Adult Matters E-Newsletter September 2016

Saturdays | October 29 - November 19

10 am - 11:30 am*

DSAGC Hatton Foundation Community Room

$20 fee for 4 weeks

The Employment Series is a 4-week program that provides the tools necessary to obtain and

strengthen skills for finding meaningful employment. One will learn about resumes, determining and

utilizing their character strengths, professionalism and presenting yourself, and interviewing skills.

Each participant will take part in mock interviews in the final week of the series.

October 29th: Resume Writing/Building

Volunteering – build skills towards employment

November 5th: Character Strengths

Finding Jobs That Relate To Your Strengths

Finding Jobs Online

November 12th: Professionalism and Presenting Yourself

November 19th: Put Your Skills into Practice: Mock Interviews

*Lunch to follow - served at 11:30/11:45am

*Extended Session: 10:30am-12:30pm

register here

DSAGC Support Program

Mental Health Services now offered at DSAGC

Although most people seek therapy in the midst of a personal tragedy or crisis, it’s

often easier to work on these goals when you’re not in the middle of bigger or darker

obstacles. There are many other reasons therapy can be helpful such as:

Reorienting yourself toward what you want and need

Learning to be self-compassionate

Helping you to learn how to be better understanding

Helping you to communicate your feelings.

Learning about relationships

Adjusting to life challenges and changes

Managing stress or learning how to handle something that is causing you distress

Learning what you can do to get unstuck from something

FOR MORE INFORMATION OR TO MAKE A

REFERRAL, PLEASE CONTACT:

513.619.2945

www.envisionohio.org

Envision is a certified provider for Medicaid reimbursable services

and can also accept private payment.

Andrea Parker, LSW is taking referrals for individuals 15 years of

age or older, at the DSAGC’s office.

Sessions are offered Fridays from 9am—3pm.

http://dsagc.donordrive.com/index.cfm?fuseaction=donorDrive.event&eventID=627

CPR Certification Class

Sunday | November 13

1:30 - 4:30 PM

DSAGC Hatton Foundation Community Room

$20 per person (pay by cash or check at class)

This course will be video based, instructor led, and feature group interaction and

hands-on coaching and feedback from American Heart Association Instructor,

Kevin Uhl. Skills are taught with the AHA’s research-proven practice-while-

watching technique that allows students to practice skills as the video guides

them. This course is for anyone interested in learning CPR and AED with limited

or no medical training, and/or anyone who needs a course completion card in

CPR and AED use to meet job, regulatory, or other requirements.

Being that is Instructor lead, participants are encouraged to ask any questions

they may have, especially about any special concerns. Kevin will address

anatomical concerns unique to people with Down syndrome.

Questions? Contact Kathleen Ferrara at KathleenF@dsagc.com.

Register Today!

Class is for everyone!

parents, professionals, caregivers, friends, babysitters,

adults with Down syndrome, etc.

Social Opportunities

Social Clubs (ages 16+)

Social clubs serve as an opportunity for our adults with Down

syndrome to take a leadership role in planning and

implementing their own social activities. These clubs were

created to empower adults and increase independence.

There are numerous social clubs throughout our twelve-county

radius. Each club consists of 4 - 8 adults with Down syndrome

and 2 peer partners*. Social clubs meet regularly once a

month, and the goal is to create a consistent schedule (ex: 1st

Friday of the month at 7 pm). Typically, each member of the

social club plans one monthly outing per year to give each

member and peer partner an opportunity to host. Activities can

include sporting events, bowling, dinners, art classes, grill outs,

etc. Activities take place in one location to avoid "in between" transportation. Social club members

pay for their own participation in an activity

Are you or is someone you know interested in joining a social club? Please contact Brianna Reising at

BriannaR@dsagc.com or visit http://www.dsagc.com/programs/social-clubs-ages-16-up/ to find out more!

Advocates in Action (ages 18+)

Advocates in Action is a NEW program for adults with

Down syndrome ages 18 & up. Throughout the year, the

Down Syndrome Association of Greater Cincinnati will

offer a volunteer opportunity for our adults with Down

syndrome. The goal is to spread awareness and give

back to the community.

Are you or is someone you know interested in joining Advocates in

Action? Please contact Brianna Reising at BriannaR@dsagc.com or visit http://www.dsagc.com/programs/advocates-in-

action/ to find out more!

Research Study

Aging & Down Syndrome Research Study What will happen if I take part in the study? You will be asked to help us with: Yearly memory and thinking tests that can be done in a place convenient for you and your

family. A yearly visit to the University of Kentucky for a general physical and neurological exam,

blood tests to check your general health, and a MRI brain scan. This visit will take about 3-4 hours, with breaks and snacks.

Purpose of the study This research is trying to understand healthy brain aging in Down syndrome. The goals of this longitudinal project are: to follow neurological, learning and memory changes in adults with Down syndrome as

they age; to examine brain changes using MRI, magnetic resonance imaging (pictures of the brain)

and; to measure changes in blood proteins. Who Can Join? Men and women with Down syndrome age 25 and older. Interested in a study visit each year for at least five years. You, a family member or caregiver will be willing to answer questions about your health. Why Should I Join? You can help us to better understand how the brain changes in people with Down syndrome as they get older. Though there are no direct benefits to you from the research in this study, you may benefit from:

1) medical examinations by experts in the field, provided free of cost as part of the study. 2) blood tests for early detection of medical issues. 3) MRI scans of the head and neck that are done free of cost as part of the study. In

addition, you will be provided with a picture of your brain scan to take home with you. If we do find an illness, the study doctor will tell your family member or guardian and your primary care doctor within 72 hours so that you can be treated. Volunteers are being invited to take part in a research study involving 80-100 people with Down syndrome, which is being done as part of a study that is funded by the National Institutes of Health.

For more information contact: Roberta Davis (859) 218-3865 or rdavi3@uky.edu

http://www.uky.edu/DSAging/

Ohio SIBS Conference.

Nov. 11-12 at the Embassy Suites in Dublin.

Topics include navigating the DD System to Find Good Providers; Pro-tecting People with Disabilities from Exploitation; Self-Care as a Politi-cal Act: National Policy Updates for Sibs; and more. Registration and more details available online.

Own Your Future Long-term Care Planning Workshop Green Township September 20 & 27, Lebanon September 24, 2016 Registration information

Free Wills and Advance Planning Clinic Legal Aid Society, October 8 Registration information

Dance with My Daddy.

7-10 p.m. Friday, Oct. 7 at the Col-

erain Community Center. Free for chil-

dren and their fathers. Click here for

more information. Register by Aug. 31

to be eligible for giveaways.

Community Events

CLICK HERE

http://goo.gl/Zx4pGI

jennifer.walsh@cchmc.org

Home Modifications Help Family

Earlier this summer, Morgan Lee would often sit in her kitchen in awe. "I couldn't believe it that I was able to get in the kitchen," she said. "I would find myself just sitting in here because I could. I even startled my mom a few times!" This May Morgan's family worked with Hamilton County DD Services to modify the kitchen. Contractors removed some cabinets, installed new counters and created a lower space that allows her to get in and out of the kitchen. They also added a high-arc motion-sense faucet so Morgan can turn water on and off easily. Before these improvements, Monica Lee said her daughter, who is 14 years old, couldn't get her wheelchair in the kitchen to help with dishes or cooking. It was also difficult to find a place for Morgan to work with her school tutor to complete assignments. "It's great to see the expression on her face because she has the free-dom to be able to come in by herself and be able to do things without help," Monica said. "It's made a world of difference and allows her to be independent." Morgan added that these changes are helping her with new skills. "I'm learning how to stand and get stronger every day," she said. "I like to be able to help my mom or my teacher or nurse." Photos provided by the Lee family

New Medicaid eligibility requirements

On Monday, Aug. 1, the Ohio Department of Medicaid (ODM) began using its new Medicaid eligibility system, Ohio Benefits, for people receiving long-term services and supports. People enrolled in home and community based waivers or residing in intermediate care facilities for indi-viduals with intellectual disabilities (ICFs), including state-operated developmental centers (DCs), will have eligibility records in Ohio Benefits, rather than the current system, CRIS-E.

Click here for an ODM summary of the disability determination redesign.

WHEN BEHAVIOR IS A CHALLENGE

November 4, 2016- 10:00AM-3:00PM

This day-long workshop is for family members who want strategies for working with their child with ASD/DD, includ-

ing a focus on positive ways of dealing with behaviors.

COST$0

Instructors: Jennifer Smith, PsyD, Psychologist-TKOC, & Outreach Coordinator

Janet Seide, BS Family Outreach Associate

Where: Cincinnati Children’s Hospital, Liberty Campus, 7777 Yankee Road, Liberty Township, Ohio 45044

To Register Contact: Jennifer Gastright at Jennifer.gastright@cchmc.org or 513-636-2742

Funded in part by Hamilton County DDS

All classes are held on the 5th

floor of the Medical Office Building @ 3430 Burnet Ave. Cincinnati, OH 45229

A short lunch break is provided during all-day classes; onsite café available.

There is no food served during evening classes. Attendees are invited to bring food/snack for themselves & are

welcome to eat during classes.

Classes are for adults-only including parents, professionals, and others caring for or working with children and

adolescents with ASD or other related developmental disabilities. Classes are free of charge unless

otherwise specified.

For all classes you must register to attend: Jennifer Gastright @ 513/636.2742;

Jennifer.gastright@cchmc.org or TKOCLearn@cchmc.org

DDBP Classes

Behavior Workshop

DDBP Classes Continued

Wednesday, October 12

5:30-7:30pm

Cost $0

FEEDING PROBLEMS IN

INDIVIDUALS WITH

ASD/DD

This 2-hour session will address the following topics: com-

mon feeding problems in children with ASD/DD, practical tips

to address feeding problems, and evidence-based behavioral

intervention procedures used to treat feeding problems.

Instructor: Jennifer Smith, PsyD, Psychologist-TKOC

& Outreach Coordinator

Monday, October 17

5:00-7:00 pm

COST $0

Monday, November 7

5:00-7:00 pm

COST $0

*Participants must attend

both sessions

MORE CLASSES

ON BACK OF PAGE

DEVELOPING A FUNCTIONAL

COMMUNICATION SYSTEM FOR

CHILDREN WITH ASD/DD

The first 2-hour session will focus on developing a functional

communication system with pictures for children with ASD/

DD who are non-verbal or have limited verbal language skills.

We will discuss initiation, concrete exchange of pictures sym-

bols, & discrimination training of these pictures. We will also

teach how to use sentence structure with pictures.

The second 2-hour session will focus on children using

speech generating devices. We will discuss where to start

with your child using the speech generating device, as well as

how to incorporate use of the device across all settings in-

cluding home, school, and the community. We will review

appropriate goals for your child and how to implement these

goals across all settings.

Instructors: Jennifer Budde, SLP-DDBP

Monday, November 14

9:00-11:00am

Cost $0

WHAT THE HECK DO I

DO NEXT?

NEXT STEPS AFTER THE

DIAGNOSIS

This two-hour session is for parents/caregivers after their

loved one has received a diagnosis from DDBP. This session

will address the following: What are the available services

through DDBP? How to access available resources in the com-

munity after the diagnosis. This class is for families with chil-

dren ages 2-14.

Instructors: Abbey Walter, LISW-S DDBP-TKOC Social Worker

Janet Seide, BS Family Outreach Associate

We also offer...

Birth Year Groups

2011-2016

Meet families with children born the

same year as your little one!

COMMUNITY GROUPS COORDINATOR | Amy Iten • 513.761.5400 • amyi@dsagc.com

Area Specific Groups

Butler/Warren

Serving families in Butler and Warren counties

B.A.C.H.

Serving families in Brown, Adams, Clinton, Highland and surrounding counties

Eastside

Serving families in the Cincinnati Eastside area and Downtown Cincinnati

K.I.D.S.

“Kentuckians Interested in Down Syndrome” serves families in Northern Kentucky

Westside

Serving families in the Cincinnati Westside area and Downtown Cincinnati

Special Interest Groups

African American Family Network

Serving families by providing information, support and networking

D.A.D.S.

Discussing and networking on the aspects of being the father of a child

with Down syndrome

Hispanic Family Group

Social and educational opportunities for Spanish-speaking families

Please contact Marina at 513.490.2834

Teen Club

Serving teens and parents through social opportunities and networking

Grandparents Facebook Group

Get connected with other grandparents and share great stories about your

grandchildren

A Community Group is designed to create opportunities for families that have children with Down syndrome to network and share

common interests, concerns, challenges and information. They do this through community events, informational meetings and

Facebook groups. All of our community groups are led by service-minded volunteers with the help of our Community Groups

Coordinator.

Community Groups

September Calendar

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

1 2 3

BUDDY WALK

T-SHIRT PICK

UP

4

B.A.C.H. Sum-

mer Swim

Party

5

BUDDY WALK

T-SHIRT PICK

UP

6

BUDDY WALK

T-SHIRT PICK

UP

Butler/Warren -

Ladies Night

Out

7

BUDDY WALK

T-SHIRT PICK

UP

8

BUDDY WALK

T-SHIRT PICK

UP

9

10

15th Anniver-

sary Buddy

Walk

11 12 13 14 15 16 17

18 19 20

Eastside -

Movie Group

Meet Up

21 22 23 24

25

TEEN CLUB -

Foot Golf

26 27 28

Westside -

Moms' Night

Out

29 30

Eastside - Ok-toberfest Picnic

October Calendar

Sunday Monday Tuesday Wednesday Thursday Friday Saturday

1

2 3 4

Butler/Warren -

Ladies Night

Out

5 6 7

Westside -

Family Event

8

Eastside - Fall

on the Farm

9 10 11

D.A.D.S. Meet-

ing

12 13 14

Eastside - So-

cial Club Mixer

15

Family Re-

source Confer-

ence

16

Butler/Warren -

Fall Family Meet

Up

17 18 19 20

Westside -

Moms' Night

Out

21 22

Buddy Up

Tennis (ages 5

& up)

23

TEEN CLUB -

Parent Panel

24 25 26 27

Early Matters

Play Date (ages

0 - 5)

28 29

30

TEEN CLUB -

Halloween Event

31

Buddy Up Tennis

(ages 5 & up)

K.I.D.S - Pumpkin

Patch