Advance Einstein Fall 2011

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A Magazine for Donors & Friends of the Einstein Healthcare Network

Transcript of Advance Einstein Fall 2011

Page 1: Advance Einstein Fall 2011
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Mary Webb, RNswaddles newborn

Stephanie Corp MaguireInterim Vice President for Development

Barry R. FreedmanPresident and CEO

Our donors are a dedicated group, who have supported a widerange of causes throughout our history. Recently, we have seen a surge in your catalytic giving that has helped us aid the most vulnerable among us. In addition to your ongoing financial support, your actions have given us the means to tackle social problems and realize goals by forging alliances with like-mindedentities. You have been proactive and accountable for the changeswe seek. By educating others about our causes, you are fostering a better understanding of them, while facilitating changes in attitudes and thinking.

In this issue, we honor you, our donors, and your catalytic giving.Your caring is evident in the Einstein-launched Victor Center forthe Prevention of Jewish Genetic Diseases, which is working withrabbis, colleges and genetic labs to eradicate these illnesses through-out the country and, more pointedly, in its newest target area ofAtlanta. Your compassion is clear during a free-to-the-public filmscreening and panel discussion that encouraged understanding ofand consideration for those with behavioral health illness. This is a sampling of your support that has changed the world we live inthrough your expertise, enthusiasm and commitment.

Philanthropy is always welcome and much needed, but catalytic giving enables us to offer better care in the present for those in needwhile promising a better future for all. We celebrate and thank allof you for your dedication to positive change. Your giving paves the way to fulfilling our mission to provide exceptionally intelligent andresponsive healthcare and education for as many as we can reach.

Cover: A digital composite of the Albert Einstein bust at the main entrance, Tower Building, Albert Einstein Medical Center. Sculpted by Henry Van Wolf, donated by The Segel Foundation.

Dear Friends:

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In this issue...

Albert Einstein SocietyGreat minds think alike

Coming into FocusFilm shows life with possibilities

Going the DistanceNot just a walk through the park

Victor CenterNational growth spurt

Being CommunityBetter health for men

The Miracle WorkersRaising money for pediatric causes

O f f i c e O f D e v e l O p m e n t

PublisherBarry R. FreedmanPresident and CEO

Editor-in-ChiefStephanie Corp MaguireInterim Vice President for Development

Executive EditorJoan Boyce

Managing EditorM. Renee Simmons

Address Changes and CorrespondenceAlbert Einstein Healthcare NetworkOffice of Development5501 Old York RoadPhiladelphia, PA 19141Phone: 215-456-7301

Email: [email protected]

Website: www.einstein.edu

Advance Einstein is published by the Office of Development of Albert Einstein Healthcare Network © copyright 2011

Design/Writing/Major Photographyaccent communications, inc. philadelphia

Issue No. 8Fall 2011

A Magazine for Donors & Friends of the Albert EinsteinHealthcare Network

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New Digs...Moving closer to opening day

Photo AlbumA snapshot look at our events

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etting a worry-free, good night’ssleep keeps the senses sharp.

Between job stress, mortgage pay-ments, and errands galore, one thing parents should not be anxious about istheir baby’s bedtime.

“Swaddling is a way of wrapping achild in a blanket that has been shownto make them more content whilesleeping, less likely to be startled andawakened, and it is soothing to themoverall,” says pediatrician BarbaraKelly, MD, Director of Einstein’s TermNursery. “If we can get more parentsto swaddle their children, we believethat more babies will be likely to sleepon their backs and in their own crib or bassinet. In the U.S., we’ve seenfewer cases of Sudden Infant DeathSyndrome (SIDS) since the institutionof the ‘Back to Sleep’ campaign in1994 by the National Institute of

Child Health and Human Develop-ment; however, SIDS continues to be a problem particularly among AfricanAmerican populations.” The risk period for SIDS is the first year of life

with the peak danger zones during thesecond to fourth month.

Dr. Kelly and Matilda Irigoyen,MD, Chairman, Department of

Great Minds Think AlikeThE AlBERT EINSTEIN SoCIETy (AES) SuPPoRTS INNoVATIVE PRoGRAMMING

AND RESEARCh — TuRNING IDEAS FRoM ITS TEAM MEMBERS INTo REAlITy

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Swaddling nolonger under wraps

Bency Thomas, RN, BSNdemonstrates swaddling for new parents

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AES has been encouraging out-of-the-box thinking from those in theEinstein family since its inception in 1972. AES has awarded millionsof dollars over the years to the great minds that are paving the way tobetter healthcare and a brighter future. These more recent recipientsare no exception to the excellence of those who came before them.

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Pediatrics, were interested in exploringthe tie between swaddling and safe-sleep practices. AES found their ideacompelling and awarded them a grantto begin their project. The researchteam for the project also includedPediatric Residents Monique Mondesir,MD, and Natalia Isaza, MD.

The first phase of the study asked121 parents, who were visiting thePediatric Clinic primarily from theurban communities surroundingAlbert Einstein Medical Center’s campus, their attitudes towards andknowledge of swaddling, an age-oldpractice that consists of snugly wrap-ping an infant in a blanket —described by some parents as in a cocoon or burrito. The second phaseof the study put the practice and itsoutcomes into motion with the help of 70 parents of newborns fromEinstein’s Nursery.

“We gave the parents a MiracleBlanket and taught them how to useit,” says Dr. Kelly. Cameras were alsoprovided so the parents could docu-ment their experiences. They wereencouraged to call the research teamwith any questions.

“We followed up with the parents in one to two weeks, then at two andfour months. What we found is, whenswaddled, 95 percent of the infantsslept on their backs, 90 percent of

them slept in a crib or bassinet and amajority of the mothers — 74 percentof them — swaddled their babies for atleast six weeks after leaving the nursery.

“Parents are encouraged to put achild to bed without toys, pillows and other crib clutter, but many don’t know about swaddling,” says Dr. Kelly. “When taught about it, our study suggests parents are morelikely to follow safe sleep practices for their baby.”

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Swaddling Step by Step...

“What we found is, whenswaddled, 95 percent ofthe infants slept on theirbacks...”

- Barbara Kelly, MD(L to R) Term Nursery Director Barbara Kelly, MD confers with Department of Pediatric and Adolescent Medicine ChairmanMatilde Irigoyen, MD and Pediatric Researcher Monique Mondesir, MD

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stroke is sophisticated and complex.There is no other bodily attack that

can obliterate sight, taste, hearing, communication and motor skills in a matter of seconds.

Taking action immediately when thesymptoms strike is critical to limiting the damage.

“People having a stroke do not realize they are having a stroke and it is never that person who calls 911,” saysGeorge Newman, MD, PhD, who isChairman of Einstein’s Department of Neurosensory Sciences and Director of the Stroke Program. “It made me realize educating the stroke-prone was inadequate. It’s more effective to educate the entire population.”

Stroke Alert Day, held the first Tuesday inMay, is dedicated to making people aware of the signs and symptoms of a stroke.Radio, TV and print announcements,health screenings at high traffic areas likePhiladelphia International Airport and the

Neurosensory Sciences Department Chairman and StrokeProgram Director George Newman, MD, PhD discusses educational materials with (L to R) Nithya Molakala, MD,Patrice Carr, RN, MSN and Lisa Rodzen, RN, MSN, MBA

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Stroke Alert! Don’t stall, makethe call...save a life

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“Stroke recognition depends on everybody.That’s the point of the day and that’s what it’sall about.”

- George Newman, MD, PhD

(L to R) Stroke Coordinator Patricia Hushen, RN, MS; Neuroscience Unit Director Jonathan Dissen, MD; and Caitlin Dawson, RN, BSN

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shopping mecca One Liberty Place,help get the message out to the masses.

“Strokes are unlike heart attacks,where there is a crushing chest pain.With a stroke, it’s difficult to get people to react to the individual symp-toms. A stroke should be consideredright away if any of the changes come

on suddenly,” says Dr. Newman. Anobserver seeing a quick onset of slurredspeech, immobility or sleepiness mustimmediately call 911 to get to theclosest emergency room. The slogans“Stroke Strikes Suddenly,” along with“Don’t Stall, Make the Call,” havebecome important and easy-to-remember adages for Stroke Alert Day.

Although Stroke Alert Day is 100-percent volunteer run, the AES grantwas used for materials like bookmarks,pamphlets, posters and the hiring of acoordinator in 2007, its initial year.

“The AES funds were invaluable ingetting us started. The grant gave usour calling card. You can’t walk into a room with an empty plate. AES gave us something to bring and put on the table when approaching otherorganizations,” says Dr. Newman.

Stroke Alert Day, heldthe first Tuesday inMay, is dedicated to making peopleaware of the signs and symptoms of a stroke.

Dr. George Newman, Stroke Program Director

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here are self-fulfilling prophecieswhen it comes to personal percep-

tions. If failure is constantly the focus,then the person must be a completefailure.

Kelly Bethea, MD, Director ofEinstein’s Teen Clinic, wants to changethat focus. An AES innovative programgrant awarded last summer for her MaleAdolescent Health Initiative (MAHI) hasallowed Dr. Bethea to begin the processof altering people’s thinking.

MAHI looks at the strengths, ratherthan the weaknesses, of the youngurban males living in the communitiessurrounding Einstein in an effort tobetter their overall health and wellbeing.This is the first program in the countryto use this approach of comprehensivecare for patients age 12 to 21.

“We are trying to provide a service toyoung males and to look at health out-comes to see if they make a differencein their health and life,” says Dr.Bethea. “Are they being more

responsible, reducing risky behavior,eating better and taking care of chronic illnesses? Those are the questionsMAHI wants to answer.”

Young males have poor health out-comes when compared to females in thesame age range. For example, a reviewof trends over the last 20 years shows no real change in the rate of sexuallytransmitted diseases or smoking whenusing traditional intervention models.“We are at a stagnant point,” says Dr.Bethea, “and we want to counter thatby talking about strengths and build on those strengths.”

Dr. Bethea and her staff recruit youngmales for the project through Einstein’sPediatric and Adolescent Care Center,as well as through health fairs, grouphomes and abuse assistance programs.When they come in, the young men are given a questionnaire on their healthand behavioral habits; home, communityand school life; and their attitudes andfeelings of self-worth. Upon comple-tion of the questionnaire, Dr. Bethea ora member of her team chat with theyoung man, discuss his answers andsuggest next steps. Many in the projecthave been referred to general educationaldevelopment (GED) programs and the

Boys and Girls Club of America tofacilitate some of their sidetrackedambitions.

“How do you work towards the goodabout someone if it is all about the badthings that they do?” Dr. Bethea asks.“MAHI recognizes there is still time togive these young males a chance tochange their lives.”

The man in the mirror

“We are trying to provide a service to youngmales...look at health outcomes...see if theymake a difference...”

- Kelly Bethea, MD

Teen Clinic Director Kelly Bethea, MDand Program Coordinator RonaldRegans chat with a male adolescent at LaSalle University’s gymnasium

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Health Educator Savoeun Krich, MA counsels a young man atEinstein’s Pediatric and Teen Care Center

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ouching and holding practicallybegin with life, starting when a

newborn wraps its whole hand aroundan adult’s finger. When a stroke takesaway the ability to grasp objects, it canbe frustrating on a primal level.

While on vacation, OccupationalTherapist Joe Padova came up with away to give this ability back to some of his patients at MossRehab. An ice-fishing pole he spotted was thin and narrow, durable yet flexible.

Mr. Padova realized its potential inimproving the hand splint he had been working on for his patients.

“Before that vacation, I had made my first version of the splint out ofplastic. One person I worked with in

MossRehab’s Stroke Upper LimbMaintenance Program had been livingwith the use of only one hand since hisstroke five years earlier and had a verytight hand. He tried the splint and wasable to open his hand to grip and dropsmall, thin things, like playing cards.He took it home. He was hoping itwas his to keep,” recalls Mr. Padovawith a laugh. This was the prototypefor the Release Einstein Low profileExtension Assist Splint (RELEAS).

“The fishing pole became the plasticpiece that holds the index and long fingers open. It took about six monthsto come from the plastic one to the current model,” says Mr. Padova. Thesplint’s ability to allow the unopened

hand of a stroke or brain-injury patientto have a functional grasp and releaseseemed like a miracle.

AES awarded a research grant twoyears ago to demonstrate that the splintcan be another option to improve thefunction of the hand affected by astroke. Since then, the device has beenpatented. “To our knowledge, this isthe first splint of its kind in the worldthat helps stroke patients use their handduring activities of daily living. Theidea is a completely new concept,” saysMr. Padova. The production of theblack Neoprene glove that covers thehand and supports the thumb and thesplint components was awarded toTiburon Medical Enterprises Inc. withdistribution capabilities globally.

“RELEAS is different,” says Mr.Padova. “Many other devices are usedfor training only in therapy sessions,not for everyday use. Because of AES,people are getting the RELEAS alongwith the experience of using it atMossRehab. Our next steps are to traintherapists at our satellite facilities withinthe Einstein network and then expandawareness about the splint and trainingthroughout the U.S. Eventually, wewould like to see RELEAS used to helpstroke patients all over the world.”

New splintallows patientsto...Get a grip

Using the RELEAS, patient learns to grasp everyday objectswith stroked-affected hand

Because of AES, peopleare getting the RElEASalong with the experienceof using it at MossRehab.

Adjusting the RELEAS

Joseph Padova, OT works with patient to use the RELEAS

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ancing is much more than hearing musicand moving to it. It creates intimacy, gets

the heart pumping, and enriches fun-filledexperiences.

Simple pleasures like these may seem lostwhen a wheelchair enters a person’s life andtheir able-bodied partners share their isolation.

Former MossRehab patient Diane Murphydid not think staying on the sidelines like awallflower offered wheelchair-users a full life.She heard of Wheelchair Dancing a few yearsago and contacted the MossRehab RecreationTherapy Team to tell them about a great formof exercise and a way to keep a wheelchair userphysically and socially connected to his or her

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No wallflowers allowed — we are alldancing to the same beat

American DanceWheelsFoundation Master TeacherMelinda Kremer training physicaltherapists for dance instructionwith wheelchair users

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partner and others. The benefits for body andsoul convinced AES to award a grant to makeWheelchair Dancing classes accessible to patientsin MossRehab’s rehabilitation therapy programs.

“Wheelchair Dancing has been proven to becathartic and a way for the able-bodied and thedisabled to come together,” says Anne Wieland,Recreation Therapy Team Leader at MossRehab.

Classes began last September and the upcom-ing fall classes for the Rumba, Fox Trot, Swing,Salsa and that classic 1970s club dance, TheHustle, are filling up fast. American DanceWheelsFoundation instructors teach the couples theAmerican-style of social dancing, where theman leads his partner whether he is seated orstanding.

“The classes are about connection to anotherperson. It is a language you teach, so partnerscan follow each other using eye contact if thehands are being used to assist wheelchair move-ments,” says Melinda Kremer, Executive Directorand Master Teacher of the AmericanDanceWheels Foundation.

“The environment fostered at WheelchairDancing is to have people become less self-con-scious about their wheelchair in social settings.The goal is to make them feel comfortable dancing at clubs and weddings and approachingpeople — if they don’t already have a dancingpartner — to get one,” says Ms. Kremer.

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“Wheelchair Dancing is somethingour patients can do after being discharged from our care.”

- Anne Wieland, MossRehab

(L to R) Former MossRehab patient Diane Murphy reviews Wheelchair Dancingclass schedule with MossRehab Recreation Therapy Leader Anne Wieland

For more information about the Albert Einstein Societyand how you can support Einstein’s innovative programsand research, please contact Caren Moskowitz, SeniorDirector of Development at 215-456-7211.

MossRehab Physicaltherapist experiencesdancing while in awheelchair

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is a fact of life that medical emer-gencies happen. When a broken

finger or overall strange feeling hits,driving 35 minutes away for help isnot the better option.

Yet, that is what 60 percent of central Montgomery County residentshave to do when they need certaintypes of specialty healthcare.

People in the East Norriton area canexpect state-of-the-art care whenAlbert Einstein Healthcare Network’s(AEHN) newest addition opens itsdoors next year.

AEHN and Montgomery HealthcareSystem (MHS) began talks in 2005about forming a partnership to buildwhat will become the Philadelphia area’sfirst completely new hospital in a decade.Five years later, on September 13, 2010the partnership culminated with agroundbreaking ceremony for a new,world-class hospital.

MHS officially joined the Einsteinfamily this spring. “Bringing togethertwo organizations with such a stronghistory of providing exceptional care is good for patients, our employees,and the community,” says Barry R.Freedman, Einstein’s President andCEO. “From the beginning, we havefocused on creating a partnership anda new hospital that will provideadvanced healthcare services andenhance the quality of life for familiesin the region for generations to come.”

The 146-bed hospital will remedythe need to seek advanced medicalcare so far from home by offering a

full complement of medical services,including a round-the-clock emer-gency room, the latest diagnosticimaging, an obstetrics unit, smart bedsthat monitor patient data and da Vincisurgical robots for intricate procedures.

“Being involved at Einstein for thelast ten years, I’ve learned so muchabout the healthcare industry,” saysWayne Kimmel, Chairman of theDevelopment Committee of Einstein’sBoard of Trustees. “Barry [Presidentand CEO] and his amazing leadershipteam are doing great things.”

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MEDICAl CENTER IN EAST

NoRRIToN MoVES CloSER

To oPENING DAy

New Digs...

Wayne Kimmel, Einstein’s Board of Trustees DevelopmentCommittee Chairman at Groundbreaking Ceremony

Breaking ground for new hospital (L to R): Montgomery Healthcare System Boardof Directors Chairman Jef Corson, Einstein Boardof Trustees President Richard Sheerr, MontgomeryHealth System President and CEO Timothy Casey,Senator Robert Casey, Jr., Einstein President and CEO Barry Freedman, U.S. Rep. AllysonSchwartz, and U.S. Rep. Jim Gerlach

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The final steel beams were weldedinto place in the spring of 2010. Theexterior concrete walls are in place, theroof and windows have been installedand the building has been weather-proofed — just in time for fall’s coolerclimate. Building the hospital’s interioris the next step.

Einstein and MHS doctors and caregivers were invaluable in creatingthe look and feel of the new facility.Mock-ups of patient rooms, as well as labor, delivery and operating rooms,were constructed and teams ofemployees who will be using them inthe future were invited to tour andprovide their feedback. More than300 suggestions from 200 members ofthe Einstein family were made during the months-long assessment that puteverything from equipment location tolighting to beds under the microscope.“We wanted people to evaluate thespaces based on the type of work theydo and the tasks they would be likely

to perform there,” says Vice Presidentand Project Executive Rich Montalbano.Doctors, nurses, staff, and friends wereimpressed with what they saw of theinside, and the outside is proving to be just as extraordinary.

“The new hospital is proof thatEinstein is becoming a more expansiveorganization that’s serving the greaterpopulation,” says Richard J. Braemer,Esq., a member of Einstein’s Board of Trustees.

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Commonwealth of Pennsylvania gives a $6 million Best Big Picture Award to AEhN

The Commonwealth of Pennsylvania has deemed Einstein’s new medicalcenter in Montgomery County a plus for the region even though its doorshave yet to open. The Pennsylvania Department of Community andEconomic Development’s Infrastructure and Facilities Improvement Program(IFIP) awards millions to projects that economically enhance an area. InJanuary of this year, $6 million was awarded to Albert Einstein HealthcareNetwork (AEHN) based on the jobs, tax revenue and business for local merchants the new 360,000-square-foot hospital will generate. The moneywill be paid out over 20 years and will offset some of the interest fees AEHNincurred in financing the project.

The new hospital will not be completed until the fall of 2012, but a strongeconomic picture already is developing. Six hundred construction jobs werecreated to build the facility and its 75,000-square-foot medical office building,while approximately eight hundred positions will transfer from MontgomeryHospital Medical Center (MHMC) to the new facility when it opens. Another300 to 400 positions are expected shortly afterwards. Local businesses will reapfinancial benefits when the medical center shops for the essentials that will fillits new home— everything from computers to appliances to food will be need-ed to make it fully functional.

Central Montgomery County residents currently travel 30 minutes or more in search of specialty healthcare, but now will find it closer to home.“The new hospital is in a wonderful location. It is right off the SchuylkillExpressway and the Pennsylvania Turnpike. It is on Germantown Pike, whichis a major thoroughfare,” says former Philadelphia City Controller JonathanA. Saidel, Esq. A medical facility in the heart of the county will contribute to the area time and again by attracting people to its state-of-the-art care from throughout the region, as well as from its own back yard.

“The new hospital hasbeen years in the planningand now it's a reality.”

- Richard J. Braemer, Esq.

member of Einstein Board of Trustees Mock-up patient room

for new hospital

Vice President and Project Executive Rich Montalbano providing updates on the new hospital for friends and donors

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he song The Fountain in the Park really isn’t known by that nameat all, but its lyrics, “While strolling through the park one day,

all in the merry month of May” is a phrase familiar to countless children who watched Bugs Bunny. The tune is brought to life each

spring by Montgomery Hospital Medical Center and becomes a reality when hundreds of people turn out for the Medical Center’s Walk Through the Park.

The Walk has been held the Saturday after Mother’s Day for eight years, and hasalways raised money for the Medical Center’s cancer programs. “Sometimes theproceeds go towards something specific, like a digital mammography system; other times for something broader, such as funding our cancer education, outreachand support groups programming,” says Laura McFarland-Bickle, the MedicalCenter’s Director of Marketing and Communications.

As the building of the new Medical Center inMontgomery County draws closer to fruition, the commitment to the cause of fighting cancer and to its surrounding community becomes even more evident.“The Walk and the momentum it generates grow everyyear. The participants are also watching us grow.Through the green trees in the park, everyone could see the new hospital being built and all the new thingsthat are coming,” says Ms. McFarland-Bickle. “WalkThrough the Park is just a really great coming together

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MoNTGoMERy hoSPITAl MEDICAl CENTER’SWAlK ThRouGh ThE PARK RAISES ThouSANDS

oF DollARS EACh yEAR FoR ThE hoSPITAl’SCANCER PRoGRAMS

Going the Distance Not Just a Walk Through the Park

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““Given that the battleagainst cancer affectsfriends and family, theWalk is a reminder thatwe are all in this together and part of a team."

- lauraMcFarland-Bickle

of Montgomery staff and Einstein staff, community members, business people, cancer survivors and family members affected by cancer.”

“The Walk’s first year was very modest with about 50 people, but there aremore walkers each year,” says Pete Scattergood, Vice President, MontgomeryHospital Foundation, and the Medical Center’s Vice President of Development.“Hospital departments, family members and groups of community members formteams to participate in the event.”

This year, four hundred walkers raised thousandsof dollars when they traveled the three-mile routethrough Norristown Farm Park. On average,

$15,000 is brought in each yearthrough registration fees, team sponsorships and donations.

Every year, the event honors thosewho have moved past their diseaseand remembers those who foughtuntil the end. Although the purpose is a serious one, the day is festive. There is time to catch up with friends, music flowsthrough the air and there is plenty of positive energy.

“It turns into a party every year,” says Ms. McFarland-Bickle.“There is always such a great vibe. Lots of children participate

and many babies are in strollers. “Children are more exposed than ever to knowing people with cancer and seeing survivors, such as the ones at the Walk.Fighting back sends an important message.”

Those who have beaten cancer or are in treatment are regulars at the yearly ritual. “They count their survivor years by the Walk. They mark their years by it and they take pride in their participation,” says Ms. McFarland-Bickle. “The Walk is definitely helping us reach into the community as we continue to provide exceptionally intelligent and responsive healthcare.”

“Given that the battleagainst cancer affectsfriends and family, theWalk is a reminder thatwe are all in this together and part of a team."

- laura McFarland-Bickle

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The crowd of 130 people that watched “Oc87: The Obsessive Compulsive Major DepressionBipolar Asperger’s Movie” had their eyes openedto meaningful insight. That night, everyonecould see how behavioral health issues can stop alife in its tracks and how help and understandingare integral to dealing with the issues and leadinga productive life.

Belmont Center for Comprehensive Treatmentand Freda Kraftsow Sacks Family Resource Centerhosted a screening of the documentary film aboutBud Clayman. Mr. Clayman, who also wrote and co-directed the film, says, “I want people to

A life Coming into Focus

Project Transition representative shares information with Oc87 screening attendees

“My recovery isabout acceptanceand getting onwith my life.”

- Bud Clayman

FoR ThoSE STRuGGlING WITh BEhAVIoRAl hEAlTh

ISSuES, FIlM ShoWS lIFE WITh PoSSIBIlITIES

Panel: (L to R) Douglas Cosgrove, MDActing Medical Director, BelmontCenter for Comprehensive Treatment;Edie Mannion, Co-Founder andManager of the TEC at the MentalHealth Association of SoutheasternPA; Bud Clayman, Writer, Director,Principal Subject, Oc87; andKathleen Cantwell, Coordinator,Family Resource Network

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understand that there is more to mental illness than pain and problems. My recovery is about acceptance and getting on with my life.”

Onscreen, Mr. Clayman is candid abouthow he copes with behavioral health issues,the derailment of his acting dreams due tothem, and each painful step back to a full,socialized life. “The film resonates with people,” says Mr. Clayman. “Many havesaid it opened their eyes, and has giventhem hope, or it changed their lives.”

Many emotions were shared as audiencemembers told of their own experienceswith behavioral health issues during thepost-film panel discussion. Panel membersconsisted of Mr. Clayman, DouglasCosgrove, MD, Belmont’s Acting MedicalDirector, Edie Mannion, Co-Founder/Manager of Training and Education Centerat the Mental Health Association ofSoutheastern PA (TEC of MHASP), andKathleen Cantwell, Coordinator of theFamily Resource Network. Some peoplequestioned the panel with the telling oftheir own personal struggles, while othersaddressed the hardship of having familymembers with behavioral health issues.

“An event like the film screening provides information about mental illness, debunks myths about it, reduces its stigma and gives permission for people to come forward with their own stories,” says Dr. Cosgrove, who isboard certified in general adult psychiatry.

“We wanted to show people dealing withbehavioral health issues what is possible inlife,” says Eve Barnett, Assistant Director ofSocial Services at Belmont. “The goal was

to look at people as people. Some issuesare more culturally prevalent, like depres-sion. Beyond that, people struggle withunderstanding. If you’ve never experiencedsymptoms of Asperger’s syndrome or obsessive compulsive disorder, it’s difficultto grasp.”

Removing the screening from a clinicalsetting and making it free to the publicmade it and the message of understandingand healing accessible to the masses. “We chose the International House ofPhiladelphia and served popcorn and sodaso it was just like going to any othermovie,” says Ms. Barnett.

Unlike a night at the multiplex, therewere booths full of information on dealingwith behavioral health issues from eventpartners including the Family Resource

Network, Horizon House, ProjectTransition, TEC of MHASP, PlannedLifetime Assistance Network ofPennsylvania and the National Alliance on Mental Illness.

“Everybody at the screening needs to carry the work forward to make behav-ioral health issues understood. There is still a stigma about mental illness,” saysMs. Barnett. “We need to keep behavioralhealth in the forefront and support thevoice of people with mental illness.”

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“We wanted to show people dealing with behavioral health issues whatis possible in life...The goal was to look at people as people."

- Eve Barnett

"The film resonateswith people...and hasgiven them hope..."

- Bud Clayman

Belmont Staff and Supporters: (Front Row) Eve Barnett, LCSW, Assistant Director, Social Services; Ron Stewart, Peer Specialist; Freda Kraftsow Sacks and Einstein Board Member Ellen Kraftsow-Kogan; Denise Ashton, Business Development; Nancy Beck, Director ofRehabilitation Services. (Back Row) Joseph Pettinati, AVP, Clinical Services; Margaret Meshok, Director, Social Services; Jamie Johnson,School Counselor; Sharon A. Bergen, Chief Operating Officer, Belmont Center for Comprehensive Treatment

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here was David, then Eden. They both suffered fromgenetic diseases that afflict the Ashkenazi Jewish

population, whose ancestors hail from Central and Eastern Europe.

David had FamilialDysautonomia, which causesmalfunctions of the autonomicand sensory nervous system.After 18 years of devastatingseizures and lung infections, hedied in 2009 when his bodycould no longer take a breath.

Eden has Mucolipidosis Type4 (ML4), which leaves her with muscle weakness and

degenerative eye conditions. By age three, she has enduredsurgeries, endless doctor visits and 15 hours a week of therapy.Although she is moving forward, the prognosis for ML4 is notgood: Eden may never walk or talk and most likely will beblind by age ten.

David and Eden did not know each other, but their lives are familiar to hundreds of thousands of people through theVictor Center for the Prevention of Jewish Genetic Diseases’ publication of their stories. Each imparted the cautionary lesson that a simple blood test can give people informationabout the 19 preventable Jewish genetic diseases they mayunwittingly pass on to their children. All of these diseaseshave significant burdens to the child and family and some are fatal in childhood like Tay-Sachs disease.

Atlanta is the Victor Center’s most recent focus for aware-ness and screening of the genetic conditions that affect one infive Ashkenazi Jewish persons. Bernard Marcus, co-founderof The Home Depot Inc., heard about Eden’s family. He wasso deeply moved by her story that he awarded a two-yeargrant of $1.5 million through his Georgia-based MarcusFoundation, for the Victor Center to partner with theFoundation to launch an awareness and screening program,which is now called the Atlanta Jewish Gene Screen.

“New diseases are available for screening. Therefore, infor-mation can be out of date in less than a year. What happenedwith Eden and her family shows how important updated test-ing is. Although the parents were screened, the panel did notinclude all of the tests which were available at the time,” saysVictor Center National Director Debby Hirshman. “Her parents felt they were doing all the right things. They went to the rabbi and the doctor, but no one advised them to screenfor the [then-] 16 genetic diseases with a high carrier rate inthe Ashkenazi Jewish population.”

A comprehensive panel of 19 diseases is one toolin the Victor Center and Atlanta Jewish GeneScreen’s battle for education and screening.

The use of insurance to cover testing, affordable self-payrates for those who have no coverage for screening, coupledwith financial assistance for those with financial hardship,helps us to fight the battle one person at a time. Getting theproper information intothe hands of rabbis anddoctors could impacteven greater numbers.

The Victor Center,which was launched atAlbert Einstein MedicalCenter in 1999, and theAtlanta Jewish GeneScreen are working withthe medical and religiouscommunities to create astandard of testing. “There is sometimes debate about whichdiseases should be included,” says Einstein obstetrician/gyne-cologist and Victor Center Advisory Board Chairman ArnoldW. Cohen, MD. “The Victor Center Advisory Board offersethical, medical and genetic recommendations in those cases.”

As a result of the work of the Victor Center programs, moreconsumers and physicians are educated about the diseases andthe need for testing. In addition, Jewish organizations areaware and are pushing for education. “The internet has made

National Growth SpurtATlANTA, GEoRGIA AND CyBERSPACE ARE ThE MoST

RECENT SToPS IN ThE VICToR CENTER FoR ThE

PREVENTIoN oF JEWISh GENETIC DISEASES’ ExPANSIoN

T

Debby Hirshman, Victor CenterNational Director

Lois B. Victor, Founder of the Victor Centers for Jewish Genetic Diseases

Victor Center educational literature

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a huge difference in awareness,” says geneticist AdeleSchneider, MD, who launched the Jewish GeneticDisease program with an Albert Einstein Societygrant in 1999. Smart phones and the internet makereaching as many people as possible in as many waysas possible attainable. Apps for iPads and iPhonesare in cyberspace and offer a list of genetic diseases,as well as a map of where they are most prevalent—at a person’s fingertips.

The learning experience is extending to the clergy,as well. “The Atlanta Jewish Gene Screen launchstarted on the High Holidays,” says Ms. Hirshman.“We contacted all of the rabbis and they put thepamphlet for Eden’s story in the hands of 17,000people observing Rosh Hashanah and Yom Kippur.”

The Victor Center itself launched when Dr.Schneider was asked to start a program with somerelevance to the Jewish community. “At that time,screening for diseases was becoming more commonwith cystic fibrosis as the prototype,” says Dr.Schneider. “In the Jewish community, Tay-Sachstesting had been going on for 20 years and had beenvery successful.”

Dr. Schneider’s work got the attention of philan-thropist Lois Victor, who had lost two daughters to a Jewish genetic disease. She made it her mission tosee that no one else, be it parent or child, had to suffer in this manner. “She didn’t want anyone elseto experience what she had experienced,” says Dr.Schneider.

A little more than a decade later, the Victor Centerhas branched out from Philadelphia to Boston andMiami and forged relationships with labs and screen-ing programs in the Bronx, Chicago and Phoenix.Now, the Atlanta Jewish Gene Screen and cyberspaceare destined to further the Victor Center’s efforts towipe out these diseases.

Bernard Marcus has been help-ing people build better lives formore than 30 years with his “do ityourself ” empire, The HomeDepot. It was only a matter oftime before he began helping people build better futures.

Mr. Marcus put his childhood lessons to give back to the commu-nity into motion with The MarcusFoundation, serving as Chairman of the Board for the 20-year-old philanthropic organization thatfocuses on Jewish causes, children’s needs, and medical research.One story that combined all three of these focuses, hit close to hisheart and spawned the Atlanta Jewish Gene Screen in the Newark,New Jersey native’s adopted hometown of Georgia.

After hearing the heartbreaking tale of a child born with an illness that only afflicts Jewish people of Central and EasternEuropean heritage, Mr. Marcus sought out the Victor Center forthe Prevention of Jewish Genetic Diseases to bring its already-existing campaign of education and proactive testing to hisbeloved Atlanta. The Victor Center, which was launched atAlbert Einstein Medical Center, raises awareness of and screeningfor 19 Jewish hereditary diseases.

“I was not aware there were more than five genetic disorders for Ashkenazi Jews and I was shocked at the fact there were asmany as there are,” says Mr. Marcus. The Victor Center's workalong with $1.5 million from the Marcus Foundation gave birthto the Atlanta Jewish Gene Screen. “Because Atlanta is our home,many of the grants we make are given here,” says Mr. Marcus.

Physical wellbeing isn’t his only focus, although Mr. Marcus hadchildhood dreams of becoming a doctor and holds a Bachelor ofScience degree in Pharmacy from Rutgers University. His effortsto aid communities in the United States and abroad, including hiscreation of the Israel Democracy Institute think tank in Jerusalem,haven’t gone unnoticed. Mr. Marcus and his wife, Billi, were honored with The Woodrow Wilson Award for Public Service and other honors include the USO Patriot Award, the JewishFederation of Greater Atlanta’s Lifetime of Achievement Award andthe SeaKeeper Award for his work protecting the world’s oceans.

“With each of our grants,” says Mr. Marcus, “we try to fill aneed we have been made aware of and get others involved withmaking sure the need is met.”

BuIlDING A STRoNG FouNDATIoN

Victor Center Advisory Board Chairman Arnold W. Cohen, MD discusses Atlanta JewishGene Screen with Jeffrey Korotkin, MD

Bernard Marcus, Chairman of the board of The Marcus Foundation

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umbers are a universal language,but they can mean different

things to different people. A mathe-matician can use them to unlock thesecrets of the universe. An accountantmay use them as the key to financialstability. Everybody, though, can usenumbers as the gateway to better well-ness by learning their meaning in thecontext of a healthy lifestyle.

Know Your Numbers! A Men’s HealthInitiative was a mass education for themore than 1,200 males who registeredfor the Einstein-sponsored day ofgames, barber services and, mostimportantly, health screenings andeducation about fundamental wellness.

Einstein and the Enon TabernacleBaptist Church, which hosted theevent, easily fulfilled the goal of beingthe largest men’s health screening eventin the Philadelphia area. A visit fromMayor Michael Nutter during themorning sessions confirmed theimpact this event had in Philadelphia.“Never on a Saturday did we dare tohope it would be this large,” says Rev.Leroy Miles, Associate Pastor/Pastor of Counseling who heads Enon'sHealth Ministry. “It went beyond our expectations."

Every man in attendance wasweighed, had his height measured and body mass index (BMI) calculated,

and was privately tested for HIV,hypertension, hyperglycemia, choles-terol and prostate cancer. Once theresults were in, the lessons began onhow these digits are body barometersand how risky it is if they are too highor too low. “We may never know thefinal impact of the day, but the Rev.Dr. Alyn E. Waller, who spearheadedKnow Your Numbers, has extended lives— as a result of this event, mothershave their sons longer, children havetheir fathers longer,” says DoneePatterson, MD, Director of Einstein’sMedical Community Outreach.

Dr. Patterson, Einstein’s Departmentof Medicine Chairman Steven L.Sivak, MD, and several other Einsteinphysicians volunteered in the triagearea where they counseled men whosetests produced shocking figures. Themen that were sent to them neededimmediate attention. The doctorsaverted potential heart attacks andstrokes by sending a few men toEinstein’s Emergency Department.“What the men learned about theirhealth will make a difference in theirlives,” says Dr. Patterson.

Other Einstein physicians volun-teered their services in conductingprostate cancer screenings and filled in the gaps in health education during(L to R) Rev. Dr. Alyn Waller, Pastor of Enon Tabernacle Baptist Church; Nurse Practitioner Angela Stewart, CRNP; Rev. Leroy Miles;

and Rev. Blane Newberry

being community

let me Count the Ways…KNoW youR NuMBERS MAKES ThE RoAD To BETTER

hEAlTh FoR MEN AS EASy AS oNE, TWo, ThREE

NEinstein Medical Community Outreach Director Donee Patterson, MDcounsels participant in triage area

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the open seminars. Topics were wide-ranging and included Prevention andEarly Detection of Cancer with WilliamTester, MD, FACP, Director ofEinstein’s Cancer Center, and So YouWant to be a Weekend Warrior? ComeLearn More About Bone Health withEinstein’s Orthopedics Surgeon EricWilliams, MD.

Endocrinologist Arthur Chernoff,MD, pulled no punches about how toconquer a raging glucose level to aroom full of curious men during hisBeating Diabetes presentation. “Whenyour blood sugar is too high, it is apoison to your body and it can causedamage to your organs,” Dr. Chernofftold the crowd. “If you are at risk, youneed to do something now, not whenyou are diagnosed.” The men got theskinny from Dr. Chernoff on how diet, exercise and food and drink inmoderation will yield better numbersnext time.

Building on a two-year partnershipthat launched Einstein at Enon, anonsite healthcare clinic, Pastor Wallerapproached the event with a very clearvision. “Know Your Numbers is gearedto men’s health because the average guysimply does not know what his bloodpressure or blood sugar levels are,” saysRev. Waller. “Enon is a comfortableenvironment for many of the men inthe community.”

At Enon, there was more freedom tocreate a fun environment with games,refreshments and other activities to goalong with the screenings and seminars.Dubbing the event as “the man cave tocelebrate health” Rev. Waller workedclosely with Einstein’s Vice President ofPhysician Services LuAnn Trainer,Assistant Vice President of PhysicianServices Michael George, and Dr. Sivakto make the event a reality.

All of the men left with a printout oftheir individual screening results, aswell as a Know Your Numbers card.This card entitles them to discounts atmany local businesses that partneredwith Enon and Einstein to support thehealth and wellness of the men in theircommunity.

Jerry Pendergrass, an Enon memberwho is already health conscious due tohis years in the military, joined the seaof men at the health screening and washappy to hear his tests were solid. Heknew that may not be the case for theother men in the room.

Arthur Chernoff, MD

Participants play a game of chess in between screenings

“Being aware of your numbers can mean the difference betweenlife and death...Einstein and Enon saved a lot of lives today.”

— Jerry Pendergrass , Know your Numbers participant

(L to R) Michael George, AVP of Physician Services; LuAnn Trainer, VP of Physician Services; and Steven Sivak, MD,Chairman of the Department of Medicine

Einstein Medical Assistant Kendra Hawkinsscreening for hypertension

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The Small Miracles Golf Tournament has a bevy oftrue believers who are faithful to its mission of raisingfunds for the Albert Einstein Healthcare Network’spediatric programs.

“Small Miracles has been committed to helping children for 23 years. It’s a cause that people want to be involved in,” says Tournament Committee Co-Chairman Jarrett Wells, Esq.

Hundreds of golfers, guests, and countless volunteersturn out the first Monday of every May for the day-long outing that has raised more than $3 million since1988. This year’s figure alone was $275,000.

Proceeds from the tournament have supported a multidisciplinary Autism Clinic, an educational asthma program, renovations to the Adolescent Unit at Belmont Behavioral Health, as well as the Newborn

The Miracle Workers

Einstein Vice President for Facilities Management Bruce Bashwiner putting

SMAll MIRAClES GolF TouRNAMENT’SVoluNTEERS ARE PASSIoNATE ABouT

ThE GoAl oF RAISING MoNEy

FoR PEDIATRIC CAuSES

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Nursery and Neonatal Intensive Care Unitat Albert Einstein Medical Center.

The first ones to sink some putts for SmallMiracles were the avid sportsmen, clubhousechums and fans of the outdoors. Thatmodest group has grown beyond golfers andtheir friends to become the engine thatkeeps the tournament going despite whatmany consider the country’s worst financialstraits since The Great Depression.

“The tournament and its supporters have done a great job of raising money in a difficult economic time, but what makesthis special is that it’s like a family. Beingpart of Small Miracles comes from theheart,” says Rick Fine, MD, Chairman,Department of Anesthesiology. Dr. Fine, a Committee Co-Chairman, has beeninvolved with the tournament for 17 years.

Another Small Miracles long-timer isLinda Lostracco, who has been a member ofthe Einstein family for 38 years and a golfouting volunteer since day one. She hasdone just about everything and anythingthere is to do to get the event going — andshe always is looking for more ways to lenda hand.

“One year, I gave out the prizes to thegolfers. I’ve stuffed goodie bags and soldraffle tickets — I’ll help with whatever it isthat needs to be done,” says Ms. Lostracco.“People come out, rain or shine. It’s a timeto socialize and meet new people from different Einstein departments. There are always new faces.”

The uninitiated may run into a supervisoror two, but Small Miracles creates an even— and green — playing field. “People fromevery segment of the Einstein workforce,from the upper echelon to the frontlines,come out for this,” says Committee Co-Chairman Terence Matalon, MD,Chairman of the Department of Radiology.“We are in this together. It’s our commonbond.”

“There is not any one type of person thatparticipates, but they are all willing to givetheir time,” says Committee Co-ChairmanAdam Rosenfarb. “We still sell out. Westill fill both courses at the PhiladelphiaCricket Club.”

For avid golfer Kimberly Gross, Directorof Special Events and Volunteer Relations,Small Miracles is the most exciting event to plan each year. “It’s hard work, but inthe end we raise a lot of money for our children’s projects, and it always brings outthe Einstein family for a great day of funand camaraderie,” says Ms. Gross.

Support for the Small Miracles GolfTournament is strong, volunteers remaincommitted and there are no signs of passions waning as its 24th year approaches.

Small Miracles Tournament Co-Chairmen: (L to R) Richard Fine, MD; Terence Matalon, MD; Adam Rosenfarb; and Jarrett Wells, Esq.

“We are in this together.It’s our common bond.”

- Terance Matalon, MD

“There is not any one type of person that participates, but they are all willing to givetheir time...”

- Adam Rosenfarb

Einstein Safety Coordinator Linda Lostracco directingSmall Miracles volunteers

(L to R) Caren Moskowitz, Senior Director of Development and Kimberly Gross, Director of Special Events & Volunteer Relations

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EinsteinPhoto Album GROUNDBREAKING CEREMONY

FOR NEW HOSPITAL

(L to R) HHS Region 3 Director Joanne Grossi, Einstein ChiefAdministrative Officer John Finger, and Betsy Sheerr

Ivan and Ruth Gabel

DONOR

APPRECIATION AT

NEIMAN MARCUS

ALBERT EINSTEIN SOCIETY

(L to R) 2011 HonoreesRichard Fine, MD andSusan Bernini, COO withEinstein Board PresidentRichard Sheerr

Carolyn and Samuel Frieder

(L to R) Robert and Susan Hyman,Elaine and Sidney Grobman, MD

Arthur Gershoff, MD, Grace Loewenstein,Rosa and Alberto Esquenazi, MD

Robert Czincila, DO gives tour of mock-up rooms for new hospital

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2011 SMALL MIRACLES

GOLF TOURNAMENT

HARVEST BALL

(L to R) David Rosenberg and Robert Seskin

Dancers having fun

Gilbane Company

(L to R) Ann Waldman, Eileen Seskin,Randi Rosenberg, Janet Lewin

First-place prize winner on the Wissahickon course

BREAST CANCER ACTION GROUP SPRING SYMPOSIUM

Check presentation to the Breast CancerAction Group from Pink Ribbon Journey