelyto diagnose ARMD accurately

    Rapid access for patients to specialist clinicsRapid access for patients to specialist clinicsfor Fluorescein Angiography and treatmentfor Fluorescein Angiography and treatment

    Assess role of telemedicine to improveAssess role of telemedicine to improvediagnostic accuracydiagnostic accuracy

    Faster access to social service/ rehabilitationFaster access to social service/ rehabilitationsupportsupport

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    Key Step 1Key Step 1

    IMPROVING ACCESSIMPROVING ACCESS

    by enhancing the role of communityby enhancing the role of communitybased optometristsbased optometrists

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    Key Step 2Key Step 2

    ENHANCING HES SERVICESENHANCING HES SERVICES

    to provide streamline access toto provide streamline access to

    investigation/treatment/education clinicinvestigation/treatment/education clinicfor patients with ARMDfor patients with ARMD

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    Key Step 3Key Step 3

    IMPROVING EFFICIENCYIMPROVING EFFICIENCY

    create stronger links and communicationcreate stronger links and communicationwith local voluntary/support groups whowith local voluntary/support groups who

    provide rehabilitation support andprovide rehabilitation support and

    information for people with recent sightinformation for people with recent sightlossloss

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    Current ARMD PathwayCurrent ARMD Pathway

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    Patients with

    visual problem

    A&E

    Clinic

    Ophthalmologist

    FFA Clinic

    Retinal Clinic

    Diagnosis

    Starts treatment regime

    Treat-

    able?

    YES

    ECLO

    Counselling/Support Group

    Low Vision Services

    Social Service Support

    ROVI

    NO

    GPHigh Street

    Optometrist

    Problems with Current Services:

    y Lack of collaboration between

    healthcare and social serviceproviders

    y Lack of timely diagnosis and ease

    ofaccess to treatments/social

    services for patients with ARMD

    y

    Too many inappropriate referrals;5:1 (Liverpool study, 2004)

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    Key Step 1Key Step 1

    IMPROVING ACCESSIMPROVING ACCESS

    by enhancing the role of communityby enhancing the role of communitybased optometristsbased optometrists

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    Community OptometristsCommunity Optometrists

    Establishing and maintaining essentialEstablishing and maintaining essentialskills: use of slit lampskills: use of slit lamp

    Lecture to optometrists re diagnosis ofLecture to optometrists re diagnosis ofARMDARMD

    Periodical attendance of ARMD clinicPeriodical attendance of ARMD clinic

    Detailed protocol and guidelines forDetailed protocol and guidelines forreferring ARMD ptsreferring ARMD pts

    Accredited optometrists to refer dry ARMDAccredited optometrists to refer dry ARMDdirect to social services etcdirect to social services etc

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    But first..But first..How good are optometrists inHow good are optometrists in

    detecting ARMD?detecting ARMD?

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    Optometrists

    Direct referral to HES

    1-2 wks appt

    Macular Clinic

    Ophthalmologist

    FFA

    needed?

    FFA Clinic

    Ophthalmologist

    Diagnosis

    Treatment Date within a week

    Treatable?

    YES: CNV or Suspected CNV ARMD

    YES

    ECLO

    Counselling/Support Group

    Low Vision Services

    Social Service SupportROVI

    NO

    NO: Non CNV ARMD

    PDT Treatment

    CNV or Suspected CNV

    ARMDNon CNV ARMD

    Education Services led by

    nurses

    Camera Digital Assessment

    On Going Review

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    Key Step 2Key Step 2

    ENHANCING HES SERVICESENHANCING HES SERVICES

    to provide streamline access toto provide streamline access to

    investigation/treatment/education clinicinvestigation/treatment/education clinicfor patients with ARMDfor patients with ARMD

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    Patients with

    visual problem

    A&E

    Clinic

    Ophthalmologist

    FFA Clinic

    Retinal Clinic

    Diagnosis

    Starts treatment regime

    Treat-able?

    YES

    ECLO

    Counselling/Support Group

    Low Vision Services

    Social Service Support

    ROVI

    NO

    GPHigh Street

    Optometrist

    Too much unnecessary delays in

    the present pathway!

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    Diagnosis of treatable ARMDDiagnosis of treatable ARMD

    Fluorescein AngiographyFluorescein Angiography

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    Macular Clinic Ophthalmologist

    FFA

    needed?

    FFA Clinic

    Ophthalmologist

    Diagnosis

    Treatment Date within a week

    Treatable?

    YES

    YES

    ECLO

    NO

    NO

    Macular Clinic Ophthalmologist

    FFA

    needed?

    FFA Clinic

    Ophthalmologist

    Diagnosis

    Treatment Date within a week

    Treatable?

    YES

    YES

    ECLO

    NO

    NO

    HES ServicesHES ServicesOne-Stop

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    Key Step 3Key Step 3

    IMPROVING EFFICIENCYIMPROVING EFFICIENCY

    create stronger links and communicationcreate stronger links and communicationwith local voluntary/support groups whowith local voluntary/support groups who

    provide rehabilitation support andprovide rehabilitation support and

    information for people with sight lossinformation for people with sight loss

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    SussexEyeHospitalSussexEyeHospital

    ARMD Support GroupARMD Support Group Established since 1995Established since 1995

    Led by a senior Ophthalmic Nurse withLed by a senior Ophthalmic Nurse with

    Rehabilitation Officer (ROVI)Rehabilitation Officer (ROVI) Once a month; pt rings to book appt.Once a month; pt rings to book appt.

    All ARMD pts attending HES clinic areAll ARMD pts attending HES clinic aregiven:given:

    ARMD selfARMD self--help guide (SEH)help guide (SEH)

    Support Group leafletSupport Group leaflet

    ARMD guide with diet info & AmslerARMD guide with diet info & Amsler

    chart (MDS)chart (MDS)

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    Support Group Format 1Support Group Format 1

    Describe ARMD & typesDescribe ARMD & types

    Discuss investigations carried out eg. FFADiscuss investigations carried out eg. FFA

    Discuss medical treatment available forDiscuss medical treatment available forWet ARMD eg. Argon laser & PDTWet ARMD eg. Argon laser & PDT

    Alternative treatment on the market eg.Alternative treatment on the market eg.Ocuvite, IOcuvite, I--CapCap

    Nutritional advice: dark green leafyNutritional advice: dark green leafyvegetables, carrotsvegetables, carrots

    Check what problems the pts areCheck what problems the pts are

    experiencing. Can ROVI help?experiencing. Can ROVI help?

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    Support Group Format 2Support Group Format 2

    Refer to the appropriate ROVI dependingRefer to the appropriate ROVI dependingon where the patient liveson where the patient lives

    Refer to the LVA clinic if requiredRefer to the LVA clinic if required Record action in the pts notes.Record action in the pts notes.

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    Presently ARMD pts are informed ofPresently ARMD pts are informed ofthis Support Group when attendingthis Support Group when attendingHES clinicHES clinic

    Plan to provide info pack forPlan to provide info pack foroptometrists for their ARMD pts.optometrists for their ARMD pts.

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    Social Services/Rehab SupportSocial Services/Rehab Support

    Local centres for visually impairedLocal centres for visually impaired

    RedRed--Cross;Cross;

    RNIB;RNIB; Brighton Society for the BlindBrighton Society for the Blind

    Facilities:Facilities:

    social services; community low visionsocial services; community low visionclinics; training facilities such as kitchenclinics; training facilities such as kitchenset up with talking microwave, talkingset up with talking microwave, talkingscales; TV screen enlargers; softwarescales; TV screen enlargers; software

    for enlarging computer screenfor enlarging computer screen

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    Project MeasuresProject Measures

    Traditional Pathway durationTraditional Pathway duration

    Time from symptoms to optician, toTime from symptoms to optician, toGP, to clinic to accurate diagnosisGP, to clinic to accurate diagnosis

    New Pathway durationNew Pathway duration

    Proportion of patients referred attendProportion of patients referred attendthe appointments /and take upthe appointments /and take upopportunities around pathway supportopportunities around pathway supportservicesservices

    Number of people presenting with multipleNumber of people presenting with multiple

    eye conditionseye conditions

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    Final ModelFinal Model

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    Optometrists with digital

    Camera

    Direct referral to HES

    1-2 wks appt

    Macular Clinic Ophthalmologist

    FFA

    needed?

    FFA Clinic

    Ophthalmologist

    Diagnosis

    Treatment Date within a week

    Treatable?

    YES

    YES

    ECLO

    Counselling/Support Group

    Low Vision Services

    Social Service Support

    ROVI

    NO

    NO

    PDT Treatment

    CNV or Suspected CNV ARMD

    Non CNV ARMD

    Education Services led by nurses

    Telemedicine:

    Printout/CD

    Ophthalmologist

    On Going Review

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    Thank YouThank You