Annual Review 2009-10

Annual Review 2009-10

impact

Above: Care team member Angela Cook with Hugh Smith in the hydrotherapy pool at Robin House.

Below: Singer/Songwriter Leon Jackson supported ‘Bring A £ To Work Day’ and met Amy Rose Jones at Rachel House.

Right: Young volunteer Alice Eade helps in the Rachel House kitchen at the weekends.

Reflecting on our

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I wonder if you have ever met someone who hasmade a real impact on your life? Perhaps youhope you have made an impact on others, atwork or among family or friends. The theme for this year’s Annual Review is ‘impact’, theimpact CHAS has on children, families, volunteers and supporters and, of course, theimpact they have on us.

The dictionary speaks about impact in terms of effector influence and this rang a bell with me as I thoughtback on the work done over the year. This Reviewtries to capture the essence of what we do and itspages include stories and news of our activities overthe past year that shows real impact. But you know,sometimes even a small and often unnoticed thingcan have a significant effect or be of some majorinfluence. We see this all the time at CHAS; theunderstanding listener, the warm welcome, the reassuring word, the comforting arm. One parentsummed it up by saying, “CHAS has put the life backinto our family.”

Last year, over 288 children, young people and theirfamilies were helped by CHAS and I hope our impactwas both positive and supportive. Their involvementwith us certainly influences every aspect of what wedo and how we do it, from our staff and 900 volunteers to our loyal supporters who choose todonate to CHAS. Together we have all made a difference in this past year and from that solid basewe plan to do it all again next year, and the year afterand for as long as there is need for us.

Professor Gordon DicksonChairperson

Making a difference together

The Children’s Hospice Association Scotland (CHAS) is a Scottish charity that provides the only hospice services in Scotland for children and young people with life-limiting conditions.

A children’s hospice offers professional care, practical help and emotional support to the whole family usually from the day of acceptance, to the death of their child, and beyond.

Rachel House in Kinross, Scotland’s first children’s hospice, opened in March 1996. Robin House inBalloch opened in August 2005. Both hospices are purpose-built and each can provide ongoing support for over 200 families across Scotland each year. CHAS also provides a home care service,called CHAS at Home, staffed from both hospices and with a dedicated team in Inverness. The serviceoffers care to families in their own homes when they need it most.

Children’s Hospice Association ScotlandAnnual Review 2009-10

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Above: The Carle family – Katie, sister Danielle, dad Jim and mum Tracey.

Below: Sister Danielle reads Katie one of her favourite books.

Right: Mum Tracey with Katie.

Bottom Right: Siblings Sam McGuire and Jordan Graham have fun at Robin House.

on families

For Tracey and Jim Carle, Robin House has beena lifeline since their daughter Katie showed herfighting spirit and proved doctors wrong.

Sitting in Katie’s bedroom at Robin House, you’dthink this was any four year old’s room – bright pictures on the wall, pink bedspread and plentyof toys. Instead, this is one of the eight bedrooms at Robin House Children’s Hospicewhere Katie and her family are staying for arespite break.

On Christmas Eve 2009, the family were faced with avery different situation. In December Katie had asevere seizure due to her cerebral palsy whichcaused brain damage. For two weeks she was in acoma and on a life-support machine in hospital, withher parents constantly by her side. The doctors toldTracey and Jim that it was time for the family todecide when to turn off the life-support machine andmake funeral arrangements. It was an agonisingdecision for mum and dad.

On 27 December Katie’s life-support machine wasturned off but miraculously the family’s hopes wererealised when she started breathing on her own.“Katie has a habit of proving doctors wrong,” hermum smiles, “she’s still here, beating the odds sixmonths later.”

When the family were referred to Robin House inFebruary 2010 they were nervous and unsure what toexpect. It wasn’t until they walked through the doorsand met the staff that they realised it was just whatthey needed. As Jim explains, “We get much neededcare for Katie, free time to spend with her sisterDanielle or all together as a family. Plus a decentmeal!”

Tracey continues, “Katie’s more relaxed when she’shere and she loves playing with the sensory lights.We’ve been able to take her out on day trips and herfavourite thing is being in the hydrotherapy pool withher dad and sister.”

For 13 year old Danielle, who helps care for Katiewhen she’s not at school, Robin House enables herto simply be a teenager and meet other children.Tracey proudly admits the sisters have an unbelievable bond despite the age gap. Providingequal support for Danielle and Katie is something the family really appreciate.

Summing up his thoughts on Robin House as hegives Katie a cuddle Jim says, “At home there’salways coming or going and the phone’s ringing allthe time so you’re constantly stressed. The nightbefore you leave Robin House you don’t want toleave. When you’re here you can forget what you’rehere for.”

In their own words

SIBLING SUPPORT In 2009 CHAS spoke to brothers and sisters using Robin House toassess the effectiveness of our sibling support. The study produced awide range of results, including that 92% of the children wanted RobinHouse to stay in touch with them when they were at home and 54%preferred to speak to one person about how they feel, rather than in agroup. The study will help CHAS develop sustainable sibling supportand address the needs and rights of every sibling that uses our services.


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Above: Sara Penman and her mum Wendy enjoy some special time together.

Below: Dr Graham Burt with Avais Ahmed.

Right: Dad Steven Baxter spends time with Dylan.

Bottom Right: Matthew McFarlane and care team member Lynne McGill.

impactof care

It has been an incredibly busy year for RachelHouse and Robin House. We have seen someexciting developments in the wide-ranging careservices we provide. The families we help haveremained at the core of everything we do, toensure that we consistently offer them the bestpossible support year after year.

At Robin House we reached an important milestonethis year when we opened our eighth and final bedroom – bringing the hospice up to its full capacityfor the first time since its doors opened in 2005.Planned from the start, this marked the final integrated phase for Robin House.

CHAS also recognised the need to recruit three newpart-time doctors to support the CHAS MedicalDirector and provide specialist medical care atRachel House and Robin House.

CHAS staff at both hospices have been working hardover the past year as we helped more children andyoung people than ever before. A total of 288 childrenand young people used our services in 2009-10 andour dedicated team of staff are able to tailor the careeach child and family receives. For one family we created a pretend beach so that their very ill baby,who had never experienced the seaside, could feelsand between her toes. We also arranged for a younggirl, whose brother was receiving care in RachelHouse over a long period, to keep up with her schoolwork and spend time with her friends. Every aspectof care is considered down to the smallest detailenabling us to help families create moments they cantreasure.

The past year saw us review the way we providebereavement support. It is, of course, an integral partof the care we provide. We have been alongsidemany families during the incredibly hard experienceof bereavement with the aim of enabling them tocope with everyday life again. As a result of thereview we created family support teams in both hospices, incorporating social workers, child andfamily support workers, chaplains and activitiesteams to help families every way we can throughtheir journey.

One parent who spoke of the help they received fromthe hospices said, “Rachel House send out theirwarm hands and have held us up through everythingwhen we have needed someone.” But for us, it is ourprivilege to reach out to every family who enters ourdoor, and walk with them every step of the way.

Providing thebest care possible

CARE COMMISSION Rachel House and Robin House both received visits from the CareCommission in autumn 2009. The Care Commission regulates care services in Scotland and visits the hospices once a year to check thatthey are meeting the needs of families in our care. We were delighted toreceive a grade five which is classed as ‘very good’ for the quality of ourcare, support and staffing. A comment from the report read “They offer aflexible, individualised service which is greatly appreciated by families.”


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Above: Mum Claire and care team member Susan Harvey chat in the family’s home.

Below: Susan Harvey, care team member, helps care for Aidan when she visits the family.

Right: The Moir family enjoys quality time together with support from the CHAS at Home team.

Bottom Right: Euan and Jordan Graham helped to officially open the new CHAS at Home office in Inverness.

Creating an

Parents Claire and Paul Moir explain how theCHAS at Home team help them:

“Our son Aidan loves it when Susan and Fionafrom CHAS at Home visit. Aidan is blind so heloves hearing different voices and getting lots ofattention!

“Their visits mean that we can do simple things,like go shopping, and spend quality time withour other two children, knowing that Aidan isbeing well looked after.

“We can’t sing the team’s praises high enough,even through hard times we can chat to them.They just make life that little bit easier for us.”

For families who feel isolated due to their child’s condition, their location, or experiencing additionalstress, our CHAS at Home service is a vital lifeline.From the Northern Isles to Kelso in the ScottishBorders, the CHAS at Home team now support morefamilies than ever before. Over the past year 69 families used the CHAS at Home service with anaverage of 27 families receiving home care supportevery month.

Fulfilling our commitment to support familiesthroughout Scotland was put to the test this yearwhen Scotland faced its coldest winter for 30 years.The ever resourceful CHAS at Home team even battled heavy snowfall to reach one family 30 milesoutside Inverness, walking the last mile up a farmtrack in the snow!

The CHAS at Home team had their busiest month onrecord, providing 207 hours of care in February 2010.With an increased demand for home care, we recruited two new members to the team, bolstering itto seven staff across the two hospices and theInverness office, illustrating that the development ofthe service remains a top priority for CHAS.

For the first time the CHAS at Home service wasinspected by the Care Commission. The resultingreport praised the team highly for their flexible,adaptable and creative approach. We were delightedto receive such a glowing report.

The creativity of the team was further highlightedwhen staff in Inverness started a six month webcamtrial to keep in touch with young adults living in theremote Highlands. If this project is successful weplan to extend it next year.

Working hand in hand with Rachel House and RobinHouse, CHAS at Home is now a firmly establishedservice. The development of the home care teammeans that we are able to reach out to families andprovide help between their hospice visits, wheneverthey need an extra layer of support from us.

Reaching out tofamilies at home

CHAS AT HOME OFFICE MOVE Babs Henderson, Director of CHAS at Home: “Our move in April 2009 from a single room to five-room premiseswas a defining moment for the CHAS at Home team based inInverness. It makes such a difference to be able to invite families todrop by, whether it’s for a discussion in our formal meeting room abouttheir tailor-made care or a quick chat in the comfy seating area over a cup of tea and a biscuit.”


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Below: Adele fills up a Clothes Aid bag for CHAS.

Right: CHAS collecting cans.

Bottom Right: Sean O’Hagan and his dad Jim at the Lads and Dads’ weekend.

Sustaining our

Summary of Income, Expenditure and Funds 2007-08

IncomeDonations, fundraising and legaciesStatutory funding and grantsInvestment incomeTrading income

ExpenditureCharitable activitiesFundraisingTrading expensesGovernance costs and investment fees

SummaryDeficit for 2009-10Actuarial losses on pension schemeInvestment losses

Net movement in CHAS fundsFunds as at 31 March 2009Funds as at 31 March 2010

Funds as at 31 March 2010InvestmentsFixed assetsOther assetsRestricted funds

These figures are extracted from the 2009-10 Annual Report and Accounts and may not contain sufficient information to enable a full understanding of the financial affairs of CHAS.

The Annual Report and Accounts were approved by the CHAS Board on 28 June 2010. The Accounts have been audited by a qualified auditor, KPMG LLP, who gave an unqualified audit opinion. The Annual Report andAccounts will be filed with the Registrar of Companies following the Annual General Meeting on 13 September 2010.

The full Annual Report and Accounts can be viewed on the CHAS website at www.chas.org.uk or obtained from the Company Secretary at Canal Court, 42 Craiglockhart Avenue, Edinburgh, EH14 1LT.

£0008,3685,9641,019

900485

8,6796,9651,078

350286

(311)(1,395)6,860

(5,154)36,580

41,734

27,39312,1662,089

42,58641,734

Summary of Income, Expenditure and Funds 2009-10

The financial results for CHAS in 2009-10 havebeen quite remarkable. While the UK faced thereality of the global economic recession, CHAScontinued to pull out all the stops to continueraising funds. As a result in 2009-10 we recorded our highest ever total income, reaching£8.37 million.

Voluntary income, which encompasses donations,fundraising and legacies, brought in 71% of this totalincome. This simply proves what we already knew tobe true; that our supporters are incredibly loyal andgenerous to CHAS, even in the face of such a toughfinancial climate. An increased number of supporterswere also kind enough to remember CHAS in theirwills.

We must also give credit to our hard workingfundraising team, who ensured that the money keptcoming in. Trading income increased by 24% thanksto a new partnership with Clothes Aid, a door-to-doorclothes collection company, which raised over£100,000.

Statutory funding and grant income that CHASreceived totalled £1.02 million. CHAS secured highercontributions towards the cost of running our hospice services from the Scottish NHS Boards,Local Authorities and Government.

Of course, it is no secret that running Rachel House,Robin House and the CHAS at Home service comesat a high price, and despite these positive financialresults CHAS had a deficit of £311,000 in 2009-10.The increase in costs was due to a range of developments across the charity, including the opening of the eighth bed at Robin House and theexpansion of the CHAS at Home team. Our investments increased in value by £6.86 million, astrong result compared to the value decrease of£5.53 million the previous year.

CHAS is also proud to report that the cost of raisingfunds decreased in 2009-10. The ratio of cost versusincome dropped from 22% to 18%. This means thatfor every pound we receive, 82p goes directly intoproviding our vital hospice services.

It has been a record breaking year for CHAS financially – but we are not complacent and we arefocussed on using every donation wisely, so that thefamilies needing our services receive the best carepossible.

Pulling out all the stops


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LADS AND DADS’ WEEKENDIn March, Rachel House held its inaugural Lads and Dads’ weekend togive dads quality time with their sons. Each father and son formed a team and competed in a series of challenges against the other ladsand dads. The tasks included cooking a three course meal, ‘Guess theFilm’ and wheelchair football where the dads got to grips with manual wheelchairs. The weekend was a huge success and althoughonly one family left with a trophy, everyone left full of fun memories totreasure.

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Above: Volunteer Ian Cairns helps siblings Nia and Josh Simpson with their jigsaw during their stay at Rachel House.

Below: Retail volunteer Sandra Thomson sorts out the clothes in the CHAS Bazaar charity shop.

Right: Employees from John Lewis help in the Rachel House garden.

Bottom Right: Pupils from St Mungo’s High School in Falkirk act out a scene at the schools workshop.

Our volunteers

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At CHAS we rely on our volunteers day after day.Diligently working across Scotland, our volunteers help us in a variety of ways workingalongside our 232 members of staff, interactingwith families using the hospices and helping toshape our relationships with the wider community. Now more than ever, our volunteersare the link between our services and raisingawareness of CHAS in their local neighbourhoods, bringing the local communityinto the hospices and helping to make services accessible.

Our 900 volunteers from all backgrounds and agesprovide support across the whole organisationencompassing the hospices, fundraising, retail and inour offices. Volunteers donated 81,300 hours of theirtime last year which would have cost us £1.25 million.Amazingly, 14% of our dedicated volunteers havenow given at least ten years service.

A number of new volunteer roles were created thisyear, including volunteer photographers, who workalongside our fundraisers to provide us with aninvaluable image library of events and activities.There are now six volunteers working across thefundraising offices and, as we increasingly rely onphotography, this will continue to develop next year.

Over the last year we have had tremendous supportfrom 14 companies undertaking Employer SupportedVolunteering (ESV) projects. Giving their time for afew hours or a few days, teams from organisationsacross Scotland including Barclays, British Airways,John Lewis and Walkers Snacks have taken ondiverse projects for us from data inputting to gardening and painting at the hospices. Some ofthese companies have found the experience sorewarding that they have formed longer term linkswith us.

In the fundraising community we now have 19 Friendsof CHAS groups, community volunteers who organiselocal events and help spread the word about CHAS.From fashion shows to coffee mornings andChristmas card sales, the groups work tirelessly tosupport CHAS and help communicate our work.

The success of our programme to encourage youngvolunteers in the hospices continues to grow. Thereare now 43 young people under the age of 18 volunteering with us. A number of these have nowbeen with CHAS for over three years, having firstbeen introduced to CHAS while at school, and theyhave continued to support us at university or at work.

We are incredibly fortunate to have volunteers whoform an integral part of our care and support. Notonly do they donate their time, skills and experiencebut they champion our cause and help raise awareness of our vital services for children, youngpeople and their families throughout Scotland.

Helping us help others


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SCHOOL WORKSHOPS Garry Sloan, South East Volunteer Speaker, has been leading CHASschool workshops since December 2009:

“Working with children is great fun and very rewarding. I really enjoyhelping pupils get a better understanding of the challenges facing children with life-limiting conditions.

“The primary school kids ask the most interesting and insightful questions and the high school workshops use drama techniques whichmeans they’re always very creative – everything from a group of pupilson an imaginary trampoline right through to a roller coaster-hilarious!”

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Above: CHAS supporter Claire Kelly raised over £1,800 for CHAS on an eight day cycle around Vietnam and Cambodia.

Below: Real Radio presenters Robin Galloway and Ewen Cameron with ‘The Rachel’ and ‘The Robin’ pizzas.

Right: Retail volunteer Mairi Wheeler serves a customer in the CHAS Gift Shop.

Bottom Right: Staff member Michelle Robertson, family member Shahida Ahmed and staff member Evelyn Cairns.

Our supporters

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What a year it has been for CHAS fundraising. As the recession settled in at the end of lastyear, belts and purse strings were tightenedacross Scotland. It’s no secret that, althoughdetermined to succeed, we were preparing for a tough year ahead.

The astounding outcome was that, thanks to alot of hard work, we not only reached our voluntary income target during a ‘credit crunch’year but we raised £5.96 million– the highestincome ever from fundraising, trading and legacies.

So how did we achieve this? The result was whollydue to our incredible supporters, who continued toshow their generosity in difficult times. Individualswho kindly left us legacies made a huge impact, raising over £2 million alone – the most money CHAShas ever raised from legacies in one year.

Our retail team also had their best trading year thanksto a new partnership with clothes collection company,Clothes Aid, which brought in £100,000 from doorstepcollections. The retail team also opened temporaryshops in Dunfermline and Livingston which enabledus to reach out to more people in these communities.

The entire fundraising team have worked incrediblyhard over the past year, and thanks to their determination and creativity they grabbed everyopportunity available to them. They built new relationships, started new initiatives and worked hardto maintain and strengthen our existing partnerships.

Corporate supporters continued to be important contributors. Highlights included a new cycling eventcalled the Artemis Highland 100 which raised £87,000and Real Radio’s ‘Bring A £ To Work Day’ extravaganza which raised £150,000 and involved 439participating companies. Frankie & Benny’s becamethe official restaurant partner for ‘Bring A £ To WorkDay’ and sold pizzas created by children at the hospices called ‘The Rachel’ and ‘The Robin’.

In August 2009 we launched our innovative and interactive school workshops. The team presentedworkshops to 90 schools, taking pupils on a journeythrough the misconceptions and challenges facingyoung people using the hospices. Since then, manyschools have fundraised for CHAS and requested further visits.

This year has also seen the increased use of socialmedia for CHAS and enabled us to engage with a new audience. The CHAS facebook site has dramaticallyexpanded and we now have over 3,000 fans mostlyaged between 18 and 44 years old.

It has been an outstanding year for fundraising andwith continued enthusiasm, dedication, hard work and our wonderful loyal supporters, we will continue to build on these successes in 2010-11.

Supporters showtheir generosity


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A FEW WORDS FROM MARIAN Thank you for taking the time to read this Annual Review. If you arean existing supporter of CHAS, we hope that this publication hasgiven you a thorough update on our activities over the past year. If you are reading about CHAS for the first time, we hope this hasbeen a positive introduction to the charity and the work we carryout. Old or new, do get in touch if you would like to know more, we would love to hear from you.

Marian Keogh, CHAS Chief Executive

We would like to say a sincere thank you to all our Board members who volunteer their time forCHAS.

Board Members:

Professor Gordon C A Dickson (Chairperson)Dr Mary Ray (Vice-Chairperson)Tabitha K M BellBarry G CameronRory R D FarrellyDr Peter W FowlieMaureen Fraser (retired 29 June 2009)Susan H GreenJack G LyallGeorge M ReidFrederic A Strachan (retired 29 June 2009)Ian M ThomsonDr, The Hon. E Claire WalkerKenneth W Wilson

CHAS Head OfficeCanal Court, 42 Craiglockhart AvenueEdinburgh EH14 1LTtel: 0131 444 1900 fax: 0131 444 4001email: [email protected]

www.chas.org.uk

CHAS is a Scottish charity and a company limited by guarantee. Scottish charity number SC 019724.Scottish company number SC 136410

Published August 2010Design by OneWorld Design, Edinburgh

Photography Sean Bell unless indicated otherwise

Members of the Senior Management Team:

Marian G Keogh- Chief ExecutiveAndrea Cail -Director of Service Development Dr Patrick J Carragher- Medical DirectorLibby Gold - Director of Care, Robin HouseBabs Henderson- Director of CHAS at HomeSue Hogg- Director of Care, Rachel HouseMoira J McCaig- Director of Finance and AdministrationRoslyn Neely- Director of Fundraising and CommunicationsRos Scott - Director of Organisational Development

Above: The Ahmed family in the garden at Rachel House.

Cover: Struan Jeffrey enjoys a music session with care team member Caroline Clarke.

The photos in this annualreview have been fundedthanks to the generoussupport of Aviva.

Annual Review 2009-10

Documents

Transcript of Annual Review 2009-10