8/7/2019 5th European Patients Rights Day - Francesca Moccia, national coordinator of Tribunal for Patients' Rights conclusions

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8/7/2019 5th European Patients Rights Day - Francesca Moccia, national coordinator of Tribunal for Patients' Rights conclusions

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IMPLEMENTING CIVIC

PARTECIPATION IN HEALTH

Concrete actionsFrancesca Moccia

Tribunal for patients rights

Italy

8/7/2019 5th European Patients Rights Day - Francesca Moccia, national coordinator of Tribunal for Patients' Rights conclusions

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An overview of the results

8/7/2019 5th European Patients Rights Day - Francesca Moccia, national coordinator of Tribunal for Patients' Rights conclusions

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Citizens Recommendations/1

Adoption of the European Charterof Patients Rights as a common

standard and tool for the

assessment of quality andaccessibility of Health service.

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Citizens Recommendations/2

Time, free choice and access tocare must be declared as a priority

in order to achieve an acceptable

Health policy in Europe.

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Citizens Recommendations/3

Disparities in treatment amongEuropean citizens must be reduced.The implementation of the EuropeanDirective on cross-border care must besupported through the spread of shared

quality, information and safetystandards.

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Citizens Recommendations/4

The development and the training of

empowered users must go on, as acontrast with the crisis of the social

model, by:

promoting active citizenship all overEurope;

implementing the right to information;

spreading the patient centred care.

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Citizens Recommendations/5

Local communities must be in

conditions of freely make use oftheir own resources, in the framework

of subsidiarity, with adequate and

certain flows of financial resources as

well as with actions for the support

and training of local leadership.

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A GENERAL COMMITMENT

BUILDING A BASIC VOCABULARY OF

PATIENTS RIGHTSFirst step - agreeing on the meaning of

terms and concepts for overcoming

terminological difficulties

Second step strengthening active

citizenship through mutual support among

citizens organizations

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SPREADING INFORMATION

INCREASING TRAINING

PROMOTING THE EXCHANGING OF BEST

PRACTICES

INCREASING AWARENESS OF

RIGHTS

8/7/2019 5th European Patients Rights Day - Francesca Moccia, national coordinator of Tribunal for Patients' Rights conclusions

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THE GATHERING OF ACTIONS FOR

IMPLEMENTING CIVIC PARTICIPATION

IN HEALTH

Yesterday we have collected about 25forms filled in by some of you:

These forms regard:

your national priorities

concrete actions/ specific

commitments

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Main national priorities emergedInvolving citizens and patients NGOs in

decision making

Providing patients with adequate informationregarding their rights

Implementing the connection between primary

care and the emergency network

increasing media voice to inform, to teach

Taking care of marginalized people

creating international health-watches

concerning epidemiological data

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informing people and society about urgent

priorities

using the Patients Rights Charter as an

occasion for speaking a common language

Being informed, reclaiming a holistic approach,not to be intimidated by the health system

A better understanding of citizens needs

Main national priorities emerged

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Improving the access to care Increasing information and education about

rights

concrete information about instruments to

achieve a good level ofempowerment

Main national priorities emerged

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Concrete actions/specific commitments

implementing indipendent patientsrepresentatives in every hospitalas point forcomplaining

establishing a real national network of patientsorganizations

Press release summary of the survey resultsand discussions of the way forward with differentrepresentatives

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Concrete actions/specific commitments

Involvement of ciciv organizations in thecreation of national patients information Pointson EU Cross-Border DirectiveEvaluation of the results of the new EUDirective throughout the member-states

Involving other countries in the survey on

patients rights (Ireland, Netherlands, ecc.) agreeing on the concrete meaning ofcorrectinformation (ways, time ecc..) and ofinformed consent

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Concrete actions/specific commitments

National launch of survey on Charter of patients

rights

about waiting list: increasing controls and

promoting best practices

establishing national awards about civic

participation

symbolic inititiatives for claiming the

importance of patients rights (national strike,

vow of silence, ecc.)

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THANKS

FOR YOUR

CONTRIBUTION!