Around the Network:Multi-state Collaborative Projects

Mark Canfield, PhD

On behalf of the NBDPN Data Committee

• National Prevalence Estimates• Data Briefs• Race/Ethnicity and “Spinoff”

Projects • Other Pending Projects

National Prevalence EstimatesNBDPN

• 1999-2001 (Canfield et al., 2006)

• 2004-2006 (Parker et al., 2010)

• 2008-2012 (Mai et al., 2016)

NBDPN Annual Data Briefs

CCHD prevalence (2012)

Orofacial clefts prevalence (2013)

Prevalence of trisomies (2014)

Variation in prevalence estimates (2015)

Race/Ethnicity and “Spinoff” Projects, NBDPN, 1999-2007 Dataset

Race/Ethnicity and major birth defects (published 2014)

• Nativity and major birth defects (foreign vs. U.S.-born)

• American Indians and major birth defects (not officially started)

• Time trends for a spectrum of birth defects (may be updated with more data)

• Air pollution and orofacial clefts (based on resident county)

“Spinoff” Projects on SurvivalNBDPN, 1999-2007

• Racial/Ethnic differences in survival of major birth defects (published 2015)

• Survival study of trisomies (under journal revision)

• Survival study of birth defects in Hispanic subgroups (analyses completed)

Other Pending Projects, NBDPN

• Gastroschisis – descriptive update/recent trends

(MMWR 2016)

• Pyloric stenosis – may update with newer data

• Interpregnancy interval

• Biliary atresia

• Update on state NTD recurrence prevention activities

(NTD Surveillance/FA Education Committee)

Questions?