AHF Advocacy
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Transcript of AHF Advocacy
AHF Advocacy
AGENDA
INTRODUCTIONSADVOCACY• Definition• Strategies• AHF Advocacy
ADAP• What is ADAP?• Current ADAP Crisis
MEDIA FORMULA
ADVOCACY
What is Advocacy ? Communicating needs and voicing them to
people who can help. Aimed at influencing public policy and
decisions. In the case of people living with HIV and
AIDS; advocacy is a tool for social and political change, to improve the quality of life for those infected and affected by the epidemic.
Advocacy Strategies Letter Writing Campaign Make phone calls Talk to others Banners Legislative Visits Form coalitions Protest Social Media Be active
Legislation MEDI-CAL (MEDICAID) to cover hospice care for
people dying of AIDS (1989) Insurance companies covering HIV testing (2008)
Engaging Elected Officials Senator Nelson of Florida Speaker Pelosi
Reduced Drug Pricing Merck – Isentress BMS – Reyataz Boehringer Ingelheim - WelVista
AHF Advocacy Efforts
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ADAP
What is ADAP? AIDS Drug Assistance Program It provides life saving medications to low-
income, uninsured, & under-insured individuals living with HIV
It’s a federal match program, to which both state and federal governments contribute
It is the payer of last resort for people with no other resources to pay for their medications
ADAP Funding
** Taken from NASTAD Presentation at USCA 2010
Why are state ADAP’s in Crisis? More need: Higher unemployment rate + uninsured people
more people are eligible for ADAP
Economic Downturn has created budget deficits @ state level need to cut spending
More expensive program: Over the last 10 years the price of HIV meds have increased
ADAP CRISIS
Advocacy Calculus Identify & Understand The Issue Identify the Players – Who is your target? What is your “ask”? – Be Specific
Media Formula Press Advisory
2 weeks, 2 days, Day of
Press Statement 3 Speakers, 10 Words
Press Release Day Before, Send and Call
*Press Kit (Hard Copies) to Reporters
Why you? We are in this together Its your right Its your life and your experience If not now…when? Accountability