Alzheimer’s Society Dementia-friendly technology workshop #Teleconf2014
39
Dementia-friendly technology charter Workshop Ali Rogan DFT Chair of task and finish group for Alzheimer’s Society, External Affairs Director, Tunstall Healthcare Rhianwen Jones North Wales Regional Telecare Strategic Manager, Galw Gofal, Colwyn Bay David Williams Telecare Project Manager, Sewic (South East Wales Improvement Consortium) 18 November 2014 12.00-13.00
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Alzheimer’s Society Dementia-friendly technology (DFT) workshop at the Telecare Services Association's International Telecare and Telehealth Conference, Celtic Manor Resort, South Wales http://www.telecare.org.uk/conference The workshop discussed how the Dementia-friendly technology charter came about and the feedback received as well as what signing up to the charter means for organisations. Find out more at alzheimers.org.uk/technologycharter
Transcript of Alzheimer’s Society Dementia-friendly technology workshop #Teleconf2014
Dementia-friendly technology charter
Workshop
Ali Rogan
DFT Chair of task and finish group for Alzheimerrsquos Society
External Affairs Director Tunstall Healthcare
Rhianwen Jones
North Wales Regional Telecare Strategic Manager Galw Gofal Colwyn Bay
David Williams
Telecare Project Manager Sewic
(South East Wales Improvement Consortium)
18 November 2014 1200-1300
Outline
bull Introductions and Context
bull Hearing from people with dementia - video
bull The DFT charter ndash ambitions learning next
steps
bull Dementia friendly technology in
ndash North Wales
ndash South Wales
bull How to best achieve the chartersrsquo aims
2
Prime Ministerrsquos Challenge
3
Sub Sector Task amp Finish
Groups
4
Civil Society Arts Technology
Financial Services
Sport amp Leisure
Transport
Rural Communities
Retail Employment
Maintaining Personal Wellbeing
Video
5
httpwwwalzheimersorguksitescriptsdocuments_infophpdocumentID=2699
General thoughts on technology
6
Seemed a good
idea but you
would need to get
used to it
Seemed a good
idea but you
would need to get
used to it
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
They need
to be user
friendly
They need
to be user
friendly
Can offer
families
peace of
mind
Can offer
families
peace of
mind
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
What difficulties do you think could be
made easier by technology
Peace of
mind and
reassurance
Peace of
mind and
reassurance
Alarms and sensors
for independence
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Medication dispensers
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet Safer Walking Technologies
It would be like
being watched
someone keeping
an eye on you
It would be like
being watched
someone keeping
an eye on you
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
Itrsquos like
having
someone to
come and
stand by you
Itrsquos like
having
someone to
come and
stand by you
Dementia Friendly Communities ndash
Technology task and finish group
bull Enable every person with dementia to have the opportunity to benefit from technology appropriate to their needs
bull To outline and encourage high level principals and best practice for those organisations providing services to people with dementia
8
Aims of the Dementia-friendly technology charter
bull First meeting 151113
bull Brought together over 33 organisations
bull and many more individuals
bull Charter launched to media 17614
bull Physical launch Alzheimerrsquos Show 4714
Journey
Dementia-friendly Technology
Charter contributors bull Alzheimerrsquos Society service user review
panels
bull ADASS West Midlands Telehealthcare
Network
bull Advanced Digital Institute
bull Alzheimers Society
bull Association of Directors of Adult Social
Services
bull Bournemouth University Dementia Studies
Unit
bull British Assistive Technology Association
bull BT
bull Bury Council
bull Childrens Charities Coalition
bull City University London
bull Design Council
bull Doncaster Dementia Strategic Partnership
bull Halton Borough Council
bull Hertfordshire County Council
bull Just Checking
bull Local Government Association
bull London Borough of Croydon AZTEC Centre
bull London Fire Brigade
bull Mid Cheshire Hospitals NHS Foundation Trust
bull National Museums Liverpool
bull NHS England
bull NIHR Dementia and Neurodegenerative
Diseases Research Network (DeNDRoN)
bull One Voice for Accessible ICT Coalition
bull Public Health England
bull Registered Nursing Home Association
bull Sanctuary Supported Living
bull South London and Maudsley NHS Foundation
Trust
bull Stockport Council
bull Telecare Services Association
bull trueCall Nuisance phone call blocking
bull Tunstall Healthcare
bull University Hospitals Birmingham NHS
Foundation Trust
bull Westminster Rehabilitation Services Central
London Community Healthcare NHS Trust
Dementia-friendly
technology charter
10
wwwalzheimersorguk
technologycharter
11
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Outline
bull Introductions and Context
bull Hearing from people with dementia - video
bull The DFT charter ndash ambitions learning next
steps
bull Dementia friendly technology in
ndash North Wales
ndash South Wales
bull How to best achieve the chartersrsquo aims
2
Prime Ministerrsquos Challenge
3
Sub Sector Task amp Finish
Groups
4
Civil Society Arts Technology
Financial Services
Sport amp Leisure
Transport
Rural Communities
Retail Employment
Maintaining Personal Wellbeing
Video
5
httpwwwalzheimersorguksitescriptsdocuments_infophpdocumentID=2699
General thoughts on technology
6
Seemed a good
idea but you
would need to get
used to it
Seemed a good
idea but you
would need to get
used to it
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
They need
to be user
friendly
They need
to be user
friendly
Can offer
families
peace of
mind
Can offer
families
peace of
mind
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
What difficulties do you think could be
made easier by technology
Peace of
mind and
reassurance
Peace of
mind and
reassurance
Alarms and sensors
for independence
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Medication dispensers
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet Safer Walking Technologies
It would be like
being watched
someone keeping
an eye on you
It would be like
being watched
someone keeping
an eye on you
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
Itrsquos like
having
someone to
come and
stand by you
Itrsquos like
having
someone to
come and
stand by you
Dementia Friendly Communities ndash
Technology task and finish group
bull Enable every person with dementia to have the opportunity to benefit from technology appropriate to their needs
bull To outline and encourage high level principals and best practice for those organisations providing services to people with dementia
8
Aims of the Dementia-friendly technology charter
bull First meeting 151113
bull Brought together over 33 organisations
bull and many more individuals
bull Charter launched to media 17614
bull Physical launch Alzheimerrsquos Show 4714
Journey
Dementia-friendly Technology
Charter contributors bull Alzheimerrsquos Society service user review
panels
bull ADASS West Midlands Telehealthcare
Network
bull Advanced Digital Institute
bull Alzheimers Society
bull Association of Directors of Adult Social
Services
bull Bournemouth University Dementia Studies
Unit
bull British Assistive Technology Association
bull BT
bull Bury Council
bull Childrens Charities Coalition
bull City University London
bull Design Council
bull Doncaster Dementia Strategic Partnership
bull Halton Borough Council
bull Hertfordshire County Council
bull Just Checking
bull Local Government Association
bull London Borough of Croydon AZTEC Centre
bull London Fire Brigade
bull Mid Cheshire Hospitals NHS Foundation Trust
bull National Museums Liverpool
bull NHS England
bull NIHR Dementia and Neurodegenerative
Diseases Research Network (DeNDRoN)
bull One Voice for Accessible ICT Coalition
bull Public Health England
bull Registered Nursing Home Association
bull Sanctuary Supported Living
bull South London and Maudsley NHS Foundation
Trust
bull Stockport Council
bull Telecare Services Association
bull trueCall Nuisance phone call blocking
bull Tunstall Healthcare
bull University Hospitals Birmingham NHS
Foundation Trust
bull Westminster Rehabilitation Services Central
London Community Healthcare NHS Trust
Dementia-friendly
technology charter
10
wwwalzheimersorguk
technologycharter
11
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Prime Ministerrsquos Challenge
3
Sub Sector Task amp Finish
Groups
4
Civil Society Arts Technology
Financial Services
Sport amp Leisure
Transport
Rural Communities
Retail Employment
Maintaining Personal Wellbeing
Video
5
httpwwwalzheimersorguksitescriptsdocuments_infophpdocumentID=2699
General thoughts on technology
6
Seemed a good
idea but you
would need to get
used to it
Seemed a good
idea but you
would need to get
used to it
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
They need
to be user
friendly
They need
to be user
friendly
Can offer
families
peace of
mind
Can offer
families
peace of
mind
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
What difficulties do you think could be
made easier by technology
Peace of
mind and
reassurance
Peace of
mind and
reassurance
Alarms and sensors
for independence
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Medication dispensers
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet Safer Walking Technologies
It would be like
being watched
someone keeping
an eye on you
It would be like
being watched
someone keeping
an eye on you
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
Itrsquos like
having
someone to
come and
stand by you
Itrsquos like
having
someone to
come and
stand by you
Dementia Friendly Communities ndash
Technology task and finish group
bull Enable every person with dementia to have the opportunity to benefit from technology appropriate to their needs
bull To outline and encourage high level principals and best practice for those organisations providing services to people with dementia
8
Aims of the Dementia-friendly technology charter
bull First meeting 151113
bull Brought together over 33 organisations
bull and many more individuals
bull Charter launched to media 17614
bull Physical launch Alzheimerrsquos Show 4714
Journey
Dementia-friendly Technology
Charter contributors bull Alzheimerrsquos Society service user review
panels
bull ADASS West Midlands Telehealthcare
Network
bull Advanced Digital Institute
bull Alzheimers Society
bull Association of Directors of Adult Social
Services
bull Bournemouth University Dementia Studies
Unit
bull British Assistive Technology Association
bull BT
bull Bury Council
bull Childrens Charities Coalition
bull City University London
bull Design Council
bull Doncaster Dementia Strategic Partnership
bull Halton Borough Council
bull Hertfordshire County Council
bull Just Checking
bull Local Government Association
bull London Borough of Croydon AZTEC Centre
bull London Fire Brigade
bull Mid Cheshire Hospitals NHS Foundation Trust
bull National Museums Liverpool
bull NHS England
bull NIHR Dementia and Neurodegenerative
Diseases Research Network (DeNDRoN)
bull One Voice for Accessible ICT Coalition
bull Public Health England
bull Registered Nursing Home Association
bull Sanctuary Supported Living
bull South London and Maudsley NHS Foundation
Trust
bull Stockport Council
bull Telecare Services Association
bull trueCall Nuisance phone call blocking
bull Tunstall Healthcare
bull University Hospitals Birmingham NHS
Foundation Trust
bull Westminster Rehabilitation Services Central
London Community Healthcare NHS Trust
Dementia-friendly
technology charter
10
wwwalzheimersorguk
technologycharter
11
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Sub Sector Task amp Finish
Groups
4
Civil Society Arts Technology
Financial Services
Sport amp Leisure
Transport
Rural Communities
Retail Employment
Maintaining Personal Wellbeing
Video
5
httpwwwalzheimersorguksitescriptsdocuments_infophpdocumentID=2699
General thoughts on technology
6
Seemed a good
idea but you
would need to get
used to it
Seemed a good
idea but you
would need to get
used to it
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
They need
to be user
friendly
They need
to be user
friendly
Can offer
families
peace of
mind
Can offer
families
peace of
mind
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
What difficulties do you think could be
made easier by technology
Peace of
mind and
reassurance
Peace of
mind and
reassurance
Alarms and sensors
for independence
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Medication dispensers
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet Safer Walking Technologies
It would be like
being watched
someone keeping
an eye on you
It would be like
being watched
someone keeping
an eye on you
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
Itrsquos like
having
someone to
come and
stand by you
Itrsquos like
having
someone to
come and
stand by you
Dementia Friendly Communities ndash
Technology task and finish group
bull Enable every person with dementia to have the opportunity to benefit from technology appropriate to their needs
bull To outline and encourage high level principals and best practice for those organisations providing services to people with dementia
8
Aims of the Dementia-friendly technology charter
bull First meeting 151113
bull Brought together over 33 organisations
bull and many more individuals
bull Charter launched to media 17614
bull Physical launch Alzheimerrsquos Show 4714
Journey
Dementia-friendly Technology
Charter contributors bull Alzheimerrsquos Society service user review
panels
bull ADASS West Midlands Telehealthcare
Network
bull Advanced Digital Institute
bull Alzheimers Society
bull Association of Directors of Adult Social
Services
bull Bournemouth University Dementia Studies
Unit
bull British Assistive Technology Association
bull BT
bull Bury Council
bull Childrens Charities Coalition
bull City University London
bull Design Council
bull Doncaster Dementia Strategic Partnership
bull Halton Borough Council
bull Hertfordshire County Council
bull Just Checking
bull Local Government Association
bull London Borough of Croydon AZTEC Centre
bull London Fire Brigade
bull Mid Cheshire Hospitals NHS Foundation Trust
bull National Museums Liverpool
bull NHS England
bull NIHR Dementia and Neurodegenerative
Diseases Research Network (DeNDRoN)
bull One Voice for Accessible ICT Coalition
bull Public Health England
bull Registered Nursing Home Association
bull Sanctuary Supported Living
bull South London and Maudsley NHS Foundation
Trust
bull Stockport Council
bull Telecare Services Association
bull trueCall Nuisance phone call blocking
bull Tunstall Healthcare
bull University Hospitals Birmingham NHS
Foundation Trust
bull Westminster Rehabilitation Services Central
London Community Healthcare NHS Trust
Dementia-friendly
technology charter
10
wwwalzheimersorguk
technologycharter
11
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Video
5
httpwwwalzheimersorguksitescriptsdocuments_infophpdocumentID=2699
General thoughts on technology
6
Seemed a good
idea but you
would need to get
used to it
Seemed a good
idea but you
would need to get
used to it
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
They need
to be user
friendly
They need
to be user
friendly
Can offer
families
peace of
mind
Can offer
families
peace of
mind
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
What difficulties do you think could be
made easier by technology
Peace of
mind and
reassurance
Peace of
mind and
reassurance
Alarms and sensors
for independence
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Medication dispensers
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet Safer Walking Technologies
It would be like
being watched
someone keeping
an eye on you
It would be like
being watched
someone keeping
an eye on you
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
Itrsquos like
having
someone to
come and
stand by you
Itrsquos like
having
someone to
come and
stand by you
Dementia Friendly Communities ndash
Technology task and finish group
bull Enable every person with dementia to have the opportunity to benefit from technology appropriate to their needs
bull To outline and encourage high level principals and best practice for those organisations providing services to people with dementia
8
Aims of the Dementia-friendly technology charter
bull First meeting 151113
bull Brought together over 33 organisations
bull and many more individuals
bull Charter launched to media 17614
bull Physical launch Alzheimerrsquos Show 4714
Journey
Dementia-friendly Technology
Charter contributors bull Alzheimerrsquos Society service user review
panels
bull ADASS West Midlands Telehealthcare
Network
bull Advanced Digital Institute
bull Alzheimers Society
bull Association of Directors of Adult Social
Services
bull Bournemouth University Dementia Studies
Unit
bull British Assistive Technology Association
bull BT
bull Bury Council
bull Childrens Charities Coalition
bull City University London
bull Design Council
bull Doncaster Dementia Strategic Partnership
bull Halton Borough Council
bull Hertfordshire County Council
bull Just Checking
bull Local Government Association
bull London Borough of Croydon AZTEC Centre
bull London Fire Brigade
bull Mid Cheshire Hospitals NHS Foundation Trust
bull National Museums Liverpool
bull NHS England
bull NIHR Dementia and Neurodegenerative
Diseases Research Network (DeNDRoN)
bull One Voice for Accessible ICT Coalition
bull Public Health England
bull Registered Nursing Home Association
bull Sanctuary Supported Living
bull South London and Maudsley NHS Foundation
Trust
bull Stockport Council
bull Telecare Services Association
bull trueCall Nuisance phone call blocking
bull Tunstall Healthcare
bull University Hospitals Birmingham NHS
Foundation Trust
bull Westminster Rehabilitation Services Central
London Community Healthcare NHS Trust
Dementia-friendly
technology charter
10
wwwalzheimersorguk
technologycharter
11
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
General thoughts on technology
6
Seemed a good
idea but you
would need to get
used to it
Seemed a good
idea but you
would need to get
used to it
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
Everyone is different
some people see them
as intrusive others
view them as another
way to stay as
independent
They need
to be user
friendly
They need
to be user
friendly
Can offer
families
peace of
mind
Can offer
families
peace of
mind
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
It should be introduced earlier in
order for people with dementia to
be able to be involved in the
decision making and to have the
opportunity to familiarise
themselves with the technology
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
What difficulties do you think could be
made easier by technology
Peace of
mind and
reassurance
Peace of
mind and
reassurance
Alarms and sensors
for independence
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Medication dispensers
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet Safer Walking Technologies
It would be like
being watched
someone keeping
an eye on you
It would be like
being watched
someone keeping
an eye on you
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
Itrsquos like
having
someone to
come and
stand by you
Itrsquos like
having
someone to
come and
stand by you
Dementia Friendly Communities ndash
Technology task and finish group
bull Enable every person with dementia to have the opportunity to benefit from technology appropriate to their needs
bull To outline and encourage high level principals and best practice for those organisations providing services to people with dementia
8
Aims of the Dementia-friendly technology charter
bull First meeting 151113
bull Brought together over 33 organisations
bull and many more individuals
bull Charter launched to media 17614
bull Physical launch Alzheimerrsquos Show 4714
Journey
Dementia-friendly Technology
Charter contributors bull Alzheimerrsquos Society service user review
panels
bull ADASS West Midlands Telehealthcare
Network
bull Advanced Digital Institute
bull Alzheimers Society
bull Association of Directors of Adult Social
Services
bull Bournemouth University Dementia Studies
Unit
bull British Assistive Technology Association
bull BT
bull Bury Council
bull Childrens Charities Coalition
bull City University London
bull Design Council
bull Doncaster Dementia Strategic Partnership
bull Halton Borough Council
bull Hertfordshire County Council
bull Just Checking
bull Local Government Association
bull London Borough of Croydon AZTEC Centre
bull London Fire Brigade
bull Mid Cheshire Hospitals NHS Foundation Trust
bull National Museums Liverpool
bull NHS England
bull NIHR Dementia and Neurodegenerative
Diseases Research Network (DeNDRoN)
bull One Voice for Accessible ICT Coalition
bull Public Health England
bull Registered Nursing Home Association
bull Sanctuary Supported Living
bull South London and Maudsley NHS Foundation
Trust
bull Stockport Council
bull Telecare Services Association
bull trueCall Nuisance phone call blocking
bull Tunstall Healthcare
bull University Hospitals Birmingham NHS
Foundation Trust
bull Westminster Rehabilitation Services Central
London Community Healthcare NHS Trust
Dementia-friendly
technology charter
10
wwwalzheimersorguk
technologycharter
11
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
What difficulties do you think could be
made easier by technology
Peace of
mind and
reassurance
Peace of
mind and
reassurance
Alarms and sensors
for independence
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Feels a bit like
lsquoBig Brotherrsquo
is watching
you
Medication dispensers
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet
This would be
really useful ndash I
always find it
difficult to
remember whether
Irsquove taken my tablet Safer Walking Technologies
It would be like
being watched
someone keeping
an eye on you
It would be like
being watched
someone keeping
an eye on you
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
It might be nice as it
would be like someone
walking alongside you
able to lend a hand if
you got lost
Direct feedback from the Alzheimerrsquos Society Service User Review Panels
Itrsquos like
having
someone to
come and
stand by you
Itrsquos like
having
someone to
come and
stand by you
Dementia Friendly Communities ndash
Technology task and finish group
bull Enable every person with dementia to have the opportunity to benefit from technology appropriate to their needs
bull To outline and encourage high level principals and best practice for those organisations providing services to people with dementia
8
Aims of the Dementia-friendly technology charter
bull First meeting 151113
bull Brought together over 33 organisations
bull and many more individuals
bull Charter launched to media 17614
bull Physical launch Alzheimerrsquos Show 4714
Journey
Dementia-friendly Technology
Charter contributors bull Alzheimerrsquos Society service user review
panels
bull ADASS West Midlands Telehealthcare
Network
bull Advanced Digital Institute
bull Alzheimers Society
bull Association of Directors of Adult Social
Services
bull Bournemouth University Dementia Studies
Unit
bull British Assistive Technology Association
bull BT
bull Bury Council
bull Childrens Charities Coalition
bull City University London
bull Design Council
bull Doncaster Dementia Strategic Partnership
bull Halton Borough Council
bull Hertfordshire County Council
bull Just Checking
bull Local Government Association
bull London Borough of Croydon AZTEC Centre
bull London Fire Brigade
bull Mid Cheshire Hospitals NHS Foundation Trust
bull National Museums Liverpool
bull NHS England
bull NIHR Dementia and Neurodegenerative
Diseases Research Network (DeNDRoN)
bull One Voice for Accessible ICT Coalition
bull Public Health England
bull Registered Nursing Home Association
bull Sanctuary Supported Living
bull South London and Maudsley NHS Foundation
Trust
bull Stockport Council
bull Telecare Services Association
bull trueCall Nuisance phone call blocking
bull Tunstall Healthcare
bull University Hospitals Birmingham NHS
Foundation Trust
bull Westminster Rehabilitation Services Central
London Community Healthcare NHS Trust
Dementia-friendly
technology charter
10
wwwalzheimersorguk
technologycharter
11
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Dementia Friendly Communities ndash
Technology task and finish group
bull Enable every person with dementia to have the opportunity to benefit from technology appropriate to their needs
bull To outline and encourage high level principals and best practice for those organisations providing services to people with dementia
8
Aims of the Dementia-friendly technology charter
bull First meeting 151113
bull Brought together over 33 organisations
bull and many more individuals
bull Charter launched to media 17614
bull Physical launch Alzheimerrsquos Show 4714
Journey
Dementia-friendly Technology
Charter contributors bull Alzheimerrsquos Society service user review
panels
bull ADASS West Midlands Telehealthcare
Network
bull Advanced Digital Institute
bull Alzheimers Society
bull Association of Directors of Adult Social
Services
bull Bournemouth University Dementia Studies
Unit
bull British Assistive Technology Association
bull BT
bull Bury Council
bull Childrens Charities Coalition
bull City University London
bull Design Council
bull Doncaster Dementia Strategic Partnership
bull Halton Borough Council
bull Hertfordshire County Council
bull Just Checking
bull Local Government Association
bull London Borough of Croydon AZTEC Centre
bull London Fire Brigade
bull Mid Cheshire Hospitals NHS Foundation Trust
bull National Museums Liverpool
bull NHS England
bull NIHR Dementia and Neurodegenerative
Diseases Research Network (DeNDRoN)
bull One Voice for Accessible ICT Coalition
bull Public Health England
bull Registered Nursing Home Association
bull Sanctuary Supported Living
bull South London and Maudsley NHS Foundation
Trust
bull Stockport Council
bull Telecare Services Association
bull trueCall Nuisance phone call blocking
bull Tunstall Healthcare
bull University Hospitals Birmingham NHS
Foundation Trust
bull Westminster Rehabilitation Services Central
London Community Healthcare NHS Trust
Dementia-friendly
technology charter
10
wwwalzheimersorguk
technologycharter
11
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Dementia-friendly Technology
Charter contributors bull Alzheimerrsquos Society service user review
panels
bull ADASS West Midlands Telehealthcare
Network
bull Advanced Digital Institute
bull Alzheimers Society
bull Association of Directors of Adult Social
Services
bull Bournemouth University Dementia Studies
Unit
bull British Assistive Technology Association
bull BT
bull Bury Council
bull Childrens Charities Coalition
bull City University London
bull Design Council
bull Doncaster Dementia Strategic Partnership
bull Halton Borough Council
bull Hertfordshire County Council
bull Just Checking
bull Local Government Association
bull London Borough of Croydon AZTEC Centre
bull London Fire Brigade
bull Mid Cheshire Hospitals NHS Foundation Trust
bull National Museums Liverpool
bull NHS England
bull NIHR Dementia and Neurodegenerative
Diseases Research Network (DeNDRoN)
bull One Voice for Accessible ICT Coalition
bull Public Health England
bull Registered Nursing Home Association
bull Sanctuary Supported Living
bull South London and Maudsley NHS Foundation
Trust
bull Stockport Council
bull Telecare Services Association
bull trueCall Nuisance phone call blocking
bull Tunstall Healthcare
bull University Hospitals Birmingham NHS
Foundation Trust
bull Westminster Rehabilitation Services Central
London Community Healthcare NHS Trust
Dementia-friendly
technology charter
10
wwwalzheimersorguk
technologycharter
11
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Dementia-friendly
technology charter
10
wwwalzheimersorguk
technologycharter
11
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
11
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Types of technology
Safety
Enabling people with dementia to live as fully as possible without putting themselves and others at risk
Health
Supporting people to manage assess and treat co-morbidities and improve health outcomes
Enhancing
Devices or apps to improve the quality of life for people with dementia
12
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Components of a good
quality technology service
13
Service Blueprint
Standards
Timely referral
Timely assess-
ment
Ethics and
Consent
Service set up
Monitoring
Response
Re-evaluation
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
DFT charter -
First year ambitions
Charter published and communicated
Work towards having all CCGs local
authority and housing commissioners
signed up
All service and technology providers
signed up
14
CCGs = Clinical Commissioning Groups
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
What does signing up to the charter
mean for my organisation Recommendations for commissioners providers and suppliers
15
bull The statutory right to a social care assessment should always include a consideration for dementia-friendly technology
Assessment
bull A single simple to use updated web resource for dementia friendly technology should be developed
Up to date national resource
bull Accessible and easy to find information that lists where technology is available in their local areas This info should reference and include a link to this charter
Local resources
bull Technology providers should take into account the specific needs of people with dementia when developing care services that use technology
User friendly technology
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Supporting People with Dementia
Call Monitoring Centre Perspective
Rhianwen Jones
North Wales Regional Telecare
Strategic Manager
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
North Wales Regional Call Monitoring Service
Bilingual WelshEnglish
247
22500+ connections (52 aged
over 80yrs)
Receive over 54k calls per month
Enable people to live in their own
homes
Maximise independence and
potential
Supporting people in a safe
environment with dignity
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Current Services
bull Social Alarms
bull Telecare
bull GPS tracking
bull Telehealth
bull Telephone Check Calls
bull Lone Working
bull Carer Cards
bull Out of Hours services eg Housing Social Services EDT
bull Disaster Recovery amp Business Continuity
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Social
Managing Risk Environmental
amp Security Social Medical
Nutrition Cognition
Mobility
Fire Flood
Gas Intruders
Cardiac arrest
Medication
Asthma attack
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Effective Communication Required for appropriate response
Rapid Response Team
Lifting
service
24 Hour
--Nurse
24 hr Home Care
Relatives
amp friends
Mobile Warden
Duty Social Worker
Community Alarm Centre
Out-of-hours GP
Fire
service
Ambulance
Police
Emergency
plumber
24 hour
Gas fitter
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
3 Key Elements for Success
1 Prescription of the correct
equipment
2 Compliance
3 Response
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
bull Dementia - a term used to describe
various different brain disorders
bull Symptoms include loss of memory
confusion problems with speech and
understanding
bull Over 100 different types of dementia
bull Prevalence rates in UK is 15 people
aged over 80 + have dementia
Challenges of Dementia
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Common Types of Dementia
bull Alzheimerrsquos Disease Progressive - 62 of cases Ambloid
plaques cause damage to neurone amp brain tissue Ability to
remember reason understand amp communicate gradually
decreases
bull Vascular Disease ndash 3 types Arteriosclerotic reduction of
oxygen to the brain Vascular sudden onset dementia following
a stroke Multi-infarct a gradual onset usually following a series
of mini strokes
bull Korsakoffs Syndrome Condition related to alcohol abuse and
thiamine(vitamin B1) deficiency Disorder resulting in a memory
defect in which new information fails to be learnt
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Common Types of Dementia
bull Dementia with Lewy Bodies 15 of cases Protein
deposits called Lewy Bodies cause damage to nerve cells
Symptoms similar to Parkinsonrsquos ndash stiffness slowness of
movement tremors etc No visual features eg hallucinations
bull Picks Disease ndash Damage to the frontal or temporal lobes of
the brain causing dementia These parts of the brain are
responsible for behaviour judgement planning emotional
response and language
People may behave in an unacceptable manner have little
concentration and follow repetitive compulsive routines
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Stages of Dementia
Slipping gradually
becoming aware of minor
lapses in memory
Suspecting ldquonormalisingrdquo
of events becomes less
successful
Covering up a conscious
deliberate effect is made to
hide difficulties
Revealing being confronted
with patterns of loss that
cannot be ignored
Confirmation open
acknowledgement of the
problem - diagnosis
Maximising use of adaptive
techniques to compensate
for losses
Disorganisation cognitive
difficulties and associated
behaviour an increasingly
dominant feature
Decline further loss of
cognitive and physical ability
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
How do we know
What type of dementia do they have
What stage of dementia are they ndash early stages or
progressed
How is their cognition and communication abilities
What is their normal routine
What are their usual anxieties
Do they wonder out
What risks to they face
Are they having a good or a bad day
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Systems in place
Referral pathways which
collect detailed information
On screen information for a
positive response
Incident reporting ndash
escalation of information for
needs assessment and
review
Staff training awareness amp
developing experience
Formal response service to
support carers in most areas
Records of information ndash
shared
Identifying trends in
behavioural patterns
Learning from incidents and
policy review
Statistical analysis and
predictions for service
planning
Consultation for service amp
business planning
Networking and regional
forums
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
How can we improve
Element
Prescription
of the
correct
equipment
Compliance
Response
Issues
Whatrsquos available How do we maintain knowledge How
do we ensure Positive Risk Taking and trust in Telecare
How should dementia be factored into business models
Training How do we ensure in-depth understanding of
dementia and how it affects every individual
How can we ensure robust initial amp regular update of
information How can we ensure training for service
users amp carers How do we focus on carers
Who responds What relationship do we have with
emergency services amp health How can we share
information effectively Support for carers Appropriate
training
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Galw Gofal Contact Details
Rhianwen Jones
North Wales Regional Telecare Strategic Manager
Tel 01492 577781 or 07557 480320
E-mail rhianwenjonesconwygovuk
Extracts from
SCiP presentation 2014 provided by Dr Kevin Doughty
drkdoughtybtinternetcom Mob 07810797971
Supporting the Dementia Journey by Carolyn Goble
Head of Learning Development Person Shaped Support Liverpool
Carolyngoblepssorguk T 0151 702 5528 Mob 07595 863 202
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
A perspective from SE Wales
David Williams
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Effective care and support does mean working together ndash across health and
social care ndash plus housing sector and care providers
Role of SEWIC to facilitate and support links ndash Assistive Technology and
Accommodation with Care Reference Groups
Workshop events ndash linking care and accommodation providers -
encouraging the development of partnership working Mapping out potential
schemes for re-development and planned new developments
Regional linkage to suppliers ndash trial of new equipment feedback and
operational views ndash Age Connect day services example
Social Care and Wellbeing Act 2014 ndash greater emphasis on prevention
early intervention informationadviceassistance new models of care
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
There is a new challenge is emerging in the form of an increasing number
of people with early onset of Alzheimerrsquos They remain physically able and
want to continue to live their lives as they always have done ndash going out
and about doing the shopping visiting friends and family and going on
holidays But their condition can limit them to their home and immediate
area
Traditional telecare which is dependent on a fixed telephone line only
compounds this by offering help but only in the confines of a userrsquos home
This not only limits peoplersquos horizons but means they often need a carer
when leaving their homes despite being active
Engagement with carers is vitally important ndash to support the caring role and
to understand each individual situation Medication support and reminders
are a useful tool ndash ICF project in Aneurin Bevan Health Board
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Cwmgelli ndash Blackwood in Caerphilly
lsquoA simple and safe environment is what people with dementia want they
want to make it their home and put their stamp on itrsquo ndash Member of Review
Panel
22 bed scheme for younger people with dementia (under 65rsquos) with family
suite and external pavilion building for activities Seren Group are working
closely with ABHB and Alzheimers Society
Currently on site and due to complete JanFeb 2015
Telecare overlay developed through linkage to Merthyr demonstration
facility (Kier Hardie Health Park) and linkage with Carers group
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Mr C aged 75 suffers from the early onset of Alzheimerrsquos and has been
trialling the a mobile device for a month He likes to maintain his
independence and takes enjoyment from going into town for a coffee and a
shop Unfortunately due to his condition he would sometimes get lost
leading to distress and worry for Mrs C his carer and family
By using a mobile device Mr C is now able to go in to town independently If
he becomes distressed he can easily contact his carer or family within the
touch of a button His family members and carerrsquos are also able to contact
him through the handset The service has greatly improved his confidence
to go in to town allowing him the freedom and independence he requires
and giving his family and carers reassurance
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Mrs B had dementia and had lived in an EMH unit in Residential Home for 3
years She appeared settled and had a good rapport with the staff Staff
had noticed that during the night Mrs B was attempting to climb onto the
white sink basin in her room believing it to be a toilet this was putting her at
huge risk of falling and loss of dignity
Mrs B`s Social Worker carried out a Mental Capacity test in order to identify
if Mrs B had the mental capacity to make an informed decision about the
provision of Telecare equipment This test identified that Mrs B did not have
the mental capacity to make an informed decision about the provision of
Telecare equipment so a Best Interest decision was made to provide the
least restrictive option of Telecare provision in order to keep her safe
An Infra-Red Bed Exit sensor was provided which alerted staff if Mrs B
attempted to get out of bed This enabled staff to assist Mrs B to her toilet
provide her with reassurance and settle her back to bed safely
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
37
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
Discussion
bull How best to achieve the aims of the
charter
bull What else do we need to do
38
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
QampA
Thank you
Ali Rogan
alisonrogantunstallcom | AliRogan
Rhianwen Jones
rhianwenjonesconwygovuk
David Williams
davidhartwellwilliamstorfaengovuk
