265 Yorkland Blvd., Suite 300 M2J 1S5 - ALS Forums Support ... Annual Report English… ·...
Transcript of 265 Yorkland Blvd., Suite 300 M2J 1S5 - ALS Forums Support ... Annual Report English… ·...
ALS Society of Canada265 Yorkland Blvd., Suite 300
Toronto, OntarioM2J 1S5
416-497-2267 1-800-267-4257 toll free
416-497-1256 faxwww.als.ca
What is ALS?
Amyotrophic Lateral Sclerosis, also known as Lou Gehrig’s disease, is a rapidly pro-gressive and fatal neuromuscular disease. It attacks the nerve cells, especially thosein the spinal cord, which control the voluntary muscles throughout the body.When these muscles fail to receive messages, they eventually lose strength, atrophyand die.
History of ALS
ALS was discovered by Dr. Jean-Martin Charcot, a French neurologist, in 1869.He gave a talk to his medical students that captures the essence of our organiza-tion. “Let us keep searching. It is indeed the best method of finding and perhaps,thanks to our efforts, the verdict we will give such a patient tomorrow will not bethe same as we must give this man today.” One hundred and thirty-five years later,researchers continue to look for treatment options and ultimately a cure for thisdevastating disease.
The ALS Society Mission Statement
Founded in 1977 as a national voluntary organization, the ALS Society of Canadafunds research towards a cure for ALS, supports provincial ALS Societies in theirprovision of quality care for persons living with ALS and provides information tobuild awareness about the disease.
CornflowerThe cornflower, also known as the Bachelor’s Button,was chosen to symbolize ALS because it is known to behardy, despite its fragile appearance. The cornflowerblooms in the most adverse circumstances making it theideal emblem for the disease. Its striking blue colornever fades; much like the courage and determinationdemonstrated by those living with ALS.
C O N T E N T SPresident’s Report . . . . . . . . 1
National ExecutiveDirector’s Report . . . . . . . . . 2
Board of Directors andProvincial Society Directors . . 3
ALS Research . . . . . . . . . . . . 4
ALS Canada Award Winners . . 5
Public Awareness &Education Initiatives . . . . . . . 6
Volunteer Profile . . . . . . . . . . 8
Financial Statements . . . . . . . 9
Our Donors. . . . . . . . . . . . . 11
A L SThree letters that changepeople’s lives. Forever.
On the front cover is an aerial photograph of the Colorado River delta, in the Gulf of California (Aeroservice/SPL/PUBLIPHOTO). Brian Dickie, PhD,Director of Research Development, MND Association, UK explains the analogy between the river and ALS (motor neuron disease), “Just as a riverhas many sources, so motor neuron disease (MND) undoutedly has many causes. And, just as all the tributaries of a river feed together into onefinal common pathway, the way a motor neuron dies will have common mechanisms, no matter what the original cause. We are beginning to iden-tify the genetic causes of MND and having this starting point allows us to go into the lab and create new models of the disease, which in turnhelps us follow how motor neurons degenerate from the very earliest stages. As we identify new causes and develop new models, we can beginto cross-reference this information, looking for the points at which these 'degenerative tributaries' meet. If we can identify and understandthese pivotal factors, we can potentially develop treatments which will be effective in all forms of the disease.”
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There is much to be hopeful for,looking into the future, as thefinancial performance of the
Society has remained strong. In fiscal2004, overall revenues of the Societyremained steady. Expenses reflect anincrease in charitable activity that fur-thers the mission of the organization. Asawareness of ALS grows, our ability tofundraise increases. As we broaden ourfundraising approach, we attract newdonors to our mission. As we developvolunteer resources across the country,families with ALS will have more supportto manage their situations. And, as wemature as a voluntary organization, wecontinue to attract strong volunteer lead-ers and excellent staff.
Among the successes in 2004 were manyfundraising activities. We worked withnumerous individuals who committed theirtime and expertise to raising both fundsand awareness for people living with ALS.
2004 WALKs In late 2004, theALS walk was re-branded with a new
name and logo called WALK forALS/MARCHE pour la SLA. In additionto providing families and friends with theopportunity to make a financial impactand support their loved ones, our nation-al signature event is a significant source offunding for research and support services.Last year, units across the country heldwalks in 54 cities with 10,000 volunteerparticipants – including those living withALS, their families and caregivers – raisingmore than $1,600,000 for research andsupport services. The WALK for ALS issponsored by two major companies,Canon Canada and McDonald’s Canada.
Elizabeth’s Concert of Hope 2004Elizabeth’s Concert of Hope raises fundsto combat ALS while simultaneouslyraising public awareness. This year theconcert was hosted by Hamilton newsanchor, Connie Smith and featuredartists such as Lorenna McKennitt andJesse Cook. The four annual Concerts of
Hope have collectively raised more than$1,200,000 for ALS research and sup-port services and in 2004 the concertraised a further $300,000.
Climb for a CureDuring the winter of 2004, a team con-sisting of an ALS Society of Ontario staffmember and 13 Investors Group repre-sentatives embarked on a six-day climb ofMount Kilimanjaro, Africa’s highestmountain, to raise funds for ALS. Theclimb raised more than $100,000 inpledges over a two-year period for ALSresearch and support services.
Jim Hughes Golf ClassicThis year marked the fourth annualFriends of Jim Hughes Golf Classic. Asmall group of volunteers aided by numer-ous sponsors raised more than $95,000 inthe past four years, which goes to ALSresearch and support services.
Betty’s Run (Alberta) Betty’s Run for ALS has now raised morethan $1 million for research and localsupport services. A team of family,friends and colleagues have been makinga difference since 1996 when BettyNorman, an active 58-year-old womanwas diagnosed with ALS. Her inspirationproduced the first This One’s for Bettywalk/run in 1997. Betty died in 1997,just weeks after the first run.
Annual Tim E. Noël Golf Outing This past year marked the fifth successfulyear of the annual Tim E. Noël GolfOuting and raised more than $106,000for the Tim E. Noël Endowment fund insupport of ALS research. This hasbrought the five-year total for the fundto more than $1.3 million. A well-likeddeputy governor of the Bank of Canada,Tim E. Noël was held in high regardwithin the investment community andnews of his diagnosis with ALS mobi-lized his friends to build an endowmentfund in his name to fund ALS research.
f rom the PresidentR E P O R T
Michael Mayne
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Partnership with local units We continue our outstanding and unique partnership with our ALS units across thecountry. There are 10 provincial ALS Societies, one in each province, and they areindependent entities from ALS Canada, working with us in a collaborative fashionwithin the framework of a formal partnership agreement. Their role is to deliver sup-port services and programs to persons affected by ALS. They do not play an activerole in research but are an integral element in the raising of funds through events andthe WALK for ALS for research. All funds raised within a province that are directedfor ALS research flow to ALS Canada for our allocation to appropriate research pro-grams. In that fashion we have a centralized repository which enables us to focus ourefforts rather than a multitude of local initiatives with fewer available dollars.
New Strategic Plan In 2004, the ALS Society of Canada reviewed and updated its 2001 strategic plan toidentify future priorities. The plan outlines the directions for ALS Societies, definesmore clearly the roles and responsibilities of the members of the ALS family and iden-tifies areas of co-operation and communication. The plan was developed with inputfrom the organization’s key stakeholder groups, including board members, unitdirectors and senior staff. The following five initiatives were created to ensure theALS Society will continue to be the leading source for ALS information and supportservices in Canada.
• Enhance and expand ALS Research
• Support consistent and high-quality care
• Expand and diversify revenue sources
• Advocate for ALS
• Renew the organization to support volunteers, staffand the ALS profile
T he ALS Society of Canada is in a good positionto go forward into 2005 and beyond. It willcontinue to grow and strengthen, and is the
trusted source of information in the ALS world. Anew vision for the Society – powerful in its simplicity– was approved by the board in the fall of 2004 – andwill have a tremendous impact in the way the Societyoperates in the future – the ALS Society of Canadaenvisions a cure for ALS.
f rom the National Executive Director
David S. Cameron
R E P O R T
ALS facts
• Every day two to three Canadians die of ALS
• ALS affects the whole family Continued on page 3
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In 2004, we launched a new publicservice advertising campaign with thetheme, “What would you do, whileyou still could?” to raise awarenessabout ALS and our efforts to supportresearch towards a cure for the dis-ease. Created by BBDO Canada, oneof the largest advertising firms in thecountry, on a pro-bono basis, thecampaign includes two, 30-secondand one 60-second television publicservice announcements (PSAs),“Running” and “Hugging.” In thefirst TV spot — “Hugging” — a manhappily hugs everything that appearsin front of him: a policeman issuinghim a ticket, a waitress, a horse in abarn, and then a tree. The copy,“Most people with ALS lose the useof their arms in the first two years ofthe disease” appears on the screen.It’s followed by the campaign tagline, which appears over the imagesof the same man hugging his wifewhile she sleeps. “ALS kills the bodyfirst” along with our toll-free numberand our web-site address. The sec-ond spot – “Running” – features a man running across various places in a city. Hepauses, exhausted, and takes a deep breath. “Most people with ALS lose the use oftheir legs in the first two years of the disease” appears as the man continues running.
PROVINCIAL SOCIETIES
BOARD OF DIRECTORS • 2004-2005
President Michael MayneRichmond Hill, ON
Vice President Sean McConkeyBurlington, ON
Treasurer Bud RobertsToronto, ON
Sibyl Frei Ottawa, ONMichael Gardner West Vancouver, BC
Deborah Lavender Oakville, ON Doretta Thompson Everett, ON
Cathy Martin Edmonton, ABRichard Thompson Ottawa, ON
Bill Tyrer Regina, SK Ben Wendland Langley, BCPaul Muirhead Ottawa, ON
Dr. Monique D'Amour Montreal, QC
Dr. Jean-Pierre Julien Quebec City, QC
PROVINCIAL SOCIETY DIRECTORS • 2004-2005
ALBERTA Tim StauftCalgary, AB
NEW BRUNSWICK Lori WeirSaint John, NB
BRITISH COLUMBIA Menno FroeseAbbotsford, BC
NOVA SCOTIA Briann SmithDartmouth, NS
MANITOBA Marcel BertrandWinnipeg, MB
ONTARIO Nigel Van LoanManotick, ON
NEWFOUNDLAND Cheryl Power& LABRADOR Corner Brook, NL
PEI Betty McNabCharlottetown, PEI
QUEBEC Lise DeschesnesSaint Laurent, QC
SASKATCHEWAN Gloria MillerRegina, SK
EMERITUS
Founder Dr. Arthur HudsonLondon, ON
Alan Marcus, PhD Niagara-on-the-Lake, ON
Keith Norton Toronto, ONKeith Van Beek New Jersey, U.S.
ALS Society of Alberta (and NWT) Calgary, ABwww.alsab.ca
ALS Society of British Columbia (andYukon)
Vancouver, BCwww.alsbc.ca
ALS Society of Manitoba Winnipeg, MBwww.alsmb.ca
ALS Society of New Brunswick Moncton, NB
ALS Society of Newfoundland &Labrador
Corner Brook, [email protected]
ALS Society of Nova Scotia Halifax, [email protected]
ALS Society of Ontario (and Nunavut) Toronto, ONwww.alsont.ca
ALS Society of Prince Edward Island Charlottetown, PEI
ALS Society of Quebec Montreal, QCwww.als-quebec.ca
ALS Society of Saskatchewan Regina, SK
What would you do, while you still could?Report from the National Executive Director continued from page 2
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The ALS Society of Canada is committed to investing our research funds wherethey will have the most impact.
The ALS Society of Canada funds excellent and relevant peer-reviewed research.
The ALS Society of Canada funds research that is evaluated at a high level usinginternational evaluation methods adopted by the Canadian Institutes of HealthResearch.
The key to maintaining successful research in the future is to develop new researchpartnerships, fund excellent and relevant research, cultivate relationships within theALS community and encourage a new generation of scientists to find a cure.Although there is still much to learn about this disease, Canadian ALS researchers areon the cutting edge of the worldwide research that we hope will one day lead to acure for this devastating disease. In 2004, ALS Canada committed more than$600,000, an increase of 28 per cent over 2003, towards research initiatives. We havebegun an innovative program of providing funding to new young researchers in ALSto support them as they embark on their careers into finding a cure for ALS. We haveawarded two recurring doctoral annual grants of $20,000 per year (for up to threeyears) to ensure the scientific community in ALS will be populated in the comingyears.
Neuromuscular Research Partnership
In 1999, The ALS Society of Canada partnered with the Canadian Institutes ofHealth Research, and Muscular Dystrophy Canada to create the NeuromuscularResearch Partnership. This partnership was created to collectively fund healthresearch by providing operating grants in the area of neuromuscular diseases with amandate to find a cause, treatment options and eventually result in a cure. Each part-ner contributes an equal share, and in 2004 the total was $1.65 million.
ALS Research Forum
The ALS Society of Canada hosted its first research forum in the fall of 2004 inToronto. In attendance were top Canadian researchers, as well as the next generationof young post-doctoral researchers—with an interest in ALS research. The forumprovided an opportunity to consult with members of the Canadian ALS researchcommunity to review and recommend priorities and direction for the Society’sresearch program.
A L SResearch
ALS facts
• ALS is a progressive neuromuscular disease
• ALS is not contagious
Cornflower
Motor Neuron
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Research updatesThe ALS Society of Canada expanded its research program and first collaborationwith The ALS Association in the U.S. The two groups jointly fund a project led byDr. Michael Strong, of the Robarts Research Institute and Lawson HealthResearch Institute in London, Ontario. The grant will investigate cognitive impair-ment in sporadic ALS, an area in which Dr Strong is a world leader.
A Canadian medical student, Kevin Harris, has been honored with the prestigiousG. Milton Shy Award from the American Academy of Neurology, for his medicalessay, “Comparison of Quality of Life, Cognition, and Capacity in VentilatorDependent and Non-Ventilator Dependent Amyotrophic Lateral SclerosisPatients.”
Highlighted is some of the researchthat is taking place across thecountry by ALS researchers.
Dr. Heather Durham – at McGill University, Montreal Neurological Institute isexamining cell stress in ALS. The Durham lab has developed a unique culturemodel of familial ALS and is one of the only labs in the world that examines pri-mary motor neuron cultures, providing a unique opportunity to examine motorneurons in vitro.
Dr. Chris Shaw – at the University of British Columbia is researching possibleenvironmental factors for ALS.
Dr. Janice Robertson – at the University of Toronto’s Centre for Research inNeurodegenerative Disease is currently working on furthering the understanding ofthe role that RNA (ribonucleic acid and is a polynucleotide similar to DNA) playsin ALS. Dr. Robertson is the only researcher in Toronto who is focused exclusivelyon ALS.
Dr. Charles Kreiger – at Simon Fraser University is studying the levels of pro-teins in spinal cord tissue from those living with ALS and those not living with thedisease.
Volunteers are the essence of ourSociety – without them, we would be
unable to meet our goals andobjectives. With the solid support ofthe many individuals who generously
provide time, talent, energy and funds,the ALS Society of Canada moves
closer every day to finding a cause andcure for ALS.
The following individuals and groupswere honored for their exceptional
contributions to the ALS Society in 2004:
Mary LipseyHonorary Life Member
Susie FaulknerHonorary Life Member
Murray JordanHonorary Life Member
Jim McLaughlinWilliam Fraser Leadership
Development Award
Dora RedmanMary Pollock WALK for ALS
Volunteer Award
Chris MannExceptional Public Awareness Award
(individual)
Rick Wilkinson, the On a Roll for ALSteam and Mike Pellatt
Exceptional Public Awareness Award (team)
Gary and Shannon SpenceExceptional Fundraising Program
Award (team)
Pierre Lacroix Exceptional Fundraising Program
Award (individual)
The ALS Manitoba Brummitt-FeasbyHouse Committee
Brett YerexExceptional Advocacy Award
Shirley SmallwoodMyra Rosenfeld Volunteer Award
ALS SOCIETY OFCANADA AWARDS
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The following are some of the public awareness and education initiatives that tookplace in 2004:
ALS Awareness Month in June Thousands of ALS volunteers across Canada dedicated their time and efforts to raisemoney for research into ALS. They handed out cornflowers, spoke to the public andprovided information to help ensure that Canadians are made aware of this devastat-ing disease.
3rd Edition of Living with ALS Manual A newly revised Living with ALS Manual was published this year. It is an excellenteducational resource and tool. The manual helps readers to organize personal healthinformation and stimulates discussion between those living with ALS, family mem-bers, and their health-care providers about managing ALS care and coping with anoften rapidly progressive neurological condition.
ALS in the MediaStories of people living with ALS have appeared in many publications and aired onradio and TV from Victoria B.C. to St. John’s, Nfld. We are bringing compelling sto-ries to the attention of the local media thereby building awareness and support forresearch and local services.
Our Web site Our web site – www.als.ca – is visited by thousands of people each month and isrecognized internationally as a timely and accurate source of news and informationfor people living with ALS. It provides user-friendly information that is regularlyupdated with current content as well as offering a convenient means of donatingonline. We have seen more than a 300 per cent growth in visits over the last 12months (June 2004 – June 2005) and more than a 500 per cent growth over the pastthree years.
Public Awareness& Education Initiatives
ALS facts
• ALS is not a rare disease
• ALS affects 7 out of every 100,000 Canadians
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Building External Partnerships The ALS Society of Canada is highly regarded within the Canadian health-charitycommunity, and we will continue to build our external partnerships in the future.Health Canada supported a voluntary health-sector development project led by ALSCanada called Benchmarks of Excellence. This program articulates the indicators ofexcellence in voluntary-sector organizations and delivers a process designed to helpstrengthen strategic planning, leadership team building, operational planning andindividual leadership skills.
Brochures and Awareness MaterialsTo maintain our commitment to improving the quality of life for persons living withALS, eight new Research Updates were created and distributed this year. They pro-vide up-to-date information regarding the latest research so those people living withALS and their caregivers are kept informed. They can be downloaded from our website at http://www.als.ca/research/
Unmasking ALS SymposiumOur second biennial symposium – Unmasking ALS – held in thefall was a great success. Attending the event were ALS board
members, health-care professionals, people living with ALS, currentand former caregivers, ALS Society staff from across Canada, volun-teers and family members. Specific training, leadership development,poster presentations, consultation and networking were featured.
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W hen her husband was diagnosed with ALS in 1997, Lise Deschesnes lookedfor support from the ALS Society of Quebec. She needed help but felt thatthe services the local unit provided were not sufficient so she decided to
take immediate action. She has since demonstrated an extraordinary contribution asa leader and volunteer with the ALS Society of Quebec.
“The ALS Society of Quebec at the time, was run by volunteers who have beentouched by the disease. They provided the services and support that they could, butI thought more could be done with regards to building awareness and funds forresearch.”
With her ability to multitask, Deschesnes began her career in teaching. As a graduatefrom L’Université de Montreal, she received two bachelor degrees in teaching. Shetaught grade one elementary for 37 years before retiring and becoming a volunteerat the ALS Society of Quebec.
In March of 1998, Deschesnes joined the board of directors and became president ofthe Society in June of 1999. Her husband passed away later that same year. She decid-ed not to be a victim of the disease, but to channel her anger and sadness in a posi-tive way. Since then, Deschesnes has been extremely active in the organization. Overthe years, she jumped in and filled roles whenever needed. She answered the phones,listened compassionately to others, initiated support groups and took on the positionas the executive director when needed. At the same time, she was busy networkingand building a new board of directors that would lead the Society into the future. “Idid what I had to do for the cause.”
She works in the office at least three times a week and is a member of ALS Canada’sboard of directors. In 2003, she received an Honorary Life Member award.Honorary Life Members are named in recognition of extraordinary volunteer contri-bution to the ALS Society of Canada.
A dedicated and committed volunteer, Deschesnes puts her heart and soul into theorganization and the cause. She took it upon herself to take the first step in makinga difference. “The more people are aware, the stronger the Society will become, themore lives we can help.”
V O L U N T E E R P R O F I L ELise Deschesnes
“I did what I hadto do for the cause.”
ALS facts
• Approximately 3,000 Canadians currently live with ALS
• Ten provincial societies provide quality care to those affected by ALS
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FUND BALANCE SHEETSAs at December 31, 2004
Tim E. Noël Neuromuscular NeuromuscularEndowment Administration Research Research General 2004 2003
Fund Fund Fund Fund Fund Consolidated Consolidated$ $ $ $ $ $ $
ASSETSCurrentCash - - - - 1,159,359 1,159,359 675,071Short term investments 2,598,349 2,598,349 2,551,216Accounts receivable 523,971 523,971 607,207Prepaid expenses 31,167 31,167 26,254
- - - - 4,312,846 4,312,846 3,859,748
Long termAdvances to ALS units 1,500 1,500 2,000Investments 1,361,860 77,137 1,438,997 1,288,795
1,361,860 - - - 78,637 1,440,497 1,290,795
Inter-fund accounts - - 1,892,478 2,046,922 (3,939,400)
Capital assets 3,742 3,742 7,501
1,361,860 - 1,892,478 2,046,922 455,825 5,757,085 5,158,044
LIABILITIESCurrentAccounts payable 88,783 88,783 46,578Research grants payable 438,561 81,000 519,561 421,018Deferred revenue 267,042 267,042 300,712
438,561 81,000 355,825 875,386 768,308
Long-term research commitments 403,952 20,500 424,452 402,207
842,513 101,500 355,825 1,299,838 1,170,515
ACCUMULATED SURPLUSGeneral Fund 100,000 100,000 100,000Research Fund 1,945,422 1,945,421 1,773,898Neuromuscular Research Fund 1,049,965 1,049,965 862,352Neuromuscular Administration Fund - - (3,335)Tim E. Noël Endowment Fund 1,361,860 1,361,860 1,254,614
1,361,860 - 1,049,965 1,945,422 100,000 4,457,247 3,987,529
1,361,860 - 1,892,478 2,046,922 455,825 5,757,085 5,158,044
STATEMENT OF CHANGE IN FUND BALANCESAs at December 31, 2004
Tim E. Noël Neuromuscular NeuromuscularEndowment Administration Research Research General 2004 2003
Fund Fund Fund Fund Fund Consolidated Consolidated$ $ $ $ $ $ $
Balance, beginning of year 1,254,614 (3,335) 862,352 1,773,898 100,000 3,987,529 3,259,825
Excess (deficit) revenue over expenses 157,246 3,335 (462,387) 734,392 37,132 469,718 727,704
Inter-fund transfers (50,000) - 650,000 (600,000)
37,132 (37,132)
Balance, end of the year 1,361,860 - 1,049,965 1,945,422 100,000 4,457,247 3,987,529
F I N A N C I A L S T A T E M E N T S
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STATEMENT OF REVENUE AND EXPENSEAs at December 31, 2004
Tim E. Noël Neuromuscular NeuromuscularEndowment Administration Research Research General 2004 2003
Fund Fund Fund Fund Fund Consolidated Consolidated$ $ $ $ $ $ $
RevenuesResearch fund raising 25,750 1,121,880 1,147,630 996,333General fund raising 745,057 745,057 775,444Tim E. Noël Endowment fund 102,495 102,495 129,214Direct mail campaign 1,124,580 1,124,580 1,153,270Contribution to NRP administration 3,335 3,335 - Sales & other income - - (682) Project grants 77,595 77,595 163,510 Interest & investment income 54,751 55,143 - 109,894 56,370
157,246 3,335 25,750 1,177,024 1,947,232 3,310,585 3,273,459
Charitable program expensesResearch grants - 446,441 195,157 641,598 500,000 Public awareness 39,472 446,348 485,820 423,626 Volunter & organizational development 148,205 148,205 139,984 Client support & education 209,635 209,635 119,841 Support of ALS regional units 65,634 282,716 348,350 212,921 Project costs 77,595 77,595 163,510 Other research support 24,175 30,350 54,525 31,624
- - 470,616 330,613 1,164,499 1,965,728 1,591,506
Other expensesFund raising 17,521 112,019 485,676 615,216 704,842 Administration - 193,504 193,504 186,093 Governance 66,421 66,421 63,314
- - 17,521 112,019 745,601 875,141 954,249
Total expenses - - 488,137 442,632 1,910,100 2,840,869 2,545,755
Excess (deficit) revenues over expenses 157,246 3,335 (462,387) 734,392 37,132 469,716 727,704
F I N A N C I A L S T A T E M E N T S
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E. Edward Anderson
James B. Archer-Shee
Wilhelmina E. Bakkenes
Karen Barnett
Rhoda Boland
Gary Brent
Frona Brown
Mr. and Mrs. Earl Bulger
David S. Cameron
M. N. Carson
Cindy Church
Frances Cowan
Mary Curnoe
Shirley Davey
Frank Davis
Elly De Jongh
Jerry Del Missier
Daniel A. Devlin
Shirley Dickieson
W.A. Galster
Paul Grace
P. Harvey Griggs
Dan Hill
Pei Ho
Beryl A. Hudson
Michael W. Hunter
Clifford W. Johnson
Marc Jordan
Michelle Kassel
James MacDonald
H. Ross MacKinnon
Larry Mallon
Wayne Mantika
Judith W. Mappin
Alan Marcus
Patricia McArthur
Richard D. McCloskey
Marian K. McEwen
Joseph and Donna McKay
Murray McLauchlan
Cheryl Mulholland
Jack Nesbit
Paul Phoenix
Charles F. Roberts
Kiran Sah
William L. Sauder
John Schaeffler
John Sheard
Louis Silverstein
Barbara J. Simmons
Dennis Starritt
James K. Stewart
In memory of Angela Thacker
Ian Thomas
Ann Thompson
Paul Vaillancourt
David and Susan Van Ihinger
Willem and Susan Van Iterson
Helen Ward
Gordon Waugh
Estate of Anne Kucharski
Estate of Bret Gordon Wilson
Estate of Edwin J. Hart
Estate of Elfriede Klara Else Bosecker
Estate of Evelyn Anne Lillian Soame
Estate of George Wilfred Machell
Estate of George Zimmerman Traill
Estate of Georgie Price Green
Estate of John Guy Winter
Estate of Lily Marie Jeffreys
Estate of Mary Edith Mackay
Estate of Olga Pollock
Estate of Pearl Tomey
Estate of Roland Wedgewood Burns
Estate of Tatsuo (Ted) Hayashi
Estate of William Hamilton Lavery
OUR MAJOR DONORS& SPONSORS
A Special Thank You
The ALS Society of Canada succeeds on thestrengths of its many supporters, donors, and spon-sors. Donations and sponsorships fund innovativeCanadian research, support provincial ALS Societiesin their mission to provide support to people livingwith ALS, and information awareness of this devas-tating disease.
We thank each and every one of our generous donors, from the little girl who canvassed each of her classmates to sup-port the WALK for ALS in memory of her dad, to the kindly woman in British Columbia who planned a gift in her will— her home for more than 50 years, to the philanthropist who has given so generously to the Tim E. Noël EndowmentFund …. and to all the supporters of Elizabeth’s Concert of Hope. These people are symbolic of our thousands of giftdonors, in their generosity, courage and strength.
Thank you to our 2004 major gift donors who support ALS Canada’s mission to find a cure for ALS and to helpimprove lives of people living with ALS.
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1155599 Ontario Limited
Anderson Carpet & Home Ltd.
AON Reed Stenhouse Inc.
Aventis Pharma Inc.
Bailey Metal Products Limited
Ball Corporation
Bank of Montreal
Bank of Nova Scotia
Bell Canada - Helping Hands Open
Hearts
Belle Rive
BMO Nesbitt Burns Inc.
Bush’s Men’s Wear
CanDeal.ca Inc.
Canon Canada Inc.
Carl & Phoebe Conway Family
Foundation
CIBC Mellon Trust Company
CIBC Wood Gundy
CIBC World Markets
Citywide Door & Hardware Inc.
Commission Direct Inc.
Crossley Carpet Mills Ltd.
Cure and Care for Childrens’ Cancer and
Leukemia
Dell Chemists (1975) Limited
Desjardins Credit Union
Deutsche Bank AG - Canada Branch
Dofasco Inc.
Edenview Financial Inc.
Elsa Reia N Studio
Ernst & Young
Fenwick Automotive Products
Freedom International Brokerage
Company
Gibson Canada and Gobal Inc.
Glorada Holdings Ltd.
GNP Securities Ltd.
Great Glasses
Hamilton Community Foundation
Hamilton Port Authority
Harry and Toby Jordan Foundation
Hickory Dickory Decks
HSBC Securities (Canada) Inc.
IMS Marketing Services Inc.
Inco Limited
Investors Group Financial Services Inc.
Jake’s Grill & Oyster House & Jake’s
Catering
John Deere Foundation of Canada
JP Morgan Securities Canada Inc.
Kravet Fabrics Canada Inc.
Lilydale Foods
London Life Insurance Company
McDonald’s Restaurants of Canada Ltd.
Merrill Lynch Canada
Michael R. Pettes Design
Namasco Ltd.
National Bank Financial
National Life of Canada
Newton & Blair Design
Nortroloc Inc.
Nova Steel Ltd.
Ontario Lottery Gaming Corporation
Ontario Power Generation Employees
Charity Trust
Partslink Ltd.
PPG Canada Inc.
Praxair Canada Inc.
Protax Financial Services Inc.
Raymond James Ltd.
RBC Foundation
Russel Metals Inc.
Safeway Inc.
Samuel, Son & Co., Limited
Sauder Industries Ltd.
Scotia Capital Markets
Shadowcorp Investments Limited
Sharic Manufacturing System
Consultants
Shorcan International Brokers
Skinworks For You Inc.
Smith’s Funeral Home
Staff Association WSIB - Charity Trust
Fund
Taylor Steel Inc.
TD Canada Trust
TD Securities Inc.
TD Waterhouse
Telus Comunications - Employees
Charitable Trust
The BLG Foundation
The Canada Life Assurance Company
The Dominion of Canada General
Insurance Company
The EJLB Foundation
The Generation Connection Society
The GlaxoSmithKline Foundation
The Great West Life Assurance Company
The Henry White Kinnear Foundation
The Lillian & Don Wright Foundation
The Oyster
The Studio Gallery
The Three Oaks Foundation
The Toronto-Dominion Bank
Toyota Canada Inc.
Triax Capital Holdings Ltd.
TSX Group
Tyler Investments Inc.
Versent Corporation
Waven Art Studio
Xerox Canada Ltd.
Yongetex Limited
York Spring & Radiator Services Ltd.
Thank you to the many organizations across the nation who provided donations and sponsorship of more than $1,000 tosupport ALS Canada’s research, community services, public education and awareness programs.