A History of Concern Over the Collection & Use of Patient Information - Dr Angus Ferguson -...

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Private and Confidential? A history of concern over the collection and use of patient information 26 February 2015 5pm Venue: Conference Centre Lecture Theatre (423-342) Location: 22 Symonds Street Host: School of Humanities Contact info: Linda Bryder Contact email: [email protected] Public Lecture: School of Humanities Dr Angus Ferguson, Lord Kelvin Adam Smith Fellow in Social Sciences, University of Glasgow. Recent policy developments within the UK, designed to gather together patients’ primary healthcare information in centralised datasets and facilitate greater data linkage and analysis, have provoked heated debate over concerns regarding patient privacy and medical confidentiality. In early 2014, newspaper reports of medical data being sold to insurance companies, coupled with concerns regarding the adequacy of existing governance structures tasked with oversight of research access to such datasets, forced revisions of the proposals for, and delays in the implementation of, the care.data scheme in England. More generally, as technology changes the ways in which information is collected, stored, shared and analysed, privacy/confidentiality concerns are being raised in a variety of clinical and research contexts. While undoubtedly significant, such concerns over medical confidentiality and privacy are by no means new.

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A History of Concern Over the Collection & Use of Patient Information - Dr Angus Ferguson - University of Glasgow

Transcript of A History of Concern Over the Collection & Use of Patient Information - Dr Angus Ferguson -...

Page 1: A History of Concern Over the Collection & Use of Patient Information - Dr Angus Ferguson - University of Glasgow

Private and Confidential? A history of concern

over the collection and use of patient

information

26 February 2015 5pm

Venue: Conference Centre Lecture Theatre (423-342)

Location: 22 Symonds Street

Host: School of Humanities

Contact info: Linda Bryder

Contact email: [email protected]

Public Lecture: School of Humanities

Dr Angus Ferguson, Lord Kelvin Adam Smith Fellow in Social Sciences, University of Glasgow.

Recent policy developments within the UK, designed to gather together patients’ primary healthcare information in centralised datasets and facilitate greater data linkage and analysis, have provoked heated debate over concerns regarding patient privacy and medical confidentiality.

In early 2014, newspaper reports of medical data being sold to insurance companies, coupled with concerns regarding the adequacy of existing governance structures tasked with oversight of research access to such datasets, forced revisions of the proposals for, and delays in the implementation of, the care.data scheme in England.

More generally, as technology changes the ways in which information is collected, stored, shared and analysed, privacy/confidentiality concerns are being raised in a variety of clinical and research contexts. While undoubtedly significant, such concerns over medical confidentiality and privacy are by no means new.

This talk will give an overview of the modern evolution of the boundaries of medical confidentiality and privacy in Britain, illustrating ways in which understandings and approaches have been shaped by individuals, interest groups, controversial issues and contingent events over the past two centuries.